SSM. Qualitative research in health最新文献_第3页

Fighting the “Bog Standard”: Intersectional experiences of gender and disability discrimination within healthcare among women in Scotland 反对“沼泽标准”：苏格兰妇女保健中性别歧视和残疾歧视的交叉经验

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2026-01-21 DOI: 10.1016/j.ssmqr.2026.100709

Laura Tinner , Ana Alonso Curbelo , Kerry Gillespie

{"title":"Fighting the “Bog Standard”: Intersectional experiences of gender and disability discrimination within healthcare among women in Scotland","authors":"Laura Tinner , Ana Alonso Curbelo , Kerry Gillespie","doi":"10.1016/j.ssmqr.2026.100709","DOIUrl":"10.1016/j.ssmqr.2026.100709","url":null,"abstract":"<div><div>Accumulating evidence highlights that gendered health inequalities are shaped by structural and interpersonal discrimination. Existing research also suggests that disabled people suffer worse healthcare experiences and outcomes than the remainder of the population. Despite women being more likely to have a chronic illness or disability than men, and women more frequently experiencing dismissal and disbelief about their health conditions and pain, there is a scarcity of evidence surrounding the healthcare experiences of disabled and chronically ill women. Through four focus groups (n = 14) and 28 semi-structured interviews, we explored the links between discrimination and health among women in Scotland. We used intersectionality as a theoretical and applied framework to zoom in on the experiences of women with a chronic illness or disability, integrating other axes of inequality where relevant. We argue that these women occupy a particular position of amplified discrimination within healthcare, which is borne out of sexist and ableist framings of what constitutes a ‘healthy’ body. Weight blame is one neoliberal logic used in healthcare contexts that restricts disabled women's access to referrals, diagnosis, treatment, support and respect. To navigate these discriminatory healthcare systems, women advocate for themselves, alter their behaviour and balance sometimes conflicting presentations of self. We articulate how these experiences are likely drivers of entrenched gender and disability inequalities.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100709"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146077370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Longitudinal reflections on family caregiving experiences: Insights from solicited diaries of caregivers of people living with dementia in British Columbia, Canada 对家庭照护经验的纵向反思：来自加拿大不列颠哥伦比亚省痴呆症患者照护者征求日记的见解

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100677

Kishore Seetharaman , Lucy Kervin , Koushambhi Khan , Heather Cooke , Jennifer Baumbusch

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Sovereignty in the digital age Indigenous perspectives on health data and emerging technologies 数字时代的主权土著人对卫生数据和新兴技术的看法

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2026-01-07 DOI: 10.1016/j.ssmqr.2025.100698

Samantha Hurst , Kelle Dhein , Joseph Yracheta , Timothy Mackey

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Perceptions of age and aging in the context of medical decision-making. A qualitative, case-vignette-based focus group study with physicians, nursing staff and seniors 在医疗决策的背景下对年龄和老龄化的看法。对医生、护理人员和老年人进行定性的、基于个案的焦点小组研究

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2026-01-13 DOI: 10.1016/j.ssmqr.2026.100703

Laura Mohacsi , Lena Stange , Eva Hummers , Evelyn Kleinert

{"title":"Perceptions of age and aging in the context of medical decision-making. A qualitative, case-vignette-based focus group study with physicians, nursing staff and seniors","authors":"Laura Mohacsi , Lena Stange , Eva Hummers , Evelyn Kleinert","doi":"10.1016/j.ssmqr.2026.100703","DOIUrl":"10.1016/j.ssmqr.2026.100703","url":null,"abstract":"<div><h3>Background</h3><div>While interactions between the perception of one's own age and different parameters of health and health behavior are well-researched, only few publications focus on perceptions of old age in the context of medical decision-making. Therefore, we examined how old age is perceived by physicians, nursing staff, and people aged 75 or older in the context of medical decision-making.</div></div><div><h3>Methods</h3><div>The study employed a qualitative research design, conducting 16 focus group discussions (N = 79): five with physicians (n = 24), five with nursing staff (n = 28), and six with people aged 75 and older (n = 27). Discussions were initiated by two case vignettes stating geriatric decision-making situations. To include the perspectives of people unable to attend group discussions, eight individuals aged 75 or older were interviewed individually. Qualitative content analysis was used to analyze the data.</div></div><div><h3>Results</h3><div>Four major dimensions of old age were derived from the data: (1) age means freedom and autonomy, (2) age means (risk of) decline, (3) age brings age-related tasks, (4) age means being closer to death. They interrelate and lead to a shift in wishes, perspectives, preferences, and priorities regarding medical treatment.</div></div><div><h3>Conclusion</h3><div>The four identified dimensions coexist and may contradict one another. Perceptions of age and aging, both among older adults and healthcare professionals, can influence medical decision-making by shaping how priorities and preferences evolve with increasing age. These findings highlight the importance of explicitly exploring and understanding individual patients’ wishes and values, particularly in advanced age, to ensure that medical decisions align with personal perspectives and needs.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100703"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146022522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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“Stop acting like a diva”: Responses to sexual violence in young adult romance novels “别装得像个天后”：对青少年言情小说中性暴力的回应

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-11-28 DOI: 10.1016/j.ssmqr.2025.100671

Margaret M. Palmer

{"title":"“Stop acting like a diva”: Responses to sexual violence in young adult romance novels","authors":"Margaret M. Palmer","doi":"10.1016/j.ssmqr.2025.100671","DOIUrl":"10.1016/j.ssmqr.2025.100671","url":null,"abstract":"<div><div>Young Adult Literature (YAL) provides adolescents with cultural scripts for understanding gender, sexuality, and power, making it essential to examine portrayals of sexual violence and its aftermath. They can normalize sexual harm by suggesting that girls must manage violence on their own and that institutions will not intervene, or they can challenge rape culture by modeling resistance and accountability. This paper analyzes 20 popular YAL novels published between 2005 and 2013 using iterative inductive content analysis (ICA), an approach involving repeated cycles of reading, coding, and refining categories. I find that characters employ six tactics: saying <em>no</em>, joking, threatening violence, creating space, relocation, and violence, both independently and in combination when responding to sexual violence. Schools are portrayed as failing girls, treating sexual harassment as misunderstandings and dismissing girls as “divas” when they protest; notably, school discipline disproportionately targets Latino boys as perpetrators while excusing white boys, who more frequently commit sexual violence in this sample. Police are almost entirely absent, responding to sexual violence in only two texts. Collectively, these patterns demonstrate how young adult romance novels reproduce central assumptions of rape culture: that sexual violence is an individual rather than institutional issue, that resistance is constrained by gender, and that institutional accountability is not reliable.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100671"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145685374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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“Do you belong in my circle?” – a retrospective reflexive thematic analysis of the particularity and price of solidarity for socioculturally diverse communities in Switzerland during the COVID-19 pandemic “你属于我的圈子吗？”-对2019冠状病毒病大流行期间瑞士社会文化多样性社区团结的特殊性和代价进行回顾性反思性专题分析

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-12-23 DOI: 10.1016/j.ssmqr.2025.100697

Gia Thu Ly , Cristopher I.Kobler Betancourt , Balthasar L. Hug , Annika Frahsa

{"title":"“Do you belong in my circle?” – a retrospective reflexive thematic analysis of the particularity and price of solidarity for socioculturally diverse communities in Switzerland during the COVID-19 pandemic","authors":"Gia Thu Ly , Cristopher I.Kobler Betancourt , Balthasar L. Hug , Annika Frahsa","doi":"10.1016/j.ssmqr.2025.100697","DOIUrl":"10.1016/j.ssmqr.2025.100697","url":null,"abstract":"<div><div>During the COVID-19 pandemic, calls for solidarity were widespread, yet its practice proved fragile and uneven. This study explores how individuals from socio-culturally diverse and often marginalized communities in the canton of Bern (Switzerland) experienced and enacted solidarity. Drawing on the conceptual works by Prainsack & Buyx and Komter, we conducted reflexive thematic analysis of seven focus group discussions with 53 participants and identified two central themes: (1) “<em>Commonality, gratitude and reciprocity as particularities of solidarity”</em>, highlighting how shared values and mutual recognition shaped solidaristic practices; and (2) <em>“Barriers, challenges and costs: the ticket to enter solidarity”</em>, capturing affective labour, limitations of institutional solidarity, and conditions under which solidarity was withheld. Focusing on participants' lived experiences, findings concentrate on three key insights: first, participants experienced positive aspects of solidarity—such as shared purpose and commonality—but these were often offset by emotional and social burdens; second, sociocultural and socioeconomic contexts fundamentally shaped who could afford the costs asscociated with solidaristic engagement; and third, institutional appeals to solidarity were insufficient to sustain collective action, failing to meet participants’ diverse needs and capacities. Solidarity was thus enacted in deeply situated and contingent ways, motivated by ethical and emotional imperatives, yet constrained by structural inequalities. The study underscores the need to consider both affective and socio-structural dimensions when fostering solidaristic practices, offering insights for developing context-specific and culturally responsive strategies to support collective action and social cohesion in times of crisis.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100697"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145976546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Exploring young fathers’ roles and decision-making regarding childhood vaccination in Tajikistan: A focus group study 探讨塔吉克斯坦年轻父亲在儿童疫苗接种方面的角色和决策：焦点小组研究

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-11-22 DOI: 10.1016/j.ssmqr.2025.100669

Giyoung Lee , Brandy Joe Milliron , Mutribjon Bahruddinov , Allison K. Groves , Ann C. Klassen

{"title":"Exploring young fathers’ roles and decision-making regarding childhood vaccination in Tajikistan: A focus group study","authors":"Giyoung Lee , Brandy Joe Milliron , Mutribjon Bahruddinov , Allison K. Groves , Ann C. Klassen","doi":"10.1016/j.ssmqr.2025.100669","DOIUrl":"10.1016/j.ssmqr.2025.100669","url":null,"abstract":"<div><div>Father involvement is an important factor in childhood vaccination. Despite Tajikistan's significant efforts to improve vaccination coverage, vaccine hesitancy persists, with parents exhibiting signs of mistrust towards vaccinations due to misinformation. This study aims to examine how fathers describe their role in their child's vaccination plans and to explore their beliefs and attitudes regarding childhood vaccinations through thematic analysis of data from seven focus groups. Focus group discussions aimed to understand influences on immunization and potential communication channels, messages, and behavior change goals for future campaigns. Our analysis categorized fathers based on their attitudes towards vaccines (supportive or hesitant) and on their level of engagement in vaccine decisions (active or passive). Fathers in the focus groups reported seeing themselves as protectors, particularly given their cultural role as primary decision-makers for their children's health. Our findings indicate that, although many fathers are supportive of childhood vaccines, vaccine hesitancy due to misinformation remains a concern. Current gender norms, as well as employment logistics, also pose barriers for fathers to become more involved in their children's vaccination process. Fathers expressed a desire for more opportunities to learn about health issues in their communities. These insights offer opportunities for public health campaigns to educate and engage fathers as partners in advocating for childhood vaccinations. Future interventions should focus on promoting father involvement, both in terms of attitude and agency, while remaining sensitive to cultural gender norms.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100669"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145618336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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“I'm staying as informed as I can and trying to make nutritional & lifestyle amendments”: COVID long-haulers’ strategies for managing uncertainty and assessing the trustworthiness of COVID-19-related information “我尽我所能了解情况，并试图改变营养和生活方式”：COVID长途运输公司管理不确定性和评估COVID-19相关信息可信度的策略

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-12-04 DOI: 10.1016/j.ssmqr.2025.100681

Beth St. Jean , Katherine F. Raymond , Brooke Fisher Liu , Duli Shi , Miranda Downey , Twanna Hodge , Jane Behre , Nicole Miller

{"title":"“I'm staying as informed as I can and trying to make nutritional & lifestyle amendments”: COVID long-haulers’ strategies for managing uncertainty and assessing the trustworthiness of COVID-19-related information","authors":"Beth St. Jean , Katherine F. Raymond , Brooke Fisher Liu , Duli Shi , Miranda Downey , Twanna Hodge , Jane Behre , Nicole Miller","doi":"10.1016/j.ssmqr.2025.100681","DOIUrl":"10.1016/j.ssmqr.2025.100681","url":null,"abstract":"<div><div>COVID long-haulers face a great deal of uncertainty and information-related challenges that can impede their ability to cope with and manage this serious chronic health condition. We conducted an explanatory sequential mixed-methods study involving an online survey (<em>n</em> = 135) and follow-up interviews (<em>n</em> = 29) to investigate the information-related experiences of COVID long-haulers. In this paper, we share the strategies they used to navigate uncertainty and to assess the trustworthiness of COVID-19-related information. We found that participants experienced a great deal of uncertainty, often relating to the fear, anxiety, and depression they felt as they were unsure whether they would ever recover. Nearly all participants shared strategies they used to deal with uncertainty, which included seeking, sharing, and/or avoiding information; using information to manage one's health; taking control of what they can and/or giving up control over things they cannot; and accepting their situation. With specific regard to information management, participants shared several strategies they used to assess the trustworthiness of COVID-19-related information. These included looking into the source and/or authors of the information, making sure that the authors provided evidence and citations for their claims, investigating why the information was being shared, making sure that the source/authors acknowledged remaining gaps or uncertainty in our knowledge, and checking multiple sources to cross-verify the information they had found. Our findings have important implications for the design of optimal approaches that can help to support and facilitate COVID long-haulers’ uncertainty management and information assessment efforts.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100681"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145685372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Beyond access: Racial and socioeconomic disparities in device use among youth with type 1 diabetes 超越获取：1型糖尿病青少年设备使用中的种族和社会经济差异

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-12-19 DOI: 10.1016/j.ssmqr.2025.100690

Cassidy Puckett , Jenise C. Wong , Berty D.C. Arreguín , Jennifer K. Raymond , Stephanie S. Crossen , Kevin Yen

{"title":"Beyond access: Racial and socioeconomic disparities in device use among youth with type 1 diabetes","authors":"Cassidy Puckett , Jenise C. Wong , Berty D.C. Arreguín , Jennifer K. Raymond , Stephanie S. Crossen , Kevin Yen","doi":"10.1016/j.ssmqr.2025.100690","DOIUrl":"10.1016/j.ssmqr.2025.100690","url":null,"abstract":"<div><div>Racial and socioeconomic disparities in medical device use among youth with type 1 diabetes (T1D) are well documented. Inequities in access can arise in the unequal prescription of insulin pumps and continuous glucose monitoring (CGM) devices. Once prescribed, challenges to device use can also create inequities, but less is known about racial and socioeconomic disparities in post-access challenges such as barriers to use at school. Using focus group data from three mixed-method studies of youth with T1D (N = 50) and their caregivers (N = 56), we compare the experiences of higher-income and majority White youth to lower-income and predominantly Latinx and Black youth. We find many similarities, along with two striking differences. First, lower-income and majority Latinx and Black youth express more fear and victimization from bullying at school, which can lead to device discontinuation. Second, these youth and their caregivers report few connections to other families managing T1D but many connections to those with T2D. This social network configuration promotes the typicality assumption that these youth have T2D, which carries significant stigma and limits diabetes-related social capital that might otherwise support device use. Overall, our findings extend health inequities research by identifying unique challenges faced by lower-income and majority Latinx and Black youth with T1D in utilizing medical innovation.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100690"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145924973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Do-it-yourself hormones: constructing credible knowledge in an online transgender forum 自己动手的荷尔蒙：在一个在线跨性别论坛上构建可信的知识

IF 2.5

SSM. Qualitative research in health Pub Date : 2026-06-01 Epub Date: 2025-12-23 DOI: 10.1016/j.ssmqr.2025.100692

Natasa Stoli, Klasien Horstman, Olga Zvonareva

{"title":"Do-it-yourself hormones: constructing credible knowledge in an online transgender forum","authors":"Natasa Stoli, Klasien Horstman, Olga Zvonareva","doi":"10.1016/j.ssmqr.2025.100692","DOIUrl":"10.1016/j.ssmqr.2025.100692","url":null,"abstract":"<div><div>On the continuum of patient participation between ‘‘informed patients'’ and ‘‘patients in control’‘, DIY pharmaceuticals are considered the most radical because they are produced outside regular medical professional and regulatory contexts. While some see DIY pharmaceuticals as an important contribution to making pharmaceuticals more accessible, others are concerned because they circumvent established procedures for assessing safety and efficacy. We studied a particular case of DIY pharmaceuticals: citizen drug developers who enable access to hormone therapy in transgender health care through the home production of hormones. By studying an online community of DIY hormone producers, we aimed to gain insight into how they strive to develop knowledge practices that are credible and safe. Theoretically, we drew from science and technology studies scholarship on knowledge credibility and patient participation in knowledge production. We relied on a qualitative study of an online forum to generate our data. The analysis shows how citizen drug developers constructed and performed standards of safety and efficacy in sharing knowledge within their community and how these standards were ensured. DIY pharmaceuticals can be an unconventional but important pathway for citizen participation in biomedical knowledge production, employing strategies for performing credible knowledge outside formal laboratory spaces and in the absence of external supervision.</div></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"9 ","pages":"Article 100692"},"PeriodicalIF":2.5,"publicationDate":"2026-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145924977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0