Quality of Life Research最新文献

筛选
英文 中文
"If we ask, we must act": co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2). “如果我们要求,我们必须采取行动”:共同设计实施EQ-5D-Y-5L作为儿童常规医院门诊护理儿科患者报告的结果衡量标准,以有意义地影响临床就诊(P-PROM ROCK第2期)。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-31 DOI: 10.1007/s11136-025-03996-x
Renee Jones, Kim Dalziel, Harriet Hiscock, Karen McLean, Diana Truong, Andrew Tuan Phuong Dao, Kathe Holmes, Kath Feely, Jessica Taranto, Abby Palmer, Tanya Wolfe, Penny Richards Fowler, Kirsten Pini, Max Pini, Einat Martonovich-Lantsberg, Joanna Lawrence, Misel Trajanovska, Adele Berry, Valerie Sung, Sebastian King, Nancy Devlin
{"title":"\"If we ask, we must act\": co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2).","authors":"Renee Jones, Kim Dalziel, Harriet Hiscock, Karen McLean, Diana Truong, Andrew Tuan Phuong Dao, Kathe Holmes, Kath Feely, Jessica Taranto, Abby Palmer, Tanya Wolfe, Penny Richards Fowler, Kirsten Pini, Max Pini, Einat Martonovich-Lantsberg, Joanna Lawrence, Misel Trajanovska, Adele Berry, Valerie Sung, Sebastian King, Nancy Devlin","doi":"10.1007/s11136-025-03996-x","DOIUrl":"10.1007/s11136-025-03996-x","url":null,"abstract":"<p><strong>Purpose: </strong>To co-design use of the EQ-5D-Y-5L, a generic Paediatric Patient Reported Outcome Measure (P-PROM), in Routine Outpatient Care for Kids (ROCK), maximising its impact on patient-clinician visits.</p><p><strong>Methods: </strong>This Phase 2 co-design study was guided by the co-design framework for public service design and Double Diamond model. Data collection involved facilitated workshops (building on Phase 1), followed by feedback and optimisation sessions. Participants included service providers (doctors, nurses, allied health and medical record staff), adolescents, and caregivers with lived experience of providing or receiving outpatient care at a tertiary paediatric hospital in Australia.</p><p><strong>Results: </strong>Five co-design workshops, nine feedback, and two optimisation sessions were conducted with nine service providers, two adolescents, and three caregivers. Co-design participants created resources to introduce EQ-5D-Y-5L as a 'general health tracking questionnaire' and explain its purpose. EQ-5D-Y-5L responses were designed to be displayed by item. A display of results over time was also designed. A patient empowerment approach was taken with regards to flagging specific EQ-5D-Y-5L items for discussion with clinicians, whereby patients or caregivers control which items are flagged. To ensure clinical review and action of EQ-5D-Y-5L responses, resources, including clinician training, clinician decision support tool, and matching patient booklet and resource pathway, were co-designed. Combined, these design elements make up the P-PROM ROCK Program.</p><p><strong>Conclusion: </strong>Consumer engagement produced important insights that would've otherwise been missed, ensuring the P-PROM ROCK Program empowers patients. For generic P-PROMs to meaningfully impact patient-clinician visits, supports and resources are required to ensure clinical review and action.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144192125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Commentary on "Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review". 对“基于健康相关生活质量指数和症状特异性结果的放疗后头颈癌患者生存预测因素:系统综述”的评论。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-30 DOI: 10.1007/s11136-025-04000-2
Efsun Somay, Erkan Topkan, Ugur Selek
{"title":"Commentary on \"Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review\".","authors":"Efsun Somay, Erkan Topkan, Ugur Selek","doi":"10.1007/s11136-025-04000-2","DOIUrl":"10.1007/s11136-025-04000-2","url":null,"abstract":"<p><p>We read with great interest the systematic review by Ghazali et al., which rigorously synthesizes data from 32 longitudinal studies involving 12,206 patients to explore the prognostic significance of health-related quality of life (HRQoL) and symptom-specific outcomes in patients with head and neck cancer (HNC) undergoing radiotherapy (RT). The authors employed best-evidence synthesis methodology and highlighted post-treatment physical function as a robust predictor of overall survival (OS). Moreover, the study underscores the prognostic impact of several clinical variables, such as dysphagia, social eating challenges, and loss of appetite, all of which merit further attention in designing personalized treatment approaches for HNC survivors. While the review makes a timely and essential contribution to the literature, we respectfully suggest several areas where further clarification and expanded analysis may strengthen the interpretation and future applicability of the findings.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144187770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Customizing workflows for electronic patient-reported outcome (ePRO) symptom monitoring using the action, actor, context, target, time (AACTT) framework. 使用动作、参与者、上下文、目标和时间(AACTT)框架定制电子患者报告结果(ePRO)症状监测的工作流程。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-29 DOI: 10.1007/s11136-025-03995-y
Julia Lai-Kwon, Claudia Rutherford, Michael Jefford, Iris Zhang, Catherine Devereux, Dishan Herath, Kate Burbury, Stephanie Best
{"title":"Customizing workflows for electronic patient-reported outcome (ePRO) symptom monitoring using the action, actor, context, target, time (AACTT) framework.","authors":"Julia Lai-Kwon, Claudia Rutherford, Michael Jefford, Iris Zhang, Catherine Devereux, Dishan Herath, Kate Burbury, Stephanie Best","doi":"10.1007/s11136-025-03995-y","DOIUrl":"https://doi.org/10.1007/s11136-025-03995-y","url":null,"abstract":"<p><strong>Background: </strong>Real-time electronic patient-reported outcome (ePRO) symptom monitoring is a complex intervention with few examples of successful implementation at scale. A key challenge is designing a clear ePRO symptom monitoring workflow to support implementation into practice. We aimed to create an empirical and theory-informed site-specific workflow guided by the Action, Actor, Context, Target, Time (AACTT) implementation science framework.</p><p><strong>Methods: </strong>A five-step process was undertaken to customize a generic ePRO symptom monitoring workflow to create a site-specific version: (1) design a generic ePRO symptom monitoring workflow through a qualitative study with key stakeholders; (2) conduct co-design workshops to understand stakeholder preferences regarding a site-specific version; (3) code co-design workshop data using the AACTT framework to produce a provisional site-specific version; (4) conduct a final co-design workshop using the AACTT framework to finalize stakeholder preferences for a site-specific version; and (5) code co-design workshop data using the AACTT framework to produce a final site-specific version.</p><p><strong>Results: </strong>Participants (n = 27) included nine patients, four caregivers, four oncologists, four nurses, two pharmacists, two clinic administrators, and two Electronic Medical Record (EMR) analysts. Provisional and final site-specific workflows were generated outlining the key AACTT components for each step of ePRO symptom monitoring.</p><p><strong>Conclusion: </strong>We demonstrated the value in using the AACTT to guide the co-design of a site-specific workflow for ePRO symptom monitoring. By describing this process in detail, we will enable others to replicate this process for creating site-specific workflows not only for ePRO symptom monitoring, but for any complex clinical process.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144174620","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Equivalence of psychiatric structured interviews and symptom checklists in predicting health-related quality of life in children with chronic physical illness. 精神病学结构化访谈和症状检查表在预测慢性躯体疾病儿童健康相关生活质量中的等效性
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-29 DOI: 10.1007/s11136-025-03999-8
Mark A Ferro, Christy K Y Chan, Alex W Luther
{"title":"Equivalence of psychiatric structured interviews and symptom checklists in predicting health-related quality of life in children with chronic physical illness.","authors":"Mark A Ferro, Christy K Y Chan, Alex W Luther","doi":"10.1007/s11136-025-03999-8","DOIUrl":"https://doi.org/10.1007/s11136-025-03999-8","url":null,"abstract":"<p><strong>Purpose: </strong>We estimated agreement in classifying psychiatric disorders using a structured interview and symptom checklist, examined associations between psychiatric disorder and health-related quality of life (HRQL) in children with chronic physical illness, and investigated if the instruments were statistically equivalent in predicting HRQL.</p><p><strong>Methods: </strong>We analyzed data from children aged 4-16 years diagnosed with a chronic physical illness. Parents and children completed the Mini International Neuropsychiatric Interview for Children and Adolescents (MINI-KID; interview), and Emotional Behavioural Scales (EBS; checklist). Two approaches classified psychiatric disorder for the EBS: 1-thresholds based on prevalence (b-EBS); 2-T scores ≥ 70 (t-EBS). Health-related quality of life was measured using the KIDSCREEN-27. Instrument and informant agreement was estimated with kappa (κ). Regression models examined associations between psychiatric disorder at baseline and 24-month HRQL. The method of variance estimates recovery was used to determine whether the instruments were statistically equivalent.</p><p><strong>Results: </strong>Agreement for any psychiatric disorder between the parent-reported MINI-KID and b-EBS was considered substantial (κ = 0.61), but moderate with the t-EBS (κ = 0.51). Fair agreement was found for child reports (κ = 0.28 and κ = 0.29, respectively). Parent-child agreement across instruments was low. No associations between psychiatric disorder measured by the MINI-KID vs. the b-EBS or t-EBS on child HRQL were significantly different for either informant.</p><p><strong>Conclusion: </strong>Agreement between instruments and informants was consistent with previous reports in other samples. Associations between psychiatric disorder and HRQL were not significantly different between the MINI-KID and EBS. Symptom checklists offer a practical opportunity to screen and monitor psychiatric disorder in children with physical illness.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144174686","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China. 中国大陆医院姑息治疗中以人为中心的基于结果测量的质量改进方案的过程评价
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-27 DOI: 10.1007/s11136-025-03997-w
Yunyun Dai, Jinfeng Ding, Yongyi Chen, David Holloway, Junchen Guo, Yu Cheng, Claire E Johnson
{"title":"Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China.","authors":"Yunyun Dai, Jinfeng Ding, Yongyi Chen, David Holloway, Junchen Guo, Yu Cheng, Claire E Johnson","doi":"10.1007/s11136-025-03997-w","DOIUrl":"https://doi.org/10.1007/s11136-025-03997-w","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to understand Chinese palliative care clinicians' experience in integrating the Palliative Care Outcome Collaboration (PCOC) model into their clinical practice and to learn lessons for sustainability.</p><p><strong>Methods: </strong>An explanatory mixed-methods study was conducted. Combing semi-structured in-depth interviews with palliative care clinicians guided by Normalization Process Theory (NPT) with analysis of clinical documents to examine implementation outcomes. Qualitative data were analysed using a combination of inductive and deductive content analysis, quantitative data were presented using frequencies and percentages.</p><p><strong>Results: </strong>Twelve out of 16 clinicians participated in this study. Six months post-implementation, over half reported successful integration of the model into their unit. Implementation outcomes indicated strong clinician adherence, with all inpatients assessed and 75% of clinicians participating. Eleven sub-themes were identified within the NPT constructs, explaining the mechanisms contributing to its success and failure. These included clinicians' perception of the model's value and effectiveness (Coherence), accurate assessment and effective use of results and quality reports (Collective Action), and a supportive network that fully incorporated clinicians' views (Cognitive Participation), and aligning the PCOC model with existing workflows, reducing redundant tools, and streamlining documentation (Reflexive Monitoring).</p><p><strong>Conclusions: </strong>To effectively implement a PCOMs-based quality improvement program into routine clinical practice, a \"top-down\" followed by a \"bottom-up\" implementation approach is recommended. Effectively utilizing the program to achieve its value and fit into existing workflows without adding unnecessary workload could ensure its sustainability. Furthermore, in countries and regions where palliative care is emerging, priorities should focus on enhancing clinicians' knowledge, self-efficacy, and supporting multidisciplinary collaboration.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144161870","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm: a qualitative descriptive study. 影响6- 9岁早产儿童参与家庭、学校和社区活动的因素:一项定性描述性研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-23 DOI: 10.1007/s11136-025-03993-0
Tiffany K Bradshaw, James T D Gibbons, Andrew C Wilson, Amber Bates, Shannon J Simpson, Jenny Downs
{"title":"Factors influencing participation in home, school, and community settings by 6- to 9-year-old children born preterm: a qualitative descriptive study.","authors":"Tiffany K Bradshaw, James T D Gibbons, Andrew C Wilson, Amber Bates, Shannon J Simpson, Jenny Downs","doi":"10.1007/s11136-025-03993-0","DOIUrl":"https://doi.org/10.1007/s11136-025-03993-0","url":null,"abstract":"<p><strong>Purpose: </strong>There is no published information on preterm children's activities and participation during middle childhood, a time when growth and development are characterised by increasing motor, reasoning, self-regulation, social and executive functioning skills. This study explored the health, activities and participation of children born very preterm during middle childhood (6-9 years) from the perspectives of their parents.</p><p><strong>Methods: </strong>This was a qualitative descriptive design. Twenty parents of 27 very preterm children born < 32 weeks gestation participated in semi-structured interviews to explore their child's health, behaviour, functioning and participation in school, at home and in the community along with environment and personal factors that influenced the child's activities and participation. Interview data were coded to each of the International Classification of Functioning in Disability (ICF-CY) domains.</p><p><strong>Results: </strong>Parents reported a broad range of health needs and participation outcomes. Parents reported challenges related to respiratory health, mental health and behaviour, sleep, nutrition and feeding. The child's participation and functioning were influenced by both personal and environmental factors including but not limited to parenting styles, education and learning support, access to health support and personal preferences and motivations.</p><p><strong>Conclusion: </strong>Preterm birth is associated with impacts on the child's health, activities and participation. This comprehensive view on the child's health and wellbeing can aid clinicians in their management of these children.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144128396","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A qualitative study on the return to work experiences and views of young and middle-aged patient with chronic kidney disease. 中青年慢性肾脏病患者复工经验与看法的质性研究
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-22 DOI: 10.1007/s11136-025-03994-z
Jiaxing Zhou, Yi Wen, Difei Duan, Wenqiao Li, Lian Xue, Dengyan Ma
{"title":"A qualitative study on the return to work experiences and views of young and middle-aged patient with chronic kidney disease.","authors":"Jiaxing Zhou, Yi Wen, Difei Duan, Wenqiao Li, Lian Xue, Dengyan Ma","doi":"10.1007/s11136-025-03994-z","DOIUrl":"https://doi.org/10.1007/s11136-025-03994-z","url":null,"abstract":"<p><strong>Objective: </strong>Chronic kidney disease (CKD) significantly impacts the work life and social integration of young and middle-aged patients. This study explores their experiences and views on returning to work.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with 15 young and middle-aged CKD patients, including 9 who had returned to work and 6 who had stable employment before CKD but had not yet returned.</p><p><strong>Results: </strong>Four key themes emerged: (1) The necessity and motivation to return to work; (2) Obstacles to returning to work; (3) Changes in mindset after returning; (4) The demand for support.</p><p><strong>Conclusion: </strong>Returning to work offers young and middle-aged CKD patients new life meaning, though challenges remain, with both positive and negative emotions. Patients express a strong need for comprehensive support and health knowledge, which are crucial for facilitating return to work and stable employment. Hospitals and social organizations should address these needs to improve the psychological well-being and quality of life of CKD patients post-return.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144120693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Developing and testing a patient-reported outcome measure for patients with sleep disturbances using EQ-5D and condition-specific bolt-ons: a mixed method study. 使用EQ-5D和条件特异性栓接开发和测试患者报告的睡眠障碍患者结果测量:一项混合方法研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-21 DOI: 10.1007/s11136-025-03985-0
Ai-Ping Chua, Aureliano Paolo Finch, Shaffinaz Abd Rahman, Mary Anne Relimbo Dela Cruz, Emelita Naval Montaniel, Kaayathiri Ravichandran, Nan Luo
{"title":"Developing and testing a patient-reported outcome measure for patients with sleep disturbances using EQ-5D and condition-specific bolt-ons: a mixed method study.","authors":"Ai-Ping Chua, Aureliano Paolo Finch, Shaffinaz Abd Rahman, Mary Anne Relimbo Dela Cruz, Emelita Naval Montaniel, Kaayathiri Ravichandran, Nan Luo","doi":"10.1007/s11136-025-03985-0","DOIUrl":"https://doi.org/10.1007/s11136-025-03985-0","url":null,"abstract":"<p><strong>Objectives: </strong>The EQ-5D-5L may not adequately capture the health-related quality of life in patients with sleep disturbances. We examined the psychometric properties of a hybrid PROM comprising a module of four sleep-related bolt-ons and EQ-5D-5L.</p><p><strong>Methods: </strong>We employed a sequential exploratory mixed method by first qualitatively testing the face validity of \"sleep\", \"cognition\", \"tiredness\" and \"relationship\" and refining these bolt-ons through in-depth interviews with 23 patients and clinicians. We then quantitatively assessed their performance by administering the four bolt-ons, appended to EQ-5D-5L, and three condition-specific patient-reported outcome measures (cPROMs) during two clinical visits of patients with respiratory-related sleep disorders. We compared ceiling effects and construct validity of EQ-5D-5L with and without the bolt-ons by testing a priori hypotheses about the cPROMs and polysomnographic characteristics via correlation and areas under the curves (AUC) analyses, respectively. We examined their responsiveness among \"treated/improved\" participants using standardized response means (SRM) and AUC analysis, and reliability among \"untreated/no change\" participants using intra-class correlation coefficient (ICC) or Cohen's Kappa (k).</p><p><strong>Results: </strong>110 participants (mean [SD] age: 47[13]) were recruited and 90 returned for their review assessments (mean [SD] interval: 2.2 [2.1] months). The bolt-ons led to a reduction of 42.7% in ceiling effects. The bolt-ons were better correlated with cPROMs and exhibited higher discriminatory power and responsiveness, with comparable reliability to EQ-5D-5L. A combined module of the four bolt-ons provided better results than individual bolt-ons.</p><p><strong>Conclusions: </strong>A \"hybrid\" PROM of sleep bolt-ons module added to EQ-5D-5L improved its psychometric properties among patients with sleep disturbances.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144120637","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
How well do participants understand the questions asked in the Online Personal Utility Functions (OPUF) approach? A cognitive debrief of the EQ-HWB-S (EQ Health and Wellbeing Short version) valuation. 参与者对在线个人效用函数(OPUF)方法中所问问题的理解程度如何?对EQ- hwb - s(情商健康与幸福短版)评估进行认知汇报。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-17 DOI: 10.1007/s11136-025-03989-w
Tessa Peasgood, Nancy Devlin, Kristina Ludwig, Ole Marten, Emily McDool, Paul Schneider, Koonal Shah, Clara Mukuria
{"title":"How well do participants understand the questions asked in the Online Personal Utility Functions (OPUF) approach? A cognitive debrief of the EQ-HWB-S (EQ Health and Wellbeing Short version) valuation.","authors":"Tessa Peasgood, Nancy Devlin, Kristina Ludwig, Ole Marten, Emily McDool, Paul Schneider, Koonal Shah, Clara Mukuria","doi":"10.1007/s11136-025-03989-w","DOIUrl":"https://doi.org/10.1007/s11136-025-03989-w","url":null,"abstract":"<p><strong>Purpose: </strong>Online elicitation of Personal Utility Functions (OPUF) is an innovative approach to valuing health states. OPUF uses a combination of ranking, swing-weighting, levels-rating and anchoring dead tasks. Little is known about how participants interpret and engage with OPUF tasks. This study aimed to address this gap.</p><p><strong>Method: </strong>Cognitive debrief interviews, which included 'think-aloud' and probing questions, were undertaken in the UK to understand how members of the public engage with OPUF when used to value the EQ-HWB-S (EQ Health and Wellbeing Short version). Coding drew upon a Framework approach, with final codes including an assessment of how participants engaged with each of the five OPUF tasks based on whether (1) they completed as expected, (2) minor concerns were identified or (3) major concerns were identified. The presence of major concerns was judged to undermine the validity of responses.</p><p><strong>Results: </strong>All 27 interviews were identified to have at least minor concern and 18 (67%) were identified as having major concerns. Major concerns were identified in four of the tasks: ranking (in 19% of interviews), swing-weighting (30%), levels-rating (56%), anchoring dead task (48%). Older participants were more likely to have major errors.</p><p><strong>Conclusion: </strong>Think-aloud and probing interviews with 27 participants completing the OPUF identified multiple concerns, to the extent that their data is unlikely to be a valid reflection of their preferences. The extent of concerns identified here suggests the need for interviewer led data collection within OPUF to ensure data quality.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144086561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Anchor questions to improve patient-reported outcome measure interpretability in patients undergoing knee or hip arthroplasty - a mixed-methods content validity, construct validity, and reliability study. 锚定问题提高接受膝关节或髋关节置换术患者报告的结果测量的可解释性——一项混合方法的内容效度、结构效度和信度研究。
IF 3.3 3区 医学
Quality of Life Research Pub Date : 2025-05-16 DOI: 10.1007/s11136-025-03987-y
Lasse K Harris, Trine S Larsen, Berend Terluin, Henrik H Lauridsen, Anders Troelsen, Lina H Ingelsrud
{"title":"Anchor questions to improve patient-reported outcome measure interpretability in patients undergoing knee or hip arthroplasty - a mixed-methods content validity, construct validity, and reliability study.","authors":"Lasse K Harris, Trine S Larsen, Berend Terluin, Henrik H Lauridsen, Anders Troelsen, Lina H Ingelsrud","doi":"10.1007/s11136-025-03987-y","DOIUrl":"https://doi.org/10.1007/s11136-025-03987-y","url":null,"abstract":"<p><strong>Purpose: </strong>To explore content validity, construct validity, and reliability of anchor questions used to determine minimal important change (MIC), patient acceptable symptom state (PASS) and treatment failure (TF) in patients undergoing knee or hip arthroplasty.</p><p><strong>Methods: </strong>A mixed-methods study from one public hospital. Evaluation of content validity involved applying thematic analysis to data from think-aloud interviews. To ascertain construct validity and reliability, we focused on patients who underwent surgery between 2016 and 2022 and had responded to preoperative and either 3-, 12- or 24-month postoperative questionnaires. Confirmatory factor analysis (CFA) was employed to assess present state bias (PSB), model fit, and reliability of the anchor questions.</p><p><strong>Results: </strong>We conducted 18 interviews with patients aged 52 to 84 (10 female). Based on seven emerging themes from the content validity analysis, MIC and PASS anchor questions were considered relevant and comprehensible, while the TF anchor question had several problems. Data from 1197 to 2207 patients, with 3-, 12-, or 24-month postoperative responses, were used to evaluate construct validity. The median age was 69-70 years (56-59% female). PSB for MIC was between 54 and 73%, and reliability for the anchor questions was between 0.52 and 0.80 for all time points. The CFA models varied between good and poor fit.</p><p><strong>Conclusion: </strong>The MIC and PASS anchor questions demonstrated a high degree of content validity, while it was questionable for TF. Construct validity was considered good to poor for PASS, but patients may consider their present state more than their preoperative state when responding to the MIC. Reliability was considered acceptable in both MIC and PASS.</p>","PeriodicalId":20748,"journal":{"name":"Quality of Life Research","volume":" ","pages":""},"PeriodicalIF":3.3,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144079788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信