唇腭裂导致的残疾:系统回顾与批判性估值评估》。

IF 1.2 4区 医学 Q3 DENTISTRY, ORAL SURGERY & MEDICINE
Cleft Palate-Craniofacial Journal Pub Date : 2024-08-01 Epub Date: 2023-07-04 DOI:10.1177/10556656231173478
Jessica D Blum, Diana Bohórquez Benítez, Felix Robles Caballero, Dillan F Villavisanis, Daniel Y Cho, Scott P Bartlett, Jesse A Taylor, Leanne Magee, Nicolas E Sierra, Jordan W Swanson
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引用次数: 0

摘要

目标:将残疾作为全球功能受损的一个概念来衡量,可以严格评估治疗的受益人、治疗的影响以及医疗系统投资的目标。唇腭裂的残疾度量标准尚不完善。本研究旨在系统回顾与口唇裂(OFC)相关的残疾权重(DW)研究,并确定每种方法在方法学上的优势和不足:设计:对符合以下标准的研究进行系统的文献综述:(1) 同行评议出版物;(2) 关注残疾评估;(3) 提及口面裂;(4) 2001 年 1 月至 2021 年 12 月出版:患者/参与者:无:干预措施:无:干预措施:无:主要结果测量指标:残疾权重估值方法和估值本身:最终的检索策略产生了 1,067 项研究。最终纳入了 7 篇手稿进行数据提取。我们的研究中使用的残疾权重,包括新产生的或来自全球疾病负担研究(GBD)的残疾权重,在孤立性唇裂(0.0-0.100)和伴有或不伴有唇裂的腭裂(0.0-0.269)中差别很大。GBD 研究将裂隙后遗症对残疾权重的影响局限于对外观和语言相关问题的考虑,而其他研究则考虑了疼痛和社会耻辱等合并症:结论:目前的裂隙残疾测量方法很少,不能充分反映 OFC 对功能和社交的全面影响,其细节或支持性证据也很有限。在评估残疾权重时使用全面的健康状况描述为准确反映 OFC 的各种后遗症提供了一种现实的方法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Disability Caused by Cleft Lip and Palate: A Systematic Review and Critical Valuation Appraisal.

Objective: Measuring disability as a concept of impaired global function enables beneficiaries of treatment, the impact of treatment, and targets of health system investment to be rigorously assessed. Measures of disability are not well established for cleft lip and palate. This study aims to systematically review disability weight (DW) studies pertaining to orofacial clefts (OFCs) and identify methodological strengths and shortcomings of each approach.

Design: Systematic literature review of studies that met the following criteria: (1) peer-reviewed publication, (2) focus on disability valuation, (3) mention orofacial clefts, and (4) publication January 2001-December 2021.

Setting: None.

Patients/participants: None.

Interventions: None.

Main outcome measure(s): Disability weight method of valuation and the value itself.

Results: The final search strategy yielded 1,067 studies. Seven manuscripts were ultimately included for data extraction. The disability weights used in our studies, including those newly generated or taken from the Global Burden of Disease Studies (GBD), ranged widely for isolated cleft lip (0.0-0.100) and cleft palate with or without cleft lip (0.0-0.269). The GBD studies limited their consideration of cleft sequelae informing disability weights to impact on appearance and speech-related concerns, while other studies accounted for comorbidities such as pain and social stigma.

Conclusions: Current measures of cleft disability are sparse, inadequately reflect the comprehensive impact of an OFC on function and socialization, and are limited in detail or supporting evidence. Use of a comprehensive health state description in evaluating disability weights offers a realistic means of accurately representing the diverse sequelae of an OFC.

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来源期刊
CiteScore
2.70
自引率
36.40%
发文量
215
期刊介绍: The Cleft Palate-Craniofacial Journal (CPCJ) is the premiere peer-reviewed, interdisciplinary, international journal dedicated to current research on etiology, prevention, diagnosis, and treatment in all areas pertaining to craniofacial anomalies. CPCJ reports on basic science and clinical research aimed at better elucidating the pathogenesis, pathology, and optimal methods of treatment of cleft and craniofacial anomalies. The journal strives to foster communication and cooperation among professionals from all specialties.
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