{"title":"Choosing people: How do Israeli kidney donors and surrogates select their recipients?","authors":"Hagai Boas , Orit Chorowicz Bar-Am","doi":"10.1016/j.ssmqr.2024.100459","DOIUrl":"10.1016/j.ssmqr.2024.100459","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100459"},"PeriodicalIF":1.8,"publicationDate":"2024-07-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000684/pdfft?md5=cde43642d3a6546012defb3f9da1a55f&pid=1-s2.0-S2667321524000684-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141705521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sisyphus in Court: Moral injury and requests for recognition in the dynamic between the Dutch police organization and their personnel in the wake of work related psychological injuries","authors":"Naomi Gilhuis , Teun Eikenaar , Lars Stevenson","doi":"10.1016/j.ssmqr.2024.100458","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100458","url":null,"abstract":"<div><p>When police personnel suffering from work-related psychological injuries seek support and recognition from their organization, a complex dynamic can unfold. This may even be experienced as morally injurious, thus adding to the initial psychological injury. This article delves into this issue in the context of Dutch police personnel, analyzing the narratives of 13 (former) police officers through the theoretical framework of Moral Injury, (mis)recognition, and bureaucracy. Their stories reveal that these officers, having learned to view their organization as their ‘blue family’, yearned for support and recognition, while inherent bureaucratic constraints prevented the police organization from offering genuine recognition. The result was an isolating and existence-denying experience. Bureaucratic logic tends to make the police organization approach recognition-seeking officers as suspects obligated to prove their ‘sick status,’ while it simultaneously creates tendencies to ‘sanitize’ the organization from their illness. Such an interaction becomes a Sisyphean struggle for officers, igniting a 'solidified fight mode' in them and worsening their feelings of misrecognition. Ultimately, this dynamic may be characterized as morally injurious. These findings emphasize the importance of recognition, especially for officers dealing with psychological injuries, and allow us to distinguish between affirmative recognition (perpetuating unhealthy post-injury dynamics) and transformative recognition (changing them toward meaningful change). This study thus advances the understanding of how organizations can both hinder and promote recognition and support, underscoring the pivotal role of transformative recognition to foster healing from the initial psychological injury and prevent moral injury in the injury's aftermath.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100458"},"PeriodicalIF":1.8,"publicationDate":"2024-07-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000672/pdfft?md5=725150c8f7f93d479fceb7fd1ac54086&pid=1-s2.0-S2667321524000672-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Compassionate deception: An ethnographic study of how and why health professionals and family members lie when caring for people with dementia in Danish nursing homes","authors":"Sofie Smedegaard Skov , Anja M.B. Jensen , Gitte Rasmussen , Anna Paldam Folker , Sigurd Lauridsen","doi":"10.1016/j.ssmqr.2024.100457","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100457","url":null,"abstract":"<div><p>This article uses the concept of compassionate deception to understand the complexity and duality at stake when health professionals and family members lie when caring for people with dementia. Drawing on ethnographic fieldwork at two Danish nursing homes, we argue that compassionate deception conceptually illustrates the fine balance we observed of using lies and deception, while simultaneously acting with recognition and care towards residents. Ethical standards in dementia care do not recommend lying. Nonetheless, based on the practices and perspectives of health professionals and family members we direct ethnographic attention towards the intersections of caring and lying. Focusing on everyday social interactions and negotiations in the nursing home context, this study emphasizes the delicate balance between employing lies and deception, and fostering recognition in the context of dementia care. The study underlines the importance of taking the mundane care practices, the interpersonal relationships, as well as the work conditions and institutional pressure of health professionals into account when discussing care ethics in dementia.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100457"},"PeriodicalIF":1.8,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000660/pdfft?md5=dbb52a03b1a21633571f54558e4a1b19&pid=1-s2.0-S2667321524000660-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel
{"title":"“Do you have questions?” How sequential placement shapes the uptake of question invitations in HPV vaccine treatment recommendations in the Netherlands","authors":"Guusje Jol , Tessa van Charldorp , Hedwig te Molder , Nienke van Trommel","doi":"10.1016/j.ssmqr.2024.100456","DOIUrl":"10.1016/j.ssmqr.2024.100456","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100456"},"PeriodicalIF":1.8,"publicationDate":"2024-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000659/pdfft?md5=5e1147cc34ba2d9feccd35fb1a4520cd&pid=1-s2.0-S2667321524000659-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141693693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding the impact of healthcare providers’ perspectives on cancer control in rural communities: A qualitative study","authors":"Alee Lockman , Mariam Krikorian Atkinson , Keelin McGee , Tenille Oderwald , James McGee","doi":"10.1016/j.ssmqr.2024.100452","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100452","url":null,"abstract":"<div><p>This study seeks to understand how healthcare providers perceive systemic- and individual-level factors affecting rural patients' access to care and how this information impacts providers’ approach to cancer screening and prevention recommendations. Over a six-month period in 2021, we conducted semi-structured interviews with primary care providers, nurse navigators, and community health workers affiliated with a regional health system to better understand their perceptions of cancer control in rural communities. Thematic analysis was conducted to identify key themes and develop a conceptual framework to describe the pathway between information-gathering and care coordination – as well as how trust affects these relationships. We found that provider beliefs about barriers facing rural patients influence care recommendations and patient interactions. These beliefs and subsequent interactions affect trust between providers and patients, which influences whether rural patients are willing to believe providers, their adherence to care recommendations, and the information patients are willing to share with providers.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100452"},"PeriodicalIF":1.8,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000611/pdfft?md5=20806c2a113acfc0003d78e364906c7d&pid=1-s2.0-S2667321524000611-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141485704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carolyn Sufrin , Tali Ziv , Lauren Dayton , Carl Latkin , Camille Kramer
{"title":"“They talked to me like I was dirt under their feet:” Treatment and withdrawal experiences of incarcerated pregnant people with opioid use disorder in four U.S. states","authors":"Carolyn Sufrin , Tali Ziv , Lauren Dayton , Carl Latkin , Camille Kramer","doi":"10.1016/j.ssmqr.2024.100453","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100453","url":null,"abstract":"<div><h3>Background</h3><p>Many pregnant individuals with opioid use disorder (OUD) spend time in jail, yet access to standard of care medications for OUD (MOUD) in jail is limited. Though qualitative studies of non-incarcerated pregnant and non-pregnant incarcerated individuals with OUD demonstrate complexities that must be considered in delivering effective care, studies with pregnant, incarcerated patients with OUD are lacking.</p></div><div><h3>Methods</h3><p>We conducted semi-structured qualitative interviews from October 2020–November 2021 with pregnant and postpartum people with OUD who were currently or previously in jail in Florida, Maryland, Ohio, and Virginia. Interview guides incorporated understandings of the power dynamics of incarceration and gendered expectations of motherhood. We analyzed transcripts using descriptive phenomenology to identify themes around experiences of treatment or withdrawal in jail and upon release.</p></div><div><h3>Results</h3><p>We interviewed 32 women, 23 pregnant and nine postpartum. Some received MOUD in jail and others endured withdrawal. All participants expressed concern for their babies. Five themes emerged: 1)lack of counseling or accurate information about MOUD in pregnancy; 2)absent, delayed, or coercive care in jail; 3)experiences of stigma and discrimination from staff and caregivers; 4)structural barriers to safe transitions and continuing MOUD; and 5)the destructive presence of child protective services for care continuity. These factors all influenced their ability to recover.</p></div><div><h3>Conclusions</h3><p>Jails must provide OUD care that is attentive to pregnancy physiology, pregnancy-stigma, reentry needs, and patients’ fetal-newborn concerns. Tailoring care specific to pregnancy and postpartum context can improve recovery success, reduce overdose, and promote intergenerational equity.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100453"},"PeriodicalIF":1.8,"publicationDate":"2024-06-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000623/pdfft?md5=965f00790e3f067b5477a0da2648c109&pid=1-s2.0-S2667321524000623-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141481628","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The worry of the next meal: Food insecurity experiences of street-connected children in Ethiopia","authors":"Siyane Deressa, Joost Dessein","doi":"10.1016/j.ssmqr.2024.100451","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100451","url":null,"abstract":"<div><p>Food insecurity is a growing global concern, with millions of people suffering from hunger and malnutrition every day. Street-connected children are disproportionately vulnerable to food insecurity due to their living conditions and social status. However, little is known about their food insecurity experience, particularly in low- and middle-income countries. This study, therefore, aims to address this gap by examining the food insecurity experiences of street-connected children in Jimma, Ethiopia. This qualitative study was conducted from July to September 2021, and involved children living on the streets in various parts of Jimma city. In this study, we utilized interviews, focus group discussions, and field observations to investigate food acquisition strategies, hunger experiences, coping mechanisms, and challenges in food access among these children. Our findings indicate that street-connected children struggle to secure adequate, safe, and stable food, encountering pervasive hunger. Their limited resources and income exacerbate their dietary challenges. Their lack of food access not only represents a major challenge in their day-to-day lives but is also central to the various vulnerabilities and adversities they face. Moreover, their persistent hunger complicates their ability to improve their living conditions and exit from the street life. In conclusion, the study underscores the urgent need for focused attention on alleviating food insecurity among street-connected children, particularly in low-income countries.</p></div>","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100451"},"PeriodicalIF":1.8,"publicationDate":"2024-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S266732152400060X/pdfft?md5=e1f7cc603d6ac1eb2f48b055d0a2bfc8&pid=1-s2.0-S266732152400060X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141540223","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katherine A. Mason , Heather M. Wurtz , Sofia Boracci , Sarah S. Willen
{"title":"Assembling vaccine perspectives: Vaccination and moral self-talk in the journals of white US mothers during Covid-19","authors":"Katherine A. Mason , Heather M. Wurtz , Sofia Boracci , Sarah S. Willen","doi":"10.1016/j.ssmqr.2024.100454","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100454","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100454"},"PeriodicalIF":1.8,"publicationDate":"2024-06-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000635/pdfft?md5=b2a4f45e8c70ca6f7e4868405b44d9e8&pid=1-s2.0-S2667321524000635-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141540224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jane Chudleigh , Pru Holder , Corinna Clark , Louise Moody , Jacqui Cowlard , Lorna Allen , Claire Walter , James R. Bonham , Felicity Boardman
{"title":"Parents' and childrens’ views of wider genomic testing when used as part of newborn screening to identify cystic fibrosis","authors":"Jane Chudleigh , Pru Holder , Corinna Clark , Louise Moody , Jacqui Cowlard , Lorna Allen , Claire Walter , James R. Bonham , Felicity Boardman","doi":"10.1016/j.ssmqr.2024.100455","DOIUrl":"https://doi.org/10.1016/j.ssmqr.2024.100455","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"6 ","pages":"Article 100455"},"PeriodicalIF":1.8,"publicationDate":"2024-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000647/pdfft?md5=da9b0b74fe04e764ffc7476a5943bc72&pid=1-s2.0-S2667321524000647-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141485654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sue Ziebland, Rika Sakuma-Sato, Rachel Grob, Anna Dowrick, Alicia Regina Navarro Dias de Souza, Giovanni Spitale, Mark Schlesinger
{"title":"Cross country analysis of qualitative interviews: Developing a method, a community and an understanding of how Covid has been experienced around the globe","authors":"Sue Ziebland, Rika Sakuma-Sato, Rachel Grob, Anna Dowrick, Alicia Regina Navarro Dias de Souza, Giovanni Spitale, Mark Schlesinger","doi":"10.1016/j.ssmqr.2024.100396","DOIUrl":"10.1016/j.ssmqr.2024.100396","url":null,"abstract":"","PeriodicalId":74862,"journal":{"name":"SSM. Qualitative research in health","volume":"5 ","pages":"Article 100396"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2667321524000052/pdfft?md5=fd6760cb20aaa316d2a2da5c7b2adff2&pid=1-s2.0-S2667321524000052-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139637408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}