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Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care. 智力和发育障碍成人的用药管理：初级保健中的精神科药剂师。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-11-01 DOI: 10.1352/1944-7558-129.6.446
Esther Moon, Sabrina Domicoli Snyder, Andrew Williams, Scott Allen, Emma Simmons
{"title":"Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care.","authors":"Esther Moon, Sabrina Domicoli Snyder, Andrew Williams, Scott Allen, Emma Simmons","doi":"10.1352/1944-7558-129.6.446","DOIUrl":"10.1352/1944-7558-129.6.446","url":null,"abstract":"<p><p>This study describes the role of psychiatric pharmacists (PPs) in medication management at a county-hospital-based primary care clinic serving adults with intellectual and developmental disabilities (IDD). During a 20-week period, PPs provided 308 interventions for 97 patients with IDD, 55% of whom had a concomitant psychiatric/behavioral disorder and 70% of whom were taking at least one psychotropic medication. PP services included medication reviews (48%), medication histories (13%), collaborative care (12%), pharmacotherapy interventions (11%), advisory services (9%), and patient/caregiver education (7%). Psychotropics were involved in 66% of interventions. Our results demonstrate that PPs may address psychotropic-related challenges in this practice setting by performing a variety of services. Additional studies are needed to fully evaluate the impact of this integrative model.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 6","pages":"446-452"},"PeriodicalIF":2.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142523575","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correlates of Emotional and Tangible Reciprocity in Adult Siblings of Individuals With Autism. 自闭症患者成年兄弟姐妹情感和有形互惠的相关性。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-11-01 DOI: 10.1352/1944-7558-129.6.425
Meghan M Burke, Chak Li, Catherine K Arnold
{"title":"Correlates of Emotional and Tangible Reciprocity in Adult Siblings of Individuals With Autism.","authors":"Meghan M Burke, Chak Li, Catherine K Arnold","doi":"10.1352/1944-7558-129.6.425","DOIUrl":"10.1352/1944-7558-129.6.425","url":null,"abstract":"<p><p>Sibling relationships often involve exchanges of emotional and tangible support. When one sibling has a disability, the nature of the reciprocity of such support may differ from sibling pairs wherein no disability is present. Specifically, when an individual has autism, the nature of emotional and tangible reciprocity is unclear given the potential for a supportive or caregiving role of the sibling without autism. In this study, 256 adult siblings of autistic individuals completed a national survey. Analyses included descriptive statistics describing the nature of reciprocity and hierarchical regressions to identify the correlates of emotional and tangible reciprocity. Overall, participants often reported not giving or receiving much tangible support to/from their autistic sibling while they often gave and, to some extent received, emotional support from their autistic sibling. When the autistic sibling had more asocial behaviors, participants were more likely to provide emotional support than receive it. When participants engaged in more caregiving, they both gave and received more emotional and tangible support. Implications for research and practice are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 6","pages":"425-445"},"PeriodicalIF":2.0,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142523654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities. 智力和发育障碍人士 COVID-19 研究中的代理反应。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.346
Sarah Lineberry, Matthew Bogenschutz, Michael Broda
{"title":"Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities.","authors":"Sarah Lineberry, Matthew Bogenschutz, Michael Broda","doi":"10.1352/1944-7558-129.5.346","DOIUrl":"10.1352/1944-7558-129.5.346","url":null,"abstract":"<p><p>Researchers and advocates have long called for improved research methods that better include people with intellectual and developmental disabilities (IDD), but challenges to doing so persist. Proxy responses are frequently used to circumvent some of these challenges, but may not fully capture the perspectives of people with IDD. The COVID-19 pandemic highlighted the possibility of consequences due to a lack of research about health outcomes for people with IDD, with documented disproportionate impact but little understanding about specific experiences for people with IDD. Using exploratory graph analysis (EGA) we explored the use of proxy responses on the COVID-19 Supplement of the National Core Indicators In-Person Survey. Findings suggest significant differences in response patterns between people who answered independently, via proxy, and with a mix of response types beyond what would be expected due to demographic differences in participants.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"346-361"},"PeriodicalIF":2.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12121726/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094172","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation. 使用中心插管的小儿体外膜肺氧合存活者的神经发育结果
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.377
Ozlem Saritas Nakip, Selman Kesici, Gokcen Duzgun Konuskan, Mutlu Uysal Yazici, Bahadır Konuskan, Benan Bayrakci
{"title":"Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation.","authors":"Ozlem Saritas Nakip, Selman Kesici, Gokcen Duzgun Konuskan, Mutlu Uysal Yazici, Bahadır Konuskan, Benan Bayrakci","doi":"10.1352/1944-7558-129.5.377","DOIUrl":"10.1352/1944-7558-129.5.377","url":null,"abstract":"<p><p>Extracorporeal life support, such as pediatric cardiac extracorporeal membrane oxygenation (ECMO), is associated with significant mortality and morbidity risk. This study evaluated cardiac ECMO survivors with central cannulation and found that 51.1% were discharged from the hospital. The study also revealed high rates of developmental delay (82.7%), motor dysfunction (58.8%), and cognitive dysfunction (70.6%) among survivors. No significant correlation was found between the duration of ECMO, age at ECMO, pre-ECMO maximum lactate levels, and cognitive scores. Participants with motor dysfunction were significantly younger (p = 0.04). PRISM scores of those with an abnormal developmental status were significantly higher (p = 0.03). Logistic regression analysis did not show a significantly increased risk. Factors such as age, disease severity, and ECMO itself were identified as potential contributors to neurodevelopmental delay.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"377-386"},"PeriodicalIF":2.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094171","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System. 州医疗补助系统中智障和发育障碍成人的慢性健康状况。
IF 2.3 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.331
Kiley J McLean, Lauren Bishop
{"title":"Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System.","authors":"Kiley J McLean, Lauren Bishop","doi":"10.1352/1944-7558-129.5.331","DOIUrl":"10.1352/1944-7558-129.5.331","url":null,"abstract":"<p><p>Despite a growing number of adults with intellectual and developmental disabilities (IDD) and documented risk for adverse outcomes as they age, little is known about the health and healthcare patterns of adults with different IDD throughout adulthood. This study uses Wisconsin Medicaid claims data to characterize health conditions among adults with IDD. Results indicate high prevalence of asthma, diabetes, heart disease, and hypertension. Heart disease rates were particularly high, having been observed among 39% of autistic adults, 64% of autistic adults with intellectual disability (ID), 67% of adults with Down syndrome, and 75% of adults with ID only. Given there are no known biological differences underlying increased morbidities among most people with IDD, developing inclusive prevention measures should be prioritized in future research.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"331-345"},"PeriodicalIF":2.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps. 共同公民范例的传播：战略和下一步行动。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.362
Ruth Luckasson, Robert L Schalock, Valerie J Bradley
{"title":"Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps.","authors":"Ruth Luckasson, Robert L Schalock, Valerie J Bradley","doi":"10.1352/1944-7558-129.5.362","DOIUrl":"10.1352/1944-7558-129.5.362","url":null,"abstract":"<p><p>The field of disabilities is being challenged to adopt a paradigm that can be used to guide the transformation of services, supports, and research practices to ensure and enhance the personal autonomy, rights, and community inclusion of people with disabilities. This article describes strategies associated with the systematic diffusion and sustainability of an innovation such as the emerging Shared Citizenship Paradigm (SCP), which has the potential to guide the transformation. The systematic diffusion process incorporates five components: knowledge, persuasion, decision, implementation, and confirmation. The systematic process also addresses the risks of dissonance, backlash, unintended consequences, and backsliding that can emerge when the sustainability of a paradigm is not supported. Throughout the article, we stress that meaningful change in organizations and systems requires use of a paradigm such as the SCP and its principles and foundation pillars to guide the change, and a systematic process such as that described in this article to bring about and sustain the change.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"362-376"},"PeriodicalIF":2.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Child and Family Predictors for Mastery Motivation in Children With Developmental Delays. 发育迟缓儿童掌握动机的儿童和家庭预测因素。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.387
Pei-Jung Wang, Hua-Fang Liao, Li-Chiou Chen, Lin-Ju Kang, Lu Lu, Karen Caplovitz Barrett
{"title":"Child and Family Predictors for Mastery Motivation in Children With Developmental Delays.","authors":"Pei-Jung Wang, Hua-Fang Liao, Li-Chiou Chen, Lin-Ju Kang, Lu Lu, Karen Caplovitz Barrett","doi":"10.1352/1944-7558-129.5.387","DOIUrl":"10.1352/1944-7558-129.5.387","url":null,"abstract":"<p><p>Motivation is a key factor for child development, but very few studies have examined child and family predictors of both child task and perceived motivation. Thus, the three aims of this 6-month longitudinal study in preschoolers with global developmental delays (GDD) were to explore: 1) differences between task and perceived motivation in cognitive domain; 2) differences among three domains of perceived motivation: cognitive, gross motor, and social; and 3) early child and family predictors of cognitive task motivation and the three domains of perceived motivation 6 months later. Results indicated that preschoolers with GDD showed higher cognitive task motivation than cognitive perceived motivation, and lower perceived cognitive motivation than the other two perceived motivation domains. Different child and family factors predicted cognitive task motivation and the three domains of perceived motivation. Practitioners should educate caregivers on how to observe children's motivation to enhance children's active participation.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"387-404"},"PeriodicalIF":2.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Impact of Educational Placement on the Goal Attainment Outcomes of K-6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains. 教育安置对学业和社交-行为-沟通领域有复杂需求的幼儿园至 6 年级学生实现目标结果的影响》（Educational Placement on Goal Attainment Outcomes of K-6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains）。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-09-01 DOI: 10.1352/1944-7558-129.5.405
Karrie A Shogren, Tyler A Hicks, Jennifer A Kurth
{"title":"Impact of Educational Placement on the Goal Attainment Outcomes of K-6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains.","authors":"Karrie A Shogren, Tyler A Hicks, Jennifer A Kurth","doi":"10.1352/1944-7558-129.5.405","DOIUrl":"10.1352/1944-7558-129.5.405","url":null,"abstract":"<p><p>Students with complex support needs have intense and frequent support needs for learning and participating across multiple domains. Addressing those needs in a comprehensive manner is the purpose of special education, which is accomplished through instructional and Individualized Education Program (IEP) goals. Yet simply setting goals is insufficient; to facilitate positive student outcomes, there is an inherent expectation that students will meet those goals to achieve their potential. Understanding factors that impact variability in goal attainment is essential to this purpose. This includes the extent to which variability in goal attainment is explained by factors varying within students (e.g., goal domains being targeted) or by factors varying between students (e.g., education placement, overall intensity of student support needs). Using Bayesian multi-level modeling analysis to examine the instructional goals of 53 elementary students with complex support needs, we found that 75% of variability in goal attainment exists within student's goals. However, 25% of variability is explained by factors that vary across students-in this case, educational placement and overall intensity of support needs. We conclude with recommendations for research and practice aimed at enhancing goal attainment for students with complex support needs.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 5","pages":"405-419"},"PeriodicalIF":2.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142094170","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Efficacy of a Remote Play-Based Intervention for Children With Prader-Willi Syndrome. 对普拉德-威利综合症儿童进行远程游戏干预的效果。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-07-01 DOI: 10.1352/1944-7558-129.4.279
Anastasia Dimitropoulos, Ellen A Doernberg, Rachel A Gordon, Kerrigan Vargo, Evelyn Nichols, Sandra W Russ
{"title":"Efficacy of a Remote Play-Based Intervention for Children With Prader-Willi Syndrome.","authors":"Anastasia Dimitropoulos, Ellen A Doernberg, Rachel A Gordon, Kerrigan Vargo, Evelyn Nichols, Sandra W Russ","doi":"10.1352/1944-7558-129.4.279","DOIUrl":"10.1352/1944-7558-129.4.279","url":null,"abstract":"<p><p>The current study examines the efficacy of an 8-week pretend play intervention targeting social-cognitive abilities in children with Prader-Willi syndrome (PWS), ages 6-9. PWS is a rare disorder associated with various social, emotional, and cognitive challenges linked to pretend play impairments, and for which interventions are sparse. Nineteen children were quasi-randomized to receive the intervention or be part of a waitlist control group. Participants who received the intervention (n = 10) demonstrated significant improvements in various components of pretend play, most notably in organization of play, which may generalize to broader social-cognitive gains. These findings provide evidence of the intervention's efficacy in enhancing pretend play skills and related social-cognitive abilities during this critical period of development for children with PWS.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 4","pages":"279-293"},"PeriodicalIF":2.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Support of Older Caregivers: Factors Influencing Change in Quality of Life. 家庭对老年护理者的支持：影响生活质量变化的因素。
IF 2 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-07-01 DOI: 10.1352/1944-7558-129.4.308
Preethy Sarah Samuel, Christina N Marsack-Topolewski, Elizabeth Janks, Gelareh Raoufi, Sharon Milberger
{"title":"Family Support of Older Caregivers: Factors Influencing Change in Quality of Life.","authors":"Preethy Sarah Samuel, Christina N Marsack-Topolewski, Elizabeth Janks, Gelareh Raoufi, Sharon Milberger","doi":"10.1352/1944-7558-129.4.308","DOIUrl":"10.1352/1944-7558-129.4.308","url":null,"abstract":"<p><p>Understanding factors that can improve the quality of life (QOL) of older caregivers of people with intellectual and developmental disabilities (IDD) is important in broadening participation in family empowerment interventions. The purpose of this study was to identify the factors influencing the QOL of older caregivers (50+) of adults with IDD who participated in a peer-mediated state-wide family support project. The research study used a quasi-experimental research design grounded in the family quality of life (FQOL) framework, with pretest and posttest data gathered from 82 caregivers. Correlation and regression analyses were conducted to identify factors influencing changes in the QOL of study participants. Findings indicated that improvements in caregiver QOL after participating in the project could be explained by caregiver's employment status, increased global FQOL, and decreased caregiver stress and depression.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 4","pages":"308-325"},"PeriodicalIF":2.0,"publicationDate":"2024-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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