Neuropsychological Rehabilitation最新文献_第4页

The RENEW programme and telehealth transdiagnostic goal management training in outpatient neurology: A retrospective clinical programme evaluation. 续订计划和远程医疗跨诊断目标管理培训在门诊神经病学：回顾性临床方案评估。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 DOI: 10.1080/09602011.2026.2725703

Kim Willment, Emma Weizenbaum, Joseph Kim, Gretchen Reynolds, Seth A Gale, Kirk R Daffner

{"title":"The RENEW programme and telehealth transdiagnostic goal management training in outpatient neurology: A retrospective clinical programme evaluation.","authors":"Kim Willment, Emma Weizenbaum, Joseph Kim, Gretchen Reynolds, Seth A Gale, Kirk R Daffner","doi":"10.1080/09602011.2026.2725703","DOIUrl":"10.1080/09602011.2026.2725703","url":null,"abstract":"This clinical programme evaluation describes a telehealth, transdiagnostic Goal Management Training (GMT®) group adaptation delivered within RENEW (Resilience through Neurologic and Emotional Wellness), an academic outpatient neuropsychological rehabilitation programme. GMT® is an evidence-based cognitive rehabilitation intervention targeting goal neglect and goal-directed behaviour in acquired executive dysfunction. Using components of the RE-AIM framework, we characterize programme reach across 28 months (N = 371 completers), telehealth and transdiagnostic adaptations, and preliminary outcome data from a passive, platform-based monitoring system. Among survey completers (34% of programme completers), acceptability and satisfaction were high, and statistically significant pre-to-post improvements were observed across mood, anxiety, cognitive self-efficacy, quality of life, and mindful attention, with the largest effects for mood and anxiety. Implementing this monitoring infrastructure generated four lessons: (1) evaluation is limited by what is not collected at referral; (2) monitoring at the margins of clinical care is structurally unsustainable; (3) monitoring that does not return value to patients is a missed therapeutic opportunity; and (4) initiating data collection at referral enables evaluation and rigorous programme learning. These lessons help refine our monitoring design and offer a practical, generalizable account of what is required to deliver and evaluate neuropsychological rehabilitation at scale within routine clinical care.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-29"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148876723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Self-Instruction and rhythmic music-based intervention: A feasibility study of a novel intervention for executive functioning in traumatic brain injury. 基于自我指导和节奏音乐的干预：创伤性脑损伤执行功能新干预的可行性研究。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 Epub Date: 2025-12-29 DOI: 10.1080/09602011.2025.2607136

Irena Tasevska, Jamie Berry, Jennifer Batchelor, Kirk N Olsen, William Forde Thompson

{"title":"Self-Instruction and rhythmic music-based intervention: A feasibility study of a novel intervention for executive functioning in traumatic brain injury.","authors":"Irena Tasevska, Jamie Berry, Jennifer Batchelor, Kirk N Olsen, William Forde Thompson","doi":"10.1080/09602011.2025.2607136","DOIUrl":"10.1080/09602011.2025.2607136","url":null,"abstract":"Traumatic Brain Injury (TBI) often results in impairments to executive functioning. Self-instruction (SI) and music-based interventions have both independently shown promise in improving cognitive and executive functioning, however, they have not been studied in combination. This study explores the feasibility and potential benefits of combining rhythmic music-based intervention and SI for individuals with a history of TBI experiencing executive dysfunction. Four male participants (aged 38-64) with severe TBI participated in a twice-weekly intervention combining rhythmic music-based intervention and SI over five weeks. Participants were assessed pre- and post-intervention using the BRIEF-A for executive functioning, along with secondary measures, the Frontal Assessment Battery (FAB), Depression, Anxiety and Stress Scale (DASS-42), Seashore Rhythm Test (SRT), Letter Number Task (LNT), and Quality of Life After Brain Injury Scale (QOLIBRI). Feasibility was assessed through a questionnaire. Three of four participants reported significant improvements in behaviour regulation, and three of four informants reported observing significant improvements in participants' overall executive functioning. These findings indicate that combining rhythmic music-based intervention with SI is a feasible, well-tolerated, and potentially effective intervention for improving executive functioning in individuals with TBI. Future randomized controlled trials are needed to confirm the efficacy of the intervention.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1535-1557"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145859261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Subjective sensory hypersensitivity in chronic acquired brain injury patients: the relationships with insomnia, hyperarousal and perceived stress. 慢性后天性脑损伤患者的主观感觉超敏反应：与失眠、过度觉醒和感知应激的关系。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 Epub Date: 2026-01-09 DOI: 10.1080/09602011.2025.2609812

Liselotte Blom, Nathan Van Der Stoep, Hella Thielen, Céline R Gillebert, Johanna M A Visser-Meily, Irene Huenges Wajer

{"title":"Subjective sensory hypersensitivity in chronic acquired brain injury patients: the relationships with insomnia, hyperarousal and perceived stress.","authors":"Liselotte Blom, Nathan Van Der Stoep, Hella Thielen, Céline R Gillebert, Johanna M A Visser-Meily, Irene Huenges Wajer","doi":"10.1080/09602011.2025.2609812","DOIUrl":"10.1080/09602011.2025.2609812","url":null,"abstract":"Sensory hypersensitivity following acquired brain injury (ABI) is frequently reported and affects well-being, yet remains poorly understood. Research in neurotypical individuals suggests a link between hypersensitivity, insomnia, hyperarousal and perceived stress. This study examined the relationship between sensory sensitivity and insomnia in ABI patients and whether hyperarousal and/or perceived stress mediates this relationship. In an online cross-sectional cohort study among 188 chronic ABI patients of University Medical Centre Utrecht and 61 neurotypical controls, sensory hypersensitivity was measured using the Multi-Modal Evaluation of Sensory Sensitivity, insomnia using the Insomnia Severity Index, hyperarousal using the Hyperarousal Scale, and perceived stress using the Perceived Stress Scale. Associations were examined using multiple regression and mediation analyses with bootstrapping. The results confirmed that sensory hypersensitivity was frequent (66%) and persistent following ABI, mainly in visual and auditory modalities. Increased sensory hypersensitivity was related to higher severity of insomnia in ABI patients. This relationship was partially mediated by hyperarousal and perceived stress. Hyperarousal and perceived stress may underlie the link between sensory hypersensitivity and insomnia, although the direction of these effects remains unclear.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1635-1653"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145936367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The relationship between dispositional mindfulness and psychological, cognitive, and functional outcomes following mild traumatic brain injury. 性格正念与轻度创伤性脑损伤后心理、认知和功能结局的关系。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 Epub Date: 2025-12-24 DOI: 10.1080/09602011.2025.2607149

Melanie Ann Mascarenhas, Zindel V Segal, Tyler David Brown, Konstantine K Zakzanis

{"title":"The relationship between dispositional mindfulness and psychological, cognitive, and functional outcomes following mild traumatic brain injury.","authors":"Melanie Ann Mascarenhas, Zindel V Segal, Tyler David Brown, Konstantine K Zakzanis","doi":"10.1080/09602011.2025.2607149","DOIUrl":"10.1080/09602011.2025.2607149","url":null,"abstract":"Background: Most individuals who sustain a mild uncomplicated Traumatic Brain Injury (mTBI) recover within 1-3 months. However, a significant proportion consistently report ongoing cognitive, psychological, and somatic sequelae, which can be functionally disabling and hinder active participation in society following injury. The present study examined dispositional mindfulness as a targetable protective factor as it pertains to psychological, cognitive, and functional outcomes in the post-acute stage of mTBI. Method. In this cross-sectional study, 45 litigating individuals with persistent symptoms in the post-acute stage following mTBI completed a comprehensive neuropsychological assessment, which included current and retrospective pre-injury ratings of the Five-Facet Mindfulness Questionnaire. Results. Mindfulness was significantly associated with depression and anxiety but not with objective cognitive performance on measures of attention or working memory. Lower mindfulness was observed in individuals who had returned to work following injury compared to those who had not, specifically in the Observing and Describing facets. Pre-injury mindfulness significantly predicted scores on the Psychiatric Impairment Rating Scale, with higher Observing scores predicting worse functioning. Future research employing experimental and longitudinal designs can further elucidate these relationships.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1710-1737"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145821880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Feasibility and potential effects of mental imagery training on subjective cognitive function and brain connectivity in people with Parkinson's disease: A randomized pilot trial. 心理意象训练对帕金森病患者主观认知功能和大脑连通性的可行性和潜在影响：一项随机试点试验

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 Epub Date: 2026-01-03 DOI: 10.1080/09602011.2025.2608220

Jared Cherry, Alyssa M Nelson, Lauren A Robinson, Josh Goldstein, Ana Vives-Rodriguez, Emily Sharp, Sule Tinaz

{"title":"Feasibility and potential effects of mental imagery training on subjective cognitive function and brain connectivity in people with Parkinson's disease: A randomized pilot trial.","authors":"Jared Cherry, Alyssa M Nelson, Lauren A Robinson, Josh Goldstein, Ana Vives-Rodriguez, Emily Sharp, Sule Tinaz","doi":"10.1080/09602011.2025.2608220","DOIUrl":"10.1080/09602011.2025.2608220","url":null,"abstract":"Cognitive impairment is a debilitating problem in Parkinson's disease (PD) with no effective treatment. This pilot randomized controlled trial (ClinicalTrials.gov identifier NCT05495997) tested the feasibility of a personalized mental imagery (MI) intervention focusing on goal-directed activities of daily living in people with PD. We screened 51 and randomized 30 nondemented people with PD. During the six-week training period delivered remotely, PD-MI group practiced MI and PD-Control group received psychoeducation on cognitive health in PD. The primary objective was testing protocol feasibility. We also collected cognitive and functional MRI data at baseline, six weeks, and 18 weeks, specifically, to assess the feasibility of using the Neuro-QoL Cognitive Function (CF) self-report survey and brain functional connectivity as potential efficacy outcome measures in a future definitive trial. Retention and participant compliance with study procedures were 100% during six weeks. There were (1) group differences in the Neuro-QoL-CF T-scores at six and 18 weeks, driven by a reduction in the control group scores, (2) stronger frontoparietal connectivity at six weeks, and (3) weaker visuospatial-motor connectivity at 18 weeks during MI tasks in the PD-MI compared to the PD-Control group. These cognitive and brain connectivity changes should be tested in a fully powered trial.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1588-1615"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145893503","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Long-term fatigue in youth with acquired brain injuries: A 5-year follow-up of the CORE trial. 获得性脑损伤的青少年长期疲劳：CORE试验的5年随访

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-09-01 Epub Date: 2026-01-05 DOI: 10.1080/09602011.2025.2609804

Hanna Lovise Sargénius, Ruth Elizabeth Hypher, Torun Gangaune Finnanger, Anne Elisabeth Brandt, Stein Andersson, Kari Risnes, Torstein Baade Rø, Jan Stubberud

{"title":"Long-term fatigue in youth with acquired brain injuries: A 5-year follow-up of the CORE trial.","authors":"Hanna Lovise Sargénius, Ruth Elizabeth Hypher, Torun Gangaune Finnanger, Anne Elisabeth Brandt, Stein Andersson, Kari Risnes, Torstein Baade Rø, Jan Stubberud","doi":"10.1080/09602011.2025.2609804","DOIUrl":"10.1080/09602011.2025.2609804","url":null,"abstract":"The objective of this study was to evaluate fatigue trajectories of adolescents with paediatric acquired brain injuries (pABI) following metacognitive strategy training (paediatric Goal Management Training; pGMT) or psychoeducation (paediatric Brain Health Workshop; pBHW) for executive dysfunction in the chronic phase after injury. Five-year follow-up data of the CORE randomized controlled trial including participants aged 10-17 years at baseline, randomized to either pGMT or pBHW is presented. Fatigue was measured at five timepoints using the Paediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL MFS). Linear mixed models and Reliable Change Index (RCI) analyses were utilized to assess outcomes. A significant reduction in total fatigue (F(4,62.820) = 2.81, p = .033) and cognitive fatigue (F(4,59.622) = 4.89, p = .002) was observed based on parent-reported data. However, no significant differences emerged between intervention groups or for the group-by-time interaction. Clinically meaningful improvements in fatigue as determined by the RCIs, were noted in 67.6% of participants per parent-report. In conclusion, both pGMT and pBHW may contribute to sustained reductions in fatigue in young people with pABI, particularly cognitive fatigue. The high rate of clinically meaningful change highlights fatigue as a modifiable symptom that should be a key target in long-term rehabilitation strategies.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1616-1634"},"PeriodicalIF":1.8,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145907228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effect of mental rotation training of hands for upper extremity motor function and cognition in people post-stroke: A randomized controlled trial. 脑卒中后手部心理旋转训练对上肢运动功能和认知的影响：一项随机对照试验。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-08-31 DOI: 10.1080/09602011.2026.2714854

Ouyang Wang, Shamay Sheung Mei Ng, Thomson Wai Lung Wong

{"title":"The effect of mental rotation training of hands for upper extremity motor function and cognition in people post-stroke: A randomized controlled trial.","authors":"Ouyang Wang, Shamay Sheung Mei Ng, Thomson Wai Lung Wong","doi":"10.1080/09602011.2026.2714854","DOIUrl":"https://doi.org/10.1080/09602011.2026.2714854","url":null,"abstract":"Stroke sequelae impose heavy socioeconomic burdens. The hand mental rotation task (HMRT), imagined hand rotation training, may boost upper-limb motor and cognitive recovery yet lacks sufficient stroke rehabilitation evidence. Neuroimaging and transcranial magnetic stimulation research have verified its neural mechanisms. This study explored HMRT's effects on post-stroke motor and cognitive function. Thirty stroke survivors (18 ischemic, 12 hemorrhagic) with moderate-severe upper limb dysfunction were randomized to an intervention group (IG) or a control group (CG), with a mean Fugl-Meyer Assessment of Upper Extremity (FMA-UE) score of 29.13 and Brunnstrom stages II-V. The CG received 60-minute daily conventional rehabilitation treatment (CRT), 6 days weekly for 3 weeks; the IG received CRT combined with an extra 30 min of daily HMRT. Assessments including the FMA-UE, wrist range of motion (ROM) on pronation and supination, Modified Barthel Index (MBI), and Montreal Cognitive Assessment (MoCA) were implemented before and after the intervention. The IG displayed significant improvements in FMA-UE, MBI, and MoCA compared to the CG, providing a basis for HMRT as a potentially effective supplementary therapy for improving upper limb and cognitive function post-stroke.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-21"},"PeriodicalIF":1.8,"publicationDate":"2026-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148867904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Emotional wellbeing and caregiving strain in close others following acquired brain injury transitional rehabilitation: A prospective longitudinal study. 获得性脑损伤过渡性康复后亲密他人的情绪健康和照顾压力：一项前瞻性纵向研究。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-08-29 DOI: 10.1080/09602011.2026.2702043

Mandy Nielsen, Kerrin Watter, Jacqueline Byrne, Jaycie K Bohan, Areti Kennedy

{"title":"Emotional wellbeing and caregiving strain in close others following acquired brain injury transitional rehabilitation: A prospective longitudinal study.","authors":"Mandy Nielsen, Kerrin Watter, Jacqueline Byrne, Jaycie K Bohan, Areti Kennedy","doi":"10.1080/09602011.2026.2702043","DOIUrl":"https://doi.org/10.1080/09602011.2026.2702043","url":null,"abstract":"Close others (COs) of individuals with acquired brain injury (ABI) report negative psychological wellbeing associated with caregiving. The transition period from hospital discharge to home is a known vulnerable time. An ABI transitional rehabilitation service (ABI TRS) was piloted, utilizing a family-focused care model and aiming to support COs' needs. This study assessed the impact of ABI TRS on CO psychological well-being and caregiver strain compared to a \"treatment as usual\" (TAU) approach. Data from 70 individuals with ABI and 77 COs involved in ABI TRS were analysed alongside data from 82 individuals and COs in the TAU group. Measures included gender and age; injury type, length of stay, and Functional Independence Measure (FIM) scores (person with ABI); Depression, Anxiety and Stress Scale (DASS-21) and Caregiver Strain Index (CSI) (CO); and Mayo-Portland Adaptability Inventory (MPAI-4) (CO proxy-rated). Analyses indicated both treatment groups had higher stress, depression, and anxiety symptoms at discharge compared to three months post-discharge. However, ABI TRS COs exhibited significantly lower caregiver strain after three months compared to the TAU group. Additionally, females reported higher strain than males. Predictors of caregiver strain were also identified. The findings support benefits of the ABI TRS model in reducing caregiver strain.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-29"},"PeriodicalIF":1.8,"publicationDate":"2026-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148852083","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors associated with self-efficacy in individuals with stroke. 中风患者自我效能感的相关因素。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-08-24 DOI: 10.1080/09602011.2026.2718978

Leyla Kaya Ozturk, Damla Aygun Gurbuz, Keziban Temucin, Sedanur Gurlek, Ebru Umay

{"title":"Factors associated with self-efficacy in individuals with stroke.","authors":"Leyla Kaya Ozturk, Damla Aygun Gurbuz, Keziban Temucin, Sedanur Gurlek, Ebru Umay","doi":"10.1080/09602011.2026.2718978","DOIUrl":"https://doi.org/10.1080/09602011.2026.2718978","url":null,"abstract":"This study aimed to examine factors associated with self-efficacy in individuals with stroke within a multidimensional framework. A total of 152 individuals with stroke were included in this cross-sectional observational study. Self-efficacy was assessed using the Daily Living Self-Efficacy Scale, functional independence using the Functional Independence Measure, participation using the Frenchay Activity Index, and fatigue using the Fatigue Severity Scale. Demographic and clinical data were also collected. Bivariate correlations and theory-driven hierarchical multiple linear regression analyses were conducted. The final model explained 46.9% of the variance in self-efficacy. Sex, education level, fatigue severity, and functional independence were identified as the factors most closely associated with self-efficacy, while age, stroke duration, employment status, and participation were not independently associated with self-efficacy in the final model. These findings indicate that self-efficacy after stroke is particularly related to functional independence and fatigue, while also reflecting the role of contextual characteristics such as sex and education. Addressing these factors may help guide rehabilitation approaches aimed at supporting self-efficacy in individuals with stroke.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":1.8,"publicationDate":"2026-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148814764","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How do families of relatives with prolonged disorders of consciousness experience care decision-making? A systematic review and thematic synthesis of qualitative research. 长期意识障碍亲属的家庭如何经历护理决策？质性研究的系统回顾与专题综合。

IF 1.8 3区心理学

Neuropsychological Rehabilitation Pub Date : 2026-08-21 DOI: 10.1080/09602011.2026.2717259

Hope Brennan, Richard J Brown, Alistair Teager

{"title":"How do families of relatives with prolonged disorders of consciousness experience care decision-making? A systematic review and thematic synthesis of qualitative research.","authors":"Hope Brennan, Richard J Brown, Alistair Teager","doi":"10.1080/09602011.2026.2717259","DOIUrl":"https://doi.org/10.1080/09602011.2026.2717259","url":null,"abstract":"Following a severe brain injury, some people develop a prolonged disorder of consciousness (PDoC). These people experience acute and life-long issues that require care from others. Family members are often involved in their relatives' care, which includes contributing to treatment decision processes. These can be complicated given issues around uncertainty of diagnosis, prognosis, and their relatives' wishes. This systematic review aimed to synthesize relevant qualitative research to develop a better understanding of how families of relatives with PDoC experience care decision-making. The Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA) guidelines were followed. Five databases were searched for terms associated with PDoC, families, decision-making, and qualitative research. Twenty-one studies involving 357 family members met inclusion criteria, and the methodological quality of included studies was appraised using the Critical Appraisal Skills Programme (CASP) qualitative studies checklist. Thematic synthesis identified four themes: (1) A duty to represent their relative, (2) a wish to feel certain, informed, and involved in decision-making, (3) the ethical challenges of life and death decision-making, and (4) navigating the difficulties of shared decision-making. The review offers novel insights into how families experience care decision-making for their relatives with PDoC. Implications for clinical practice for relatives with PDoC, their families and professionals are made.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-34"},"PeriodicalIF":1.8,"publicationDate":"2026-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0