SSM. Qualitative research in health最新文献

{"title":"The arrhythmia of bodily urgency: Using rhythmanalysis to understand the organisation of care people living with dementia experience within acute hospital wards","authors":"Andy Northcott,&nbsp;Paula Boddington,&nbsp;Katie Featherstone","doi":"10.1016/j.ssmqr.2025.100535","DOIUrl":"10.1016/j.ssmqr.2025.100535","url":null,"abstract":"<div><div>This article posits Henri Lefebvre's concept of Rhythmanalysis as a novel methodology for observing and understanding the everyday life of the hospital ward and its consequences. To do so we draw on observational data taken across three multi-site studies of acute NHS hospital wards in England and Wales (22 wards across 12 hospitals) between 2015 and 2023. Our analysis of the rhythms of the ward, and of the arrhythmias patients can produce, allow us to develop a detailed and embodied perspective of how the ward is experienced by the many different actors within it. In this paper, we focus on one particular group, people living with dementia, considering how they fit both within and outside the rhythms of the ward, and the dressage used by staff to maintain those rhythms. We conclude by discussing rhythmanalysis as a means to observe and record otherwise underseen aspects of hospital care which can provide a means for researchers to better understand relationships of power, personhood and dignity, and their consequences, within clinical environments.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100535"},"PeriodicalIF":1.8,"publicationDate":"2025-01-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143387451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An exploration of discrimination in healthcare for young women in Scotland: An intersectional study","authors":"Laura Tinner ,&nbsp;Ana Alonso Curbelo","doi":"10.1016/j.ssmqr.2025.100534","DOIUrl":"10.1016/j.ssmqr.2025.100534","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100534"},"PeriodicalIF":1.8,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143208217","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Couple dynamics and interaction needs with healthcare professionals in long-term neurological rehabilitation: A hermeneutic qualitative study","authors":"Alexa von Bosse ,&nbsp;Peter König ,&nbsp;Eva Jansen","doi":"10.1016/j.ssmqr.2025.100530","DOIUrl":"10.1016/j.ssmqr.2025.100530","url":null,"abstract":"<div><h3>Background</h3><div>Acquired neurological diseases significantly alter the dynamics between patients and their caregiving relatives, particularly spouses. This study investigates how these disorders impact the patient-spouse relationship and assesses the role of healthcare professionals in shaping these dynamics during long-term rehabilitation.</div></div><div><h3>Methods</h3><div>We conducted three comprehensive, in-depth sequential analyses that focused on (1) patients, (2) spouses, and (3) both partners within their relationship. Using a dynamic interactionist approach, narrative interviews with couples provided insights from both partners on relationship dynamics. Data analysis followed the documentary method, emphasizing socio-genetic type building to classify patient, caregiver, and relationship types.</div></div><div><h3>Results</h3><div>We identified four patient types, four caregiver types, and three relationship types, each with distinct social interaction patterns and specific rehabilitation needs. Our model, based on symbolic interactionism and Baxter's Relational Dialectics Theory, underscores the fluid and evolving nature of these roles. Patients and caregivers can transition between different types due to the chronic nature of the disorder and the social context of rehabilitation. Recognizing these shifts is essential for addressing relational and social aspects in therapy.</div></div><div><h3>Conclusion</h3><div>The findings highlight the necessity of acknowledging the dynamic and varied needs of patients and caregivers as well as the relationship dynamics. By understanding relationship types and interactions, healthcare professionals can develop personalized therapeutic strategies that enhance patient- and family-centred care, vital for improving rehabilitation outcomes.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100530"},"PeriodicalIF":1.8,"publicationDate":"2025-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"How health promotion prevents itself from tackling health inequalities. A critical analysis of Dutch health promotion's paradigm through its handbooks (1995–2022)","authors":"Ilse Dijkstra ,&nbsp;Bart Penders ,&nbsp;Klasien Horstman","doi":"10.1016/j.ssmqr.2025.100533","DOIUrl":"10.1016/j.ssmqr.2025.100533","url":null,"abstract":"<div><div>Health inequalities are a central concern within the field of health promotion. Yet, for over four decades, research has consistently shown that socioeconomic health inequalities in Western Europe persist and, on some measures, even have widened. Explanations are typically sought in the behaviours or personal characteristics of ‘unhealthy populations’ or in neoliberal policies. However, the role that health promotion itself, through its central theories, methods and assumptions, plays in the persistence of health inequalities is rarely considered. This study addresses this gap: it explores how health promotion's paradigm informs professionals to reduce health inequalities. Since paradigms are conveyed through handbooks, we conducted a qualitative content analysis of multiple editions of three key handbooks used in Dutch graduate health promotion education, published between 1995 and 2022. Using Science and Technology Studies's notion ‘paradigm’ and the theoretical lens of formal, hidden, and null curricula from Critical Education Studies, we show that Dutch health promotion professionals have been socialised into a remarkably consistent paradigm for three decades. This paradigm, which draws heavily from socio-cognitive psychological models, teaches professionals to prioritise individual behaviour change and not to challenge sociopolitical actors whose actions contribute to ill-health. Justifications remain limited to considerations such as convenience, ease and cost-effectiveness. The handbooks that convey this paradigm continue to be used in Dutch graduate education, training the health promotion professionals of the future. We argue that, at least in the Netherlands, the prevailing paradigm of health promotion is a significant, yet overlooked, factor in the persistence of health inequalities.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100533"},"PeriodicalIF":1.8,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143403371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using photovoice to define “community” in substance use disorder research engaging service users, providers, and policymakers","authors":"McGladrey Margaret L ,&nbsp;Marisa Booty ,&nbsp;Ramona Olvera ,&nbsp;Peter Balvanz ,&nbsp;Hilary L. Surratt ,&nbsp;Shannon Matthews ,&nbsp;Susannah Stitzer ,&nbsp;Owusua Yamoah ,&nbsp;Sylvia Ellison ,&nbsp;Kevin Campbell ,&nbsp;Amy Farmer ,&nbsp;Bethany Gealy ,&nbsp;Mike Greenwell ,&nbsp;Felicia Harris ,&nbsp;Amy Kuntz ,&nbsp;Sara Szelagowski ,&nbsp;Alexandrea Shouse ,&nbsp;Carrie B. Oser","doi":"10.1016/j.ssmqr.2025.100531","DOIUrl":"10.1016/j.ssmqr.2025.100531","url":null,"abstract":"<div><div>(197 words)The ideals of community-engaged health research are challenging to realize ethically and methodologically, particularly when focused on substance use disorder (SUD), in which the power differentials inherent to stigma marginalize people with lived experience (LE) as full community participants. This study provides a typology and exploratory data generated through Photovoice to understand relationships among community members with different roles related to LE of SUD (i.e., SUD service providers, service users, and the public) in the context of a large-scale community-engaged opioid overdose reduction intervention. A team of 14 participants and researchers used an adapted thematic analysis method to interpret Photovoice data from 65 total participants in Kentucky, Massachusetts, and Ohio. Photovoice data indicated the influence of stigmatization on perceptions of service users as problems to be solved by service providers without the significant investment of the rest of the community. Service provider burnout is exacerbated by competition for scarce public investments in addressing the dire need for SUD services amid the opioid epidemic. Community-engaged SUD research can be improved by defining the parameters of communities in explicit, participatory, and reflexive ways and recognizing how disinvestment and stigmatization influence relationships among community members occupying different roles in SUD services.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100531"},"PeriodicalIF":1.8,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Contraceptive care post-Dobbs: A qualitative study of clinic staff perspectives","authors":"Alicia VandeVusse,&nbsp;Jennifer Mueller,&nbsp;Octavia Mulhern,&nbsp;Sidney Cech","doi":"10.1016/j.ssmqr.2025.100532","DOIUrl":"10.1016/j.ssmqr.2025.100532","url":null,"abstract":"<div><div>Access to contraception is an essential component of reproductive autonomy. Abortion restrictions such as those introduced in some states following the Supreme Court's <em>Dobbs</em> decision have spillover effects on broader sexual and reproductive health service provision, such as contraceptive services. We conducted 36 in-depth interviews with key staff at publicly supported clinics providing contraceptive services in the United States, examining their experiences of changes in the delivery of family planning services in states where abortion policies are severely restrictive and states where they are less restrictive or protective. We found that publicly supported family planning clinics have experienced some limited impacts on contraceptive care and contraceptive demand due to the <em>Dobbs</em> decision and resultant abortion bans. Clinics in both restrictive and less restrictive/protective states report continuing to provide high-quality contraceptive care post-<em>Dobbs</em>, but they have also changed certain contraceptive counseling practices, grappled with changes in contraceptive demand, and taken steps to adjust their clinic workflows to mitigate the effects of <em>Dobbs</em>. Abortion restrictions impact the provision of contraceptive services. More research is needed to continue to document the spillover effects of abortion restrictions, along with the impact of restrictions on the quality of contraceptive care.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100532"},"PeriodicalIF":1.8,"publicationDate":"2025-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A qualitative mystery shopper study that de(codes) the experiences of English and Spanish-speaking patients who call to schedule a first-time primary care appointment in the Los Angeles, Houston, and New York Metropolitan Statistical Areas","authors":"Esmeralda Melgoza ,&nbsp;Ahmad Ismail ,&nbsp;Lucía Félix-Beltrán ,&nbsp;Rosario Majano ,&nbsp;Arturo Vargas Bustamante","doi":"10.1016/j.ssmqr.2025.100525","DOIUrl":"10.1016/j.ssmqr.2025.100525","url":null,"abstract":"<div><h3>Objective</h3><div>To qualitatively assess the experiences that English and Spanish-speaking patients with Medicaid managed care encounter when scheduling a first-time primary care appointment, with a preference for telehealth, in the Los Angeles (LA), Houston and New York (NY) Metropolitan Statistical Areas (MSAs).</div></div><div><h3>Methods</h3><div>A list of primary care offices was created by scraping online directories from each managed care organization (MCOs) health plan operating in the three MSAs. Primary care offices were randomly selected to participate in this qualitative mystery shopper study. Two researchers listened and transcribed real-time calls between the mystery shopper patients and the receptionists at the primary care offices. Data collection occurred between April 8, 2024, and April 26, 2024, on different days and times of the week. Both researchers completed tests to calculate the Kappa statistic, which indicated substantial inter-rater agreement. The researchers then inductively coded the transcripts using thematic analysis on Dedoose version 9.2.012.</div></div><div><h3>Results</h3><div>Our study suggests that Spanish-speaking patients who call to schedule a first-time primary care appointment are more likely to experience call transfers, be told to call back later, and encounter more telephone hang-ups, compared to English-speaking patients. Telehealth for first-time appointments is uncommon and typically available only under special circumstances, including COVID-19, medication refills, test result reviews, and for chronically ill populations.</div></div><div><h3>Conclusion</h3><div>This study shows disparities in access to care between English and Spanish-speaking patients at the time of scheduling a first-time appointment, highlighting an important point for future intervention.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100525"},"PeriodicalIF":1.8,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Talking with pregnant women exposed to cannabis use after cannabis legalization: Experiences of professionals working in Québec's social and healthcare system","authors":"Karen A. Dominguez-Cancino ,&nbsp;Rose Chabot ,&nbsp;Yolaine Frossard de Saugy ,&nbsp;Kristelle Alunni-Menichini ,&nbsp;Lysiane Robidoux-Léonard ,&nbsp;Genève Guilbert-Gauthier ,&nbsp;Karine Bertrand ,&nbsp;Christophe Huỳnh ,&nbsp;Pablo Martínez ,&nbsp;Helen-Maria Vasiliadis ,&nbsp;Nadia L'Espérance ,&nbsp;Victoria Massamba ,&nbsp;Julie Loslier ,&nbsp;José Ignacio Nazif-Munoz","doi":"10.1016/j.ssmqr.2025.100524","DOIUrl":"10.1016/j.ssmqr.2025.100524","url":null,"abstract":"<div><h3>Background</h3><div>The rising prevalence of prenatal cannabis use in high-income countries presents a growing concern for the medical community. Despite guidelines outlining risks, healthcare and social service professionals often struggle to discuss cannabis use with pregnant women. This study examines how these interactions have evolved following the Cannabis Act in Québec, focusing on how professionals respond to and provide guidance for women who report cannabis use during pregnancy.</div></div><div><h3>Methods</h3><div>This is a qualitative study using semi-structured interviews. Purposeful sampling was employed to recruit 19 professionals, including physicians, nurses, psychologists, and social workers. Data was analyzed using King's (2012) Template analysis technique.</div></div><div><h3>Results</h3><div>We identified three themes: a) how professionals talk about cannabis, b) what they talk about, and c) what practices they follow. Two key processes—i) exploration and assessment, and ii) action—were identified. Professionals tailor interventions, including counseling, psycho-emotional management, harm reduction, and referrals, based on risk levels and willingness to change. We observed differences among professionals based on the programs in which they work.</div></div><div><h3>Conclusions</h3><div>This study highlights the complex interactions between health professionals and pregnant women who use cannabis. It discusses the importance of integrating harm reduction strategies with person-centered approaches to address cannabis use. While professionals balance the need for openness with concerns about fetal health, a knowledge gap persists. Strengthening educational initiatives and expanding addiction expertise could enhance support and intervention practices, bridging gaps left by current evidence and regulatory frameworks.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100524"},"PeriodicalIF":1.8,"publicationDate":"2025-01-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174583","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“If somebody wants an abortion, nobody should override their decision”: Modern Canadian perspectives on abortion in relation to artificial womb technology","authors":"Srishti Hukku ,&nbsp;Lisa L. Wynn ,&nbsp;Angel M. Foster","doi":"10.1016/j.ssmqr.2025.100529","DOIUrl":"10.1016/j.ssmqr.2025.100529","url":null,"abstract":"<div><div>Recent advancements in artificial womb technology (AWT) – extrauterine gestation – have led to significant bioethical debates on the future of access to abortion. Anthropologists have leveraged concepts of stratified reproduction and reproductive governance to shed light on how different individuals are encouraged/discouraged to reproduce and how key actors such as the state mobilize the capacity for reproduction. As such, we aimed to explore the perspectives of Canadian citizens on the provision of abortion services if AWT were to become a reality. From September 2020 to February 2021, we conducted a qualitative bilingual community-based survey with 343 Canadian citizens and 41 semi-structured in-depth interviews with a subset of survey respondents in English and French. We analyzed the survey data using descriptive statistics and the interviews for content and themes using inductive and deductive techniques. Our study found that when assessing the potentiality of AWT, participants centered reproductive choice, bodily autonomy, and family planning in decision-making. Participants further expressed that any efforts at governance of AWT should ensure that the technology complements, rather than curtails, existing methods of reproduction and assisted reproduction, and enhances choice for those desiring parenthood. For our participants, AWT was seen as a medical device that had the potential to improve lives while ensuring that abortion-seekers’ rights to control their bodies and reproduction were not impeded. Our study demonstrates that the current ban against the development and use of AWT is a form of <em>gestational stratification</em> that privileges those with access to a uterus for gestation which limits reproductive choice. Policymakers and legislators should consider these perspectives when developing policies and regulations at the intersection of abortion and new assisted human reproduction technologies.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100529"},"PeriodicalIF":1.8,"publicationDate":"2025-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Doctor-patient communication in Systemic Lupus Erythematosus: Insights from the LupusVoice study","authors":"Esther Rodríguez Almaraz ,&nbsp;Tarek Carlos Salman-Monte ,&nbsp;Jaime Calvo-Alen ,&nbsp;Ma Julia Barbado Ajo ,&nbsp;José María Álvaro-Gracia Álvaro ,&nbsp;Pilar Bernabeu ,&nbsp;Joaquín Borrás Blasco ,&nbsp;Silvia Pérez Ortega ,&nbsp;Raül Rubio Renau ,&nbsp;Carlota Solà Marsiñach ,&nbsp;Marta Galvez-Fernandez ,&nbsp;Noemí Bahamontes-Rosa ,&nbsp;Joaquín Sánchez-Covisa Hernández ,&nbsp;Maria Galindo Izquierdo","doi":"10.1016/j.ssmqr.2025.100528","DOIUrl":"10.1016/j.ssmqr.2025.100528","url":null,"abstract":"<div><div>Good quality doctor-patient interactions foster patient involvement and increase trust, treatment satisfaction and adherence. However, what constitutes optimal doctor-patient communication in systemic lupus erythematosus (SLE) is unclear. This study aimed to identify gaps in the communication between clinicians and SLE patients. The LupusVoice Study was a qualitative, descriptive, observational, multicenter, and cross-sectional ethnographic study including the experiences of 40 patients with SLE, and the perceptions of 9 SLE specialized clinicians, from six different hospitals in Spain, collected through interviews and analyzed through thematic analysis. This study identified gaps in doctor-patient communication in four areas: diagnosis, pharmacological treatment, non-pharmacological strategies, and pregnancy. Patients were not satisfied with the communication of the diagnosis, aiming to receive more information about SLE and its impact on quality of life in a realistic and tactful manner. Suboptimal communication was mainly explained by clinicians’ lack of time. Regarding pharmacological treatment, patients wanted to have known more about the side-effects, not reported by clinicians due to time constraints and fear of non-adherence. Concerning non-pharmacological measures, doctors did not provide information about diet due to skepticism about its benefits and did not usually address psychological problems. Regarding pregnancy, while patients missed earlier and more detailed family planning counselling, clinicians only offered it when women manifested their desire to conceive. To improve SLE patients’ experiences, efforts should be made towards increasing awareness of communication gaps among HCPs while supporting them in communication delivery with the figure of a specialized nurse.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"7 ","pages":"Article 100528"},"PeriodicalIF":1.8,"publicationDate":"2025-01-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143174111","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}