Journal of participatory research methods最新文献

{"title":"Partnering on the Evaluation of the Montana Tribal Tobacco Program: The Story of a Successful State-Tribal Collaboration","authors":"Janet Sucha, E. Roberts, Brandie Buckless, Lisa Richidt, Diana Bigby, Dana Kingfisher","doi":"10.35844/001c.25446","DOIUrl":"https://doi.org/10.35844/001c.25446","url":null,"abstract":"American Indian and Alaska Native (AI/AN) communities have historically been subject to unethical research and evaluation practices imposed upon them by outsiders. Given this history and the often, strained relationships between state and tribal governments, tribes can be hesitant to work with and trust state agencies to conduct research and evaluation in their communities. This paper shares a collaborative process undertaken by the Montana Department of Public Health and Human Services, American Indian Tobacco Prevention Specialists, and James Bell Associates, Inc., to successfully develop and implement a locally meaningful evaluation project. Together, we designed a culturally responsive evaluation study to examine the impact of the Montana Tobacco Use Prevention Program being implemented in tribal and urban Indian communities. We co-authored this paper to ensure the perspectives of all three groups were represented. We share lessons learned and recommendations for state agencies, tribes, and urban Indian organizations seeking to evaluate tribal public health programs.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44515225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches","authors":"Selima N. Jumarali, Nkiru Nnawulezi, Samantha Royson, Caroline A. Lippy, Ashley N. Rivera, Ty Toopet","doi":"10.35844/001c.24414","DOIUrl":"https://doi.org/10.35844/001c.24414","url":null,"abstract":"Participatory research methods increase the quality and relevance of a study and are a key element of community practice. However, participatory methods can be difficult to employ at the outset of a research study with vulnerable, hard-to-reach populations. Intimate partner violence survivors are a particularly vulnerable population who are at increased risk of experiencing abuse-related trauma and have distinct safety-related needs. In order to engage survivor populations, researchers can employ survivor-centered, trauma-informed approaches to build trust and develop relationships that facilitate increased engagement in the research process over time. This paper outlines the methods and strategies that academic partners used to establish, increase, and maintain participatory engagement with women who experienced harm by intimate partners. The process began with a community-based, qualitative needs assessment study for survivors whose partners were in a relationship violence intervention program. In addition to responding to specific aims, this study simultaneously helped to create a pool of potential collaborators. Academic partners used member checking to establish trustworthiness of the study findings and introduce the participants to the concepts of participatory engagement. Next, researchers established an advisory group to develop practice recommendations, which ultimately led to academic and community partners co-designing a community-based dissemination project. We discuss successes and tensions inherent in the engagement process, important lessons learned, and provide recommendations for future community practice.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45087086","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Book Review: Ethical Practice in Participatory Visual Research With Girls: Transnational Approaches (Vol. 2)","authors":"Nicole Brown","doi":"10.35844/001c.25444","DOIUrl":"https://doi.org/10.35844/001c.25444","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47512889","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Conducting Member Checks With Multilingual Research Participants From Diverse Backgrounds","authors":"Gabriela López-Zerón, M. I. Bilbao-Nieva, Kathryn A. V. Clements","doi":"10.35844/001c.24412","DOIUrl":"https://doi.org/10.35844/001c.24412","url":null,"abstract":"The veracity of qualitative research is typically measured according to well-established principles of trustworthiness. Adhering to these principles demonstrates that findings are the result of a rigorous methodology and that findings accurately describe the experiences of participants. Member checking is one strategy often utilized to ensure the credibility of the findings, while also generating a valuable opportunity for research participants to actively participate in the analytic process. However, there is limited guidance as to how to conduct member checks that are culturally and contextually relevant to all research participants, particularly if data has been collected in multiple languages with diverse participants. In these instances, researchers must remain vigilant to avoid excluding the voices of participants or designing member checks that might not be culturally and contextually responsive. This article describes a technique --- utilizing “I-poems” --- as an innovative way to conduct the member checking process with a diverse group of survivors of intimate partner violence who participated in a longitudinal evaluation of the services they received. This inclusive and innovative member checking process was found to be a culturally relevant way to maximize participation, minimize power imbalances, and invite research participants to become active partners in the analytic process.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41543595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Second-Person Arts-Based Action Research for Group Reflection","authors":"Victoria L. Dickman-Burnett, Trinity V. Shaya, Isabelle R. Zalat","doi":"10.35844/001C.25618","DOIUrl":"https://doi.org/10.35844/001C.25618","url":null,"abstract":"","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"70049711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving Cancer Survivorship Care for Latino Adolescent, Young Adult Survivors through Community-Partnered Participatory Research.","authors":"Jacqueline N Casillas,&nbsp;Patricia A Ganz,&nbsp;Katherine Kahn,&nbsp;Margaret Stuber,&nbsp;Roshan Bastani,&nbsp;Lindsay F Schwartz,&nbsp;Sonia Morales,&nbsp;Joshua Macadangdang,&nbsp;Emma K Lidington,&nbsp;Karla Quintana,&nbsp;Amri Gonzalez,&nbsp;Esther Casas,&nbsp;Elvia Barboa","doi":"10.35844/001c.29534","DOIUrl":"https://doi.org/10.35844/001c.29534","url":null,"abstract":"<p><strong>Background: </strong>Minority adolescent and young adult (AYA) cancer survivors experience disparities in receipt of survivorship care.</p><p><strong>Objective: </strong>This study describes the infrastructure of a community-partnered participatory research (CPPR) project between a community-based organization and a National Cancer Institute (NCI)-designated cancer center to develop culturally-tailored interventions to improve Latino AYA cancer survivor knowledge regarding their need for survivorship care.</p><p><strong>Methods: </strong>Research team participants included the community organization and NCI cancer center directors, a research coordinator, a community liaison, and cross-training program interns. Through use of Jones's theoretical framework, additional stakeholders from academic and community settings were identified and invited to participate in the research team. A process evaluation and qualitative interviews were conducted to assess equal partnership between community and academic stakeholders and determine if the infrastructure followed the five core principles of CPPR. A grounded theory approach was used to analyze qualitative data.</p><p><strong>Conclusions: </strong>CPPR between an NCI-designated cancer center and a community-based organization is a new research model for conducting minority AYA cancer survivor outreach. Open communication was critical in engaging the Latino community to discuss their survivorship needs. Community stakeholders were key to infrastructure success through fostering a cohesive partnership with and acting as the voice of the Latino community. Implementing a cross-training program promoted continued engagement of community members with academic partners. Proper infrastructure development is critical to building successful research partnerships in order to develop culturally-tailored interventions to improve survivorship care knowledge.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"2 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10237623/pdf/nihms-1902446.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9636822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Blending Participatory Action Synthesis and Meta-ethnography: An Innovative Approach to Evaluating Complex Community Health Transformation","authors":"Kris M. Reed, Tara Carr, Rumana Rabbani, Caroline E. Chandler, J. Scaccia, B. Cook, P. Howard, R. Ramaswamy","doi":"10.21203/rs.3.rs-99033/v1","DOIUrl":"https://doi.org/10.21203/rs.3.rs-99033/v1","url":null,"abstract":"\u0000 Background: Community health improvement processes are diverse and complex, and evaluation methods to gain generalizable knowledge across community are limited by available data, and the need for deep contextual knowledge. Methods: This article describes an innovative participatory approach to evaluation of a community transformation initiative involving up to eighteen communication nationwide. The approach blends two qualitative research synthesis methods: participatory action synthesis and meta-ethnography and applies them to the pragmatic evaluation of a program in real-life settings. Results: In this article, we present the justification for and details about the evaluation process. Four cycles of synthesis and engagement resulted in development of concepts to describe community actions for transformation.Conclusion: The approach presented here will be useful to both researchers and practitioners interested in evaluating community-based health and well-being initiatives and other complex interventions conducted in complex settings.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42361319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engaging Church Leaders in a Health Needs Assessment Process to Design a Multilevel Health Promotion Intervention in Low-resource Rural Jamaican Faith Communities","authors":"J. Berkley-Patton, C. B. Thompson, Sheila Lister, Winston Hudson, George Hudson, Elpagnier Hudson","doi":"10.35844/001c.13286","DOIUrl":"https://doi.org/10.35844/001c.13286","url":null,"abstract":"Diabetes and cardiovascular diseases (CVD) are major Jamaican public health issues. Churches may be untapped settings to extend reach and impact of diabetes and CVD prevention programs, particularly in low-resourced, rural Jamaican areas. We engaged the Jamaican Lifestyles Health Ministry Association Community Action Board in designing and conducting a health needs assessment (HNA) process to identify health conditions, priority health concerns, and potentially relevant intervention strategies to address concerns with their church-community members in rural areas. Findings from the HNA process (survey and community forum) were used by faith leaders to guide the design of a culturally-religiously tailored, multilevel diabetes/CVD risk reduction intervention, Project Faith Influencing Transformation (FIT)-Jamaica (JA). Use of HNA and collaborative intervention design processes were key to successfully completing the design of a faith-based health promotion intervention in JA churches in a timely manner.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48006239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Creating and Applying the Coalition Vitality Assessment Tool: A Brief Report","authors":"M. B. Goldstein, Dawn Grodzki, Lisa Mason, J. Daviau, Stephanie Moran, M. Sienna, Bonnie Weyland Smith, Christine Miskell, Nina Chanana","doi":"10.35844/001c.13197","DOIUrl":"https://doi.org/10.35844/001c.13197","url":null,"abstract":"This report describes the efforts of a technical assistance organization to build coalition capacity among 20 substance use prevention coalitions using a tool developed via eight principles of participatory research methods. Preliminary application of the self-assessment measure and feedback from coalitions suggests its value in strengthening coalition functioning.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42336211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Research Methods – Choice Points in the Research Process","authors":"L. Vaughn, F. Jacquez","doi":"10.35844/001c.13244","DOIUrl":"https://doi.org/10.35844/001c.13244","url":null,"abstract":"Participatory research (PR) encompasses research designs, methods, and frameworks that use systematic inquiry in direct collaboration with those affected by an issue being studied for the purpose of action or change. PR engages those who are not necessarily trained in research but belong to or represent the interests of the people who are the focus of the research. Researchers utilizing a PR approach often choose research methods and tools that can be conducted in a participatory, democratic manner that values genuine and meaningful participation in the research process. This article serves as an introduction to participatory research methods, including an overview of participatory research, terminology across disciplines, elements that make a research method participatory, and a model detailing the choice points that require decisions about which tools and methods will produce the desired level of participation at each stage of the research process. Intentional choices of participatory research methods, tools, and processes can help researchers to more meaningfully engage stakeholders and communities in research, which in turn has the potential to create relevant, meaningful research findings translated to action.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46297538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}