Health Expectations最新文献

{"title":"Hospital Food Service Experiences Between Older Patients From English- and Non-English Speaking Backgrounds in a Large Public Hospital in Australia: A Qualitative Analysis","authors":"Caitlin Wyman, Morgan Pankhurst, Sue Yi Lee, Shahid Ullah, Edwin C. K. Tan, Bich Tran, Yogesh Sharma, Zhaoli Dai","doi":"10.1111/hex.70444","DOIUrl":"https://doi.org/10.1111/hex.70444","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>With Australia's ageing population increasing and the fast-growing number of migrants from culturally diverse backgrounds, ensuring the quality of care, including hospital food services, is critical. Meals tailored to patients' needs have been shown to reduce complications and lower hospital costs, making the quality of hospital food service a key factor in overall patient satisfaction. However, data on the lived experiences of older patients from non-English-speaking backgrounds (NESBs) regarding hospital food services and meal quality remain limited.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Semi-structured interviews were conducted with patients aged 65 years or older from Australian Anglo and NESBs to explore their experiences with hospital food services. A reflexive thematic analysis was undertaken, with the identified similarities and differences between the two groups to inform the development of themes.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>The study included 15 Australian-Anglo background patients (mean age: 83) and 15 NESB patients (mean age: 78). The interviews revealed that care priorities, cultural identity and health needs shaped patients' experiences of hospital food, with four themes being identified: (1) No Complaint Mindset; (2) Food and Cultural Identity; (3) Experiences of Food Service and (4) Nutrition and Health. Through these themes, we found that both groups shared a ‘no complaints’ mentality, with mixed experiences of hospital meals, and preferred smaller meals. NESB participants described limited cultural inclusivity in hospital food service as being related to the lost connection between food and their cultural and linguistic backgrounds. In the same group, English language barriers hinder communication with food service staff to meet dietary needs.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The findings from our qualitative interviews suggest that hospital food services may consider offering culturally familiar options to accommodate patients from diverse cultural and linguistic backgrounds and fostering open and effective communication regarding patients' meal preferences and dietary needs, especially for those with limited English proficiency.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>The interview guide and process were developed based on feedback from clinicians at Flinders Medical Centre. The study findings and report were reviewe","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70444","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145146822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dimensions of Social Capital for Supporting Informal Carers of Patients With Advanced Chronic Illness in the Community: A Concept Mapping Study","authors":"Marques Shek Nam Ng, Winnie Kwok Wei So, Kai Chow Choi, Wallace Chi Ho Chan, Helen Yue Lai Chan, Carmen Wing Han Chan","doi":"10.1111/hex.70410","DOIUrl":"https://doi.org/10.1111/hex.70410","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Social capital, defined as social interactions that increase the productivity of a community, can help address the health needs of the community. Although evidence suggests that carers of patients with advanced chronic illnesses experience a high caregiving burden and require community support, the specific dimensions of social capital they need remain unclear.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>This concept mapping study was conducted between April 2021 and July 2023. In total, 98 stakeholders, including 25 carers, 25 patients, 24 professionals and 24 community members, were recruited through purposive and snowball sampling. The research team initially conducted semi-structured interviews to brainstorm and collect important statements related to the study objectives. Subsequently, the participants were invited to sort and rate these statements. The responses from the rating and sorting tasks were analysed using multidimensional scaling and hierarchical cluster analysis. The importance ratings and demographic backgrounds were summarised with descriptive statistics.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five clusters emerged from the analysis: carers' attributes, carers' networks, carers and service providers, carers and the local community, and carers and society. Among these clusters, the participants deemed healthcare and social services the most important, followed by positive interactions with the care recipient, a sense of responsibility, and readiness to accept support. They also valued the support received from family members, friends, neighbours, other carers and reliable communication channels. In addition, inclusive public spaces and flexible working arrangements were considered valuable for providing community support to the carers of patients with chronic illnesses in the community.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Despite the many challenges faced by informal carers of patients with advanced chronic illnesses, social capital can be leveraged to address these issues. The dimensions of social capital identified in this study can serve as a framework for developing social care programmes and policies to support informal carers.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient or Public Contribution</h3>\u0000 \u0000 <p>Patients, informal carers, professionals and community members involved in the care of patients with advanced chronic illnesses participated in this study.</p>\u0000 ","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70410","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145146918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What Is Shared in an Online Peer-Support Group Run by Stroke Survivors? An Exploratory Study With a Participatory Approach","authors":"Malin Tistad, Lill Hultman, Jeanette Nelson, Fredrik Sandman, Mikael Åkerlund, Ulla-Karin Schön, Lena von Koch","doi":"10.1111/hex.70440","DOIUrl":"10.1111/hex.70440","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Many stroke survivors face disabilities that can have a substantial lifelong impact on both their own and their significant others' life situations. Online groups on social media can serve as forums for peer support among people sharing a common experience. However, there is limited knowledge about online peer-support groups for people living with the consequences of stroke that are initiated and managed by stroke survivors themselves.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>The aim of this study was to explore and describe what stroke survivors and their significant others share in posts and comments in a Facebook group for stroke survivors, initiated and run by stroke survivors.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>In this participatory, exploratory and qualitative study, three stroke survivors, engaged as co-researchers with no previous research experience, identified Facebook as an important context for sharing experiences and peer support. Data were collected by summarizing posts and comments from a Facebook group over 3 months and analyzed using the principles of inductive qualitative content analysis.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>In total, 5 categories and 11 subcategories were created. The categories <i>Narrating About Everyday Life with the Consequences of Stroke</i>, <i>Dealing with the Emotional Struggle of Poststroke Life</i>, <i>Making Progress and Enjoying Everyday Life</i>, <i>Navigating Societal Services and Societal Demands</i> and <i>Continuing Everyday Life</i> describe narratives, questions and requests for other members' experiences related to challenges and situations that the group's members faced post-stroke.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>We conclude that there is considerable breadth in the topics and issues discussed in the online forum, reflecting that a stroke affects many areas of life for both stroke survivors and their significant others. Furthermore, online peer-to-peer support for stroke survivors have the potential to provide a context for sharing experiences and knowledge, and for developing experiential knowledge. Clinical implications are that rehabilitation professionals can inform stroke survivors about the existence of online peer-to-peer groups, include the ability to use social media in assessments of activity performance, and, if relevant, support stroke survivors' use of social media.</p>\u0000 </section>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70440","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145139394","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding the Clinical Characteristics and Timeliness of Diagnosis for Patients Diagnosed With Long Covid: A Retrospective Observational Cohort Study From North West London","authors":"Denys Prociuk, Jonathan Clarke, Nikki Smith, Ruairidh Milne, Cassie Lee, Simon de Lusignan, Ghazala Mir, Johannes De Kock, Erik Mayer, Brendan C. Delaney, LOCOMOTION Consortium","doi":"10.1111/hex.70429","DOIUrl":"10.1111/hex.70429","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Long Covid is a multisystem condition first identified in the Covid-19 pandemic, characterised by a wide range of symptoms including fatigue, breathlessness and cognitive impairment. Considerable disagreement exists in who is most at risk of developing long Covid, driven in part by incomplete coding of a long Covid diagnosis in medical records.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Objective</h3>\u0000 \u0000 <p>To describe the incidence and impact of long Covid.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Design</h3>\u0000 \u0000 <p>A retrospective observational cohort study.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Setting and Participants</h3>\u0000 \u0000 <p>An integrated primary and secondary care dataset from North West London, covering over 2.7 million patients. Patients with long Covid were identified through clinical terms in their primary care records.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Main Variables Studied</h3>\u0000 \u0000 <p>Multivariate logistic regression was used to identify factors associated with having a long Covid diagnosis, while multivariate quantile regression was used to identify factors predicting the time a long Covid diagnosis was recorded.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 6078 patients were identified with a long Covid clinical term in their primary care record, 0.33% of the total registered adult population. Women, those aged 41–70 years or of Asian or mixed ethnicity, were more likely to have a recorded long Covid diagnosis, alongside those with pre-existing anxiety, asthma, depressive disorder or eczema and those living outside of the least or most socio-economically deprived areas. Men, those aged 41–70 years, or of black ethnicity, were diagnosed earlier in the pandemic, while those with depressive disorder were diagnosed later.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Discussion</h3>\u0000 \u0000 <p>Long Covid is poorly coded in primary care records, and significant differences exist between patient groups in the likelihood of receiving a long Covid diagnosis. A recorded long Covid diagnosis is more likely in women, some ethnic minority patients and those with pre-existing long-term conditions.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>The experience of p","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70429","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145139301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a Patient Experience Questionnaire for the Man Van Mobile Clinical Unit","authors":"Masood Moghul,&nbsp;Netty Kinsella,&nbsp;Fionnuala Croft,&nbsp;Patrick Kierkegaard,&nbsp;Declan Cahill,&nbsp;Nicholas David James","doi":"10.1111/hex.70443","DOIUrl":"10.1111/hex.70443","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Prostate cancer, the most common male cancer in the United Kingdom, disproportionately affects Black men and deprived communities, where early diagnosis is critical to reducing mortality. The Man Van, a mobile outreach service, targets these high-risk groups to improve access to prostate cancer testing. The Man Van was developed to address health inequalities and other barriers to healthcare that affect prostate cancer and men's health more generally. As a novel clinical model, measuring the patients' perspectives of its quality and acceptability is relevant when evaluating its effectiveness.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>To facilitate evaluation of the effectiveness of the Man Van project, a novel patient questionnaire was developed using a three-stage approach: (1) identification of domains and evaluation of existing evidence, (2) discussion groups followed by a modified virtual Delphi approach to refine themes and develop questions and (3) a real-world evaluation to finalise the questionnaire. Virtual discussions and asynchronous feedback facilitated stakeholder input.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Two broad areas of acceptability and quality were identified, which were synthesised into 9 domains, linked to 15 themes to measure patients' perspectives on the Man Van. The final 17-item questionnaire follows the patient journey from service awareness to discharge, with socio-demographic data sourced from the Man Van database.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study produced the first evidence-based questionnaire for evaluating a mobile prostate cancer outreach service, highlighting that a well-defined service with good communication is key to establishing and maintaining quality and acceptability with patients. The tool offers a framework for evaluating and scaling similar interventions, which can be used by policymakers as a foundation for scaling up similar services.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70443","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145139382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Relying on Trust: A Qualitative Study on Home-Dwelling Older Adults' Experiences and Preferences With Multimorbidity Management in Municipal Healthcare Assessments","authors":"Turid R. Aarønes,&nbsp;Kristin Taraldsen,&nbsp;Linda A. H. Kvæl","doi":"10.1111/hex.70445","DOIUrl":"10.1111/hex.70445","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Older adults with multimorbidity present a unique challenge to municipal healthcare due to the complexity of managing multiple health conditions simultaneously. Addressing multimorbidity, especially in older adults, requires an integrated, holistic approach focused on person-centred healthcare and patient participation. Multidimensional assessments in municipal healthcare, which consider physical, psychological, and social factors, are essential to understanding and managing these complex health conditions. Additionally, trust in the system's reliability and in staff competency is crucial for ensuring quality care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Aim&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The aim of this study was to explore the experiences and preferences of older adults with assessments in the management of multimorbidity within municipal healthcare.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Qualitative data were obtained through semi-structured individual interviews with 12 home-dwelling older adults with multimorbidity from three Norwegian municipalities. The participants were aged 67–92, with an average of five chronic conditions. Interviews were conducted face-to-face in participants' homes between February 2023 and February 2024. Interviews were transcribed and analysed using reflexive thematic analysis.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We identified three main themes: nurturing trust and security through professional competence and assessment skills, navigating vulnerability and dependence in healthcare systems, and the impact of patient participation on assessment outcomes. The results emphasise the importance of competence, trust, autonomy, collaboration, and effective communication both in clinical interactions between health professionals and patients and as a system approach in the management of multimorbidity.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Older adults with multimorbidity valued professional competence and effective communication in their healthcare assessments, as these fostered personal and system trust, as well as a sense of security. Participants also highlighted the importance of their involvement in treatment decisions and the need for a coordinated, person-centred approach to manage their complex health conditions. Our findings underscore the necessity of enhancing healthcare professionals' communication skills, improving information flow, and actively involving patients in assessment","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70445","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145132685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Long-Term Benefits Following Hepatitis C Cure Through Facilitated Telemedicine; Experiences of People With Opioid use Disorder Five Years After Achieving a Sustained Virological Response","authors":"Zoi Papalamprakopoulou,&nbsp;Tin H. Dang,&nbsp;Christopher J. Gonzalez,&nbsp;Colin J. Tedesco,&nbsp;Paul F. Updike,&nbsp;Christina Corl,&nbsp;Arpan Dharia,&nbsp;Noelia Hernandez,&nbsp;Martin F. Shapiro,&nbsp;Elaine Wethington,&nbsp;Andrew H. Talal","doi":"10.1111/hex.70404","DOIUrl":"10.1111/hex.70404","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Facilitated telemedicine is highly effective for hepatitis C virus (HCV) treatment among people with opioid use disorder (OUD). However, the long-term impact of sustained virological response (SVR) through this model of treatment remains unexplored. We examined how people with OUD perceive SVR achieved through facilitated telemedicine.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We conducted two focus group discussions (FGDs) with nine participants at least 5 years post-SVR through a randomised controlled trial of facilitated telemedicine in opioid treatment programmes (OTPs) (New York State, 2018–2020). Eligibility required active OTP enrolment at the time of FGDs. We used a semi-structured interview guide and performed thematic analysis of FGD transcripts.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants had a mean age of 52.6 years (SD = 13.7), 66.6% were male, and 88.8% identified as White. We identified three FGD themes, each corresponding to pre-, during and post-intervention phases (see Figure 1): (1) Attitudes towards HCV and barriers to treatment among people with OUD, (2) Embracing facilitated telemedicine for HCV care integrated into OTPs, and (3) Experiencing long-term benefits from facilitated telemedicine across all aspects of HCV care and overall well-being. Barriers included competing priorities, perceiving HCV treatment as a low priority, and insurance restrictions (Theme 1). Participants valued facilitated telemedicine for its convenience, empathetic clinicians, and one-stop shop approach (Theme 2). At least 5 years post-SVR, participants reported benefits in HCV knowledge, improved OUD recovery, and improvement in whole health (Theme 3).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;At least 5 years post-SVR, people with OUD reported improvements in OUD recovery, overall well-being and sustained satisfaction with telemedicine-based HCV care. These findings highlight the lasting impact of both an SVR and care delivery through facilitated telemedicine.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient and Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;In this study of patient involvement, we conducted focus groups with patient-participants to examine the long-term impact of receiving HCV care through facilitated telemedicine integrated into OTPs. Participants had previously taken part in a randomised controlled trial of facilitated telemedicine (New York State, 2018–2020). At least 5 years after achieving an","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70404","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145132680","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living With Persistent Respiratory Symptoms of Long COVID: Qualitative Study Among Brazilian Adults 12 Months After Acute Infection","authors":"Giovana Alves Santos,&nbsp;Carlos Laranjeira,&nbsp;Lígia Carreira,&nbsp;Vanessa Denardi Antoniassi Baldissera,&nbsp;Maria Fernanda do Prado Tostes,&nbsp;Viviani Camboin Meireles,&nbsp;Rosella Santoro Ageno,&nbsp;Maria Aparecida Salci","doi":"10.1111/hex.70409","DOIUrl":"10.1111/hex.70409","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>The majority of those infected with COVID-19 undergo a brief duration of clinical illness. In certain instances, symptoms endure for months or years after the initial viral exposure—a condition characterized as Long COVID (LC). The experience of this illness remains largely unexplored as it has only recently surfaced. This study aims to understand the repercussions of persistent respiratory post-COVID symptoms in Brazilian adults 12 months after SARS-CoV-2 infection.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A constructivist grounded theory study was employed. Data were collected through individual interviews with adults with persistent respiratory symptoms of Long COVID in Brazil. Data collection took place between September 2023 and February 2024. Data analysis was performed on a constant comparative basis and concurrent with data collection to understand the findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-four individuals (12 females, 12 males) with a median age of 43.29 ± 9.09 years participated. The data analysis generated a central category—living with the long-term effects of COVID-19: breathlessness pervades everything—around which three categories emerged: (1) imbalance between life before and after being infected by COVID-19; (2) living with acute post-COVID respiratory symptoms; and (3) struggling with persistent post-COVID respiratory symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our analysis of the perceived needs of individuals with Long COVID underscores the urgent necessity for legislative reform to acknowledge LC as a disability that requires clear diagnostic criteria. Approaches to treatment and rehabilitation are required to evaluate the extent to which functioning and disability improve. Lastly, this study highlights the complex problems encountered by individuals with Long COVID, including employment uncertainties, everyday tasks and social relationships.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12456354/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145132700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Voices: What Can We Learn From the Covid-19 Pandemic About Follow-Up Care in Gynaecologic Oncology?","authors":"Esther M. Vermaas,&nbsp;Luc R. C. W. Van Lonkhuijzen,&nbsp;Henrike Westerveld,&nbsp;Maaike A. Van Der Aa,&nbsp;Tijmen J. Bonestroo,&nbsp;Brigitte F. M. Slangen,&nbsp;Johanna W. M. Aarts","doi":"10.1111/hex.70405","DOIUrl":"https://doi.org/10.1111/hex.70405","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>To explore women's experiences with follow-up care after gynaecological cancer during the Covid-19 pandemic and identify key elements of aftercare from their perspective.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A qualitative study was performed, including five focus group discussions and two individual interviews with 20 participants diagnosed with ovarian (<i>n</i> = 5), cervical (<i>n</i> = 6), endometrial (<i>n</i> = 5) or vulvar cancer (<i>n</i> = 4) who received follow-up care during the Covid-19 pandemic in the Netherlands. Transcripts underwent thematic analysis, guided by the framework of the Picker Principles of Patient-Centred Care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five themes were generated: (1) continuity of care, (2) absence of family members and carers, (3) meeting my needs, (4) managing my needs and (5) the cancer survivor narrative. The main changes experienced during the Covid-19 pandemic were the introduction to remote healthcare and the absence of family members. An interconnection between themes was found, highlighting that providing a designated, always accessible contact person can be a catalyst for the improvement of information provision and healthcare guidance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>In conclusion, this study highlights the need for personalised and patient-centred follow-up that promotes patient empowerment, and how this can be provided by a designated contact person. Findings emphasise the importance of tailored support, involvement of family members, addressing information gaps, and overcoming barriers to self-management. Lastly, the findings provide direction on how to approach follow-up care in the future.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient Contribution</h3>\u0000 \u0000 <p>This study was done in close collaboration with the patient advocacy group Olijf; their significant input in both the design and conduct of the study is invaluable. Olijf's involvement ensured that the research remained patient-centred and aligned with the real-life concerns and priorities of those affected by gynaecological cancers. The participants in this study, all of whom are gynaecological cancer survivors, played an important role by sharing their experiences, and we extend our gratitude to them. Their insights were critical in shaping the findings of this research.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70405","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145111167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Design of a Framework for Person-Centred Care at Emergency Department Triage and Waiting Room","authors":"Carrie Janerka,&nbsp;Gavin D. Leslie,&nbsp;Fenella J. Gill,&nbsp;PCC ED Triage Group","doi":"10.1111/hex.70442","DOIUrl":"https://doi.org/10.1111/hex.70442","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Patients presenting to an emergency department (ED) are typically assessed by a triage nurse and often required to wait for further assessment and care. Ongoing issues of ED overcrowding and prolonged wait times can impact the processes and patients' experiences. A person-centred approach is recommended. This study aimed to develop a person-centred care framework for use in the ED triage and waiting room.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The multi-phase research involved a synergistic partnership-based fully integrated mixed-methods approach based on person-centred care principles. Framework development followed target population-centred and partnership-based processes of conception, planning and designing. A consumer group was actively involved throughout. Data collection involved two literature reviews, a patient survey and triage nurse survey. Findings were synthesised through focus group sessions and the framework was developed during a collaborative workshop.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 225 patients and 176 triage nurses responded to the respective surveys. Patients reported the need for better communication, efficiencies and comfort in the waiting room. Nurses identified barriers to person-centred care, such as workloads, poor environment and long wait times. Strategies for overcoming barriers included enhanced communication, addition of waiting room staff and family involvement. Focus groups recommendations were synthesised as support for staff, systems and processes, environment and facilities, communication and information, and individual care needs, forming the framework elements/components. Practical micro, meso and macro level interventions were also recommended.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The newly developed framework can now be applied to ED triage settings and inform person-centred interventions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70442","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145111168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}