Journal of palliative medicine最新文献

{"title":"Tell Us More: Episode 1-Dr. Betty Ferrell.","authors":"Betty Ferrell, Yilong Peng, William E Rosa, Richard E Leiter","doi":"10.1177/10966218251360871","DOIUrl":"10.1177/10966218251360871","url":null,"abstract":"<p><p>The <i>Journal of Palliative Medicine</i>'s \"Tell Us More: The Palliative Care Oral History Project\" seeks to tell the story of hospice and palliative care through informal interviews with pivotal leaders in the field. In each episode, hosts Drs. Ricky Leiter and Billy Rosa, along with research assistant Dr. Yilong Peng, sit down with an Hospice and Palliative Care luminary and do what our field does best-ask questions, listen, and reflect. In the first episode, Drs. Leiter and Rosa interviewed Dr. Betty Ferrell, Director of Nursing Research and Education, and a Professor at City of Hope Medical Center in Duarte, California. What follows is a transcript of their conversation, edited lightly for clarity.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1146-1154"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144715093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative Care: Moving into Mainstream Health Care Nationally and Globally.","authors":"Deborah Witt Sherman","doi":"10.1177/10966218251361307","DOIUrl":"10.1177/10966218251361307","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1136-1138"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144784530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"When Children Repeatedly Defy the Odds.","authors":"Amy S Porter, Sarah J Halix, Erica C Kaye","doi":"10.1089/jpm.2025.0067","DOIUrl":"https://doi.org/10.1089/jpm.2025.0067","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":"28 S1","pages":"S3-S6"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145176132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Innovations in Palliative Care: Support for Women, Children, and Youth.","authors":"Christine A Fortney","doi":"10.1177/10966218251371430","DOIUrl":"https://doi.org/10.1177/10966218251371430","url":null,"abstract":"<p><p>This special issue, \"Innovations in Palliative Care: Support for Women, Children and Youth,\" sponsored by the Martha S. Pitzer Center for Women, Children and Youth, spotlights cutting-edge research and perspectives on palliative care for vulnerable populations and their families. The featured studies highlight critical dimensions across acute and community settings. Porter et al. present practical strategies for clinician-parent communication amid recurrent prognostic uncertainty, emphasizing the importance of empathy and adaptability. Fortney et al. investigate the profound distress and resilience of parents with infants in the neonatal intensive care unit, highlighting the need for targeted interventions to support both mothers and fathers. Fasolino et al. review the benefits of overnight camps for caregivers of children with chronic illnesses, revealing significant gains in social and psychological well-being-and urging further research and integration into care models. Dadich and Chróinín analyze media representations of voluntary assisted dying, uncovering the marginalization of women's voices in public discourse and championing a more inclusive, equity-driven narrative. Across these contributions, the issue identifies key threads: the impact of uncertainty and communication, the necessity of creative support mechanisms, and the influence of societal narratives on advocacy and decision making. Collectively, these insights invite reflection and innovation in creating holistic, person-centered palliative care approaches that recognize the complex emotional, social, and cultural realities faced by women, children, and youth.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":"28 S1","pages":"S1-S2"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145176110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prognosis and Promise.","authors":"Newsha Nikzad","doi":"10.1089/jpm.2025.0094","DOIUrl":"10.1089/jpm.2025.0094","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1281-1282"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143803390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"When a Pediatrician Cares for Adults.","authors":"Brittany Rouchou","doi":"10.1089/jpm.2024.0518","DOIUrl":"10.1089/jpm.2024.0518","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1279-1280"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143772293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pilot Feasibility Trial of a Supportive Care Digital Application for Patients with Advanced Nonsmall Cell Lung Cancer.","authors":"Mary C Boulanger, Stephen B Lo, Joely A Centracchio, Brianna Jewett, Madison Freese, Mia Holtze, Jamie M Jacobs, Laura A Petrillo, Jessica Bauman, Areej El-Jawahri, Jennifer S Temel, Joseph A Greer","doi":"10.1089/jpm.2025.0066","DOIUrl":"10.1089/jpm.2025.0066","url":null,"abstract":"<p><p><b><i>Background:</i></b> Patients with advanced nonsmall cell lung cancer (NSCLC) experience burdensome symptoms, psychological distress, and poor quality of life (QOL). <b><i>Objective:</i></b> We developed and pilot-tested a digital health application (\"THRIVE\"), consisting of six modules designed to improve patients' symptom management and coping with NSCLC. <b><i>Design:</i></b> Randomized pilot feasibility trial. <b><i>Setting/Subjects:</i></b> Eligible patients included adults within 12 weeks of an advanced NSCLC diagnosis receiving care at a participating institution in the United States. <b><i>Measurements:</i></b> Participants completed baseline and 12-week assessments of QOL (Functional Assessment of Cancer Therapy-Lung), physical symptoms (MD Anderson Symptom Inventory; MDASI), psychological distress (Hospital Anxiety and Depression Scale), and coping (Brief COPE). The primary outcome was study feasibility, defined as ≥65% of approached patients consenting to participate; ≥70% of intervention participants completing ≥4 of 6 app modules; and ≥70% of the sample completing the 12-week assessments. We used the System Usability Scale (SUS) to assess intervention acceptability. <b><i>Results:</i></b> Of 232 patients approached, 135 (58.2%) provided consent, and 120 (51.7%) were randomized (Age_mean = 67.90 years, 61.7% female, 90.8% White). Among intervention participants, 70.5% (43/61) completed ≥4 modules, with 77.3% reporting above-average SUS usability ratings for THRIVE. Ninety-four (78.3%) participants completed the 12-week assessments. <b><i>Conclusions:</i></b> Although the enrollment rate was lower than anticipated, patients with advanced NSCLC who received THRIVE met the feasibility criterion for app completion and reported high acceptability. These results support conducting a follow-up efficacy trial of THRIVE for improving patients' QOL, physical symptoms, and other psychosocial outcomes.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1210-1219"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144225764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Promoting Palliative Care to Patients in Developing Countries-Global Perspectives and Future Recommendations.","authors":"Jeannine M Brant, Lili Tang, Sophia Nestoros, Mohamed Hablas, Tamar Rukhadze, Marisol Bustamante, Salma A Al-Hadad, Seema R Rao, Dingle Spence, Mohammad Al-Qadire, Gulnara Kunirova, Islam Salikhanov, John Weru, Michel N Daher, Maricela S Bacerril, Asmaa El-Azhari, Emmanuel Luyirica, Mohamad Khleif, Aleksandra Kotlinska-Lemieszek, Daniela Mosoiu, Rejin Kebudi, Gabriela P Alvarez, Maryam Rassouli, Michael Silbermann","doi":"10.1177/10966218251376298","DOIUrl":"10.1177/10966218251376298","url":null,"abstract":"<p><p><b><i>Background:</i></b> Despite a plethora of evidence available on the benefits of palliative care (PC), it is estimated that only about 14% of those living in low- to middle-income countries (LMIC) or developing countries have access to PC. <b><i>Objective:</i></b> To globally examine PC expert perspectives regarding PC infrastructure and resources within each country, drug and opioid availability to provide PC, and workforce and educational issues. <b><i>Design:</i></b> Descriptive, open-ended survey seeking first-hand qualitative perspectives. <b><i>Setting/Subjects:</i></b> PC experts from 21 developing countries representing 5 continents around the world. <b><i>Measurements:</i></b> Qualitative narratives and discussions with PC experts. <b><i>Results:</i></b> The summaries inform four key recommendations for future progress of PC in developing countries: (1) PC infrastructure should increase accessibility to both urban and rural areas; (2) increasing medication and nonpharmacologic approaches for symptoms is essential; (3) interdisciplinary education should continue to expand and include scholarships, PC certifications, and advanced education; and 4) future research with developing countries is desperately needed to advance care and progress. <b><i>Conclusions:</i></b> Considerable PC progress has been accomplished; however, significant gaps remain. This report can be used to discuss PC capacity building within a country. It could serve as an important document while negotiating with authorities and Ministries of Health about expanding PC infrastructure, especially in rural areas. Finally, PC champions can use this report to advocate for increased opioid availability to promote comfort; in particular, increased availability of oral opioids is essential, so that patients can die comfortably at home.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"1155-1169"},"PeriodicalIF":2.1,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145015697","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of Health Care Professionals in Navigating Challenges of Pediatric Cancer Recurrence.","authors":"Hülya Dalkılıç Bingöl, Ayfer Aydın, Rejin Kebudi, Merve Ertunç Soycan, Ülkü Miray Yıldırım, Başak Koç Şenol, Osman Bülent Zülfikar","doi":"10.1177/10966218251372351","DOIUrl":"https://doi.org/10.1177/10966218251372351","url":null,"abstract":"<p><p><b><i>Background:</i></b> The recurrence of cancer in pediatric hematology-oncology is a distressing event for patients, families, and health care professionals (HCPs). Despite advances in treatment, cancer recurrence poses significant emotional and communication challenges for nurses and physicians. <b><i>Objectives:</i></b> This qualitative study explores the experiences of nurses and physicians in pediatric hematology-oncology when faced with children's cancer recurrence, focusing on their emotions, communication strategies, and approaches to patient care. <b><i>Design:</i></b> A descriptive, in-depth interview approach was used. Data were collected through semi-structured interviews, transcribed verbatim, and analyzed using Braun and Clarke's six-phase thematic analysis. <b><i>Setting/Subjects:</i></b> Eleven physicians and 11 nurses from various pediatric hematology-oncology units in Türkiye. <b><i>Measurements:</i></b> Data were collected with sociodemographic information form and semi-structured interview form that developed based on the literature. <b><i>Results:</i></b> Three themes emerged: (1) Challenge of handling feelings, (2) Challenge of communication with children and families, and (3) Need to change treatment and care practices. HCPs reported a range of emotions, including sadness, helplessness, failure, guilt, fear, and hopelessness. Communication strategies were adapted based on the child's age and developmental level, focusing on maintaining hope while being realistic. Empathetic and flexible approaches to treatment were emphasized, often involving more patient-centered care and considerations for palliative care. <b><i>Conclusions:</i></b> The recurrence of cancer in pediatric patients significantly impacts HCPs, who experience profound emotional challenges and adapt their communication and care strategies to support the child and family. The study highlights the need for tailored interventions and training to enhance HCPs' emotional coping and communication in pediatric oncology.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144958127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"When a Pediatrician Cares for Adults.","authors":"Brittany Rouchou","doi":"10.1177/10966218251375680","DOIUrl":"https://doi.org/10.1177/10966218251375680","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144958091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}