Anthropology & Medicine最新文献

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Collaborative ethnography and a call for pluralism and dialogic knowledge in health equity debates and global cancer research culture.
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-12-18 DOI: 10.1080/13648470.2024.2416806
Natalia Luxardo
{"title":"Collaborative ethnography and a call for pluralism and dialogic knowledge in health equity debates and global cancer research culture.","authors":"Natalia Luxardo","doi":"10.1080/13648470.2024.2416806","DOIUrl":"https://doi.org/10.1080/13648470.2024.2416806","url":null,"abstract":"<p><p>Scholars in medical anthropology note that, despite more than 25 years of anthropological studies on cancer, much of this scholarship remains marginal in mainstream public health approaches. This paper examines social practices, biases, and unnoticed assumptions in mainstream global health research culture that prevents anthropology from having a more influential role in cancer research and policy agendas. It focuses on the day-to-day, ordinary, micro academic practices in which differential power distribution exacerbates inequity within the field, ignoring the role played by approaches with disciplinarian, epistemological and geopolitical peripheries. Inspired by a <i>Bourdieusian</i> epistemic reflexivity, this autoethnography systematized and analyzed through decolonial lenses some deterrents within real-world-research practices, including as the corpus own studies on cancer and inequalities studies that were based on collaborative ethnography (2013-2024). Six categories account for such deterrents in the global field: 1) Public health mainstream-centrism and the lack of recognition of anthropological knowledge principles; 2) Restrictive conception of ethics; 3) <i>Similis Simili Gaudet</i> biases - to be inclined to select what is alike; 4) Ethnocentric and naïve assumptions in relation to the road from evidence to practice; 5) Unconsidered dimensions of collaborations: Strengthening citizenship; 6) The moral economy of (only) professional trajectories interests and hidden priorities<b>.</b> It concludes by noting that anthropology has a lot to provide in the search for a genuinely democratic, plural, and decentralized knowledge in global cancer equity debates strengthening paradigms of dialogue, still so fragile and invisible in the field of cancer and public health in general.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142852135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The impact of stigma on the LGBTQ patient care experience and health outcomes in the United States.
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-12-05 DOI: 10.1080/13648470.2024.2416802
Jay S Pickern
{"title":"The impact of stigma on the LGBTQ patient care experience and health outcomes in the United States.","authors":"Jay S Pickern","doi":"10.1080/13648470.2024.2416802","DOIUrl":"https://doi.org/10.1080/13648470.2024.2416802","url":null,"abstract":"<p><p>The stigmatization of lesbian, gay, bisexual, transgender, and queer (LGBTQ) individuals has a direct impact on the patient care experience and eventual health outcomes of this population both in the United States and abroad. The stigmatization of LGBTQ individuals in the healthcare system can lead to poor patient care and LGBTQ patients' self-removal from the healthcare system entirely. This self-removal could lead to untreated health issues, as well as the spread of communicable diseases throughout the LGBTQ community. This commentary reviews the Report of the 2019 Southern LGBTQ Health Survey. Recommendations are made for improving provider education on LGBTQ issues, which would, in turn, improve the LGBTQ patient care experience and health outcomes for this population.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"1-6"},"PeriodicalIF":1.5,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142779311","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Temporal curation: curating life in the anticipation of cancer.
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-12-02 DOI: 10.1080/13648470.2024.2416800
Michal Frumer, Marie Louise Tørring, Rikke Sand Andersen
{"title":"Temporal curation: curating life in the anticipation of cancer.","authors":"Michal Frumer, Marie Louise Tørring, Rikke Sand Andersen","doi":"10.1080/13648470.2024.2416800","DOIUrl":"https://doi.org/10.1080/13648470.2024.2416800","url":null,"abstract":"<p><p>This paper explores cancer as a 'total social fact', considering it both a specific material entity and an immaterial phenomenon with social, political, and legal implications. Based on long-term ethnographic field studies on cancer as anticipation in the Danish welfare state, specifically within lung cancer diagnostics and the surveillance for 'tissue changes', the paper explores how cancer is constituted and experienced. Analyzing this new and rising cancer phenomenon, the paper attends to scale by focusing analytically on three levels (national, institutional, and intersubjective) and conceptualizes how cancer manifests at these different levels through practices of temporal curation. Temporal curation is conceptually directed at understanding both how past, present, and future exist concurrently in the diagnostic space, and how cancer is produced, preserved, and brought into the future. Hence, this paper contributes to understandings of the modern in healthcare systems, specifically arguing for a shift in discussions on diagnostics beyond a narrow focus on classificatory processes to comprise how a diagnostic phenomenon becomes temporal and sociopolitical.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2024-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142765676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The insensitivity of 'sensitive care': the bureaucracy of pregnancy tissue disposal in England, UK. 敏感护理 "的麻木不仁:英国英格兰处理妊娠组织的官僚主义。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-10-24 DOI: 10.1080/13648470.2024.2416804
Susie Kilshaw
{"title":"The insensitivity of 'sensitive care': the bureaucracy of pregnancy tissue disposal in England, UK.","authors":"Susie Kilshaw","doi":"10.1080/13648470.2024.2416804","DOIUrl":"https://doi.org/10.1080/13648470.2024.2416804","url":null,"abstract":"<p><p>The practices surrounding pregnancy ends and pregnancy remains shift and change depending on the cultural and historical context. Based on ethnographic research in one group NHS Hospital organisation in England, the paper explores what practices around pregnancy remains reveal about the values afforded the material in different contexts by different actors and the moments when these intersect. It argues that framing miscarriage as bereavement helps to structure caregiving in clinical settings and that clinical practices produce foetal personhood in ways that may not be in keeping with women's notions of their pregnancy material. It illustrates that hospital practices contain notions of value which become legitimated as the appropriate approach with consequences for normativity. This may lead to women feeling isolated and abnormal when their approach is at odds with that of the clinic. Through an exploration of how women encounter and negotiate disposal practices, the paper argues that current practice requires revision to flexibly respond to diversity but also shifting meaning and values attributed to these experiences and materials.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2024-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142493630","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Feeling social change in the gut: gyāstrik and the problematisation of domestic roles among Newar women in contemporary Nepal. 在内脏中感受社会变革:当代尼泊尔纽瓦族妇女的家庭角色问题化。
IF 1.8 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-12 DOI: 10.1080/13648470.2024.2387502
Paola Tiné
{"title":"Feeling social change in the gut: gyāstrik and the problematisation of domestic roles among Newar women in contemporary Nepal.","authors":"Paola Tiné","doi":"10.1080/13648470.2024.2387502","DOIUrl":"https://doi.org/10.1080/13648470.2024.2387502","url":null,"abstract":"Drawing upon 15 months of research conducted in 2018-2019 in Bhaktapur, Nepal, this paper examines how middle-class women experience and make sense of gyāstrik (an umbrella term for multiple gut disorders) as an embodiment of social change. Enumerating dietary injustices and distress following unmet middle-class expectations of well-being and domestic intimacy as a primary cause of the condition, these women narratively problematised social norms and found ways out through the concomitant vocalisation of physical pain and social discontent. While illness epistemologies differ (with the persistence of mind-body dichotomies on the one hand and the centrality of notions of well-being and ideals of self-care on the other), these accounts demonstrate both a passive and active role of the gut in the social change experience, inviting to take the gut as the site where somatic modes of 'attention' and 'action' enable the navigation of personal life trajectories and the negotiation of social change itself.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"28 1","pages":"1-21"},"PeriodicalIF":1.8,"publicationDate":"2024-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142198821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A matter of balance. Positioning of parents' selves through negotiations of symptoms' meaning at a pain clinic for children/young people. 平衡问题。在儿童/青少年疼痛门诊中,通过对症状意义的协商来定位父母的自我。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-02 DOI: 10.1080/13648470.2024.2373013
Sara Seerup Laursen
{"title":"<i>A matter of balance.</i> Positioning of parents' <i>selves</i> through negotiations of symptoms' meaning at a pain clinic for children/young people.","authors":"Sara Seerup Laursen","doi":"10.1080/13648470.2024.2373013","DOIUrl":"https://doi.org/10.1080/13648470.2024.2373013","url":null,"abstract":"<p><p>This paper traces how the meaning of symptoms and the positioning of <i>selves</i> are entangled and discursively constructed in therapeutic conversations between parents and therapists at a pain clinic for children and young people (age 8 to 18) with recurrent or chronic pain or other somatic symptoms with no established biophysical pathology. Based on data material from an ethnographic fieldwork it is examined how the selves of respectively children/young people and their parents are discursively positioned in conversational encounters and the role positioning of selves play in the context of establishing and negotiating the symptoms' meaning. The bearer of medically unexplained symptoms is oftentimes subjected to moral assessments. In this paper it will be shown that parents, in the institutional setting of the pain clinic, enter the negotiation of moral assessments assigned to their children, and that these moral assessments not only concern the sufferers' selves but also the selves of the parents. The overall argument is that dialogues between parents and therapists concerning the meaning and source of their children's symptoms are simultaneously negotiations in which not only the sufferers'  but also their parents' moral positions are at stake.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"1-16"},"PeriodicalIF":1.5,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142103824","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
(In) visibility of health and illness: Instagram as an unregulated public health platform. (健康与疾病的可见性:Instagram 作为不受监管的公共卫生平台。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-01 Epub Date: 2024-11-12 DOI: 10.1080/13648470.2024.2386887
Rachael Kent
{"title":"(In) visibility of health and illness: Instagram as an unregulated public health platform.","authors":"Rachael Kent","doi":"10.1080/13648470.2024.2386887","DOIUrl":"10.1080/13648470.2024.2386887","url":null,"abstract":"<p><p>This paper examines the changing terrain of accessing health and illness guidance and information through the lens of social media, specifically It argues how Instagram, has increasingly become an unregulated -public health platform in today's digital society. Drawing on extensive empirical interview data from two research projects before and during the COVID-19 pandemic, which explored how users showcased and performed health and illness on Instagram, this paper demonstrates how Instagram has became an important forum from which to perform proactive health practices, as well as to legitimate ill health through making healthy behaviours visible, as well as invisible illnesses like disease, COVID-19, and mental health conditions. Over time and through continuous sharing of this content may contribute to increased understanding or even a de-stigmatisation of such illnesses or chronic conditions. With the social media market currently valued at 49.9 billion, and influencer spending around 4.9 billion, the value, reach and direct impact of this 'attention economy' on public health should not be underestimated. Instagram serves as a forum for these practices and helps legitimize ill health by making both healthy behaviours and -invisible illnesses visible. This visibility can contribute to increased understanding and de-stigmatization of chronic conditions and mental health issues. The paper argues that Instagram has evolved into an informal, unregulated public health platform.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"297-312"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142613923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Surveillance medicine 2.0: digital monitoring of community health workers in India. 监测医学 2.0:对印度社区卫生工作者的数字监测。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-01 Epub Date: 2024-10-18 DOI: 10.1080/13648470.2024.2378733
Sandra Bärnreuther
{"title":"Surveillance medicine 2.0: digital monitoring of community health workers in India.","authors":"Sandra Bärnreuther","doi":"10.1080/13648470.2024.2378733","DOIUrl":"10.1080/13648470.2024.2378733","url":null,"abstract":"<p><p>This paper examines a digital platform used in the primary health sector in a state in Eastern India. Within a 'regime of tactility,' it is supposed to redefine the state's presence in rural areas, not only by attending to patients but also by screening the population and establishing health databases. While the health workers who operate the digital platform represent the state in 'the peripheries,' the state itself exhibits mistrust towards them and monitors their performance through the platform. Based on long-term ethnographic research, the manuscript analyses the use of digital health technologies as technologies of accountability. The competitive nature of monitoring techniques leads to an ever-higher number of digital consultations, which projects the image of a caring and efficient state. However, the paper also explores the unintended consequences of this politics by display on the provision of healthcare. Even though digital technologies and the managerial form of governance they engender promise to touch people's lives, they lead to intangible forms of care while leaving untouched pressing structural issues that India's health sector has been facing for decades.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"250-264"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Telecare that works: lessons on integrating digital technologies in elder care from Indian transnational families. 行之有效的远程护理:印度跨国家庭在将数字技术融入老年人护理方面的经验教训。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-01 Epub Date: 2024-08-30 DOI: 10.1080/13648470.2024.2378726
Tanja Ahlin, Kasturi Sen, Jeannette Pols
{"title":"Telecare that works: lessons on integrating digital technologies in elder care from Indian transnational families.","authors":"Tanja Ahlin, Kasturi Sen, Jeannette Pols","doi":"10.1080/13648470.2024.2378726","DOIUrl":"10.1080/13648470.2024.2378726","url":null,"abstract":"<p><p>In recent decades, policy makers around the world have been working on implementing various technologies into healthcare, and the Covid19 pandemic fueled this process. The specialized technological solutions for telecare - the use of technologies for care at a distance - are often adopted by users in different ways than intended, or are abandoned if the users cannot find applications that are meaningful to them. However, beyond specialized healthcare technologies, people are incorporating mundane digital technologies into their (health)care practices. In this paper, we draw on ethnographic research on the use of everyday digital technologies in Indian families where migrating children who are professional nurses care for their aging parents at a distance. Our findings show that 1) remote elder care is enacted through frequent calling which further fosters trust, necessary to provide healthcare remotely; 2) the motivation for older adults to engage with digital technologies is grounded in the value of family and affect which is consequential also for health; 3) technologies, too, require care-work in the form of everyday maintenance; and 4) in-person visits from children remain important, indicating that hybrid interaction is optimal for good care at a distance. We conclude that taking these findings into account may contribute to a more successful implementation of formal telecare systems.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"265-280"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142103827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dreaming big with little therapy devices: automated therapy from India. 用小治疗设备实现大梦想:来自印度的自动疗法。
IF 1.5 4区 社会学
Anthropology & Medicine Pub Date : 2024-09-01 Epub Date: 2024-10-22 DOI: 10.1080/13648470.2024.2378727
Claudia Lang
{"title":"Dreaming big with little therapy devices: automated therapy from India.","authors":"Claudia Lang","doi":"10.1080/13648470.2024.2378727","DOIUrl":"10.1080/13648470.2024.2378727","url":null,"abstract":"<p><p>This paper examines the aspirations, imaginaries and utopias of designers of an AI-based mental health app in India. By looking at automated therapy as both technological fix and sociotechnical object, I ask, What can we learn from engaging with psy technologists' imaginaries and practices of health care futures? What are the assumptions they encode in the app? How does automated therapy reconfigure the geographies and temporalities of care? While automated therapy as instantiated by Wysa provides, I argue, a modest mental health intervention, the scalar aspirations of designers are anything but small. The paper proceeds in three steps. First, it turns to designers' imaginaries of what it means to care for current mental health needs in digitally saturated lifeworlds and how they inscribe them into the app. It identifies nonjudgmental listening, anonymity, acceptance, reframing, and agency as key ideas encoded in Wysa's sociotechnical algorithms, along with a congruence between entrepreneurial and encoded ethics of care. Second, it situates automated therapy within anthropological scholarship on 'little' technical devices in global health to argue that automated therapy devices such as Wysa articulate dreams for minimalist interventions with macro effects. Finally, it explores the new geographies and temporalities of care that automated therapy spurs, tracing the ways the app bridges various spatial and temporal gaps and obstacles of human therapy and upends common global health pathways. This paper contributes to recent scholarship on aspirations, dreams and utopias and on digitization and datafication in global health.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":" ","pages":"232-249"},"PeriodicalIF":1.5,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142456778","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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