Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献_第3页

Mentalization and Self-Compassion as Predictors of Parental Burnout Among Parents of Children With Disabilities. 心理化与自我同情对残障儿童父母职业倦怠的影响。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19447515.2025.2578979

Zobeydeh Dehghan Manshadi, Elham Fathi, Mohammad Amin Dehghan Manshadi

{"title":"Mentalization and Self-Compassion as Predictors of Parental Burnout Among Parents of Children With Disabilities.","authors":"Zobeydeh Dehghan Manshadi, Elham Fathi, Mohammad Amin Dehghan Manshadi","doi":"10.1080/19447515.2025.2578979","DOIUrl":"10.1080/19447515.2025.2578979","url":null,"abstract":"Parents of children with disabilities face a high risk of parental burnout due to caregiving demands. This study examined whether mentalization and self-compassion protect against burnout. Conducted in Iran during the 2020-2021 academic year, it involved 911 parents (Mage = 40.02 ± 7.14). Participants completed the Parental Burnout Inventory, Reflective Functioning Questionnaire, and Self-Compassion Scale. Data were analyzed using frequency assessment, X2 tests, one-way analysis of variance, and Generalized Additive Models with SPSS-22 and R 4.0.3. Results showed 1.6% experienced severe burnout, and 26.8% moderate burnout. Higher reflective functioning-both lower tendencies toward hypermentalizing and hypomentalizing-was linked to lower burnout levels. The relationship between self-compassion and burnout was curvilinear: moderate levels of self-compassion were linked to the lowest burnout, while both very low and very high levels were associated with higher burnout risk. Maintaining a balanced capacity for reflective functioning and self-compassion may help reduce parental burnout. These findings suggest that targeted interventions, such as mentalization-based therapy and self-compassion training, could strengthen resilience among caregivers.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"131 2","pages":"118-134"},"PeriodicalIF":2.3,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148725479","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mathematical Competencies in Students With Intellectual Disability: Correlations With Intelligence, Working Memory, and Years of Schooling. 智力残疾学生的数学能力：与智力、工作记忆和受教育年限的关系。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-05-15 DOI: 10.1080/19447515.2026.2667241

Sarah Schulze, Jan Kuhl

引用次数: 0

Validity Data for the Developmental Profile-4 in Individuals With Profound Intellectual and Multiple Disabilities and Developmental Epileptic Encephalopathies. 深度智力和多重残疾及发展性癫痫性脑病患者发展概况-4的效度数据。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-07-02 DOI: 10.1080/19447515.2026.2679454

Mary Wojnaroski, Natasha N Ludwig, Kelly Muzyczka, Peter Jacoby, Audrey Thurm, Gabrielle Conecker, Jayetta Hecker, Rebecca Hommer, Anne T Berg, Jenny Downs

{"title":"Validity Data for the Developmental Profile-4 in Individuals With Profound Intellectual and Multiple Disabilities and Developmental Epileptic Encephalopathies.","authors":"Mary Wojnaroski, Natasha N Ludwig, Kelly Muzyczka, Peter Jacoby, Audrey Thurm, Gabrielle Conecker, Jayetta Hecker, Rebecca Hommer, Anne T Berg, Jenny Downs","doi":"10.1080/19447515.2026.2679454","DOIUrl":"10.1080/19447515.2026.2679454","url":null,"abstract":"Valid neurodevelopmental assessments for individuals with profound intellectual and multiple disabilities (PIMD) and/or developmental and epileptic encephalopathy (DEE) are critical for clinical trials and clinical care as families report functional abilities are a priority for improvement. However, most extant tools have limited ability to measure relevant skills and meaningful change for individuals with severe to profound impairment. We evaluated the psychometric properties of the Developmental Profile, Fourth Edition (DP-4), a measure of neurodevelopmental functioning, in individuals with DEE and/or PIMD (Mdn = 8.4 years, range 1-50, 54% female). Two hundred and nineteen caregivers completed the DP-4 during a larger online survey, DEE Parents Speak. In this etiologically diverse sample, neurodevelopmental functioning was very low, with norm-referenced scores at the floor for greater than 50% of individuals on all subscales (age equivalencies 6-10 months). Rasch analysis of DP-4 scores, comparison by known groups, and comparison with other measures of functional abilities suggest initial evidence of construct and convergent validity. During focus groups and interviews, caregivers reported DP-4 components that were relevant for their child and threats to content validity. The DP-4 may be a valid measure of neurodevelopment for individuals with PIMD and/or DEE in clinical care and trials, although additional study is necessary, especially to evaluate responsiveness to change.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":" ","pages":"360-378"},"PeriodicalIF":2.3,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148765799","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Preliminary Investigation of Using Contingency Space Analyses During Repeated Psychotropic Medication Regimen Changes for Challenging Behavior. 反复改变精神药物治疗方案对挑战性行为的权变空间分析的初步研究。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19447515.2025.2576438

Maria G Valdovinos, Carissa Johnson, Claire Epperson, August Butterworth, Odessa White, Sarah Lowe, Grace Smith

{"title":"A Preliminary Investigation of Using Contingency Space Analyses During Repeated Psychotropic Medication Regimen Changes for Challenging Behavior.","authors":"Maria G Valdovinos, Carissa Johnson, Claire Epperson, August Butterworth, Odessa White, Sarah Lowe, Grace Smith","doi":"10.1080/19447515.2025.2576438","DOIUrl":"https://doi.org/10.1080/19447515.2025.2576438","url":null,"abstract":"Psychotropic medication is commonly used to treat challenging behavior of individuals with neurodevelopmental disorders; however, the influence psychotropics have on the interaction of challenging behavior with environmental events that may occasion it is not well understood. This study analyzed descriptive assessment data collected over several months using contingency space analysis. Weekly 1-hour observations for three participants were conducted and coded for challenging behavior and consequences and then grouped and analyzed according to medication regimen prescribed. Across psychotropic medication regimens, fluctuations in operant contingency values were observed for all participants; however, base rate of behavior was an important factor in identifying changes. These results suggest that analyzing data collected from direct observations may provide insight into how environmental variables may differentially interact with challenging behavior during psychotropic medication use depending on the base rate of behavior.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"131 1","pages":"69-81"},"PeriodicalIF":2.3,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Youth With Intellectual Disability and Family Perceptions of Individualized Education Program Meeting Participation During Secondary Education. 智障青少年与家庭对中学个别化教育计划参与的认知。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-09 DOI: 10.1080/19447515.2025.2576439

Karrie A Shogren, Ashley Taconet, Tyler A Hicks, Allison R Lombardi, Graham G Rifenbark

引用次数: 0

Confirming the Tripartite Factor Structure of the Diagnostic Adaptive Behavior Scale. 诊断性适应行为量表三要素结构的确定。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-06-03 DOI: 10.1080/19447515.2026.2669462

Marc J Tassé, Robert L Schalock, Patricia Navas, Rebecca Andridge, Giulia Balboni

{"title":"Confirming the Tripartite Factor Structure of the Diagnostic Adaptive Behavior Scale.","authors":"Marc J Tassé, Robert L Schalock, Patricia Navas, Rebecca Andridge, Giulia Balboni","doi":"10.1080/19447515.2026.2669462","DOIUrl":"10.1080/19447515.2026.2669462","url":null,"abstract":"Adaptive behavior is an essential criterion in defining intellectual disability. All three major diagnostic systems (American Association on Intellectual and Developmental Disabilities [AAIDD], Diagnostic and Statistical Manual of Mental Disorders [5th ed. text revision], and International Classification of Diseases [11th ed.]) conceptualize adaptive behavior as consisting of three domains: conceptual, social, and practical skills. Few of the existing standardized adaptive behavior measures were constructed using this tripartite conceptual model of adaptive behavior. The Diagnostic Adaptive Behavior Scale (DABS) was developed and validated using this tripartite model of adaptive behavior. This article summarizes the results of a confirmatory factor analysis that confirmed the tripartite model of the DABS and provided support that the DABS is a reliable measure to assess conceptual, social, and practical adaptive skills. The estimated internal consistency for the conceptual, social, and practical skill domains assessed on the DABS ranged from .97 to .99, indicating excellent levels of reliability.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"131 4","pages":"304-313"},"PeriodicalIF":2.3,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148726233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Renorming the Supports Intensity Scale-Adult Version: Evaluating the Impact of Updated Norms on Scores. 改革支持强度量表-成人版：评估更新规范对得分的影响。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-22 DOI: 10.1080/19447515.2025.2583722

Tyler A Hicks, Karrie A Shogren, Jesse R Pace

引用次数: 0

Telehealth Administration of the Affect in Play Scale in Children with Developmental Differences. 发展差异儿童游戏情感量表的远程医疗管理。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-02-25 DOI: 10.1080/19447558.2026.2615614

Rachel A Gordon, Ellen A Doernberg, Anastasia Dimitropoulos, Sandra W Russ

引用次数: 0

Fragile X Syndrome in Adulthood: A Study of Electronic Health Records. 成年期脆性X综合征：电子健康记录研究

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2025-12-16 DOI: 10.1080/19447515.2025.2583715

Arezoo Movaghar, Leann Smith DaWalt, Murray Brilliant, Abel Kho, Sandra Magana, Elizabeth M Berry-Kravis, Marsha R Mailick

引用次数: 0

Measuring the Association of Race, Neighborhood Segregation, and Healthcare Use Among People With Intellectual and Developmental Disabilities. 测量智力和发育障碍人群中种族、社区隔离和医疗保健使用的关系。

IF 2.3 4区医学

Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2026-01-01 Epub Date: 2026-02-17 DOI: 10.1080/19447558.2026.2616203

Khalilah Johnson, Izabela Annis, Kathleen Thomas

{"title":"Measuring the Association of Race, Neighborhood Segregation, and Healthcare Use Among People With Intellectual and Developmental Disabilities.","authors":"Khalilah Johnson, Izabela Annis, Kathleen Thomas","doi":"10.1080/19447558.2026.2616203","DOIUrl":"10.1080/19447558.2026.2616203","url":null,"abstract":"Few studies examine the impacts of structural inequities on service access and use for people with intellectual and developmental disabilities (IDD). This secondary data analysis used data from the Medical Expenditure Panel Survey and the American Community Survey to examine the association of race, neighborhood segregation, and hospital and outpatient use among people with IDD. Our sample included children and adults with a diagnosis of IDD. Multilevel logistic regression models with random intercepts were used to assess the association between race, neighborhood segregation, and emergency room (ER), hospital, and any outpatient use. Our analyses adjusted for individual-level predisposing, enabling, and need characteristics. Ninety-four percent of the sample reported use of outpatient services, 15% had at least one ER visit, and 5% had at least one hospitalization. Living in a segregated neighborhood was associated with lower odds of any outpatient use (OR = 0.35, 95% CI: 0.15-0.85). We found no evidence of association between neighborhood segregation and hospital or ER use. Other (vs. White) race was associated with lower odds of any outpatient use (OR = 0.33, CI: 0.12-0.90) and higher odds of hospital use (OR = 8.00, CI: 2.26-28.35). Scholars need larger integrated datasets and more nuanced methods for longitudinal analyses to map associations better between race, neighborhood segregation, and their impact on service use.","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"131 3","pages":"226-238"},"PeriodicalIF":2.3,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148726214","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0