A. Hansen, Ida Foxvig, Gül Sakal, C. D. Klinker, Anne Sidenius
{"title":"Brief Report: Pitfalls and Potentials in Using Methods From Action Research and Systems Thinking When Engaging and Mobilizing Participants in a Community","authors":"A. Hansen, Ida Foxvig, Gül Sakal, C. D. Klinker, Anne Sidenius","doi":"10.35844/001c.35636","DOIUrl":"https://doi.org/10.35844/001c.35636","url":null,"abstract":"This brief report discusses our experiences of exploring recruitment challenges in family-focused alcohol treatment and seeking possible solutions to these challenges. We used methods, inspired by Action Research and Systems Thinking, to engage and mobilize participants in two Danish rural municipalities. In the project, local participation from a broad range of stakeholders and a shared understanding of the local context gave rise to increased focus on and awareness of alcohol challenges in the community. We reflect on the importance of assessing whether a community is ready for change; the importance of integrating capacity-building and implementation from the beginning; the importance of engaging a wide range of stakeholders when creating a system map and the importance of recruiting community leaders to workshops, as implementation requires the engagement of persons who have the authority, capacity, and networks to lead systems changes across the community.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48032793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lisa J Martin, Vincent Hill, Curtis Maples, Theresa Baker, Shereen Elshaer, Melinda Butsch Kovacic
{"title":"Shared Purpose: Leveraging a Community-Academic Partnership to Increase Local Environmental Health Awareness via Community Science.","authors":"Lisa J Martin, Vincent Hill, Curtis Maples, Theresa Baker, Shereen Elshaer, Melinda Butsch Kovacic","doi":"10.35844/001c.38475","DOIUrl":"10.35844/001c.38475","url":null,"abstract":"<p><p>Environmental factors can lead to disease and health disparities when the places where people live, learn, work, play and pray are burdened by social inequities. Non-formal programs that explicitly connect local environmental exposures and human health could be of great value to communities at greatest risk. The purpose of this work was to co-create relevant and engaging education with youth and community stakeholders of all ages that more explicitly emphasizes the link between the local environment and community members' health through a hands-on community science experience. Our experiences helped strengthen our community-academic partnership and establish a route to create and tailor informal programming to meet local needs <i>and</i> engage people in community science with academic partners. We generated two distinctly different community science neighborhood audit tools designed to differently engage our community partners and inform community participants of their local environments and its role on their health. Through community meetings, we garnered critical insight from our stakeholders. While neither of the tools and accompanying data collected were deemed to be scientifically generalizable, our ongoing and future work has benefited from important lessons learned from their creation and sharing.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"3 3-themed Special","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983642/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9412134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Stephanie R Duea, Emily B Zimmerman, Lisa M Vaughn, Sónia Dias, Janet Harris
{"title":"A Guide to Selecting Participatory Research Methods Based on Project and Partnership Goals.","authors":"Stephanie R Duea, Emily B Zimmerman, Lisa M Vaughn, Sónia Dias, Janet Harris","doi":"10.35844/001c.32605","DOIUrl":"10.35844/001c.32605","url":null,"abstract":"<p><p>Participatory research engages community stakeholders in the research process, from problem identification and developing the research question, to dissemination of results. There is increasing recognition in the field of health research that community-engaged methods can be used throughout the research process. The volume of guidance for engaging communities and conducting participatory research has grown steadily in the past 40+ years, in many countries and contexts. Further, some institutions now require stakeholder engagement in research as a condition of funding. Interest in collaborating in the research process is also growing among patients and the public. This article provides an overview for selecting participatory research methods based on project and partnerships goals.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9258244/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40479643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katherine LeMasters, Allysha Maragh-Bass, Marie Stoner, Nivedita Bhushan, John Mitchell, Linda Riggins, Alexandra Lightfoot
{"title":"Lessons Learned From Conducting Community-Based Research on HIV Prevention With Youth During COVID-19.","authors":"Katherine LeMasters, Allysha Maragh-Bass, Marie Stoner, Nivedita Bhushan, John Mitchell, Linda Riggins, Alexandra Lightfoot","doi":"10.35844/001c.38385","DOIUrl":"10.35844/001c.38385","url":null,"abstract":"<p><p>Mitigating HIV burden among Black youth requires true community engagement. This brief report identifies challenges, strategies, and lessons learned from transitioning our three-phased, community-engaged HIV prevention project with Black youth to a remote format during COVID-19. The project involved (1) building a community-academic partnership on youth sexual health, (2) participatory youth workshops, and (3) youth surveys and interviews about HIV prevention. Feedback from community-academic partnership, pile sorting themes, and preliminary qualitative analyses guided this report. Challenges included a disruption to in-person engagement while strategies included relying heavily on pre-existing partnerships to recruit youth for interviews. We learned that pre-existing community engagement was essential for completing phase three remotely. More education is needed to support Pre-Exposure Prophylaxis (PrEP) awareness for HIV prevention and there is a need to address structural barriers to healthcare engagement such as community violence and mental illness. Community-engaged HIV research focused on youth can adapt if anchored in community relationships. Future studies must work to more fully center youth's voices and address the structural issues that may inhibit them from engaging in HIV prevention.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"3 3-themed Special","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10035063/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9199494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Shooting for the Stars: Collaborative Design for Space Education","authors":"L. Svedin, Jason M. Trew","doi":"10.35844/001c.29671","DOIUrl":"https://doi.org/10.35844/001c.29671","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43905235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pajau Vangay, Nancy Yang, Shannon L Pergament, Mary Xiong, Bwei Paw, Rodolfo Batres, D. Knights, K. Culhane-Pera
{"title":"Participatory Microbiome Research With Hmong and Karen Communities: Lessons Learned","authors":"Pajau Vangay, Nancy Yang, Shannon L Pergament, Mary Xiong, Bwei Paw, Rodolfo Batres, D. Knights, K. Culhane-Pera","doi":"10.35844/001c.29669","DOIUrl":"https://doi.org/10.35844/001c.29669","url":null,"abstract":"In this brief report, we share lessons learned from the Immigrant Microbiome Project (IMP), a microbiome research study conducted in partnership with the Hmong and Karen communities in Minnesota. Members of the IMP academic-community research team and community advisory board reflected on the community-based participatory research (CBPR) approach used for the IMP project, which informed these lessons learned. The IMP illustrates how microbiome researchers can utilize CBPR, which can improve the validity of research projects, create respectful partnerships, build trust between community members and researchers, and ensure that research results are returned to the community as actions that can improve health.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45539655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
J. Westfall, Linda Zittleman, Maret Felzien, Jodi Summers Holtrop, Tristen Hall, M. Fisher, M. Simpson, Griselda Pena-Jackson, Donald E. Nease, Jr.
{"title":"Appreciative Inquiry and Boot Camp Translation: Combining Methods for Community Health Improvement","authors":"J. Westfall, Linda Zittleman, Maret Felzien, Jodi Summers Holtrop, Tristen Hall, M. Fisher, M. Simpson, Griselda Pena-Jackson, Donald E. Nease, Jr.","doi":"10.35844/001c.29490","DOIUrl":"https://doi.org/10.35844/001c.29490","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49145012","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mina Silberberg, L. Muhlbaier, Elaine Hart-Brothers, Glenda M. Small, A. Bunce, Rupal Patel, Seronda Robinson, S. James
{"title":"Melding Multiple Sources of Knowledge: Using Theory and Experiential Knowledge to Design a Community Health Intervention Study","authors":"Mina Silberberg, L. Muhlbaier, Elaine Hart-Brothers, Glenda M. Small, A. Bunce, Rupal Patel, Seronda Robinson, S. James","doi":"10.35844/001c.29013","DOIUrl":"https://doi.org/10.35844/001c.29013","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41511052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Janet Sucha, E. Roberts, Brandie Buckless, Lisa Richidt, Diana Bigby, Dana Kingfisher
{"title":"Partnering on the Evaluation of the Montana Tribal Tobacco Program: The Story of a Successful State-Tribal Collaboration","authors":"Janet Sucha, E. Roberts, Brandie Buckless, Lisa Richidt, Diana Bigby, Dana Kingfisher","doi":"10.35844/001c.25446","DOIUrl":"https://doi.org/10.35844/001c.25446","url":null,"abstract":"American Indian and Alaska Native (AI/AN) communities have historically been subject to unethical research and evaluation practices imposed upon them by outsiders. Given this history and the often, strained relationships between state and tribal governments, tribes can be hesitant to work with and trust state agencies to conduct research and evaluation in their communities. This paper shares a collaborative process undertaken by the Montana Department of Public Health and Human Services, American Indian Tobacco Prevention Specialists, and James Bell Associates, Inc., to successfully develop and implement a locally meaningful evaluation project. Together, we designed a culturally responsive evaluation study to examine the impact of the Montana Tobacco Use Prevention Program being implemented in tribal and urban Indian communities. We co-authored this paper to ensure the perspectives of all three groups were represented. We share lessons learned and recommendations for state agencies, tribes, and urban Indian organizations seeking to evaluate tribal public health programs.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44515225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Selima N. Jumarali, Nkiru Nnawulezi, Samantha Royson, Caroline A. Lippy, Ashley N. Rivera, Ty Toopet
{"title":"Participatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches","authors":"Selima N. Jumarali, Nkiru Nnawulezi, Samantha Royson, Caroline A. Lippy, Ashley N. Rivera, Ty Toopet","doi":"10.35844/001c.24414","DOIUrl":"https://doi.org/10.35844/001c.24414","url":null,"abstract":"Participatory research methods increase the quality and relevance of a study and are a key element of community practice. However, participatory methods can be difficult to employ at the outset of a research study with vulnerable, hard-to-reach populations. Intimate partner violence survivors are a particularly vulnerable population who are at increased risk of experiencing abuse-related trauma and have distinct safety-related needs. In order to engage survivor populations, researchers can employ survivor-centered, trauma-informed approaches to build trust and develop relationships that facilitate increased engagement in the research process over time. This paper outlines the methods and strategies that academic partners used to establish, increase, and maintain participatory engagement with women who experienced harm by intimate partners. The process began with a community-based, qualitative needs assessment study for survivors whose partners were in a relationship violence intervention program. In addition to responding to specific aims, this study simultaneously helped to create a pool of potential collaborators. Academic partners used member checking to establish trustworthiness of the study findings and introduce the participants to the concepts of participatory engagement. Next, researchers established an advisory group to develop practice recommendations, which ultimately led to academic and community partners co-designing a community-based dissemination project. We discuss successes and tensions inherent in the engagement process, important lessons learned, and provide recommendations for future community practice.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45087086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}