Olivia Mazzone, Rowena Conroy, Taylor Jenkin, Adam Scheinberg, Sarah Knight
{"title":"The assessment and management of fatigue following paediatric acquired brain injury: rehabilitation clinicians' perspectives.","authors":"Olivia Mazzone, Rowena Conroy, Taylor Jenkin, Adam Scheinberg, Sarah Knight","doi":"10.1080/09602011.2024.2383337","DOIUrl":"10.1080/09602011.2024.2383337","url":null,"abstract":"<p><p>Fatigue is common following paediatric acquired brain injury (ABI) and can negatively impact quality of life. Despite this, there is limited understanding of how clinicians currently assess and manage fatigue in rehabilitation. This study explored how Australian rehabilitation clinicians recognize, assess, and manage fatigue following paediatric ABI. Using a qualitative research design, semi-structured interviews were conducted with 11 clinicians who work with children (0-18 years) with ABI in rehabilitation. Interview transcripts were analysed using constructivist grounded theory methods. Two main themes and sub-themes were developed: (1) Reaching a shared understanding: Identifying and understanding fatigue; Unpacking fatigue with children and their families; and (2) Using the shared understanding: Clinicians working collaboratively to manage fatigue; Planning for and supporting children and their family through transitions; Anticipating and problem-solving speedbumps. Participants reflected on the importance of reaching a shared understanding of fatigue within each child's unique context, requiring the collaborative effort of the child, family, school, and interdisciplinary rehabilitation team, to problem-solve and manage fatigue together over time. These findings provide insights into the processes of assessing and managing fatigue from rehabilitation clinicians' perspectives and highlight the importance of a collaborative approach to support the individual needs of the child during their rehabilitation.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"930-959"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141857221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford
{"title":"The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives.","authors":"Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford","doi":"10.1080/09602011.2024.2384519","DOIUrl":"10.1080/09602011.2024.2384519","url":null,"abstract":"<p><p>Although one of the most prevalent and impactful features of Huntington's disease (HD), little is known about the impact of apathy on HD caregivers, although there is evidence it affects perceptions of distress and burden. Given the importance of the caregivers, we aimed to explore the lived experience of people supporting someone with HD and associated apathy. Semi-structured interviews were conducted with 11 caregivers and analysed using reflective thematic analysis, informed by a phenomenological framework. Five overarching themes were produced: (1) What even is apathy? (2) It makes my life harder: the practical impact of apathy, (3) They haven't forgotten me, but they have forgotten that they ever loved me, (4) I'm grieving for someone who hasn't died yet, and (5) I need a safe space to say what I really feel without fear of judgement. Inter-woven between these themes were complex narratives about the unspoken nature of HD, the invisibility of caregivers who felt trapped and unheard, and the one-sided nature of loving someone with the disease. Findings are discussed in relation to theoretical frameworks of anticipatory grief and ambiguous loss, and situated within the wider literature on caregiving for people with a neurodegenerative condition.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1004-1033"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller
{"title":"Enhancing task performance in adults with intellectual disability through modified goal management training and assistive technology with errorless learning: A randomized controlled trial.","authors":"Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller","doi":"10.1080/09602011.2024.2384518","DOIUrl":"10.1080/09602011.2024.2384518","url":null,"abstract":"<p><p>Individuals with intellectual disabilities often fail to learn complex tasks. Modified Goal Management Training (mGMT) or Errorless Learning combined with assistive technology (App + EL) can help. The goal is to demonstrate the effectiveness of mGMT and/or App + EL in learning complex tasks. We employed a randomized controlled crossover design. One group started with mGMT (<i>N</i> = 16), and the other with App + EL (N = 15). We compared their performance with that of a passive control group (N = 15). The training consisted of six sessions of 30 minutes each. Success was analyzed using the Goal Attainment Scale (GAS). Three different tasks were assessed before and after each intervention period: \"Practiced\", \"Non-Practiced\", or \"Previously Practiced\". Generalization was evaluated through neuropsychological tests. Results indicated that both interventions significantly improved \"Practiced\" tasks compared with \"Non-Practiced\" tasks and the control group. Crossing the intervention did not interfere with the stable performance on the \"Previously Practiced\" task. However, starting with mGMT reduced, but did not eliminate, the efficacy of App + EL after crossing, but this pattern was not observed for the reverse sequence. Only the Tower of London task documented improvements related to interventions. In conclusion, the mGMT and App + EL were effective in learning complex tasks and retaining performance after learning a second task.<b>Trial registration:</b> German Clinical Trials Register identifier: DRKS00021674.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"982-1003"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hugo Câmara-Costa, Georges Dellatolas, Claire Jourdan, Alexis Ruet, Eléonore Bayen, Claire Vallat-Azouvi, Philippe Allain, Mathilde Chevignard, Philippe Azouvi
{"title":"The 20-item dysexecutive questionnaire after severe traumatic brain injury: Distribution of the total score and its significance.","authors":"Hugo Câmara-Costa, Georges Dellatolas, Claire Jourdan, Alexis Ruet, Eléonore Bayen, Claire Vallat-Azouvi, Philippe Allain, Mathilde Chevignard, Philippe Azouvi","doi":"10.1080/09602011.2024.2387065","DOIUrl":"10.1080/09602011.2024.2387065","url":null,"abstract":"<p><strong>Trial registration: </strong>ClinicalTrials.gov identifier: NCT01437683..</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1059-1080"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"Maybe if this was addressed sooner, maybe things might be different in our relationship. I don't know. But who knows?\" Sexuality after TBI and its place in healthcare: A qualitative exploration of survivors' experiences.","authors":"Jill H A Hwang, Marina Downing, Jennie L Ponsford","doi":"10.1080/09602011.2024.2383340","DOIUrl":"10.1080/09602011.2024.2383340","url":null,"abstract":"<p><p>Changes in sexual functioning and wellbeing after a traumatic brain injury (TBI) are common but remain poorly addressed. Little is known about the lived experiences and perspectives of individuals with TBI. Through semi-structured interviews with individuals with TBI (<i>n</i> = 20), this qualitative study explored their experiences with post-TBI sexuality, along with their needs and preferences for receiving sexuality support and service delivery. Three broad themes were identified through reflexive thematic analysis of interview transcripts. First, individuals differed significantly at the start of their journeys in personal attributes, TBI-associated impacts, and comfort levels in discussing sexuality. Second, journeys, feelings, and perspectives diverged based on the nature of post-TBI sexuality. Third, whilst responses to changes and preferences for support varied widely, individuals felt that clinicians were well-placed to help them navigate this area of their lives. The impacts felt by individuals with TBI, and the infrequency of clinical discussions highlight the need for clinician education and clinically validated assessment and treatment tools to improve how post-TBI sexuality is addressed and managed.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"960-981"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141879842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring the everyday impacts and memory intervention needs of people with transient epileptic amnesia: A qualitative study.","authors":"Sharon A Savage, Marina G Cavuoto, Kerryn E Pike","doi":"10.1080/09602011.2024.2384521","DOIUrl":"10.1080/09602011.2024.2384521","url":null,"abstract":"<p><p>People with transient epileptic amnesia (TEA) experience deficits in memory, however, little is known about their everyday experience of this, and no memory intervention studies have been conducted within this group. Using a two-part qualitative method, this study explored the lived experience of people with TEA and possible avenues for memory intervention. Fourteen people with TEA participated in either a focus group (<i>n</i> = 7) or an online survey (<i>n</i> = 7) to answer questions regarding their memory difficulties, impact on their lives, and strategies to mitigate these problems. Perceived barriers and facilitators to participating in a group memory intervention program were discussed. Thematic content analysis identified key themes regarding impacts on the individual and their relationships. Although some positive outcomes regarding family support and personal acceptance were described, most participants described negative impacts on relationships and mood. A range of strategies to mitigate memory problems were reported, although some people did not use any. Participants identified practical and socio-emotional advantages to memory intervention, with perceived barriers around individual applicability, preferences, and ability to engage. While individual preferences need to be considered, a group-based memory intervention may help address cognitive and mental health concerns, particularly for those newly diagnosed with TEA.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1034-1058"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141918125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Edith Botchway-Commey, Nicholas P Ryan, Vicki Anderson, Cathy Catroppa
{"title":"Exploring emotional distress symptom clusters in young adults with childhood traumatic brain injury.","authors":"Edith Botchway-Commey, Nicholas P Ryan, Vicki Anderson, Cathy Catroppa","doi":"10.1080/09602011.2024.2375803","DOIUrl":"10.1080/09602011.2024.2375803","url":null,"abstract":"<p><strong>Background: </strong>Depression, anxiety, and stress are persistent and co-occurring symptoms in survivors of childhood traumatic brain injury (TBI), and often impact on health-related quality of life (HRQoL). This paper explored emotional distress symptom clusters and associated factors in young adults with childhood TBI.</p><p><strong>Methods: </strong>We included 54 young adults who sustained mild (<i>n</i> = 14), moderate (<i>n</i> = 27), and severe (<i>n</i> = 13) childhood TBI, at 20 years post-injury. The Depression Anxiety Stress Scale was administered. Cluster group membership was identified using two-step clustering and hierarchical clustering methods, and associated factors were assessed with multiple regression models.</p><p><strong>Results: </strong>Two symptom cluster groups were identified, including a <i>No Distress (n = </i>66%) and an <i>Elevated Distress (n = </i>33%) group<i>,</i> with the latter showing significantly higher symptoms of depression, anxiety, and stress (all <i>p</i> < .001). Elevated Distress group membership was linked to tobacco use and poor sleep quality, while poor HRQoL was associated with younger age at injury and Elevated Distress group membership.</p><p><strong>Conclusions: </strong>Using cluster methodology, we showed that one-third of young adults with childhood TBI had elevated emotional distress symptoms. This underscores the complex emotional profile of this subgroup and the need for assessment, analysis, and treatment methods that target a range of symptoms rather than relying on single-diagnostic protocols.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"905-929"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141731652","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
P Burfein, T Roxbury, E J Doig, M-P McSween, N de Silva, D A Copland
{"title":"Return to work for stroke survivors with aphasia: A quantitative scoping review.","authors":"P Burfein, T Roxbury, E J Doig, M-P McSween, N de Silva, D A Copland","doi":"10.1080/09602011.2024.2381874","DOIUrl":"10.1080/09602011.2024.2381874","url":null,"abstract":"<p><p>The international incidence of stroke in people of working age is rising. As such, meaningful work return is a major rehabilitation goal for many individuals, including those with aphasia. This scoping review aimed to outline the post-stroke aphasia evidence related to work outcomes, factors influencing employment along with contemporary vocational-language and communication rehabilitation practice. The review employed terms related to aphasia, stroke, rehabilitation, and return to work in publications preceding 25.6.2023. Data were descriptively analysed, and vocational outcomes were summarized at defined timepoints. Of the 908 articles reviewed, 31 papers were included. Individuals with post-stroke aphasia consistently have lower rates of return to work than those post-stroke without aphasia. Employment at one year was 34.29% for those with aphasia compared to 58.46% for people without aphasia. No literature reported vocational-language assessment practices and there were minimal work-focused aphasia interventions identified. There was insufficient evidence to clearly identify person-related, rehabilitation, workplace or other factors influencing work return. This scoping review has identified that there are gaps in knowledge about the factors that influence work return and targeted vocational rehabilitation for this group. Future research to optimize return to work for individuals with aphasia is recommended.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1081-1115"},"PeriodicalIF":1.7,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Andreas Kirknæs Færk, Jakob Lindegaard Lund, Finn Sellebjerg, Helene Højsgaard Chow, Lisbet Marstrand, Mia Loft
{"title":"Cognitively stimulating activities in multiple sclerosis: A qualitative feasibility study.","authors":"Andreas Kirknæs Færk, Jakob Lindegaard Lund, Finn Sellebjerg, Helene Højsgaard Chow, Lisbet Marstrand, Mia Loft","doi":"10.1080/09602011.2025.2501641","DOIUrl":"https://doi.org/10.1080/09602011.2025.2501641","url":null,"abstract":"<p><strong>Introduction: </strong>Some people with multiple sclerosis (pwMS) exhibit high cognitive reserve (CR), potentially mitigating cognitive decline. Cognitively stimulating activities (CSAs) contribute to CR, suggesting that interventions entailing CSAs may enhance cognitive function in MS.</p><p><strong>Objectives/aims: </strong>To evaluate the feasibility of an intervention designed to increase CSA participation (e.g., reading, writing, language learning).</p><p><strong>Methods: </strong>Participants were interviewed after a 12-week intervention in a randomized controlled trial. Participants were selected based on prespecified criteria to ensure sample diversity. Interviews were transcribed verbatim and analyzed using an inductive content analysis approach.</p><p><strong>Results: </strong>14 participants were interviewed. The intervention was deemed feasible and acceptable by participants. Benefits included subjective cognitive improvements, increased impairment awareness, and engagement in compensatory strategies. Some reported indirect benefits, including improvements in mood and physical functioning. Barriers included a lack of training structure, technical aspects of the intervention, busy schedules, and guilt from not strictly adhering to protocol. Barriers were most prevalent in participants with progressive MS, younger age, busy schedules, and high pre-intervention activity levels.</p><p><strong>Conclusion: </strong>An individualized intervention to increase CSAs in pwMS is feasible. Future interventions could benefit from including people with low to medium participation in CSAs and should consider implementing measures of progress along the way to maintain motivation.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-33"},"PeriodicalIF":1.7,"publicationDate":"2025-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Magnus Bye Blumenfeld, Joshua Simmich, Emmah Joan Doig, Trevor Russell, Megan H Ross
{"title":"Patient and clinician perspectives of the use of driving simulators for rehabilitation after traumatic brain injury.","authors":"Magnus Bye Blumenfeld, Joshua Simmich, Emmah Joan Doig, Trevor Russell, Megan H Ross","doi":"10.1080/09602011.2025.2503338","DOIUrl":"https://doi.org/10.1080/09602011.2025.2503338","url":null,"abstract":"<p><p>The ability to resume driving is a common goal for individuals who sustain a traumatic brain injury (TBI). Driving simulators present a potential avenue for driving rehabilitation. The aim of this study was to explore the perspectives of clinicians and individuals with lived experience of TBI about the use of modern driving simulators in clinical practice. Focus groups and interviews were conducted with nine clinicians (aged 23-57; 100% women) with 4-36 years of driving rehabilitation experience and eight individuals (aged 18-57; 62.5% women) who were 1-30 years post TBI. Focus groups and interviews were audio recorded and analysed inductively using thematic analysis. Two overarching themes were identified that encompassed participants' perspectives of the <i>Perceived benefits</i> and <i>Considerations for implementation.</i> Driving simulators were perceived by clinician and patient participants as potentially beneficial for assessing driving ability and readiness to drive, and as an additional rehabilitation tool. Implementation barriers, including cost, safety, ease of use and accessibility were identified, with some participants expressing concerns about usefulness in understanding real-world driving performance and providing false hope about return to driving for people with TBI. More research is needed to evaluate safe application, validity of simulators as an assessment tool and effectiveness.</p>","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":" ","pages":"1-22"},"PeriodicalIF":1.7,"publicationDate":"2025-05-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144081782","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}