{"title":"Association between social participation and memory function among Chinese stroke survivors: The mediating role of depressive symptoms.","authors":"Zhiya Hua, Dandan Ma","doi":"10.1080/09602011.2024.2336960","DOIUrl":"10.1080/09602011.2024.2336960","url":null,"abstract":"<p><p>Although the association between social participation and memory function has been documented in other populations, whether it exists among stroke survivors is unclear. Additionally, the mechanisms underlying this association are largely unknown. We attempted to examine the association between social participation and memory function in stroke survivors and the possible mediating role of depressive symptoms. A total of 614 stroke survivors (mean age: 64.73 years) drawn from a nationally representative survey in China were investigated. Based on the descriptive statistics, a Pearson's correlation and bootstrapping-based mediation analysis were executed. The results indicated that an increase in social participation was associated with a decrease in depressive symptoms (<i>r</i> = -0.100, <i>p</i> < 0.05) and an increase in memory function (<i>r</i> = 0.162, <i>p</i> < 0.01). Moreover, memory function was significantly negatively related to depressive symptoms (<i>r</i> = -0.243, <i>p</i> < 0.01). In addition, after controlling for sociodemographic factors, depressive symptoms partially mediated the effects of social participation on memory function. Due to the cross-sectional research design, causal relationships cannot be verified between the study variables. However, interventions aimed at aiding stroke survivors in memory impairment recovery may consider strategies to enhance social participation and mitigate depressive symptoms.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"276-291"},"PeriodicalIF":1.7,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica Salley Riccardi, Libby Dart, Jennifer P Lundine, Angela Ciccia
{"title":"Correlations between injury- and child-related factors and participation and quality of life after childhood traumatic brain injury.","authors":"Jessica Salley Riccardi, Libby Dart, Jennifer P Lundine, Angela Ciccia","doi":"10.1080/09602011.2025.2467810","DOIUrl":"https://doi.org/10.1080/09602011.2025.2467810","url":null,"abstract":"<p><strong>Objective: </strong>The purpose of this study was to examine correlations between injury- and child-factors and participation and quality of life (QoL) after childhood traumatic brain injury (TBI).</p><p><strong>Method: </strong>Cross-sectional data was analysed on 59 children with TBI included in a larger survey study. These children experienced their TBI at 12.2 years old and were 2.1 years post-injury, on average.</p><p><strong>Results: </strong>On average, children's executive functioning, family functioning, and psychosocial QoL were within typical limits based on parent-reported standardized measures, yet participation was within the limited/somewhat limited range and physical QoL below the average for the U.S.</p><p><strong>Population: </strong>Bivariate analyses revealed significant correlations between age at injury, executive functioning summary and subscale scores, and family functioning with participation and psychosocial QoL.</p><p><strong>Conclusions: </strong>The results of this study support the understanding of risk and protective factors and the interaction amongst these factors for children with TBI. These findings highlight the need for professionals to monitor and provide direct and indirect interventions, as needed, for all components of the ICF framework for children with TBI and their families.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-17"},"PeriodicalIF":1.7,"publicationDate":"2025-02-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143517550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Inclusion of the Other in the Self-Scale (IOSS) as a valid self-discrepancy measure after stroke.","authors":"Kirsten Heckmann, Katja Werheid, Simon Ladwig","doi":"10.1080/09602011.2025.2467111","DOIUrl":"https://doi.org/10.1080/09602011.2025.2467111","url":null,"abstract":"<p><p>Self-discrepancy, i.e., negative changes in self-concept, is a common post-stroke phenomenon which is closely associated with depression and quality of life. In earlier research, self-discrepancy has been measured with the 18-item seven-stepped <i>Head Injury Semantic Differential Scale</i> (HISDS-III), by comparing pre- and post-morbid self-concepts. As completing this scale may be demanding especially for cognitively impaired stroke survivors, a straightforward instrument is desirable. Therefore, the validity of the <i>Inclusion of the Other in the Self Scale</i> (IOSS), which measures self-discrepancy with a single visualized item, was cross-sectionally examined in 123 individuals three years after stroke. Results revealed a substantial correlation between the IOSS and the established HISDS-III (<i>r</i> = .47, <i>p</i> < .001) and a Gini Index corresponding to an AUC of 0.74, both indicating convergent validity. Both measures showed similar correlations with relevant covariates. Prediction of depressive symptoms using established predictors was significantly improved by the inclusion of the IOSS (Δ<i>R²</i> = .07, <i>p</i> < .001). The findings indicate the high validity of the IOSS as an economic measure of global self-discrepancy after stroke. In addition, the results confirm self-discrepancy as a relevant determinant of post-stroke depression and thus as a potential target for psychological interventions in stroke patients.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-20"},"PeriodicalIF":1.7,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469852","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Grahame K Simpson, Lauren Gillett, Eng-Siew Koh, Alexanda J Walker, Joe Hanna, Wafa Trad, Teresa Simpson, Diane L Whiting
{"title":"The Strategy Use Measure (SUM): A new tool to evaluate the use of compensatory behavioural strategies for cognitive, emotional and behavioural impairments after acquired brain injury.","authors":"Grahame K Simpson, Lauren Gillett, Eng-Siew Koh, Alexanda J Walker, Joe Hanna, Wafa Trad, Teresa Simpson, Diane L Whiting","doi":"10.1080/09602011.2025.2462040","DOIUrl":"https://doi.org/10.1080/09602011.2025.2462040","url":null,"abstract":"<p><p>The Strategy Use Measure (SUM) was developed as a systematic tool to assess cognitive, behavioural and emotional strategy use by clients and carers after acquired brain injury. Comprehensive content development was undertaken across four clinical service sites via expert clinician consultation and consensus, file review of strategies used in clinical practice, and consumer consultation. Statistical analysis was undertaken to evaluate items and assess reliability, validity and factor structure. Two final versions of the SUM were developed, for use with clients (SUM-ABI; 14 items) and carers (SUM-C; 24 items). Internal consistency for the total scales was sound (SUM-ABI = <i>.90</i>; SUM-C = <i>.96</i>) as was test-retest reliability (SUM-ABI <i>= .87</i>; SUM-C <i>= .90</i>). Meaningful factors were identified for both scales (SUM-ABI: Memory and Planning, Emotion and Mood, Cognitive Load; SUM-C: Executive Support, Emotion/Behaviour Support, Enhancing Task Performance, Motivation Support) with all subscales demonstrating strong internal consistency (≥.80). Construct validity for both scales was explored using validated measures. The SUM versions were evaluated against COSMIN instrument design standards and found overall to be reliable and valid, with promising utility in rehabilitation for clinicians and researchers.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-23"},"PeriodicalIF":1.7,"publicationDate":"2025-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143469918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alice Storey, Eliza Nash, Hannah Dempsey, Katherine McIvor, Nicolò Zarotti
{"title":"\"It's knowing that there are other people and they've accepted it\": Patients' experiences of an acceptance and commitment therapy group intervention for people with neurological conditions.","authors":"Alice Storey, Eliza Nash, Hannah Dempsey, Katherine McIvor, Nicolò Zarotti","doi":"10.1080/09602011.2025.2457666","DOIUrl":"https://doi.org/10.1080/09602011.2025.2457666","url":null,"abstract":"<p><p>Individuals living with neurological conditions often face chronic issues including motor and sensory impairments and cognitive deficits. These challenges can lead to significant psychological difficulties, including anxiety, depression, and post-traumatic stress. Acceptance and Commitment Therapy (ACT) is a psychotherapeutic approach which aims to enhance psychological flexibility and acceptance while promoting behavioural change. Although ACT groups have shown promise in supporting individuals with neurological conditions, the evidence on patients' experiences of attending them is sparse. This project explored the experiences of individuals with a range of neurological conditions who had attended ACT group sessions as part of routine clinical practice, with the aim to refine future iterations of the intervention and enhancing patient care. Ten individual qualitative semi-structured interviews were carried out and the data were analysed thematically. Three overarching themes emerged from the analysis: (1) Initial Barriers to Group Attendance and Engagement; (2) Building an Environment of Acceptance; (3) Developing an ACT toolkit. Overall, the results showed that the ACT group intervention led participants to develop stronger emotional connectedness, better knowledge of their difficulties, more effective psychological skills, and different mindsets regarding their condition. Implications for the refinement of future ACT groups, neuropsychological service development, and clinical practice are discussed.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-23"},"PeriodicalIF":1.7,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Rehabilitation and intervention of developmental and acquired prosopagnosia: A systematic review.","authors":"Sally Byrne, Melanie Porter","doi":"10.1080/09602011.2024.2449068","DOIUrl":"https://doi.org/10.1080/09602011.2024.2449068","url":null,"abstract":"<p><p>Prosopagnosia is a neurological disorder; characterized by an impairment in facial recognition. It can occur from acquired prosopagnosia (occurring in approximately 5.6% of the population), or from developmental prosopagnosia (occurring in approximately 2% of the population). Despite the relatively high prevalence of prosopagnosia, there has been limited research into intervention for this condition. The current systematic review aimed to review the evidence base to aid the development of practice guidelines for clinicians working with impacted individuals. A systemic search identified 14 studies, 10 of which involved participants with developmental prosopagnosia, while the remaining studies involved participants with acquired prosopagnosia. Overall, the findings identified two strategies which produced significant improvement in face recognition in prosopagnosics. The first strategy involved a perceptual learning strategy (a restorative approach). While this strategy improved face processing abilities, the intervention was time-consuming and relied on specific software. The second strategy involved learned association of distinguishable facial features (a compensatory approach). This intervention produced improvements in face recognition and was quick to administer, however, the gains made were not generalisable to untrained faces. The current review identified a number of limitations in the existing literature, such as the lack of single-case experimental designs and randomized controlled trials, limited control for practice effects, and no consensus with regard to the assessment and diagnosis of prosopagnosia. This review highlighted the need for further research to inform practice guidelines.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-44"},"PeriodicalIF":1.7,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Susan Mac Conaill, Fiadhnait O'Keeffe, Simone Carton, Donal G Fortune
{"title":"\"I felt like I was missing 'me'\": Long-term experiences of intrapersonal loss, grief, and change in adults with an acquired brain injury.","authors":"Susan Mac Conaill, Fiadhnait O'Keeffe, Simone Carton, Donal G Fortune","doi":"10.1080/09602011.2025.2452618","DOIUrl":"https://doi.org/10.1080/09602011.2025.2452618","url":null,"abstract":"<p><p>Experiences of loss and change following acquired brain injury (ABI) are frequent and multi-contextual, yet the long-term experiences of people with ABI are not well understood. This study explored the experiences of intrapersonal loss, grief and change in people with ABI, a decade after their injury. Twelve adults with ABI were interviewed 10-13 years post-injury. Using interpretative phenomenological analysis, we identified four overarching themes: a dawning realization of the impact of injury; loss of personhood; loss and liminality; and learning to live with loss and grief. Our findings indicate that in the decade following ABI, people continue to develop awareness of the impact of their injury and experience oscillating acceptance towards enforced changes. Participants reported a diminished sense of agency and autonomy in how they were perceived by and interacted with following injury. Additionally, identity may be lost, suspended, and renegotiated. Findings suggest dynamic, active, and flexible coping strategies that continue to be present over the long term. Considering the persistent nature of the injury and the evolving needs of the individual, a longer term view of rehabilitation outcomes may be required, contextualised by relational and intrapersonal challenges that may present over the longer term.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-23"},"PeriodicalIF":1.7,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016832","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
María José Bracho, Christian Salas, Rodrigo Tobar-Fredes, Álvaro Aliaga, Ana Kinkead
{"title":"The Anticipated Stigma and Concealment Questionnaire (ASCQ): Psychometric properties of a Spanish version in a Chilean sample of brain injury survivors.","authors":"María José Bracho, Christian Salas, Rodrigo Tobar-Fredes, Álvaro Aliaga, Ana Kinkead","doi":"10.1080/09602011.2024.2449061","DOIUrl":"https://doi.org/10.1080/09602011.2024.2449061","url":null,"abstract":"<p><p>Stigma represents a major obstacle in rehabilitation and community reintegration after brain injury. However, appropriate tools to measure stigma in Spanish-speaking countries are lacking. This study examined the psychometric properties of the Spanish version of the Anticipated Stigma and Concealment Questionnaire (ASCQ). An observational cross-sectional study was conducted with 103 participants who completed the ASCQ and other measures. Exploratory Factor Analysis (EFA) and Confirmatory Factor Analysis (CFA) were performed to assess the scale's structure. Associations between the ASCQ and other mental health measures were explored to establish its nomological validity. All ASCQ items loaded significantly onto a single factor, with factor loadings ranging from .7 to .84. While <i>χ</i><sup>2</sup> (35) = 56.282, <i>p</i> < .05, some fit indices indicated excellent model fit (CFI = .997 and TLI = .996), while others suggested a good fit (RMSEA = .077, 90% CI [.036, .113], and SRMR = .060). Significant associations were found between the ASCQ and measures of loneliness, depressive symptoms, quality of life, and self-esteem. The ASCQ is a valid and reliable tool for assessing anticipated stigma and the motivation to conceal information after acquired brain injury. It can aid rehabilitation professionals in identifying individuals with interpersonal difficulties during community reintegration.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-20"},"PeriodicalIF":1.7,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ioan Chirap-Mitulschi, Bogdan Ignat, Daniel Alexa, Andreea Chirap-Mitulschi, Sabina Antoniu
{"title":"Health-related quality of life in chronic stroke: Translation and validation of the Romanian stroke and aphasia quality of life scale-39 g (RO-SAQOL-39 g) questionnaire.","authors":"Ioan Chirap-Mitulschi, Bogdan Ignat, Daniel Alexa, Andreea Chirap-Mitulschi, Sabina Antoniu","doi":"10.1080/09602011.2024.2447298","DOIUrl":"https://doi.org/10.1080/09602011.2024.2447298","url":null,"abstract":"<p><p>In the clinical context of stroke, health-related quality of life (HRQOL) is a crucial patient-reported outcome measure that is frequently used to assess the effectiveness of neurorehabilitation programs. Despite its significance, the absence of a stroke-specific quality-of-life instrument translated into Romanian and validated for use in Romanian stroke patients, including those with aphasia, presents a notable gap in current research. This study briefly describes the translation and cross-cultural adaptation of the Stroke and Aphasia Quality of Life Scale-39 g (SAQOL-39 g) into Romanian (RO-SAQOL-39 g). Subsequently, the results of a prospective cohort study on psychometric validation of the RO-SAQOL-39 g are presented. In enrolled stroke patients, measures such as the Barthel Index, HRQOL, and indices of stroke severity including NIHSS, MRC scale for Muscle Strength, and mRS were used. The RO-SAQOL-39 g exhibited excellent reliability (Cronbach's alpha = 0.95 for total score) and repeatability (ICC = 0.96). Moreover, the RO-SAQOL-39 g demonstrated utility as a metric of stroke burden in differentiating between mild and moderate-to-severe stroke, as assessed by NIHSS scores (<i>p</i> = 0.004). In summary, the RO-SAQOL-39 g exhibits promising attributes as a tool for assessing HRQOL in post-stroke individuals.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-13"},"PeriodicalIF":1.7,"publicationDate":"2025-01-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142958763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Noor Khan, Vicki Anderson, Louise Crossley, Stephen Hearps, Cathy Catroppa, Nicholas P Ryan
{"title":"Nature and correlates of self-esteem in young adult survivors of childhood traumatic brain injury.","authors":"Noor Khan, Vicki Anderson, Louise Crossley, Stephen Hearps, Cathy Catroppa, Nicholas P Ryan","doi":"10.1080/09602011.2024.2326428","DOIUrl":"10.1080/09602011.2024.2326428","url":null,"abstract":"<p><p>Despite growing research linking childhood traumatic brain injury (TBI) with reduced wellbeing, self-esteem, and psycho-social health, very few studies have examined self-esteem and its correlates in young adult survivors of childhood TBI. This very-long-term follow-up study evaluated self-esteem in 29 young adults with a history of childhood TBI (M time since injury = 13.84 years; SD = 0.74), and 10 typically developing controls (TDCs). All participants were originally recruited into a larger, longitudinal case-control study between 2007 and 2010. In the current follow-up study, both groups completed well-validated measures of self-esteem and mental health in young adulthood. Although group means for self-esteem did not significantly differ between TBI and TDC groups, a higher proportion of TBI participants rated their self-esteem in the clinical range (TBI grou<i>p</i> = 17%; TDC grou<i>p</i> = 0%). While self-esteem was not significantly associated with injury or pre-injury child or family characteristics, lower self-esteem was significantly correlated with greater concurrent feelings of loneliness (<i>p </i>= 0.007) and higher concurrent mood symptoms (<i>p </i>< 0.001).Our results suggest that social isolation and low mood may represent meaningful targets for psycho-social interventions to address poor self-worth in young adults with a history of childhood TBI.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"19-35"},"PeriodicalIF":1.7,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140095177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}