{"title":"<i>Letter to the Editor:</i> Quality Measurement for Seriously Ill and Dying-The Denominator Problem.","authors":"Joan M Teno, Claire Ankuda","doi":"10.1089/jpm.2024.0370","DOIUrl":"https://doi.org/10.1089/jpm.2024.0370","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Juliet Jacobsen, Karin Boo Hammas, Mikael Segerlantz, Joakim Ekstrand, Sanjoy Mahajan, Jenny Klintman
{"title":"Per-Patient Illness Trajectory Analyses.","authors":"Juliet Jacobsen, Karin Boo Hammas, Mikael Segerlantz, Joakim Ekstrand, Sanjoy Mahajan, Jenny Klintman","doi":"10.1089/jpm.2024.0181","DOIUrl":"https://doi.org/10.1089/jpm.2024.0181","url":null,"abstract":"<p><p><b><i>Background:</i></b> Summary statistics often hide individual patients' suffering, thereby impeding quality improvement efforts. <b><i>Objectives:</i></b> We aimed to show the experience of a population with health care toward the end of life while preserving the experience of the individual. <b><i>Design:</i></b> We developed a data display method called per-patient illness trajectory analysis. We tested it using a demonstration cohort of 192 patients with cancer referred to a regional Swedish specialized home-based palliative care practice. Chart review provided detailed information about illness trajectory events with a focus on unplanned hospitalization. <b><i>Results:</i></b> We created per-patient timelines spanning from cancer diagnosis until death and using a logarithmic scale: Compared with a conventional, linear timescale, this scale expands the time resolution toward the end of life. The method fosters the assessment of unmet palliative care need and care quality for individuals, small high-need groups, and populations. <b><i>Conclusion:</i></b> In populations of up to 200 people, per-patient illness trajectory analysis is feasible and promising. Using random sampling, it could be extended to larger populations.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel Rusch, Heather Coats, Cara L Wallace, Khaliah A Johnson, Kashelle Lockman, William E Rosa, Rebecca Wright, Susan DeSanto-Madeya, David S Wu
{"title":"The Palliative Arts: Envisioning a New Paradigm in Palliative Care.","authors":"Rachel Rusch, Heather Coats, Cara L Wallace, Khaliah A Johnson, Kashelle Lockman, William E Rosa, Rebecca Wright, Susan DeSanto-Madeya, David S Wu","doi":"10.1089/jpm.2024.0279","DOIUrl":"https://doi.org/10.1089/jpm.2024.0279","url":null,"abstract":"<p><p>A growing body of evidence supports the effectiveness of arts-based interventions in nurturing human connection, healing, and reflection-for patients living with illness, their families, and their health care communities. Thus, we propose that these interventions, what we call the Palliative Arts-just as much as science-should be systematically integrated in clinical education, practice, research, wellness, leadership, and advocacy to impact person-centered outcomes. Our interprofessional team describes a variety of arts-based programming that its authors are leading to highlight the breadth of existing Palliative Arts work and point to future horizons for its integration in health care education and clinical settings. We propose that the Palliative Arts can inform a new paradigm, one with the potential to foster person-centered innovation and meaningful change in the field of palliative care-and health care at large.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"<i>Letter to the Editor:</i> Reaching the Public in 2025.","authors":"Anthony Back","doi":"10.1089/jpm.2024.0410","DOIUrl":"https://doi.org/10.1089/jpm.2024.0410","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621684","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}