Mei Lan Fang , Rayna Rogowsky , Rebecca White , Judith Sixsmith , Ryan McKay , Pat Scrutton , Michael Gratzke
{"title":"Using creative methodology to explore LGBTQ+ love and relationship experiences across the lifespan: Developing inclusive and healthy spaces through positive intergenerational exchange","authors":"Mei Lan Fang , Rayna Rogowsky , Rebecca White , Judith Sixsmith , Ryan McKay , Pat Scrutton , Michael Gratzke","doi":"10.1016/j.ssmqr.2024.100463","DOIUrl":"10.1016/j.ssmqr.2024.100463","url":null,"abstract":"<div><h3>Introduction</h3><p>Important lessons can be learned from the intergenerational sharing of lifetime love and relationship stories between multigenerational LGBTQ + people, to inform education, healthcare, and policy. However, such exploratory studies have been limited. The aim of this co-creation study was to explore younger and older peoples’ LGBTQ + love and relationship experiences using creative methodology.</p></div><div><h3>Methods</h3><p>Three 2-h virtual fictional writing and storytelling workshops were conducted at the height of the COVID-19 pandemic in Edinburgh, Scotland. Participants included 2 middle-aged adults; 3 older adults aged 55+; and 5 youths who identified as either lesbian, gay, bisexual, transgender or queer. Participants’ stories were audio-recorded, transcribed and thematically-analyzed to capture understandings of intergenerational knowledge exchange and LGBTQ + love and relationships across sociocultural and environmental contexts. Diverse experiences were unpacked and shared through a self-reflexive creative writing process.</p></div><div><h3>Findings</h3><p>Participants identified the act of storytelling and fictional writing as particularly liberating, providing a platform for voice and reflexivity. The reflexive analysis highlighted the importance of reflexivity and the careful navigation of intersectionality and power within research contexts. Our introspective analysis resulted in valuable future directions for employing creative methodologies to further explore diverse experiences within LGBTQ + research.</p></div><div><h3>Conclusions</h3><p>Participants reported that being able to craft their stories was a freeing experience, enabling sense-making to occur. Using creative methodology was demonstrated as an effective way to facilitate intergenerational engagement, and bring to light the complexities of LGBTQ + love and relationships across generations in a safe environment.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100463"},"PeriodicalIF":1.8,"publicationDate":"2024-07-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000726/pdfft?md5=cec69cac909fafca98b934378017bdbd&pid=1-s2.0-S2667321524000726-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141952883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abigail G. O'Brien , William B. Meese , Jennifer M. Taber , Angela E. Johnson , Bianca M. Hinojosa , Raven Burton , Sheemrun Ranjan , Evelyn D. Rodarte , Charlie Coward , Jennifer L. Howell
{"title":"Why do people avoid health risk information? A qualitative analysis","authors":"Abigail G. O'Brien , William B. Meese , Jennifer M. Taber , Angela E. Johnson , Bianca M. Hinojosa , Raven Burton , Sheemrun Ranjan , Evelyn D. Rodarte , Charlie Coward , Jennifer L. Howell","doi":"10.1016/j.ssmqr.2024.100461","DOIUrl":"10.1016/j.ssmqr.2024.100461","url":null,"abstract":"<div><p>Despite the potential benefit of receiving personalized health risk information, when given the opportunity to learn their risk, some people avoid that information. An extensive body of research has revealed various reasons for such information avoidance. Most of this existing work has used quantitative methods, with less focus on self-reported reasons for avoiding health risk information. We used a content analysis approach across four datasets (Dataset 1: <em>n</em> = 174, Dataset 2: <em>n</em> = 326, Dataset 3: <em>n</em> = 83, Dataset 4: <em>n</em> = 168), with the goal of identifying a broad range of self-reported reasons for avoidance. In each study, U.S. adults had the opportunity to learn their personalized risk estimate for a health condition through an online risk calculator (Health condition contexts: Dataset 1: heart disease, stroke, diabetes, prediabetes, lung cancer, colon cancer, melanoma skin cancer, breast cancer, or prostate cancer; Datasets 2 and 3: prediabetes; Dataset 4: melanoma skin cancer, stroke, lung cancer, osteoporosis, prediabetes, or diabetes). Participants who avoided their risk were asked to explain their reason(s) for avoidance via an open-ended question. Coding of these responses resulted in four overarching categories of self-reported reasons for information avoidance: information appraisal, self-perceptions of health, low utility, and affective consequences. The reasons identified both support and extend the current understanding of why people avoid health risk information.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100461"},"PeriodicalIF":1.8,"publicationDate":"2024-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000702/pdfft?md5=d2ec6dd442cb8261b503fa1f5f75436c&pid=1-s2.0-S2667321524000702-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141839042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
John L. Oliffe , Nina Gao , Mary T. Kelly , Alex Broom , Damien Ridge , Zac E. Seidler , Paul Sharp , Simon M. Rice
{"title":"Relational gendered dimensions of emotions in heterosexual cisgender Men’s intimate partnerships","authors":"John L. Oliffe , Nina Gao , Mary T. Kelly , Alex Broom , Damien Ridge , Zac E. Seidler , Paul Sharp , Simon M. Rice","doi":"10.1016/j.ssmqr.2024.100465","DOIUrl":"10.1016/j.ssmqr.2024.100465","url":null,"abstract":"<div><p>Illuminating relational gendered dimensions of emotions in heterosexual cisgender men’s intimate partnerships, this study addresses a significant knowledge gap in masculinities, emotionality and health work. Thematic analyses of individual photovoice interviews with 92 men from diverse locales and ethnocultural backgrounds revealed a trilogy of men’s practices regarding emotions. <em>Emotional restraint</em> was embodied by men withholding rather than freely expressing emotions, wherein participants justified diverse practices as the by-product of not understanding women partners’ emotionality and working to balance emotions in the relationship. In <em>coached emotions</em> men spoke about needing to unlearn suppressing their emotions while relying on women partners’ expertise for becoming more emotionally expressive and available. This included work around reading and accommodating their partner’s emotions. <em>Emotionally orientated</em> men positioned themselves as relationship ready, whereby they were equally or more emotional than their partners. This emotionality was claimed as an asset and strength integral to building contemporary intimate partner relationships. The findings highlight most men as operating across the three themes, revealing how wide-ranging socially constructed emotions are influenced by gender relations and a plurality of masculinities. Also afforded by these results are directions for working with heterosexual cisgender men to advance gender equity in heterosexual intimate partner relationships.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100465"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S266732152400074X/pdfft?md5=44898481ade59abc06d7738c66769871&pid=1-s2.0-S266732152400074X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141850166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Danya E. Keene , Gabriela Olea Vargas , Annie Harper
{"title":"Tenant right to counsel and health: Pathways and possibilities","authors":"Danya E. Keene , Gabriela Olea Vargas , Annie Harper","doi":"10.1016/j.ssmqr.2024.100464","DOIUrl":"10.1016/j.ssmqr.2024.100464","url":null,"abstract":"<div><p>Since 2017, more than a dozen municipalities and five states have passed Right to Counsel (RTC) legislation that guarantees access to free full-scope legal representation for eligible tenants facing eviction. Given the novelty of RTC, much remains unknown about the impacts of these programs or policies on individual renters and their communities. Among these unknown impacts is the way that RTC may affect individual tenant health and population health more broadly. Qualitative research is critical to understanding how these policies are experienced on the ground and how they may affect health and well-being. Responding to this need, we collected qualitative data with more than 100 RTC tenants and other stakeholders in Connecticut, during the first year of the state's statewide RTC policy. Our data show the multiple ways that RTC can help tenants stay in their homes, preventing the well documented health consequences of eviction. Our data also suggest ways that RTC can help tenants secure less health harming outcomes, even when a forced move is unavoidable. Beyond individual impacts, we observe both potential and limitations of RTC in addressing tenant health and health equity more broadly. We do not see evidence in our data that, by itself, CT-RTC substantially changes dynamics between landlords and tenants in ways that would support tenant health. However, we do see ways that RTC can support building collective tenant power that advances systemic changes in the service of housing justice and health equity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100464"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000738/pdfft?md5=c5c1d30b150c3a4837f0a9a4a27022fd&pid=1-s2.0-S2667321524000738-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141842006","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Felicity Slocombe , Elizabeth Peel , Alison Pilnick , Saul Albert
{"title":"Reminiscence respecified: A conversation analytic examination of practice in a specialist dementia care home","authors":"Felicity Slocombe , Elizabeth Peel , Alison Pilnick , Saul Albert","doi":"10.1016/j.ssmqr.2024.100462","DOIUrl":"10.1016/j.ssmqr.2024.100462","url":null,"abstract":"<div><p>Although discussion of reminiscence is prevalent in dementia care research, few studies have examined what actually occurs in these interactions, and how they are structured. This study examined how reminiscence activities are structured and negotiated in a care home environment. Informal one-to-one reminiscence interactions between people living with dementia and professional carers were transcribed from a larger video dataset. We used Conversation Analysis to examine reminiscence sequences in a novel relational approach that explored the interactional practices used by carers and people living with dementia. We identified divergences between manualised practice recommendations and observed interactional practices, such as the rarity of open questions, and frequent use of closed questions. This was contrary to current practice recommendations. These and other divergences demonstrate the value of interactional research in informing reminiscence practice and training manuals. By examining how reminiscence operates in practice, our approaches to conducting such activities can be more empirically informed. Our findings can be used to advise and guide those doing reminiscence work in care home settings, and improve the inclusiveness of reminiscence interactions. Through incorporating empirically informed techniques that both carers and people with dementia use in practice, we can facilitate interactions around memories which are supportive of people with dementia's identity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100462"},"PeriodicalIF":1.8,"publicationDate":"2024-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000714/pdfft?md5=9a5493cd5744a8fbe6557b445ee568f0&pid=1-s2.0-S2667321524000714-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141839730","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A comprehensive view of adolescent sexual health and family planning from the perspective of Black and Hispanic adolescent mothers in New York city","authors":"Lauren Gerchow , Yzette Lanier , Anne-Laure Fayard , Allison Squires","doi":"10.1016/j.ssmqr.2024.100460","DOIUrl":"10.1016/j.ssmqr.2024.100460","url":null,"abstract":"<div><p>Black and Hispanic adolescents in New York City experience high rates of pregnancy and sexually transmitted infections. A comprehensive understanding of the complexity of adolescent sexual health and family planning decisions and experiences can provide insights into the sustained disparities and inform practice, policy, and future research. The goal of this study was to explore and analyze this complexity, centering Black and Hispanic adolescent mothers as the experts on sexual and reproductive experiences from pre-pregnancy through parenting. As part of formative research for a human-centered design study, we interviewed 16 Black and Hispanic adolescent mothers living in New York City. Using situational analysis, we mapped relationships, discourse, and social structures to explore the various factors that inform adolescent sexual health decisions, in particular choices about contraception. Situational analysis found that, besides interpersonal factors, organizations and non-human elements like social media and physical birth control devices affected adolescent family planning in three social arenas: home, healthcare, and school. Within and across these arenas, adolescents lacked consistent sexual health education and contraceptive counseling and faced gendered expectations of their behaviors. Participants described parents and healthcare providers as most responsible for providing sexual health counseling yet described parents as uncomfortable or overreactive and healthcare workers as paternalistic and biased. A consideration of the many factors that inform sexual health decision-making and recognition of adolescents’ desire for parents and healthcare providers to be a source of education can address health disparities and promote adolescent sexual health and wellbeing.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100460"},"PeriodicalIF":1.8,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000696/pdfft?md5=f48a1bf6fe63d5ac804e5d84e31b38b3&pid=1-s2.0-S2667321524000696-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141732459","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Choosing people: How do Israeli kidney donors and surrogates select their recipients?","authors":"Hagai Boas , Orit Chorowicz Bar-Am","doi":"10.1016/j.ssmqr.2024.100459","DOIUrl":"10.1016/j.ssmqr.2024.100459","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100459"},"PeriodicalIF":1.8,"publicationDate":"2024-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000684/pdfft?md5=cde43642d3a6546012defb3f9da1a55f&pid=1-s2.0-S2667321524000684-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141705521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sisyphus in Court: Moral injury and requests for recognition in the dynamic between the Dutch police organization and their personnel in the wake of work related psychological injuries","authors":"Naomi Gilhuis , Teun Eikenaar , Lars Stevenson","doi":"10.1016/j.ssmqr.2024.100458","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100458","url":null,"abstract":"<div><p>When police personnel suffering from work-related psychological injuries seek support and recognition from their organization, a complex dynamic can unfold. This may even be experienced as morally injurious, thus adding to the initial psychological injury. This article delves into this issue in the context of Dutch police personnel, analyzing the narratives of 13 (former) police officers through the theoretical framework of Moral Injury, (mis)recognition, and bureaucracy. Their stories reveal that these officers, having learned to view their organization as their ‘blue family’, yearned for support and recognition, while inherent bureaucratic constraints prevented the police organization from offering genuine recognition. The result was an isolating and existence-denying experience. Bureaucratic logic tends to make the police organization approach recognition-seeking officers as suspects obligated to prove their ‘sick status,’ while it simultaneously creates tendencies to ‘sanitize’ the organization from their illness. Such an interaction becomes a Sisyphean struggle for officers, igniting a 'solidified fight mode' in them and worsening their feelings of misrecognition. Ultimately, this dynamic may be characterized as morally injurious. These findings emphasize the importance of recognition, especially for officers dealing with psychological injuries, and allow us to distinguish between affirmative recognition (perpetuating unhealthy post-injury dynamics) and transformative recognition (changing them toward meaningful change). This study thus advances the understanding of how organizations can both hinder and promote recognition and support, underscoring the pivotal role of transformative recognition to foster healing from the initial psychological injury and prevent moral injury in the injury's aftermath.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100458"},"PeriodicalIF":1.8,"publicationDate":"2024-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000672/pdfft?md5=725150c8f7f93d479fceb7fd1ac54086&pid=1-s2.0-S2667321524000672-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes","authors":"Sofie Smedegaard Skov , Anja M.B. Jensen , Gitte Rasmussen , Anna Paldam Folker , Sigurd Lauridsen","doi":"10.1016/j.ssmqr.2024.100457","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100457","url":null,"abstract":"<div><p>This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100457"},"PeriodicalIF":1.8,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000660/pdfft?md5=dbb52a03b1a21633571f54558e4a1b19&pid=1-s2.0-S2667321524000660-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel
{"title":"“Do you have questions?” How sequential placement shapes the uptake of question invitations in HPV vaccine treatment recommendations in the Netherlands","authors":"Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel","doi":"10.1016/j.ssmqr.2024.100456","DOIUrl":"10.1016/j.ssmqr.2024.100456","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100456"},"PeriodicalIF":1.8,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000659/pdfft?md5=5e1147cc34ba2d9feccd35fb1a4520cd&pid=1-s2.0-S2667321524000659-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141693693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}