Health Expectations最新文献

{"title":"Navigating Power Imbalances and Stigma in Mental Healthcare. Patient-Reported Barriers and Facilitators to Participation in Shared Decision-Making in Mental Health Care, a Qualitative Meta-Summary","authors":"Lien Mertens,&nbsp;Joris Vandenberghe,&nbsp;Geertruida Bekkering,&nbsp;Karin Hannes,&nbsp;Nicolas Delvaux,&nbsp;Pieter Van Bostraeten,&nbsp;Jasmien Jaeken,&nbsp;Bert Aertgeerts,&nbsp;Mieke Vermandere","doi":"10.1111/hex.70239","DOIUrl":"https://doi.org/10.1111/hex.70239","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The use of shared decision-making (SDM) in mental healthcare has been viewed as at least as important as its use in non-mental healthcare settings, but it still does not routinely take place in this setting. To further explore SDM processes with people with lived experience, we provide a qualitative meta-summary on patient-reported barriers and facilitators to participation in SDM within the context of mental healthcare.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Within the set of selected studies for a larger qualitative meta-summary, using five databases, we selected the studies that had surveyed patients with mental illness for further analysis in this paper. Search terms were based on the concepts: ‘decision making’, ‘patient participation’, ‘patient perceptions’ and ‘study design’ of patient reporting, including patient surveys, interviews and focus groups.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Out of the 90 studies that had been selected for the larger review, we selected 13 articles concerning mental illness for more detailed analysis in this review. In total, we identified 29 different influencing factors and we found 6 major barriers: ‘Lack of choice’, ‘Not being respected as a person’, ‘Feeling stigma from physician’, ‘Disease burden’, ‘Power imbalance’ and ‘Low self-efficacy to participate’. ‘Clear information provision about options’, ‘Being respected as a person, being taken into account’, ‘Good physician-patient relationship’ and ‘Belief in the importance of one's own role’ were the main facilitators.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>Stigma and self-stigma still seem to persist in mental healthcare and continue to suppress patients' self-efficacy to participate in SDM in this setting. There is much discussion of inclusion and diversity worldwide, and these themes are just as topical for patients with mental health problems. Further work seems necessary to eradicate all stigma and self-stigma in this setting when striving for care that could be ‘as shared as possible’.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Contribution</h3>\u0000 \u0000 <p>The authors wish to thank Mr. Walter Geuens, a person with lived experience in mental healthcare, for his careful reading and thorough feedback on the final paper.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70239","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143787262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lived Experience Participation in Suicide Prevention Activities in Australia, a Scoping Review","authors":"Hayley Purdon,&nbsp;Tania Pearce,&nbsp;Bess Jackson,&nbsp;Sarah Wayland,&nbsp;Myfanwy Maple","doi":"10.1111/hex.70241","DOIUrl":"https://doi.org/10.1111/hex.70241","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Lived experience inclusion is considered best practice in suicide prevention activities. Despite this, research remains limited exploring how individuals with lived experience actively engage in suicide research and prevention activities. The current scoping review aimed to map and summarise the existing literature describing the ‘how’ of lived experience participation in Australia.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A scoping review according to the methodology of Arksey and O'Malley (2005) was undertaken with descriptive (e.g., study aims and methodology) and descriptive analytic data (such as key definitions and participation descriptors) being extracted from included studies.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 42 studies met the inclusion criteria and were published between 2016 and 2023. There were many gaps in the data extracted, with participation descriptors and definitions often not reported in the literature. The included studies lacked clear and consistent definitions and practices when involving people with lived experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Current processes for reporting experiences of lived experience participation in suicide prevention lack standardisation within peer-reviewed publications. This review notes that there are gaps in the literature; however, the evidence base is growing for research that reports on suicide prevention research and activities that involve people with lived experience.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>This study was created and undertaken by a PhD candidate with lived experience of thoughts of suicide, suicide attempt and caring for a loved one through suicide. A further team member has lived experience of being a suicide attempt survivor, continued thoughts of suicide and carer of family with suicidal thoughts. The study was informed by a Community Advisory Committee, of which four members have lived experience of suicide, with the remaining two having lived experience in areas where inclusion is paramount such as disability and suicide research. Ethics approval was not required for the participation of the Community Advisory Committee as they were providing advice only on the research conduct.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70241","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143778294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empowering Recovery: A Co-Designed Intervention to Transform Care for Operable Lung Cancer","authors":"Georgina A. Whish-Wilson,&nbsp;Lara Edbrooke,&nbsp;Vinicius Cavalheri,&nbsp;Zoe T. Calulo Rivera,&nbsp;Madeline Cavallaro,&nbsp;Daniel R. Seller,&nbsp;Catherine L. Granger,&nbsp;Selina M. Parry","doi":"10.1111/hex.70196","DOIUrl":"https://doi.org/10.1111/hex.70196","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patients undergoing surgery for lung cancer experience significant symptom burden and physical impairments. Exercise rehabilitation programmes have been shown to improve symptoms and aid recovery, however, implementation into routine practice has proven challenging.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To develop a robust understanding of the key design requirements of an exercise-based pre- and post-operative rehabilitation prototype intervention designed to support patients with operable lung cancer prepare for and recover from thoracic surgery, and co-design an acceptable intervention prototype with key stakeholders.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design, Setting and Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;An experience-based co-design (EBCD) study involving patients, caregivers, clinicians, consumer advocates and researchers from across Australia. Two rounds of EBCD workshops were held between November 2023 and May 2024. Workshops were underpinned by the COM-B Model and Theoretical Domains Framework. Qualitative data were thematically analysed by two independent researchers. Identified barriers and facilitators were mapped to the Behaviour Change Wheel, and used to develop the final intervention prototype, which was presented using the Template for Intervention Description and Replication (TIDieR) guide.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Eleven patients (55% female, mean age 66.4 (±9.3) years), one caregiver, and 16 professionals (physiotherapists, nurses, respiratory physicians, a thoracic surgeon, consumer advocates and researchers) participated. Retention between workshop rounds was high (86%). Nineteen major themes were developed, including unmet education needs; the link between mental health and recovery; and the influence of unexpected, persistent symptoms and functional decline. Core intervention principles included flexibility, individualisation and continuity. Essential components included screening/assessment, education, exercise, behaviour change, and mental health support. The intervention prototype was refined in the second workshop round.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This EBCD study successfully identified key experiences and barriers in preparing for and recovering from lung cancer surgery and engaged stakeholders in complex intervention design, culminating in the development of a flexible, multi-modal pre- and post-operative rehabilitation programme prototype. Futu","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70196","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143778295","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Participatory Research in Clinical Studies: An Innovative Approach to Co-creating Nutritional and Physical Activity Recommendations for Older Adults With Sarcopenia (FOOP-Sarc Project)","authors":"Maria Besora-Moreno,&nbsp;Cristina Sepúlveda,&nbsp;Judit Queral,&nbsp;Claudia Jiménez-ten Hoevel,&nbsp;Anna Pedret,&nbsp;Lucia Tarro,&nbsp;Rosa M. Valls,&nbsp;Rosa Solà,&nbsp;Elisabet Llauradó","doi":"10.1111/hex.70187","DOIUrl":"https://doi.org/10.1111/hex.70187","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participating in co-creation processes can improve the knowledge, satisfaction and healthcare outcomes of volunteers. However, this methodology is still underused in nutritional clinical studies.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study aimed to use participatory research as an innovative approach to co-creating nutritional and physical activity (PA) recommendations for the FOOP-Sarc project and to assess their usability and volunteers' satisfaction and engagement experience (SEE) during the co-creation process.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The co-creation process was based on four stages: (s1) co-ideation, (s2) co-design, (s3) co-implementation and (s4) co-evaluation (Ref.: NCT05485402).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Setting and Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Thirteen volunteers with sarcopenia were included (stages 1–2 [&lt;i&gt;n&lt;/i&gt; = 7], stage 3 [&lt;i&gt;n&lt;/i&gt; = 3 intervention, &lt;i&gt;n&lt;/i&gt; = 3 control] and stage 4 [&lt;i&gt;n&lt;/i&gt; = 13]).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Measures&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The co-ideation (s1) and co-design (s2) stages focused on designing recommendations adapted to the volunteers' preferences; the co-implementation (s3) stage included the implementation and comparison of the co-created or standard recommendations for 3 weeks to test the recommendations' acceptance; and the co-evaluation (s4) stage focused on usability, SEE, and adherence.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The volunteers co-created recommendations for improving sarcopenia according to the barriers identified related to diet and PA. The recommendations' usability and the SEE of volunteers were high in all cases.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The participatory research approach used in this nutritional intervention study, demonstrates a high usability of the co-created recommendations for sarcopenia and high SEE of the volunteers, particularly in the volunteers who participated in co-ideation (s1) and co-design (s2), the most key stages of the co-creation process.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The volunteers in this study participated in the co-creation o","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70187","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143778336","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Methods for Involving People With Dementia in Health Policy and Guideline Development: A Scoping Review","authors":"Felix Bühler,&nbsp;Jennifer Geyer,&nbsp;Gabriele Meyer,&nbsp;Anja Bieber","doi":"10.1111/hex.70250","DOIUrl":"https://doi.org/10.1111/hex.70250","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patient and public involvement (PPI) is considered part of best-practice for health care delivery, research and policy. However, people with dementia are frequently excluded from PPI initiatives. While recent studies have investigated PPI of people with dementia in research, little is known about their involvement at the macro-level of care, that is, in health policy and guideline development. This scoping review maps the evidence on PPI of people with dementia at the macro-level of care, focusing on the methods, outcomes and mechanisms of involvement.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We systematically searched MEDLINE via PubMed, CINAHL, the Cochrane Library and GeroLit. Additionally, we performed forward and backward citation searching, manually tracked individual references, searched abstract books and yearbooks, and contacted authors of included reports to seek additional references. We analysed each method's mechanisms of involvement to assess whether measures were taken to maximise effective information transfer.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We included 43 reports and identified 35 involvement methods, which we structured into six categories: ‘focus groups and interviews’, ‘surveys and questionnaires’, ‘public events’, ‘meetings with decision-makers’, ‘serving as members of working groups’, and ‘multiple-step methods’. Most of the involvement took the form of consultations during the early stages of policy or guideline development. All involvement methods required verbal communication skills, almost all of the participants had mild dementia. We found that most reports did not clearly state the involvement outcomes. While a majority of methods had some facilitation in place to elicit information from participating people with dementia, only nine methods used a structured aggregation to synthesise participants' contributions into a joint statement.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We found limited evidence of dementia-adapted involvement. Future research might focus on exploring the mechanisms of involvement to adapt methods to specific target groups, such as people with impaired verbal communication or advanced dementia. We recommend using existing guidance to report PPI initiatives, as the reporting was often incomplete, which limits reproducibility.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We discussed both our study protocol a","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70250","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143770278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing Implementation Strategies for the Adoption of the Enhanced Recovery After Surgery (ERAS) Protocols: A Co-Design Study","authors":"Georgia Tobiano,&nbsp;Joan Carlini,&nbsp;Wendy Chaboyer,&nbsp;Rhea Liang,&nbsp;Keith Addy,&nbsp;Linda Sung,&nbsp;Brigid M. Gillespie","doi":"10.1111/hex.70254","DOIUrl":"https://doi.org/10.1111/hex.70254","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>The clinical effectiveness of Enhanced Recovery After Surgery (ERAS) protocols in reducing length of stay and postoperative complications is well established. Yet, the uptake of these protocols remains variable in many healthcare settings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We used the Generative Co-Design Framework for Healthcare Innovation to design and deliver strategies to implement ERAS protocols at one Australian tertiary hospital. Co-design groups included surgeons, anaesthetists, perioperative and surgical nurses, and health consumers with previous surgery experience. Two workshops with co-designers were held over 4 months. Textual data derived through workshop artefacts and discussions were analysed inductively. Then, subcategories representing implementation strategies were deductively mapped to the level they primarily target, individual, team and organisation. Finally, using a consensus-building approach, the top two implementation strategies were ranked across each group.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In total, 36 practitioners across perioperative, ward, surgery and anaesthetics and 4 consumers participated in the co-design sessions. Through the analysis, 16 implementation strategies were identified, and half of these were aimed at the organisational level. Strategies ranked in the top two commons across all groups of practitioners included reviewing clinical pathways and processes. Consumers believed receiving patient education about ERAS, including its risks and benefits, was essential.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our findings underscore the intricate nature of coordinating diverse stakeholders in co-design processes. Despite the challenges this may present, it provides valuable insights and promotes consensus-driven solutions, ultimately strengthening the implementation of ERAS initiatives.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Consumers were involved in the co-design process and were co-researchers.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70254","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143770279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation and Psychometric Evaluation in Cancer Care of the German Version of collaboRATETM—a 3-item Patient-reported Measure of Shared Decision-Making","authors":"Pola Hahlweg,&nbsp;Stefan Zeh,&nbsp;Isabelle Scholl,&nbsp;Jördis Zill,&nbsp;Jörg Dirmaier,&nbsp;Paul James Barr,&nbsp;Glyn Elwyn,&nbsp;Martin Härter","doi":"10.1111/hex.70255","DOIUrl":"https://doi.org/10.1111/hex.70255","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The collaboRATE&lt;sup&gt;TM&lt;/sup&gt; measure assesses the shared decision-making process from patients' perspective with three items. Because of its shortness, it is especially feasible in routine care. It was developed in English and has been translated into several languages. This study aimed to translate collaboRATE into German, test its comprehensibility and evaluate its psychometric properties.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Translation followed the TRAPD protocol. Comprehensibility was tested in cognitive interviews with lay people (&lt;i&gt;N&lt;/i&gt; = 18). Psychometric properties were evaluated in a secondary analysis of a sample of 1703 patients with cancer. They rated the collaboRATE items to assess their care experience in general at the respective department of one large university medical centre. We calculated collaboRATE sum and top scores and assessed item characteristics (i.e., acceptance and ceiling effects), convergent validity with the 9-item Shared Decision-Making Questionnaire (SDM-Q-9 for one specific medical encounter) and satisfaction with care (single item), and divergent validity with psychosocial distress (NCCN distress thermometer). Completion rates, percentages of highest score, skewness, item endorsability and different correlation coefficients informed the evaluation of these psychometric properties.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;During translation and cognitive interviewing, the necessity to simplify sentence structures to enhance comprehensibility became apparent. Adaptations led to good comprehensibility. The mean collaboRATE sum score was 82.9 (SD = 19.3), with 466 participants (28.9%) indicating the top score. Item characteristics suggested good acceptability and ceiling effects. Correlations with SDM-Q-9 were lower than expected (sum score: &lt;i&gt;r&lt;/i&gt; = 0.47, &lt;i&gt;p&lt;/i&gt; &lt; 0.001; top score: pbr = 0.27, &lt;i&gt;p&lt;/i&gt; &lt; 0.001). Correlations were as expected for satisfaction with care (sum score: &lt;i&gt;r&lt;sub&gt;s&lt;/sub&gt;&lt;/i&gt; = 0.46, &lt;i&gt;p&lt;/i&gt; &lt; 0.001; top score: &lt;i&gt;χ&lt;/i&gt;&lt;sup&gt;2&lt;/sup&gt; = 218.3, &lt;i&gt;p&lt;/i&gt; &lt; 0.001, Cramer's V = 0.37) and minimally higher than expected for distress (sum score: &lt;i&gt;r&lt;/i&gt; = −0.11, &lt;i&gt;p&lt;/i&gt; &lt; 0.001; top score: pbr = −0.09, &lt;i&gt;p&lt;/i&gt; &lt; 0.001).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A well-comprehensible German version of collaboRATE is now available. However, ceiling effects were found and convergent validity could not be established in a secondary analysis of a sample from cancer care. Further evaluation is needed regarding the ps","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70255","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143770280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Influencing Factors for the Acceptability of Accessing HIV Pre-exposure Prophylaxis via Community Pharmacies in Wales","authors":"David Gillespie,&nbsp;Adam D. N. Williams,&nbsp;Richard Ma,&nbsp;Zoe Couzens,&nbsp;Kerenza Hood,&nbsp;Dyfrig A. Hughes,&nbsp;Efi Mantzourani,&nbsp;Eleanor Cochrane,&nbsp;Fiona Wood","doi":"10.1111/hex.70247","DOIUrl":"https://doi.org/10.1111/hex.70247","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>HIV prevention methods, such as pre-exposure prophylaxis (PrEP), have been a significant contributing factor to a global decline in HIV transmission. PrEP has been available through the NHS in Wales since 2017. However, access is exclusively via sexual health clinics, and those accessing PrEP do not reflect those being diagnosed with HIV. Widening access beyond sexual health clinics may be one approach to encourage more equitable uptake, and there is growing interest in offering PrEP services in community pharmacies. We, therefore, aimed to explore the acceptability of PrEP services being delivered through community pharmacies among prospective service users.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>We conducted a qualitative interview study of people living in Wales who either (i) currently access, (ii) previously accessed or are (iii) considering accessing PrEP via a sexual health clinic. Participants were recruited via community networks, and interviews were conducted virtually. Our topic guide was informed by Levesque's conceptual framework of access to healthcare, and we used reflexive thematic analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>We interviewed 24 participants and included data from 20 in the analysis. Four themes were generated: experiences of accessing PrEP via sexual health clinics, the prospect of PrEP access via community pharmacies, other community settings in which PrEP may be accessed and concerns around integrated healthcare and healthcare data.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>PrEP access via community pharmacy is likely to be an acceptable option for people. There are uncertainties surrounding what a PrEP service would look like in a community pharmacy setting, and this would need clarifying to prospective users to increase the salience of access.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient and Public Contribution</h3>\u0000 \u0000 <p>A team-based approach was taken for developing the topic guide and agreeing on the codes for this study. This included people with lived experience of accessing PrEP in Wales.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70247","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143770277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Barriers to Engaging in Blood Donation During the COVID-19 Pandemic Among Nondonors and Lapsed Donors in a Chinese Community: A Critical Medical Anthropology Perspective","authors":"Judy Yuen-man Siu,&nbsp;Engle Angela Chan,&nbsp;Angus Siu-cheong Li,&nbsp;Yik Mun Lee","doi":"10.1111/hex.70236","DOIUrl":"https://doi.org/10.1111/hex.70236","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The COVID-19 pandemic has presented a major challenge to maintaining a stable blood supply. In Hong Kong, the percentage of eligible donors who donated blood dropped from 2.7% before the pandemic to 2.34% and 2% during the pandemic.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study explored barriers to blood donation among nondonors and lapsed donors during the COVID-19 pandemic.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A critical medical anthropology framework and a qualitative descriptive design were used. In-depth semi-structured interviews were conducted individually between February and July 2021 in Hong Kong with 80 adults aged 19–65 years who were nondonors or who had previously donated blood but had lapsed from doing so.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The participants who did not donate blood during the pandemic reported multiple reasons that arose during the pandemic and before it. The decision to not donate is sometimes the outcome of a social process established before the pandemic. Although institutional infection control and quarantine policies were most relevant for nondonation during the pandemic, policy and structural factors intertwined and created new social and cultural ideals that demotivated participants from donating blood. The difficult relationship between mainland China and Hong Kong as well as participants' unpleasant experiences with personnel in donor centres served as underlying barriers before the pandemic.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Discussion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The decision not to donate during the pandemic cannot be explained by pandemic factors alone. Although the participants' sense of being a ‘good citizen’ arising from the new social norms developed in the pandemic at the intermediate level (quarantine policy) and the macro-level social structure (collective responsibility) had affected their micro-level perceptions (blood donation as unnecessary and risky and healthcare personnel as dangerous), their experiences at different social levels preceded the pandemic had played an important embedding role in reinforcing their nondonation during the pandemic.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To enhance the motivation to donate blood among nondonors and lapsed donors, merely addressing the barriers arising from the pandemic is inadequate. Prepa","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70236","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143762081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Challenges and Facilitators to Patient and Public Involvement In Stroke Research: Protocol for a Qualitative Study","authors":"Hamidreza Khankeh,&nbsp;Shima Shirozhan,&nbsp;Ulrich Dirnagl","doi":"10.1111/hex.70231","DOIUrl":"https://doi.org/10.1111/hex.70231","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Patient and public involvement in the research process, despite its novelty and importance in enhancing the quality of studies, still has many unknown dimensions that need to be discovered and explained through qualitative research. Conducting qualitative research to understand experiences in newly emerging topics is challenging and can pose significant difficulties for researchers.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Development of a directed qualitative content analysis study protocol to identify challenges and facilitators to patient and public involvement in stroke research.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Study protocol of qualitative content analysis.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Method&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study protocol outlines the step-by-step design for a directed qualitative content analysis. The study will use a directed approach, following the methodology proposed by Hsieh and Shannon (2005). Participants will be selected based on their experience or knowledge of involvement in the research process, including stakeholders such as researchers, people who are affected by stroke, caregivers, and healthcare providers in stroke research. Participants will be purposefully chosen for their willingness and ability to contribute. Data will be gathered through semi-structured in-depth interviews. The quality of the study will be ensured by applying the criteria established by Lincoln and Guba.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study protocol offers a comprehensive guide for conducting directed qualitative content analysis, outlining the research process step-by-step to aid researchers using similar methodologies. It addresses common language-related challenges and suggests solutions. The protocol emphasizes maintaining high research standards through specific criteria and provides a detailed discussion of ethical considerations. The authors advocate for publishing qualitative research protocols before implementation to improve research quality, foster ethical and integrated practices, and support novice researchers.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Stakeholder involvement was crucial in developing the interview guide. Feedback was gathered from six experts: three researchers (quantitative and qualitative fields), one stroke rehabili","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 2","pages":""},"PeriodicalIF":3.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70231","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143741280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}