Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2024-11-26DOI: 10.1007/s11136-024-03857-z
Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert
{"title":"Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data.","authors":"Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert","doi":"10.1007/s11136-024-03857-z","DOIUrl":"10.1007/s11136-024-03857-z","url":null,"abstract":"<p><strong>Purpose: </strong>Early onset colorectal cancer (EOCRC) is rising. The profile of health-related quality of life (HRQOL) impacts may differ in this younger cohort. Online forums are a source of unfiltered information regarding patient experience. This study used a qualitative analysis of online forum messages to elicit the unique HRQOL impacts of EOCRC.</p><p><strong>Methods: </strong>Messages were extracted from an online EOCRC UK forum. Inductive coding (with 10% dual-coding) and thematic analysis were used to describe the impact of diagnosis and treatment on HRQOL.</p><p><strong>Results: </strong>Data extraction and analyses were performed over one month; 463 messages (dated 01/04/2019 to 31/03/2024) were included. There was 100% concordance on dual-coding for main themes. Eight themes emerged: (1) diagnostic pathway and barriers; (2) parenthood and effect on children; (3) employment and finances; (4) fertility and early menopause; (5) stoma implications; (6) support systems, relationships and isolation; (7) sport and exercise and (8) mental health.</p><p><strong>Conclusions: </strong>Qualitative thematic analysis of online forum data is a novel and efficient methodology for understanding the impact of cancer on HRQOL. Identified themes overlapped with those published in previous systematic reviews. This study offers new insights into the impact of isolation, early menopause, benefits of parenthood, psychological impact on children and practical and psychological implications of potential infertility in EOCRC. Current understanding of the diagnostic challenges and unique HRQOL impacts of EOCRC raises future research questions regarding how colorectal cancer services should evolve to provide support more in keeping with the needs of this growing younger cohort.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1003-1013"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982157/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142716976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2024-12-12DOI: 10.1007/s11136-024-03873-z
Nicolai D Ayasse, Cheryl D Coon
{"title":"Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials.","authors":"Nicolai D Ayasse, Cheryl D Coon","doi":"10.1007/s11136-024-03873-z","DOIUrl":"10.1007/s11136-024-03873-z","url":null,"abstract":"<p><strong>Purpose: </strong>Item response theory (IRT) models are an increasingly popular method choice for evaluating clinical outcome assessments (COAs) for use in clinical trials. Given common constraints in clinical trial design, such as limits on sample size and assessment lengths, the current study aimed to examine the appropriateness of commonly used polytomous IRT models, specifically the graded response model (GRM) and partial credit model (PCM), in the context of how they are frequently used for psychometric evaluation of COAs in clinical trials.</p><p><strong>Methods: </strong>Data were simulated under varying sample sizes, measure lengths, response category numbers, and slope strengths, as well as under conditions that violated some model assumptions, namely, unidimensionality and equality of item slopes. Model fit, detection of item local dependence, and detection of item misfit were all examined to identify conditions where one model may be preferable or results may contain a degree of bias.</p><p><strong>Results: </strong>For unidimensional item sets and equal item slopes, the PCM and GRM performed similarly, and GRM performance remained consistent as slope variability increased. For not-unidimensional item sets, the PCM was somewhat more sensitive to this unidimensionality violation. Looking across conditions, the PCM did not demonstrate a clear advantage over the GRM for small sample sizes or shorter measure lengths.</p><p><strong>Conclusion: </strong>Overall, the GRM and the PCM each demonstrated advantages and disadvantages depending on underlying data conditions and the model outcome investigated. We recommend careful consideration of the known, or expected, data characteristics when choosing a model and interpreting its results.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1125-1136"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142813991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2024-11-29DOI: 10.1007/s11136-024-03858-y
Victoria Gale, Philip A Powell, Jill Carlton
{"title":"The comprehensibility continuum: a novel method for analysing comprehensibility of patient reported outcome measures.","authors":"Victoria Gale, Philip A Powell, Jill Carlton","doi":"10.1007/s11136-024-03858-y","DOIUrl":"10.1007/s11136-024-03858-y","url":null,"abstract":"<p><strong>Purpose: </strong>Evidence of comprehensibility is frequently required during the development of patient reported outcome measures (PROMs); the respondent's interpretation of PROM items needs to align with intended meanings. Cognitive interviews are recommended for investigating PROM comprehensibility, yet guidance for analysis is lacking. Consequently, the quality and trustworthiness of cognitive interview data and analysis is threatened, as there is no clear procedure detailing how analysts can systematically, and consistently, identify evidence that respondent interpretations align/misalign with intended meanings.</p><p><strong>Methods: </strong>This paper presents a novel, structured approach to comprehensibility analysis - the 'Comprehensibility Continuum' - that builds upon existing cognitive interview guidance.</p><p><strong>Results: </strong>The Comprehensibility Continuum comprises a structured rating scale to code depth of alignment between intended item meaning and respondent interpretation and consists of five main stages: before cognitive interviews are conducted, researchers must (1) Define intended meanings of PROM items; and (2) Determine comprehensibility thresholds for both participant- and item-level. After conducting interviews, they (3) Prepare data by transcribing interviews 'intelligent' verbatim; (4) Code transcripts using the Comprehensibility Continuum scale in iterative sets, assigning an overall code for each item at participant-level; and (5) Compare participant-level codes across all participants to determine overall item comprehensibility, such that decisions can be made to retain, modify, or remove items.</p><p><strong>Conclusion: </strong>Quality in qualitative data analysis is achieved through rigorous methods that are clearly described and justified. Given insufficiency in guidelines, cognitive interviewers must reflect on how best to demonstrate PROM comprehensibility systematically and consistently from interview data, and the Comprehensibility Continuum method offers a potential solution.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"937-947"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982068/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142771484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2025-01-20DOI: 10.1007/s11136-025-03896-0
Aksel Paulsen, Ane Djuv, Ingvild Dalen
{"title":"Clinical cut-offs for hip- and knee arthroplasty outcome - minimal clinically important improvement (MCII) and patient acceptable symptom state (PASS) of patient-reported outcome measures (PROM).","authors":"Aksel Paulsen, Ane Djuv, Ingvild Dalen","doi":"10.1007/s11136-025-03896-0","DOIUrl":"10.1007/s11136-025-03896-0","url":null,"abstract":"<p><strong>Purpose: </strong>Clinical cut-offs like minimum clinically important improvement (MCII) and patient acceptable symptom state (PASS) increase the interpretability of patient reported outcome measures (PROMs), but cut-off estimates vary considerably, clouding a clear definition of a successful surgical outcome. We report estimates of MCII and PASS following hip- and knee arthroplasty using multiple methods and compare the different estimation methods.</p><p><strong>Methods: </strong>Elective hip or knee arthroplasty patients who underwent the regular pre- and postoperative assessments 2014-2018 were included. The generic EQ-5D-5L and either the Hip or Knee disability/injury and Osteoarthritis Outcome Score (HOOS/KOOS) were used. MCII and PASS were estimated based on multiple estimation techniques.</p><p><strong>Results: </strong>Distributions were skewed, with up to 95% being acceptable according to anchor questions. MCII estimates for HOOS/KOOS Pain ranged 21-60/10-47, with fewest in-sample misclassifications for the lowest cut-offs, provided by the 75th percentile approach. PASS estimates for HOOS/KOOS Pain ranged 84-93/78-91, for EQ-5D Index/EQ-VAS 0.87-0.92/66-79 (for hip), and 0.79-0.88/66-76 (for knee), with fewest misclassifications for the 75th percentile approach (hip) and Pythagoras approach (knee). The 75th percentile approach was the approach most often giving MCII estimates below the minimal detectable change (MDC).</p><p><strong>Conclusions: </strong>We report new one-year estimates of MCII and PASS of HOOS, KOOS and EQ-5D subscales following hip- and knee arthroplasty. Estimates varied considerably when using different anchors and estimation techniques. Overall, the 75th percentile approach had fewest misclassifications, and had the lowest thresholds for the MCII estimations, but which were often below the MDC.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1147-1158"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982088/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143010569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2024-11-23DOI: 10.1007/s11136-024-03851-5
Nadine Henderson, Sian Hodgson, Brendan Mulhern, Katie Page, Chris Sampson
{"title":"A qualitative systematic review of the impact of hearing on quality of life.","authors":"Nadine Henderson, Sian Hodgson, Brendan Mulhern, Katie Page, Chris Sampson","doi":"10.1007/s11136-024-03851-5","DOIUrl":"10.1007/s11136-024-03851-5","url":null,"abstract":"<p><strong>Purpose: </strong>Hearing loss, deafness, and other hearing-related conditions can significantly impact quality of life; numerous qualitative studies have sought to describe these impacts. Synthesis of these findings may provide additional or more robust insights.</p><p><strong>Methods: </strong>A qualitative systematic review of studies reporting qualitative data relating to the impact of hearing problems on adults' health-related quality of life. A subset of studies was included in the review and subsequently analysed using a thematic approach.</p><p><strong>Results: </strong>The literature search yielded 129 studies, of which 22 met our inclusion criteria and were included for analysis. The included studies, primarily from Australia, the UK, and the USA, involved approximately 450 participants with various hearing conditions. Semi-structured interviews and focus groups were the most common data collection methods, with thematic analysis being the predominant analytical approach. Three overarching categories of descriptive themes were identified: Physical, Mental, and Social. Physical encompassed sound localization, sound clarity, speech, and physical fatigue. Social included relationships, isolation, communication, independence, work function, social stigma, and confidence. Mental encompassed depression, anxiety, listening effort, mental fatigue, fear, and identity. The identified themes shed light on the diverse domains of health-related quality of life affected by hearing conditions.</p><p><strong>Conclusion: </strong>Differences in hearing function impact upon people's health-related quality of life in a variety of ways relating to physical, mental, and social aspects of health, and these themes are clearly demonstrated across qualitative studies. These results will inform the development of hearing-specific questionnaire items for with the EQ-5D descriptive system, a commonly used patient-reported outcome measure.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"879-892"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982117/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142695727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2024-12-26DOI: 10.1007/s11136-024-03879-7
Büşra Nur Temür, Mustafa Volkan Düzgün, Nilgün Aksoy, Ayşegül Işler, Elif Çetinkaya
{"title":"Living with a new kidney from the perspective of adolescents: A mandala-supported qualitative study.","authors":"Büşra Nur Temür, Mustafa Volkan Düzgün, Nilgün Aksoy, Ayşegül Işler, Elif Çetinkaya","doi":"10.1007/s11136-024-03879-7","DOIUrl":"10.1007/s11136-024-03879-7","url":null,"abstract":"<p><strong>Background: </strong>Despite advances in transplant procedures, children and adolescents still face some challenges post-transplant and are at high risk for psychiatric, academic, and social problems. This study aims to explore the lived experiences of adolescent kidney transplant recipients through interviews and the use of mandala art therapy.</p><p><strong>Methods: </strong>This study adopted a descriptive phenomenological design and thematic analysis approach based on Husserl's philosophy. The sample included kidney transplant recipients aged 12-18 years admitted to the pediatric nephrology polyclinic of a university hospital in southern Türkiye. Data were collected through in-depth interviews conducted during a mandala art activity with 14 adolescent kidney transplant recipients. The qualitative data were analyzed using Colaizzi's seven-stage qualitative analysis method, which is suitable to the descriptive phenomenological design employed in the present study.</p><p><strong>Results: </strong>Four themes and seven subthemes emerged from the data related to the problems and experiences of adolescents with kidney transplantation and growing up with a new kidney. (1) Education, (2) Ideas about the kidney; including the sub-themes \"What the kidney transplant process gave them, Feelings about their kidneys\", (3) Family; including the sub-themes \"Relationship with the donor, Relationship with siblings\", (4) Social environment; including the sub-themes \"Experiences with hospital, Relationship with friends and Desire for friendship with a transplanted Peer\".</p><p><strong>Conclusion: </strong>Mandala art therapy-assisted interviews are an effective communication method for adolescent kidney transplant recipients to express their feelings and thoughts and to look at life from a broader perspective. Understanding the life experiences of adolescents with kidney transplantation and the difficulties they face may enable better and more systematic planning of the care to be given to them.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1017-1026"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142897116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Impact of surgery versus follow-up on psychological distress in patients with indeterminate pulmonary nodules: A prospective observational study.","authors":"Junhan Wu, Weitao Zhuang, Rixin Chen, Haijie Xu, Zijie Li, Zihua Lan, Xin Xia, Zhe He, Shaopeng Li, Cheng Deng, Wei Xu, Qiuling Shi, Yong Tang, Guibin Qiao","doi":"10.1007/s11136-024-03876-w","DOIUrl":"10.1007/s11136-024-03876-w","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate whether surgery is more effective than follow-up in reducing psychological distress for patients with observable indeterminate pulmonary nodules (IPNs) and to assess if psychological distress can serve as a potential surgical indication for IPNs.</p><p><strong>Methods: </strong>This prospective observational study included 341 patients with abnormal psychometric results, as measured by the Hospital Anxiety and Depression Scale (HADS). Of these, 262 patients opted for follow-up and 79 chose surgery. Initial psychological assessments (HADS1) were conducted at enrollment following nodule detection, with a second assessment (HADS2) one year later. A comparative analysis of dynamic psychological changes (ΔHADS: HADS2-HADS1) between the follow-up and surgical groups was performed.</p><p><strong>Results: </strong>Both groups showed reductions in HADS-A [- 3 (IQR, - 7 to - 1) for follow-up and - 3 (IQR, - 6 to - 1) for surgery] and HADS-D scores [- 2 (IQR, - 4 to 0) for follow-up and - 3 (IQR, - 7 to 0) for surgery]. Univariate analysis revealed that the surgical group had a significantly greater reduction in HADS-D scores compared to the follow-up group (Z = - 2.08, P = 0.037), but there were no significant differences in the changes in HADS-A scores between the groups (Z = - 1.04, P = 0.300). However, in multivariable analysis, surgery did not significantly improve the alleviation of depressive symptoms compared to follow-up (β = - 0.72, 95% CI: - 1.57 to 0.14, P = 0.101). Within the surgical group, female patients reported less relief from anxiety than male patients (Z = - 2.32, P = 0.021), and symptomatic patients experienced less relief from both anxiety (Z = - 2.14, P = 0.032) and depression (Z = - 3.01, P = 0.003).</p><p><strong>Conclusions: </strong>Surgery does not provide additional psychological benefits over follow-up. This study does not support using psychological distress as a criterion for surgical intervention in IPNs from a psychological perspective. Trial registry ClinicalTrials.gov (NCT04857333).</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1167-1177"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142984612","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Quality of Life ResearchPub Date : 2025-04-01Epub Date: 2025-01-17DOI: 10.1007/s11136-025-03891-5
Kirsten A Nyrop, Allison M Deal, Coral H Aman, Hyman B Muss, Bryce B Reeve
{"title":"Comparison of patient-reported symptoms with multi-item patient-reported outcome measures of fatigue, anxiety, and depression in the clinical care of women undergoing chemotherapy for early breast cancer.","authors":"Kirsten A Nyrop, Allison M Deal, Coral H Aman, Hyman B Muss, Bryce B Reeve","doi":"10.1007/s11136-025-03891-5","DOIUrl":"10.1007/s11136-025-03891-5","url":null,"abstract":"<p><strong>Background: </strong>As patient-reported symptoms are increasingly incorporated into routine clinical practice and captured in electronic medical records these data can be used to conduct health-related quality of life research studies. This study compares symptom reports from the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) and its precursor patient reported symptom monitoring (PRSM) (hereafter PRSM/PRO-CTCAE) with multi-item patient-reported outcome (PRO) scales for fatigue (Functional Assessment of Chronic Illness Therapy/FACIT-Fatigue) and depression and anxiety (Mental Health Index/MHI).</p><p><strong>Methods: </strong>This is a secondary analysis of data collected from women with early breast cancer (Stage I-III) scheduled for chemotherapy who completed PRSM/PRO-CTCAE, FACIT-Fatigue, and MHI scales pre- and post-chemotherapy. Spearman correlation coefficients estimated the magnitude and direction of correlations between measures (convergent validity). For each symptom, patients were then categorized based on who improved, stayed the same, or worsened on the composite PRSM/PRO-CTCAE score, and changes in scores on the PRO scales were compared.</p><p><strong>Results: </strong>In a sample of 374 women, mean age was 57 years (SD 12.6) with 76% White. PRSM/PRO-CTCAE fatigue measures were strongly correlated with FACIT-Fatigue total scale and had mixed moderate to strong correlation for individual items within the FACIT-Fatigue scale. PRSM/PRO-CTCAE Sad and Anxiety measures were strongly correlated with MHI-Depression and MHI-Anxiety total scales, respectively, and had mixed moderate to strong correlation with individual items within the MHI subscales. PRSM/PRO-CTCAE pre-post changes in symptom scores mirrored pre-post changes in FACIT-Fatigue and MHI subscales.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1069-1077"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143010571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study.","authors":"Thao Thai, Lidia Engel, Sandra Eades, Lena Sanci, Robyn William, Pippa Gregory, Justine Whitby, Cathrine Mihalopoulos","doi":"10.1007/s11136-024-03870-2","DOIUrl":"10.1007/s11136-024-03870-2","url":null,"abstract":"<p><strong>Background: </strong>Mainstream preference-based quality of life (QoL) measures have been traditionally based on Western principles of health. It is critical to examine whether existing preference-based QoL measures capture what is important to Indigenous people while being comprehensive and culturally acceptable. This study aims to assess the content and face validity of the EuroQol-5 dimensions 5-levels (EQ-5D-5 L), 12-item short form survey (SF-12), assessment of quality of life-6 dimensions (AQoL-6D), and recovering quality of life 10-item (ReQoL-10) within the context of indigenous youth mental health.</p><p><strong>Methods: </strong>Eight individual yarns and five yarning circles were conducted with 20 indigenous young people aged 15-25 years, with a history of at least 1 mental health problem in the Perth and Bunbury regions of Western Australia. The measures were explored in random order using the yarning approach, and then ranked by relevance by participants. Data were analysed using thematic and constant comparative approaches.</p><p><strong>Results: </strong>The face and content validity of each preference-based QoL instrument was summarised into four themes: (1) appropriateness, (2) comprehensiveness, (3) comprehensibility, and (4) layout and format. The ReQoL-10 emerged as a more suitable measure due to its mental health focus, clear response options, and well-designed layout and format. While some positive comments were made about the other measures, there were critical issues around their content and face validity. Our data revealed a clear preference for the ReQoL.</p><p><strong>Conclusion: </strong>The ReQoL-10 appears to be a promising measure in the context of indigenous youth mental health, and was explicitly preferred by indigenous youth.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"963-975"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142847542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert
{"title":"Correction: Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data.","authors":"Alice Spencer, Christopher Bedding, Emma Nicklin, Hélène Flint, Alexandra Gilbert","doi":"10.1007/s11136-025-03938-7","DOIUrl":"10.1007/s11136-025-03938-7","url":null,"abstract":"","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":"1015"},"PeriodicalIF":3.3,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11982151/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143582358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}