SSM. Qualitative research in health最新文献

{"title":"A qualitative metasynthesis on the sexual health of women who have undergone female genital mutilation or cutting (FGM/C) living in western countries","authors":"Emmanuelle Gareau ,&nbsp;Andréanne Dufour ,&nbsp;Christina Zarowsky ,&nbsp;Olivier Ferlatte","doi":"10.1016/j.ssmqr.2025.100523","DOIUrl":"10.1016/j.ssmqr.2025.100523","url":null,"abstract":"<div><h3>Rationale</h3><div>Female genital mutilation or cutting (FGM/C) or circumcision can have lasting consequences on survivors' sexual health and is an important public health issue in Western countries due to migration. While some quantitative reviews have examined the psychosexual consequences of FGM/C, survivors’ perspectives remain understudied.</div></div><div><h3>Objective</h3><div>We aim to synthesize existing qualitative data on the experiences of women who have undergone FGM/C and who live in Western countries, focusing on their perspectives regarding sexual health.</div></div><div><h3>Methods</h3><div>A systematic search was performed in six databases to identify relevant qualitative or mixed-method empirical articles that pertain to sexual health-related matters and provide direct quotations from adult participants who have undergone FGM/C and who live in Western countries. Data was thematically synthesized using QSR's Nvivo14.</div></div><div><h3>Results</h3><div>We synthesized data from 27 articles and identified three overarching themes related to the control of women's bodies and sexuality: 1) Rigid sexual and gender norms as obstacles to sexual fulfillment, 2) FGM/C as both creator and annihilator of sexual identity and feeling, 3) The hegemony of the taboo related to FGM/C and sexuality leading to the sexual subjugation of women.</div></div><div><h3>Conclusion</h3><div>This study identified macro (e.g., sexual and gender norms, roles, diktats) and micro-level factors (e.g., FGM/C itself, sexual expectations) influencing the sexual health of women who have undergone FGM/C and who live in Western countries. Future research, health promotion initiatives, and psychosexual care should consider the various dimensions of sexuality when addressing FGM/C survivors’ sexual health.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100523"},"PeriodicalIF":1.8,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143437079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring HIV provider framings of living and aging with HIV","authors":"Madeline Villalba ,&nbsp;Gemmae M. Fix ,&nbsp;Rachel Schenkel ,&nbsp;Mary Ann Chiasson ,&nbsp;Allen L. Gifford ,&nbsp;Peter Gordon ,&nbsp;Helen-Maria Lekas ,&nbsp;Michael T. Yin ,&nbsp;Abigail Baim-Lance","doi":"10.1016/j.ssmqr.2025.100526","DOIUrl":"10.1016/j.ssmqr.2025.100526","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100526"},"PeriodicalIF":1.8,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Butterflies in a jar\": How girls and young women conceptualise wellbeing in conflict-affected Myanmar","authors":"Isabelle Pearson ,&nbsp;Meghna Ranganathan ,&nbsp;Elaine Chase ,&nbsp;Cing Van Kim ,&nbsp;Giulia Greco ,&nbsp;Ei Ei Soe ,&nbsp;Khin Lae ,&nbsp;Nandar Oo ,&nbsp;Zin Mar Hlaing ,&nbsp;Brooke Zobrist ,&nbsp;Cathy Zimmerman","doi":"10.1016/j.ssmqr.2025.100527","DOIUrl":"10.1016/j.ssmqr.2025.100527","url":null,"abstract":"<div><div>Since the 2021 coup in Myanmar, the country has been driven into further social, political and economic turmoil. The United Nations estimates that 18.6 million people need humanitarian support. Among those most affected are adolescent girls aged 10–19 years who, as adolescents and young women, face unique risks to their health and wellbeing and require tailored interventions to promote their health and wellbeing both now and in the future. Supporting adolescent girls and young women during conflict means addressing their increased risk of gender-based violence, forced marriage, disrupted education, and access to health services. There is limited evidence on the effects of Myanmar's current political situation on adolescent girls and young women, and even less on what can be done to support their health and wellbeing during this period of protracted instability. In this qualitative study, we used the capabilities approach to conceptualise wellbeing from the perspectives of adolescent girls and young women in Myanmar. Collaborating with four young female peer-researchers, we conducted 12 participatory focus group discussions with 73 girls from Yangon, Sagaing and Mandalay. Our findings identified key themes of wellbeing that were prioritised by our study population: education, agency, hope and happiness, which were being undermined by gender inequality and the ongoing conflict. This study highlights the benefits of the capabilities approach in identifying the complex wellbeing needs of adolescent girls and young women in crisis settings as a basis for programme design and implementation.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100527"},"PeriodicalIF":1.8,"publicationDate":"2025-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating complex choices through legitimation: Narrative strategies in risk-reduction mastectomy decision-making among unaffected women with genetic risk for breast cancer in Switzerland","authors":"Maria Caiata-Zufferey ,&nbsp;Reka Schweighoffer ,&nbsp;Monica Aceti ,&nbsp;Carla Pedrazzani ,&nbsp;Maria C. Katapodi","doi":"10.1016/j.ssmqr.2024.100522","DOIUrl":"10.1016/j.ssmqr.2024.100522","url":null,"abstract":"<div><div>For unaffected women at high risk for developing breast cancer due to pathogenic variants in BRCA1 or BRCA2 (BRCA) genes, bilateral risk-reducing mastectomy (RRM) is an alternative to intensive surveillance. RRM reduces breast cancer risk but may generate additional health and psychosocial issues, making the choice between surveillance and RRM complex and personal. This grounded theory study explores how unaffected women carrying BRCA pathogenic variants engage in a decision-making process leading to the choice of undergoing RRM. Narrative data were collected in Switzerland through biographical interviews with 38 unaffected women carrying BRCA pathogenic variants. Participants had either undergone RRM or were planning the surgery in the future. Findings indicate that the decision to undergo RRM was influenced by femininity and body image, current life engagements, anticipation of surgery risks and outcomes, perception and acceptance of cancer risk, surveillance experiences, attitudes of healthcare providers and family, and financial considerations. These factors interacted, creating contradictions that made decision-making challenging. To navigate this uncertainty, women progressively built their decision through a triple process of making sense: framing RRM as an obligated, empowering and mundane choice. This sense-making process is described as a process of legitimation, through which women decide to undergo RRM and integrate it into their life trajectory, ensuring its acceptability for themselves and their social circles. The discussion provides insights into the legitimation process as a heuristic tool for exploring crucial choices in uncertainty and offers implications for healthcare providers assisting individuals in complex decision-making processes.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100522"},"PeriodicalIF":1.8,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Uncertainty and mental health: A qualitative scoping review","authors":"Hanna Kienzler ,&nbsp;Alessandro Massazza ,&nbsp;Rebecca Kuykendall ,&nbsp;Nancy Tamimi ,&nbsp;Weeam Hammoudeh ,&nbsp;Rita Giacaman","doi":"10.1016/j.ssmqr.2024.100521","DOIUrl":"10.1016/j.ssmqr.2024.100521","url":null,"abstract":"<div><div>Reports highlight that the ‘golden age of stability and predictability’ in the latter half of the twentieth century has abruptly drawn to a close and been replaced by a phase of great uncertainty. Quantitative research has established an association between high levels of uncertainty with worsening mental health problems such as depression, anxiety and psychological distress. Important research gaps remain including how people experience and understand uncertainty; what coping mechanisms people use to navigate and manage uncertainties; and what mental health and psychosocial support services are available to those who need them. This paper aims to fill these knowledge gaps through a qualitative scoping review. Our results show the relationship between uncertainty and mental health is co-constitutive and dynamic as people draw on various personal, social and cultural resources to manage and deal with their situations and people’s ability to cope with uncertainties are linked to the environment and social contexts in which they live and which are in a constant state of flux. We recommend that mental health care and social support responses to experiences of uncertainty be promoted at all social-ecological levels and involve all relevant stakeholders beyond the medical sector.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100521"},"PeriodicalIF":1.8,"publicationDate":"2024-12-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I'm learning to live after cancer and its treatment”: Exploring the challenges of cancer survivorship in Arkansas","authors":"Ramey Moore ,&nbsp;Emily Hallgren ,&nbsp;Shani Worrell ,&nbsp;Anna Wahls ,&nbsp;Sarah K. Council ,&nbsp;Deanne L. King ,&nbsp;Rajalakshmi Cheerla ,&nbsp;Donya Watson ,&nbsp;Jacquelene Childs ,&nbsp;Martha Garrett-Shaver ,&nbsp;Pearl A. McElfish","doi":"10.1016/j.ssmqr.2024.100519","DOIUrl":"10.1016/j.ssmqr.2024.100519","url":null,"abstract":"<div><h3>Purpose</h3><div>This study explores challenges faced by a large, diverse sample of cancer survivors who received care in the rural state of Arkansas to provide holistic insight into the quality of survivorship.</div></div><div><h3>Methods</h3><div>We used a theory-driven exploratory descriptive design to explore cancer survivors’ (n = 519) biggest cancer-related challenges.</div></div><div><h3>Results</h3><div>Cancer survivors’ challenges were organized using <em>a priori</em> domains from the Quality of Survival framework: quality of life, survival, managing the side effects, and managing the economic impact. Nearly half (48.4%) of all responses identified challenges related to quality of life, and 39.7% of all responses focused on the challenges of managing the side effects of cancer and its treatment. Managing the economic impact (6.9%) and survival (4.9%) were also identified as challenges by survivors.</div></div><div><h3>Conclusions</h3><div>Survivors faced a range of challenges from cancer and its treatment. Survivors primarily faced psychosocial challenges, issues with ongoing care, and physical and/or functional sequelae. Managing the economic impact and financial toxicity of cancer treatment and surviving cancer and its treatment were less frequently identified among the challenges faced by survivors.</div></div><div><h3>Implications for cancer survivors</h3><div>Our analysis highlights the importance of understanding the psychosocial and physical sequelae of cancer and its treatment. Our research helps fill significant gaps in the literature, improving the understanding of rural cancer survivorship. Nuanced understanding of survivors’ experiences, using theory-driven qualitative and mixed-methods approaches, will continue to be critical for developing effective, evidence-based practices to meet the needs of survivors.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100519"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Unpacking diverse pathways to adolescent pregnancy in Cambodia: Qualitative research with girls in rural, peri-urban, and urban settings","authors":"Marie Habito ,&nbsp;Elissa Kennedy ,&nbsp;Chandara Gnim ,&nbsp;Morina Heak ,&nbsp;Vutha Phon ,&nbsp;Maki Akiyama ,&nbsp;Gerda Binder ,&nbsp;Stephen Bell ,&nbsp;Peter Azzopardi ,&nbsp;Julie Hennegan","doi":"10.1016/j.ssmqr.2024.100518","DOIUrl":"10.1016/j.ssmqr.2024.100518","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100518"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143175750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The impact of patient and public involvement in healthcare services: A conceptual review spanning social sciences and health sciences","authors":"Mio Fredriksson ,&nbsp;Filipa Sampaio ,&nbsp;Linda Moberg","doi":"10.1016/j.ssmqr.2024.100517","DOIUrl":"10.1016/j.ssmqr.2024.100517","url":null,"abstract":"<div><div>To understand patient and public involvement (PPI) and its potential impact in the healthcare services more comprehensively, the social science literature on public participation in governing public services must be integrated with the health science literature. To facilitate planning and evaluation of PPI-activities, the aim of this article is to review conceptual discussions of involvement/participation and impact, and summarize and integrate these in a way that advances the conceptual understanding of impact of PPI in healthcare services. Based on the review, we present a conceptual integration chart of impact areas, categories and types. There are three overarching areas: (i) impact on individuals; (ii) impact on the health system; and (iii) impact on decision-making processes and society. The overarching areas contain the categories: (i) citizens, patients, and decision-makers; (ii) service provision, and public health; and (iii) decision-making, policy and state, and public and society. Under these categories, the most commonly encountered impact types are presented.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100517"},"PeriodicalIF":1.8,"publicationDate":"2024-12-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘‘There's no quick fix!’’ Factors influencing rapid weight loss practices in Irish horseracing and the potential scope for change","authors":"D. O'Neill ,&nbsp;G. Warrington ,&nbsp;L. King ,&nbsp;J. Pugh ,&nbsp;A. McGoldrick ,&nbsp;S. O'Connor ,&nbsp;S.J. Cullen","doi":"10.1016/j.ssmqr.2024.100520","DOIUrl":"10.1016/j.ssmqr.2024.100520","url":null,"abstract":"<div><div>Despite safe methods of weight management being reported, adverse rapid weight loss (RWL) practices persist in horseracing. The aims of this study were to understand the factors that influence persistent RWL to ultimately develop potential solutions to ameliorate the associated issues. Semi-structured interviews were conducted with 33 participants representing relevant sectors of the Irish horseracing industry (jockeys n = 15; trainers/owners/breeders n = 7; health professionals n = 6; racing officials n = 5). Three higher order themes, each containing sub-themes were generated via reflexive thematic analysis: 1) Industry acceptance of RWL/wasting (broad awareness of the severity of RWL, RWL/wasting is part of the job, traditionalist attitude to jockey athletic identity) 2) Change is needed but will face barriers (alter minimum weight &amp; claims, individualise minimum riding weights, implement mandatory education and supports for jockeys), and 3) Change requires a multifaceted, strategic approach (provide scientific rationale for change, industry wide approach is required). This study provides a comprehensive framework for understanding the factors influencing persistent RWL and provides potential changes to limit RWL. Implementing a multifaceted solution adapted to the context of horseracing is recommended, while industry agreement and endorsement of change by role models may facilitate change. Developing an evidence-based rationale should be priority to reduce RWL.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100520"},"PeriodicalIF":1.8,"publicationDate":"2024-12-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143172937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Responsibility, resentment, and red tape: Exploring stigma experiences among assistance program users in Missouri","authors":"A. Terhaar ,&nbsp;E.K. Barnidge ,&nbsp;M. Somheil ,&nbsp;H. Bednarek","doi":"10.1016/j.ssmqr.2024.100511","DOIUrl":"10.1016/j.ssmqr.2024.100511","url":null,"abstract":"<div><h3>Background</h3><div>Although assistance programs (i.e. Medicaid, SNAP, and food pantries) are proven to ensure access to necessary resources and improve health outcomes, evidence shows that participants experience stigma due to their participation in these programs, creating barriers to participation and further marginalization of low-income families. In the U.S., welfare stigma is rooted in values of personal responsibility that perpetuate harmful stereotypes about assistance users. Internalized, interpersonal, and structural stigma are manifestations of stigma that may be experienced by assistance users.</div></div><div><h3>Methods</h3><div>One-on-one, semi-structured interviews were conducted with a geographically stratified sample of adult Medicaid participants in Missouri (n = 72). Interviews were transcribed verbatim and analyzed using inductive and deductive coding. Thematic content analysis was employed to derive and report the main themes.</div></div><div><h3>Results</h3><div>Among our sample, internalized, interpersonal, and structural stigma were experienced through the value of personal responsibility, program design and implementation, and program utilization. Through the value of personal responsibility, participants shared feelings of shame related to using public assistance (internalized stigma) and exceptionalism when comparing themselves to other users of public assistance (interpersonal stigma). Within program implementation, participants reported the prejudice they experienced through interactions with programmatic staff (interpersonal stigma) and described experiencing administrative barriers to accessing programs (structural stigma). Lastly, participants discussed how stigma influenced their utilization of public assistance programs, including decisions to enroll and engage in programs.</div></div><div><h3>Conclusion</h3><div>Our study adds to existing understanding about how assistance users experience stigma and how internalized, interpersonal, and structural stigma impact assistance program uptake and utilization.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100511"},"PeriodicalIF":1.8,"publicationDate":"2024-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143173928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}