Anthropology & MedicinePub Date : 2023-12-01Epub Date: 2024-02-08DOI: 10.1080/13648470.2023.2291738
Stefan Ecks, Vani Kulkarni
{"title":"'Having the card makes us feel worthless': the negative value of government-funded health insurance in India.","authors":"Stefan Ecks, Vani Kulkarni","doi":"10.1080/13648470.2023.2291738","DOIUrl":"10.1080/13648470.2023.2291738","url":null,"abstract":"<p><p>Since the 2000s, hundreds of government-funded health insurance (GFHI) schemes were introduced in India. These schemes are meant to prevent poorer households from incurring catastrophic health expenditures. Through GFHIs, policy-makers want to mobilize the decision-making powers of private consumers in a liberalized healthcare market. Patients are called upon to act as 'co-creators' of healthcare value by optimizing supply through demand. Based on long-term ethnographic fieldwork with insurance users in South India, we argue that GFHIs fail because people experience the value of insurance in drastically different ways that only partly overlap with how the policy assumes they value insurance. In addition, the hollow promises of health coverage can be experienced as so frustrating that signing up for health insurance actually makes people feel devalued.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"380-393"},"PeriodicalIF":1.8,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139650183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-12-01Epub Date: 2024-02-08DOI: 10.1080/13648470.2023.2269523
Rebekah A Hoeks, Michael J Deml, Julie Dubois, Oliver Senn, Sven Streit, Yael Rachamin, Katharina Tabea Jungo
{"title":"Broken bones and apple brandy: resilience and sensemaking of general practitioners and their at-risk patients during the COVID-19 pandemic in Switzerland.","authors":"Rebekah A Hoeks, Michael J Deml, Julie Dubois, Oliver Senn, Sven Streit, Yael Rachamin, Katharina Tabea Jungo","doi":"10.1080/13648470.2023.2269523","DOIUrl":"10.1080/13648470.2023.2269523","url":null,"abstract":"<p><p>In early 2020, when the first COVID-19 cases were confirmed in Switzerland, the federal government started implementing measures such as national stay-at-home recommendations and a strict limitation of health care services use. General practitioners (GPs) and their at-risk patients faced similar uncertainties and grappled with subsequent sensemaking of the unprecedented situation. Qualitative interviews with 24 GPs and 37 at-risk patients were conducted which were analyzed using thematic analysis. Weick's (1993) four sources of -resilience - <i>improvisation, virtual role systems, attitudes of wisdom</i> and <i>respectful interaction</i> - heuristically guide the exploration of on-the-ground experiences and informal ways GPs and their at-risk patients sought to ensure continuity of primary care. GPs used their metaphorical Swiss army knives of learned tools as well as existing knowledge and relationships to adapt to the extenuating circumstances. Through <i>improvisation,</i> GPs and patients found pragmatic solutions, such as using local farmer apple brandy as disinfectant or at-home treatments of clavicle fractures. Through <i>virtual role systems</i>, GPs and patients came to terms with new and shifting roles, such as \"good soldier\" and \"at-risk patient\" categorizations. Both parties adopted <i>attitudes of wisdom</i> by accepting that they could not know everything. They also diversified their sources of information through personal relationships, formal networks, and the internet. The GP-patient relationship grew in importance through <i>respectful interaction</i>, and intersubjective reflection helped make sense of shifting roles and ambiguous guidelines. The empirical analysis of this paper contributes to theoretical considerations of sensemaking, resilience, crisis settings and health systems.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"346-361"},"PeriodicalIF":1.8,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10860889/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139574966","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-05-08DOI: 10.1080/13648470.2023.2171237
Shubha Ranganathan
{"title":"'I do not feel well here as such. But it has become my home': abandonment and care in healing shrines.","authors":"Shubha Ranganathan","doi":"10.1080/13648470.2023.2171237","DOIUrl":"10.1080/13648470.2023.2171237","url":null,"abstract":"Abstract In thinking about care, much research has focused on kin relations, family-related care, and formal (medical) or informal care providers. Yet, how do we understand care responsibilities in contexts where kin care is absent despite being a desired social norm, and people turn to other community sources or practices? This paper draws on ethnographic research in a Sufi religious shrine in western India well-known for providing succor to those in distress, including those with mental illness. Interviews were conducted with pilgrims who had left homes due to strained relationships with kin members. For many of them, the shrine emerged as a sanctuary, even while not entirely a safe one, allowing women to live alone. While both academic research on mental health institutions and state responses have delved into the abandoned or ‘dumped woman’ in long-stay institutions or care homes, this paper argues that ‘abandonment’ is not a straightforward condition, but rather a dynamic discourse that works in different ways. For women bereft of kinship ties, narratives of being abandoned by kin became ways of justifying long (and sometimes permanent) residence in religious shrines, which were able to absorb such ‘abandoned’ pilgrims who had nowhere else to go, even if half-heartedly so. Importantly, these alternative forms of living made possible by shrines reflect women’s agency, enabling women to live alone even while belonging to a community. In a context with limited social security options for women in precarious family situations, these care arrangements become significant, even if they are informal and ambivalent forms of care. Keywords: kinship; abandonment; agency; care; religious healing","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"278-293"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9431761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-11-27DOI: 10.1080/13648470.2023.2255771
Emilija Zabiliūtė, Hannah McNeilly
{"title":"Relational chronicities: kinship, care, and ethics of responsibility.","authors":"Emilija Zabiliūtė, Hannah McNeilly","doi":"10.1080/13648470.2023.2255771","DOIUrl":"10.1080/13648470.2023.2255771","url":null,"abstract":"ABSTRACT Care for chronic illness in clinical and everyday settings is relational and underpinned by ethical dilemmas about kinship care responsibilities as much as it is about self-care practices and technologically aided living. Such is the central argument of this special issue, which explores kin care and ethics of responsibilities in the everyday lives of persons and families with chronic illness across different locations globally. Rather than outlining the importance of kin care in times and spaces where clinical attention and healthcare are absent, or examining kin care as a modality of care that is separate from, contradictory, and incompatible with the clinical one, we examine how clinical modes of attention dovetail with the ethics of kin care and relational knowledge. We explore redistributions of care responsibilities between the family and the clinic by paying attention to kinship dynamics and argue that chronicity and kinship co-constitute each other in everyday life and clinical settings.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"171-183"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41102819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-02-01DOI: 10.1080/13648470.2022.2161765
Liana Chase
{"title":"The double-edged sword of 'community' in community-based psychosocial care: reflections on task-shifting in rural Nepal.","authors":"Liana Chase","doi":"10.1080/13648470.2022.2161765","DOIUrl":"10.1080/13648470.2022.2161765","url":null,"abstract":"<p><p>Research in the field of Global Mental Health has stoked hopes that 'task-shifting' to community workers can help fill treatment gaps in low-resource settings. The fact that community workers inhabit the same local moral worlds as their clients is widely framed as a boon, with little consideration of the social and ethical dilemmas this might create in the care of chronic, stigmatized conditions. Drawing on 14 months of ethnographic research focused on psychosocial interventions in Nepal, this paper traces how the multiple roles community workers occupied with respect to their clients - clinician, neighbour, and at times kin - came to bear on the care they provided. In-depth case studies are used to explore two divergent logics of care informing Nepali community workers' practice. While formal psychosocial care guidelines emphasized clients' autonomy, calling for non-judgmental and non-directive forms of emotional support, everyday efforts to 'convince' neighbours and relatives in distress often involved directive guidance oriented toward the restoration of moral personhood and social relations. These approaches could be mutually supportive, but tensions arose when community workers invoked moral standards linked with mental health stigma. This analysis highlights the challenge of mobilizing communities' strengths and resources without inadvertently reproducing their exclusions. It suggests the deployment of community workers to address psychosocial care gaps may entail not only leveraging existing relationships within communities, but also reconfiguring the very terms of relatedness.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"294-309"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9153663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-07-13DOI: 10.1080/13648470.2023.2171238
Francesco Diodati
{"title":"Narrating the caring fatigue: stories of the ambivalence of filial care in a caregivers' self-help group in Italy.","authors":"Francesco Diodati","doi":"10.1080/13648470.2023.2171238","DOIUrl":"10.1080/13648470.2023.2171238","url":null,"abstract":"<p><p>This article shows how, within a caregivers' self-help group in Emilia-Romagna, Italy, the narrative of caring fatigue was mobilised to question and negotiate local normative discourses and social norms on affective states and family care responsibilities. The neoliberal discourse on family caregiving in Italy assumes that it comes from authentic affective states and mutual understanding. By showing how intergenerational obligations and shifting parent-child hierarchies constrained the building up of caregiving relations, the narrative of caring fatigue allowed participants to explain the ambivalence they perceived about their filial responsibilities. Therefore, this narrative legitimised the choice of preserving caregivers' wellbeing and delegating aspects of care. This paper argues that stories of caring fatigue contradict the ideal model of family care that shapes academic and institutional discourses. Nevertheless, they play an important role in sustaining caregiver endurance.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"215-229"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9773465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-11-27DOI: 10.1080/13648470.2023.2255773
Vaibhav Saria, Veena Das, Benjamin Daniels, Madhukar Pai, Jishnu Das
{"title":"The family doctor: health, kin testing and primary care in Patna, India.","authors":"Vaibhav Saria, Veena Das, Benjamin Daniels, Madhukar Pai, Jishnu Das","doi":"10.1080/13648470.2023.2255773","DOIUrl":"10.1080/13648470.2023.2255773","url":null,"abstract":"<p><p>Private primary care providers are usually the first site where afflictions come under institutional view. In the context of poverty, the relationship between illness and care is more complex than a simple division of responsibilities between various actors-with care given by kin, and diagnosis and treatment being the purview of providers. Since patients would often visit the provider with family members, providers are attuned to the patients' web of kinship. Providers would take patients' kinship arrangements into account when prescribing diagnostic tests and treatments. This paper terms this aspect of the clinical encounter as 'kin testing' to refer to situations/clinical encounters when providers take into consideration that care provided by kin was conditional. 'Kin testing' allowed providers to manage the episode of illness that had brought the patient to the clinic by relying on clinical judgment rather than confirmed laboratory tests. Furthermore, since complaints of poor health also were an idiom to communicate kin neglect, providers had to also discern how to negotiate diagnoses and treatments. Kinship determined whether the afflicted bodies brought to the clinics were diagnosed, whether medicines reached the body, and adherence maintained. The providers' actions make visible the difference that kinship made in how health is imagined in the clinic and in standardized protocols. Focusing on primary care clinics in Patna, India, we contribute to research that shows that kinship determines care and management of illnesses at home by showing that relatedness of patients gets folded in the clinic by providers as well.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"246-261"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41189488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-09-15DOI: 10.1080/13648470.2023.2236875
Kaveri Qureshi
{"title":"Patient patients: middle-aged British Pakistani women and the intuition of limits to care.","authors":"Kaveri Qureshi","doi":"10.1080/13648470.2023.2236875","DOIUrl":"10.1080/13648470.2023.2236875","url":null,"abstract":"<p><p>This paper examines the affective inequalities underpinning the extensive responsibilities of care that are shouldered by chronically ill -middle-aged British Pakistani women. In the context of ethnic health inequalities, chronic illness and premature ageing are ubiquitous. Further, mid-life generates gendered pinchpoints in the dynamics of care. The paper draws on extended conversations with women over seven/eight years and tracks their unsettled perspectives on <i>sabar</i> (patient endurance). Middle-aged women described how, over the long haul of living alongside chronic illness, they intuited that they must place some limits on caring for others, and that care required self-care - not in a biomedical sense, but in the sense of attention to their own bodily and relational needs. The paper extends anthropological critiques of Levinas's philosophy of infinite responsibilities to care, tracking how changes at several temporal scales - the life course, intergenerational re-negotiations - affect care. While social transformations of gender, and the proliferation of neoliberal discourses on self-care do affect the traction of normative notions of selfless care for others, the paper locates women's changing perspectives on <i>sabar</i> primarily in the provocations of everyday life.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"184-198"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10243765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2023-09-01Epub Date: 2023-09-12DOI: 10.1080/13648470.2023.2239510
Giulia Sciolli
{"title":"When the clinic becomes home: on the limits of kinship care in an eating disorder treatment centre in Italy.","authors":"Giulia Sciolli","doi":"10.1080/13648470.2023.2239510","DOIUrl":"10.1080/13648470.2023.2239510","url":null,"abstract":"<p><p>Drawing on fieldwork in a public residential facility for eating disorders in central Italy, the paper examines the relational temporalities of therapeutics by looking at how time affects treatment at the intersection of professional and family care practices. In arguing that 'chronic cases' put into question the specific kind of kinship care that is at the basis of treatment, the paper contributes to the anthropological literature on eating disorders by bringing time under the analytical lens, and to the literature on 'chronicity' by complicating simplified assumptions about structural care problems. In addition, the paper draws on and goes beyond anthropological works that have highlighted the potentially harmful side of kinship - including those that have explored how kinship can be framed as a source of mental distress and at the same time as a therapeutic tool. Kinship as a therapeutic tool here becomes risky because professionals need to borrow from kinship practices in their own work with patients, balancing those with the necessary clinical detachment. The paper shows that the time chronic patients need in residential treatment generates a particularly complex mix between what is seen as 'functional' and what is seen as 'dysfunctional' in kinship care, because the 'efficacy' of the kinship work that is at the basis of treatment rests on that being partial and temporary. Long term care in the facility complicates what otherwise allows clinical detachment: the treatment team ends up literally substituting the patient's family, with professional and family care mixing 'too much' with one another.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"262-277"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10213107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}