Health Expectations最新文献

{"title":"Co-Designing an Engagement Strategy to Include the Voices of a Minority Group in Assessing the Quality of Maternity and Neonatal Care","authors":"Thérèse McDonnell, Jaspreet Kaur Dullat, Louise Hendrick, Léan McMahon, Gemma Moore, Emily Murphy, Carmen Nae, Danut Nae, Marianna Prontera, Eilish McAuliffe","doi":"10.1111/hex.70376","DOIUrl":"https://doi.org/10.1111/hex.70376","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>This study outlines the co-design approach taken to engagement with women from the Roma community to capture their experience of maternity and neonatal care in Ireland. The findings of this study will be used to assess the relevance and completeness of measures of quality and safety of maternity care in capturing these experiences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>An engagement strategy was co-designed with Cairde, a community health development organisation. A series of four workshops were co-designed to facilitate open discussion with women from the Roma community (<i>n</i> = 8) on their experiences and perspectives of maternity and neonatal care in Ireland and to provide information to participants on the progression of pregnancy, preparation for childbirth, their health and healthcare access. The co-design approach aimed to identify and address barriers to effective engagement, including mistrust, experiences of discrimination, accessibility, literacy and language proficiency and to ensure the workshops were delivered in a culturally sensitive manner. A questionnaire to capture details of their experience of accessing and using maternity services was also co-designed with Cairde, whose Roma Programme staff facilitated data collection.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The experience of women from the Roma community using Irish maternity services from pregnancy to childbirth and postnatal care was captured. The involvement of Cairde gained the trust of participants, facilitated open discussion and ensured full engagement throughout. The use of pictures/graphics and verbal communication with non-technical language, with translation and interpretation by Roma Peer Support Workers, ensured the online workshops were accessible. Online delivery was made possible within the existing digital framework of Cairde's Roma Programme.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Through partnering with Cairde, a community health development organisation with the capacity to participate and strong links to the Roma community, the many barriers to engagement with this marginalised minority community were addressed. This partnership approach afforded the research team privileged access to the Roma community, facilitating the team to engage with this seldom-heard group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>This collaboration between academic researchers, staff","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70376","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144815020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating a Codesign Process in Mental Health: ‘Harnessing the Power of Together’","authors":"Michelle Kehoe, Hannah Friebel, Kirsty Rosie, Paul Kremer, Frances Shawyer, Graham Meadows, Ingrid Ozols","doi":"10.1111/hex.70371","DOIUrl":"https://doi.org/10.1111/hex.70371","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Mental health services often undertake codesign processes to inform and enhance service delivery, however, there continue to be many challenges undertaking codesign activities in mental health.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>The aim of this study was to evaluate a codesign process undertaken for a project seeking to enhance consumer choice and satisfaction at one acute mental health inpatient setting in Melbourne, Victoria.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>A five-stage codesign process evaluation was undertaken. Data collected at each stage included surveys, feedback and reflections. The data was analysed using basic data analysis and a thematic approach. Data was used for the evaluation of each stage and to inform subsequent stages. This paper describes the various activities undertaken within the codesign process which we sought to examine post hoc using the context, input, process and product (CIPP) framework.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Findings</h3>\u0000 \u0000 <p>The findings derived from the various data collection stages including the workshops and staff reflections highlighted two main foci, ‘direct experience’ and ‘the bigger picture’. First, the participants from the codesign workshops highlighted their experience including both positive experiences such as feeling heard and seen, and challenges such as having a lack of knowledge. For staff, the focus was on the bigger picture around codesign such as engaging consumers and adapting the approach as needed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>The study highlighted some of the challenges and benefits found undertaking a codesign process. In particular engagement with stakeholders required a higher level of open communication before workshops being undertaken which was important to address a power imbalance. However, the results were limited due to a lack of consumer and staff feedback. The team reflections sought to provide reasons for this limitation which was attributed to a lack of organisational readiness, stakeholder engagement, differing expectations, lack of time, and power differentials. The CIPP framework was used as a tool to undertake a post hoc evaluation of this complex codesign process undertaken.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Codesign processes will continue to grow as the preferred met","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70371","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811302","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of Tobacco Smoking and Quitting Among Mental Health Consumers","authors":"Helena Roennfeldt,&nbsp;Marianne Wyder,&nbsp;Coral Gartner,&nbsp;Alice Holland,&nbsp;Norah Elvidge,&nbsp;Dan Siskind,&nbsp;Cheneal Puljević","doi":"10.1111/hex.70377","DOIUrl":"https://doi.org/10.1111/hex.70377","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Rates of smoking remain high in people who have a diagnosis of mental illness. The high prevalence of smoking in this population highlights the need to engage people experiencing mental ill-health in enhancing quit-smoking programs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This study examined the experience of tobacco smoking, reasons for and benefits of quitting smoking among people diagnosed with a mental illness. We conducted in-depth, semi-structured interviews with 17 participants who had attempted to quit smoking to gain insights into their experiences and gather recommendations for improved smoking cessation support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Findings indicate a link between smoking and mental health, with consumers using smoking as a way to cope with psychological distress. Often, the reasons for quitting smoking were associated with increased personal recovery.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study highlights the role of support and the right timing to maximise consumers' likelihood of quitting smoking. Smoking cessation interventions should be delivered in a recovery-focused way, which enhances self-determination and the personal decision to quit smoking.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Consumer Contribution</h3>\u0000 \u0000 <p>The first author is in a designated lived experience (Consumer) role. The first author conducted the interviews and was explicit regarding their lived experience of mental health challenges and experience as an ex-smoker when engaging with participants.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70377","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study","authors":"Margaret E. O'Hara,&nbsp;Kiera McDuff,&nbsp;Hannah Wei,&nbsp;Lisa McCorkell,&nbsp;Catherine Thomson,&nbsp;Mary Kelly,&nbsp;Susie Goulding,&nbsp;Imelda O'Donovan,&nbsp;Sarah O'Connell,&nbsp;Ruth Stokes,&nbsp;Nisa Malli,&nbsp;Natalie St. Clair-Sullivan,&nbsp;Soo Chan Carusone,&nbsp;Angela M. Cheung,&nbsp;Kristine M. Erlandson,&nbsp;Ciaran Bannan,&nbsp;Liam Townsend,&nbsp;Colm Bergin,&nbsp;Jaime H. Vera,&nbsp;Richard Harding,&nbsp;Lisa Avery,&nbsp;Darren A. Brown,&nbsp;Kelly K. O'Brien","doi":"10.1111/hex.70365","DOIUrl":"https://doi.org/10.1111/hex.70365","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and implementation, through to interpretation and knowledge translation; nevertheless, the process varies across research teams. In this paper, we (1) describe our process undertaking a community-engaged Long Covid research study; (2) evaluate our community-engaged approach, highlighting strengths and limitations with our process; and (3) identify recommendations for engaging in community-engaged patient-oriented research in Long Covid.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Guided by the 4PI (Principles; Purpose; Presence; Process; Impact) Framework and Patient-Led Research Scorecards, we describe our community-engaged approach within the Long COVID and Episodic Disability Study, followed by an evaluation of our community engagement using a multistage consultation with members of the Long COVID and Episodic Disability Study team. We conducted an online group-based discussion among persons with lived experiences and administered a web-based Scorecard questionnaire rating the collaboration as it relates to four domains of patient burden, governance, integration into the research process, and organisation readiness to all members of the team, to assess strengths and limitations of our approach. Scores ranged from −2 (non-collaboration) to +2 (ideal collaboration).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Ten team members, five of whom were persons with lived experiences, completed the Scorecard questionnaire. Median Scorecard scores ranged from +1 to +2 for all domains. Five team members with lived experiences, representing four community support groups and organisations that participated in the community-engagement discussion. We describe the practices and principles that enabled meaningful community engagement, with the strengths and limitations of our approach embedded throughout.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Our community-engaged approach to the Long COVID and Episodic Disability Study enhanced the quality and relevance of the study to the community while highlighting areas to heighten meaningful engagement throughout. This study builds on foundational community-based research principles of patient-oriented research. Recommendations derived from our experiences may be used by other research teams conducting community-engaged patient-oriented research.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70365","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating Discharge From Early Intervention in Psychosis Services: A Qualitative Exploration of the Experiences of Service Users and Carers","authors":"Michelle Rickett,&nbsp;Tom Kingstone,&nbsp;Veenu Gupta,&nbsp;David Shiers,&nbsp;Paul French,&nbsp;Belinda Lennox,&nbsp;Ed Penington,&nbsp;Ryan Williams,&nbsp;Isobel Hoppe,&nbsp;Carolyn A. Chew-Graham","doi":"10.1111/hex.70375","DOIUrl":"https://doi.org/10.1111/hex.70375","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Early Intervention in Psychosis (EIP) services in England offer up to 3 years' time-limited support to people experiencing early psychosis. Service users (SUs) are discharged to primary care, a community mental health team (CMHT), or other specialist mental health service. The aim of this study is to explore the SU and carer journey through discharge from EIP and into the early post-discharge period.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Qualitative longitudinal study comprising semi-structured interviews with SUs and carers at, or shortly after, discharge from EIP, and follow-up interviews with SUs 6-11 months later. Data collection conducted between January 2023–September 2024 and informed by information power. Data were thematically analysed by a multidisciplinary team.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>SUs and carers expressed their desire to be actively involved in EIP discharge planning and decision-making. They contrasted close relationships with EIP practitioners with inaccessibility of care and difficulties navigating healthcare systems after discharge. Some SUs described feelings of abandonment and expressed a wish for transitional support, and proactive, relationship-based care post-discharge. Carers played an important role as patient advocates but were rarely offered support themselves.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Improved collaboration is needed between SUs, carers and primary care/CMHT practitioners in the build-up to EIP discharge. There should be proactive contact from primary care at the point of discharge and in the early post-discharge period. Carer needs are often overlooked; primary care could utilise the ‘carers register’ and proactively offer support.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Patient and carer involvement and engagement was key to all stages of this study. The research team met regularly with our two co-investigators with lived experience (as a service user and a carer), who contributed to data analysis and writing this paper. We worked closely with our patient and carer advisory group, EXTEND-ing, throughout the research process. They helped formulate research questions, co-designed topic guides and participant information sheets, and contributed to data analysis and interpretation.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70375","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Designing Aphasia Services: Evaluation of Involvement and Processes to Support Inclusion of People With Post Stroke Aphasia","authors":"Lisa Anemaat,&nbsp;David A. Copland,&nbsp;Victoria J. Palmer,&nbsp;Sarah J. Wallace","doi":"10.1111/hex.70372","DOIUrl":"https://doi.org/10.1111/hex.70372","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;People with aphasia (PWA, impaired language/communication) are often excluded from research that concerns them due to a lack of methodological adaptations to support communication. This paper describes adaptations to support their involvement in experience-based codesign (EBCD).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Aims&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To describe the involvement of PWA in EBCD and critically evaluate adaptations required to support involvement.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Mixed methods process evaluation and reflexive critical appraisal with PWA, significant others (SO), and speech pathologists (SP). Using surveys, stakeholders (&lt;i&gt;n&lt;/i&gt; = 127) and a consumer advisory group (CAG; &lt;i&gt;n&lt;/i&gt; = 6) provided feedback on involvement in five stages of the research: (1) online interviews and focus groups; (2) online surveys; (3) consensus meetings; (4) codesign workshops; and (5) the CAG. Critical reflections (lead researcher) informed the analysis. Descriptive statistics and inductive content analysis were used.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Most PWA (79%) liked sharing their experiences online, and contributed as much as desired in group meetings (64%). A modified touchpoint film approach (use of voice actors, still images, and subtitles) supported reflexive discussions and collaborative understanding. All PWA and SO, and most SPs (78%) thought the touchpoint film helped them to understand experiences of care and areas for change. Long-term engagement in the project was perceived to help build relationships, reduce hierarchical power differentials and support equal sharing of ideas.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Meaningful involvement of PWA was supported through long-term engagement, a modified touchpoint film approach, and hybrid methods of data collection. EBCD is a suitable approach for exploring experiences of care, identifying leading priorities, and co-designing areas for change with PWA.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This evaluation is informed by the reflections of the research team. This team included the consumer advisory group (public involvement team members) comprising PWA (&lt;i&gt;n&lt;/i&gt; = 3), SOs (&lt;i&gt;n&lt;/i&gt; = 2) and a Cultural Capability Officer. Research team members (LNA, DAC, VJP, and SJW) designed the study (including researc","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70372","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811303","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned","authors":"Sharon Grieve,&nbsp;Rosie Harrison,&nbsp;Carolyn Chew-Graham,&nbsp;Ian Taverner,&nbsp;Joanne Lloyd,&nbsp;Noureen Shivji,&nbsp;Ellen Readman,&nbsp;Adele Higginbottom,&nbsp;Colin Wilkinson,&nbsp;Lisa Austin,&nbsp;Edmund Keogh,&nbsp;Candida McCabe","doi":"10.1111/hex.70373","DOIUrl":"https://doi.org/10.1111/hex.70373","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a 4-year UK university collaboration investigating how thoughts and feelings, personal relationships and lifestyle can affect chronic pain. Patient and public involvement in research recognises that researchers' conceptions of health and illness can be enriched and sense-checked by those of people experiencing a health condition. Published literature reports a gap in meaningful patient and public involvement in research into chronic pain, for example, during early study design. Input in this formative stage aimed to ensure the research proposed had a patient-centred focus which may benefit study implementation.</p>\u0000 \u0000 <p>We describe how the authors sought to address this gap and established a diverse public involvement (PI) network to support the CRIISP research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Thirty-six adult public contributors were appointed to work alongside the research teams. Lessons learned are presented under the themes: optimising collaborative working, recruitment of public contributors, supporting public involvement throughout CRIISP and the retention of public contributors. Throughout this paper, we refer to the term ‘public involvement’ rather than ‘patient and public involvement’ in accordance with the NIHR definition which incorporates people with a range of experiences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Working in partnership with our public contributors, we have embedded PI throughout a chronic pain research programme using an innovative and collaborative process.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This model may inform others to maximise the potential of PI within their research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>The paper reports the collaboration between public contributors with a lived experience of chronic pain and the Consortium to Research Individual, Interpersonal and Social influences in Pain (CRIISP) researchers, by means of a large public involvement network.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70373","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144811046","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adaptation of the Content of a Behavioural Text Message Delivered Weight Management Intervention for a Socio-Culturally and Geographically Diverse Population of Postpartum Women in the UK: The Supporting MumS (SMS) Intervention","authors":"Eleni Spyreli,&nbsp;Lizzie Caperon,&nbsp;Emma Ansell,&nbsp;Sara Ahern,&nbsp;Sally Bridges,&nbsp;Elinor Coulman,&nbsp;Stephan U. Dombrowski,&nbsp;Frank Kee,&nbsp;Jayne V. Woodside,&nbsp;Dunla Gallagher,&nbsp;Michelle C. McKinley","doi":"10.1111/hex.70368","DOIUrl":"https://doi.org/10.1111/hex.70368","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The Supporting MumS (SMS) intervention, originally piloted in Northern Ireland, United Kingdom (UK), uses automated text messages aiming to support diet and physical activity behaviour change for weight management in the postpartum period. Before testing the effectiveness of the SMS intervention in a UK-wide randomised controlled trial, it was important to ensure that the core component of the intervention was acceptable and culturally relevant for a diverse range of women across different regions of the UK.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;to undertake Personal and Public Involvement (PPI) to adapt the content of the previously developed library of text messages for a socio-culturally and geographically diverse population of postpartum women.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Setting and Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Recruitment focused on mothers who lived in London, Bradford and various locations in Scotland, who had had a child within the last 2 years and had struggled with their weight. Existing PPI networks and community groups helped identify PPI representatives.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The PPI activities employed an iterative process including three stages: (1) an online group session to review some of the text messages and provide immediate feedback; (2) online group sessions to review adaptations made to messages; and (3) working remotely on a one-to-one basis with PPI collaborators to review and provide comments and suggestions on the entire text message library (previously modified based on feedback from stages 1 and 2).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A total of 19 PPI representatives responded to the invitation and 18 contributed to the review of the SMS text messages: &lt;i&gt;n&lt;/i&gt; = 12 from England [&lt;i&gt;n&lt;/i&gt; = 4 from London (African-Caribbean ethnicity); &lt;i&gt;n&lt;/i&gt; = 8 from Bradford (Asian ethnicity]; &lt;i&gt;n&lt;/i&gt; = 6 from Scotland (White ethnicity). During a period of 9 months (July 2021-March 2022), they provided unprompted, positive feedback about the overall concept of a text message-delivered intervention to support postpartum weight management. During review and discussion of the original text message content they suggested minor amendments on the length, language, humour and cultural relevance of the text messages. Overall, no messages needed major re-writing.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; C","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70368","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144782452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘It Is Like a Cross-Stitch … All Joined Together But Not Making a Very Nice Pattern’: A Qualitative Study of Patient Perspectives on Physical Health Inequalities in Severe Mental Illness","authors":"Tassia Kate Oswald,&nbsp;Stan Papoulias,&nbsp;Julie Williams,&nbsp;Jayati Das-Munshi","doi":"10.1111/hex.70367","DOIUrl":"https://doi.org/10.1111/hex.70367","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>People with severe mental illness (SMI) have worse physical health than the general population and face a range of challenges with their healthcare. This study aimed to explore the interplay of issues across system, service, social and individual levels that impact healthcare experiences and outcomes from the perspective of people with comorbid SMI and physical health needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A qualitative study was conducted. Fifteen individuals participated through focus groups and interviews (mean age = 55 years; range = 39–74 years). Participants were secondary mental health service users living with comorbid SMI and physical health condition(s) in South East London, the United Kingdom. Data were analysed through a process of inductive thematic analysis with reflexive elements.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Seven themes were generated, demonstrating the interplay of system, service, social and individual-level issues. The first two focused on prevailing issues described by participants, including ‘systemic barriers to effective and equitable social and health care’ and ‘interpersonal stigma exacerbating inequalities’. The third and fourth themes described the consequences of these issues: ‘services turning to medication in response to multiple constraints’ and ‘inequities limiting individual actions’. Themes 5 and 6 centred on creating equitable conditions for people with SMI and physical healthcare needs, including ‘the role of informal and formal social supports’ and ‘patient perspectives on what works in health services’. The seventh cross-cutting theme described the ‘intertwined nature of mental and physical health’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Implications</h3>\u0000 \u0000 <p>This study highlights systemic barriers and interpersonal stigma as sources of inequality for people with comorbid SMI and physical health needs. The findings highlight the need for investment in social and healthcare roles, services and systems which can be responsive to compounding risks experienced by these individuals. Both physical and mental health needs, and their interactions, should be considered, along with the cumulative impact of poor socio-economic conditions and stressors.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>A service user steering group, comprising five people with lived experience of SMI, was convened to support the study. The group met to inform ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70367","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144782176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Medicine Preferences of Older Adults: The Role of Messaging in a Multi-Methods Experimental Survey","authors":"Alexander Chaitoff,&nbsp;Kristie Rebecca Weir,&nbsp;Vincent D. Marshall,&nbsp;Sarah E. Vordenberg","doi":"10.1111/hex.70366","DOIUrl":"https://doi.org/10.1111/hex.70366","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Efforts to optimise medicine use often focus on starting evidence-based therapies or deprescribing inappropriate medicine, but not on the combination of both. We explored whether behavioural science-informed messaging could impact older adults' decisions on starting and stopping diabetes medicine.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A 15-min online survey was conducted using a hypothetical vignette among adults 65 years and older from Australia and the United States. Participants were randomised in two experiments: the first involved different framings of a primary care provider (PCP)'s rationale for starting a diabetes medicine, and the second focused on stopping the same medicine 10 years later. Preferences were measured using 6-point Likert scales. Data were analysed using descriptive and nonparametric statistics. We also conducted a descriptive thematic analysis of participants' free-text responses explaining their preferences.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Out of 2420 participants, 68.5% agreed with starting the medicine, whereas 64.4% agreed with stopping it (<i>p</i> = 0.009). The proportion of participants who agreed with the recommendation to start or stop the medicine did not differ by the messaging they received in the first experimental treatment. However, participants were more likely to agree with a recommendation to stop a medicine if they received messaging about the medicine's harms versus lack of benefit (69.7% vs. 59.1%, <i>p</i> &lt; 0.001). Thematic analysis revealed that participants' trust in clinician expertise, their perceptions of the medicine (e.g., benefits, harms, necessity and burdens) and a hesitance to change influenced their decisions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Two-thirds of participants agreed with the recommendation to start and stop a diabetes medicine regardless of messaging at medicine initiation. Subsequent messaging focused on the potential harm of continuing a medicine significantly increased participants' agreement with deprescribing compared to messaging about the lack of benefit.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Older adult community members and general practitioners contributed to the development of the survey and vignette, helping to refine the content and improve its clarity and relevance.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70366","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144782177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}