Health Expectations最新文献

{"title":"Patient and Family Perspectives on Statutory Duty of Candour Following Serious Adverse Patient Safety Events","authors":"Corey Adams, Lorelle Bowditch, Mia Bierbaum, Ramya Walsan, Jennifer Morris, Elizabeth Manias, Nicole Youngs, Lanii Birks, Jeffrey Braithwaite, Ashfaq Chauhan, Peter Hibbert, Ramesh Walpola, Reema Harrison","doi":"10.1111/hex.70800","DOIUrl":"10.1111/hex.70800","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The Statutory Duty of Candour (SDC) legally requires healthcare organisations to notify patients, families, and carers who experience a serious adverse patient safety event (SAPSE), provide an apology, and explain steps taken to prevent recurrence. However, despite growing international adoption of SDC, evidence on its implementation and impact on patients and families (‘consumers’) remains limited. This study examined consumer awareness, understanding, and lived experiences of SDC in Victoria, Australia, two years after its introduction.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A mixed-methods study integrated data from an online survey and semi-structured interviews with healthcare consumers in Victoria, Australia. Descriptive analysis was undertaken for quantitative items, while reflexive thematic analysis was applied to qualitative data from survey free-text responses and interview transcripts.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In total, 80 consumers participated: 72 completed the survey and 13 completed interviews, with five participating in both. Although nearly two-thirds (61%) had no prior knowledge of SDC, over three-quarters (78%) perceived it as useful. Among those who had experienced an adverse event, half reported that staff were not open following the incident, over half reported that no post-incident meeting occurred, and satisfaction with meetings was low (26%). Six themes were identified: (1) Candour as Moral Reassurance; (2) Persistent Scepticism and Conditional Trust; (3) Limited Awareness and Accessibility of SDC; (4) Genuine Apology for Trust Repair; (5) Emotional Labour, Power, and the Risk of Re-traumatisation; and (6) Demonstrating Accountability with Organisational Learning and Improvement. An overarching theme, <i>Candour as a Relational Process for Trust,</i> described how trust was tested, repaired, or further eroded through SDC processes following an adverse event.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>SDC holds significant potential to repair trust following adverse events, but its impact depends on how it is enacted. When delivered with empathy and meaningful follow-up, SDC supports repair of trust. However, when experienced as procedural or defensive, SDC may compound distress and further erode trust. Therefore, SDC must be embedded not just as a regulatory requirement, but as a relational and person-centred practice for patients and families.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527863/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148868045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adapting a Cancer Cost and Health Insurance Tool for Implementation: Rapid Qualitative Analysis","authors":"Ashley J. Housten, Rachelle Roy, Krista Cooksey, Hannah Rice, Viktoria Vonder Haar, Sophia Larson, Su-Hsin Chang, Jennifer Irvin, Mary C. Politi","doi":"10.1111/hex.70846","DOIUrl":"10.1111/hex.70846","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Cancer-related financial hardships are common and negatively impact cancer-related outcomes. Supporting patient-clinician cost discussions, financial navigation, and insurance literacy may help mitigate this distress. This qualitative study informed the adaptation of the “Improving Cancer Patients’ Insurance Choices” (I Can PIC) tool into the “Cancer Affordability REsources” (CARE) Tool by updating content, design, and implementation processes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Patients ≥ 18 years, diagnosed with lung, prostate, colorectal, or gynaecological cancer within 3 years, English-speaking, and treated at specified urban or rural cancer centres were included. Healthcare personnel (HP) were employed at one of these cancer centres and worked with the specified cancer types. The Consolidated Framework for Implementation Research (CFIR) and the 5As of Access in Healthcare Framework guided the development of semi-structured interview guides and codebook. Interviews were conducted virtually, transcribed professionally, coded, and analysed using rapid thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-two patients with cancer and 14 HP from urban and rural cancer centres participated (N = 36). We identified four themes. First, there was a mismatch of expectations around cost conversations. HP expressed concerns about potentially introducing financial-related distress and did not know specific cost information, while patients emphasised the need for cost discussions with HP. One shared, “I'm kind of… removed from the financial aspect, which is good ‘cause then I can just focus on taking care of patients.” In contrast, one patient said, “…It's not acceptable to just have your hands up and say I don't know… a patient needs to know.” Second, preferences for timing of cost conversations varied, with a need for both immediate and subsequent conversations per patient readiness. One patient shared, “I would have loved to speak with someone about the cost, but I was more concerned about my survival…”. Third, there were multiple usability considerations, including technological demands, health literacy, and the perceived relevance of the tool. Fourth, context-specific delivery is critical to ensure access.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>This user-centred content, usability, and implementation focused adaptation of the CARE Tool incorporated perspectives from patients, HP, and end-users. Next steps will evaluate the CARE Tool in a clinical trial, assessing financial ha","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13528449/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148868062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Use of Direct-to-Consumer Telemedicine: A Qualitative Study Exploring the Thoughts, Perspectives and Experiences of Australian Adults","authors":"Andrew Turner, Kate Churruca, Samantha Spanos, Thomas Courtney-Stubbs, Darran Foo, Louise A. Ellis","doi":"10.1111/hex.70847","DOIUrl":"10.1111/hex.70847","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Following the COVID pandemic, direct-to-consumer (DTC) telemedicine services that offer medical expertise via remote electronic interfaces have surged in popularity. This paper explores the perspectives and experiences of patients using DTC telemedicine services in Australia, including their perceptions of benefits, concerns and interactions with traditional general practice.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This was a qualitative study using semi-structured interviews, which were recorded and transcribed. Thematic analysis was conducted using NVivo, with a combination of inductive and deductive coding. Participants were recruited from a previous survey on user experiences with up to five different DTC telemedicine services.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Thirteen participants had experience with DTC telemedicine services for women's health, skin care, men's health and women's fertility. Four themes were identified: (1) <b>Convenience, efficiency and greater access</b>—flexible appointment scheduling, reduced wait times and the online user interface were major benefits of DTC telemedicine services. Participants also highlighted the capacity of DTC telemedicine to enhance healthcare accessibility for those living rurally or with mobility challenges; (2) <b>The value of anonymity</b>—DTC telemedicine facilitated care for potentially stigmatised conditions such as obesity and erectile dysfunction, encouraging some patients to seek care they might otherwise avoid; (3) <b>Concerns about inappropriate use of medication</b>—participants questioned whether ease of access might lead to inappropriate prescribing, and (4) <b>Interactions with general practice</b>—DTC telemedicine was perceived as more of a supplement to general practice rather than a replacement. Despite this, participants indicated that negative experiences with GPs contributed to DTC telemedicine use.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>DTC telemedicine was viewed as a convenient and efficient alternative to general practice for certain health issues. However, concerns were identified regarding prescribing safety, continuity of care and inequity in access. If regulatory gaps are addressed, collaboration with GPs improved and disparities in access minimised, DTC telemedicine has the potential to play a complementary role in strengthening Australia's primary healthcare system.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Involvement</h3>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527857/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148867983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"From ‘Little Things’ to ‘Seagulls’: A Mixed Methods Exploration of Patients' Experiences of Person-Centred Compassionate Care in General Medical and Surgical Wards","authors":"Ruth Cox, Jayne Hewitt, Emilia Dauway, Alex McConnell, Jodie Nixon, Faiza El-Higzi, Sanjeev Naidu, Elizabeth Ward","doi":"10.1111/hex.70844","DOIUrl":"10.1111/hex.70844","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Person-centred compassionate care (PCCC) shapes the quality of relationships between health care professionals (HCPs) and patients, influences how healthcare is experienced, and ultimately can impact patient outcomes and HCP satisfaction. There is limited evidence about patient perspectives of multidisciplinary PCCC in acute general medical and surgical wards.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>This study aimed to explore patients' perceptions of PCCC to inform co-design of an intervention to enhance PCCC in general medical and surgical wards.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Sixty (60) inpatients on a general medical or general surgical ward completed the Sinclair Compassion Questionnaire (SCQ) three times—considering their interactions with doctors, nurses, and allied health separately. They also completed five qualitative questions about PCCC. An additional 20 patients or their carers were interviewed exploring the same five topic areas. Reflexive thematic analysis was used to analyse qualitative data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The median SCQ score was high (4.5; SEM = 0.05) indicating that participants perceived high levels of compassion from HCPs during their hospital admission. Fewer than 20 per cent (17.9%) of the SCQ scores were less than 4 out of 5 and more than half (51.2%) were 4.5 or higher. Analysis revealed no significant differences (<i>p</i> = 0.066) between professional groups (Doctors: median = 4.2, SEM = 0.10; Nurses: median = 4.75, SEM = 0.07; Allied Health: median = 4.25, SEM = 0.09). There were no significant differences in scores (<i>p</i> > 0.01) by ward type, length of stay, cultural diversity, or disability. Females rated allied health staff as significantly higher on SCQ (median = 4.9, SEM = 0.1) than males (median = 4, SEM = 0.15) (<i>p</i> = 0.003). Qualitative responses indicated many recommendations to enhance care. From ‘little things’ to ‘seagulls’ was a phrase co-created by the research team to encapsulate the range of participant perspectives across the themes. Co-produced themes and key messages to staff focussed on being in the moment, finding out about the whole patient and their journey, partnering with the patient to the level they choose, knowing that patients make allowances for the pressures on staff, and that small acts of kindness are critical to the patient experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527410/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148868007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing the Prospective Acceptability of a Paediatric Speech and Language Therapy Intervention With Parents From Under-Represented Communities","authors":"Lucy Rodgers, Nicola Botting, Ros Herman","doi":"10.1111/hex.70855","DOIUrl":"10.1111/hex.70855","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Integrating the perspectives of people with lived experience is integral to developing new healthcare interventions. However, individuals from under-represented communities may face additional barriers to taking part in such patient and public involvement (PPI) activities. Within paediatric speech and language therapy (SLT), under-represented communities might include families from lower SES backgrounds and/or families where the majority language for that country is not spoken. Excluding families from under-represented communities poses the risk of new interventions not being acceptable to them, thus exacerbating pre-existing healthcare inequalities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>The aim of this study was to optimise the prospective acceptability of a new paediatric speech and language therapy intervention with parents from under-represented backgrounds, in the hope of optimising future accessibility to families from diverse communities.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>An individualised PPI approach was taken, consisting of two semi structured interviews informed by the Theoretical Framework of Acceptability (TFA). Six parent partners from non-majority language and/or lower SES backgrounds were recruited through a local charity. In the first interview, parent partners were shown a video of the intervention and identified key areas for increasing acceptability. Refinements were made to the intervention by the project steering group in an online meeting. These refinements were the topic of the second interview, where the impact on prospective acceptability was explored.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Following the first round of interviews, areas for improvement included consideration of access to/co-ordination with wider services, and the financial and practical implications for parents accessing the intervention. Most of the intervention refinements and solutions to potential barriers came directly from the parent partners themselves, rather than the steering group. In the second round of interviews, parent partners rated the intervention's prospective acceptability between 4/5 (acceptable) and 5/5 (very acceptable).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>By working with parent partners from under-represented communities, the research team was able to enhance the prospective acceptability of a new paediatric speech and language therapy intervention. Man","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527411/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148867975","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Supporting Medication Adherence in Parkinson's Through Education: A Scoping Review of Interventions","authors":"Hazel Haworth, Gillian Carter, Katherine M. A. Rogers, Gary Mitchell, Laura Jacobs, Patrick Stark","doi":"10.1111/hex.70852","DOIUrl":"10.1111/hex.70852","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Medication adherence in Parkinson's is complex, time-sensitive, and influenced by clinical, behavioural, and contextual factors. Educational interventions have attempted to support medication adherence; however, the scope, focus, and effectiveness of such interventions remain unclear.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This scoping review aimed to identify and map educational interventions for people with Parkinson's that included medication-related education. Seven databases were searched with no date restrictions. Quantitative, qualitative, and mixed-methods studies were eligible. Data were charted and synthesised using descriptive mapping and reflexive thematic analysis to explore intervention characteristics, reported evidence relating to medication adherence, intervention outcomes, and reported barriers and facilitators.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Eight papers reporting seven educational interventions were included. Interventions varied widely in content, delivery mode, and intensity, with medication education often embedded within broader programmes rather than delivered as a standalone intervention. Evidence regarding the potential of educational interventions to support medication adherence was reported, although this was based on a limited number of studies using direct adherence measures and more commonly on proxy indicators such as changes in knowledge, beliefs, and self-management behaviours. Outcome measures were heterogeneous, limiting comparability. Improvements were more commonly observed in understanding, confidence, and communication than in sustained symptom outcomes. No study reported explicit use of behaviour change theory or co-design approaches involving people with Parkinson's or their informal carers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Educational interventions show potential to support Parkinson's medication adherence, particularly through mechanisms conceptually aligned with self-efficacy. Future interventions may be strengthened by explicit use of behaviour change theory and/or meaningful co-design with people with lived experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Lived Experience or Public Contribution</h3>\u0000 \u0000 <p>A Research Involvement Manager from Parkinson's UK is a co-author and contributed to the design, conduct, and interpretation of this review, representing the perspectives of people living with Parkinson's. An advisory group comprisi","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527395/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148868047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the Process and Outcome of a Primary Care Patient and Public Involvement (PPI) Programme: A Pilot Study","authors":"Prawira Oka, Chirk Jenn Ng, Hani Salim, Ping Yein Lee, Ruiheng Ong, Ngiap Chuan Tan","doi":"10.1111/hex.70858","DOIUrl":"10.1111/hex.70858","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Patient and public involvement (PPI) in research maximises its relevance, quality, and impact by partnering with the public throughout the research journey. In Singapore, a PPI group named Patient Research Advocate and Guidance to Maximise Safety in Trials and Innovation Committee (PRAGMATIC) was established in 2020 by a public primary care institution to create a conducive platform for the public to provide feedback to primary care researchers on their research proposals. This pilot study aimed to evaluate the impact of the committee's feedback on the research process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>From 2023 to 2024, researchers were invited to present their patient-fronting research proposals to PRAGMATIC. Before the presentation, researchers submitted a lay-language research proposal summary that the committee reviewed in advance. The proposals were presented at 3-monthly PRAGMATIC meetings with the committee providing written and verbal feedback. After each meeting, researchers completed a questionnaire capturing the number, type, acceptability, and helpfulness of the committee's feedback. Reporting followed recommended PPI reporting standards (GRIPP2-LF).</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>PRAGMATIC reviewed seven projects and generated 26 potentially actionable feedback. Researchers included two nurses, one medical student, one research associate, and three primary care physicians. Project topics included asthma, postnatal mental health, hearing loss, cervical cancer screening, female smoking, and osteoarthritis. The researchers accepted majority of the feedback (21/26, 80.8%) and rated them as helpful (24/26, 92.3%). The most impact was observed in intervention design and data collection, where feedback led to the adoption of remote interviews, reduced intervention duration, and medical device software refinement. Feedback on participant selection were less accepted but led to improved methodological justification.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Initial evaluations indicate that a structured PPI programme can positively shape study design and implementation in primary care research. These findings are encouraging and have potential to inform future refinements to guide PPI in research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>PPI partners were involved in the co-design of study materials, ensuring their clarity, relevance, and a","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13527400/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148867993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correction to “Development, Suitability and Comprehensibility of a QR Code-Enabled Educational Package to Improve Self-Care Practices Among Patients With Type 2 Diabetes: A Multimethod Study in Iran”","authors":"","doi":"10.1111/hex.70857","DOIUrl":"https://doi.org/10.1111/hex.70857","url":null,"abstract":"<p>S. Mohammadi, M. Zakerkish, A. Montazeri, Z. Bahrami, M. Araban, “Development, Suitability and Comprehensibility of a QR Code-Enabled Educational Package to Improve Self-Care Practices Among Patients With Type 2 Diabetes: A Multimethod Study in Iran,” <i>Health Expectations</i> 29, no. 3 (2026): e70729. https://doi.org/10.1111/hex.70729.</p><p>In the “Ethics Statement” section, the Ethics Code was reported incorrectly as “IR.AJUMS.REC.1402.192”. It should be corrected to “IR.AJUMS.REC.1402.191”.</p><p>We apologize for this error.</p>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70857","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148849255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communication Strategies to Improve Child Participation in Triadic Consultations Within Healthcare Settings: A Scoping Review","authors":"Maha Alharbi,&nbsp;Suzanne Grant,&nbsp;George Cherukara,&nbsp;Siyang Yuan","doi":"10.1111/hex.70853","DOIUrl":"https://doi.org/10.1111/hex.70853","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Children under 18 are recognised as key stakeholders in healthcare and possess the right to actively participate in decisions regarding their care. Despite this, they are frequently relegated to passive roles during triadic healthcare consultations involving healthcare providers (HCPs), caregivers, and children. Enhancing child participation requires effective communication strategies; however, numerous barriers persist, including healthcare provider dominance and parental interference. This review aims to explore and identify effective communication strategies employed by healthcare providers and caregivers to improve child participation in triadic consultations within healthcare settings.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Method&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A scoping review methodology, based on the Joanna Briggs Institute framework and PRISMA guidelines, was used. A comprehensive search was conducted across four databases—PubMed, PsycINFO, Scopus, and CINAHL using predefined eligibility criteria. Studies focused on children under 18 in triadic healthcare consultations. Qualitative, quantitative, and mixed-methods studies were included to map existing evidence and highlight gaps.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A total of 37 out of 41 studies revealed that child participation in triadic consultations is frequently minimal and varies significantly depending on the communication styles of HCPs and caregivers. HCPs exhibit a range of communication styles, with some adopting a directive or task-focused (Dyadic approach) that prioritises medical tasks and often sidelines children in conversations, while others utilise supportive and facilitative styles (Triadic approach) that emphasise rapport-building, open-ended questioning, child-friendly language, and the use of interactive techniques that facilitate engagement. Parental roles in this dynamic were classified into three main styles: supportive facilitator, dominant and protective. Factors such as the child's age and developmental stage, wider cultural influences, the emotional context, and the healthcare environment were also found to significantly impact child participation. A variety of measurement tools were utilised to assess participation levels, including the Roter Interaction Analysis System (RIAS), conversational analysis and context-specific coding schemes. However, the review identified a notable lack of standardised tools, which limits the comparability of findings across different studies.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This review highli","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70853","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148816456","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Content Validity of the Clinical Needs Assessment for Myalgic Encephalomyelitis (CNAME)","authors":"Sarah F. Tyson,&nbsp;Russell Fleming","doi":"10.1111/hex.70854","DOIUrl":"https://doi.org/10.1111/hex.70854","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>To co-produce the Clinical Needs Assessment for Myalgic Encephalomyelitis (CNAME) with patients and clinicians, and to assess its content validity.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Guided by the COSMIN guidelines, a draft CNAME was devised from relevant literature and lived experience. It was revised following piloting and cognitive interviews with the advisory groups and then completed online by people with ME. Content and face validity were assessed via deductive framework analysis of participants’ feedback. Construct validity (in terms of relevance, duplication and comprehensibility) was assessed using frequencies, cross-tabulations and response rates, respectively. As the CNAME produces dichotomous (yes/no or not relevant) data, which are not summated and are not intended for repeated use, further psychometric analyses are not possible or relevant.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Four hundred people with ME participated. Comprehensibility was excellent (&gt; 97.5% item completion rate). There were no floor effects, but several items had a ceiling effect and were removed. Eight items demonstrated duplication and were combined. Participant feedback was positive, confirming that the CNAME addressed the issues that were important and relevant to them and was easy to complete.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The Clinical Needs Assessment for ME is a valid, feasible and acceptable measure of people with ME/CFS’ clinical needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Contribution</h3>\u0000 \u0000 <p>Development of the CNAME was a patient-led project (both the authors live with ME/CFS) and it was co-produced by people with ME/CFS and clinicians working in NHS specialist ME/CFS services. People with ME/CFS and clinicians were involved in all stages of the study—conceptualisation, design, conduct, analysis, interpretation and dissemination.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":""},"PeriodicalIF":3.4,"publicationDate":"2026-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70854","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148816550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}