SSM. Qualitative research in health最新文献

{"title":"‘A little bit of support really, that's all I was looking for’ a qualitative study of the biographical disruption of fibromyalgia at work in the UK","authors":"Martin J. Stevens ,&nbsp;Louise Locock ,&nbsp;Stefanie Doebl ,&nbsp;Zoe C. Skea ,&nbsp;Debra Dulake ,&nbsp;Gary J. Macfarlane ,&nbsp;Rosemary J. Hollick","doi":"10.1016/j.ssmqr.2025.100577","DOIUrl":"10.1016/j.ssmqr.2025.100577","url":null,"abstract":"<div><div>Fibromyalgia is a chronic condition which can have a detrimental impact on a person's interaction with work. Biographical disruption is a lens through which people's experiences of many chronic conditions have been described. We applied this lens to experiences of work amongst people with fibromyalgia to better understand what support they required to continue to work. We conducted semi-structured interviews in 2019/20 with 31 people who have fibromyalgia. Data were analysed using reflexive thematic analysis. In our study people often experienced fibromyalgia at work as a biographical disruption which can include a non-specific decline in work ability. Diagnosis of fibromyalgia and/or the symptoms becoming less compatible with their job role can further disrupt, creating additional challenges as managing a chronic, often invisible condition conflicts with workplace systems such as sickness absence policies. As the person responds to the disruption, they may feel they either need to move on from their current role or continue with appropriate modifications/support. An overarching theme indicates declining self-esteem because of disruption to working lives. Biographical disruption experienced by workers with fibromyalgia can be mitigated or repaired, however even if resolved it does not follow that work outcomes are positive. Disruptions may be more fully repaired if people with fibromyalgia are able to access support earlier to remain in work. Employers should consider the impact of fibromyalgia and how its fluctuating and contested nature can conflict with workplace systems. Early, symptom-focused work support is essential to help people with fibromyalgia stay in work and navigate challenges.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100577"},"PeriodicalIF":1.8,"publicationDate":"2025-06-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144491984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reframing labour companionship: gender representations in maternity wards of Argentina","authors":"Carmen Rauh Garrido ,&nbsp;Mercedes Vila Ortiz ,&nbsp;Celina Gialdini ,&nbsp;Alexandre Dumont ,&nbsp;Claudia Hanson ,&nbsp;Mølsted Alvesson Helle","doi":"10.1016/j.ssmqr.2025.100586","DOIUrl":"10.1016/j.ssmqr.2025.100586","url":null,"abstract":"<div><div>Labour companionship positively shapes childbirth experiences, offering continuous emotional and practical support to birthing people. In Argentina, companionship is protected by law, though implementation challenges remain. Gender norms and expectations can act as barriers to quality care. Addressing a gap in companionship literature, this paper explores gender representations perceived by male and female companions and health care providers at two public hospitals in Buenos Aires. This qualitative study involved 27 semi-structured interviews with birthing companions and healthcare workers in maternity wards, including nine male partners, three female companions, and 15 health care providers. Transcript data were analysed following a reflexive thematic approach. Two themes were developed: male companions idealise traditional masculinity values yet embrace femininity at birth, and female companions are stereotyped as “natural” companions. These themes underpinned a third theme, conceptualised as a paradox, regarding proper engagement, support, and preparation of companions during birth. Companions and health care providers engaged with each other while holding biologist constructs of men and women's ability to support a birthing woman as a companion. The findings contribute to a broader discourse on gendered labour experiences, aiming to inform policy and practice of integration of male and female companions, namely, to foster a more equitable birth environment.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100586"},"PeriodicalIF":1.8,"publicationDate":"2025-06-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144312796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Choosing wisely? A frame analysis of the evolution and adoption of shared decision making in the UK","authors":"Gemma Hughes ,&nbsp;Sara E. Shaw ,&nbsp;Jonathan Bowley ,&nbsp;Julie L. Darbyshire ,&nbsp;Timothy J. Stephens","doi":"10.1016/j.ssmqr.2025.100579","DOIUrl":"10.1016/j.ssmqr.2025.100579","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100579"},"PeriodicalIF":1.8,"publicationDate":"2025-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144321998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Do we perceive the same reality?” Truth telling and persuasion techniques in Red Pilling narratives about the COVID-19 vaccine","authors":"K. Grailey ,&nbsp;R. Gerrard ,&nbsp;M. Kihanga ,&nbsp;A. Buttenheim","doi":"10.1016/j.ssmqr.2025.100588","DOIUrl":"10.1016/j.ssmqr.2025.100588","url":null,"abstract":"<div><div>Despite widespread public health campaigns, lower than desired COVID-19 vaccine uptake was seen across the USA. Vaccine hesitancy can be driven by the proliferation of misinformation online, shaping beliefs and vaccine acceptance. This study explored motivated reasoning and its role in the development of such beliefs, specifically using narratives about “red pilling” – a popular concept originating from the 1999 film ‘”The Matrix”.</div><div>Comments responding to an online blog post by Steve Kirsch, requesting red pilling stories from his followers were analysed in a stepwise process, creating a codebook based on existing typologies for logical fallacies and persuasion techniques. Coded content were thematically analysed using a framework approach.</div><div>The 1472 comments posted by June 22nd^, 2022 were analysed. Fifty-three initial codes were created, condensed into a thematic framework with three overarching domains – “How did you get red pilled”, “Have you been able to red pill others” and “Living red pilled”. These domains contained 11 themes and 14 additional sub-themes. Commenters shared insights into becoming red-pilled, the significance of persuasive sources and how they went on to “red-pill” others. Data also illustrated an isolated life once “red-pilled”, whilst simultaneously being a member of a global network.</div><div>Our analysis provides a rich insight into the strategies and scenarios that inspire red-pilling narratives and their consequences, particularly for public health initiatives such as vaccination programmes. Understanding the ideology that underpins the initiation and spread of misinformation can be utilised to pre-empt and minimise it, building trust across a broad range of world views.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100588"},"PeriodicalIF":1.8,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144307413","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Digital assistive technologies to support community-dwelling older adults: an interpretative synthesis of experienced benefits and harms","authors":"Kasper Kruithof ,&nbsp;Rebecca C. Ruehle ,&nbsp;Vivianne Dörenberg ,&nbsp;Faridi van Etten-Jamaludin ,&nbsp;Brenda Frederiks","doi":"10.1016/j.ssmqr.2025.100584","DOIUrl":"10.1016/j.ssmqr.2025.100584","url":null,"abstract":"<div><h3>Background</h3><div>Digital assistive technology (DigAT) holds promise for reducing healthcare costs, improving access to care, and supporting independent living for older adults. However, realizing these benefits remains challenging as seemingly effective and cost-efficient forms of DigAT often fail in real-world settings due to misalignment with users’ needs, values and practices. With the ultimate aim of contributing to more effective DigAT use among community-dwelling older adults, we explored the benefits and harms they experienced using DigAT.</div></div><div><h3>Methods</h3><div>We systematically searched PubMed, CINAHL, Philosopher's Index, and PsycINFO for qualitative studies on community-dwelling older adults' experiences with DigAT, and conducted an interpretative synthesis of thirty-one studies.</div></div><div><h3>Results</h3><div>As intended, DigAT resulted in experienced benefits related to health, safety, self-reliance, wellbeing, motivation, empowerment, and access to care. Autonomy and independence were mostly framed as aspirational benefits, dependent on maintaining health and safety to age-in-place. Unexpected benefits of DigAT included self-confidence, feeling cared for, and social inclusion. However, users also reported various harms, including perceived unsafety, burdening others or being burdened, privacy concerns, feeling controlled and judged, alienation, powerlessness, loneliness, stigma, and emotional distress. When DigAT did not align with users' needs, values, or practices, it resulted in misuse, non-use, or adapted use.</div></div><div><h3>Conclusions</h3><div>Our synthesis highlights the need for an intentional and person-centered approach to DigAT design and implementation, ensuring alignment with older adults' needs, values, and practices. Such an approach could enhance DigAT's perceived value, and thereby support the realization of its promise to increase healthcare accessibility and support independent living.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100584"},"PeriodicalIF":1.8,"publicationDate":"2025-06-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144307414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Doctors’ stories and their functions for collaboration: A narrative study","authors":"Jane Ege Møller ,&nbsp;Bente Vigh Malling ,&nbsp;Flemming Randsbæk ,&nbsp;Matilde Nisbeth Brøgger","doi":"10.1016/j.ssmqr.2025.100587","DOIUrl":"10.1016/j.ssmqr.2025.100587","url":null,"abstract":"<div><div>In this study, we explore the role of doctors' stories about one another in fostering or hindering collaboration. Using a qualitative and narrative approach, we investigate the types and functions of stories that doctors share, focusing on narratives within emergency departments. Methodologically, we combine observations in the emergency departments of three hospitals, 5 focus groups with 15 trainee doctors, and one focus group and three individual interviews with a total of 8 specialist doctors. The concept of ‘antenarrative’ is used to understand these fragmented, co-constructed stories. We developed two main types of narrative: historical, stereotype-driven narratives about medical specialties, and local, experience-based narratives. These stories serve multiple functions, including icebreaking and entertaining, warning, venting, bantering, reinforcing in-group cohesion and attacking. We find that while some stories negatively impact collaboration by perpetuating stereotypes, others positively facilitate teamwork. The findings suggest that storytelling plays a critical role in the ongoing workplace dynamics, emphasizing the need to recognize the nuanced role of storytelling in collaboration. Increasing awareness of the various functions of collegial stories, their role as ‘bets’ for future narratives, and their importance for collaboration in both pre-graduate and post-graduate medical training is important for medical education as well as workplace culture. While we argue that avoiding such stories is undesirable and impossible, raising awareness about the powerful impact of the stories, for example in relation to negative stories about other medical specialties, is critical.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100587"},"PeriodicalIF":1.8,"publicationDate":"2025-06-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144270156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Walking in their shoes’: How does externally worn diabetes technology mediate with the lifeworld of adolescents with type 1 diabetes","authors":"Lene Munch ,&nbsp;Michael van Manen ,&nbsp;Malene Missel ,&nbsp;Malene Boas ,&nbsp;Annette Korsholm Mouritsen ,&nbsp;Malene Beck","doi":"10.1016/j.ssmqr.2025.100583","DOIUrl":"10.1016/j.ssmqr.2025.100583","url":null,"abstract":"<div><div>Despite the high prevalence of Type 1 Diabetes (T1D) among young people, there is limited understanding of how diabetes technologies affect their lives. What is it like to be a young person grappling with the challenges of T1D? How do therapeutic approaches sculpt their experiences? In what ways are medical devices constitutive of their embodiment? Through interviews with adolescents, this phenomenological study explores how insulin pumps, continuous glucose monitors, and other paraphernalia affect adolescents' lived experiences. Key existential themes are articulated as an experience of: living interrupted, being made visible, living monitored, and the ambiguity of technological dependency. We show the potential complexity of adolescents' experiences with T1D technologies. While the technologies function as helpful tools, they may also be experienced as burdensome and intrusive on adolescents living of their lives. By being attentive to adolescents experiences, this study contributes to the development of patient-centered approaches to T1D care and offers critical reflections on the role of wearable technologies in chronic disease management.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100583"},"PeriodicalIF":1.8,"publicationDate":"2025-06-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144263619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health in a changing climate: Perceptions of “broken relationships” during COVID-19 in Austria","authors":"Isabella M. Radhuber ,&nbsp;Amelia Fiske ,&nbsp;Barbara Prainsack","doi":"10.1016/j.ssmqr.2025.100582","DOIUrl":"10.1016/j.ssmqr.2025.100582","url":null,"abstract":"<div><div>This article contributes to understanding health in a changing climate by analysing public perceptions of the root causes of the COVID-19 pandemic in Austria. Drawing on 209 in-depth qualitative interviews conducted between April 2020 and October 2021 in a country that was facing significant challenges regarding national climate targets at that time, the study explores how people linked health, nature, and politics during the pandemic. While many initially expressed hope that the COVID-19 Anthropause would catalyse sustainable change, this optimism soon faded. Over the following year and a half, participants increasingly identified the broken relationships between humans, nature, and things as the root cause of overlapping health, environmental, and climate crises. This culminated in a widespread awareness that personal health is inextricably connected to the wellbeing of the natural environment—and that systemic change, though considered unlikely at the time, is necessary to address these intersecting crises. Our findings show strong resonances between Austrian residents’ multidimensional understanding of health in times of climate change and insights from decolonial scholarship, Indigenous people’s knowledges, as well as global majority perspectives. In dialogue with environmental health, Planetary Health, and Indigenous scholarship, we draw out how participants conceived health as a condition shaped by various ‘natural’, biological, ecological, social, political, economic and other dimensions that interact over time and space. Highlighting this perspective from a global minority context raises more far-reaching questions about the need for decolonial repair to address climate-related health impacts.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100582"},"PeriodicalIF":1.8,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144570769","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Immuno-biographies of people living with blood-borne viruses: a timeline interview and narrative case study approach","authors":"Kerryn Drysdale ,&nbsp;Deborah Lupton","doi":"10.1016/j.ssmqr.2025.100575","DOIUrl":"10.1016/j.ssmqr.2025.100575","url":null,"abstract":"<div><div>In the wake of the COVID-19 pandemic, the question of what human ‘immunity’ means and how it is related to broader social and biological systems has recently come to the fore. In this article, we engage with the concept of ‘immuno-biographies’, presenting four narrative case studies generated from a project that examines the intersections between individuals' experiences across their life course of exposure to infectious diseases, the other significant health events they have experienced, their use of vaccines, antivirals and other medications and other healthcare, and their general health and wellbeing practices. A co-constructed timeline interview approach was used to configure narrative case studies and immuno-timelines. The immuno-biographies presented in this article were selected from a cohort of participants in the study living with blood-borne viral infections (HIV, hepatitis B or hepatitis C, including co-infections). These case studies show how individual biographical experiences of health and illness combine with social structures, cultural meanings, and other life events in people's rationales and practices related to COVID and other health risks. The findings demonstrate the ways that people think about their immunity and immune responses biologically, biographically and socially, offering insights into the complexities, fluxes and liquidities of immuno-biographies. Our findings build on and extend previous research on immunity-related practices and understandings in the COVID era that have demonstrated how factors such as health status, social interactions, aspects of place and space, and previous experiences of illness, social stigma and social discrimination shape COVID-related prevention practices and healthcare.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100575"},"PeriodicalIF":1.8,"publicationDate":"2025-06-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144242983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A critical realist analysis of digital health screening for older people in prison","authors":"Rhys Mantell ,&nbsp;Adrienne Withall ,&nbsp;Amanuel Kidane Hagos ,&nbsp;Kylie Radford ,&nbsp;Natasha Ginnivan ,&nbsp;Phillip Snoyman ,&nbsp;Peter W Schofield ,&nbsp;Tony Butler ,&nbsp;Ye In Jane Hwang","doi":"10.1016/j.ssmqr.2025.100581","DOIUrl":"10.1016/j.ssmqr.2025.100581","url":null,"abstract":"<div><div>The growing cohort of older people (50+) in Australian prisons have high rates of physical, psychosocial and cognitive conditions, with evidence that many of these remain underdiagnosed or undetected. It is necessary to better identify the priority health and social needs of older people in prison to ensure a safe, equitable and cost-effective prison health system. Increased digital health screening in prison is seen as one promising approach to achieve this end. This study aims to explore the factors that are likely to impact future adoption of digital health screening tools for older people in prison. This is a qualitative analysis underpinned by a critical realist philosophy and explanatory model of science. Primary data were collected through seven focus groups in prisons across New South Wales, Australia. Participants included a diverse sample of older people in prison (n = 20), as well as nurses and psychologists working in justice healthcare and the correctional system (n = 13). Two global themes were generated from our analysis - constraint and conflict. Constraint, focusing on structural factors, reveals that limited system capacity and competing service priorities create organisational barriers towards the implementation of additional digital health screening. The second theme, conflict, examines individual barriers to help-seeking for older people in prison. These are caused, in part, by past traumatic life experiences as well as current pressures to conform to prevailing social norms within the prison environment. These structural and individual factors, and their interplay, require further attention before widespread digital health screening can be successfully implemented in Australian prisons.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"8 ","pages":"Article 100581"},"PeriodicalIF":1.8,"publicationDate":"2025-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144270157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}