Journal of palliative medicine最新文献

筛选
英文 中文
Not Either Yes or No, Rather Both Yes and No Simultaneously. 不是 "是 "或 "否",而是同时 "是 "和 "否"。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-28 DOI: 10.1089/jpm.2024.0376
Peter Heikkinen
{"title":"Not Either Yes or No, Rather Both Yes and No Simultaneously.","authors":"Peter Heikkinen","doi":"10.1089/jpm.2024.0376","DOIUrl":"https://doi.org/10.1089/jpm.2024.0376","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Providing Palliative Care for Sexual and Gender Minority Individuals: A Qualitative Interview Study of Physicians' Attitudes and Experiences. 为性少数群体和性别少数群体提供姑息治疗:对医生态度和经验的定性访谈研究。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-28 DOI: 10.1089/jpm.2024.0283
Alexandre Coholan, Justin J Sanders, Carey Candrian
{"title":"Providing Palliative Care for Sexual and Gender Minority Individuals: A Qualitative Interview Study of Physicians' Attitudes and Experiences.","authors":"Alexandre Coholan, Justin J Sanders, Carey Candrian","doi":"10.1089/jpm.2024.0283","DOIUrl":"https://doi.org/10.1089/jpm.2024.0283","url":null,"abstract":"<p><p><b><i>Introduction:</i></b> Sexual and gender minority (SGM) individuals face increased risk of receiving suboptimal care, including palliative care. Despite research demonstrating strategies to improve care, little is known about the experiences of palliative care clinicians providing care to these communities. <b><i>Objectives:</i></b> The primary aim of this study is to characterize attitudes and practices of palliative care physicians around providing care to SGM individuals. <b><i>Design:</i></b> This exploratory, qualitative study used semi-structured interviewing. Interviews were transcribed and coded using reflexive thematic analysis. <b><i>Setting and Participants:</i></b> Twenty-four palliative care physicians practicing in the homecare, hospice, and hospital settings from geographically diverse sites across Canada were recruited from palliative care organizations using convenience and snowball sampling. <b><i>Results:</i></b> Four main themes represent perspectives on improving palliative care for SGM individuals: (1) increasing experience with and knowledge about SGM communities increases clinicians' confidence and competency; (2) standardizing inclusive sexual orientation and gender identity (SOGI) data collection and documentation can improve patient care; (3) addressing individual, systemic, and societal biases may improve palliative care provided to SGM individuals; and (4) knowing SOGI improves care quality. <b><i>Conclusions:</i></b> Clinicians must familiarize themselves with the importance of SOGI to the care provided as well as the palliative care needs of SGM communities. Institutions should provide tailored training around the unique needs of SGM patients and implement policies and tools that standardize sexual and gender orientation data collection and documentation.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"If We Don't Beat It, How Long Will It Take?" Worries and Concerns of Children with Advanced Cancer and Their Parents. "如果我们不能战胜它,还要等多久?晚期癌症患儿及其父母的担忧和顾虑。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-28 DOI: 10.1089/jpm.2024.0307
Megan R Schaefer, Andrea Wojtowicz, Molly Gardner, Priyal Patel, Malcolm Sutherland-Foggio, Ansley E Kenney, Alexandra C Himelhoch, Lisa Humphrey, Randal Olshefski, Micah A Skeens, Cynthia Gerhardt
{"title":"\"If We Don't Beat It, How Long Will It Take?\" Worries and Concerns of Children with Advanced Cancer and Their Parents.","authors":"Megan R Schaefer, Andrea Wojtowicz, Molly Gardner, Priyal Patel, Malcolm Sutherland-Foggio, Ansley E Kenney, Alexandra C Himelhoch, Lisa Humphrey, Randal Olshefski, Micah A Skeens, Cynthia Gerhardt","doi":"10.1089/jpm.2024.0307","DOIUrl":"https://doi.org/10.1089/jpm.2024.0307","url":null,"abstract":"<p><p><b><i>Background:</i></b> Navigating pediatric advanced cancer is challenging for children and parents, resulting in increased risk for psychological distress. While research has explored parent worries/concerns, few studies have included children's perspectives. <b><i>Objectives:</i></b> To explore worries/concerns in children with advanced cancer and their parents. <b><i>Design:</i></b> This was a part of a larger, mixed-methods study examining shared decision-making. <b><i>Setting/Subjects:</i></b> Children (of age 5-25) with advanced cancer (i.e., relapsed/refractory disease or physician estimated prognosis of <60%) and their parents in the Midwestern United States. <b><i>Measurements:</i></b> Children and parents completed the Response to Stress Questionnaire and individual semi-structured interviews. Coders analyzed the qualitative data via thematic analysis. <b><i>Results:</i></b> Parent and child worries/concerns included: (1) prognosis, (2) symptom burden and side effects of treatment, (3) emotional well-being, (4) impact on future, and (5) no concerns/uncertainty (child-only theme). Benefit-finding emerged as a minor theme. Many expressed concerns about treatment response, resulting in worries about death/dying. Others shared fear about managing current symptoms and the impact of long-term treatment side effects on the child's future. Parents reported worry about their child's emotional well-being, while children expressed worries about their families if they died. While all parents were able to identify worries/concerns, some children denied worries/concerns. Quantitatively, parents similarly identified worries about prognosis and symptom burden but also endorsed concern about being unable to help their child feel better. <b><i>Conclusions:</i></b> Our findings highlight similarities and differences in worries/concerns among children and parents as they navigate a child's advanced cancer journey. Early integration of palliative care may be helpful in mitigating these issues.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Validated Electronic Medical Record-Based Algorithm to Identify Hospitalized Patients with Serious Illness. 基于电子病历的验证算法,用于识别重症住院病人。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-28 DOI: 10.1089/jpm.2024.0285
Laura A Schoenherr, Yuika Goto, Joanna Sharpless, David L O'Riordan, Steven Z Pantilat
{"title":"A Validated Electronic Medical Record-Based Algorithm to Identify Hospitalized Patients with Serious Illness.","authors":"Laura A Schoenherr, Yuika Goto, Joanna Sharpless, David L O'Riordan, Steven Z Pantilat","doi":"10.1089/jpm.2024.0285","DOIUrl":"https://doi.org/10.1089/jpm.2024.0285","url":null,"abstract":"<p><p><b><i>Background:</i></b> Population-based methods to identify patients with serious illness are necessary to provide equitable and efficient access to palliative care services. <b><i>Aim:</i></b> Create a validated algorithm embedded in the electronic medical record (EMR) to identify hospitalized patients with serious illness. <b><i>Design:</i></b> An initial algorithm, developed from literature review and clinical experience, was twice adjusted based on gaps identified from chart review. Each iteration was validated by comparing the algorithm's results for a subset of patients (approximately 10% of the populations screened in and screened out on a given day) with the expert consensus of two independent palliative care physicians. <b><i>Settings/Subjects:</i></b> The final algorithm was run daily for nine months to screen all hospitalized adults at our academic medical center in the United States. <b><i>Results:</i></b> Compared with the gold standard of expert consensus, the final algorithm for identifying hospitalized patients with serious illness was found to have a sensitivity of 89%, specificity of 82%, positive predictive value of 80%, and negative predictive value of 90%. At our hospital, an average of 284 patients a day (54%) screened positive for at least one criterion, with an average of 38 patients newly screening positive daily. <b><i>Conclusions:</i></b> Data from the EMR can identify hospitalized patients with serious illness who may benefit from palliative care services, an important first step in moving to a system in which palliative care is provided proactively and systematically to all who could benefit.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Characterizing Oncologist Involvement in an Oncology Nurse-Led Primary Palliative Care Intervention (CONNECT). 描述肿瘤科医生参与肿瘤科护士主导的初级姑息治疗干预(CONNECT)的特点。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-28 DOI: 10.1089/jpm.2024.0309
Georgeann Booth, Risa L Wong, Richelle N DeBlasio, Margaret Rosenzweig, Yael Schenker
{"title":"Characterizing Oncologist Involvement in an Oncology Nurse-Led Primary Palliative Care Intervention (CONNECT).","authors":"Georgeann Booth, Risa L Wong, Richelle N DeBlasio, Margaret Rosenzweig, Yael Schenker","doi":"10.1089/jpm.2024.0309","DOIUrl":"https://doi.org/10.1089/jpm.2024.0309","url":null,"abstract":"<p><p><b><i>Background and Objectives:</i></b> Mixed success with primary palliative care delivery models may be related to inadequate communication between members of the care team. We sought to describe the previously unexamined role of oncologists in an oncology nurse-led primary palliative care intervention study. <b><i>Design, Setting, and Subjects:</i></b> We conducted a secondary analysis of data from Care Management by Oncology Nurses to Address Supportive Care Needs, a cluster-randomized controlled trial of a nurse-led primary palliative care intervention for adults with advanced cancer conducted at 17 community oncology clinics in Western Pennsylvania from 2016 to 2020. Nurses conducted three monthly study visits during which they developed care plans (CPs) with the patient and after which they updated the patient's oncologist. We characterized the level of oncologist involvement with the intervention. <b><i>Results:</i></b> Of the 336 patients randomized to receive primary palliative care, 266 completed at least one study visit and 233 (88%) had at least one visit where the oncologist was updated afterward. Across 674 total study visits, the oncologist was updated in 553 (82%) of the visits, signifying the oncologist awareness of the intervention. Of the times the nurse updated the oncologist, a CP was presented 29% of the time (163/553). <b><i>Conclusion:</i></b> In a large trial of oncology nurse-led primary palliative care, oncologists were often aware of but infrequently involved with the intervention. Future primary palliative care interventions should consider communication and engagement among team members.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142739472","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
End-of-Life Care in Hematology/Oncology Fellowship. 血液学/肿瘤学临终关怀研究员。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-27 DOI: 10.1089/jpm.2024.0198
Madeline J Albert, Yang Liu, Asya Varshavsky, Brian L Egleston, Efrat Dotan, Melissa M McShane, Martin J Edelman, Molly E Collins, Jessica R Bauman
{"title":"End-of-Life Care in Hematology/Oncology Fellowship.","authors":"Madeline J Albert, Yang Liu, Asya Varshavsky, Brian L Egleston, Efrat Dotan, Melissa M McShane, Martin J Edelman, Molly E Collins, Jessica R Bauman","doi":"10.1089/jpm.2024.0198","DOIUrl":"https://doi.org/10.1089/jpm.2024.0198","url":null,"abstract":"<p><p><b><i>Introduction:</i></b> Aggressive end-of-life (EOL) care for cancer patients can lead to increased hospitalizations and worse quality of death, while goals of care (GOC) discussions including EOL care conversations are associated with fewer hospitalizations and increased hospice use. During hematology-oncology training, fellows should develop communication skills that include eliciting and documenting patients' GOC to provide quality care during EOL. We aimed to determine the frequency of documentation of GOC discussions in fellow's clinics as well as characteristics of EOL care. <b><i>Methods:</i></b> This study was conducted at an academic cancer center where year 1-3 fellows retrospectively reviewed patient medical records from July 2016 to June 2017 to identify patient deaths and collect information on hospitalizations, treatment, and place of death to analyze relationships with GOC discussions. <b><i>Results:</i></b> Out of 103 patient deaths, 48 (47%) had documented GOC discussions, 69 (67%) patients were enrolled on hospice, and 20 (19%) had an advance directive. GOC discussions were associated with higher hospice enrollment and advance directive documentation and lower hospitalizations. <b><i>Conclusions:</i></b> All fellows had at least one patient who died in their patient panels, but less than half of patients had documented GOC discussions. Fellowship programs should consider incorporating quality improvement measures and communication skills training to ensure fellows have competence in GOC communication and EOL care delivery.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142729779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Top Ten Tips Palliative Care Clinicians Should Know About Addressing Patient Sexuality and Intimacy in Serious Illness. 姑息关怀临床医生在处理重症患者的性生活和亲密关系时应了解的十大技巧》(Top Ten Tips Palliative Care Clinicians Should Know About Addressing Patient Sexuality and Intimacy in Serious Illness.
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-26 DOI: 10.1089/jpm.2024.0451
Danielle Chammas, Alan W Shindel, Tami Serene Rowen, Karen Schanche, Daniela Wittmann, Daniel Shalev, Johanna D'Addario, Renee Wisniewski, Teddy Scheel, Christian J Nelson, Elena S Ratner, William E Rosa, Michael W Rabow
{"title":"Top Ten Tips Palliative Care Clinicians Should Know About Addressing Patient Sexuality and Intimacy in Serious Illness.","authors":"Danielle Chammas, Alan W Shindel, Tami Serene Rowen, Karen Schanche, Daniela Wittmann, Daniel Shalev, Johanna D'Addario, Renee Wisniewski, Teddy Scheel, Christian J Nelson, Elena S Ratner, William E Rosa, Michael W Rabow","doi":"10.1089/jpm.2024.0451","DOIUrl":"https://doi.org/10.1089/jpm.2024.0451","url":null,"abstract":"<p><p>Patient sexuality and intimacy comprise important dimensions of quality of life (QOL), making them essential topics for palliative care (PC) clinicians to address. Created with interprofessional input from PC, urology, gynecology, sexual health, oncology, psychiatry, psychology, nursing, and social work, this article offers 10 high-yield, evidence-based tips to better equip PC clinicians to address sexuality and intimacy for patients with serious illness. These tips highlight skills such as opening discussions, assessing concerns through a biopsychosocial model, and thinking through appropriate interventions to improve QOL.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142716464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Association Between Psychological Resilience and Spiritual Well-Being Among Family Caregivers of Terminally Ill Cancer Patients: A Multicenter Cross-Sectional Study. 癌症晚期患者家庭照顾者的心理复原力与精神幸福感之间的关联:一项多中心横断面研究
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-26 DOI: 10.1089/jpm.2024.0267
Jae Hyuck Lee, Yoo Jeong Lee, Hong Yup Ahn, In Cheol Hwang
{"title":"The Association Between Psychological Resilience and Spiritual Well-Being Among Family Caregivers of Terminally Ill Cancer Patients: A Multicenter Cross-Sectional Study.","authors":"Jae Hyuck Lee, Yoo Jeong Lee, Hong Yup Ahn, In Cheol Hwang","doi":"10.1089/jpm.2024.0267","DOIUrl":"https://doi.org/10.1089/jpm.2024.0267","url":null,"abstract":"<p><p><b><i>Purpose:</i></b> This study was undertaken to determine the nature of the relationship between psychological resilience and spiritual well-being (SWB) among family caregivers (FCs) of patients with terminal cancer. <b><i>Methods:</i></b> This multicenter cross-sectional study included 173 FCs from nine inpatient hospice care units. SWB was assessed using the Functional Assessment of Chronic Illness Therapy-Spiritual well-being questionnaire, and various psychosocial variables, including psychological resilience, were also measured. Factors associated with SWB were identified by multivariate regression analysis adjusted for potential covariates. <b><i>Results:</i></b> Various factors were found to be associated with the SWB of FCs as determined by total FACIT-Sp-12 scores and the scores of its three domains. FC resilience was significantly associated with SWB as determined by total FACIT-Sp-12 scores and scores of the meaning and peace domains. <b><i>Conclusion:</i></b> Assessing FC psychological resilience would help palliative care providers improve their SWB.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142716551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
High Dyspnea Score, a Trigger for Specialist Palliative Care Utilization-Results from a Cohort Study on the Predictors of High Opioid and Benzodiazepine Use in COVID-19 Patients. 呼吸困难评分高是使用姑息治疗专家的触发因素--关于 COVID-19 患者大量使用阿片类药物和苯并二氮杂卓的队列研究结果。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-26 DOI: 10.1089/jpm.2024.0128
Lionel Kee Yon See, Mahrley Tanagon Provido, Sheryl Ng, Fionna Chunru Yow, Xin Lun Ho, Khar Suan Lee, Han Yee Neo, Oon Tek Ng, Kalisvar Marimuthu, Allyn Yin Mei Hum, Wen Yang Goh
{"title":"High Dyspnea Score, a Trigger for Specialist Palliative Care Utilization-Results from a Cohort Study on the Predictors of High Opioid and Benzodiazepine Use in COVID-19 Patients.","authors":"Lionel Kee Yon See, Mahrley Tanagon Provido, Sheryl Ng, Fionna Chunru Yow, Xin Lun Ho, Khar Suan Lee, Han Yee Neo, Oon Tek Ng, Kalisvar Marimuthu, Allyn Yin Mei Hum, Wen Yang Goh","doi":"10.1089/jpm.2024.0128","DOIUrl":"https://doi.org/10.1089/jpm.2024.0128","url":null,"abstract":"<p><p><b><i>Background:</i></b> Patients with severe coronavirus disease 2019 (COVID-19) often rapidly deteriorate with severe dyspnea and should receive early specialist palliative care (SPC) as intensive symptom management may be required at the end of life. Currently, there is a paucity of data identifying triggers for early SPC involvement. <b><i>Objective</i>:</b> To identify risk factors among nonventilated patients with severe COVID-19 who required high opioid and/or benzodiazepines (BZD) use for the control of dyspnea. <b><i>Methods:</i></b> This is a retrospective cohort study of nonventilated patients with COVID-19 admitted to the National Centre for Infectious Diseases in Singapore and seen by SPC between January 2021 and July 2022. We collected baseline demographics, comorbidities, 4C mortality score (International Severe Acute Respiratory Infection Consortium-Comprehensive Clinical Characterization Collaboration [ISARIC-4C]), and COVID-19 vaccination status. Clinical and laboratory results, dyspnea by numerical rating scale, and palliative-related treatments were recorded at the first SPC review, when symptoms peaked, and the last SPC review. Patients with morphine equivalent daily dose (MEDD) of ≥45mg and/or BZD use for dyspnea control were grouped as high users, while patients with MEDD <45mg and no BZD use were low users. <b><i>Results:</i></b> Among 234 patients, 119 (50.9%) were high users. Multivariate analysis showed that subjects with higher dyspnea (odds ratio [OR] 1.74, 95% confidence interval [CI] 1.45-2.08) and lower ISARIC-4C scores (OR 0.77, 95% CI 0.67-0.88) at first SPC review were predictive of high users. High users also required higher supplemental oxygen and had higher inpatient mortality rates. <b><i>Conclusions:</i></b> High dyspnea score is predictive of high opioid and/or BZD use for symptom control in nonventilated patients with severe COVID-19. Such patients with high mortality rates should be seen early by SPC.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142716544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Per-Patient Illness Trajectory Analyses. 每个病人的疾病轨迹分析。
IF 2.2 3区 医学
Journal of palliative medicine Pub Date : 2024-11-12 DOI: 10.1089/jpm.2024.0181
Juliet Jacobsen, Karin Boo Hammas, Mikael Segerlantz, Joakim Ekstrand, Sanjoy Mahajan, Jenny Klintman
{"title":"Per-Patient Illness Trajectory Analyses.","authors":"Juliet Jacobsen, Karin Boo Hammas, Mikael Segerlantz, Joakim Ekstrand, Sanjoy Mahajan, Jenny Klintman","doi":"10.1089/jpm.2024.0181","DOIUrl":"https://doi.org/10.1089/jpm.2024.0181","url":null,"abstract":"<p><p><b><i>Background:</i></b> Summary statistics often hide individual patients' suffering, thereby impeding quality improvement efforts. <b><i>Objectives:</i></b> We aimed to show the experience of a population with health care toward the end of life while preserving the experience of the individual. <b><i>Design:</i></b> We developed a data display method called per-patient illness trajectory analysis. We tested it using a demonstration cohort of 192 patients with cancer referred to a regional Swedish specialized home-based palliative care practice. Chart review provided detailed information about illness trajectory events with a focus on unplanned hospitalization. <b><i>Results:</i></b> We created per-patient timelines spanning from cancer diagnosis until death and using a logarithmic scale: Compared with a conventional, linear timescale, this scale expands the time resolution toward the end of life. The method fosters the assessment of unmet palliative care need and care quality for individuals, small high-need groups, and populations. <b><i>Conclusion:</i></b> In populations of up to 200 people, per-patient illness trajectory analysis is feasible and promising. Using random sampling, it could be extended to larger populations.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":""},"PeriodicalIF":2.2,"publicationDate":"2024-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信