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Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

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Resúmenes al Español 英文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-10-25 DOI: 10.1352/1944-7558-128.6.496
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引用次数: 0
Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture's Perspective. 直面IDD研究中的认识论不公正和不公平：超越主导文化视角的理论化价值。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.375
Emmanuel Bonney, Jed T Elison
{"title":"Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture's Perspective.","authors":"Emmanuel Bonney, Jed T Elison","doi":"10.1352/1944-7558-128.5.375","DOIUrl":"10.1352/1944-7558-128.5.375","url":null,"abstract":"<p><p>This commentary highlights pervasive challenges related to the science of intellectual and developmental disabilities (IDD), which we often take for granted. We argue that social power asymmetry and entrenched patterns of epistemic injustices undermine our science and call attention to the need to maximize our efforts to undo these unfair practices to enhance future care and research in IDD.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"375-378"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10111002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Toward Equity in Research on Intellectual and Developmental Disabilities. 智力和发育障碍研究的公平性。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.350
Sara T Kover, Leonard Abbeduto
{"title":"Toward Equity in Research on Intellectual and Developmental Disabilities.","authors":"Sara T Kover, Leonard Abbeduto","doi":"10.1352/1944-7558-128.5.350","DOIUrl":"10.1352/1944-7558-128.5.350","url":null,"abstract":"<p><p>Lack of diversity in IDD research is typically conceptualized only in terms of (1) recruitment of samples that do not appropriately represent the sociodemographics of the population, or (2) the limited number of researchers from historically marginalized backgrounds. Critically, the field also suffers from over-reliance on perspectives and social systems of dominant culture-both in how disability is regarded and in relation to other dimensions of identity and culture. These lenses lead to research findings that reinforce, rather than reduce, social inequities. We propose a framework that minimizes reliance on diagnostic categories, shifts from deficit- to person-centered models, acknowledges people's multiple identities, and includes self-advocates and diverse communities as partners in the research enterprise. The systems change necessary to support this framework is described.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"350-370"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10786180/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10126977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
On Language and the Context of Discovery for Research in Intellectual and Developmental Disability-An Introduction to a Special Issue on Equity in IDD Research. 智力和发育障碍研究的语言和发现语境——IDD研究中的公平问题特刊导论。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.349
Frank J Symons
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引用次数: 0
Résumés en Français. 英文摘要。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.393
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1944-7558-128.5.393","DOIUrl":"https://doi.org/10.1352/1944-7558-128.5.393","url":null,"abstract":"","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"393-394"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10119701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Moving the Needle Toward Equity: What NIH Is Doing to Promote Diversity, Inclusion, and Accessibility in Research on Intellectual and Developmental Disabilities. 将针移向公平：美国国立卫生研究院正在做什么来促进智力和发育障碍研究的多样性、包容性和可及性。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.382
Tracy M King, Melissa A Parisi
{"title":"Moving the Needle Toward Equity: What NIH Is Doing to Promote Diversity, Inclusion, and Accessibility in Research on Intellectual and Developmental Disabilities.","authors":"Tracy M King,&nbsp;Melissa A Parisi","doi":"10.1352/1944-7558-128.5.382","DOIUrl":"10.1352/1944-7558-128.5.382","url":null,"abstract":"<p><p>As a major funder of research on intellectual and developmental disabilities (IDD), NIH has a broad view of the profound impact of cultural and structural barriers on the characteristics of IDD study populations and the composition of the IDD research workforce. While long overdue, multiple efforts are currently underway across NIH aimed at addressing these barriers and increasing meaningful representation in biomedical and behavioral research.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"382-385"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10126974","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Work Ahead for Intellectual and Developmental Disabilities Research. 智力和发育障碍研究的未来工作。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.388
Sara T Kover, Leonard Abbeduto
{"title":"The Work Ahead for Intellectual and Developmental Disabilities Research.","authors":"Sara T Kover, Leonard Abbeduto","doi":"10.1352/1944-7558-128.5.388","DOIUrl":"10.1352/1944-7558-128.5.388","url":null,"abstract":"<p><p>In \"Toward Equity in Research on Intellectual and Developmental Disabilities,\" we sought to make entrenched assumptions and practices of intellectual and developmental disabilities research visible by explicitly describing the status quo in terms of models of disability, participant and researcher identities, research priorities, and biases in measurement and treatment approaches. We then curated individual- and systems-level actions drawn from disability justice and broader social justice lenses to offer a way forward. We focused on three major areas (i.e., intersectionality and person-centered approaches, participatory research, and interprofessional collaboration), depicting influences, methods, and actions in a framework of disability, identity, and culture. In this Author Response, we address five commentaries that critique and extend that synthesis.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"388-392"},"PeriodicalIF":1.9,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10773982/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10126976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intellectual and Developmental Disability Research: Success Through Inclusion and Equity. 智力和发育障碍研究：通过包容和公平取得成功。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.371
Harolyn M E Belcher, Christina E Love, Andrew H Segal, Carmen Lopez-Arvizu
{"title":"Intellectual and Developmental Disability Research: Success Through Inclusion and Equity.","authors":"Harolyn M E Belcher,&nbsp;Christina E Love,&nbsp;Andrew H Segal,&nbsp;Carmen Lopez-Arvizu","doi":"10.1352/1944-7558-128.5.371","DOIUrl":"10.1352/1944-7558-128.5.371","url":null,"abstract":"<p><p>\"Toward Equity in Research on Intellectual and Developmental Disabilities\" (IDD) is a timely and comprehensive article highlighting gaps in the \"dominant culture\" approach to current research strategies designed to address IDD. Recentering systems involved in the research enterprise are recommended. This commentary provides additional guidance from a social justice, equity, and inclusion lens, including a clinical anthropology approach to research.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"371-374"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10119700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Equity Agenda in Intellectual and Developmental Disabilities Research. 智力和发育障碍研究中的公平议程。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.379
Khalilah Robinson Johnson
{"title":"The Equity Agenda in Intellectual and Developmental Disabilities Research.","authors":"Khalilah Robinson Johnson","doi":"10.1352/1944-7558-128.5.379","DOIUrl":"10.1352/1944-7558-128.5.379","url":null,"abstract":"<p><p>This commentary on Kover and Abbeduto (2023) underscores the critical importance of naming and framing toward an equity agenda in intellectual and developmental disabilities research. More specifically, I briefly outline (1) why racialization is an important anchor in IDD discourse; (2) whiteness as a necessary point of discussion; and (3) the adoption of critical inquiry and critical praxis.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"379-381"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10126978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español. 英文摘要。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-09-01 DOI: 10.1352/1944-7558-128.5.395
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1944-7558-128.5.395","DOIUrl":"https://doi.org/10.1352/1944-7558-128.5.395","url":null,"abstract":"","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 5","pages":"395-396"},"PeriodicalIF":2.1,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10111003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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