Journal of participatory research methods最新文献

{"title":"Partnering for Progress: Lessons Learned from a Mental Health Assessment for Youth Living with HIV in India through Community-Based Participatory Research.","authors":"Siddhaparna Sannigrahi, Babu Seenappa, Prashant Laxmikanth, Suhas Reddy, Kacie Filian, Michael Babu Raj, Lakshmi Ganapathi, Anita Shet","doi":"10.35844/001c.117611","DOIUrl":"https://doi.org/10.35844/001c.117611","url":null,"abstract":"<p><p>Youth living with HIV (YLHIV) face diverse mental health challenges necessitating interventions informed by their lived experiences. Failure to do so can perpetuate a self-reinforcing cycle of misaligned and ineffective support, further exacerbating existing vulnerabilities. This study directly addresses this gap by using a community-based participatory research (CBPR) approach to empower YLHIV in India to address their mental health challenges. YLHIV actively participated in adapting and implementing a culturally responsive mental health screening program. The study, incorporating CBPR principles at every step aimed to identify practical methods for integrating YLHIV voices in research, and showcase the value of YLHIV participation in co-creating and implementing impactful interventions. Six youth investigators aged 18-24, born with HIV and residing in southern Indian states underwent certification in human subjects' protection and training in mental health screening and survey administration techniques. They actively shaped the research process by culturally adapting standardized mental health screening tools (PHQ-9, GAD-7) through iterative discussions with experts, drawing on their own perspectives. Following field assessments of the mental health screening tools among their peers, they documented their reflections in surveys and written essays. Youth investigators' involvement improved the research process by optimizing tools, combating stigma, and facilitating reliable data collection. Beyond data collection, the youth investigators' participation significantly boosted their own knowledge, self-confidence, and research skills. This study serves as an illustrative model of CBPR in mental health research among YLHIV, highlighting the importance of interactive training, continuous feedback mechanisms, and respectful youth engagement in fostering impactful research that can inform tailored sustainable interventions.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"5 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12064158/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144065315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The NCCB Case Example: Reflections on a Successful Fourteen-Year CBPR Partnership.","authors":"Alexis D Jemal, Ellen Benoit, Shola Thompson, Heather A Jones, Liliane Windsor, Teri Lassiter, Warren Thompson","doi":"10.35844/001c.120896","DOIUrl":"10.35844/001c.120896","url":null,"abstract":"<p><p>The Newark Community Collaborative Board (NCCB) is in its fourteenth year of operation with nine successful research projects and more than six million dollars in funding. The NCCB began with a community needs assessment in Newark, New Jersey, that led to the subsequent establishment of a community collaborative board (CCB) of consumers, researchers, service providers, and residents committed to advocating for health equity through community engagement and research informed by critical thinking. This paper explores the NCCB's history and processes that allowed conducting community-based participatory research (CBPR) to reduce inequities related to social determinants of health (SDH). This conceptual manuscript draws on data from NCCB meeting minutes and a group interview with three of the five founding members. We detail the collaborative process used to develop and assess Community Wise, a multilevel, group-based intervention designed to reduce substance use among formerly incarcerated men in Newark, funded by the National Institutes of Health. Review of documentation and interview transcripts revealed the following key ingredients for success: 1) Having a north star; 2) Functional diversity; 3) Challenges as learning opportunities; 4) Board structure and healthy relationships; and 5) Funding and resources. The NCCB has undergone multiple transformations, including a name change to the New Jersey Critical Consciousness Collaborative Board (NJ-3CB), representing its growth from being a small local board to becoming part of a network of community collaborative boards across the United States and a chapter of the global campaign against racism. These and future transitions will help sustain the collaborative journey.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"5 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11887649/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143588578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Trusted in Being the Experts of Being a Student”: Participatory Evaluation in Higher Education","authors":"Liz Austen, A. Donnelly","doi":"10.35844/001c.75240","DOIUrl":"https://doi.org/10.35844/001c.75240","url":null,"abstract":"This report describes a participatory evaluation of a postgraduate course delivered at the University of Winchester in the UK. The PGCert/MA in Student Engagement in Higher Education utilized sector-leading practices and research to explore student engagement in contemporary higher education. As co-creation, co-design, and staff-student partnerships are integral concepts within student engagement scholarship and practice, a congruent participatory evaluation of the PGCert/MA was conducted. This approach utilized an Advisory Group of current students and graduates to co-construct a Theory of Change, design data-gathering methods, and support the synthesis of findings and associated recommendations. This report provides details of the stages of this evaluation and the participatory activities which were designed and delivered. In addition to providing a robust conclusion on the process, impact, and outcomes of the course, this report discusses the benefits and challenges of participatory evaluation.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48049080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using Participatory Research to Develop a Culturally Responsive Early Childhood Assessment Tool","authors":"Hattie Harvey, Jennifer Pierce, D. Hirshberg","doi":"10.35844/001c.77624","DOIUrl":"https://doi.org/10.35844/001c.77624","url":null,"abstract":"Early childhood educators are uniquely positioned to advance equity by providing culturally-responsive early learning environments and developing respectful and reciprocal relationships with families. Culturally-responsive teaching practices recognize the diverse cultures of children and families as strengths and empower children through cultural values of their family heritage (Gay, 2010). One early childhood program serving Alaska Native and American Indian (AN/AI) children and families identified a need to more systematically support educators’ reflection on their knowledge, skills, and abilities related to cultural programming. This paper aims to describe the process of and lessons learned from using a participatory, community-based research approach to develop a culturally-responsive early childhood assessment tool. Operating from a postmodern/transformative paradigm, we describe the journey of this process with particular attention to shifting power to the community participants and carefully attending to our own reflexivity as three white researchers collaborating with a tribal non-profit organization.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47800898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Research Emergent Recommendations for Researchers and Academic Institutions: A Rapid Scoping Review","authors":"Benjamin Scher, Juliet Scott-Barrett, M. Hickman, B. Chrisinger","doi":"10.35844/001c.74807","DOIUrl":"https://doi.org/10.35844/001c.74807","url":null,"abstract":"In recent years, a range of academic disciplines have emphasized the potential benefits of prioritizing meaningful engagement with individuals and communities who have lived and have living experience with the topics, phenomena and problems researchers seek to study. In March 2022, we were asked to produce a paper to inform a university workshop and training materials to help students and faculty engage with participatory methods. In turn, we conducted a rapid scoping review of reviews to document key recommendations relating to methodology, logistics and ethics within the various modes of participatory research. Searches were conducted in Web of Science, SCOPUS, ProQuest, Pub Med, OVID (including Medline, PschyInfo/EMBASE, APAPsych) to identify published academic reviews (e.g., systematic, scoping, literature reviews and evidence gap maps), for best practices relating to participatory research. This approach drew out aggregated best practices and lessons learned across many primary studies and increased the speed of the review. From 276 studies imported for screening, 43 full-text studies were assessed for eligibility and 28 were deemed relevant for full inclusion. Results are presented as: 1) participatory research recommendations for researchers; and 2) participatory research recommendations for academic institutions. Three sub-themes emerged within the context of suggestions for researchers engaging with participatory methods: 1) early-stage considerations for study design and planning; 2) conducting the research; and 3) dissemination and knowledge exchange. This rapid scoping review highlights key recommendations for researchers interested in using participatory approaches in their own research, and for academic and institutional stakeholders who aim to support these practices.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41889693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Articulating Indigenous Futures: Using Target Seeking Scenario Planning in Support of Inuit-led Fisheries Governance","authors":"R. Cadman, J. Snook, Todd Broomfield, J. Goudie, Ron Johnson, Keith Watts, Aaron T. Dale, Megan Bailey","doi":"10.35844/001c.77450","DOIUrl":"https://doi.org/10.35844/001c.77450","url":null,"abstract":"Futures thinking is an increasingly popular approach to solving complex environmental problems because it offers a framework to consider potential and desirable futures. It is also possible to create highly participatory future planning processes that incorporate the perspectives, beliefs, and values of resource users. In 2019, a group of fisheries stakeholders in Nunatsiavut, an Inuit land claim region in northern Labrador, began a target seeking scenario planning process to help them create a vision for the future of commercial fisheries in the region. Through this process, the group hoped to not only create a vision of Inuit-led fisheries but also to advance communication, collaboration, and learning for the group. In this paper, we reflect on the process we underwent over the past few years, including the research design, data collection and analysis, and the results of the project to broadly consider the strengths and weaknesses of participatory scenario planning for Indigenous governance. Reflecting on the process that we undertook provides important, experience-based knowledge for future projects. The elevation of Inuit voices makes this vision specific to the region and reframes fisheries as a tool for cultural and political rejuvenation in the region.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44363957","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing Social Norms, Health Behavior, and Change Using Visually Informed Participatory Research Tools: Social Network Mapping and 2x2 Tables","authors":"Kathryn Snyder, J. R. HaileSelasse, Girija Kaimal, S. Sood","doi":"10.35844/001c.74809","DOIUrl":"https://doi.org/10.35844/001c.74809","url":null,"abstract":"Participatory research can be used in conjunction with quantitative, other qualitative, and mixed methods research methods to collaboratively address priority global health issues that are greatly influenced by social norms. Social norms have been identified as key components of deeply held beliefs that perpetuate as well as change detrimental health practices. At all levels of global health research, from program development to monitoring and evaluation, participatory tools can be used to honor the ethic of working with the target population, incorporating their needs, and engaging a community to improve health-related behaviors. This paper shows how to use two visually based participatory tools to impact social and behavior change around Female Genital Mutilation (FGM) and Menstrual Hygiene Management (MHM). Both FGM and MHM have been identified as critical to UNICEF’s Child Protection and to meeting the United Nations Global Sustainability Goals. We also outline how Social Network Mapping and 2x2 Tables were implemented to address complex social norms around FMG and MHM. The discussion then illustrates how they have been used within research and program development more broadly. These tools are valuable methods to understand and impact social and behavior change in a wide variety of public health issues.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48615764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Action Research as Pedagogy: Stay Messy","authors":"Julia S. Dancis, B. R. Coleman, Erin Rose Ellison","doi":"10.35844/001c.75174","DOIUrl":"https://doi.org/10.35844/001c.75174","url":null,"abstract":"In this paper, we reflect on the use of Participatory Action Research (PAR) as a pedagogy. To do so, we first introduce PAR and review the burgeoning literature discussing PAR as a pedagogical approach at the university level. We then provide vignettes of our independent experiences as college educators facilitating PAR within undergraduate classrooms. Through our stories, we engage with the messy space between our efforts to change unjust systems and the neoliberal constraints of the academy with a chokehold on those efforts. In this narrative reflection, we examine key themes across our experiences, including: 1) relationship development as a political act; 2) the importance of emergent and responsive pedagogy; and 3) the challenges associated with prefiguring democratic practices in the classroom. Altogether, this paper grapples with the value and risk of bringing PAR into university classrooms and urges PAR educators to refrain from tidying up their pedagogy.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44508140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community-Based Participatory Research: Insights, Challenges, and Successes From the Perspectives of Frontline Recruiters and Investigators","authors":"Nita Vangeepuram, K. Fei, Crispin N. Goytia, Devin Madden, G. Corbie-Smith, C. Horowitz","doi":"10.35844/001c.77399","DOIUrl":"https://doi.org/10.35844/001c.77399","url":null,"abstract":"Employment of community-based participatory research (CBPR) strategies has helped address limitations of traditional research approaches, but we still do not have a full understanding of how study teams successfully conduct research with populations who experience health disparities. To gain insights into the unique successes and challenges of research teams conducting National Institutes of Health (NIH) funded community-engaged research studies, we conducted an online survey with 120 investigators identified through NIH RePORTER and 106 members of the academic study team (research staff) who assisted with recruitment. We examined descriptive statistics and used Chi-square analysis to compare responses between investigators and staff. Most studies targeted low-income, racial/ethnic minority populations and reported high recruitment and retention rates. The most common collaborators were community-based organizations, and the most common study purpose was to evaluate an intervention. There was generally consensus between investigators and staff about effective recruitment and retention strategies, barriers, and facilitators. However, there were also some critical differences, including perceptions about community partner roles and the value of staff input into study design and methods. After the presentation of our key findings, we share best practices for successful recruitment and retention in health disparities research using CBPR approaches.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41492392","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engaging With Children and Young People About Their School Experience: Co-designing a ‘Talking Tree’ Research Tool to Investigate Why School Works for Some Students, but Not Others","authors":"Jenna K. Gillett-Swan, Abigail Winter, A. Radovic","doi":"10.35844/001c.75239","DOIUrl":"https://doi.org/10.35844/001c.75239","url":null,"abstract":"This project sought to co-design a data collection tool with students disenfranchised with mainstream schooling, that could be used to find out from other students why school works for some students but not others. Young people often think about and experience school differently and may have different ideas about what is important to ask and how experiences could be changed. Engaging with those for whom school was not working provides invaluable insight into what they feel matters about the school experience and potential opportunities where trajectories could be changed. Insights from staff supporting these students are also included. This project placed student views and experiences as central to the project and co-developed through student-centred co-design a ‘Talking Tree’ tool that can be used to facilitate complex conversations in a variety of contexts about why school works for some students, but not others.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45941150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}