Journal of participatory research methods最新文献

{"title":"Splicing the SEED and Delphi Methods: A Tutorial for Conducting Patient-Centered, Engagement Quality Improvement Projects","authors":"Lisa B. Carey, R. Northrup, Lisa A. Jacobson, Clifton P. Thornton, K. Ruble, E. Paré-Blagoev","doi":"10.35844/001c.94264","DOIUrl":"https://doi.org/10.35844/001c.94264","url":null,"abstract":"Conducting patient-centered engagement quality improvement projects requires careful consideration of methodologies that will allow a core project team to fully include participants as partners. Engagement activities must ensure that heterogeneous members of the project team are given an equal voice in investigation processes and that potential barriers to meaningful participation are reduced. This tutorial provides a model for intentionally blending elements of the Stakeholder Engagement in quEstion Development and prioritization (SEED) and Delphi methods to maximize participant engagement in a patient-centered quality improvement project to generate research questions related to patient-clinician communication of neurocognitive late effects of childhood cancers.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"88 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140784183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quick, but Not Dirty: The Usefulness of Flash Mob Studies as a Method for Action Research in eHealth","authors":"Kira Oberschmidt, C. Grünloh, S. Jansen-Kosterink, Monique Tabak","doi":"10.35844/001c.92284","DOIUrl":"https://doi.org/10.35844/001c.92284","url":null,"abstract":"Action research (AR) is a participatory research approach that works in iterative cycles that are conducted in practice. However, some cycles of AR can take a long time, slowing down the speed of iterations. Therefore, in this study we investigate the use of a relatively new method for AR: the flash mob. Flash mob studies lend themselves to spontaneous, unplanned participation, by collecting large amounts of data in a short time, while also analyzing and reporting quickly on findings. To investigate the applicability of the flash mob as a method for AR in eHealth projects, we conducted three flash mob studies in two research projects and drew recommendations based on observations, reflections and short pre- and post-surveys. Outcomes show that the flash mob is a potential method for AR, as it is situated in a practical setting where stakeholders can easily be involved, and its pace could speed up the AR cycles. To further improve the applicability for AR, our main recommendations include: promoting the flash mob adequately to increase participation and improve the involvement of ‘champions’; tracking interactions outside the flash mob (e.g., comments and questions from bystanders); and choosing an accessible and visible location, taking into account the activities associated with the location.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"61 27","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140795364","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“‘Keep the Fire Burning’: Applications and Culturally Congruent Research Strategies for Research on Sexual and Reproductive Health With Indigenous Women”","authors":"J. Liddell, C. McKinley, Amy Stiffarm","doi":"10.35844/001c.94023","DOIUrl":"https://doi.org/10.35844/001c.94023","url":null,"abstract":"Because of the long history of exploitative research with Indigenous groups, an ethical and empirical imperative exists for researchers, especially non-Indigenous scholars, to reflect on their own positionality and to use culturally congruent methodologies and strategies when conducting research. A simultaneous need is for research on the reproductive and sexual health experiences of Indigenous women, who experience extensive reproductive health disparities and reproductive injustices. The purpose of this article is to provide an example of a best practice in conducting community engaged research to explore the reproductive and sexual healthcare experiences of Indigenous women, through the identification of factors that promote and that act as barriers to health. We first provide an overview of the literature describing the history of researcher exploitation before providing an in-depth discussion of the methodology used in this study. We then describe an application of the qualitative description methodology in 31 semi-structured life-history interviews with Indigenous women. The strategies used in this study facilitated the provision of rich qualitative information about reproductive health, which will be used to develop interventions for tribal members. This study addresses gaps by providing an example of a culturally appropriate methodology and its application with Indigenous women.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"110 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140792185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Value of Student Voice and Choice: A Guide for Trauma-Informed Participatory Action Research in the University Setting","authors":"Stephanie Hargrove, Stephanie Schuette, Noga Zerubavel, Jan Holton, Warren Kinghorn","doi":"10.35844/001c.94139","DOIUrl":"https://doi.org/10.35844/001c.94139","url":null,"abstract":"Many college and university students live with the effects of trauma, and more research is needed around trauma-informed practices in higher education. It is important that this research represents the needs and interests of students and that it be conducted in a way that is appropriate and safe for trauma survivors. We describe the process of forming a vertically integrated, interdisciplinary Participatory Action Research (PAR) team of students and faculty dedicated to creating a trauma-informed learning environment on a university campus and argue that PAR and Trauma-Informed Care (TIC) practices provide important and complementary frameworks for inclusive, just, and community-responsive research. We describe how this research team embodied core PAR values of collaboration, incorporation of local knowledge, eclecticism and diversity, case orientation, emergent process, and linking scientific understanding to social action, along with the TIC commitments of trauma awareness, safety, choice and empowerment, and strengths-based orientation. We describe lessons learned by the team and provide recommendations for researchers who seek to incorporate both PAR and TIC principles into their work on trauma and education. Central lessons learned from this process highlighted the importance of 1) establishing and maintaining psychological safety, 2) speaking openly about trauma, and 3) privileging responsiveness to the difficulty of working with trauma while living through ongoing global stressors. Specific recommendations include 1) lead with values, 2) acknowledge and attend to context, 3) recognize that defining trauma is controversial, 4) model courageous conversations, 5) emphasize responsiveness and care, and 6) teach strategies for managing painful emotions.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"163 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140772444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Equity-Centered Participatory Compensation Model (EPCM): A Tutorial for This Emergent Methodology","authors":"Maya Rabinowitz, Isabelle González, Rhianna C. Rogers","doi":"10.35844/001c.92362","DOIUrl":"https://doi.org/10.35844/001c.92362","url":null,"abstract":"A key component of equity-focused research is centering marginalized voices throughout the entire research process. To fully integrate community voice, fair and flexible compensation for community members’ participation is required. Relying on equity and community-based participatory research principles, the Equity-Centered Participatory Compensation Model (EPCM) offers one method to ensure that compensation rates prioritize the well-being, comfort, and agency of research participants. This tutorial provides instructions for the implementation of a 4-step process through which researchers can shape their compensation practices to match the individual needs of their participants. We provide examples from our own project regarding how we mapped the compensation model to our research activities and include a rubric of best practices for applying equity principles to compensation rates. We conclude with suggestions for navigating institutional restrictions when implementing this new methodology. We intend for this model to serve as a methodological framework for future researchers to help promote equitable fiscal relationships with community participants.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"170 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140764526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Program Evaluation and Improvement by a Homeless Community Using a Human Centered Design Approach","authors":"Conner Olson, Stuart W. Grande, William Toran, William Walsh","doi":"10.35844/001c.92256","DOIUrl":"https://doi.org/10.35844/001c.92256","url":null,"abstract":"People experiencing homelessness are often absent from the development and implementation of new housing projects. As mounting evidence demonstrates the link between health and housing, it seems ineffective to design solutions without the participation and insight of those who are chronically unhoused. This study describes a method for program and product evaluation that people with lived experience of homelessness can use to determine the value of new offerings and then design improvements based on their evaluation. Specifically, this article reports the experience of evaluating a handbook describing the operations of a new type of housing for people experiencing homelessness. The research team, which included people with lived experience of homelessness, performed interviews to evaluate plans in the handbook, analyzed those results, and designed improvements in the operations of the housing based on the program evaluation. The team utilized participatory analysis of the interview data and then used a Human-Centered Design approach to generate ideas based on the analysis and develop concepts to improve the operational plan. The evaluation identified four high-priority problems with the operational plan and the group then designed three unique solutions to address those problems. This project demonstrates that people with lived experience of homelessness can participate as equal partners in the evaluation of a program and the subsequent program improvement design that was based on their evaluations.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"179 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140757135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Partnering for Progress: Lessons Learned from a Mental Health Assessment for Youth Living with HIV in India through Community-Based Participatory Research.","authors":"Siddhaparna Sannigrahi, Babu Seenappa, Prashant Laxmikanth, Suhas Reddy, Kacie Filian, Michael Babu Raj, Lakshmi Ganapathi, Anita Shet","doi":"10.35844/001c.117611","DOIUrl":"10.35844/001c.117611","url":null,"abstract":"<p><p>Youth living with HIV (YLHIV) face diverse mental health challenges necessitating interventions informed by their lived experiences. Failure to do so can perpetuate a self-reinforcing cycle of misaligned and ineffective support, further exacerbating existing vulnerabilities. This study directly addresses this gap by using a community-based participatory research (CBPR) approach to empower YLHIV in India to address their mental health challenges. YLHIV actively participated in adapting and implementing a culturally responsive mental health screening program. The study, incorporating CBPR principles at every step aimed to identify practical methods for integrating YLHIV voices in research, and showcase the value of YLHIV participation in co-creating and implementing impactful interventions. Six youth investigators aged 18-24, born with HIV and residing in southern Indian states underwent certification in human subjects' protection and training in mental health screening and survey administration techniques. They actively shaped the research process by culturally adapting standardized mental health screening tools (PHQ-9, GAD-7) through iterative discussions with experts, drawing on their own perspectives. Following field assessments of the mental health screening tools among their peers, they documented their reflections in surveys and written essays. Youth investigators' involvement improved the research process by optimizing tools, combating stigma, and facilitating reliable data collection. Beyond data collection, the youth investigators' participation significantly boosted their own knowledge, self-confidence, and research skills. This study serves as an illustrative model of CBPR in mental health research among YLHIV, highlighting the importance of interactive training, continuous feedback mechanisms, and respectful youth engagement in fostering impactful research that can inform tailored sustainable interventions.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"5 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12064158/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144065315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The NCCB Case Example: Reflections on a Successful Fourteen-Year CBPR Partnership.","authors":"Alexis D Jemal, Ellen Benoit, Shola Thompson, Heather A Jones, Liliane Windsor, Teri Lassiter, Warren Thompson","doi":"10.35844/001c.120896","DOIUrl":"10.35844/001c.120896","url":null,"abstract":"<p><p>The Newark Community Collaborative Board (NCCB) is in its fourteenth year of operation with nine successful research projects and more than six million dollars in funding. The NCCB began with a community needs assessment in Newark, New Jersey, that led to the subsequent establishment of a community collaborative board (CCB) of consumers, researchers, service providers, and residents committed to advocating for health equity through community engagement and research informed by critical thinking. This paper explores the NCCB's history and processes that allowed conducting community-based participatory research (CBPR) to reduce inequities related to social determinants of health (SDH). This conceptual manuscript draws on data from NCCB meeting minutes and a group interview with three of the five founding members. We detail the collaborative process used to develop and assess Community Wise, a multilevel, group-based intervention designed to reduce substance use among formerly incarcerated men in Newark, funded by the National Institutes of Health. Review of documentation and interview transcripts revealed the following key ingredients for success: 1) Having a north star; 2) Functional diversity; 3) Challenges as learning opportunities; 4) Board structure and healthy relationships; and 5) Funding and resources. The NCCB has undergone multiple transformations, including a name change to the New Jersey Critical Consciousness Collaborative Board (NJ-3CB), representing its growth from being a small local board to becoming part of a network of community collaborative boards across the United States and a chapter of the global campaign against racism. These and future transitions will help sustain the collaborative journey.</p>","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":"5 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11887649/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143588578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“Trusted in Being the Experts of Being a Student”: Participatory Evaluation in Higher Education","authors":"Liz Austen, A. Donnelly","doi":"10.35844/001c.75240","DOIUrl":"https://doi.org/10.35844/001c.75240","url":null,"abstract":"This report describes a participatory evaluation of a postgraduate course delivered at the University of Winchester in the UK. The PGCert/MA in Student Engagement in Higher Education utilized sector-leading practices and research to explore student engagement in contemporary higher education. As co-creation, co-design, and staff-student partnerships are integral concepts within student engagement scholarship and practice, a congruent participatory evaluation of the PGCert/MA was conducted. This approach utilized an Advisory Group of current students and graduates to co-construct a Theory of Change, design data-gathering methods, and support the synthesis of findings and associated recommendations. This report provides details of the stages of this evaluation and the participatory activities which were designed and delivered. In addition to providing a robust conclusion on the process, impact, and outcomes of the course, this report discusses the benefits and challenges of participatory evaluation.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48049080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using Participatory Research to Develop a Culturally Responsive Early Childhood Assessment Tool","authors":"Hattie Harvey, Jennifer Pierce, D. Hirshberg","doi":"10.35844/001c.77624","DOIUrl":"https://doi.org/10.35844/001c.77624","url":null,"abstract":"Early childhood educators are uniquely positioned to advance equity by providing culturally-responsive early learning environments and developing respectful and reciprocal relationships with families. Culturally-responsive teaching practices recognize the diverse cultures of children and families as strengths and empower children through cultural values of their family heritage (Gay, 2010). One early childhood program serving Alaska Native and American Indian (AN/AI) children and families identified a need to more systematically support educators’ reflection on their knowledge, skills, and abilities related to cultural programming. This paper aims to describe the process of and lessons learned from using a participatory, community-based research approach to develop a culturally-responsive early childhood assessment tool. Operating from a postmodern/transformative paradigm, we describe the journey of this process with particular attention to shifting power to the community participants and carefully attending to our own reflexivity as three white researchers collaborating with a tribal non-profit organization.","PeriodicalId":73887,"journal":{"name":"Journal of participatory research methods","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47800898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}