SSM. Qualitative research in health最新文献

{"title":"The collective trauma of HIV/AIDS and contemporary constructions of health: Older gay men's perspectives","authors":"Ingrid Handlovsky , Jessy Sidhu , Anthony Theodore Amato , Olivier Ferlatte , Hannah Kia","doi":"10.1016/j.ssmqr.2024.100477","DOIUrl":"10.1016/j.ssmqr.2024.100477","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100477"},"PeriodicalIF":1.8,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000866/pdfft?md5=aa55505475a0b70504e668c3d96f1155&pid=1-s2.0-S2667321524000866-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142148087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Redefining ‘family’: Conceptualising social support networks of transfeminine women in the Western Cape, South Africa - A case descriptive study of in-depth qualitative data from the HPTN 071 (PopART) trial","authors":"L. de Villiers ,&nbsp;L. Swartz ,&nbsp;P. Bock ,&nbsp;J. Seeley ,&nbsp;A. Stangl ,&nbsp;G. Hoddinott ,&nbsp;the HPTN 071 (PopART) study team","doi":"10.1016/j.ssmqr.2024.100474","DOIUrl":"10.1016/j.ssmqr.2024.100474","url":null,"abstract":"<div><p>Transfeminine women (assigned male sex at birth and identifying with a feminine gender identity) are at risk for intersectional stigma related to their gender, sexual orientation, and other parts of their social identities (including age, class, and race). These layered stigmas can result in increased physical and mental health concerns related to physical and emotional violence, substance use, high risk sexual behaviour and HIV exposure. Social networks are important support structures for transfeminine women to ameliorate imposed risk and stigma. We investigated the family networks, household structures and community support systems of eight transfeminine women in the <span>Western</span> Cape, South Africa. The data for this study are embedded in a qualitative component of the larger HPTN 071 (PopART) trial. Data included in-depth interview transcripts, genogram activities and community map drawings. We found that participants who were not living in a supportive family and household structure faced stigma and health risks. In addition, we found examples of how transfeminine women in unsupportive social situations constructed their own family and household unit for support. Our findings agree with those of other studies in that transgender people often rely on extended family members, friends, or peers as social support when their families do not support or ostracise them. Understanding how transfeminine women re-organise social units to be better supported is important so that better health services can be provided to them in the local South African and international context. Further research on family re-structuring among gender and sexual minority groups is needed.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100474"},"PeriodicalIF":1.8,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000830/pdfft?md5=9ae23986612083c9ad0a6db8622f2e00&pid=1-s2.0-S2667321524000830-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142164452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students","authors":"Liesbeth Geuze ,&nbsp;Samuel Schrevel ,&nbsp;Paula van Driesten – van Roozen ,&nbsp;Anne Goossensen","doi":"10.1016/j.ssmqr.2024.100473","DOIUrl":"10.1016/j.ssmqr.2024.100473","url":null,"abstract":"<div><p>Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways. Wonder Labs were organised with parents, healthcare professionals, and students involved in Dutch paediatric palliative care. The aim of this study was to develop an understanding of how participants experienced participating in Wonder Labs. We conducted twenty in-depth interviews with Wonder Lab participants and used inductive thematic analysis for data interpretation. Five themes were identified: Slowing down, Appreciating stories, Becoming vulnerable, Opening up and diving in, and Reframing perspectives. Participating in Wonder Labs allowed mothers, healthcare professionals, and students to contribute to deepening experiences and gain an expanded understanding of what is at play in caring for children with life-limiting and life-threatening conditions. Through working in pluralised groups, frames of reference and understandings complemented each other and could change. Participants often adopted a more open attitude towards others involved in care after participating and adapted day-to-day practices. Deliberating within paediatric palliative care on sensitive issues and their underlying personal and professional beliefs and values must be part of working together, without specific care situations being the catalyst. This may foster the mutual understanding needed in searching for quality of life, death, and bereavement.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100473"},"PeriodicalIF":1.8,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000829/pdfft?md5=26e749a285ea992ca27f3f19af8e13f1&pid=1-s2.0-S2667321524000829-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141997250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Paramedic decision-making in out of hospital cardiac arrest. A descriptive phenomenological study’","authors":"Karl Charlton ,&nbsp;Mark Bevan","doi":"10.1016/j.ssmqr.2024.100472","DOIUrl":"10.1016/j.ssmqr.2024.100472","url":null,"abstract":"<div><p>During out of hospital cardiac arrest paramedics make decisions to commence, continue or terminate resuscitation. There is variability in when resuscitation is provided, and evidence suggests these decisions are complex and influenced by factors other than patient clinical characteristics. Through first-hand accounts of paramedics who bear witness to, and make, life and death decisions during out of hospital cardiac arrest, this study aimed to describe how paramedics decide to provide resuscitation.</p><p>This descriptive phenomenological study involved eight participants and was conducted between April–September 2021 in North East Ambulance Service NHS Foundation Trust.</p><p>Paramedic stories and reflections on their encounters with out of hospital cardiac arrest speak of how the role of paramedic is bound to <em>Selfhood</em> and public identity, uncertainty about when death has occurred versus a sudden reversible event, the ethics and morality of an obligation to <em>Others</em> and the plurality of lifeworld.</p><p>Resuscitation has significant ritualistic value, is often delivered in light of expectation and serves important social functions in the process of death recognition, <em>Selfcare</em> and care for <em>Others</em>. Further research is needed to understand the impact variability in decision-making has on patient outcomes and how this relates to patient and public expectations.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100472"},"PeriodicalIF":1.8,"publicationDate":"2024-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000817/pdfft?md5=bd9c8cc9b3a77e911e55991dfa6afb60&pid=1-s2.0-S2667321524000817-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141961100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Chaos, miracle, and coping: A narrative analysis of immunoglobulin recipients’ lived experiences of illness, diagnosis and treatment","authors":"Kelly Holloway ,&nbsp;Dhara Chauhan ,&nbsp;Umair Majid ,&nbsp;Stephanie Kelly ,&nbsp;Quinn Grundy","doi":"10.1016/j.ssmqr.2024.100467","DOIUrl":"10.1016/j.ssmqr.2024.100467","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100467"},"PeriodicalIF":1.8,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000763/pdfft?md5=267900d97eb776e8c8f0dd6a39879f0d&pid=1-s2.0-S2667321524000763-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141953169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Do all bisexuals have this power?”: An exploratory study of “crippling nicotine addiction,” identity, and other emergent themes in vaping messages on QueerTok","authors":"Coltin Ball ,&nbsp;Shannon Lea Watkins ,&nbsp;Alexis Fahrion ,&nbsp;Makayla Morales ,&nbsp;Abigail McDonald ,&nbsp;Erin A. Vogel ,&nbsp;Minji Kim","doi":"10.1016/j.ssmqr.2024.100471","DOIUrl":"10.1016/j.ssmqr.2024.100471","url":null,"abstract":"<div><p>Nicotine and tobacco use disproportionally affects sexual and gender minority (SGM) populations in the United States. Social media narratives may contribute to these disparities. This qualitative study delineated perceptions and experiences depicted in SGM-related videos about nicotine vaping on TikTok. Young adult researchers engaged in every step of the research process, adding an insider perspective. Using four TikTok accounts, we used vaping and SGM-related search terms to sample videos in March–April 2022. Three TikTok accounts collected SGM-specific videos; a fourth provided non-SGM specific videos for comparison. We iteratively sorted 303 unique videos into 32 <em>a priori</em> and emergent codes and identified themes in SGM videos and comparison videos. In their videos, creators displayed awareness of and ambivalence toward vaping and nicotine dependence. SGM videos reflected vaping as a salient feature of identity and a consideration in romantic partnership. Studying video-based social media platforms, like TikTok, using an insider-engaged qualitative lens promotes rich interpretation of content to identify prevalent and emerging messages, which can inform appropriate interventions for SGM young people.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100471"},"PeriodicalIF":1.8,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000805/pdfft?md5=e02689cc012e558fa87fe277235dda8d&pid=1-s2.0-S2667321524000805-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142021344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Workplace health promotion in a continuous Rationalised Hospital sector","authors":"Thor Christian Bjørnstad","doi":"10.1016/j.ssmqr.2024.100466","DOIUrl":"10.1016/j.ssmqr.2024.100466","url":null,"abstract":"<div><p>The article explores the complexities of implementing health-promoting physical activity within the context of a Norwegian public hospital. Through an extensive case study, it examines the rollout of Active Hospitals, a program crafted in alignment with prevailing best practices in workplace physical activity. Departing from prior studies, the article adopts the perspective of the implementation facilitators. It illustrates how the implementation process faced obstacles stemming from new organizational paradigms, characterized by heightened rationalization, standardization, and perpetual restructuring within the sector. Consequently, the article underscores how reforms associated with New Public Management significantly limits health policies' ambitions to turn the workplace into a health-promoting setting These challenges are particularly pertinent concerning the enduring goals of social sustainability.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100466"},"PeriodicalIF":1.8,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000751/pdfft?md5=fce086532887c0379a73eda0cd71c9ba&pid=1-s2.0-S2667321524000751-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141842174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fate or fault? Nurses’ perspectives on dementia prevention in German care facilities","authors":"Niklas Petersen","doi":"10.1016/j.ssmqr.2024.100468","DOIUrl":"10.1016/j.ssmqr.2024.100468","url":null,"abstract":"<div><p>Following the recent shift in medicine towards viewing dementia as a preventable disease, various activating interventions are being discussed to halt cognitive decline of people living in long-term care facilities. This article examines how the dementia discourse, with its turn towards prevention, translates into local everyday care practices. Based on problem-centered interviews, the study analyses how nurses negotiate the prevention paradigm in the context of current health policies, active aging culture, and institutional frameworks in German nursing homes.</p><p>The study reveals two contrasting patterns in how nurses perceive, interpret, and implement current principles of dementia prevention in care: Despite most nurses being aware of current prevention recommendations, subjective conceptions of both the impact of lifestyle choices in earlier life and the effectiveness of activating interventions in care settings vary greatly. Adopting conceptions of successful aging, neuroplasticity and activity theory, some nurses understand dementia as associated with earlier lifestyle choices and see prevention as a task of nursing care. Focusing strongly on the individuals' personal needs and the well-being of those in need of care, the other group still sees dementia as fated, suggesting either a critical stance or a more holistic understanding of dementia prevention.</p><p>Furthermore, institutional frameworks and economization processes in the German care system undermine the goal of strengthening prevention and health promotion. While prevention is promoted as an answer to the care crisis in health policy discourses, the implementation of preventive interventions is severely restricted by the fragmentation of nursing tasks, time constraints, and limited resources in care facilities.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100468"},"PeriodicalIF":1.8,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000775/pdfft?md5=878fe717a38863251d1f62006388eba7&pid=1-s2.0-S2667321524000775-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141842035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reflections on the Collaborative Story Analysis Method to Understand Qualitative Perspectives of Indigenous Syringe Services Program Clients","authors":"Alexandra K. Perron ,&nbsp;Brenna Greenfield ,&nbsp;Atasha Brown ,&nbsp;Frank Johnson ,&nbsp;Toni Napier ,&nbsp;Jordan Stipek ,&nbsp;Aanji'bide Community Action Board ,&nbsp;Jennifer J. Mootz","doi":"10.1016/j.ssmqr.2024.100469","DOIUrl":"10.1016/j.ssmqr.2024.100469","url":null,"abstract":"<div><p>Many scholars have cautioned that the use of Western research methods is problematic in studies with Indigenous communities given colonialist histories that have exploited Indigenous populations. One solution has been to utilize a Community-Based Participatory Research (CBPR) approach to enhance equity in research partnerships. Employing a CBPR approach, however, does not necessitate the inclusion of Indigenous Research Methods, an additional step that can further benefit studies with their explicit alignment with Indigenous worldviews and values. In a CBPR project aiming to understand Indigenous harm reduction clients' perspectives of barriers and facilitators to opioid use disorder treatment, our research group assembled a multidisciplinary qualitative data analysis team that included diverse tribal community members and academics. Sparse literature was available to guide the use of Indigenous Research Methods for the qualitative data analysis phase of the research. To address this gap, the aims of this process paper are: (1) to describe the implementation of the Collaborative Story Analysis method, and (2) in the Indigenous tradition of honoring and sharing stories, describe our analysis team's experiences and perceptions of implementing this Indigenous Research Method. Through a series of process discussions, the analysis team found that applying the Collaborative Story Analysis method: (1) honored relationships and story, (2) strengthened the depth of analysis, and (3) exhibited tensions when working in a dominant Western culture. Through sharing our team's experiences, the aspiration is that others can use these insights in their own consideration and implementation of an Indigenous Research Method for qualitative data analysis.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100469"},"PeriodicalIF":1.8,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000787/pdfft?md5=9f56b63ea313c04e9b4ef31780f7691f&pid=1-s2.0-S2667321524000787-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141843922","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Saying more than her name: Characterizing fatal police violence against Black women & girls in the US, 2000–2019","authors":"Jé Judson ,&nbsp;Kene Orakwue ,&nbsp;Sirry Alang","doi":"10.1016/j.ssmqr.2024.100470","DOIUrl":"10.1016/j.ssmqr.2024.100470","url":null,"abstract":"<div><h3>Background</h3><p>Black women and girls (BWGs) face an elevated risk of being killed by police, yet few studies have focused on the proximal factors increasing their exposure to these deadly encounters.</p></div><div><h3>Objective</h3><p>This paper elucidates the determinants and features of fatal police encounters with BWGs over a 20-year period. We examined (1) the initial cause of police contact, (2) how the encounter unfolded and escalated to a fatality, and (3) trends in factors salient to how each case transpired.</p></div><div><h3>Methods</h3><p>Using the <em>Fatal Encounters</em> database, we identified 573 BWGs killed between 2000 and 2019. Using a qualitative descriptive approach, we leveraged case descriptions and triangulated with news articles, police reports, legal documents, and other texts about decedents to determine what happened in each case, why, and to what effect.</p></div><div><h3>Results</h3><p>While many fatal police encounters were precipitated by alleged criminal activity, a significant number were due to minor violations, public health crises, and domestic violence. Moreover, most BWGs were not the target of the police activity that ultimately killed them, and their deaths came as collateral damage from the aggressive policing of others.</p></div><div><h3>Conclusion</h3><p>As the US continues to grapple with the role of policing in community safety, this work complicates the understanding of how police operate and impact communities, raising questions about how to effectively address root causes beyond carceral and punitive frameworks.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100470"},"PeriodicalIF":1.8,"publicationDate":"2024-07-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000799/pdfft?md5=7e72027ee1da7cb95754d0c0ff139543&pid=1-s2.0-S2667321524000799-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141843521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}