Health Expectations最新文献

{"title":"Living With Persistent Respiratory Symptoms of Long COVID: Qualitative Study Among Brazilian Adults 12 Months After Acute Infection","authors":"Giovana Alves Santos,&nbsp;Carlos Laranjeira,&nbsp;Lígia Carreira,&nbsp;Vanessa Denardi Antoniassi Baldissera,&nbsp;Maria Fernanda do Prado Tostes,&nbsp;Viviani Camboin Meireles,&nbsp;Rosella Santoro Ageno,&nbsp;Maria Aparecida Salci","doi":"10.1111/hex.70409","DOIUrl":"10.1111/hex.70409","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>The majority of those infected with COVID-19 undergo a brief duration of clinical illness. In certain instances, symptoms endure for months or years after the initial viral exposure—a condition characterized as Long COVID (LC). The experience of this illness remains largely unexplored as it has only recently surfaced. This study aims to understand the repercussions of persistent respiratory post-COVID symptoms in Brazilian adults 12 months after SARS-CoV-2 infection.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A constructivist grounded theory study was employed. Data were collected through individual interviews with adults with persistent respiratory symptoms of Long COVID in Brazil. Data collection took place between September 2023 and February 2024. Data analysis was performed on a constant comparative basis and concurrent with data collection to understand the findings.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Twenty-four individuals (12 females, 12 males) with a median age of 43.29 ± 9.09 years participated. The data analysis generated a central category—living with the long-term effects of COVID-19: breathlessness pervades everything—around which three categories emerged: (1) imbalance between life before and after being infected by COVID-19; (2) living with acute post-COVID respiratory symptoms; and (3) struggling with persistent post-COVID respiratory symptoms.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusion</h3>\u0000 \u0000 <p>Our analysis of the perceived needs of individuals with Long COVID underscores the urgent necessity for legislative reform to acknowledge LC as a disability that requires clear diagnostic criteria. Approaches to treatment and rehabilitation are required to evaluate the extent to which functioning and disability improve. Lastly, this study highlights the complex problems encountered by individuals with Long COVID, including employment uncertainties, everyday tasks and social relationships.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12456354/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145132700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Voices: What Can We Learn From the Covid-19 Pandemic About Follow-Up Care in Gynaecologic Oncology?","authors":"Esther M. Vermaas,&nbsp;Luc R. C. W. Van Lonkhuijzen,&nbsp;Henrike Westerveld,&nbsp;Maaike A. Van Der Aa,&nbsp;Tijmen J. Bonestroo,&nbsp;Brigitte F. M. Slangen,&nbsp;Johanna W. M. Aarts","doi":"10.1111/hex.70405","DOIUrl":"https://doi.org/10.1111/hex.70405","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Purpose</h3>\u0000 \u0000 <p>To explore women's experiences with follow-up care after gynaecological cancer during the Covid-19 pandemic and identify key elements of aftercare from their perspective.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>A qualitative study was performed, including five focus group discussions and two individual interviews with 20 participants diagnosed with ovarian (<i>n</i> = 5), cervical (<i>n</i> = 6), endometrial (<i>n</i> = 5) or vulvar cancer (<i>n</i> = 4) who received follow-up care during the Covid-19 pandemic in the Netherlands. Transcripts underwent thematic analysis, guided by the framework of the Picker Principles of Patient-Centred Care.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>Five themes were generated: (1) continuity of care, (2) absence of family members and carers, (3) meeting my needs, (4) managing my needs and (5) the cancer survivor narrative. The main changes experienced during the Covid-19 pandemic were the introduction to remote healthcare and the absence of family members. An interconnection between themes was found, highlighting that providing a designated, always accessible contact person can be a catalyst for the improvement of information provision and healthcare guidance.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>In conclusion, this study highlights the need for personalised and patient-centred follow-up that promotes patient empowerment, and how this can be provided by a designated contact person. Findings emphasise the importance of tailored support, involvement of family members, addressing information gaps, and overcoming barriers to self-management. Lastly, the findings provide direction on how to approach follow-up care in the future.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Patient Contribution</h3>\u0000 \u0000 <p>This study was done in close collaboration with the patient advocacy group Olijf; their significant input in both the design and conduct of the study is invaluable. Olijf's involvement ensured that the research remained patient-centred and aligned with the real-life concerns and priorities of those affected by gynaecological cancers. The participants in this study, all of whom are gynaecological cancer survivors, played an important role by sharing their experiences, and we extend our gratitude to them. Their insights were critical in shaping the findings of this research.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70405","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145111167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Design of a Framework for Person-Centred Care at Emergency Department Triage and Waiting Room","authors":"Carrie Janerka,&nbsp;Gavin D. Leslie,&nbsp;Fenella J. Gill,&nbsp;PCC ED Triage Group","doi":"10.1111/hex.70442","DOIUrl":"https://doi.org/10.1111/hex.70442","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Introduction</h3>\u0000 \u0000 <p>Patients presenting to an emergency department (ED) are typically assessed by a triage nurse and often required to wait for further assessment and care. Ongoing issues of ED overcrowding and prolonged wait times can impact the processes and patients' experiences. A person-centred approach is recommended. This study aimed to develop a person-centred care framework for use in the ED triage and waiting room.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>The multi-phase research involved a synergistic partnership-based fully integrated mixed-methods approach based on person-centred care principles. Framework development followed target population-centred and partnership-based processes of conception, planning and designing. A consumer group was actively involved throughout. Data collection involved two literature reviews, a patient survey and triage nurse survey. Findings were synthesised through focus group sessions and the framework was developed during a collaborative workshop.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>A total of 225 patients and 176 triage nurses responded to the respective surveys. Patients reported the need for better communication, efficiencies and comfort in the waiting room. Nurses identified barriers to person-centred care, such as workloads, poor environment and long wait times. Strategies for overcoming barriers included enhanced communication, addition of waiting room staff and family involvement. Focus groups recommendations were synthesised as support for staff, systems and processes, environment and facilities, communication and information, and individual care needs, forming the framework elements/components. Practical micro, meso and macro level interventions were also recommended.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>The newly developed framework can now be applied to ED triage settings and inform person-centred interventions.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70442","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145111168","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Continuity Is Essential: The Experiences of Co-Design Participants During the Implementation of a New Health Service","authors":"Deirdre McGowan,&nbsp;Claire Morley,&nbsp;Emily Hansen,&nbsp;Kelly Shaw,&nbsp;Tania Winzenberg","doi":"10.1111/hex.70436","DOIUrl":"10.1111/hex.70436","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To explore the experiences of participants in the co-design of a community-based health service for people with frequent hospital admissions with regard to the design process and its outcomes.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Study Setting and Design&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Qualitative semi-structured interview study with co-design participants who participated in co-design meetings during service implementation. Co-design members were healthcare workers, healthcare consumer representatives, and staff in health services management or leadership roles. Co-design activities consisted of online meetings, out-of-session communication and two facilitated face-to-face workshops, which included case studies and small group activities. Health consumer representatives were also contacted out of session to enable them to contribute anything that they thought was important. An interview guide was used, which covered participants' experiences and perceptions of aspects and outcomes of the co-design process during service implementation. Interviews were online, audio-visually recorded, transcribed verbatim, and checked for accuracy. Two investigators independently and iteratively analysed data using components of grounded theory.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Participants&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Inclusion criteria were being involved in the co-design process during service design and service implementation, or being involved in the co-design process after service design, and attending two or more meetings. After applying these criteria, eight people were approached, of whom five agreed to participate.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Participants were interviewed between December 2023 and February 2024. Two themes were identified: (i) fluctuations in co-design activity impacted engagement and (ii) continuity of co-design processes across service design and service implementation. These themes are integrated into the final theoretical proposition: continuity in co-design is essential.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;The continuity of people and the continuity of the application of co-design processes are essential to ensure there is a link between design, implementation and evaluation; a ‘break in the chain’ can impact service implementation. People using co-design could consider ways to maintain engagement during fluctuations in co-design activity. Strategies to minimise co-design team membership turnover may be needed, or, whe","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70436","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088331","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Design of Maternity Discussion Cards for Aboriginal and Torres Strait Islander Women","authors":"Tanya Druce,&nbsp;Vidanka Vasilevski,&nbsp;Cara Kennedy,&nbsp;Ann Hallett,&nbsp;Karah Edwards,&nbsp;Linda Sweet,&nbsp;Debra Kerr","doi":"10.1111/hex.70437","DOIUrl":"10.1111/hex.70437","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Aboriginal and Torres Strait Islander women and babies are more likely to have poorer health outcomes compared with non-Indigenous women. Barriers exist for Aboriginal and Torres Strait Islander women to access high-quality maternity care, and women can experience culturally unsafe care, racism and a lack of shared decision-making.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Aim&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;To develop maternity discussion cards to facilitate shared decision-making between Aboriginal and Torres Strait Islander women and their partners/support persons, and their maternity care clinicians.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Co-design methodology in two workshops was used to develop the maternity discussion cards.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Findings&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Through a co-design process, a set of 56 topic cards and three blank cards were developed. Additional cards, including an acknowledgement of country and a description of the artwork used on the cards, were designed, and guidelines for card use were also established. Strategies including Aboriginal-led engaging activities, appropriate remuneration for Indigenous knowledge holders, and a culturally safe community setting were integral to the process of planning, designing and reviewing the maternity discussion cards.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Discussion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;It is envisaged that the cards will promote communication and shared decision-making in the healthcare setting. The cards may provide women with an avenue for initiating difficult conversations. While developed in an urban setting, the cards could be adapted for digital use and tailored to rural and remote healthcare environments.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;A co-design process enabled the development of a practical maternity resource for expectant families. The maternity discussion cards will be piloted in a maternity setting to be evaluated and further refined by end users.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Women who identified as Aboriginal or Torres Strait Islander or who had a baby who identified as Aboriginal or Torres Strait Islander were integral to co-designing the maternity discussion cards. Their knowledge and feedback informed the design,","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/hex.70437","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145088350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The REDUCE Intervention: The Development of a Person-Centred Cognitive Behavioural Intervention to Improve Ulcer Outcomes in People at Risk of Diabetic Foot Ulceration","authors":"Kavita Vedhara,&nbsp;Debbie Brewin,&nbsp;Fran Game,&nbsp;Christina Sheehan,&nbsp;Kieran Ayling,&nbsp;Kat Bradbury,&nbsp;Joanna Slodkowska-Barabasz,&nbsp;Judith Joseph,&nbsp;Ruth Hart,&nbsp;Natasha Mitchell,&nbsp;Julia Lawton,&nbsp;Trudie Chalder","doi":"10.1111/hex.70434","DOIUrl":"10.1111/hex.70434","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Diabetic foot ulcers (DFUs) affect approximately one-quarter of people living with diabetes. They are chronic, recur frequently and are associated with significant psychological distress and behavioural challenges. The REDUCE intervention is a person-centred, cognitive behavioural intervention designed to reduce the risk of DFU recurrence and support ulcer healing. Here, we describe the iterative development and optimisation of REDUCE, from its inception as a group-based intervention to an individually tailored intervention delivered via video call or telephone. We outline key stages of the intervention development, including the integration and modification of a digital maintenance intervention (DMI) designed to support long-term behaviour change and a mixed-methods external pilot trial which informed a full-scale clinical and cost-effectiveness trial.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;After initial development, the DMI was the subject of nine ‘think-aloud’ interviews with patient and public contributors. We conducted an external pilot randomised controlled trial, involving 20 patients with recently healed DFUs randomised in a 2:1 ratio (REDUCE + Usual Care vs. Usual Care only). Data collection included patient-reported outcome measures (baseline and 6 weeks and 3 months post-randomisation) and qualitative interviews with participants and facilitators.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Think-aloud interviews informed key refinements to the DMI to enhance usability and engagement. The pilot trial demonstrated high acceptability of the intervention format and delivery. Patient-reported outcomes suggested positive trends in psychological well-being, footcare behaviours and mood among intervention participants. Qualitative findings highlighted the value of individualised delivery, the importance of facilitator support and varied engagement with the DMI. These insights informed further refinements to REDUCE ahead of a full-scale effectiveness trial.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;We provide a comprehensive account of the evolution of the REDUCE intervention and share broader learnings regarding the development of complex behavioural health interventions. The example of REDUCE highlights the value of iterative, multidisciplinary methods and patient involvement in intervention design and offers practical insights for designing digital and remote health interventions.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patie","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12445198/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145081831","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Co-Creation Study Protocol for Developing a Nurse-Led Intervention to Deprescribe Benzodiazepines and Z-Hypnotics in Primary Care Aimed at Empowering Women","authors":"Amaia Cuesta-Zigorraga,&nbsp;Carlota Las Hayas Rodríguez","doi":"10.1111/hex.70361","DOIUrl":"10.1111/hex.70361","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Background&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Gender inequality in mental health is a persistent challenge that requires innovative solutions for its resolution. Interventions in primary care can be useful in narrowing the gap in the consumption of psychotropic drugs.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Objective&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study proposes female empowerment as a non-medical alternative for facing women's daily lives, which are often pathologised, and aims to develop a group intervention in primary care that promotes female empowerment and reduces the use of benzodiazepines and Z-hypnotics (BDZ/ZH).&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Co-creation is presented as a novel methodology for developing health interventions. Participatory workshops will be organised involving women who use BDZ/ZH and health professionals, including family doctors, primary care pharmacists, and nurses. These workshops will collectively identify the needs of participants and contribute to the design of the intervention, which will be developed as a nurse-led initiative.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Discussion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This methodology is essential for designing interventions that respond effectively to the particularities of women who use BDZ/ZH and is valuable in adapting to the actual clinical context of the health professionals involved in their care.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusion&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Nurses' ongoing patient relationships, deep knowledge of individual life contexts, and expertise in health promotion and education make them especially suited to lead empowerment-based interventions.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study protocol outlines a co-creation process involving patients and healthcare professionals from diverse fields of primary care—pharmacists, family physicians and nurses—to collaboratively design an intervention aimed at empowering women as a strategy for discontinuing benzodiazepines (BDZ) and hypnotics. The goal is to leverage both the lived experiences of patients and the clinical expertise of healthcare providers to develop a tailored, effective intervention. In the future implementation of the intervention, nurses are expected to take a leading role.&lt;/p&gt;\u0000 \u0000 &lt;p&gt;&lt;b&gt;Clinical Trial Registration:&lt;/b&gt; This manuscript outlines a protocol for a participatory process and, as such, i","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12445199/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145082463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the Feasibility of the Participant-Led Video Intervention to Train Support Workers From the Perspective of Disability Sector Professionals","authors":"Megan Topping,&nbsp;Jacinta Douglas,&nbsp;Kate D'Cruz,&nbsp;Di Winkler","doi":"10.1111/hex.70432","DOIUrl":"10.1111/hex.70432","url":null,"abstract":"<div>\u0000 \u0000 \u0000 <section>\u0000 \u0000 <h3> Background</h3>\u0000 \u0000 <p>Tailored disability support is fundamental to the lives of adults with disability and complex needs. However, support quality is inconsistent. An intervention was co-designed to help people with disability direct their supports: participant-led videos (PLVs). Following a successful pilot study, this study aimed to evaluate the feasibility of the use of PLVs by sector professionals working with people with disability in the community.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Methods</h3>\u0000 \u0000 <p>Sixteen sector professionals attended a training workshop on PLVs. Following the workshop, five sector professionals were funded to collaborate with people with disability to produce PLVs. The training workshop was evaluated using an online survey (<i>n</i> = 15) and a 1-month follow-up interview (<i>n</i> = 8). Post-production interviews (<i>n</i> = 4) were conducted to evaluate the experience of producing a PLV.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Results</h3>\u0000 \u0000 <p>All sector professionals endorsed the training workshop and reported high levels of confidence in producing videos following the workshop. Highlights of the workshop included the centrality of the voice of people with disability and the design and quality of the content. All participants planned to implement what they had learnt and create videos with people they worked with. The experience evaluation findings were also positive, with all sector professionals endorsing the usefulness of PLVs as a tool to capture genuine behaviours and enable disability support workers to get to know the individual. Sector professionals saw the value of the intervention in helping to give people with disability a voice and minimise misrepresentation of individuals.</p>\u0000 </section>\u0000 \u0000 <section>\u0000 \u0000 <h3> Conclusions</h3>\u0000 \u0000 <p>This study demonstrates the feasibility of PLVs outside of the team that developed the intervention. This evaluation contributes to an evidence base for funding to facilitate the development of PLVs as a tool to help improve the quality of support and maximise autonomy for people with complex needs. Future research is required to evaluate the longer-term impact of PLVs on support quality.</p>\u0000 </section>\u0000 </div>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12441804/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145076682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correction to “Navigating Challenges and Workarounds: A Qualitative Study of Healthcare and Support Workers' Perceptions on Providing Care to People Seeking Sanctuary”","authors":"","doi":"10.1111/hex.70427","DOIUrl":"10.1111/hex.70427","url":null,"abstract":"<p>Khanom A, Evans BA, Alanazy W, et al. Navigating challenges and workarounds: a qualitative study of healthcare and support workers' perceptions on providing care to people seeking sanctuary. <i>Health Expect</i>. 2024; 27:e14061. https://doi.org/10.1111/hex.14061</p><p>We apologize for this error.</p>","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12441805/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145076586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a Co-Produced Practice Framework to Support Personalised Safety Planning for Adults Experiencing Suicidality","authors":"Katherine McGleenan,&nbsp;Isabel Gordon,&nbsp;Hollie Smith,&nbsp;Jill Barker,&nbsp;Rebecca Lilley,&nbsp;Tara Scott,&nbsp;Paula Mart,&nbsp;Victoria Walker,&nbsp;Nicola Clibbens,&nbsp;Julie Taylor,&nbsp;Sarah Fishburn,&nbsp;Andrew Ramtohul,&nbsp;Sandra Chidimma Nwokoroku,&nbsp;Darren Flynn","doi":"10.1111/hex.70423","DOIUrl":"10.1111/hex.70423","url":null,"abstract":"&lt;div&gt;\u0000 \u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Introduction&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Suicide safety plans are widely used internationally in health and social care settings. This study aimed to co-produce a framework for supporting personalised safety planning, sensitive to the needs, preferences and values of people experiencing suicidality.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Methods&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Phase 1 conducted semi-structured interviews to explore the views and preferences of adults with lived experience of suicidality on the content and implementation of personalised suicide safety planning. In Phase 2, interactive practitioner workshops reviewed and refined a draft framework for personalised suicide safety planning. Data analysis was conducted in two steps: an inductive thematic analysis of interview data, followed by a deductive–inductive approach to develop the themes using data from two workshops with practitioners.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Results&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;&lt;i&gt;n&lt;/i&gt; = 11 adults with current or previous lived experience of suicidality participated in semi-structured interviews, and &lt;i&gt;n&lt;/i&gt; = 16 practitioners from primary care, secondary care, third sector and emergency services involved in providing suicide prevention were recruited to two workshops. Two overarching themes and six sub-themes were identified: (1) the &lt;i&gt;personalisation of safety planning (&lt;/i&gt;sub-themes—&lt;i&gt;co-production, involving family and friends, true personalisation)&lt;/i&gt; and (2) the &lt;i&gt;process&lt;/i&gt; of safety planning (sub-themes—&lt;i&gt;implementation, format&lt;/i&gt; and &lt;i&gt;purpose&lt;/i&gt;) were used to inform the structure of a prototype personalised suicide safety planning framework.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Conclusions&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;Personalised suicide safety planning requires early intervention and a person-centred approach. Pivotal to this is the need to move away from standardised tools towards the development of a workforce with the skills and confidence to work flexibly and collaboratively with the people they are supporting. Future research is needed to test the utility of the framework in a range of settings, including primary care, urgent care and the third sector.&lt;/p&gt;\u0000 &lt;/section&gt;\u0000 \u0000 &lt;section&gt;\u0000 \u0000 &lt;h3&gt; Patient or Public Contribution&lt;/h3&gt;\u0000 \u0000 &lt;p&gt;This study was co-produced from the outset by people with personal experience of suicidality. Pre-study public engagement helped inform the study design, and peer researchers on the study team collaborated in all stages of the process from design through to dissemination, including developm","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"28 5","pages":""},"PeriodicalIF":3.2,"publicationDate":"2025-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12439281/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145071249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}