SSM. Qualitative research in health最新文献

{"title":"Health impacts of climate change in the UK: A qualitative synthesis detailing the conjuncture of social structure, extreme weather, and mental health","authors":"Steven Dodd ,&nbsp;Mette Kragh-Furbo ,&nbsp;Jessica Davies ,&nbsp;Scott Butterfield ,&nbsp;Abigail Morris ,&nbsp;Heather Brown","doi":"10.1016/j.ssmqr.2024.100475","DOIUrl":"10.1016/j.ssmqr.2024.100475","url":null,"abstract":"<div><div>This qualitative synthesis explores the experiences of UK communities facing growing health risks from climate change and extreme weather. The eight included studies show the profound impacts of extreme weather events such as floods on mental health, including challenges to self-identity and anxiety from the fear of flooding returning. Included data reveal individual and household impacts of extreme weather are mediated by a complex interaction of institutional support, community support, gender inequalities and personal agency. These factors are assessed against the backdrop of broader concepts in the social science and adaptation literature, including the role of the state, the inseparability of nature and society, the overlooked role of social structure, and environmental justice. It is argued that the use of qualitative synthesis methods in this topic area allows for an interconnected and context-sensitive analysis of the health impacts of climate change facing communities, diverging from other analytical approaches through inclusion of considerations such as social power, community dynamics, and the inter-relation of institutional action, community cohesion and individual agency. The resulting findings show how locally specific and highly contextual qualitative data can be used by those seeking to understand health risks from climate change within a locality.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100475"},"PeriodicalIF":1.8,"publicationDate":"2024-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142358091","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“I am empowered by this opportunity”: The role of abortion funds as an antidote to abortion stigma","authors":"Al Garnsey ,&nbsp;Jessica L. Liddell ,&nbsp;Annie Glover ,&nbsp;Celina M. Doria ,&nbsp;Alex Buscaglia ,&nbsp;Lauren Buxbaum","doi":"10.1016/j.ssmqr.2024.100478","DOIUrl":"10.1016/j.ssmqr.2024.100478","url":null,"abstract":"<div><p>Beyond the many structural obstacles to obtaining abortion care in the United States, abortion stigma is a forceful impediment to accessing timely services and an injurious feature of the experience for some people who have abortions (Sorhaindo &amp; Lavelanet, 2022). This study utilized a qualitative methodology to explore the experiences of 830 abortion fund applicants in the Rocky Mountain Region to better understand the unique barriers they face in accessing care, the role that stigma plays in influencing applications for abortion fund support, and inform strategies to expand support infrastructure for those facing isolation and hostility in their pursuit of care. For the applicants in this study, stigma was frequently cited as an impetus for seeking abortion fund support and a burdensome aspect of the experience itself. Stigma—whether internalized, perceived, enacted, or structural—prevented many applicants from seeking material or emotional support from their social networks and spurred the dissolution of interpersonal relationships—with far-reaching emotional and material consequences. The results suggest that abortion funds go far beyond merely providing material support, also acting as an antidote to the harms associated with abortion stigma by promoting feelings of interconnectedness and mutuality among applicants. While accounts of stigma were pervasive in the applications, so, too, were the myriad strategies of resistance that applicants called upon to challenge stigmatizing narratives and position their choice to have an abortion as both moral and necessary.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100478"},"PeriodicalIF":1.8,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000878/pdfft?md5=aaea4ca9e0091c145a355cc0883203d3&pid=1-s2.0-S2667321524000878-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142229775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“It's the patient that suffers from poor communication”: Analyzing communication gaps and associated consequences in handover events from nurses’ experiences","authors":"Roger A. Atinga ,&nbsp;Mtebi Nkrabia Gmaligan ,&nbsp;Alice Ayawine ,&nbsp;John K. Yambah","doi":"10.1016/j.ssmqr.2024.100482","DOIUrl":"10.1016/j.ssmqr.2024.100482","url":null,"abstract":"<div><h3>Background</h3><p>Although routine communication gaps among clinical shift teams significantly account for adverse care and treatment outcomes, existing analysis of the phenomenon remain limited in low middle income countries battling with patient safety issues. This study analyzed the drivers and associated episodic consequences of communication gaps from nurses’ experiences in Ghana.</p></div><div><h3>Methods</h3><p>Qualitative design implemented in two referral hospitals. Data collection involved site observations and in-depth interviews with general nurses, midwives, and staff nurses across 3-cycle shift regimes in the emergency, ICU, inpatient wards, and maternity units. A two-stage data analysis was adopted by integrating deductive and inductive codes into broad thematic typologies explaining drivers of communication gaps and the consequences thereof.</p></div><div><h3>Results</h3><p>Communication gaps among shift teams were largely driven by a combination of three broad factors: <em>a</em>) Attitudinal elements of poor work ethics, poor documentation, interpersonal conflicts and use of unconventional language that impaired effective communication; <em>b</em>) organizational dynamics of taxing job demands, limited training exposure and lack of formal handover communication procedures which allowed shift teams to adopt default patterns of communication behavior; and <em>c</em>) cultural values, stereotyping and prejudicing behaviors that restricted inclusive interactions among shift teams. These communication gaps produced adverse episodic effects of diagnostic and treatment errors, complications, and extended hospitalizations.</p></div><div><h3>Conclusion</h3><p>The findings underscore the need to develop standard guidelines to direct structured communication alongside equipping shift teams with competences on emotional intelligence to overcome cultural and behavioral adversities that influence communication breakdown.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100482"},"PeriodicalIF":1.8,"publicationDate":"2024-09-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S266732152400091X/pdfft?md5=4103e54e35cbf646c8b04ad22c9e912b&pid=1-s2.0-S266732152400091X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142164451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"People discuss the men who can't get it up, but what about the women who can't get it in? Women's help-seeking experiences for sexual pain-penetration disorder","authors":"Rashmi Pithavadian ,&nbsp;Jane Chalmers ,&nbsp;Vijayasarathi Ramanathan ,&nbsp;Tinashe Dune","doi":"10.1016/j.ssmqr.2024.100480","DOIUrl":"10.1016/j.ssmqr.2024.100480","url":null,"abstract":"<div><h3>Purpose</h3><p>While it is common to hear of men who ‘can't get it up’ due to erectile dysfunction, people rarely discuss the women who ‘can't get it in’. These women often meet the criteria for sexual pain-penetration disorder (SPPD), which makes vaginal penetration painful or difficult. Lacking awareness of SPPD and the changing terminology from vaginismus to SPPD complicates help-seeking. Yet, there is lacking research on women's help-seeking experiences for SPPD. Therefore, this study aimed to examine Australian women's subjective experiences of formal and informal help-seeking for their SPPD to gain information, diagnosis, treatment, and support.</p></div><div><h3>Methods</h3><p>Help-seeking theory informed the study. Semi-structured interviews were conducted with 21 participants who sought help for their SPPD, which were inductively thematically analysed.</p></div><div><h3>Results</h3><p>Five major themes were developed. (1) <em>Recognition that help-seeking is necessary</em> varied depending on participants' presentation of SPPD. (2) <em>Initiating help-seeking</em> included accessing first points of contact and gaining diagnosis. (3) <em>Management of symptoms with treatment</em> involved conventional, complementary, and alternative treatments. Women discussed using sex toys as alternatives to vaginal trainers, the correlation between negotiating pain thresholds and treatment progress, and their perceptions towards Botox and nerve blocks. (4) <em>Traverse formal healthcare networks</em> facilitated or hindered help-seeking. (5) <em>Navigation of un/supportive informal networks</em> included women's partners, family, friends, and online communities.</p></div><div><h3>Conclusions</h3><p>The benefit of self-help kits, and complementary and alternative treatments for SPPD should be evaluated. Recommendations involve improving health professionals' approaches, including in online spaces. Women's immediate informal support networks should be engaged in healthcare management.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100480"},"PeriodicalIF":1.8,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000891/pdfft?md5=3f58fde8d42d7bf6c3b47f6adf7ebdcd&pid=1-s2.0-S2667321524000891-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142148120","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The collective trauma of HIV/AIDS and contemporary constructions of health: Older gay men's perspectives","authors":"Ingrid Handlovsky ,&nbsp;Jessy Sidhu ,&nbsp;Anthony Theodore Amato ,&nbsp;Olivier Ferlatte ,&nbsp;Hannah Kia","doi":"10.1016/j.ssmqr.2024.100477","DOIUrl":"10.1016/j.ssmqr.2024.100477","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100477"},"PeriodicalIF":1.8,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000866/pdfft?md5=aa55505475a0b70504e668c3d96f1155&pid=1-s2.0-S2667321524000866-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142148087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Redefining ‘family’: Conceptualising social support networks of transfeminine women in the Western Cape, South Africa - A case descriptive study of in-depth qualitative data from the HPTN 071 (PopART) trial","authors":"L. de Villiers ,&nbsp;L. Swartz ,&nbsp;P. Bock ,&nbsp;J. Seeley ,&nbsp;A. Stangl ,&nbsp;G. Hoddinott ,&nbsp;the HPTN 071 (PopART) study team","doi":"10.1016/j.ssmqr.2024.100474","DOIUrl":"10.1016/j.ssmqr.2024.100474","url":null,"abstract":"<div><p>Transfeminine women (assigned male sex at birth and identifying with a feminine gender identity) are at risk for intersectional stigma related to their gender, sexual orientation, and other parts of their social identities (including age, class, and race). These layered stigmas can result in increased physical and mental health concerns related to physical and emotional violence, substance use, high risk sexual behaviour and HIV exposure. Social networks are important support structures for transfeminine women to ameliorate imposed risk and stigma. We investigated the family networks, household structures and community support systems of eight transfeminine women in the <span>Western</span> Cape, South Africa. The data for this study are embedded in a qualitative component of the larger HPTN 071 (PopART) trial. Data included in-depth interview transcripts, genogram activities and community map drawings. We found that participants who were not living in a supportive family and household structure faced stigma and health risks. In addition, we found examples of how transfeminine women in unsupportive social situations constructed their own family and household unit for support. Our findings agree with those of other studies in that transgender people often rely on extended family members, friends, or peers as social support when their families do not support or ostracise them. Understanding how transfeminine women re-organise social units to be better supported is important so that better health services can be provided to them in the local South African and international context. Further research on family re-structuring among gender and sexual minority groups is needed.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100474"},"PeriodicalIF":1.8,"publicationDate":"2024-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000830/pdfft?md5=9ae23986612083c9ad0a6db8622f2e00&pid=1-s2.0-S2667321524000830-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142164452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students","authors":"Liesbeth Geuze ,&nbsp;Samuel Schrevel ,&nbsp;Paula van Driesten – van Roozen ,&nbsp;Anne Goossensen","doi":"10.1016/j.ssmqr.2024.100473","DOIUrl":"10.1016/j.ssmqr.2024.100473","url":null,"abstract":"<div><p>Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building relationships can be challenging. Investing in better understanding the differences in each other's frames of reference and underlying values seems important. Wonder Lab practices provide a space to explore these differences by focusing together on life phenomena in curious and Socratic ways. Wonder Labs were organised with parents, healthcare professionals, and students involved in Dutch paediatric palliative care. The aim of this study was to develop an understanding of how participants experienced participating in Wonder Labs. We conducted twenty in-depth interviews with Wonder Lab participants and used inductive thematic analysis for data interpretation. Five themes were identified: Slowing down, Appreciating stories, Becoming vulnerable, Opening up and diving in, and Reframing perspectives. Participating in Wonder Labs allowed mothers, healthcare professionals, and students to contribute to deepening experiences and gain an expanded understanding of what is at play in caring for children with life-limiting and life-threatening conditions. Through working in pluralised groups, frames of reference and understandings complemented each other and could change. Participants often adopted a more open attitude towards others involved in care after participating and adapted day-to-day practices. Deliberating within paediatric palliative care on sensitive issues and their underlying personal and professional beliefs and values must be part of working together, without specific care situations being the catalyst. This may foster the mutual understanding needed in searching for quality of life, death, and bereavement.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100473"},"PeriodicalIF":1.8,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000829/pdfft?md5=26e749a285ea992ca27f3f19af8e13f1&pid=1-s2.0-S2667321524000829-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141997250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Paramedic decision-making in out of hospital cardiac arrest. A descriptive phenomenological study’","authors":"Karl Charlton ,&nbsp;Mark Bevan","doi":"10.1016/j.ssmqr.2024.100472","DOIUrl":"10.1016/j.ssmqr.2024.100472","url":null,"abstract":"<div><p>During out of hospital cardiac arrest paramedics make decisions to commence, continue or terminate resuscitation. There is variability in when resuscitation is provided, and evidence suggests these decisions are complex and influenced by factors other than patient clinical characteristics. Through first-hand accounts of paramedics who bear witness to, and make, life and death decisions during out of hospital cardiac arrest, this study aimed to describe how paramedics decide to provide resuscitation.</p><p>This descriptive phenomenological study involved eight participants and was conducted between April–September 2021 in North East Ambulance Service NHS Foundation Trust.</p><p>Paramedic stories and reflections on their encounters with out of hospital cardiac arrest speak of how the role of paramedic is bound to <em>Selfhood</em> and public identity, uncertainty about when death has occurred versus a sudden reversible event, the ethics and morality of an obligation to <em>Others</em> and the plurality of lifeworld.</p><p>Resuscitation has significant ritualistic value, is often delivered in light of expectation and serves important social functions in the process of death recognition, <em>Selfcare</em> and care for <em>Others</em>. Further research is needed to understand the impact variability in decision-making has on patient outcomes and how this relates to patient and public expectations.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100472"},"PeriodicalIF":1.8,"publicationDate":"2024-08-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000817/pdfft?md5=bd9c8cc9b3a77e911e55991dfa6afb60&pid=1-s2.0-S2667321524000817-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141961100","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Chaos, miracle, and coping: A narrative analysis of immunoglobulin recipients’ lived experiences of illness, diagnosis and treatment","authors":"Kelly Holloway ,&nbsp;Dhara Chauhan ,&nbsp;Umair Majid ,&nbsp;Stephanie Kelly ,&nbsp;Quinn Grundy","doi":"10.1016/j.ssmqr.2024.100467","DOIUrl":"10.1016/j.ssmqr.2024.100467","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100467"},"PeriodicalIF":1.8,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000763/pdfft?md5=267900d97eb776e8c8f0dd6a39879f0d&pid=1-s2.0-S2667321524000763-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141953169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Do all bisexuals have this power?”: An exploratory study of “crippling nicotine addiction,” identity, and other emergent themes in vaping messages on QueerTok","authors":"Coltin Ball ,&nbsp;Shannon Lea Watkins ,&nbsp;Alexis Fahrion ,&nbsp;Makayla Morales ,&nbsp;Abigail McDonald ,&nbsp;Erin A. Vogel ,&nbsp;Minji Kim","doi":"10.1016/j.ssmqr.2024.100471","DOIUrl":"10.1016/j.ssmqr.2024.100471","url":null,"abstract":"<div><p>Nicotine and tobacco use disproportionally affects sexual and gender minority (SGM) populations in the United States. Social media narratives may contribute to these disparities. This qualitative study delineated perceptions and experiences depicted in SGM-related videos about nicotine vaping on TikTok. Young adult researchers engaged in every step of the research process, adding an insider perspective. Using four TikTok accounts, we used vaping and SGM-related search terms to sample videos in March–April 2022. Three TikTok accounts collected SGM-specific videos; a fourth provided non-SGM specific videos for comparison. We iteratively sorted 303 unique videos into 32 <em>a priori</em> and emergent codes and identified themes in SGM videos and comparison videos. In their videos, creators displayed awareness of and ambivalence toward vaping and nicotine dependence. SGM videos reflected vaping as a salient feature of identity and a consideration in romantic partnership. Studying video-based social media platforms, like TikTok, using an insider-engaged qualitative lens promotes rich interpretation of content to identify prevalent and emerging messages, which can inform appropriate interventions for SGM young people.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100471"},"PeriodicalIF":1.8,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000805/pdfft?md5=e02689cc012e558fa87fe277235dda8d&pid=1-s2.0-S2667321524000805-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142021344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}