Journal of participatory research methods最新文献

Editorial: ”How Communities and Research Institutions Work Together to Dismantle Structural Racism and Advance Health Equity” 社论："社区与研究机构如何携手消除结构性种族主义并促进健康公平

Journal of participatory research methods Pub Date : 2024-07-23 DOI: 10.35844/001c.121132

J. R. Moon, Ann M. Brearley, Drissa M. Toure

引用次数: 0

Retention Reimagined: Participatory Action and Positive Deviancy for University Student Success 重新构想留校工作：参与式行动和积极反常现象促进大学生成功

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.94415

A. Nakonechnyi, Brook Batch, N. Douglas, Ciara Tucker, Alexa Theuerling, Matthew Knox, Rebecca Allen

{"title":"Retention Reimagined: Participatory Action and Positive Deviancy for University Student Success","authors":"A. Nakonechnyi, Brook Batch, N. Douglas, Ciara Tucker, Alexa Theuerling, Matthew Knox, Rebecca Allen","doi":"10.35844/001c.94415","DOIUrl":"https://doi.org/10.35844/001c.94415","url":null,"abstract":"About half of U.S. university students who start their degrees never finish — higher education retention is a pressing problem that has remained stagnant since the 1960s. This article highlights strategies for conducting research on undergraduate retention done by and with undergraduates themselves. This article’s context is a participatory action research project that encompassed the creation of informative videos, paper resource guides, an innovative app, and a comprehensive video-making training course, all designed to empower students in navigating the complexities of college life effectively. We highlight the importance of prior research methods training for undergraduates and offer methods for seamlessly integrating such training into existing educational structures. To address the sensitivity of student retention issues, we introduce a positive deviancy framework as a valuable perspective. Furthermore, we stress the significance of increased participation during the data analysis phase of participatory research, advocating for hybrid, in-person, and online approaches. The article also reflects on the political and ethical challenges associated with conducting participatory research in higher education, drawing insights from existing literature and our own experiences.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140778780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The RESPCCT Study: Community-led Development of a Person-Centered Instrument to Measure Health Equity in Perinatal Services RESPCCT 研究：由社区主导开发以人为本的工具，用于衡量围产期服务中的健康公平性

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.94399

S. Vedam, Kathrin Stoll, Lesley Tarasoff, Wanda Phillips-Beck, Winnie Lo, Kate MacDonald, Ariane Metellus, Michael Rost, Muriel Scott, Karen Hodge, Mo Korchinski, Marit van der Pijl, Cristina Alonso, Esther Clark, Ali Tatum, Rachel Olson, Kathy Xie, Mary Decker, Karolina Wenzel, Alexandra Roine, Wendy Hall

{"title":"The RESPCCT Study: Community-led Development of a Person-Centered Instrument to Measure Health Equity in Perinatal Services","authors":"S. Vedam, Kathrin Stoll, Lesley Tarasoff, Wanda Phillips-Beck, Winnie Lo, Kate MacDonald, Ariane Metellus, Michael Rost, Muriel Scott, Karen Hodge, Mo Korchinski, Marit van der Pijl, Cristina Alonso, Esther Clark, Ali Tatum, Rachel Olson, Kathy Xie, Mary Decker, Karolina Wenzel, Alexandra Roine, Wendy Hall","doi":"10.35844/001c.94399","DOIUrl":"https://doi.org/10.35844/001c.94399","url":null,"abstract":"While Canadian maternal mortality rates suggest widespread access to high-quality care, perinatal health care outcomes and care experiences among pregnant people in Canada vary widely, particularly among communities that have been historically oppressed, excluded, and marginalized. The lack of patient-oriented research and measurement in perinatal services led to the RESPCCT (Research Examining the Stories of Pregnancy and Childbirth in Canada Today) Study which used a community participatory action research (CPAR) approach to examine experiences of pregnancy and childbirth care. In this paper, we describe co-creation of a person-centered survey instrument that measures respect, disrespect and mistreatment during pregnancy-related care of individuals with diverse identities, backgrounds and circumstances. The study was co-led by a Community Steering Council alongside a multi-disciplinary group of researchers and clinicians, and pilot tested by service users from across Canada. The final survey instrument includes items that assess respectful care across 17 domains, including validated measures of autonomy, respect, mistreatment, trauma, and discrimination. It also captures information about respondents’ identities, backgrounds, circumstances, access to care, provider type, and outcomes. A total of 6096 individuals participated in the survey. We describe how we implemented CPAR best practices, strengths, challenges, and lessons learned for instrument development in reproductive justice research.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140764056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Amplifying Youth Voices Using Digital Technology: A Case Study in Collaborative Research With Youth Service Organizations 利用数字技术放大青年的声音：与青年服务组织合作研究的案例研究

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.92282

Rachel M. Magee, Amy M. Leman, Gowri Balasubramaniam

{"title":"Amplifying Youth Voices Using Digital Technology: A Case Study in Collaborative Research With Youth Service Organizations","authors":"Rachel M. Magee, Amy M. Leman, Gowri Balasubramaniam","doi":"10.35844/001c.92282","DOIUrl":"https://doi.org/10.35844/001c.92282","url":null,"abstract":"This paper presents three participatory methods informed by design techniques for engaging youth and youth services providers in research activities online. We detail two data collection methods: 1) a priming activity completed before a focus group to prompt reflection before direct interaction with the research team; and 2) a focus group activity imagining future organizational goals. We also share our technique for collaboratively analyzing preliminary research findings with a focus group activity. We developed these methods as a part of a larger research project examining how teens and those who provide services to teens through community programs conceptualized success in their experiences, sense of community, and program implementation. This paper discusses work with five organizations in a mid-size community in the midwestern United States during the COVID-19 pandemic (July 2021–February 2022). We aimed to amplify the voices and perspectives of teens in both research and the organizations they engaged in, bringing their participation to our data collection and analysis and to the adults and decision-makers of community organizations. We wanted to understand how youth or teens, defined as 13–19 years old, describe successful experiences in these out-of-school settings, how adults define success, and to identify connections and differences between these two perspectives. This paper details the techniques we developed and tested, shares examples from our research, and discusses the impacts and implications of these methods for future participatory work. We contribute evidence for the value of drawing on design methods for participatory methods, articulate benefits and considerations for intentionally doing so online, and share techniques that emphasize voice in both research and organizational partners’ program development and management.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140766883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Splicing the SEED and Delphi Methods: A Tutorial for Conducting Patient-Centered, Engagement Quality Improvement Projects SEED 和德尔菲方法的拼接：开展以患者为中心的参与式质量改进项目教程

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.94264

Lisa B. Carey, R. Northrup, Lisa A. Jacobson, Clifton P. Thornton, K. Ruble, E. Paré-Blagoev

引用次数: 0

Quick, but Not Dirty: The Usefulness of Flash Mob Studies as a Method for Action Research in eHealth 快而不脏：快闪研究作为电子健康行动研究方法的实用性

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.92284

Kira Oberschmidt, C. Grünloh, S. Jansen-Kosterink, Monique Tabak

{"title":"Quick, but Not Dirty: The Usefulness of Flash Mob Studies as a Method for Action Research in eHealth","authors":"Kira Oberschmidt, C. Grünloh, S. Jansen-Kosterink, Monique Tabak","doi":"10.35844/001c.92284","DOIUrl":"https://doi.org/10.35844/001c.92284","url":null,"abstract":"Action research (AR) is a participatory research approach that works in iterative cycles that are conducted in practice. However, some cycles of AR can take a long time, slowing down the speed of iterations. Therefore, in this study we investigate the use of a relatively new method for AR: the flash mob. Flash mob studies lend themselves to spontaneous, unplanned participation, by collecting large amounts of data in a short time, while also analyzing and reporting quickly on findings. To investigate the applicability of the flash mob as a method for AR in eHealth projects, we conducted three flash mob studies in two research projects and drew recommendations based on observations, reflections and short pre- and post-surveys. Outcomes show that the flash mob is a potential method for AR, as it is situated in a practical setting where stakeholders can easily be involved, and its pace could speed up the AR cycles. To further improve the applicability for AR, our main recommendations include: promoting the flash mob adequately to increase participation and improve the involvement of ‘champions’; tracking interactions outside the flash mob (e.g., comments and questions from bystanders); and choosing an accessible and visible location, taking into account the activities associated with the location.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140795364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

“‘Keep the Fire Burning’: Applications and Culturally Congruent Research Strategies for Research on Sexual and Reproductive Health With Indigenous Women” "'让火焰继续燃烧'：土著妇女性健康和生殖健康研究的应用与文化一致性研究策略"

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.94023

J. Liddell, C. McKinley, Amy Stiffarm

{"title":"“‘Keep the Fire Burning’: Applications and Culturally Congruent Research Strategies for Research on Sexual and Reproductive Health With Indigenous Women”","authors":"J. Liddell, C. McKinley, Amy Stiffarm","doi":"10.35844/001c.94023","DOIUrl":"https://doi.org/10.35844/001c.94023","url":null,"abstract":"Because of the long history of exploitative research with Indigenous groups, an ethical and empirical imperative exists for researchers, especially non-Indigenous scholars, to reflect on their own positionality and to use culturally congruent methodologies and strategies when conducting research. A simultaneous need is for research on the reproductive and sexual health experiences of Indigenous women, who experience extensive reproductive health disparities and reproductive injustices. The purpose of this article is to provide an example of a best practice in conducting community engaged research to explore the reproductive and sexual healthcare experiences of Indigenous women, through the identification of factors that promote and that act as barriers to health. We first provide an overview of the literature describing the history of researcher exploitation before providing an in-depth discussion of the methodology used in this study. We then describe an application of the qualitative description methodology in 31 semi-structured life-history interviews with Indigenous women. The strategies used in this study facilitated the provision of rich qualitative information about reproductive health, which will be used to develop interventions for tribal members. This study addresses gaps by providing an example of a culturally appropriate methodology and its application with Indigenous women.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140792185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Value of Student Voice and Choice: A Guide for Trauma-Informed Participatory Action Research in the University Setting 学生声音和选择的价值：在大学环境中开展以创伤为基础的参与式行动研究指南

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.94139

Stephanie Hargrove, Stephanie Schuette, Noga Zerubavel, Jan Holton, Warren Kinghorn

{"title":"The Value of Student Voice and Choice: A Guide for Trauma-Informed Participatory Action Research in the University Setting","authors":"Stephanie Hargrove, Stephanie Schuette, Noga Zerubavel, Jan Holton, Warren Kinghorn","doi":"10.35844/001c.94139","DOIUrl":"https://doi.org/10.35844/001c.94139","url":null,"abstract":"Many college and university students live with the effects of trauma, and more research is needed around trauma-informed practices in higher education. It is important that this research represents the needs and interests of students and that it be conducted in a way that is appropriate and safe for trauma survivors. We describe the process of forming a vertically integrated, interdisciplinary Participatory Action Research (PAR) team of students and faculty dedicated to creating a trauma-informed learning environment on a university campus and argue that PAR and Trauma-Informed Care (TIC) practices provide important and complementary frameworks for inclusive, just, and community-responsive research. We describe how this research team embodied core PAR values of collaboration, incorporation of local knowledge, eclecticism and diversity, case orientation, emergent process, and linking scientific understanding to social action, along with the TIC commitments of trauma awareness, safety, choice and empowerment, and strengths-based orientation. We describe lessons learned by the team and provide recommendations for researchers who seek to incorporate both PAR and TIC principles into their work on trauma and education. Central lessons learned from this process highlighted the importance of 1) establishing and maintaining psychological safety, 2) speaking openly about trauma, and 3) privileging responsiveness to the difficulty of working with trauma while living through ongoing global stressors. Specific recommendations include 1) lead with values, 2) acknowledge and attend to context, 3) recognize that defining trauma is controversial, 4) model courageous conversations, 5) emphasize responsiveness and care, and 6) teach strategies for managing painful emotions.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140772444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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The Equity-Centered Participatory Compensation Model (EPCM): A Tutorial for This Emergent Methodology 以公平为中心的参与式薪酬模式 (EPCM)：这一新兴方法的教程

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.92362

Maya Rabinowitz, Isabelle González, Rhianna C. Rogers

{"title":"The Equity-Centered Participatory Compensation Model (EPCM): A Tutorial for This Emergent Methodology","authors":"Maya Rabinowitz, Isabelle González, Rhianna C. Rogers","doi":"10.35844/001c.92362","DOIUrl":"https://doi.org/10.35844/001c.92362","url":null,"abstract":"A key component of equity-focused research is centering marginalized voices throughout the entire research process. To fully integrate community voice, fair and flexible compensation for community members’ participation is required. Relying on equity and community-based participatory research principles, the Equity-Centered Participatory Compensation Model (EPCM) offers one method to ensure that compensation rates prioritize the well-being, comfort, and agency of research participants. This tutorial provides instructions for the implementation of a 4-step process through which researchers can shape their compensation practices to match the individual needs of their participants. We provide examples from our own project regarding how we mapped the compensation model to our research activities and include a rubric of best practices for applying equity principles to compensation rates. We conclude with suggestions for navigating institutional restrictions when implementing this new methodology. We intend for this model to serve as a methodological framework for future researchers to help promote equitable fiscal relationships with community participants.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140764526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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Program Evaluation and Improvement by a Homeless Community Using a Human Centered Design Approach 无家可归者社区采用以人为本的设计方法进行项目评估和改进

Journal of participatory research methods Pub Date : 2024-04-01 DOI: 10.35844/001c.92256

Conner Olson, Stuart W. Grande, William Toran, William Walsh

{"title":"Program Evaluation and Improvement by a Homeless Community Using a Human Centered Design Approach","authors":"Conner Olson, Stuart W. Grande, William Toran, William Walsh","doi":"10.35844/001c.92256","DOIUrl":"https://doi.org/10.35844/001c.92256","url":null,"abstract":"People experiencing homelessness are often absent from the development and implementation of new housing projects. As mounting evidence demonstrates the link between health and housing, it seems ineffective to design solutions without the participation and insight of those who are chronically unhoused. This study describes a method for program and product evaluation that people with lived experience of homelessness can use to determine the value of new offerings and then design improvements based on their evaluation. Specifically, this article reports the experience of evaluating a handbook describing the operations of a new type of housing for people experiencing homelessness. The research team, which included people with lived experience of homelessness, performed interviews to evaluate plans in the handbook, analyzed those results, and designed improvements in the operations of the housing based on the program evaluation. The team utilized participatory analysis of the interview data and then used a Human-Centered Design approach to generate ideas based on the analysis and develop concepts to improve the operational plan. The evaluation identified four high-priority problems with the operational plan and the group then designed three unique solutions to address those problems. This project demonstrates that people with lived experience of homelessness can participate as equal partners in the evaluation of a program and the subsequent program improvement design that was based on their evaluations.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140757135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

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