Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

French Adaptation of the Diagnostic Adaptive Behavior Scale: An IRT-Based Approach. 诊断性适应行为量表的法语适应：一种基于irt的方法。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-26 DOI: 10.1080/19447515.2026.2714920

Claudio Straccia, Lorna von Rotz, Raphaele Tsao, Nathalie Touil, Agnès Lacroix, Vincent Desportes, Annick Comblain, Yannick Courbois

引用次数: 0

Brief Report: Alzheimer's Disease and Related Dementia in People With Intellectually Disability in the United States. 简要报告：美国智障人群中的阿尔茨海默病和相关痴呆

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-20 DOI: 10.1080/19447515.2026.2712358

Salina Tewolde, Samuel B Rosenberg, Marcia Pescador Jimenez, Eric Rubenstein

{"title":"Brief Report: Alzheimer's Disease and Related Dementia in People With Intellectually Disability in the United States.","authors":"Salina Tewolde, Samuel B Rosenberg, Marcia Pescador Jimenez, Eric Rubenstein","doi":"10.1080/19447515.2026.2712358","DOIUrl":"10.1080/19447515.2026.2712358","url":null,"abstract":"People with intellectual disability (ID) are living longer lives than in generations past, and experience aging-related health issues, like Alzheimer's disease and related dementia (ADRD). Our objective was to document prevalence and age of diagnosis of ADRD in the population with ID (excluding Down syndrome) ≥30 years old in the United States from 2011 to 2022 enrolled in Medicaid and/or Medicare. We measured ADRD and ID using International Classification of Disease-9/10 claims algorithms and examined demographics and trends in ADRD. We examined age at incident ADRD diagnosis. Among 1,046,621 adults with ID ≥30 years old enrolled in Medicaid and/or Medicare between 2011 and 2022, 184,206 (17.6%) had claims for ADRD, corresponding to an 11-year prevalence of one case per 5.7 people. Yearly prevalence was lowest in 2011 (11.3%) and highest in 2019 (16.7%). There were few differences in prevalence for each age group between sexes, races, and ethnic group. Mean age at onset was 62.6 years (13.1 = SD). ADRD is common in people with ID and individuals, clinicians, and families should be prepared as individuals and populations age. As a heterogenous and often idiopathic group of conditions, further research is warranted to understand biologic and social risk factors for ADRD in this population.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-8"},"PeriodicalIF":2.3,"publicationDate":"2026-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Implementing RUBI Group Parent Training for Children With Developmental Disabilities: Real-World Feasibility and Clinical Outcomes. 对发育性残疾儿童实施RUBI小组家长培训：现实世界的可行性和临床结果。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-19 DOI: 10.1080/19447515.2026.2712353

Allison D Blackburn, Madeline Esterer, Natalie Justice, Avani Modi

{"title":"Implementing RUBI Group Parent Training for Children With Developmental Disabilities: Real-World Feasibility and Clinical Outcomes.","authors":"Allison D Blackburn, Madeline Esterer, Natalie Justice, Avani Modi","doi":"10.1080/19447515.2026.2712353","DOIUrl":"https://doi.org/10.1080/19447515.2026.2712353","url":null,"abstract":"This study evaluates the feasibility, acceptability, and preliminary outcomes of the Research Units in Behavioral Intervention (RUBI) Parent Training program in an adapted group format within a community-based clinical setting. Caregivers of children aged 3 to 12 years with autism spectrum disorder or other developmental disabilities (DD) participated in 10- or 12-week RUBI groups. Data from 141 participants were retrospectively analyzed using electronic health records and standardized caregiver-reported measures. Results indicated moderate attendance (71.8% session attendance), with disparities observed by insurance type and race. Significant improvements were found in child emotional dysregulation and caregiver stress, while noncompliant behaviors showed no significant change. Outcomes were consistent for youth with autism and youth with other DD. Caregiver satisfaction was high, with 94% reporting perceived behavioral improvement and 100% recommending the program. This is the first known study to evaluate RUBI in a heterogeneous developmental population beyond autism. Findings support the feasibility and effectiveness of RUBI in a group format for diverse developmental populations, although attendance differences and cultural responsiveness warrant further investigation.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-14"},"PeriodicalIF":2.3,"publicationDate":"2026-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148801411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Μorphosyntactic Errors in the Language of Greek-Speaking Individuals With Down Syndrome: Examining Relative Clauses. Μorphosyntactic说希腊语的唐氏综合症患者的语言错误：检查关系从句。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-18 DOI: 10.1080/19447515.2026.2708050

Efstathia Chartomatsidou, Georgia Andreou

引用次数: 0

Longitudinal Resting State Heart Rate Variability in Young Children With Autism. 自闭症儿童静息状态心率的纵向变异性。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-18 DOI: 10.1080/19447515.2026.2705197

Jenni Lauttia, Terhi M Helminen, Pasi Kauppinen, Kai Eriksson, Jari K Hietanen, Anneli Kylliäinen

引用次数: 0

Longitudinal Trajectories of Behavioral and Emotional Problems Into and During Adolescence for Individuals With Intellectual Disability. 智力残疾个体进入青春期和青春期期间的行为和情绪问题的纵向轨迹。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-13 DOI: 10.1080/19447515.2026.2694349

Emma Scripps, Paul A Thompson, Peter E Langdon, Kylie M Gray, Richard P Hastings

{"title":"Longitudinal Trajectories of Behavioral and Emotional Problems Into and During Adolescence for Individuals With Intellectual Disability.","authors":"Emma Scripps, Paul A Thompson, Peter E Langdon, Kylie M Gray, Richard P Hastings","doi":"10.1080/19447515.2026.2694349","DOIUrl":"10.1080/19447515.2026.2694349","url":null,"abstract":"This study aimed to examine: (a) behavioral and emotional problem trajectories of children (in middle and late childhood) and adolescents with intellectual disability, and (b) the influence of parenting behaviors and the parent-child relationship on these trajectories. Participants were primary caregivers (N = 350) of children/adolescents with intellectual disability who were 10 years or older in Wave 1, 2, or 3 and under 16 years by Wave 3 of a longitudinal families study. Measures of child behavioral and emotional problems, parenting behavior, the parent-child relationship, and parent psychological distress were included. Using linear mixed modeling, behavioral and emotional problems declined slightly over time but remained high. Parenting behaviors and parent psychological distress did not affect trajectories. However, conflict (but not closeness) in the parent-child relationship was associated with increased behavioral and emotional problems over time. Higher levels of family financial hardship and an autism diagnosis were associated with increased behavioral and emotional problems. Child sex differences were also identified. Despite small improvements, individuals with intellectual disability exhibit high levels of behavioral and emotional problems into and during adolescence. Parent-child conflict may be an important focal point for interventions to reduce behavioral and emotional problems in young people with intellectual disability.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-16"},"PeriodicalIF":2.3,"publicationDate":"2026-08-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148721824","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Longitudinal Effects of Congenital Heart Defects in Infants With Down Syndrome: Implications for Developmental Outcomes. 唐氏综合症婴儿先天性心脏缺陷的纵向影响：对发育结果的影响。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-11 DOI: 10.1080/19447515.2026.2708052

Faith A Albertson, Kali Kecskemeti, Karl B Gregory, Elizabeth A Will

引用次数: 0

Navigating the Complexities of Developing a Longitudinal Health Evaluation: Creating Special Olympics Project ALL STAR. 导航发展纵向健康评估的复杂性：创建特奥会项目ALL STAR。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-11 DOI: 10.1080/19447515.2026.2694337

Alicia M Dixon-Ibarra, Andrew E Lincoln, Gloria Krahn, John P Hanley, Ashlyn Smith, Hope A Murray, Michael Rosanoff

{"title":"Navigating the Complexities of Developing a Longitudinal Health Evaluation: Creating Special Olympics Project ALL STAR.","authors":"Alicia M Dixon-Ibarra, Andrew E Lincoln, Gloria Krahn, John P Hanley, Ashlyn Smith, Hope A Murray, Michael Rosanoff","doi":"10.1080/19447515.2026.2694337","DOIUrl":"https://doi.org/10.1080/19447515.2026.2694337","url":null,"abstract":"Evaluating long-standing community-based programs like Special Olympics (SO) presents unique challenges, particularly when assessing long-term health outcomes for individuals with intellectual disability (ID). This article describes the development of Project ALL STAR (Active Life and Longevity: Special Olympics Transforming Athlete Results), a longitudinal evaluation designed to measure the physical, mental, and social-emotional health impacts of SO participation. Led by Special Olympics International, in collaboration with academic researchers and adults with ID, the planning process emphasized inclusive and community-engaged methods. Key challenges included navigating SO's federated infrastructure, addressing variability in program delivery, building evaluation capacity, and balancing scientific rigor with practical feasibility. Advisory boards composed of athletes and researchers guided the selection of outcome measures and ensured relevance and accessibility. Project ALL STAR reframes SO as a community-based public health intervention and serves as a model for evaluating large-scale, community-based programs. This article offers practical guidance by sharing lessons learned from developing a scalable, inclusive, community-engaged longitudinal evaluation framework to improve health outcomes among people with ID.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-13"},"PeriodicalIF":2.3,"publicationDate":"2026-08-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148876000","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Understanding Maternal Health Outcomes Among Latina Mothers of Children With Intellectual and Developmental Disabilities: The Roles of Social Determinants and Sociocultural Contexts. 了解智力和发育障碍儿童的拉丁裔母亲的孕产妇健康结果：社会决定因素和社会文化背景的作用

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-08-07 DOI: 10.1080/19447515.2026.2705199

Weiwen Zeng, Yolanda Suarez-Balcazar, Mansha Mirza, Amy Pei-Lung Yu, Deborah Parra-Medina, Vanessa L Errisuriz, Nazanin Heydarian, Sandy Magaña

{"title":"Understanding Maternal Health Outcomes Among Latina Mothers of Children With Intellectual and Developmental Disabilities: The Roles of Social Determinants and Sociocultural Contexts.","authors":"Weiwen Zeng, Yolanda Suarez-Balcazar, Mansha Mirza, Amy Pei-Lung Yu, Deborah Parra-Medina, Vanessa L Errisuriz, Nazanin Heydarian, Sandy Magaña","doi":"10.1080/19447515.2026.2705199","DOIUrl":"https://doi.org/10.1080/19447515.2026.2705199","url":null,"abstract":"Latinx families of children with disabilities are at disproportionally high risk of adverse health outcomes, including overweight, obesity, and depression. Research on specific social determinants and sociocultural factors that impact their health remains limited. In this study, we examined how social determinants of health (SDOH) and sociocultural contexts are related to maternal health outcomes in a sample of 105 Latina mothers of children with intellectual and developmental disabilities (IDD) in the United States. Mothers were interviewed by phone or video conference call and were asked about maternal and child demographics, maternal chronic health conditions, SDOH indicators, and sociocultural factors (family cohesion and social support). Conditional process models were conducted for the maternal health outcomes measured by body mass index (BMI) and depressive symptoms. High levels of overweight, obesity, and depressive symptoms were observed among these mothers. SDOH related to BMI and/or depressive symptoms included annual household income, home ownership, neighborhood safety, and perceived discrimination. Family cohesion and social support were related to lower depressive symptoms but were not associated with BMI. The study findings emphasize the importance of considering SDOH when developing support programs for Latina mothers of children with IDD.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-16"},"PeriodicalIF":2.3,"publicationDate":"2026-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148764355","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Developmental Profiles Associated with TUBA1A, TUBB2A, TUBB2B, and TUBB3 Tubulinopathy Conditions. 与TUBA1A、TUBB2A、TUBB2B和TUBB3小管病变相关的发育概况

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-07-29 DOI: 10.1080/19447515.2026.2694336

Deborah J Fidler, Kaylyn Van Deusen, Madison M Walsh, Somer L Bishop, Nicole T Baumer, Wendy Zhang, Jeffrey K Moore, Thomas D Cushion

{"title":"Developmental Profiles Associated with TUBA1A, TUBB2A, TUBB2B, and TUBB3 Tubulinopathy Conditions.","authors":"Deborah J Fidler, Kaylyn Van Deusen, Madison M Walsh, Somer L Bishop, Nicole T Baumer, Wendy Zhang, Jeffrey K Moore, Thomas D Cushion","doi":"10.1080/19447515.2026.2694336","DOIUrl":"https://doi.org/10.1080/19447515.2026.2694336","url":null,"abstract":"Tubulinopathies are rare genetic conditions resulting from alterations to genes that encode tubulin proteins. Advances in genetic testing are leading to an increasing number of individuals with tubulinopathy diagnoses, but relatively little prognostic information is available to inform intervention and education planning. The present study aimed to address this gap by analyzing caregiver Developmental Profile Scales-4 ratings for 32 individuals with a confirmed tubulinopathy involving either the TUBA1A, TUBB2A, TUBB2B, or TUBB3 genes. Group-level challenges were observed across all domains evaluated, and motor skills were most severely affected. Individuals with TUBB3 conditions demonstrated relatively milder degrees of delay, and those with cooccurring vision impairments (71%) showed greater overall delays than those without. Implications for future research and treatment recommendations are discussed.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"1-13"},"PeriodicalIF":2.3,"publicationDate":"2026-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148766082","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0