SSM. Qualitative research in health最新文献

{"title":"Institutional objection to abortion care in Australia: Exploring the perspectives and experiences of key interest-holders","authors":"Casey M. Haining ,&nbsp;Bronwen Merner ,&nbsp;Lindy Willmott ,&nbsp;Louise A. Keogh ,&nbsp;Julian Savulescu","doi":"10.1016/j.ssmqr.2025.100685","DOIUrl":"10.1016/j.ssmqr.2025.100685","url":null,"abstract":"<div><div>Each Australian jurisdiction has decriminalised abortion. Despite this, abortion-seekers face multiple barriers to access, among them is encountering objection by individual health practitioners (conscientious objection) or institutions (institutional objection). This article reports on a qualitative interview study that examined 41 key interest-holders’ perspectives and experiences of institutional objection to abortion. Framework analysis resulted in the generation of four themes: (1) institutional variation in different aspects of abortion care; (2) impacts of institutional objection affected multiple interest-holders; (3) attitudes towards accommodating institutional objection; and (4) suggestions for reimagining institutional objection regulation. Our findings suggest that institutional objection manifests in different ways across settings and results in harm to both patients and health practitioners. Consequently, current approaches to regulating institutional objection should be revisited. Such approaches should consider minimum levels of transparency, information provision, and explore other opportunities for service provision and de-stigmatisation.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100685"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145924979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Integrating social representations of nature in the study of tick-borne diseases risk: the need for a holistic approach","authors":"Puppo Costanza ,&nbsp;Hansmann Yves ,&nbsp;Chirouze Catherine ,&nbsp;Frey-Klett Pascale ,&nbsp;Préau Marie","doi":"10.1016/j.ssmqr.2026.100707","DOIUrl":"10.1016/j.ssmqr.2026.100707","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100707"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146077371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living kidney donor program patients’ perceptions of genetic testing: A qualitative study","authors":"Maria Mathews ,&nbsp;Leslie Meredith ,&nbsp;Sydney Relouw ,&nbsp;Dana Ryan ,&nbsp;Clara Schott ,&nbsp;Dervla Connaughton","doi":"10.1016/j.ssmqr.2026.100712","DOIUrl":"10.1016/j.ssmqr.2026.100712","url":null,"abstract":"<div><h3>Background</h3><div>Living kidney donation offers better outcomes than deceased donor transplantation; however, biologically-related living donor rates have declined, potentially due to emerging genetic risk data. Genetic testing increasingly informs donor eligibility and safety, yet little is known about donor and recipient experiences. This study explores perceptions and experiences of donors and recipients undergoing genetic testing within a living kidney donation program in Ontario, Canada.</div></div><div><h3>Methods</h3><div>This qualitative descriptive study was embedded within a larger prospective cohort study. Semi-structured interviews were conducted with 22 participants (11 donors, 11 recipients), including four donor-recipient dyads. Participants were purposively sampled to reflect diverse experiences. Interviews were transcribed and analyzed using inductive thematic analysis.</div></div><div><h3>Results</h3><div>Four themes emerged: (1) reasons for having a genetic test, (2) perceptions and experiences of genetic counselling, (3) clinical impacts of testing, and (4) positive and negative emotional impacts of genetic test results. Participants sought testing to determine donation eligibility, understand disease causes, inform family health, and support research. Genetic counselling was well-received, though participants expressed a need for follow-up. Testing influenced donor eligibility, treatment decisions, and proactive health behaviors. Emotional responses ranged from reassurance to disappointment, particularly when testing disqualified donors or revealed hereditary risks.</div></div><div><h3>Conclusions</h3><div>Genetic testing informs clinical decisions and family health planning in living kidney donation, but also raises emotional and ethical complexities. Findings underscore the need for standardized guidelines, robust genetic counselling, and psychosocial support to optimize transplant programs and guide future clinical pathways and policy for ethical, effective use of genetic testing in transplantation.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100712"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146172968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Women's perspectives on acute cystitis care and the role of the community pharmacy: a qualitative study","authors":"Sandra Kashmour ,&nbsp;Thomas G.H. Kempen ,&nbsp;Youssra Boussaboun ,&nbsp;Marle Gemmeke","doi":"10.1016/j.ssmqr.2026.100727","DOIUrl":"10.1016/j.ssmqr.2026.100727","url":null,"abstract":"<div><h3>Background</h3><div>Acute cystitis (AC) is a common reason for women to visit their general practitioner (GP). To reduce GP workload and improve accessibility, some countries allow community pharmacist who do not typically independently prescribe, to diagnose and treat women with AC.</div></div><div><h3>Objective</h3><div>To explore women's experiences with current AC care and their perspectives on the community pharmacy's role including the potential use of a validated questionnaire to diagnose AC, the ‘Acute Cystitis Symptom Score (ACSS)’.</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with women with a history of AC. Participants with variation in age and ethnic background were recruited through one community pharmacy in the Netherlands. Interview topics were experiences with current AC care, perspectives on a questionnaire-based diagnosis, perspectives on task shifting to the pharmacy and knowledge of self-care and lifestyle advices. The interviews were audio-recorded, transcribed and thematically analyzed.</div></div><div><h3>Results</h3><div>In total, 35 women (median age: 57 years) were included. They were generally satisfied with the current AC care by the GP, but reported concerns about accessibility. Women mentioned both risks (e.g., doubts about pharmacy capabilities) and benefits (e.g., improved accessibility) of a service through the community pharmacy. Most prerequisites for such a service were related to clear GP-pharmacist collaboration. Women were concerned about potential false-positive or false-negative outcomes of the ACSS.</div></div><div><h3>Conclusions</h3><div>Women were generally satisfied with current AC care. They saw both risks and benefits with expanding the community pharmacy's role in AC care and using the ACSS. For this to be implementable, pharmacists need adequate skills, resources, and strong collaboration with GPs.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100727"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146173461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preferences for abortion access among people living in Texas post-Dobbs: A qualitative exploration of travel decision-making","authors":"Zoe H. Pleasure ,&nbsp;Logan Trenaman ,&nbsp;Paula Pinzón Hernández ,&nbsp;Ghazaleh Moayedi ,&nbsp;Roopan Gill ,&nbsp;Wendy V. Norman ,&nbsp;Jeffrey S. Hoch ,&nbsp;Sarah Munro","doi":"10.1016/j.ssmqr.2026.100778","DOIUrl":"10.1016/j.ssmqr.2026.100778","url":null,"abstract":"<div><div>Since the passage of Texas Senate Bill 8 and the <em>Dobbs</em> decision, Texas residents are navigating new and additional multi-level barriers to abortion care. Many Texas residents are choosing to travel out-of-state for abortion care. As part of a broader mixed-methods project designing a preference solicitation survey, we conducted interviews with individuals living in Texas, recruited via community networks, about their decision-making preferences when considering a hypothetical scenario for traveling for abortion. All interviews were transcribed and coded using reflexive thematic analysis. We inductively developed codes and used a framework of possible codes identified through a systematic literature review. In January-February 2024, our team interviewed 20 individuals living in Texas. We found that to traverse this abortion landscape, people living in Texas would navigate two key travel decision points: 1) whether they should travel out-of-state to access abortion care, and 2) where they should travel out-of-state for abortion care. When navigating these decision points, we found that individuals would consider eleven key attributes: length of time before the appointment, length of time between the appointment and the start of the abortion, length of total travel time for the abortion, number of appointments, length of time away from obligations, mode of transportation, travel route, clinic attributes, cost, method of abortion available, and state protections and restrictions. Increasing state surveillance post-<em>Dobbs</em>, citizenship status concerns, and employment precarity intensified these hypothetical decisions and constrained available choices, underscoring the compounded challenges faced by those who navigate xenophobia, racism, and economic insecurity.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100778"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148314633","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Corrigendum to \"Opening the Black Box of agency in contraceptive decision-making: A cross-country qualitative study of a complex process\" [SSM - Qualitative Research in Health (2025), (8C), 100615].","authors":"Lauren Suchman, Emily Himes, Catherine Birabwa, Sneha Challa, Sarah Okumu, Zachary Kwena, Louisa Ndunyu, Serah Gitome, Pauline Wekesa, Mandayachepa Nyando, Martha Kamanga, Tamandani Jumbe, Innocencia Mtalimanja, Alfred Maluwa, Lynn Atuyambe, Dinah Amongin, Betty Kaudha, Agnes Kayego, Ivan Idiodi, Chioma Okoli, Aminat Tijani, Ayobambo Jegede, Awawu Grace Nmadu, Shakede Dimowo, Janelli Vallin, Beth Phillips, Elena Sinha, Address Malata, Elizabeth Bukusi, Peter Waiswa, Elizabeth Omoluabi, Kelsey Holt","doi":"10.1016/j.ssmqr.2025.100696","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2025.100696","url":null,"abstract":"<p><p>[This corrects the article DOI: 10.1016/j.ssmqr.2025.100615.].</p>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"100696"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13275632/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148297704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using metaphor analysis to understand personal and familial experiences with behavioral variant frontotemporal dementia","authors":"Makenna May ,&nbsp;Ying Zhang ,&nbsp;Laynie Dratch ,&nbsp;William M.P. Klein ,&nbsp;Weiyi Mu ,&nbsp;Megan T. Cho ,&nbsp;Jill Owczarzak","doi":"10.1016/j.ssmqr.2025.100686","DOIUrl":"10.1016/j.ssmqr.2025.100686","url":null,"abstract":"<div><div>Frontotemporal dementia (FTD) is a progressive neurodegenerative condition that causes changes in behavior, personality, and language. As researchers better understand the genetic components of FTD, the number of people pursuing genetic testing, either due to their own symptoms of FTD or their family history, is increasing, making it important to understand the impact of genetic diagnosis on lived experience. Individuals may use metaphors to describe, process, and make sense of their experiences with illness. This qualitative study explores how individuals use metaphors to describe personal and familial experiences with behavioral variant FTD (bvFTD) in order to understand what themes may arise in genetic counseling sessions and to accordingly tailor clinical care. The data for this analysis comes from two study populations: asymptomatic individuals with confirmed genetic risk for bvFTD (n = 16) and individuals diagnosed with bvFTD (n = 9). A secondary analysis of 25 semi-structured interviews was completed. Abductive analysis and metaphor analysis were used to identify the primary metaphors through which participants described their experiences with bvFTD. Two of the main themes expressed by metaphors – (1) lack of control over the disease and (2) uncertainty about inheritance and symptoms – consistently conveyed that participants were grappling with how to understand their lives in the past, present, and future. This study suggests that metaphors can provide valuable insight into how clients are revising their life narratives when bvFTD causes biographical disruption. These findings have important implications for genetic counselors working with individuals who have neurodegenerative conditions.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100686"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145790602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I don't want to be in the energy of that situation\": Embodied experiences with telehealth medication abortion.","authors":"Celina M Doria, Andréa Becker, Leah R Koenig, Jennifer Ko, Ushma D Upadhyay","doi":"10.1016/j.ssmqr.2026.100792","DOIUrl":"10.1016/j.ssmqr.2026.100792","url":null,"abstract":"<p><p>Medication abortion makes up the majority of abortions in the U.S. today. Use of medication abortion by telehealth, in which the entire abortion process occurs remotely, has also grown in recent years. In this study, we examine <i>embodied experiences</i> of telehealth abortion through 30 in-depth interviews. We explore how participants' preferences for telehealth medication abortion and their assessment of a successful abortion were informed by embodied sensations and experiences. Importantly, we find that stigma influences embodied experience of telehealth and that many telehealth patients want to avoid <i>embodying the abortion patient</i> in a clinic. We conclude by calling on providers and policymakers to examine embodied aspects of abortion and how the sociocultural context surrounding abortion impacts not only the physical experience of abortion but also patient preferences for delivery of care.</p>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":""},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13431239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148671487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Initiating difficult conversations, supporting patient agency, and discussing death: Do you want to talk about what this means?","authors":"Dagoberto Cortez","doi":"10.1016/j.ssmqr.2026.100710","DOIUrl":"10.1016/j.ssmqr.2026.100710","url":null,"abstract":"<div><div>This article draws on the field of conversation analysis to examine audio recordings of terminal lung cancer patients, their family members, and their oncologist as they initiate discussions of prognosis. I find that the oncologist in this study uses different types of inquiries to set the topical agenda (discussion of prognosis), forecast the valence of the news, and work towards an acceptance of the nominated next action. I call these types of announcements “what this means inquiries (WTMIs).” This interactional tool also serves as a confirming strategy when a patient or caregiver initiates prognostic-talk or expresses “readiness” to discuss prognosis. I argue that despite a preferred positive response, WTMIs help diminish physicians’ asymmetrical influence on patient-doctor interactions and promote patient and caregiver agency. Participants collaboratively build interactional spaces to gather information and express conversational preferences. By responding to WTM inquiries, patients and caregivers can shape prognostic-talk.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100710"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146172933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I believe in my ancestors, and I participate and believe:” negotiating identity, tradition, and HIV-related health among SGM communities in the Eastern Cape","authors":"Kelly Rutt ,&nbsp;Lindsey de Vos ,&nbsp;Aphiwe Metula ,&nbsp;Remco P.H. Peters ,&nbsp;Cikizwa Bongo ,&nbsp;Leigh Ann van der Merwe ,&nbsp;Joseph Daniels","doi":"10.1016/j.ssmqr.2026.100715","DOIUrl":"10.1016/j.ssmqr.2026.100715","url":null,"abstract":"<div><h3>Background</h3><div>Sexual and gender minority (SGM) individuals in South Africa's Eastern Cape face dual challenges navigating progressive constitutional protections alongside persistent cultural conservatism. Traditional Xhosa practices, including initiation schools (Ulwaluko) and ceremonial rituals, enforce rigid gender roles that conflict with SGM identities. With HIV prevalence reaching 49.5 % among men who have sex with men yet only 25.7 % achieving viral suppression, understanding how SGM individuals negotiate cultural traditions while managing HIV remains critically understudied.</div></div><div><h3>Methods</h3><div>This qualitative study explored post-intervention experiences of 31 SGM individuals living with HIV in the Eastern Cape following participation in the SOAR (Speaking Out &amp; Allying Relationships) intervention. Semi-structured interviews, guided by Social Cognitive Theory, were conducted in participants' preferred language by trained local interviewers. Thematic analysis through the Minority Stress Model examined four domains: traditional practices, family dynamics, community perceptions, and intervention impact.</div></div><div><h3>Results</h3><div>Participants demonstrated resilience through selective participation in cultural practices, balancing ancestral reverence with identity authenticity. Family acceptance was often conditional, tied to economic contributions or heteronormative expectations. Health communication barriers persisted due to stigma and traditional beliefs linking HIV to moral failing. SOAR enhanced participants' status-sharing confidence, treatment adherence, and skills for navigating cultural tensions, though community stigma remained pronounced in rural areas.</div></div><div><h3>Conclusion</h3><div>SGM individuals exhibit remarkable adaptability in negotiating intersecting cultural, familial, and health challenges. While SOAR effectively builds individual resilience and HIV management skills, findings underscore the need for multi-level interventions combining skill-building with community mobilization and cultural sensitization to address structural barriers in traditional contexts.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100715"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146172934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}