Sharon Grieve, Rosie Harrison, Carolyn Chew-Graham, Ian Taverner, Joanne Lloyd, Noureen Shivji, Ellen Readman, Adele Higginbottom, Colin Wilkinson, Lisa Austin, Edmund Keogh, Candida McCabe
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Input in this formative stage aimed to ensure the research proposed had a patient-centred focus which may benefit study implementation.</p>\n \n <p>We describe how the authors sought to address this gap and established a diverse public involvement (PI) network to support the CRIISP research.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Thirty-six adult public contributors were appointed to work alongside the research teams. Lessons learned are presented under the themes: optimising collaborative working, recruitment of public contributors, supporting public involvement throughout CRIISP and the retention of public contributors. Throughout this paper, we refer to the term ‘public involvement’ rather than ‘patient and public involvement’ in accordance with the NIHR definition which incorporates people with a range of experiences.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Working in partnership with our public contributors, we have embedded PI throughout a chronic pain research programme using an innovative and collaborative process.</p>\n </section>\n \n <section>\n \n <h3> Conclusion</h3>\n \n <p>This model may inform others to maximise the potential of PI within their research.</p>\n </section>\n \n <section>\n \n <h3> Patient or Public Contribution</h3>\n \n <p>The paper reports the collaboration between public contributors with a lived experience of chronic pain and the Consortium to Research Individual, Interpersonal and Social influences in Pain (CRIISP) researchers, by means of a large public involvement network.</p>\n </section>\n </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 4","pages":""},"PeriodicalIF":3.2000,"publicationDate":"2025-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70373","citationCount":"0","resultStr":"{\"title\":\"Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned\",\"authors\":\"Sharon Grieve, Rosie Harrison, Carolyn Chew-Graham, Ian Taverner, Joanne Lloyd, Noureen Shivji, Ellen Readman, Adele Higginbottom, Colin Wilkinson, Lisa Austin, Edmund Keogh, Candida McCabe\",\"doi\":\"10.1111/hex.70373\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div>\\n \\n \\n <section>\\n \\n <h3> Introduction</h3>\\n \\n <p>The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a 4-year UK university collaboration investigating how thoughts and feelings, personal relationships and lifestyle can affect chronic pain. 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Establishing a Public Involvement Network for Chronic Pain Research in the United Kingdom: Lessons Learned
Introduction
The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a 4-year UK university collaboration investigating how thoughts and feelings, personal relationships and lifestyle can affect chronic pain. Patient and public involvement in research recognises that researchers' conceptions of health and illness can be enriched and sense-checked by those of people experiencing a health condition. Published literature reports a gap in meaningful patient and public involvement in research into chronic pain, for example, during early study design. Input in this formative stage aimed to ensure the research proposed had a patient-centred focus which may benefit study implementation.
We describe how the authors sought to address this gap and established a diverse public involvement (PI) network to support the CRIISP research.
Methods
Thirty-six adult public contributors were appointed to work alongside the research teams. Lessons learned are presented under the themes: optimising collaborative working, recruitment of public contributors, supporting public involvement throughout CRIISP and the retention of public contributors. Throughout this paper, we refer to the term ‘public involvement’ rather than ‘patient and public involvement’ in accordance with the NIHR definition which incorporates people with a range of experiences.
Results
Working in partnership with our public contributors, we have embedded PI throughout a chronic pain research programme using an innovative and collaborative process.
Conclusion
This model may inform others to maximise the potential of PI within their research.
Patient or Public Contribution
The paper reports the collaboration between public contributors with a lived experience of chronic pain and the Consortium to Research Individual, Interpersonal and Social influences in Pain (CRIISP) researchers, by means of a large public involvement network.
期刊介绍：
Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including:
• Person-centred care and quality improvement
• Patients'' participation in decisions about disease prevention and management
• Public perceptions of health services
• Citizen involvement in health care policy making and priority-setting
• Methods for monitoring and evaluating participation
• Empowerment and consumerism
• Patients'' role in safety and quality
• Patient and public role in health services research
• Co-production (researchers working with patients and the public) of research, health care and policy
Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.
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