Neuropsychological Rehabilitation最新文献_第3页

Personal growth in caregivers of persons with brain injury or multiple sclerosis. 脑损伤或多发性硬化症患者护理人员的个人成长。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-27 DOI: 10.1080/09602011.2024.2393465

Sonya Kim, Frederick W Foley, Vance Zemon

{"title":"Personal growth in caregivers of persons with brain injury or multiple sclerosis.","authors":"Sonya Kim, Frederick W Foley, Vance Zemon","doi":"10.1080/09602011.2024.2393465","DOIUrl":"https://doi.org/10.1080/09602011.2024.2393465","url":null,"abstract":"An existing scale of personal growth in caregivers of people with multiple sclerosis (MS) was expanded for use with an acquired brain injury (ABI) population, and was modified following additional psychometric analyses. A cross-sectional online survey was administered to 315 caregiving partners of persons with MS and 310 family caregivers of persons with ABI. Principal component analysis (PCA) performed on the original 32-item instrument yielded a 4-component, 17-item solution with correlated subscales with solid psychometric properties. Subscales were labelled Appreciation, Positivity, Adjustment, and Spirituality. Secondary PCA conducted revealed three subscales (five items each) correlated moderately while the fourth, Spirituality, remained distinct. The sum of the three five-item subscales may serve as a total score. Reliability analysis yielded acceptable-to-high internal consistency. Comparisons of the PGS with existing instruments demonstrated its discriminant/convergent validity. Two kinds of latent class analyses were conducted on the 15-item PGS to identify three latent classes that spanned the neurologic groups, revealing that measurement invariance was held for the instrument in this sample. An instrument with sound psychometric properties was established, designed to assess personal growth in caregivers of individuals with ABI or MS. Future work should explore its value in other populations and as a metric of changes over time.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the everyday impacts and memory intervention needs of people with transient epileptic amnesia: A qualitative study. 探索短暂性癫痫健忘症患者的日常影响和记忆干预需求：定性研究。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-12 DOI: 10.1080/09602011.2024.2384521

Sharon A Savage, Marina G Cavuoto, Kerryn E Pike

{"title":"Exploring the everyday impacts and memory intervention needs of people with transient epileptic amnesia: A qualitative study.","authors":"Sharon A Savage, Marina G Cavuoto, Kerryn E Pike","doi":"10.1080/09602011.2024.2384521","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384521","url":null,"abstract":"People with transient epileptic amnesia (TEA) experience deficits in memory, however, little is known about their everyday experience of this, and no memory intervention studies have been conducted within this group. Using a two-part qualitative method, this study explored the lived experience of people with TEA and possible avenues for memory intervention. Fourteen people with TEA participated in either a focus group (n = 7) or an online survey (n = 7) to answer questions regarding their memory difficulties, impact on their lives, and strategies to mitigate these problems. Perceived barriers and facilitators to participating in a group memory intervention program were discussed. Thematic content analysis identified key themes regarding impacts on the individual and their relationships. Although some positive outcomes regarding family support and personal acceptance were described, most participants described negative impacts on relationships and mood. A range of strategies to mitigate memory problems were reported, although some people did not use any. Participants identified practical and socio-emotional advantages to memory intervention, with perceived barriers around individual applicability, preferences, and ability to engage. While individual preferences need to be considered, a group-based memory intervention may help address cognitive and mental health concerns, particularly for those newly diagnosed with TEA.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141918125","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The 20-item dysexecutive questionnaire after severe traumatic brain injury: Distribution of the total score and its significance. 严重脑外伤后的 20 项动力障碍问卷：总分的分布及其意义。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-06 DOI: 10.1080/09602011.2024.2387065

Hugo Câmara-Costa, Georges Dellatolas, Claire Jourdan, Alexis Ruet, Eléonore Bayen, Claire Vallat-Azouvi, Philippe Allain, Mathilde Chevignard, Philippe Azouvi

引用次数: 0

Enhancing task performance in adults with intellectual disability through modified goal management training and assistive technology with errorless learning: A randomized controlled trial. 通过改良目标管理训练和无差错学习辅助技术提高成年智障人士的任务执行能力：随机对照试验。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-05 DOI: 10.1080/09602011.2024.2384518

Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller

{"title":"Enhancing task performance in adults with intellectual disability through modified goal management training and assistive technology with errorless learning: A randomized controlled trial.","authors":"Funda Ertas-Spantgar, Helmut Hildebrandt, Alexander Gabel, Ina Schiering, Sandra Verena Müller","doi":"10.1080/09602011.2024.2384518","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384518","url":null,"abstract":"Individuals with intellectual disabilities often fail to learn complex tasks. Modified Goal Management Training (mGMT) or Errorless Learning combined with assistive technology (App + EL) can help. The goal is to demonstrate the effectiveness of mGMT and/or App + EL in learning complex tasks. We employed a randomized controlled crossover design. One group started with mGMT (N = 16), and the other with App + EL (N = 15). We compared their performance with that of a passive control group (N = 15). The training consisted of six sessions of 30 minutes each. Success was analyzed using the Goal Attainment Scale (GAS). Three different tasks were assessed before and after each intervention period: \"Practiced\", \"Non-Practiced\", or \"Previously Practiced\". Generalization was evaluated through neuropsychological tests. Results indicated that both interventions significantly improved \"Practiced\" tasks compared with \"Non-Practiced\" tasks and the control group. Crossing the intervention did not interfere with the stable performance on the \"Previously Practiced\" task. However, starting with mGMT reduced, but did not eliminate, the efficacy of App + EL after crossing, but this pattern was not observed for the reverse sequence. Only the Tower of London task documented improvements related to interventions. In conclusion, the mGMT and App + EL were effective in learning complex tasks and retaining performance after learning a second task.Trial registration: German Clinical Trials Register identifier: DRKS00021674.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives. 亨廷顿氏症患者冷漠的意义：对护理者观点的定性研究。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-05 DOI: 10.1080/09602011.2024.2384519

Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford

{"title":"The meaning of apathy in Huntington's disease: A qualitative study of caregiver perspectives.","authors":"Sarah Louise Mason, Roger Alistair Barker, Katie Andresen, Fergus Gracey, Catherine Ford","doi":"10.1080/09602011.2024.2384519","DOIUrl":"https://doi.org/10.1080/09602011.2024.2384519","url":null,"abstract":"Although one of the most prevalent and impactful features of Huntington's disease (HD), little is known about the impact of apathy on HD caregivers, although there is evidence it affects perceptions of distress and burden. Given the importance of the caregivers, we aimed to explore the lived experience of people supporting someone with HD and associated apathy. Semi-structured interviews were conducted with 11 caregivers and analysed using reflective thematic analysis, informed by a phenomenological framework. Five overarching themes were produced: (1) What even is apathy? (2) It makes my life harder: the practical impact of apathy, (3) They haven't forgotten me, but they have forgotten that they ever loved me, (4) I'm grieving for someone who hasn't died yet, and (5) I need a safe space to say what I really feel without fear of judgement. Inter-woven between these themes were complex narratives about the unspoken nature of HD, the invisibility of caregivers who felt trapped and unheard, and the one-sided nature of loving someone with the disease. Findings are discussed in relation to theoretical frameworks of anticipatory grief and ambiguous loss, and situated within the wider literature on caregiving for people with a neurodegenerative condition.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141894901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"Maybe if this was addressed sooner, maybe things might be different in our relationship. I don't know. But who knows?" Sexuality after TBI and its place in healthcare: A qualitative exploration of survivors' experiences. "如果能早点解决这个问题，也许我们的关系会有所不同。我不知道，但谁知道呢？" I don't know.但谁知道呢？创伤后性生活及其在医疗保健中的地位：对幸存者经历的定性探索。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-02 DOI: 10.1080/09602011.2024.2383340

Jill H A Hwang, Marina Downing, Jennie L Ponsford

{"title":"\"Maybe if this was addressed sooner, maybe things might be different in our relationship. I don't know. But who knows?\" Sexuality after TBI and its place in healthcare: A qualitative exploration of survivors' experiences.","authors":"Jill H A Hwang, Marina Downing, Jennie L Ponsford","doi":"10.1080/09602011.2024.2383340","DOIUrl":"https://doi.org/10.1080/09602011.2024.2383340","url":null,"abstract":"Changes in sexual functioning and wellbeing after a traumatic brain injury (TBI) are common but remain poorly addressed. Little is known about the lived experiences and perspectives of individuals with TBI. Through semi-structured interviews with individuals with TBI (n = 20), this qualitative study explored their experiences with post-TBI sexuality, along with their needs and preferences for receiving sexuality support and service delivery. Three broad themes were identified through reflexive thematic analysis of interview transcripts. First, individuals differed significantly at the start of their journeys in personal attributes, TBI-associated impacts, and comfort levels in discussing sexuality. Second, journeys, feelings, and perspectives diverged based on the nature of post-TBI sexuality. Third, whilst responses to changes and preferences for support varied widely, individuals felt that clinicians were well-placed to help them navigate this area of their lives. The impacts felt by individuals with TBI, and the infrequency of clinical discussions highlight the need for clinician education and clinically validated assessment and treatment tools to improve how post-TBI sexuality is addressed and managed.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141879842","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Value-consistent rehabilitation is associated with long-term psychological flexibility and quality of life after traumatic brain injury. 价值一致性康复与脑外伤后的长期心理灵活性和生活质量有关。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-01 Epub Date: 2023-09-14 DOI: 10.1080/09602011.2023.2256964

Luke R Miller, Ross Divers, Christopher Reed, Jared Cherry, Abihail Patrick, Matthew Calamia

{"title":"Value-consistent rehabilitation is associated with long-term psychological flexibility and quality of life after traumatic brain injury.","authors":"Luke R Miller, Ross Divers, Christopher Reed, Jared Cherry, Abihail Patrick, Matthew Calamia","doi":"10.1080/09602011.2023.2256964","DOIUrl":"10.1080/09602011.2023.2256964","url":null,"abstract":"Meaningful steps have been taken toward using holistic approaches in outpatient rehabilitation for traumatic brain injury (TBI) (i.e., treating the whole individual); however, research and practice continue to disproportionately focus on adapting to physical and cognitive changes. Research suggests treatment focusing on individual values may be important for psychological adjustment after TBI. The current study sought to explore individual values across multiple life domains in those with TBI as well as what values outpatient rehabilitation was helpful for, and to examine discrepancies between these factors (i.e., value-consistent rehabilitation) in relation to important long-term treatment outcomes. 215 adults with a history of TBI who had participated in outpatient rehabilitation completed online surveys assessing how consistent outpatient rehabilitation was with individual values, psychological flexibility, and quality of life. The life domains with the greatest discrepancies between individual importance and rehabilitation helpfulness were spirituality, intimate relations, and family relations. Greater value-consistent rehabilitation was associated with higher levels of psychological flexibility and quality of life beyond demographics and injury characteristics. Our findings provide further support in favour of holistic, client-centred approaches that are facilitated by neurological rehabilitation programs.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10244015","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Awareness through relationships in individuals undergoing rehabilitation following acquired brain injury. 后天性脑损伤后接受康复的个体通过人际关系的认识。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-01 Epub Date: 2023-10-30 DOI: 10.1080/09602011.2023.2273578

Corinne McCabe, Andrea Sica, Donal G Fortune

{"title":"Awareness through relationships in individuals undergoing rehabilitation following acquired brain injury.","authors":"Corinne McCabe, Andrea Sica, Donal G Fortune","doi":"10.1080/09602011.2023.2273578","DOIUrl":"10.1080/09602011.2023.2273578","url":null,"abstract":"Aim: This cross-sectional study investigated the association between self-awareness and quality of therapeutic relationships following acquired brain injury (ABI) while controlling for the potential impact of cognitive problems. It also aimed to investigate attachment as a potential moderator.Method: 83 adults with ABI were recruited alongside a key member of their community neurorehabilitation team. The Scale to Assess Therapeutic Relationships (STAR) was used to measure therapeutic relationship quality and attachment was measured using the Experiences in Close Relationships - Relationship Structure (ECR-RS) questionnaire. Awareness was measured using the Patient Competency Rating Scale (PCRS) and the Mayo-Portland Adaptability Inventory (MPAI-4) provided a measure of cognitive problems. The MPAI-4 also provided an additional measure of awareness.Results: A significant association between self-awareness and therapeutic relationships was found in some regression models such that higher-quality relationships were associated with better awareness, after controlling for the impact of cognitive problems. Neither childhood parental attachment nor participants' attachment towards their rehabilitation staff were moderators.Conclusion: The observed associations between awareness in clients and therapeutic relationships with rehabilitation staff may have importance for rehabilitation in this context. Results highlight the value of continuing to prioritize the therapeutic relational environment in ABI rehabilitation and research.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71415329","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Longitudinal neurocognitive effects of nonmyeloablative hematopoietic stem cell transplant among older adolescents and adults with sickle cell disease: A description and comparison with sibling donors. 对患有镰状细胞病的老年青少年和成年人进行非消融性造血干细胞移植的纵向神经认知影响：描述以及与同胞捐献者的比较。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-01 Epub Date: 2023-08-04 DOI: 10.1080/09602011.2023.2238948

Emily J Carlson, Nour Al Ghriwati, Pam Wolters, Mary Anne Tamula, John Tisdale, Courtney Fitzhugh, Matt Hsieh, Staci Martin

{"title":"Longitudinal neurocognitive effects of nonmyeloablative hematopoietic stem cell transplant among older adolescents and adults with sickle cell disease: A description and comparison with sibling donors.","authors":"Emily J Carlson, Nour Al Ghriwati, Pam Wolters, Mary Anne Tamula, John Tisdale, Courtney Fitzhugh, Matt Hsieh, Staci Martin","doi":"10.1080/09602011.2023.2238948","DOIUrl":"10.1080/09602011.2023.2238948","url":null,"abstract":"Sickle cell disease (SCD) is associated with increased risk of neurocognitive deficits. However, whether functioning changes following nonmyeloablative hematopoietic stem cell transplant (HSCT) remains unclear. This study aimed to examine changes in neuropsychological functioning pre- to post-transplant among patients with SCD and compare patients and siblings. Adults with SCD (n = 47; Mage = 31.8 ± 8.9) and their sibling stem cell donors (n = 22; Mage = 30.5± 9.2) enrolled on a nonmyeloablative HCST protocol completed cognitive and patient-reported outcome assessments at baseline and 12 months post-transplant. Path analyses were used to assess associations between pre-transplant variables and sibling/patient group status and post-transplant function. Mean patient cognitive scores were average at both timepoints. Patient processing speed and somatic complaints improved from baseline to follow-up. Baseline performance predicted follow-up performance across cognitive variables; patient/sibling status predicted follow-up performance on some processing speed measures. Results suggest that patients with SCD demonstrate slower processing speed than siblings. Processing speed increased pre- to post-HSCT among patients and siblings, and on some measures patients demonstrated greater improvement. Thus, HSCT may improve processing speed in patients, although further confirmation is needed. Findings provide promising evidence that neurocognitive functioning remains stable without detrimental effects from pre- to 12-months post nonmyeloablative HSCT in individuals with SCD.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9993448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The decision-making task: Development and evaluation in a paediatric traumatic brain injury population. 决策任务：在小儿脑外伤人群中进行开发和评估。

IF 1.7 3区心理学

Neuropsychological Rehabilitation Pub Date : 2024-08-01 Epub Date: 2023-08-05 DOI: 10.1080/09602011.2023.2242618

Nikita Tuli Sood, Celia Godfrey, Sarah Youn, Clara Chavez Arana, Vicki Anderson, Jonathan M Payne, Cathy Catroppa

{"title":"The decision-making task: Development and evaluation in a paediatric traumatic brain injury population.","authors":"Nikita Tuli Sood, Celia Godfrey, Sarah Youn, Clara Chavez Arana, Vicki Anderson, Jonathan M Payne, Cathy Catroppa","doi":"10.1080/09602011.2023.2242618","DOIUrl":"10.1080/09602011.2023.2242618","url":null,"abstract":"Assessment measures that quantify decision-making abilities in children and adolescents are limited. In the current study, a novel computerized Decision-Making Task (DMT), which identifies the process that is involved in decision-making, was developed based on an existing information-boards paradigm. The overall aim was to validate the DMT in a paediatric TBI population. This prospective study investigated the performance on the DMT for children post-TBI (n = 49; 7-15 years) compared to typically developing controls (n = 22; 7-15 years), and investigated the psychometric properties of the DMT by examining internal consistency-related reliability, convergent validity (measures of decision-making, working memory, functional outcomes, and behaviour), and divergent validity (vocabulary). Significant differences were detected for performance on the DMT between children post-TBI and the control group. Psychometric properties of the DMT were acceptable, with variable findings for convergent validity (working memory, functional outcomes, and behaviour). This is the first study to develop and investigate a novel computerised task to assess decision-making skills in a paediatric TBI population. Results cautiously suggest that the DMT is a valid and a reliable measure of decision-making in our clinical sample.","PeriodicalId":54729,"journal":{"name":"Neuropsychological Rehabilitation","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10297704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0