Lenka Kožejová Jaklová, Karolina Kočandrlová, Ján Dupej, Jiří Borský, Miloš Černý, Jana Velemínská
{"title":"Morphometric Assessment of Facial Morphology in Infants with Orofacial Clefts up to two Years of Age: A Three-Dimensional Cross-Sectional Study.","authors":"Lenka Kožejová Jaklová, Karolina Kočandrlová, Ján Dupej, Jiří Borský, Miloš Černý, Jana Velemínská","doi":"10.1177/10556656231163970","DOIUrl":"10.1177/10556656231163970","url":null,"abstract":"<p><strong>Objective: </strong>To assess modelled facial development of infants with unilateral cleft lip (CL) and cleft lip and palate (UCLP) compared to controls up to two years of age.</p><p><strong>Design and participants: </strong>A total of 209 facial images of children (CL: n = 37; UCLP: n = 39; controls: n = 137) were obtained in four age categories (T0 = 0.2-0.5; T1 = 0.6-1.0; T2 = 1.1-1.5; T3 = 1.6-2.0 years) and were evaluated using stereophotogrammetry and geometric morphometry. All patients underwent lip surgery before T0, patients with UCLP underwent palatoplasty (T0, T1 before palatoplasty; T2, T3 after palatoplasty).</p><p><strong>Results: </strong>In patients with CL, the forehead was significantly retracted (p ≤ 0.001), while the supraorbital and ocular regions were prominent (p ≤ 0.001). The oronasal region appeared convex (p ≤ 0.001). The lower lip and chin were non-significantly protruded. In patients with UCLP, a significantly retracted forehead and prominent supraorbital region were apparent (p ≤ 0.001). A retrusive oronasal region (p ≤ 0.001) was observed in the middle face. The chin was anteriorly protruded (p ≤ 0.01). No progression of deviations was found with increasing age. After the first year, a slight improvement in the morphological features became apparent. The shape variability of the clefts and controls overlapped, suggesting a comparable modelled facial development.</p><p><strong>Conclusions: </strong>The facial morphology of individuals with cleft was comparable to the norm. Shape deviation was apparent in the oronasal region, forehead, and chin, which minimised with increasing age even in complete clefts.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9133441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Breastfeeding and Cleft Lip and Palate: A Systematic Review and Meta-Analysis.","authors":"Luiza Becker de Oliveira, Gabriela Fonseca-Souza, Tatiane Zahn Cardoso Rolim, Rafaela Scariot, Juliana Feltrin-Souza","doi":"10.1177/10556656231170137","DOIUrl":"10.1177/10556656231170137","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate the association between cleft lip and/or cleft palate (CL/P) and breastfeeding (BF).</p><p><strong>Design: </strong>A systematic review and meta-analysis were performed based on studies published in PubMed, Scopus, Web of Science, Cochrane Library, LILACS, BBO, and Embase databases, and in the gray literature. The search occurred in September 2021 and was updated in March 2022. Observational studies evaluating the association between BF and CL/P were included. Risk of bias was analyzed using the Newcastle-Ottawa Scale. A random-effects meta-analysis was conducted. Certainty of evidence was evaluated using the GRADE approach.</p><p><strong>Main outcome measure(s): </strong>Frequency of BF in relation to the presence or absence of CL/P, as well as to the type of CL/P. The association between cleft type and BF challenges was also evaluated.</p><p><strong>Results: </strong>From a total of 6863 studies identified, 29 were included in the qualitative review. Risk of bias was moderate and high in most studies (n = 26). There was a significant association between the presence of CL/P and absence of BF (OR = 18.08; 95% CI 7.09-46.09). Individuals with cleft palate with or without cleft lip (CP ± L) had a significantly lower frequency of BF (OR = 5.93; 95% CI 4.30-8.16) and a significantly higher frequency of BF challenges (OR = 13.55; 95% CI 4.91-37.43) compared to individuals with CL. Certainty of the evidence was low or very low in all analyses.</p><p><strong>Conclusion: </strong>The presence of clefts, especially those with palate involvement, is associated with higher chances of absence of BF.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9753422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Robert Brinton Fujiki, George Kostas, Susan L Thibeault
{"title":"Relationship Between Auditory-Perceptual and Objective Measures of Resonance in Children with Cleft Palate: Effects of Intelligibility and Dysphonia.","authors":"Robert Brinton Fujiki, George Kostas, Susan L Thibeault","doi":"10.1177/10556656231162238","DOIUrl":"10.1177/10556656231162238","url":null,"abstract":"<p><strong>Objective: </strong>To investigate the relationship between auditory-perceptual ratings of resonance and nasometry scores in children with cleft palate. Factors which may impact this relationship were examined including articulation, intelligibility, dysphonia, sex, and cleft-related diagnosis.</p><p><strong>Design: </strong>Retrospective, observational cohort study.</p><p><strong>Setting: </strong>Outpatient pediatric cranio-facial anomalies clinic.</p><p><strong>Patients: </strong>Four hundred patients <18 years of age identified with CP ± L, seen for auditory-perceptual and nasometry evaluations of hypernasality as well as assessments of articulation and voice.</p><p><strong>Main outcome measure: </strong>Relationship between auditory-perceptual ratings of resonance and nasometry scores.</p><p><strong>Results: </strong>Pearson's correlations indicated that auditory-perceptual resonance ratings and nasometry scores were significantly correlated across oral-sound stimuli on the picture-cued portion of the MacKay-Kummer SNAP-R Test (r values .69 to.72) and the zoo reading passage (r = .72). Linear regression indicated that intelligibility (<i>p </i>≤ .001) and dysphonia (<i>p </i>= .009) significantly impacted the relationship between perceptual and objective assessments of resonance on the Zoo passage. Moderation analyses indicated that the relationship between auditory-perceptual and nasometry values weakened as severity of speech intelligibility increased (<i>P </i>< .001) and when children presented with moderate dysphonia (<i>p </i>≤ .001). No significant impact of articulation testing or sex were observed.</p><p><strong>Conclusions: </strong>Speech intelligibility and dysphonia alter the relationship between auditory-perceptual and nasometry assessments of hypernasality in children with cleft palate. SLPs should be aware of potential sources of auditory-perceptual bias and shortcomings of the Nasometer when following patients with limited intelligibility or moderate dysphonia. Future study may identify the mechanisms by which intelligibility and dysphonia affect auditory-perceptual and nasometry evaluations.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9075996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lucas M Harrison, Laura Kenyon, Denzil P Mathew, Christopher A Derderian, Rami R Hallac
{"title":"Alar Asymmetry in Patients with Unilateral Cleft Lip: Implications for Secondary Rhinoplasty.","authors":"Lucas M Harrison, Laura Kenyon, Denzil P Mathew, Christopher A Derderian, Rami R Hallac","doi":"10.1177/10556656231168769","DOIUrl":"10.1177/10556656231168769","url":null,"abstract":"<p><strong>Objective: </strong>Alar asymmetry in unilateral cleft lip (UCL) nasal deformity is a well-recognized clinical feature. However, there is a lack of comprehensive quantitative analysis of this asymmetry. This study compares the shape, volume, and axis rotation between the cleft and non-cleft ala in skeletally mature patients with UCL.</p><p><strong>Design: </strong>A retrospective comparative study utilizing three-dimensional rendered CT scans.</p><p><strong>Setting: </strong>Tertiary care pediatric institution.</p><p><strong>Patients, participants: </strong>This study included 18 patients with UCL nasal deformity at skeletal maturity.</p><p><strong>Main outcome measure(s): </strong>Cleft and non-cleft side ala volume, surface area, and axis to the midsagittal plane.</p><p><strong>Results: </strong>The cleft-side ala was significantly lesser in volume by 27.3%, significantly lesser in surface area by 17.6%, and significantly greater in surface area to volume ratio by 14.6% than the non-cleft ala. The cleft-side ala was significantly greater by 43.1% horizontal axis to the midsagittal plane. In patients with primary rhinoplasty, the cleft-side ala had 28.0% less volume and 18.7% less surface area. In intermediate rhinoplasty, the cleft-side ala had 39.1% less volume and 23.5% less surface area than the non-cleft ala.</p><p><strong>Conclusions: </strong>Significant asymmetry exists between the cleft-side and non-cleft ala in patients with UCL. The cleft-side ala is significantly smaller in volume and surface area than the non-cleft ala. Additionally, the cleft-side ala demonstrates a significantly greater horizontal axis that contributes considerably to nasal asymmetry, supporting the need to restore a normal vertical axis to the clef-side ala.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11308346/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9247708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nina Ellefsen Lindberg, Nina Margrete Kynø, Kristin Billaud Feragen, Are Hugo Pripp, Kim Alexander Tønseth
{"title":"Early Follow-up of Parents by a Specialized Cleft Nurse After the Birth of an Infant with Cleft lip and/or Palate.","authors":"Nina Ellefsen Lindberg, Nina Margrete Kynø, Kristin Billaud Feragen, Are Hugo Pripp, Kim Alexander Tønseth","doi":"10.1177/10556656231171750","DOIUrl":"10.1177/10556656231171750","url":null,"abstract":"<p><strong>Objective: </strong>To document the impact of early follow-up by specialized cleft nurses (SCNs) to families of infants with cleft lip and/or cleft palate (CL/P).</p><p><strong>Design: </strong>Prospective inclusion of a control group, which received standard care alone, followed by an intervention group, which in addition received early SCN follow-up.</p><p><strong>Setting: </strong>The cleft lip and palate team at a University hospital.</p><p><strong>Participants: </strong>70 families (69 mothers and 57 fathers); control group (n = 38); intervention group (n = 32).</p><p><strong>Intervention: </strong>SCNs offered a consultation at the maternity ward and follow-ups by phone or face-to-face at one, three, eight weeks and six months after birth.</p><p><strong>Outcome measures: </strong>Use of Internet-Questionnaire, Quality of discharge teaching scale (QDTS), Post discharge coping difficulty scale (PDCDS), Response on follow-up by health professionals.</p><p><strong>Results: </strong>Infants in the intervention group were admitted less frequently to a Neonatal Intensive Care unit (NICU); 21.9% vs 51.4%, <i>P</i> = .012. Parents in the intervention group used internet for cleft-related reasons less frequently (74.6% vs 85.9%), <i>P</i> = .112 and the mothers benefitted less from cleft-related activity on the internet (<i>P</i> = .013). The intervention group reported higher mean score for satisfaction with total cleft care (<i>P</i> = .001). There were no significant group differences regarding mean total score for discharge teaching (<i>P</i> = .315) and coping difficulties (<i>P</i> = .919).</p><p><strong>Conclusion: </strong>Early follow-up by a SCN with expertise in cleft care is highly valued by parents. Closer cooperation between the cleft team and health professionals at birth hospitals and Child health centers is necessary for optimal follow-up.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11308288/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9793739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
C M Rivers, C Skimming, D Chong, D Drake, C J H Russell, M F Devlin
{"title":"Use of Hyaluronic Acid Filler in Patients with Secondary Cleft Lip Deformity.","authors":"C M Rivers, C Skimming, D Chong, D Drake, C J H Russell, M F Devlin","doi":"10.1177/10556656231161981","DOIUrl":"10.1177/10556656231161981","url":null,"abstract":"<p><strong>Methods: </strong>Retrospective case note review was undertaken of all patients treated in the clinic over a two-year period.</p><p><strong>Results: </strong>20 patients underwent HA filler injections to the upper lip 26 times. Most were female (F:M = 3:1) and patients were aged 18-58 years. Most patients had a unilateral cleft lip +/- palate (n = 13, 65%). The most common indication was to address upper lip volume (n = 13, 65%). Other indications included vermillion notch (n = 5, 25%), cupid bow peak height asymmetry (n = 4, 20%), scar asymmetry (n = 1, 5%) and nasal sill flattening (n = 1, 5%). Small volumes of filler were used with an average of 0.34 ml (range 0.05-1.2 ml). There were no complications and one patient reported pruritis post procedure.</p><p><strong>Conclusions: </strong>HA filler is a safe and reliable treatment for certain aspects of asymmetry following cleft lip repair. It can be used to address volume deficiency and asymmetry, cupid bow peak height discrepancies and a vermillion notch for patients who do not want surgery. Injection of HA to the lips can be performed easily, with appropriate training, in the outpatient setting.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9393335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Review of the Use of Buccal Fat Pad in Cleft Palate Repair.","authors":"Adegbayi Adeola Adekunle, Olutayo James, Aliyah Oluwabusayo Olanbiwonnu, Wasiu Lanre Adeyemo","doi":"10.1177/10556656231155768","DOIUrl":"10.1177/10556656231155768","url":null,"abstract":"<p><strong>Objective: </strong>To review the available evidence on the use of the Buccal Fat Pad in primary and secondary Cleft Palate repair.</p><p><strong>Methods: </strong>This is a narrative review. A computerized literature search was conducted for articles published till February 2022 using the Mesh phrases buccal fat pad AND cleft palate, Bichat's Fat pad AND cleft palate, buccal fat pad OR Bichats Fat pad AND cleft palate.</p><p><strong>Results: </strong>A total of 35 articles were included in this review based on the set eligibility criteria. Most of the studies were retrospective case reviews (n = 16, 45.7%), and the aggregate number of patients from all included studies was 666. Reported uses of the buccal fat pad (BFP) in association with cleft palate repair include the closure of central cleft palate defect and nasal floor in primary cleft palate repair, oronasal fistula repair following primary repair of cleft palate, and closure of relieving incision defect in primary repair of cleft palate. Complications reported were 24 cases of Oronasal Fistula (ONF), 2 dehiscences, and 4 transient mucosal defects.</p><p><strong>Conclusion: </strong>The high success rate, vascularity, ease of tissue harvest, and low donor site morbidity all support its use as an adjunct flap in cleft palate repair, especially in the closure of wide palatal clefts, to prevent post-palatal repair fistula, wound contracture, and subsequently velopharyngeal insufficiency and possibly midface hypoplasia.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10675490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Narainsai K Reddy, Nikhil D Shah, Joshua P Weissman, Emily S Chwa, Arun K Gosain
{"title":"Evaluation of Global Cleft Care Initiatives Among the Top Searched Low- and Middle-Income Countries.","authors":"Narainsai K Reddy, Nikhil D Shah, Joshua P Weissman, Emily S Chwa, Arun K Gosain","doi":"10.1177/10556656231160399","DOIUrl":"10.1177/10556656231160399","url":null,"abstract":"<p><strong>Objective: </strong>International outreach for cleft lip and/or palate care has traditionally been characterized by foreign groups and individuals holding surgical outreach trips in low- and middle-income countries. However, this \"magic bullet\" approach has often been criticized for prioritizing short-term results that may disrupt local workflow. The presence and impact of local organizations that support cleft care and take on capacity building initiatives has not been well explored.</p><p><strong>Design: </strong>Eight countries previously studied as having the highest Google search demand for CL/P were chosen for the scope of the study. Local NGOs in regions were identified through a web search, and information was collected regarding the location, objectives, partnerships, and work conducted thus far.</p><p><strong>Results: </strong>Countries with a strong combination of local and international organizations included Ghana, Philippines, Nepal, Kenya, Pakistan, India, and Nigeria. The country with minimal to no local NGO presence included Zimbabwe. Local NGOs often supported education and research, training of providers and staff, spreading community awareness, offering interdisciplinary care, and opening cleft clinics and hospitals. Unique initiatives included starting the first school for children with CL/P, enrolling patients in the national healthcare to cover CL/P care, and monitoring the referral system to improve efficiencies in the healthcare system.</p><p><strong>Conclusions: </strong>Moving towards a mindset of capacity building not only involves bilateral partnerships between international host sites and visiting organizations, but also collaboration with local NGOs that have a deep understanding of local communities. Successful partnerships may help address the complex challenges regarding CL/P care faced by LMICs.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9369487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"Strategic Application of Anatomical Subunit Approximation Technique for Correction of Complete Unilateral Cleft lip\".","authors":"Jeehyun Moon, Juyoung Bae, So Young Lim","doi":"10.1177/10556656231160321","DOIUrl":"10.1177/10556656231160321","url":null,"abstract":"<p><strong>Objective: </strong>To discuss advantages, disadvantages and strategical application of anatomical subunit approximation technique in complete unilateral cleft lip repair.</p><p><strong>Design: </strong>Analysis of consecutive 28 cases.</p><p><strong>Setting: </strong>A single surgeon experience at a university hospital.</p><p><strong>Patients: </strong>Among 77 patients who underwent cleft lip repair between May 5, 2019 and June 30, 2021, 28 patients with complete unilateral cleft lip who received cheiloplasty by author's technique.</p><p><strong>Main outcome measures: </strong>Surgical outcomes were assessed by frontal view medical photographs obtained postoperatively at follow-up visits.</p><p><strong>Results: </strong>The average length difference between cleft and noncleft sides was <10% for transverse lip length and philtral height. Nostril sill height demonstrated about twenty percent of difference with much variable results. Although the one sample t-test revealed that differences exist between the cleft and noncleft side, they were within an acceptable range.</p><p><strong>Conclusions: </strong>Understanding the strengths and limitations of anatomical subunit approximation technique enabled strategic application in complete unilateral cleft lip repair. Satisfactory outcomes were achieved not only regarding the scar placement but also regarding the symmetry of the lips and augmentation of nasal sill.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9778352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kaitlyn M Fladeboe, Nicola Marie Stock, Carrie L Heike, Kelly N Evans, Courtney Junkins, Laura Stueckle, Alison O'Daffer, Abby R Rosenberg, Joyce P Yi-Frazier
{"title":"Feasibility and Acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) Intervention for Caregivers of Children with Craniofacial Conditions.","authors":"Kaitlyn M Fladeboe, Nicola Marie Stock, Carrie L Heike, Kelly N Evans, Courtney Junkins, Laura Stueckle, Alison O'Daffer, Abby R Rosenberg, Joyce P Yi-Frazier","doi":"10.1177/10556656231157449","DOIUrl":"10.1177/10556656231157449","url":null,"abstract":"<p><strong>Objectives: </strong>Few evidence-based psychosocial programs exist within craniofacial care. This study (a) assessed feasibility and acceptability of the Promoting Resilience in Stress Management-Parent (PRISM-P) intervention among caregivers of children with craniofacial conditions and (b) described barriers and facilitators of caregiver resilience to inform program adaptation.</p><p><strong>Design: </strong>In this single-arm cohort study, participants completed a baseline demographic questionnaire, the PRISM-P program, and an exit interview.</p><p><strong>Participants: </strong>Eligible individuals were English-speaking legal guardians of a child <12-years-old with a craniofacial condition.</p><p><strong>Intervention: </strong>PRISM-P included 4 modules (stress-management, goal-setting, cognitive-restructuring, meaning-making) delivered in 2 one-on-one phone or videoconference sessions 1-2 weeks apart.</p><p><strong>Main outcome measures: </strong>Feasibility was defined as >70% program completion among enrolled participants; acceptability was defined as >70% willingness to recommend PRISM-P. Intervention feedback and caregiver-perceived barriers and facilitators of resilience were summarized qualitatively.</p><p><strong>Results: </strong>Twenty caregivers were approached and 12 (60%) enrolled. The majority were mothers (67%) of a child <1-year-old diagnosed with a cleft lip and/or palate (83%) or craniofacial microsomia (17%). Of these, 8 (67%) completed PRISM-P and 7 (58%) completed interviews; 4 (33%) were lost-to-follow-up before PRISM-P and 1 (8%) before the interview. Feedback was highly positive, with 100% willing to recommend PRISM-P. Perceived barriers to resilience included uncertainty about their child's health; facilitators included social support, parental identity, knowledge, and control.</p><p><strong>Conclusions: </strong>PRISM-P was acceptable among caregivers of children with craniofacial conditions but not feasible based on program completion rates. Barriers and facilitators of resilience support the appropriateness of PRISM-P for this population and inform adaptation.</p>","PeriodicalId":55255,"journal":{"name":"Cleft Palate-Craniofacial Journal","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10752194","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}