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Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

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Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome. 改进的Corsi任务评估唐氏综合症儿童视觉空间短期记忆。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-05-01 DOI: 10.1352/1944-7558-130.3.178
Miranda E Pinks, Kaylyn Van Deusen, Mark A Prince, Anna J Esbensen, Angela John Thurman, Lina R Patel, Leonard Abbeduto, Madison M Walsh, Lisa A Daunhauer, Deborah J Fidler
{"title":"Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome.","authors":"Miranda E Pinks, Kaylyn Van Deusen, Mark A Prince, Anna J Esbensen, Angela John Thurman, Lina R Patel, Leonard Abbeduto, Madison M Walsh, Lisa A Daunhauer, Deborah J Fidler","doi":"10.1352/1944-7558-130.3.178","DOIUrl":"10.1352/1944-7558-130.3.178","url":null,"abstract":"<p><p>Short-term memory (STM) challenges are often observed in children with Down syndrome (DS), but existing early STM measures introduce measurement confounds in this population. To address the need for valid early STM measures for future DS interventions, this study evaluated the psychometric properties of a modified Corsi Span task, administered to 110 children with DS. Results indicated that the modified Corsi task has feasibility in the age range of 5-8 years and is scalable across chronological and mental ages. Minimal practice effects and evidence of test-retest reliability and convergent validity were observed. Implications for using a modified Corsi task in studies of early STM and treatment trials for children with DS are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 3","pages":"178-194"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12118606/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144060140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement. 通过基于生物标志物的社会视觉参与测量增加自闭症早期诊断和评估的机会。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-05-01 DOI: 10.1352/1944-7558-130.3.167
Ami Klin
{"title":"Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement.","authors":"Ami Klin","doi":"10.1352/1944-7558-130.3.167","DOIUrl":"https://doi.org/10.1352/1944-7558-130.3.167","url":null,"abstract":"<p><p>Only one in every five children with autism is diagnosed before the age of 3 years. As a result, tens of thousands of children every year in the United States miss benefiting from early interventions and supports that could potentially optimize their lifetime outcomes. A major obstacle is the extremely limited access to high quality diagnosis. To address this challenge, biomarker-based objective procedures for early diagnosis and assessment of autism have already been clinically validated and cleared for broad implementation by the U.S. Food and Drug Administration. Broad community uptake of these science-based solutions, however, will require change in entrenched models of diagnostic care, and aggressive prioritization of the needs of the community at large.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 3","pages":"167-170"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144032479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety. 阶梯式认知行为治疗对孤独症伴焦虑儿童抑郁和外化症状的影响。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-05-01 DOI: 10.1352/1944-7558-130.3.228
Catherine E Rast, Andrew G Guzick, Keaton J Soileau, Orri Smarason, Leandra N Berry, Robin P Goin-Kochel, Wayne K Goodman, Sophie C Schneider, Alison Salloum, Eric A Storch
{"title":"Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety.","authors":"Catherine E Rast, Andrew G Guzick, Keaton J Soileau, Orri Smarason, Leandra N Berry, Robin P Goin-Kochel, Wayne K Goodman, Sophie C Schneider, Alison Salloum, Eric A Storch","doi":"10.1352/1944-7558-130.3.228","DOIUrl":"https://doi.org/10.1352/1944-7558-130.3.228","url":null,"abstract":"<p><p>Despite the strong evidence basis for the treatment of anxiety in autistic youth, accessibility remains a significant challenge. Stepped care addresses this gap, although there is limited research into its broad effects in autistic youth with anxiety. In this project, 76 autistic youth with anxiety entered parent-led-bibliotherapy for 12 weeks; 44 stepped up to receive therapist-led cognitive behavioral therapy (CBT). Those who did not step up entered a maintenance phase. Youth were assessed for externalizing and depressive symptoms at mid-treatment, post-treatment, and 3 months after treatment (3MFU). Focal symptoms decreased across groups at all timepoints; those who entered maintenance experienced greater decreases. At 3MFU there were no differences between groups. Parents were assessed for depression, anxiety, and stress at the same timepoints; no significant changes were observed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 3","pages":"228-243"},"PeriodicalIF":1.9,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144045723","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Successful (and Unsuccessful) Recruitment Approaches and Participant Loss in a Down Syndrome Survey. 唐氏综合症调查中成功（和不成功）的招募方法和参与者的流失。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.131
Mikayla Shaffer, John Patrick T Co, Karen Donelan, Brian G Skotko, Amy Torres, Jonathan P Winickoff, Stephanie L Santoro
{"title":"Successful (and Unsuccessful) Recruitment Approaches and Participant Loss in a Down Syndrome Survey.","authors":"Mikayla Shaffer, John Patrick T Co, Karen Donelan, Brian G Skotko, Amy Torres, Jonathan P Winickoff, Stephanie L Santoro","doi":"10.1352/1944-7558-130.2.131","DOIUrl":"10.1352/1944-7558-130.2.131","url":null,"abstract":"<p><p>We recruited caregivers of individuals ages 0-21 with Down syndrome (DS) to complete an electronic survey. Multiple recruitment sources and methods were used. From 2023-2024, we received 542 valid, complete survey responses. We found the most success with use of DS affiliate organizations, the DS-Connect® contact registry for DS, and outreach to DS clinic patients. Of those who started the screener, 1,569 people screened in and were eligible; of those eligible, 730 (46.5%) consented. We experienced bots and fraudsters despite efforts to minimize those respondents from the outset. We present lessons learned in surveying caregivers from a low-incidence medical condition, with focus on our experience with invalid respondents, to inform other researchers conducting survey research related to genetic syndromes.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"131-145"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12243944/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505921","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gender Differences in Self-Reported Social Participation in Adults With Autism. 自闭症成人社会参与自我报告的性别差异。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.81
Wei Song, Mark S Salzer, Hillary R Steinberg, Lindsay L Shea
{"title":"Gender Differences in Self-Reported Social Participation in Adults With Autism.","authors":"Wei Song, Mark S Salzer, Hillary R Steinberg, Lindsay L Shea","doi":"10.1352/1944-7558-130.2.81","DOIUrl":"10.1352/1944-7558-130.2.81","url":null,"abstract":"<p><p>There is a lack of research on gender differences in adults' with autism participation in social activities (i.e., activities that provide interactions with others in the community). Using a large statewide sample (N = 775, 217 females and 558 males), we examined gender differences in the social participation of adults with autism while considering the presence of an intellectual disability (ID). No gender differences were found in total participation days. However, women with autism without ID reported participating in lower percentages of social activities that were important to them and perceiving sufficient participation in lower percentages of these important social activities than their male counterparts. They also reported lower satisfaction with participation level (i.e., perceived sufficiency in participation in important social activities) in social activities that were important to them than women with autism with ID. Implications of findings for understanding gender differences in autism across the life course are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"81-87"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505877","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caregiver ECHO: A Model for Delivering Virtual Behavior Management Education to Families of Children With Neurodevelopmental Disorders. 照顾者ECHO：为神经发育障碍儿童家庭提供虚拟行为管理教育的模型。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.104
Rose E Nevill, Gail E Lovette, Katherine J Bateman, Natalie M Badgett, Genevieve R Lyons, Emily C Fuhrmann, Genevieve E Bohac, Karen G Orlando, Keith D Page
{"title":"Caregiver ECHO: A Model for Delivering Virtual Behavior Management Education to Families of Children With Neurodevelopmental Disorders.","authors":"Rose E Nevill, Gail E Lovette, Katherine J Bateman, Natalie M Badgett, Genevieve R Lyons, Emily C Fuhrmann, Genevieve E Bohac, Karen G Orlando, Keith D Page","doi":"10.1352/1944-7558-130.2.104","DOIUrl":"10.1352/1944-7558-130.2.104","url":null,"abstract":"<p><p>Children with neurodevelopmental disorders (NDD) are at high risk of challenging behavior, yet families experience consistent barriers to affordable parent education in behavior management. This study tested the efficacy of a caregiver-focused Extensions of Community Health Outcomes (ECHO) program in delivering behavior management education and support to caregivers of children with NDD. A pre-post design was used to evaluate impact on 30 caregivers' behavioral knowledge, self-efficacy in managing challenging behavior, empowerment, and negative emotional reactions to challenging behavior. Participation resulted in significant improvements across outcomes and high satisfaction. The Caregiver ECHO model offers advantages in that it emphasizes peer learning, active problem solving, and community building as core components of its approach while using low-cost methodologies.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"104-115"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505873","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review. 生物生态因素与智障个体和家庭社区生活期望和参与结果的关系：一项范围综述。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.88
Grace L Francis, Christina DeCostanza Eagle, Sarah H Espanol, Kelly Conn-Reda, Alexandra S Reed, Emil Majetich, Jodi M Duke, Heather L Walter
{"title":"Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review.","authors":"Grace L Francis, Christina DeCostanza Eagle, Sarah H Espanol, Kelly Conn-Reda, Alexandra S Reed, Emil Majetich, Jodi M Duke, Heather L Walter","doi":"10.1352/1944-7558-130.2.88","DOIUrl":"10.1352/1944-7558-130.2.88","url":null,"abstract":"<p><p>Although community living and participation (CLP) is associated with increased economic self-sufficiency, rates of happiness, and high quality of life among individuals with intellectual disability (ID), the rates of individuals with ID experiencing CLP outcomes remain below their same-age peers. Although the expectations of individuals with ID and their family members influence CLP outcomes, which bioecological factors have the greatest influence on expectations remains largely unknown, thereby weakening the foundations upon which efforts and policies designed to enhance CLP are developed. The purpose of this scoping review was to map knowledge of relationships between bioecological factors and CLP expectations from the perspectives of individuals with ID and families of individuals with ID. Recommendations for research, policy, and practices are described.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"88-103"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Longitudinally Predicting Behavioral Challenges From Executive Functioning in Youth With Down Syndrome. 从执行功能纵向预测唐氏综合症青少年的行为挑战。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.146
Amanallah Soltani, Deborah J Fidler, Lina Patel, Kellie Voth, Anna J Esbensen
{"title":"Longitudinally Predicting Behavioral Challenges From Executive Functioning in Youth With Down Syndrome.","authors":"Amanallah Soltani, Deborah J Fidler, Lina Patel, Kellie Voth, Anna J Esbensen","doi":"10.1352/1944-7558-130.2.146","DOIUrl":"10.1352/1944-7558-130.2.146","url":null,"abstract":"<p><p>This study explored how caregiver-reported executive functioning domains, assessed by the BRIEF2 at baseline, predicted behavioral challenges reported by caregivers using the CBCL six months later. The sample included 94 youth with Down syndrome, aged 6 to 18 years. Results of hierarchical regression analyses revealed that, after controlling for the effect of IQ, working memory significantly predicted inattentive behaviors, inhibition significantly predicted rule-breaking behaviors, and both inhibition and emotional control significantly predicted aggressive and externalizing behaviors. After controlling for baseline behaviors, only working memory persisted as a significant predictor of inattentive behaviors measured six months later. The findings are discussed by referring to the relevant theories and research and providing clinical implications and recommendations for further studies.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"146-162"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12070328/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Role of Parent Advocacy in Autistic Youths' Self-Determination. 家长宣传在自闭症青少年自我决定中的作用。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-03-01 DOI: 10.1352/1944-7558-130.2.116
Carly Moser, Meghan M Burke, Leann Smith DaWalt, Julie Lounds Taylor
{"title":"The Role of Parent Advocacy in Autistic Youths' Self-Determination.","authors":"Carly Moser, Meghan M Burke, Leann Smith DaWalt, Julie Lounds Taylor","doi":"10.1352/1944-7558-130.2.116","DOIUrl":"10.1352/1944-7558-130.2.116","url":null,"abstract":"<p><p>Parent advocacy is important for the transition outcomes of autistic youth. However, it is unclear whether parent advocacy efforts support or stifle youths' self-determination. This study examined concurrent (n = 180) and longitudinal (n = 134) associations between parent advocacy and transition-aged autistic youths' self-determination (as reported by parents) and explored whether individual and family characteristics moderated this relationship. Cross-sectional results indicated a positive association between parent advocacy and self-determination for youth with higher adaptive behavior, lower externalizing behavior, and higher parent-child relationship quality. Longitudinal results demonstrated that change in parent advocacy related to change in self-determination for youth with lower adaptive behavior and higher externalizing behavior. Findings suggest that targeting parent advocacy could enhance self-determination skills in autistic youth.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 2","pages":"116-130"},"PeriodicalIF":1.9,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11951422/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143505923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Diagnostic Journey for Tuberous Sclerosis Complex-Interviews From a Clinical Trial. 结节性硬化症复合体的诊断之旅——来自临床试验的访谈。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2025-01-01 DOI: 10.1352/1944-7558-130-1-63
Carly Hyde, Logan Shurtz, Nicole McDonald, Maria Pizzano, Charles A Nelson, Elizabeth A Thiele, Connie Kasari, Shafali Jeste
{"title":"Diagnostic Journey for Tuberous Sclerosis Complex-Interviews From a Clinical Trial.","authors":"Carly Hyde, Logan Shurtz, Nicole McDonald, Maria Pizzano, Charles A Nelson, Elizabeth A Thiele, Connie Kasari, Shafali Jeste","doi":"10.1352/1944-7558-130-1-63","DOIUrl":"10.1352/1944-7558-130-1-63","url":null,"abstract":"<p><p>Tuberous sclerosis complex (TSC) is a genetic condition characterized by both medical and neuropsychiatric diagnoses that emerge across the lifespan. As part of a clinical trial, caregivers of children with TSC were interviewed about their experiences navigating medical, school, and social services. Semistructured interviews (N = 20) with caregivers of children with TSC (27-60 months) were conducted upon exit from the study. The interviews covered topics related to experiences following diagnosis, interactions with providers, sources of information, and access to services and treatment. The main themes from the caregiver interviews included: (1) sources of information about TSC and treatment; (2) access to high-quality and expert medical care; (3) perception and diagnosis of TAND; (4) impact of epilepsy on daily life, intervention, and schooling; and (5) access to therapeutic services, compatible providers, and evaluations. Additionally, parents provided recommendations for other caregivers navigating their child's early treatment following diagnosis. These results reflect the importance of current research priorities for TSC stakeholders, including implementation of existing clinical guidelines, improved access to TSC expertise, and coordinated and integrated health care.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"130 1","pages":"63-75"},"PeriodicalIF":1.9,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142878587","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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