Health Expectations最新文献

{"title":"Recognising Consumers' Contributions to Health Research: Co-Designing a Remuneration Framework for the Australian Context","authors":"Mingming Zhou, Anne Parkinson, Lucy Clynes, Jane Desborough","doi":"10.1111/hex.70314","DOIUrl":"https://doi.org/10.1111/hex.70314","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Consumer engagement ensures research reflects lived health experiences and remains relevant to consumers' needs. However, challenges persist in appropriately recognising their contributions. Remuneration for consumers' time, skills and expertise, alongside reimbursing out-of-pocket expenses, remains a key challenge. While individual remuneration policies exist across Australian states and territories, a cohesive national framework has yet to be developed.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>This study aimed to develop a remuneration framework recognising consumers' contributions to health research in Australia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The framework was developed through: (1) a review of the international literature and Australian state- and territory-based consumer advocacy organisation remuneration guidelines, (2) a stakeholder survey of current practices and (3) integration of findings to develop four preliminary remuneration models, which were presented for deliberation in six workshops with key stakeholders. Workshop data were analysed using framework analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Workshop participants included twelve representatives from research organisations and nine consumers with chronic conditions. The final framework comprises: (1) decision-making considerations, (2) remuneration rates (project-based, meeting-based and hourly rates), (3) payment methods and (4) non-financial recognition approaches. The framework was designed to address the needs of diverse organisations, from small not-for-profit entities to larger research institutions with dedicated funding.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This study developed the first nationwide remuneration framework to guide the Australian research community in recognising consumers' contributions to health research. While not the only model for remuneration decision-making, it serves as a valuable starting point for dialogue and future policy development. Further evaluation incorporating consumer partners' experiences across diverse research contexts is essential to enhance the framework's applicability and foster fair recognition for contributions to research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Contribution</h3>\u0000 \u0000 <p>A project working group, including representatives fr","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70314","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144171478","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving How Healthcare Staff Support the Psychological Well-Being of People Living With Post-Stroke Aphasia: A Co-Created Study","authors":"Sarah Northcott, Amanda Comer, Abi Roper, Lydia Davis, Katerina Hilari","doi":"10.1111/hex.70303","DOIUrl":"https://doi.org/10.1111/hex.70303","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background and Aims</h3>\u0000 \u0000 <p>Aphasia, a language disability, is common following a stroke. People with aphasia are at risk of becoming depressed and isolated, yet due to their communication difficulties, healthcare staff find it challenging to support their emotional well-being. This study aimed to explore what people with aphasia and their families consider important when training healthcare staff to support their psychological well-being post stroke.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We ran co-design workshops with six stakeholders with lived experience: four people with aphasia and two family members. The content of the workshops was allowed to evolve in a collaborative manner, with an assumed equality between the facilitators and lived experience stakeholders. Workshop material was analysed using Framework Analysis. We then co-produced four films to raise awareness and train healthcare professionals.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five main themes from the workshops were: (1) interactions with healthcare staff that support psychological well-being (e.g., listening with empathy, seeing patients as people, hope and encouragement, kindness and knowledge of aphasia); (2) interactions with healthcare staff that damage psychological well-being (e.g., feeling told off, being talked about and not included, not feeling listened to, not being supported to communicate and not feeling treated like a human being); (3) experiences of psychological therapy and mental health services; (4) who should provide psychological support and (5) influencing healthcare practice. The four films emphasised the personal journeys of lived experience stakeholders and their accounts of interacting with healthcare staff.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Lived experience stakeholders felt strongly that their messages should be heard by all healthcare staff, not just those who elect to go on specialist training courses. They considered that supporting emotional well-being is the responsibility of all staff within stroke care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>People with aphasia and family member stakeholders shaped all aspects of this study; outputs were allowed to evolve in response to their priorities. Initially, the researchers had anticipated that the focus would be on specialist training courses in psychological therapy; this shifted to a new focus on influencing how all healt","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70303","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What Is Important to Older People When Accessing Urgent Health Care: Key Considerations and Recommendations From Consumer Consultations","authors":"Miia Rahja, Sharmilla Zaluski, Leanne Greene, Maria Crotty, Craig Whitehead, Kate Laver","doi":"10.1111/hex.70311","DOIUrl":"https://doi.org/10.1111/hex.70311","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Emergency departments (ED) worldwide are under pressure. Older people are disproportionally represented in ED, and many of these presentations are for nonlife-threatening ailments that could be attended to elsewhere. Urgent care services have been established to relieve ED pressures and may be a better alternative for older people with urgent but nonlife-threatening health issues. The purpose of this study was to understand the needs and preferences of older people when accessing urgent care, and what an ideal journey through an urgent care service would look like.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This qualitative study consisted of three consumer workshops with engagement activities designed and facilitated by an organisation designed to advocate for the rights and interests of older people in Adelaide, South Australia. Primary analysis was completed using a framework analysis approach, which consisted of identifying key themes and meanings in the audio-recorded data and workshop outputs (including maps, notes and lists). Regular team meetings were held to discuss findings to enhance study rigour.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 39 participants aged 65 and above took part in the workshops. Most participants were female (<i>n</i> = 24, 62%), born in Australia (<i>n</i> = 26, 67%) and only spoke English at home (<i>n</i> = 36, 92%). Most participants (<i>n</i> = 33, 85%) had recent experience with ED. Four themes emerged regarding the needs and preferences for urgent care services: (1) accessible and responsive, (2) age appropriate with expert care, (3) listen to me, my story and (4) safe and well-planned discharge. Participants felt that there needs to be more information available to the public about urgent care services for older people.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study has identified needs and preferences of older people when accessing urgent care services. Services should consider these preferences when implementing or refining urgent care services to maximise acceptability.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Involvement</h3>\u0000 \u0000 <p>Our workshops engaged service users to explore and articulate their needs and preferences for service development in an urgent care setting for individuals aged 65 and older. These workshops involved public participation to evaluate the currently available services and reflect on their ideal future d","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70311","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Producing and Evaluating a Culturally Inclusive Dementia Education Initiative: A Multimethod Study Protocol","authors":"Gabriela Caballero, Ann Dadich, Michelle DiGiacomo, Nicky Morrison, Charles Okafor, Joyce Siette, Genevieve Z. Steiner-Lim, Dementia Friends Unite Stakeholders, Diana Karamacoska","doi":"10.1111/hex.70307","DOIUrl":"https://doi.org/10.1111/hex.70307","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Limited dementia awareness among culturally and linguistically diverse communities can exacerbate stigma and hinder support for carers and people at risk of or living with dementia. Co-producing a culturally inclusive dementia education intervention with representative stakeholders can address these knowledge and service gaps. This paper details the protocol for designing and evaluating a co-produced multilingual dementia education intervention named Dementia Friends Unite. This project aims to improve dementia knowledge, attitudes and supportive practices in a multicultural context.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Method</h3>\u0000 \u0000 <p>This project will be conducted in South Western Sydney, Australia, where Arabic, Cantonese, English, Greek, Mandarin and Vietnamese are the most common languages spoken. A multi-stakeholder collaboration involving representatives from each of these communities was formed to co-produce the multilingual dementia education intervention. Two studies are planned to explore the co-production process and evaluate the intervention's impact, guided by implementation science frameworks. Study 1 will examine stakeholder and researcher experiences in co-production through minuted meetings and responses to the patient and public engagement evaluation tool. Data will be descriptively analysed to identify the barriers and facilitators to co-production. Study 2 involves evaluating the initiative's impact according to the RE-AIM framework. Outcome measures include intervention reach and effectiveness in changing participants' knowledge, attitudes and supportive practices through questionnaires (pre-, post- and follow-up) and interviews; adoption and implementation characteristics through focus groups with stakeholders and facilitators; and maintenance through a cost–benefit analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>This project will employ a comprehensive approach to address unmet needs and research gaps in co-produced dementia education and its implementation in multicultural contexts. It can serve as a blueprint for others seeking to engage culturally diverse populations in community-based health education and research.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>A multi-stakeholder collaboration involving representatives from local government and care services, as well as people with living and caring experiences of dementia, from each of the targeted communities, was formed to co-produce this initiative. Their involvement spans study design, conduct, inte","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70307","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing an Inclusive Dance Guide for Children With Cerebral Palsy: A Co-Design Process and Initial Feasibility Study","authors":"Eduardo Duarte Machado,&nbsp;Laura Miller,&nbsp;Joanna Nicholas,&nbsp;Joanne Cross,&nbsp;Rhyannon Orr,&nbsp;Michael H. Cole","doi":"10.1111/hex.70304","DOIUrl":"https://doi.org/10.1111/hex.70304","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Participation in community activities has shown positive outcomes for all children, yet those with cerebral palsy (CP) still experience varying levels of inclusion. This study aimed to address the challenges faced by families of children with CP in accessing community-based dance classes by co-designing a practical guide to support their inclusion.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>The guide was developed through a collaborative process involving academic researchers, dance professionals, therapists and families of children with CP. The co-design phase was guided by the International Association for Public Participation (IAP2), workshops were conducted with 11 research partners, including two parents of children with CP, two community dance teachers, two therapists with experience in dance interventions and five academic researchers. Feedback from ‘Dance Teacher Reviewers’ who were not involved in the co-design was also incorporated to support the guide's initial feasibility.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The collaborative efforts resulted in an evidence-based guide shaped by lived experiences. It provides actionable strategies to implement inclusive dance approaches effectively, supporting the inclusion of children with CP in community dance settings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The co-designed guide represents a significant step toward facilitating inclusive dance classes for children with CP. Future research should explore the guide's effectiveness and feasibility of implementation across various community settings to ensure its broader applicability and impact.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Parents of children with CP, dance teachers and therapists actively contributed to all stages of this study, from public consultation to collaborative co-design workshops, decision-making, review and refinement of the guide.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70304","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Consumers' Perspectives on the Design of a New Digital Frailty Education Course, ‘Focus on Frailty’: A Qualitative Co-Design Study","authors":"Kristiana Ludlow,&nbsp;Benignus Logan,&nbsp;Jhalak Arora,&nbsp;Sarah Martin,&nbsp;Elizabeth Miller,&nbsp;Ruth E. Hubbard,&nbsp;Nicola Warren,&nbsp;Olivia Gallagher,&nbsp;Rosemary Saunders","doi":"10.1111/hex.70287","DOIUrl":"https://doi.org/10.1111/hex.70287","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Frailty-focused care in hospitals is hindered by systemic barriers, ageism and stereotypes about older adults and frailty. There is a need for frailty education to increase healthcare professionals' and students' understanding of frailty.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;As part of a larger study to co-design a new digital frailty education course, ‘Focus on Frailty’, this study aimed to explore consumers' and caregivers' perspectives on (i) how frailty and older adults should be represented in frailty education and (ii) what healthcare professionals should be taught about caring for older adults and people who are frail in hospitals.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This was a qualitative co-design study.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Setting and Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants (&lt;i&gt;n&lt;/i&gt; = 25) were older Australians, people living with frailty and family caregivers (collectively, ‘consumers’) who had interacted with the hospital system. This study was conducted in Australia via Zoom and telephone.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants engaged in focus groups or individual interviews and completed a demographic questionnaire and a Research Engagement Feedback Survey. Qualitative data were inductively analysed using template analysis (codebook thematic analysis). Quantitative demographic data were analysed using descriptive statistics.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Seven themes were identified: (1) Consumers' understanding of frailty as loss, deterioration and vulnerability; (2) Utilise a holistic approach to frailty care; (3) Dispel stereotypes; (4) Value consumers' lived experience expertise; (5) Include diverse representation and educate for diversity; (6) Promote meaningful interactions; and (7) Practice care coordination.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Discussion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants acknowledged the multifaceted nature of frailty, advocating for holistic frailty education that considers physical, social, emotional, cognitive, financial and spiritual aspects. They described the importance of representing real-world scenarios and stories, images and videos of real people that reflected the diversity of lived experience. Participants wanted ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70287","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Collaborating With Young People: Identifying the Barriers and Facilitators in Co-Designed Research","authors":"Briony Lipton,&nbsp;Helen Dickinson,&nbsp;Jodie Bailie,&nbsp;Belinda Hewitt,&nbsp;Anne Kavanagh,&nbsp;Zoe Aitken,&nbsp;Marissa Shields","doi":"10.1111/hex.70308","DOIUrl":"https://doi.org/10.1111/hex.70308","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Undertaking collaborative research with young people could result in more relevant research and policy. However, there remains a limited understanding of the barriers and facilitators to meaningfully working with young people. This scoping review aimed to identify the barriers and facilitators of engaging young people in codesign research processes.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This scoping review drew on methodological guidance from JBI. Searches were conducted in Proquest, Scopus, Informit, and Science Direct for relevant peer-reviewed publications for the period of January 2003–August 2023. Publications were included if they used the term codesign and/or related participatory research methods with young people aged 15–24 years. Two independent reviewers undertook all stages of screening and data extraction, with consensus reached at each stage of the study. Qualitative content analysis was used to group results into key themes.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The search yielded 1334 publications, with 41 meeting inclusion criteria. Publications varied with respect to the age range of included young people, and focused on a variety of populations, including young people with mental ill-health, with disabilities, First Nations youth, and young people involved with specific services or programs. In analyzing the barriers and facilitators to engaging young people in co-designed research we found overall that facilitators included consistent funding, dedicated staff, flexible methods, and youth involvement as co-creators, supported by community networks and extended timelines. Key barriers were limited resources, staff capacity, and logistical challenges like recruitment, transportation, and external responsibilities, which hinder participation.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In conclusion, there is no universal approach to codesign; instead, every project depends on the interplay of various factors. Elements such as resources, communication, process, agency, investment, and relationships can either facilitate or hinder progress, depending on how they are handled. A project that effectively incorporates these interconnected and interdependent factors is much more likely to foster meaningful and lasting collaboration.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study was a scoping review and did not involve patients, service users, c","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70308","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144148554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Mixed-Methods Study Exploring the Feasibility of a Digital Combined Lifestyle Intervention for Patients With Post Covid-19 Condition","authors":"Debbie Gach,&nbsp;Charlotte D. C. Born,&nbsp;Lisanne L. T. Schuurman,&nbsp;Frits H. M. van Osch,&nbsp;Joop P. van den Bergh,&nbsp;Sanne M. P. L. Gerards,&nbsp;Rik Crutzen,&nbsp;Annemie M. W. J. Schols,&nbsp;Rosanne J. H. C. G. Beijers,&nbsp;the P4O2 Consortium","doi":"10.1111/hex.70299","DOIUrl":"https://doi.org/10.1111/hex.70299","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Low physical activity and poor dietary quality can negatively influence Covid-19 recovery and increase the risk and duration of post-Covid-19 condition (PCC). This proof-of-concept nested intervention study aimed to evaluate the feasibility of a digital personalised combined lifestyle intervention (CLI) in patients with PCC using a mixed-methods design, assessing compliance, experiences and perceived effectiveness.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A nested intervention study, incorporating motivational interviewing aiming to enhance physical activity and dietary quality, was conducted within a multicentre prospective cohort study including 95 post-Covid-19 patients (aged 40–60) between May 2021 and September 2022. Patients in the intervention and control groups were followed at ±3–6 and ±12–15 months post Covid-19. The intervention consisted of nine monthly individual counselling sessions (30 min), two interactive-group sessions (60 min), and three educative webinars (45 min). Additionally, a nutritional supplement (NS; Remune, Smartfish, Oslo, Norway) high in omega-3 fatty acids, vitamin D and protein was provided to facilitate recovery. After the intervention, a process evaluation was conducted, comprising an evaluation questionnaire and semi-structured in-depth interviews.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The intervention-to-treat group consisted of 47 patients (age 54.7 ± 6.0 years; 40% males; BMI 30.6 ± 5.8 kg/m&lt;sup&gt;2&lt;/sup&gt;) of whom 74% had ≥ 8 individual sessions via telephone (66%) or video call (34%). Over half of the group (55%) attended the educative webinars, while attendance was lower in the interactive-group sessions, with 32% attending one session and 15% two sessions. The process evaluation indicated that patients were satisfied with the digital coaching and the frequency, duration and content of the sessions. Half of the patients reported perceived improvements in physical activity levels and dietary quality throughout the intervention, with the majority also reporting sustainment of these lifestyle changes post-intervention.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A digital personalised CLI was well-received among patients with PCC regarding compliance, experiences and perceived effectiveness. These findings will guide the development and implementation of tailored interventions to enhance overall well-being among patients with PCC.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contri","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70299","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144135543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Protocol for the Process Evaluation of the SENSE-Cog Sensory Support Intervention Field Trial to Improve Quality of Life for Older People Receiving Home Care in Australia","authors":"Helen Gurteen,&nbsp;Melinda Toomey,&nbsp;Bronwyn Franco,&nbsp;Rebecca Bennett,&nbsp;Dayna R. Cenin,&nbsp;Najwan El-Saifi,&nbsp;Melanie Ferguson,&nbsp;Yuanyuan Gu,&nbsp;Chyrisse Heine,&nbsp;Lisa Keay,&nbsp;Sheela Kumaran,&nbsp;Sabrina Lenzen,&nbsp;Iracema Leroi,&nbsp;Judy A. Lowthian,&nbsp;Carly J. Meyer,&nbsp;Leander K. Mitchell,&nbsp;John Newall,&nbsp;Nancy A. Pachana,&nbsp;Marianne Piano,&nbsp;Smriti Raichand,&nbsp;Emma Scanlan,&nbsp;Hamid R. Sohrabi,&nbsp;Piers Dawes","doi":"10.1111/hex.70305","DOIUrl":"https://doi.org/10.1111/hex.70305","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>A field trial of a home-delivered hearing and vision support intervention will assess its impact on the quality of life and well-being of home care recipients with hearing and/or vision impairment and their care partners.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Aims</h3>\u0000 \u0000 <p>This paper outlines the protocol for a process evaluation of the field trial. The process evaluation aims to identify discrepancies between expected and actual outcomes, understand contextual influences, assess implementation fidelity and evaluate the feasibility, appropriateness and acceptability of the intervention.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Data will be collected from 87 home care recipients with hearing/vision impairment, their care partner and the sensory therapist who will deliver the intervention at multiple points during the 3-month intervention. Likert-scale ratings for feasibility, appropriateness and acceptability will be gathered. Proxy measures of fidelity, such as intervention session completion rates, will be obtained to ascertain whether the intervention was delivered as designed. Post-intervention, 20% of participants will complete semi-structured interviews to explore contextual and causal factors. Data analysis will include descriptive statistics, regression analysis and thematic qualitative analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>The process evaluation will elicit the perspectives of home care recipients and their care partners regarding the intervention experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Older adults with lived experience with dementia and hearing and/or vision will contribute to the proposed research by shaping the interview topic guide to ensure its appropriateness and relevance for the target population. Their insights will result in a more rigorous study and improve the likelihood of the final intervention meeting real-world needs.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70305","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144135544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Anticipating the Future in an Uncertain Present: How Individuals Living With Medically Unexplained Cognitive Complaints Value Biomarker-Based Prognostics","authors":"Anne-Fleur van der Meer,&nbsp;Marjan Knippenberg,&nbsp;Denise Visser,&nbsp;Marianne Boenink","doi":"10.1111/hex.70284","DOIUrl":"https://doi.org/10.1111/hex.70284","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In research on Alzheimer's disease (AD) individuals experiencing cognitive problems but not satisfying criteria for mild cognitive impairment (MCI) or AD are referred to as having ‘Subjective Cognitive Decline’ (SCD). A small subset of them will progress to a state justifying an AD diagnosis. AD research trying to identify prognostic biomarkers aims to inform individuals labelled with SCD about the future development of their complaints. This paper explores how persons experiencing these cognitive complaints currently anticipate the future and how they would value emerging biomarker-based prognostic tests.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Semi-structured interviews with 10 individuals experiencing cognitive complaints, some accompanied by their partners. The interviews were coded using ATLAS.ti 22. The exploratory qualitative analysis was conducted using thematic content analysis (TA).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Findings&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The interviewees experience pervasive uncertainty concerning their persistent but medically unexplained cognitive symptoms. Lacking a diagnosis and a prognosis, they anticipate their future considering various scenarios, while mainly acting upon the scenario of developing further cognitive decline/AD dementia.&lt;/p&gt;\u0000 \u0000 &lt;p&gt;Interviewees often interpret questions about prognostication as asking about predicting the likelihood of a future diagnosis, clearly valuing the latter. Most interviewees are positive, assuming it would help them and their relatives prepare for the future. They have specific ideas about what type of prognostic information would be helpful, usually focusing on how cognitive decline would impact their lives, for example, what activities they will be able to continue to engage in, when they will no longer recognise loved ones or what character they will have as a patient.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;People experiencing unexplained cognitive complaints experience pervasive uncertainty about their situation and future. They clearly value the idea of a test predicting with high certainty whether they will be diagnosed with AD in the future. Regarding prognostication, most interviewees expect that such tests could help prepare for the future. However, there is a discrepancy between the outcomes usually measured in prognostic research (like the expected speed of decline) and the specific outcomes meaningful to our interviewees. In view of this gap, it is important to reconsider whether and how the development ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 3","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70284","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144125968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}