Health Expectations最新文献

{"title":"Authentic Consumer–Clinician Co-Design of a Labour and Childbirth Intervention to Optimise Maternal Hydration in Labour: Reaching Consensus to Enhance Rigour","authors":"Lauren Kearney, Bec Jenkinson, Christoph Lehner, Victoria Eley, Nicole Marsh, Deanne August, Susan de Jersey, Nigel Lee","doi":"10.1111/hex.70438","DOIUrl":"10.1111/hex.70438","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Medical interventions during labour and childbirth have rarely been designed with end-users, including frontline clinicians and consumers of maternity care. This has resulted in difficulties in evidence uptake, translation and acceptability by those who it is designed to help. Diverse views of ‘what is best’ in research interventions and approaches exist, yet arguably, if consensus can be reached, more rigorous and acceptable interventions will ensue. One such area of uncertainty is hydration management in induced labour, with an increasing reliance on intravenous therapy, without high-quality evidence pervasive across maternity settings. Therefore, we aimed to co-design a labour and childbirth intervention to optimise maternal physiology during labour, through evidence synthesis, consumer survey and a consensus-generating activity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A multi-modal, intervention co-design study was undertaken. This involved three key stages: evidence-synthesis, consumer-survey and then a modified nominal group technique workshop to reach consensus on the intervention design. The whole process took place between April and November, 2023 in South-East Queensland, Australia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In total, 96 completed responses were returned in the consumer survey, detailing women's preferences for hydration management during induced labour. This informed a Nominal Group Technique Workshop, inclusive of consumers, midwives, obstetricians, lactation consultants, dietitians, clinical trialists, neonatologists and nurses. Following robust discussion and various viewpoints presented, the expert reference group decided to support an approach whereby women would self-determine their own intake during induced labour and that the routine administration of intravenous fluids as a ‘side-line’ (current ‘standard practice’) to the synthetic oxytocin (labour hormone) infusion for induction of labour would not be routinely administered. In order to provide information/education to women on how best to optimise their hydration, a co-designed information brochure was developed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>What clinicians and researchers may assume is important as interventions and outcomes in a clinical trial may not always align with the opinions and lived experience of consumers. Incorporating co-design into trial protocol development has the potential to improve the relevance of research to the target population. This in turn may improve trial feasibi","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70438","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145214478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient and Public Involvement in Action: Shaping an Intergenerational Engagement Intervention in a Long-Term Care Facility in China","authors":"Hao Liu,&nbsp;Anne Topping,&nbsp;Ping Guo","doi":"10.1111/hex.70451","DOIUrl":"10.1111/hex.70451","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Aim</h3>\u0000 \u0000 <p>To shape an intergenerational engagement (IE) intervention through consultation with a patient and public involvement (PPI) group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>This paper describes how PPI contributed to refining an IE intervention within a long-term care facility in China.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Data Sources</h3>\u0000 \u0000 <p>A PPI group composed of key stakeholders, including older residents of the long-term care facility, young people from a local school, a parent, and care facility staff, provided evaluative feedback. They reviewed and refined various aspects of the intervention (content, scheduling and delivery of the intergenerational activities) and its evaluation (design, recruitment strategies and study materials).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Key modifications included adjusting activities to accommodate diverse backgrounds and technological capabilities, space limitations and the number of participants to optimise engagement and focusing on group activities to encourage lively and inclusive interactions. The group also made recommendations relating to scheduling sessions, length of intervention and recruitment materials to facilitate greater accessibility.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>The integration of PPI made the IE intervention practical, culturally relevant and tailored to meet the diverse needs of older and younger participants, enhancing its feasibility, acceptability and overall effectiveness. The findings underscore the importance of early and continuous PPI in health and social care research to develop relevant and sustainable interventions. Future efforts should focus on policy support, funding and education to embed PPI more broadly into health and social care research in China.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Feedback was sought from a patient and public involvement (PPI) group to refine and enhance the intergenerational engagement (IE) intervention, ensuring it accurately reflected the needs of participants. Notably, to the best of the authors' knowledge, this study is the first in China to utilise PPI in the co-design of an IE intervention in a long-term care setting, offering valuable insights for future research and practice in this context.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12486323/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145202345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family Caregivers' Experiences of Services for Children With Medical Complexity: A Systematic Review and Qualitative Evidence Synthesis","authors":"Bethan Page,&nbsp;Pru Holder,&nbsp;Katie Doidge,&nbsp;Lisa Hinton,&nbsp;Lorna K. Fraser","doi":"10.1111/hex.70452","DOIUrl":"10.1111/hex.70452","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Many high-income countries are seeking to adapt services to meet the needs of the growing population of children with medical complexity and their families but concerns have been raised about the quality of this care. To understand family caregivers' experiences of services and identify priorities for improvement we need to synthesise research about families' experiences of services for children with medical complexity.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objectives&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To systematically identify and synthesise the qualitative evidence of family caregivers' experiences of health, care and education services for children with medical complexity.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Systematic searches were conducted in MEDLINE, CINAHL, EMBASE, PsycINFO and ERIC from January 2011 to March 2024. Studies were assessed for methodological quality and data richness and synthesized using thematic synthesis.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Seventy-one studies met the eligibility criteria. A purposive sample of 29 studies was taken, selecting good-quality papers with rich data. These studies described the experience of 524 family caregivers and focused mostly on hospital care and care in the home. No studies were identified that focused specifically on family caregivers' experiences of education or social care services. Most studies were from the United States and Canada. The overarching theme was ‘concern for child's safety’ with three subthemes: ‘interactions with professionals’, ‘caring for the whole family’ and ‘system organisation’.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Family caregivers' priority is maintaining their child's safety across all settings of care. Fragmented systems and difficulties trusting professionals exacerbate parents' stress and concern for their child's safety. To keep the child safe and well, services need to address the needs of the whole family (e.g., parental sleep and mental health, finances, housing). Future research is needed to address the gap in research on social care services and education.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient and Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Emerging findings of the review were discussed in a 2-h workshop with six parents of children with medical complexity. The parents inputted into the development of the analytical themes and hel","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12480434/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145193924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ripple Effects Mapping: Evaluating Multilevel Perspectives and Impacts of a Statewide Community–Academic Partnership Network on Covid-19 Health Disparities","authors":"Evelyn Vázquez,&nbsp;Isabel Duong,&nbsp;Borsika A. Rabin,&nbsp;Nicole A. Stadnick,&nbsp;Paul L. Watson Jr.,&nbsp;Kelli L. Cain,&nbsp;Maria Pozar,&nbsp;Ann Cheney","doi":"10.1111/hex.70446","DOIUrl":"10.1111/hex.70446","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Community–academic partnerships played an important role in addressing Covid-19-related health disparities in historically marginalised groups such as racial ethnic minorities and low-income and rural communities in the pandemic. Part of the federal response involved establishing regional community academic networks that engaged highly impacted communities in health disparities research. The statewide Share, Trust, Organize, Partner COVID-19 California Alliance (STOP COVID-19 CA) network was part of the federal response.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In spring 2024, ripple effects mapping (REM), a participatory action research method, was used to conduct an evaluation of the impact of the STOP COVID-19 network on the capacity of community–academic partnerships to carry out Covid-19-related health disparities research. This method uses group interviews to capture direct and indirect outcomes, that is, ripples, of community-based programmes. Short-, medium- and long-term changes and conditions related to community–academic partnerships in the statewide network were mapped onto the spheres of influence of the social ecological model.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A total of 24 participants took part in one of three REM sessions. Community and academic partners were represented in all sessions, and most had been involved in community-engaged research for 3 to 10+ years. Most identified as female, Hispanic/Latino, and between the ages of 40 and 49. Qualitative analysis of sessions indicated that most changes occurred at the individual and interpersonal levels and involved medium-term changes (e.g., increased capacity to partner in research and shared understanding). Neighbourhood- or community-level changes included identification of culturally and linguistically responsive intervention and dissemination efforts (e.g., promotora model). Policy and built environment conditions reveal the inequities in higher education and the need for structural-level changes to university infrastructure and grant administration.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Most outcomes were observed at the individual and interpersonal (group) levels and involved primarily medium-term changes. However, the network itself served as a platform to discuss the need for structural-level changes within university infrastructure to facilitate community-engaged scholarship. Such networks have the potential to facilitate capacity building for community–academic partnerships to collaborate in health dis","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12477626/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a Set of Key Principles for Care Planning Within Older Adult Care Homes: A Modified Delphi Survey","authors":"Jonathan Taylor,&nbsp;Thais Caprioli,&nbsp;Jacqueline Damant,&nbsp;Yuri Hamashima,&nbsp;Nick Smith,&nbsp;Madalina Toma,&nbsp;Michele Peters","doi":"10.1111/hex.70433","DOIUrl":"10.1111/hex.70433","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Older adult care homes in England must develop care plans on behalf of their residents and make them available to care providers. There is currently a lack of formal agreement around the key principles that should inform the care planning process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>The study aimed to develop a set of key principles for care planning in older adult care homes in England.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We developed 78 evidence-based items and presented them to a panel of health and social care professionals with experience of care planning. We used two online rounds of Delphi to generate consensus (≥ 75%) on items to include in a set of key principles for care planning.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A set of key principles, comprising 81 items, were developed. One-hundred participants completed Round 1, and 80 participated in Round 2. Three percent (<i>n</i> = 4/78) of the Round 1 statements did not reach agreement. Revisions primarily related to the terminology used, clarification of language and an increased emphasis on care home residents' consent and autonomy. Agreement was achieved on all statements (<i>n</i> = 78/78) in Round 2.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Substantial agreement was achieved regarding the document's content. Future research should (a) look to develop a resource for the family and friends of care home residents to enhance their participation in care planning and (b) explore how these principles can be put into practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Reporting Method</h3>\u0000 \u0000 <p>Study reporting was guided by the Conducting and REporting of DElphi Studies (CREDES) framework.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Two public involvement advisers with lived experience of caring for a relative living in a care home worked with researchers to develop the key principles and Delphi survey, recruit panel members, interpret the results from the two rounds and assist with revising the items.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12477624/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Consulting With First Nations Communities to Develop Text-Based Support for Grieving Fathers","authors":"Craig Hammond,&nbsp;Mick Adams,&nbsp;Richard Fletcher","doi":"10.1111/hex.70450","DOIUrl":"10.1111/hex.70450","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The loss occasioned through miscarriage, stillbirth or neonatal death is recognised as a traumatic event causing grief and sorrow in fathers. While the rate of Indigenous perinatal deaths is almost twice that of non-Indigenous, there is little support available for Aboriginal and Torres Strait Islander grieving fathers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>The SMS4DeadlyDads team partnered with Red Nose, the national charity supporting grieving parents, to co-design text-based support for grieving fathers with community representatives and clinicians.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>A 2-year consultation process with Indigenous services and stakeholders took place in urban and remote locations in Australia. The support for fathers following perinatal loss was assessed, and messages were adapted from those for non-Indigenous fathers and evaluated. Final messages were reviewed by Red Nose clinicians for optimal delivery timing.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Community representatives noted the lack of support for new fathers. The culturally appropriate SMS4Deadlydads service delivering text messages to new fathers' mobile phones was welcomed as ‘something for dads’ and the potential to provide confidential support in cases of perinatal loss was recognised. The resulting set of messages was acceptable to indigenous and non-Indigenous stakeholders.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The successful development of the messages for Indigenous fathers demonstrates that respectful consultation led by experienced Indigenous leaders can ensure cultural safety and gain community commitment to address highly sensitive topics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Public Contribution</h3>\u0000 \u0000 <p>Indigenous community representatives and stakeholder service were involved in deciding on the value of the text messaging approach to fathers' grief, the identification of message topics, the wording used in the texts and the linked resources.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12477625/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"U.S. Vietnamese Parents' Perceptions of Different Approaches for Confirming Adolescent HPV Vaccination Records in Research Studies","authors":"Lilian Bui,&nbsp;Valerie Espinoza,&nbsp;Huyen-Anh Giang,&nbsp;Linh P. Schiffer,&nbsp;Phuong Do,&nbsp;Phuong Ngu,&nbsp;Chi Vu,&nbsp;Jasmin Tiro,&nbsp;Eric Adjei Boakye,&nbsp;Siobhan M. Phillips,&nbsp;Heather Brandt,&nbsp;Ella Berry,&nbsp;Sa Tran,&nbsp;Emma Macdonald,&nbsp;Cindy Khuc,&nbsp;Jeanette Nguyen,&nbsp;Thy Vuong,&nbsp;Milkie Vu","doi":"10.1111/hex.70448","DOIUrl":"10.1111/hex.70448","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The United States (U.S.) Vietnamese communities face a high burden of HPV-related cancer rates; they also have low HPV vaccination coverage. HPV vaccination is a safe, effective tool to prevent HPV-related cancers, particularly when administered during adolescence. Understanding Vietnamese parents' perspectives on the acceptability of different HPV vaccination status verification methods can improve the implementation of community-based research interventions to improve HPV vaccine coverage in this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>We assessed their perceptions of three HPV vaccination status confirmation methods: medical records, vaccination card photographs, and self-reported surveys.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>We conducted interviews with Vietnamese parents of adolescents ages 9–18, healthcare providers, and community leaders (<i>n</i> = 34). We used an inductive thematic analysis approach with four qualitative coders.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Preferences for confirming vaccination status were split almost equally among each method. Key drivers of these preferences included privacy concerns, autonomy, efforts required from parents, digital literacy, and data accuracy.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>These findings suggest offering multiple confirmation options to accommodate diverse preferences and enhance the effectiveness of HPV vaccination promotion strategies in this population.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Public Contribution</h3>\u0000 \u0000 <p>Community involvement was integral to the design, implementation of this project, and writing of the manuscript. The study team partnered with a community organization that works closely with the U.S. Vietnamese population and Vietnamese healthcare providers. The group met regularly to discuss participant recruitment strategies and study instruments. Lived experiences from parents of adolescents, community leaders, and healthcare providers were included in the production of this manuscript to guide the interpretation of preferences for vaccination confirmation methods.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12477623/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Institutional Abuse, Neglect and Harm in UK Community Mental Health Services: A Scoping Review of the Peer-Reviewed Evidence","authors":"Bethan M. Edwards,&nbsp;Alan Meudell,&nbsp;Ellen Thomas,&nbsp;Eva Broeckelmann,&nbsp;Eva Roberts,&nbsp;Mark Farmer,&nbsp;Naomi Ghafoor,&nbsp;Sarah Markham,&nbsp;Catherine A. Robinson,&nbsp;Angela Sweeney,&nbsp;Sarah Carr,&nbsp;Michael Clark","doi":"10.1111/hex.70403","DOIUrl":"10.1111/hex.70403","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Statutory guidance relating to the prevention of institutional abuse, neglect and harm does not reflect the contemporary organisation of UK community mental health services. Historical associations with inpatient and residential settings have created a practice and conceptual gap despite lived experience testimony, inquiries and media reports attesting to the phenomena in community mental health services.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Aim&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To describe the peer-reviewed evidence on the phenomena of institutional abuse and neglect associated with harm in UK community mental health services for adults of working age.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We searched nine indexed databases for primary and secondary research (any methodology), theoretical papers and commentaries published between 2000 and 2025. We extracted and charted papers' substantive characteristics and findings, and conducted a descriptive synthesis to identify the phenomena's characteristics and potential causal factors.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Findings&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Twenty-two papers met inclusion criteria, consisting of primary research utilising qualitative or observational methods (&lt;i&gt;n&lt;/i&gt; = 12), secondary research (&lt;i&gt;n&lt;/i&gt; = 6), lived experience narratives (&lt;i&gt;n&lt;/i&gt; = 3) and a community consultation (&lt;i&gt;n&lt;/i&gt; = 1). Institutional neglect was the principal phenomenon described, with gaps and inadequacies in accessing institutional provisions a primary mechanism. Associated harms included suicide, homicide and psychological harms. People diagnosed with a personality disorder, labelled ‘hard to engage’ and who self-harm were amongst the population affected. Inter-related potential causal factors spanned national, institutional and individual levels, with resources a primary factor.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Our scoping review advances conceptual knowledge about the characteristics and potential causal factors of institutional abuse, neglect and harm in UK community mental health services. This provides a robust foundation for future research endeavours to inform safeguarding and patient safety policy and practice.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient and Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The review was conceptualised, led and conducted by lived experience researchers who are current and/or previous users","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476028/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145180468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The Experience of Accessing Primary Healthcare Centres in a Lebanese Community: Perspectives of Older People, Family Members and Service Providers","authors":"Saydeh Dableh,&nbsp;Kate Frazer,&nbsp;Mathilde Azar,&nbsp;Thilo Kroll","doi":"10.1111/hex.70449","DOIUrl":"10.1111/hex.70449","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Older people's experiences with access to primary healthcare are overlooked in LMICs, leading to inequitable access and limited delivery of person-centred care. In Lebanon, the economic crisis has increased older people's vulnerabilities and reliance on services provided through primary healthcare centres (PHCCs). This study explores (1) factors shaping decisions of using PHCCs; (2) experiences of older people accessing PHCCs from three perspectives: the older people themselves, family members and service providers; (3) family members' experiences with accessing PHCCs; and (4) service providers' experiences with providing care for older people within PHCCs in a Northern Lebanese district.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study adopts a qualitative descriptive design with an inductive content analysis approach. Data were collected through seven focus group discussions and 15 individual interviews (&lt;i&gt;n&lt;/i&gt; = 57 older people, family members, and service providers).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Factors shaping decisions of using PHCCs' services include socio-economic status, knowledge of services, influences of family members, perceived service quality and proximity, age-related changes, and providers' attitudes and behaviours. Older people reported varied access experiences shaped by factors at individual, organisational, communal, governmental and global levels. Positive experiences included enhanced autonomy, gratitude for receiving needed services, perceived care quality and socialising opportunities. However, negative experiences included humiliation and discomfort, anxiety, dependency, perceived status regression, perceived poor quality and a sense of being a burden. While some family members reported relief from getting affordable care, others reported discomfort, perceived status regression, blame for neglect and challenges with coordinating care across multiple providers. Service providers' experiences included pride in supporting older people, but resentment due to unfair remuneration.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Findings reveal aspects of care that older people and family members appreciate and others that contribute to negative experiences. Experiences of older people, family members and service providers are interconnected. Quality improvement requires comprehensive approaches addressing their needs. Findings inform practitioners and policymakers to design multidimensional and people-centred approaches to maximise healthcare access.&lt;/p&gt;\u0000 ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476029/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145180406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the Study Designs and Outcome Measures Used in Service User Involvement in Health Professional Entry-Level Education: A Systematic Review","authors":"Jonathan Green,&nbsp;Jennifer Oates,&nbsp;Sam Robertson,&nbsp;Elizabeth Barley,&nbsp;Chris Jacobs","doi":"10.1111/hex.70439","DOIUrl":"10.1111/hex.70439","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;It is a regulatory requirement in the United Kingdom and Australia that people who use services are involved in health professional education. Evaluating service user involvement aims to inform curriculum development and improvement. However, although there is research evaluating service user involvement in medical education, optimal outcome measures for other health professionals have not been identified.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study focused on service user involvement in entry-level education for nurses, midwives, allied health professionals, social workers and pharmacists. The aim was to (i) identify study characteristics, designs and methods used to measure outcomes, (ii) describe the characteristics of outcome measures used and (iii) identify the extent to which the outcome measures aligned with the modified Kirkpatrick Evaluation Framework.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Search Strategy&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Medline, CINAHL and PsychINFO databases were systematically searched for studies published over a 24-year period between 2000 and 2024. Two reviewers independently screened studies. A narrative synthesis was conducted. Measures were mapped to the modified Kirkpatrick Evaluation Framework.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Nineteen studies using 29 measures were selected. Study designs were mostly quasi-experimental with small university-based samples. Data were typically collected pre- and post-service user involvement, assessing changes in student knowledge and attitudes. Measures assessed the perspective of students (&lt;i&gt;n&lt;/i&gt; = 29) and educators (&lt;i&gt;n&lt;/i&gt; = 1), but not the service users' perspective (&lt;i&gt;n&lt;/i&gt; = 0). Eight of the measures were validated; four for student health professionals and four for other populations. No measures aligned with the highest levels of the modified Kirkpatrick Evaluation Framework regarding the impact of service user involvement on the health system and patients.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Limitations in the study designs reduced the comparability and generalisability of the identified studies. None of the measures evaluated the impact of service user involvement on the health system or patients. Educators' perspectives on the service users' involvement in the education were limited. Service users' perspectives were absent. To embed a culture of involvement, future research is needed to identify the requirements of ou","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476030/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145180378","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}