Journal of participatory research methods最新文献

{"title":"Book Review: Ethical Practice in Participatory Visual Research With Girls: Transnational Approaches (Vol. 2)","authors":"Nicole Brown","doi":"10.35844/001c.25444","DOIUrl":"https://doi.org/10.35844/001c.25444","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47512889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Conducting Member Checks With Multilingual Research Participants From Diverse Backgrounds","authors":"Gabriela López-Zerón, M. I. Bilbao-Nieva, Kathryn A. V. Clements","doi":"10.35844/001c.24412","DOIUrl":"https://doi.org/10.35844/001c.24412","url":null,"abstract":"The veracity of qualitative research is typically measured according to well-established principles of trustworthiness. Adhering to these principles demonstrates that findings are the result of a rigorous methodology and that findings accurately describe the experiences of participants. Member checking is one strategy often utilized to ensure the credibility of the findings, while also generating a valuable opportunity for research participants to actively participate in the analytic process. However, there is limited guidance as to how to conduct member checks that are culturally and contextually relevant to all research participants, particularly if data has been collected in multiple languages with diverse participants. In these instances, researchers must remain vigilant to avoid excluding the voices of participants or designing member checks that might not be culturally and contextually responsive. This article describes a technique --- utilizing “I-poems” --- as an innovative way to conduct the member checking process with a diverse group of survivors of intimate partner violence who participated in a longitudinal evaluation of the services they received. This inclusive and innovative member checking process was found to be a culturally relevant way to maximize participation, minimize power imbalances, and invite research participants to become active partners in the analytic process.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41543595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Second-Person Arts-Based Action Research for Group Reflection","authors":"Victoria L. Dickman-Burnett, Trinity V. Shaya, Isabelle R. Zalat","doi":"10.35844/001C.25618","DOIUrl":"https://doi.org/10.35844/001C.25618","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70049711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research.","authors":"Jacqueline N Casillas,&nbsp;Patricia A Ganz,&nbsp;Katherine Kahn,&nbsp;Margaret Stuber,&nbsp;Roshan Bastani,&nbsp;Lindsay F Schwartz,&nbsp;Sonia Morales,&nbsp;Joshua Macadangdang,&nbsp;Emma K Lidington,&nbsp;Karla Quintana,&nbsp;Amri Gonzalez,&nbsp;Esther Casas,&nbsp;Elvia Barboa","doi":"10.35844/001c.29534","DOIUrl":"https://doi.org/10.35844/001c.29534","url":null,"abstract":"<p><strong>Background: </strong>Minority adolescent and young adult (AYA) cancer survivors experience disparities in receipt of survivorship care.</p><p><strong>Objective: </strong>This study describes the infrastructure of a community-partnered participatory research (CPPR) project between a community-based organization and a National Cancer Institute (NCI)-designated cancer center to develop culturally-tailored interventions to improve Latino AYA cancer survivor knowledge regarding their need for survivorship care.</p><p><strong>Methods: </strong>Research team participants included the community organization and NCI cancer center directors, a research coordinator, a community liaison, and cross-training program interns. Through use of Jones's theoretical framework, additional stakeholders from academic and community settings were identified and invited to participate in the research team. A process evaluation and qualitative interviews were conducted to assess equal partnership between community and academic stakeholders and determine if the infrastructure followed the five core principles of CPPR. A grounded theory approach was used to analyze qualitative data.</p><p><strong>Conclusions: </strong>CPPR between an NCI-designated cancer center and a community-based organization is a new research model for conducting minority AYA cancer survivor outreach. Open communication was critical in engaging the Latino community to discuss their survivorship needs. Community stakeholders were key to infrastructure success through fostering a cohesive partnership with and acting as the voice of the Latino community. Implementing a cross-training program promoted continued engagement of community members with academic partners. Proper infrastructure development is critical to building successful research partnerships in order to develop culturally-tailored interventions to improve survivorship care knowledge.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"2 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10237623/pdf/nihms-1902446.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9636822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Blending Participatory Action Synthesis and Meta-ethnography: An Innovative Approach to Evaluating Complex Community Health Transformation","authors":"Kris M. Reed, Tara Carr, Rumana Rabbani, Caroline E. Chandler, J. Scaccia, B. Cook, P. Howard, R. Ramaswamy","doi":"10.21203/rs.3.rs-99033/v1","DOIUrl":"https://doi.org/10.21203/rs.3.rs-99033/v1","url":null,"abstract":"\u0000 Background: Community health improvement processes are diverse and complex, and evaluation methods to gain generalizable knowledge across community are limited by available data, and the need for deep contextual knowledge. Methods: This article describes an innovative participatory approach to evaluation of a community transformation initiative involving up to eighteen communication nationwide. The approach blends two qualitative research synthesis methods: participatory action synthesis and meta-ethnography and applies them to the pragmatic evaluation of a program in real-life settings. Results: In this article, we present the justification for and details about the evaluation process. Four cycles of synthesis and engagement resulted in development of concepts to describe community actions for transformation.Conclusion: The approach presented here will be useful to both researchers and practitioners interested in evaluating community-based health and well-being initiatives and other complex interventions conducted in complex settings.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42361319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engaging Church Leaders in a Health Needs Assessment Process to Design a Multilevel Health Promotion Intervention in Low-resource Rural Jamaican Faith Communities","authors":"J. Berkley-Patton, C. B. Thompson, Sheila Lister, Winston Hudson, George Hudson, Elpagnier Hudson","doi":"10.35844/001c.13286","DOIUrl":"https://doi.org/10.35844/001c.13286","url":null,"abstract":"Diabetes and cardiovascular diseases (CVD) are major Jamaican public health issues. Churches may be untapped settings to extend reach and impact of diabetes and CVD prevention programs, particularly in low-resourced, rural Jamaican areas. We engaged the Jamaican Lifestyles Health Ministry Association Community Action Board in designing and conducting a health needs assessment (HNA) process to identify health conditions, priority health concerns, and potentially relevant intervention strategies to address concerns with their church-community members in rural areas. Findings from the HNA process (survey and community forum) were used by faith leaders to guide the design of a culturally-religiously tailored, multilevel diabetes/CVD risk reduction intervention, Project Faith Influencing Transformation (FIT)-Jamaica (JA). Use of HNA and collaborative intervention design processes were key to successfully completing the design of a faith-based health promotion intervention in JA churches in a timely manner.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48006239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Creating and Applying the Coalition Vitality Assessment Tool: A Brief Report","authors":"M. B. Goldstein, Dawn Grodzki, Lisa Mason, J. Daviau, Stephanie Moran, M. Sienna, Bonnie Weyland Smith, Christine Miskell, Nina Chanana","doi":"10.35844/001c.13197","DOIUrl":"https://doi.org/10.35844/001c.13197","url":null,"abstract":"This report describes the efforts of a technical assistance organization to build coalition capacity among 20 substance use prevention coalitions using a tool developed via eight principles of participatory research methods. Preliminary application of the self-assessment measure and feedback from coalitions suggests its value in strengthening coalition functioning.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42336211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Research Methods – Choice Points in the Research Process","authors":"L. Vaughn, F. Jacquez","doi":"10.35844/001c.13244","DOIUrl":"https://doi.org/10.35844/001c.13244","url":null,"abstract":"Participatory research (PR) encompasses research designs, methods, and frameworks that use systematic inquiry in direct collaboration with those affected by an issue being studied for the purpose of action or change. PR engages those who are not necessarily trained in research but belong to or represent the interests of the people who are the focus of the research. Researchers utilizing a PR approach often choose research methods and tools that can be conducted in a participatory, democratic manner that values genuine and meaningful participation in the research process. This article serves as an introduction to participatory research methods, including an overview of participatory research, terminology across disciplines, elements that make a research method participatory, and a model detailing the choice points that require decisions about which tools and methods will produce the desired level of participation at each stage of the research process. Intentional choices of participatory research methods, tools, and processes can help researchers to more meaningfully engage stakeholders and communities in research, which in turn has the potential to create relevant, meaningful research findings translated to action.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46297538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Action Planning to Address the Opioid Crisis in a Rural Virginia Community Using the SEED Method","authors":"E. Zimmerman, C. Rafie, Dawn E Moser, Angelina J Hargrove, Toni Noe, Courtnaye Adams Mills","doi":"10.35844/001c.13182","DOIUrl":"https://doi.org/10.35844/001c.13182","url":null,"abstract":"The SEED Method is a multi-stakeholder approach that was created to involve diverse stakeholders in the development and prioritization of research questions using community-based participatory research (CBPR) principles. Here we describe an adaptation of the SEED Method that focuses on developing and prioritizing strategies for addressing a health problem and bringing stakeholders together to develop and implement community action plans based on those strategies. We describe steps for implementing the SEED Method for community action planning and the results of a case study in a rural Virginia community with high opioid prescription and mortality rates. A participatory research team worked with three groups of Topic stakeholders to gather data, develop conceptual models, and create and prioritize strategies for reducing prescription and non-prescription opioid misuse and overdoses. Each group came up with 19 to 25 strategies and prioritized their top five, which included actions, services or programs, strategies, policies, and system changes. Attendees at community action planning meetings reviewed the 15 prioritized strategies, proposed three additional strategies, and prioritized their top choices. Community stakeholders started four work groups to implement the selected strategies in collaboration with the research team.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48420451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Commentary on Community-Based Participatory Research and Community Engaged Research in Health for Journal of Participatory Research Methods","authors":"N. Wallerstein","doi":"10.35844/001c.13274","DOIUrl":"https://doi.org/10.35844/001c.13274","url":null,"abstract":"Launching a new journal on participatory research methods provides a wonderful opportunity to both acknowledge and deepen contributions to the vibrant fields of community-based participatory research (CBPR) and community-engaged research (CEnR) in the health fields. Many other disciplines, such as education, sociology, community and regional planning, communication, etc., share overlapping terms with similar commitments to shared power in research, including participatory action research, action research, participatory research, youth participatory action research, public involvement, practitioner research, collaborative research, citizen science, street science, and, a newer term in health, participatory health research, from the International Collaborative of Participatory Health Research. Within health, CBPR has been the most well-recognized form of community-engaged research for over thirty years (Wallerstein et al., 2018). Since 1998, it has operated with principles well-defined by Israel et al. (2013), and a widelydistributed definition launched in 2001 by the W.K. Kellogg Foundation. The principles and definition ground research practitioners in long-term commitments to co-develop research with community partners, and to build from community strengths and priorities for the purposes of translating research results into policy, practice, or system-change actions towards improving health and health equity. Minkler et al. (2012) added the principles of cultural humility and importance of addressing racism, sexism, homophobia, and other inequities of power hierarchies within academiccommunity partnerships and in society. While CBPR has often been seen as calling for involvement of grassroots people from communities, neighborhood associations, or social movements, community partners in CBPR can extend to other stakeholders, such as staff from community-based organizations, public agencies or private-sector settings, and policy makers.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46024317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}