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Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

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Impact of the Great Recession on Adults With Autism and Their Mothers. 经济大衰退对自闭症成人及其母亲的影响。
IF 1.9 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2024-01-01 DOI: 10.1352/1944-7558-129.1.26
Emily J Hickey, Leann Smith DaWalt, Daniel Bolt, Jinkuk Hong, Jieun Song, Julie Lounds Taylor, Marsha R Mailick
{"title":"Impact of the Great Recession on Adults With Autism and Their Mothers.","authors":"Emily J Hickey, Leann Smith DaWalt, Daniel Bolt, Jinkuk Hong, Jieun Song, Julie Lounds Taylor, Marsha R Mailick","doi":"10.1352/1944-7558-129.1.26","DOIUrl":"10.1352/1944-7558-129.1.26","url":null,"abstract":"<p><p>Autistic individuals and their families are at risk for poor outcomes in employment and mental health and may be vulnerable to long-term effects of broader societal conditions. The aim of the current longitudinal study was to understand the impact of the Great Recession of 2007-2009 on autistic individuals and their mothers (N = 392). Hierarchical linear modeling (HLM) results indicated that problem behavior of autistic adults increased in the years following the recession. The rate at which autistic individuals moved away and lived separately from their mothers also slowed during the recession. Mothers experienced significantly higher levels of depressive symptoms postrecession, compared to prerecession. In many other respects, the autistic individuals and their mothers did not experience negative outcomes, suggesting resilience and a strong safety net. These included the physical health and vocational/employment status of the autistic adults and their mothers. Results point to specific areas of vulnerability of autistic individuals and their mothers during the economic downturn, as well as a broad pattern of resilience in these families.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"129 1","pages":"26-40"},"PeriodicalIF":1.9,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12051140/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139040885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Semi-Automatic Assessment of Vocalization Quality for Children With and Without Angelman Syndrome. 有和无天使人综合症儿童发声质量的半自动评估。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.425
Lisa R Hamrick, Amanda Seidl, Bridgette L Kelleher
{"title":"Semi-Automatic Assessment of Vocalization Quality for Children With and Without Angelman Syndrome.","authors":"Lisa R Hamrick, Amanda Seidl, Bridgette L Kelleher","doi":"10.1352/1944-7558-128.6.425","DOIUrl":"10.1352/1944-7558-128.6.425","url":null,"abstract":"<p><p>Automated methods for processing of daylong audio recordings are efficient and may be an effective way of assessing developmental stage for typically developing children; however, their utility for children with developmental disabilities may be limited by constraints of algorithms and the scope of variables produced. Here, we present a novel utterance-level processing (ULP) system that 1) extracts utterances from daylong recordings, 2) verifies automated speaker tags using human annotation, and 3) provides vocal maturity metrics unavailable through automated systems. Study 1 examines the reliability and validity of this system in low-risk controls (LRC); Study 2 extends the ULP to children with Angelman syndrome (AS). Results showed that ULP annotations demonstrated high coder agreement across groups. Further, ULP metrics aligned with language assessments for LRC but not AS, perhaps reflecting limitations of language assessments in AS. We argue that ULP increases accuracy, efficiency, and accessibility of detailed vocal analysis for syndromic populations.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"425-448"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research. 智障研究中同盟与反残障主义的呼唤。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.398
Katherine E McDonald, Ariel E Schwartz, Micah Fialka Feldman, Tia Nelis, Dora M Raymaker
{"title":"A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research.","authors":"Katherine E McDonald, Ariel E Schwartz, Micah Fialka Feldman, Tia Nelis, Dora M Raymaker","doi":"10.1352/1944-7558-128.6.398","DOIUrl":"10.1352/1944-7558-128.6.398","url":null,"abstract":"<p><p>Provoked by decades of grassroots activism, anti-ableist work is underway to advance disability rights. Intellectual disability (ID) researchers can integrate these social changes into their work by interrogating and transforming the beliefs and practices that underpin ID research. We share actionable ideas to foster anti-ableism and allyship in ID research. These include: (1) Learn from and nurture long-term, mutual relationships with people with ID; (2) Amplify the voices of people with ID in institutional structures that influence research; (3) Infuse anti-ableist frameworks into our own research; and (4) Embody a career-long commitment to disability rights, reflexive practice, and growth.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"398-410"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Changing Perspectives and Meaningful Problems. 不断变化的观点和有意义的问题。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.397
Frank J Symons
{"title":"Changing Perspectives and Meaningful Problems.","authors":"Frank J Symons","doi":"10.1352/1944-7558-128.6.397","DOIUrl":"10.1352/1944-7558-128.6.397","url":null,"abstract":"","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"397"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Associations Between Parenting Behaviors and Behavioral Problems in Young Children With Developmental Delays. 发育迟缓儿童父母行为与行为问题的关系
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.481
Mathew C Luehring, Laura Lee McIntyre
{"title":"Associations Between Parenting Behaviors and Behavioral Problems in Young Children With Developmental Delays.","authors":"Mathew C Luehring, Laura Lee McIntyre","doi":"10.1352/1944-7558-128.6.481","DOIUrl":"10.1352/1944-7558-128.6.481","url":null,"abstract":"<p><p>Children with developmental delays (DD) are at heightened risk for developing behavior problems, which contribute to parenting stress and caregiving burden. There is an established relation between parenting behaviors and child developmental outcomes with less known about parent-child interactions in young children with DD. The present study examined the associations between parenting behaviors and child behavior in a sample of 180 families with preschool-aged children with DD. Results indicated that caregivers' harsh and coercive behaviors were associated with observed challenging behavior in children. Child age, as well as the number of commands issued by caregivers were associated with noncompliance in children. The significance and limitations of these findings are discussed, as well as recommendations for interventions and future research.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"481-493"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Food Insecurity and Health Outcomes of Children With Intellectual and Developmental Disabilities in the United States. 美国智力和发育障碍儿童的食物不安全与健康结果
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.462
Samina Dhuliawala, Nalin Payakachat, Jacob T Painter, Taren Swindle, Chenghui Li
{"title":"Food Insecurity and Health Outcomes of Children With Intellectual and Developmental Disabilities in the United States.","authors":"Samina Dhuliawala, Nalin Payakachat, Jacob T Painter, Taren Swindle, Chenghui Li","doi":"10.1352/1944-7558-128.6.462","DOIUrl":"10.1352/1944-7558-128.6.462","url":null,"abstract":"<p><p>We aimed to (a) provide nationally representative estimates of food insecurity (FI) among children with intellectual and developmental disabilities (IDD), and (b) determine the association between FI and four health outcomes (overall health, problem behavior, activities of daily living, functional limitations) in 5,657 children with IDD compared to 1:1 propensity score matched children without IDD. Mixed-effects ordered logistic regression models were used. Children with IDD were more likely to experience FI than children without IDD (43.3% vs. 30.0%, p < 0.001). FI and IDD were independently associated with worse scores on all four health outcomes. Having both FI and IDD further exacerbated the adverse impacts on these health outcomes. The association was stronger among children with moderate-to-severe FI than those with mild FI.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"462-480"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159238","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being. 正念在儿童行为问题和母亲幸福感之间的潜在调节作用。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.411
Gemma M Griffith, Christopher W N Saville, Elizabeth J Halstead, Richard P Hastings
{"title":"Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being.","authors":"Gemma M Griffith, Christopher W N Saville, Elizabeth J Halstead, Richard P Hastings","doi":"10.1352/1944-7558-128.6.411","DOIUrl":"10.1352/1944-7558-128.6.411","url":null,"abstract":"<p><p>Mindfulness-based programs can help lower psychological distress among parents of children with developmental disabilities. However, less is known about the functions of mindfulness in relation to parental outcomes. In a cross-sectional survey, mothers of children with developmental disabilities (N = 313) reported on their child's behavior problems, trait mindfulness, mindful parenting, and a range of outcomes (anxiety and depression symptoms, parenting stress, family satisfaction, and positive gain). Neither trait mindfulness or mindful parenting acted as moderators between child behavior problems and outcome variables, although both had main effect (compensatory) associations with parent outcomes. Benefits of mindfulness-based programs may be general rather than specifically in the context of high child behavior problems, given the lack of evidence for the moderating function of mindfulness.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"411-424"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159239","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Examining Choice and Control for People With IDD Over Time. 长期观察IDD患者的选择和控制。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-11-01 DOI: 10.1352/1944-7558-128.6.449
James Houseworth, Sandra L Pettingell, Julie Bershadsky, Renáta Tichá, James Lemanowicz, Celia Feinstein, Alicia Zhang
{"title":"Examining Choice and Control for People With IDD Over Time.","authors":"James Houseworth, Sandra L Pettingell, Julie Bershadsky, Renáta Tichá, James Lemanowicz, Celia Feinstein, Alicia Zhang","doi":"10.1352/1944-7558-128.6.449","DOIUrl":"10.1352/1944-7558-128.6.449","url":null,"abstract":"<p><p>Choice making is an important aspect of everyone's life in terms of fully becoming an adult within a democratic society. People with intellectual and developmental disabilities (IDD) are at risk for diminished choice making due to various factors, including guardianships; dependence on supports that are not person-centered; and, in some cases, limited capacity to express one's desires effectively. Independent Monitoring for Quality (IM4Q) data for 9,195 and 9,817 for adult services users with IDD were analyzed across two types of choice. Repeated measures mixed regression examined choice over time after controlling for age, support needs, residence type, and community type. We found significant increases in everyday choice making among IDD service users in Pennsylvania, but not in support-related choice. This study is the first to our knowledge to consider change in choice making, an important indicator of rights and inclusion for persons with IDD. By comparing three waves of data from the state of Pennsylvania (2013, 2016, and 2019), we were able to detect changes in choice making over time among home and community-based service (HCBS) users with IDD.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 6","pages":"449-461"},"PeriodicalIF":2.1,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50159237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-10-25 DOI: 10.1352/1944-7558-128.6.494
{"title":"Résumés en Français","authors":"","doi":"10.1352/1944-7558-128.6.494","DOIUrl":"https://doi.org/10.1352/1944-7558-128.6.494","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Am J Intellect Dev Disabil 1 November 2023; 128 (6): 494–495. doi: https://doi.org/10.1352/1944-7558-128.6.494 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"31 5","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134972766","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-10-25 DOI: 10.1352/1944-7558-128.6.496
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1944-7558-128.6.496","DOIUrl":"https://doi.org/10.1352/1944-7558-128.6.496","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Am J Intellect Dev Disabil 1 November 2023; 128 (6): 496–497. doi: https://doi.org/10.1352/1944-7558-128.6.496 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134972767","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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