Journal of palliative medicine最新文献

{"title":"Fast Fact and Concepts: Adjustment Disorder in Patients with Serious Illness #539.","authors":"Carmen C Sotomayor Ruiz, Molly Kilpatrick, Maisha T Robinson, Barbara Lubrano di Ciccone","doi":"10.1177/10966218261488084","DOIUrl":"https://doi.org/10.1177/10966218261488084","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261488084"},"PeriodicalIF":1.8,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148969488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Songwriting in Medical Music Therapy in Pediatric Palliative Care: Case-Based Clinical Insight from Music Therapy Practice.","authors":"Filippo Giordano, Chiara Rutigliano, Mariagrazia Baroni, Cheryl Dileo, Paola Muggeo","doi":"10.1177/10966218261488240","DOIUrl":"https://doi.org/10.1177/10966218261488240","url":null,"abstract":"<p><strong>Objective: </strong>Children receiving pediatric palliative care (PPC) have complex, multidimensional needs requiring an integrative and person-centered approach. Although songwriting (SW) within medical music therapy (MMT) has been used to support expression and communication, its role as a process-oriented intervention in PPC remains underexplored. This case-based report explores the use of SW to support emotional expression, communication, and meaning-making at the end of life.</p><p><strong>Methods: </strong>We describe the case of a 12-year-old patient with advanced Burkitt lymphoma receiving MMT during hospitalization. SW emerged within an established therapeutic relationship grounded in receptive listening and emotional regulation. The SW process developed over approximately 30 days and was analyzed through clinical observation and musical-textual analysis.</p><p><strong>Results: </strong>SW facilitated the gradual emergence of experiences related to physical suffering, hope, identity, and family relationships. The song's open structure, unstable phrasing, and vocal qualities reflected the patient's physical and emotional condition, highlighting the dynamic and nonlinear nature of lived experience. Rather than promoting emotional resolution, the process enabled the patient to remain within evolving questions, supporting a sense of meaning without closure. SW also functioned as a relational space, fostering shared meaning and emotional continuity within the family.</p><p><strong>Significance of results: </strong>This report suggests that SW in PPC can support the integration of complex experiences while sustaining meaning-making without imposing closure. It highlights the role of the music therapist in maintaining a flexible, attuned, and ethically grounded stance, offering a space in which patients can explore and inhabit their experience in a manner consistent with their condition.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261488240"},"PeriodicalIF":1.8,"publicationDate":"2026-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148969421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Cup of Chai.","authors":"Garima Chopra","doi":"10.1177/10966218261486910","DOIUrl":"https://doi.org/10.1177/10966218261486910","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261486910"},"PeriodicalIF":1.8,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148930123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Art Gallery Advocacy: Raising Awareness About the Full Lives of Children with Medical Complexity.","authors":"Emma Meissner, McKenzie Johnson, Sarah Keogh, Crystal Nogle, Whitney Stohr, Angie Sutphen, Colleen Young, Ellie Oslin, Heather Evans, Blyth Lord, Caitie Hawley, Jori F Bogetz","doi":"10.1177/10966218261488086","DOIUrl":"https://doi.org/10.1177/10966218261488086","url":null,"abstract":"<p><strong>Introduction: </strong>Children with medical complexity (CMC) are often underrepresented in society.</p><p><strong>Objective: </strong>To describe the creation and evaluation of a rotating art gallery exhibit featuring CMC.</p><p><strong>Methods: </strong>In partnership with their existing community advisory board, a team of photo-narrative researchers who use participant-generated photographs and personal narratives to explore lived experiences, developed a gallery exhibit featuring CMC with three framed photos, alongside a narrative about each child. The gallery was displayed online and in-person. Visitor demographics and experiences were collected via paper/electronic surveys.</p><p><strong>Results: </strong><i>N</i> = 30 visitors completed surveys. Most attended to support a child/family featured (<i>n</i> = 15, 50%). Despite 40% (<i>n</i> = 12) of visitors reporting their knowledge about CMC was \"extremely high\" before the exhibit, 40% (<i>n</i> = 12) felt that they \"gained some new knowledge\" and an additional 33% (<i>n</i> = 10) felt they \"learned a great deal.\"</p><p><strong>Conclusion: </strong>Art gallery exhibits may be a helpful way to highlight the full lives of CMC.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261488086"},"PeriodicalIF":1.8,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148955936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Pilot Study of an Information Sheet Intervention to Support Surrogate Decision Making About Mechanical Ventilation in Dementia.","authors":"Briana E Lee, Kelly C Vranas, Sara E Golden, Ritika Singh, Joan M Teno, William E Rosa, Jacopo D'Andria Ursoleo, Donald R Sullivan","doi":"10.1177/10966218261487645","DOIUrl":"10.1177/10966218261487645","url":null,"abstract":"<p><strong>Background: </strong>Aspiration pneumonia is a common complication of advanced dementia that can lead to respiratory failure requiring decisions about mechanical ventilation. Despite comfort-focused end-of-life (EOL) goals, many people with dementia receive mechanical ventilation, highlighting the need for improved decision-making support.</p><p><strong>Objectives: </strong>To develop and evaluate an information sheet intervention.</p><p><strong>Methods: </strong>We report pilot testing of an information sheet intervention, developed using qualitative feedback from surrogates and clinicians. Surrogates were randomized to intervention or control groups; pre/post-intervention outcomes were measured at baseline and eight-week follow-up.</p><p><strong>Results: </strong>Fourteen surrogates enrolled (93%), and 13 completed the study (93%; control = 4, intervention = 9) demonstrating feasibility. Surrogates found the information sheet acceptable (mean = 3.3/4, SD = 0.93) and expressed positive feedback. Knowledge improved in the intervention group (Cohen's <i>d</i> = 1.08, <i>p</i> = 0.01) and remained unchanged among controls. No other outcomes differed at follow-up.</p><p><strong>Conclusion: </strong>The information sheet intervention was feasible, acceptable, and improved surrogates' knowledge of dementia in preparing for EOL discussions.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261487645"},"PeriodicalIF":1.8,"publicationDate":"2026-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148955919","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"<i>Letter:</i> Defining Referral Criteria for Palliative Care in Postintensive Care Syndrome.","authors":"Shubhendu Bajpai, Ravi Jain, Adam Breslin, Jordan Magruder","doi":"10.1177/10966218261486547","DOIUrl":"https://doi.org/10.1177/10966218261486547","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261486547"},"PeriodicalIF":1.8,"publicationDate":"2026-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148930179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Methylene Blue Oral Rinse for Cancer-Related Oral Mucositis Pain #540.","authors":"Erik S Carlson, Robert Arnold","doi":"10.1177/10966218261488495","DOIUrl":"https://doi.org/10.1177/10966218261488495","url":null,"abstract":"","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261488495"},"PeriodicalIF":1.8,"publicationDate":"2026-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148930131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Early Experiences in Establishing a Palliative Care-Integrated Paracentesis Clinic.","authors":"Shanup Dalal, Isabelle Carroll, Winnie S Wang, Sepedeh Hazrati, Jane Mwangi, Arthur S Hong","doi":"10.1177/10966218261486546","DOIUrl":"https://doi.org/10.1177/10966218261486546","url":null,"abstract":"<p><strong>Background: </strong>Recurrent ascites is a debilitating complication of malignancy and cirrhosis that frequently leads to hospital admissions. Palliative care is well positioned to address symptom burden through both medical and procedural interventions.</p><p><strong>Objectives: </strong>To characterize healthcare utilization among patients requiring paracentesis and evaluate the feasibility, utilization, and safety of an outpatient palliative care procedure clinic.</p><p><strong>Methods: </strong>We conducted a needs assessment at Parkland Health (USA) by identifying patients followed by the palliative care team with stage IV malignancy or cirrhosis who were admitted for paracentesis between 2018 and 2023. Findings informed the development of an outpatient palliative care procedure clinic. A retrospective analysis of the first 12 months was performed, including patient characteristics, procedural outcomes, and symptom burden using the Palliative Care Outcome Scale (POS). A postimplementation satisfaction survey was administered to clinic staff after the pilot year.</p><p><strong>Results: </strong>A total of 493 patients accounted for 672 hospital admissions requiring paracentesis, with a median length of stay of eight days (interquartile range [IQR], 4-18). During the first year of the clinic, 19 patients underwent 44 outpatient paracenteses. Median age was 50 years (IQR, 43.5-60.5), 63% were female, and 84% had malignant ascites. No immediate procedural complications occurred during a 20-minute postprocedure observation period, and none were identified within seven days on chart review. Median fluid removal was 3500 mL (IQR, 2400-4050 mL). Baseline POS scores demonstrated substantial symptom burden (mean 17.3 ± 5.8). Staff satisfaction with clinic continuation and expansion was high (mean score 4.8/5).</p><p><strong>Conclusions: </strong>Patients with recurrent ascites experience substantial healthcare utilization and symptom burden. An outpatient palliative care procedure clinic appears feasible and safe in this pilot cohort. Larger studies are needed to confirm safety and evaluate effects on healthcare utilization and patient-centered outcomes.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261486546"},"PeriodicalIF":1.8,"publicationDate":"2026-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148930126","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of Services of a Multidisciplinary Team for Supportive and Palliative Care for Persons with Advanced Cancer at the Tertiary Hospital in Croatia over First Three years: A Retrospective Study.","authors":"Ivana Kukec, Maja Uroić, Matija Herceg, Dora Gudelj, Ivan Bilić, Livia Puljak","doi":"10.1177/10966218261484812","DOIUrl":"https://doi.org/10.1177/10966218261484812","url":null,"abstract":"<p><strong>Background: </strong>Supportive and palliative care, delivered by a multidisciplinary team, plays a crucial role in improving the quality of life for people with advanced cancer by addressing physical, psychological, and social needs. There are no published data evaluating the work of such teams in tertiary care settings in Croatia. This study aimed to evaluate the services of a multidisciplinary supportive and palliative care team for persons with advanced cancer at a tertiary hospital in Croatia over the first three years of its work.</p><p><strong>Methods: </strong>A retrospective observational study was conducted at the University Hospital Centre Zagreb, Croatia. Data were retrieved from the electronic health records of adult patients with cancer treated by the multidisciplinary supportive and palliative care team between March 2022 and March 2025. Patient demographics, diagnoses, treatment interventions, symptom management, and health care utilization were extracted and analyzed.</p><p><strong>Results: </strong>During the study period, 476 patients were referred to the palliative care team (median age 67; 52% women). At referral, 95% had metastatic disease, and 93% had moderate-to-severe functional impairment. The most severe symptoms were fatigue, pain, lack of appetite, and drowsiness. Median time from admission to referral was six days (range 0-47) and from referral to death was 23 days (0-1022).</p><p><strong>Conclusion: </strong>Persons with cancer were referred to a multidisciplinary supportive and palliative care team with advanced metastatic disease, poor functional status, and high symptom burden. The severity of needs at the first consultation indicates that referrals often occurred too late for patients to fully benefit from palliative care. These findings highlight the need to integrate palliative care earlier within oncology pathways.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261484812"},"PeriodicalIF":1.8,"publicationDate":"2026-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148912644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Palliative Music Therapy: Disciplinary Identity and Challenges for Clinical Integration.","authors":"Agustina Iturri, Matias Najún, Natalia Vazquez, Alberto Alonso-Babarro","doi":"10.1177/10966218261486532","DOIUrl":"https://doi.org/10.1177/10966218261486532","url":null,"abstract":"<p><p>Music therapy in palliative care (PC) has accumulated a growing evidence base over recent decades, yet its integration into interdisciplinary teams remains inconsistent. This article argues that the gap between evidence and practice reflects, at least in part, a deeper conceptual problem: while foundational contributions to the field have proposed definitions, frameworks, and scope-of-practice models for music therapy in PC, these efforts have not yet translated into broad institutional consolidation of its disciplinary identity. We examine how categorical labels such as \"complementary,\" \"adjuvant,\" and \"nonpharmacological\" therapy may, in certain contexts, contribute to ambiguity regarding music therapy's scope of practice and referral patterns, and how the conflation of music therapy with music-based interventions obscures what the profession actually does and produces. We further analyze the methodological challenges inherent to researching a relational, individualized practice using standard randomized controlled trial designs. Against this background, we propose the term palliative music therapy as a first step toward building a specific disciplinary identity, one with its own language, competencies, and standards, comparable to those already developed by palliative psychology and palliative nursing. This requires specialized training, active participation in the spaces where PC quality is defined, and research that faithfully captures the clinical and relational complexity of the discipline.</p>","PeriodicalId":16656,"journal":{"name":"Journal of palliative medicine","volume":" ","pages":"10966218261486532"},"PeriodicalIF":1.8,"publicationDate":"2026-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148912663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}