姑息治疗的创新:对妇女、儿童和青年的支持。

IF 2.1 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES
Christine A Fortney
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引用次数: 0

摘要

本期特刊“姑息治疗的创新:对妇女、儿童和青年的支持”由玛莎·s·皮策妇女、儿童和青年中心主办,重点介绍了针对弱势群体及其家庭的姑息治疗的前沿研究和观点。特色研究突出了急性和社区环境中的关键维度。Porter等人提出了在复发性预后不确定情况下临床医生与家长沟通的实用策略,强调了移情和适应性的重要性。Fortney等人调查了新生儿重症监护病房中有婴儿的父母的深刻痛苦和恢复力,强调需要有针对性的干预措施来支持母亲和父亲。Fasolino等人回顾了为患有慢性疾病的儿童提供过夜营地的好处,揭示了在社会和心理健康方面的显著收益,并敦促进一步研究和整合到护理模式中。达迪奇和Chróinín分析了媒体对自愿协助死亡的表述,揭示了女性在公共话语中的边缘化,并倡导一种更包容、更公平的叙事。在这些贡献中,本期确定了关键线索:不确定性和沟通的影响,创造性支持机制的必要性,以及社会叙事对宣传和决策的影响。总的来说,这些见解促使人们反思和创新,以创建全面的、以人为本的姑息治疗方法,认识到妇女、儿童和青年面临的复杂情感、社会和文化现实。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Innovations in Palliative Care: Support for Women, Children, and Youth.

This special issue, "Innovations in Palliative Care: Support for Women, Children and Youth," sponsored by the Martha S. Pitzer Center for Women, Children and Youth, spotlights cutting-edge research and perspectives on palliative care for vulnerable populations and their families. The featured studies highlight critical dimensions across acute and community settings. Porter et al. present practical strategies for clinician-parent communication amid recurrent prognostic uncertainty, emphasizing the importance of empathy and adaptability. Fortney et al. investigate the profound distress and resilience of parents with infants in the neonatal intensive care unit, highlighting the need for targeted interventions to support both mothers and fathers. Fasolino et al. review the benefits of overnight camps for caregivers of children with chronic illnesses, revealing significant gains in social and psychological well-being-and urging further research and integration into care models. Dadich and Chróinín analyze media representations of voluntary assisted dying, uncovering the marginalization of women's voices in public discourse and championing a more inclusive, equity-driven narrative. Across these contributions, the issue identifies key threads: the impact of uncertainty and communication, the necessity of creative support mechanisms, and the influence of societal narratives on advocacy and decision making. Collectively, these insights invite reflection and innovation in creating holistic, person-centered palliative care approaches that recognize the complex emotional, social, and cultural realities faced by women, children, and youth.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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