“如果我们要求,我们必须采取行动”:共同设计实施EQ-5D-Y-5L作为儿童常规医院门诊护理儿科患者报告的结果衡量标准,以有意义地影响临床就诊(P-PROM ROCK第2期)。

IF 3.3 3区 医学 Q1 HEALTH CARE SCIENCES & SERVICES
Renee Jones, Kim Dalziel, Harriet Hiscock, Karen McLean, Diana Truong, Andrew Tuan Phuong Dao, Kathe Holmes, Kath Feely, Jessica Taranto, Abby Palmer, Tanya Wolfe, Penny Richards Fowler, Kirsten Pini, Max Pini, Einat Martonovich-Lantsberg, Joanna Lawrence, Misel Trajanovska, Adele Berry, Valerie Sung, Sebastian King, Nancy Devlin
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Data collection involved facilitated workshops (building on Phase 1), followed by feedback and optimisation sessions. Participants included service providers (doctors, nurses, allied health and medical record staff), adolescents, and caregivers with lived experience of providing or receiving outpatient care at a tertiary paediatric hospital in Australia.</p><p><strong>Results: </strong>Five co-design workshops, nine feedback, and two optimisation sessions were conducted with nine service providers, two adolescents, and three caregivers. Co-design participants created resources to introduce EQ-5D-Y-5L as a 'general health tracking questionnaire' and explain its purpose. EQ-5D-Y-5L responses were designed to be displayed by item. A display of results over time was also designed. A patient empowerment approach was taken with regards to flagging specific EQ-5D-Y-5L items for discussion with clinicians, whereby patients or caregivers control which items are flagged. 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引用次数: 0

摘要

目的:共同设计在儿童常规门诊护理(ROCK)中使用EQ-5D-Y-5L,一种通用的儿科患者报告结果测量(P-PROM),最大限度地提高其对患者-临床就诊的影响。方法:第二阶段协同设计研究以公共服务设计协同设计框架和双钻石模型为指导。数据收集包括便利的研讨会(建立在第一阶段的基础上),随后是反馈和优化会议。参与者包括服务提供者(医生、护士、专职保健和医疗记录工作人员)、青少年和在澳大利亚三级儿科医院提供或接受门诊护理的护理人员。结果:与9名服务提供者、2名青少年和3名照顾者进行了5次共同设计研讨会、9次反馈和2次优化会议。共同设计参与者创建资源,介绍EQ-5D-Y-5L作为“一般健康跟踪问卷”,并解释其目的。EQ-5D-Y-5L的回答被设计成按项目显示。还设计了一个随时间变化的结果显示。在标记特定的EQ-5D-Y-5L项目以与临床医生讨论方面,采取了患者授权方法,由患者或护理人员控制标记哪些项目。为了确保EQ-5D-Y-5L反应的临床审查和行动,我们共同设计了包括临床医生培训、临床医生决策支持工具、匹配患者手册和资源途径在内的资源。这些设计元素结合起来构成了P-PROM ROCK程序。结论:消费者参与产生了重要的见解,否则会被错过,确保P-PROM ROCK计划授权给患者。为了使通用p - prom对患者-临床医生的访问产生有意义的影响,需要支持和资源来确保临床审查和行动。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
"If we ask, we must act": co-designing the implementation of the EQ-5D-Y-5L as a Paediatric Patient Reported Outcome Measure in Routine hospital Outpatient Care for Kids to meaningfully impact clinical visits (P-PROM ROCK Phase 2).

Purpose: To co-design use of the EQ-5D-Y-5L, a generic Paediatric Patient Reported Outcome Measure (P-PROM), in Routine Outpatient Care for Kids (ROCK), maximising its impact on patient-clinician visits.

Methods: This Phase 2 co-design study was guided by the co-design framework for public service design and Double Diamond model. Data collection involved facilitated workshops (building on Phase 1), followed by feedback and optimisation sessions. Participants included service providers (doctors, nurses, allied health and medical record staff), adolescents, and caregivers with lived experience of providing or receiving outpatient care at a tertiary paediatric hospital in Australia.

Results: Five co-design workshops, nine feedback, and two optimisation sessions were conducted with nine service providers, two adolescents, and three caregivers. Co-design participants created resources to introduce EQ-5D-Y-5L as a 'general health tracking questionnaire' and explain its purpose. EQ-5D-Y-5L responses were designed to be displayed by item. A display of results over time was also designed. A patient empowerment approach was taken with regards to flagging specific EQ-5D-Y-5L items for discussion with clinicians, whereby patients or caregivers control which items are flagged. To ensure clinical review and action of EQ-5D-Y-5L responses, resources, including clinician training, clinician decision support tool, and matching patient booklet and resource pathway, were co-designed. Combined, these design elements make up the P-PROM ROCK Program.

Conclusion: Consumer engagement produced important insights that would've otherwise been missed, ensuring the P-PROM ROCK Program empowers patients. For generic P-PROMs to meaningfully impact patient-clinician visits, supports and resources are required to ensure clinical review and action.

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来源期刊
Quality of Life Research
Quality of Life Research 医学-公共卫生、环境卫生与职业卫生
CiteScore
6.50
自引率
8.60%
发文量
224
审稿时长
3-8 weeks
期刊介绍: Quality of Life Research is an international, multidisciplinary journal devoted to the rapid communication of original research, theoretical articles and methodological reports related to the field of quality of life, in all the health sciences. The journal also offers editorials, literature, book and software reviews, correspondence and abstracts of conferences. Quality of life has become a prominent issue in biometry, philosophy, social science, clinical medicine, health services and outcomes research. The journal''s scope reflects the wide application of quality of life assessment and research in the biological and social sciences. All original work is subject to peer review for originality, scientific quality and relevance to a broad readership. This is an official journal of the International Society of Quality of Life Research.
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