Journal of palliative medicine最新文献_第7页

Characterizing Oncologist Involvement in an Oncology Nurse-Led Primary Palliative Care Intervention (CONNECT). 描述肿瘤科医生参与肿瘤科护士主导的初级姑息治疗干预（CONNECT）的特点。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-11-28 DOI: 10.1089/jpm.2024.0309

Georgeann Booth, Risa L Wong, Richelle N DeBlasio, Margaret Rosenzweig, Yael Schenker

{"title":"Characterizing Oncologist Involvement in an Oncology Nurse-Led Primary Palliative Care Intervention (CONNECT).","authors":"Georgeann Booth, Risa L Wong, Richelle N DeBlasio, Margaret Rosenzweig, Yael Schenker","doi":"10.1089/jpm.2024.0309","DOIUrl":"10.1089/jpm.2024.0309","url":null,"abstract":"Background and Objectives: Mixed success with primary palliative care delivery models may be related to inadequate communication between members of the care team. We sought to describe the previously unexamined role of oncologists in an oncology nurse-led primary palliative care intervention study. Design, Setting, and Subjects: We conducted a secondary analysis of data from Care Management by Oncology Nurses to Address Supportive Care Needs, a cluster-randomized controlled trial of a nurse-led primary palliative care intervention for adults with advanced cancer conducted at 17 community oncology clinics in Western Pennsylvania from 2016 to 2020. Nurses conducted three monthly study visits during which they developed care plans (CPs) with the patient and after which they updated the patient's oncologist. We characterized the level of oncologist involvement with the intervention. Results: Of the 336 patients randomized to receive primary palliative care, 266 completed at least one study visit and 233 (88%) had at least one visit where the oncologist was updated afterward. Across 674 total study visits, the oncologist was updated in 553 (82%) of the visits, signifying the oncologist awareness of the intervention. Of the times the nurse updated the oncologist, a CP was presented 29% of the time (163/553). Conclusion: In a large trial of oncology nurse-led primary palliative care, oncologists were often aware of but infrequently involved with the intervention. Future primary palliative care interventions should consider communication and engagement among team members.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"326-334"},"PeriodicalIF":2.2,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11971610/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739472","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Managing Cancer Pain in Hospitalized Patients with Comorbid Opioid Use Disorder with Buprenorphine: A Case Series. 用丁丙诺啡治疗合并阿片类药物使用障碍的住院患者的癌症疼痛：病例系列。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-10-09 DOI: 10.1089/jpm.2024.0092

Jacqueline Michelle Tschanz, Eduardo Bruera, Joseph A Arthur

引用次数: 0

Spider-Man Comics. 蜘蛛侠漫画

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-07-25 DOI: 10.1089/jpm.2024.0226

Alia Zeid

引用次数: 0

Effects of Inpatient Hospice Care on Cost and Medication Use in Patients with Lung Cancer: A Population-Based Retrospective Study in South Korea. 住院安宁疗护对肺癌患者费用和药物使用的影响：韩国一项基于人群的回顾性研究。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-12-04 DOI: 10.1089/jpm.2024.0123

Eunsun Gill, Youn Seon Choi, Sejung Kim, Wankyo Chung

{"title":"Effects of Inpatient Hospice Care on Cost and Medication Use in Patients with Lung Cancer: A Population-Based Retrospective Study in South Korea.","authors":"Eunsun Gill, Youn Seon Choi, Sejung Kim, Wankyo Chung","doi":"10.1089/jpm.2024.0123","DOIUrl":"10.1089/jpm.2024.0123","url":null,"abstract":"Background: Inpatient hospices (IHs) can alleviate distress and address economic burdens on patients with terminal cancer. However, there have been inconsistent findings regarding IHs in terms of cost savings and medication use. Objective: We aimed to examine cost savings associated with IHs, according to the timing of first hospitalization before death, and analyze their use of medication, among Korean patients with terminal lung cancer. Methods: Using the South Korean national health insurance claim database, we identified 31,139 patients with lung cancer who died between 2017 and 2020. Their daily hospitalization costs were analyzed using a generalized linear model stratified by time of first hospitalization before death. Medication use was examined using a negative binomial model. Results: IHs spent $134, and $21 less on patients during days 1-7, and 8-30 before death, but $18, $44, $36, and $54 more during days 31-60, 61-90, and 91-180, respectively, compared with non-IHs (all p < 0.05). However, total hospitalization costs in the year preceding death did not differ (relative risk: 0.990, 95% confidence interval [CI]: 0.972-1.007, p > 0.05). IHs used 2.103 times more opioid analgesics (95% CI: 1.980-2.233, p < 0.001). They also used more antiemetics, delirium medications, and antianxiety agents, as well as fewer antidepressive agents, systemic steroids, diuretics, total parenteral nutrition, and antibiotics (all p < 0.05). Conclusions: Patients with terminal lung cancer in IHs in Korea were more likely to receive symptom-oriented medications and experienced reduced hospitalization costs only during the 30 days preceding death.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"335-344"},"PeriodicalIF":2.2,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142769890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Recreational Travel of Patients with Brain Tumor and Their Caregivers: Context, Preparation, and Impact. 脑肿瘤患者及其照顾者的休闲旅行：背景、准备和影响。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-12-04 DOI: 10.1089/jpm.2024.0415

Maija Reblin, Kerie Walters, Omarianna Rountree, Deanna Witte, Hyojin Choi, Bradley J Zebrack, Kristen J Wells, Margaret M Byrne

{"title":"Recreational Travel of Patients with Brain Tumor and Their Caregivers: Context, Preparation, and Impact.","authors":"Maija Reblin, Kerie Walters, Omarianna Rountree, Deanna Witte, Hyojin Choi, Bradley J Zebrack, Kristen J Wells, Margaret M Byrne","doi":"10.1089/jpm.2024.0415","DOIUrl":"10.1089/jpm.2024.0415","url":null,"abstract":"Background: Caregivers are engaging in recreational travel with the neuro-oncology patients they care for, yet there is little scientific research on this phenomenon. Aim: The purpose of this study is to examine the experiences of recreational travel among caregiver-patient with brain cancer dyads from the perspective of the caregivers. Specifically, we examined (1) context (i.e., why and when) of recreational travel, (2) the caregiver's travel preparations, and (3) the impact of the travel on caregivers. Design: Descriptive thematic analysis was conducted on transcripts of unprompted caregiver discussion of recreational travel, defined as any trip or vacation taken by caregiver and patient with the purpose of recreation lasting at least overnight. Setting/Participants: Caregivers of patients with brain cancer enrolled in an eight-week support intervention at an NCI-designated Cancer Center (NCT04268979). Incidental discussion of recreational travel during weekly phone intervention sessions was identified from structured interventionist notes. Results: Fifteen caregivers discussed recreational travel. The context of travel was often to focus on quality of life upon treatment cycle completion. Preparation often included accommodating patients' needs. Care teams' practical support and validation for the trip were identified as useful resources. Caregivers most often described the emotional impact of travel, which was often complex and bittersweet. Conclusions: Travel with a patient with brain cancer may be an important goal for caregivers and could help create meaning and memories, but can also present challenges. Early and clear communication from the care team can play a role in supporting meaningful trips.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"371-376"},"PeriodicalIF":2.2,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142780457","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Less Hospice Use and Shorter Hospice Lengths of Stay for Connecticut Medicaid Decedents with Short-Term and Long-Term Nursing Home Stays Compared with Decedents Remaining in Community Homes. 与留在社区之家的死者相比，康涅狄格医疗补助计划的死者短期和长期住在养老院的使用临终关怀较少，临终关怀逗留时间较短。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-12-05 DOI: 10.1089/jpm.2024.0244

Ellis C Dillon, Noreen Shugrue, Deborah Migneault, Chae Man Lee, Dorothy Wakefield, Doreek Charles, Bradley Richards, Julie Robison

{"title":"Less Hospice Use and Shorter Hospice Lengths of Stay for Connecticut Medicaid Decedents with Short-Term and Long-Term Nursing Home Stays Compared with Decedents Remaining in Community Homes.","authors":"Ellis C Dillon, Noreen Shugrue, Deborah Migneault, Chae Man Lee, Dorothy Wakefield, Doreek Charles, Bradley Richards, Julie Robison","doi":"10.1089/jpm.2024.0244","DOIUrl":"10.1089/jpm.2024.0244","url":null,"abstract":"Background: The relationship between nursing home (NH) stays before death and hospice use is understudied. Methods: A retrospective cohort study of Connecticut Medicaid decedents with common hospice diagnoses who died between 2017 and 2020. Medicaid/Medicare claims identified NH stays, hospice use, short length of stay (LOS) (≤7 days), demographics, and diagnoses. Logistic regression models examined associations between NH stays with hospice use and LOS. Results: Among 26,261 decedents, 54.2% had NH stays (17.8% short-term, 36.4% long-term). Individuals with NH stays (vs. none) had reduced odds of hospice use (short-term odds ratio [OR]: 0.77 [95% confidence interval or CI: 0.71-0.82] and long-term OR: 0.47 [0.45-0.50]) and had higher odds of short hospice LOS (short-term OR: 2.67 [2.41-2.96] and long-term OR: 2.95 [2.69-3.22]). Conclusions: Further research is needed into why individuals with NH stays, especially long-term stays, are less likely to use hospice and more likely to have short LOS and how this difference relates to end-of-life care quality.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"365-370"},"PeriodicalIF":2.2,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142786050","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Sugar on Strawberries. 草莓上的糖。

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-03-01 Epub Date: 2024-12-23 DOI: 10.1089/jpm.2024.0493

Hadley Bloomhardt

引用次数: 0

Improving Knowledge and Attitudes About Palliative Care Through Community Collaborations: A Mixed Methods Intervention Evaluation.

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-02-27 DOI: 10.1089/jpm.2024.0363

Grant M Smith, Samantha M R Kling, Ashley Bragg, Ann Cao-Nasalga, Kelly Towey, Olivia Tigre Nerimora, Laura M Holdsworth

{"title":"Improving Knowledge and Attitudes About Palliative Care Through Community Collaborations: A Mixed Methods Intervention Evaluation.","authors":"Grant M Smith, Samantha M R Kling, Ashley Bragg, Ann Cao-Nasalga, Kelly Towey, Olivia Tigre Nerimora, Laura M Holdsworth","doi":"10.1089/jpm.2024.0363","DOIUrl":"https://doi.org/10.1089/jpm.2024.0363","url":null,"abstract":"Background: Limited knowledge and negative perceptions of palliative care (PC) can result in missed opportunities to access specialty PC. Patient, caregiver, and community education may improve knowledge and attitudes about PC. Methods: Pre- and post-session surveys along with qualitative interivews assessed whether participation in a novel 60-minute webinar about specialty PC changed participants' PC knowledge and attitudes. Participants were recruited in collaboration with community based organizations and included self-identified patients, caregivers, healthcare providers, and other individuals interested in the topic. Results: A total of 118 participants completed pre- and post-session surveys. Participants demonstrated a significant increase in PC knowledge on the Palliative Care Knowledge Scale (10.6 vs. 12.5, p < 0.001). Pre-session attitudes were positive and further improved after the educational session. Qualitative interviews demonstrated that participants learned that PC provides more services than previously thought and could ask for a PC referral. Conclusion: We conclude that a 60-minute webinar improved knowledge and attitudes about specialty PC, including a willingness to ask for and accept a referral to PC.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516065","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative Care Approaches in Machado-Joseph Disease.

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-02-27 DOI: 10.1089/jpm.2024.0468

Mara Arruda, Carolina Vidal, Maria João Serpa, António Gonçalves, Rosário Vidal

{"title":"Palliative Care Approaches in Machado-Joseph Disease.","authors":"Mara Arruda, Carolina Vidal, Maria João Serpa, António Gonçalves, Rosário Vidal","doi":"10.1089/jpm.2024.0468","DOIUrl":"https://doi.org/10.1089/jpm.2024.0468","url":null,"abstract":"Background: Spinocerebellar ataxias (SCA) are a rare group of neurodegenerative disorders. Machado-Joseph disease (MJD) is the most prevalent autosomal dominant ataxia. No disease-modifying treatment exists; thus, a palliative approach is recommended upon diagnosis. Objective: The objective of this study is to describe the first cohort of MJD patients followed by a palliative care team. We aimed to describe the main symptoms experienced by patients with advanced MJD and detail the multidisciplinary approaches employed to enhance their quality of life. Methods: We retrospectively analyzed patients with SCA referred to the palliative care unit (PCU) at Hospital do Divino Espírito Santo de Ponta Delgada. Data collected from June 1, 2016, to February 29, 2024, included demographic characteristics, functional status, Edmonton Symptom Assessment Scale scores, medication use, alternative feeding methods, advanced care planning documentation, interdisciplinary interventions, and hospital admissions. Statistical analysis was performed using nonparametric tests. Results: The median follow-up duration was five years, and the median disease duration was 18.5 years. Swallowing difficulties, constipation, depression, and insomnia were the most frequent symptoms. Insomnia was statistically more prevalent among the MJD group. The mortality rate was 30%, and 55% of deaths were related to disease progression. The deceased group had a longer disease duration and follow-up than the survival group. Conclusions: To the best of our knowledge, this is the first cohort description of MJD patients followed by a PCU. We found that swallowing difficulties, constipation, depression, and insomnia were the most frequent symptoms. In addition to pharmacological treatment, interdisciplinary approaches played a central role in addressing the needs of this cohort of patients with advanced MJD.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143523777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Brief Report: The Role of Spiritual Care in Cardiac Arrests.

IF 2.2 3区医学

Journal of palliative medicine Pub Date : 2025-02-27 DOI: 10.1089/jpm.2024.0386

Dina Zaret, Michael Herscher, Edward Cytryn, Frans Beerken, Amy Strano

{"title":"A Brief Report: The Role of Spiritual Care in Cardiac Arrests.","authors":"Dina Zaret, Michael Herscher, Edward Cytryn, Frans Beerken, Amy Strano","doi":"10.1089/jpm.2024.0386","DOIUrl":"https://doi.org/10.1089/jpm.2024.0386","url":null,"abstract":"Background: Communication during cardiac arrest codes is inherently challenging. We designed a quality improvement project wherein chaplains responded to medical/surgical unit cardiac arrest codes. Methods: Chaplains were added to the cardiac arrest alert paging system and responded to these pages. Code alerts and chaplain responses to them were tracked. After four months, chaplains completed a survey to assess their experiences. Results: Chaplains attended a total of 42 codes. Chaplains responded to 19 of 24 daytime working-hour codes and followed up on overnight ones, for a total of 42 code responses. They supported patients, family members or visitors, patient roommates, and medical staff. The overwhelming majority (92%) found providing spiritual care during a cardiac arrest code to be meaningful. Discussion: Chaplains' presence during and after cardiac arrest codes was feasible and perceived as a useful intervention. Adding chaplains to the cardiac arrest code pager allows them to provide support to patients, their families, and staff members during these critical moments.","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143523775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0