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Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

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Vineland-3 Measurement Non-Invariance in Children With and Without Intellectual and Developmental Disabilities. Vineland-3测量在有和没有智力和发育障碍的儿童中的非恒定性。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-07-01 DOI: 10.1352/1944-7558-128.4.334
Maryellen Brunson McClain, Sarah E Schwartz, Jac'lyn Bera, Ryan L Farmer, Sarfaraz Serang, Bryn Harris, Megan E Golson
{"title":"Vineland-3 Measurement Non-Invariance in Children With and Without Intellectual and Developmental Disabilities.","authors":"Maryellen Brunson McClain,&nbsp;Sarah E Schwartz,&nbsp;Jac'lyn Bera,&nbsp;Ryan L Farmer,&nbsp;Sarfaraz Serang,&nbsp;Bryn Harris,&nbsp;Megan E Golson","doi":"10.1352/1944-7558-128.4.334","DOIUrl":"10.1352/1944-7558-128.4.334","url":null,"abstract":"<p><p>Measurement of adaptive skills is important in the diagnosis, intervention planning, and progress monitoring of children with intellectual and developmental disabilities (IDD). Thus, ensuring accurate measurement, including measurement invariance, across children with and without IDD is critical. In this study, we evaluate the measurement invariance using multigroup confirmatory factor analysis (MG-CFA) of the Vineland-3 Comprehensive Interview (CIF) across children ages 6-21 years with and without IDD (N = 1,192) using archival data. Results showed that the Vineland-3 CIF exhibits configural invariance but may show some metric non-invariance in children with and without IDD. Suggestions for using the Vineland-3 CIF in this population are provided and future research and measure development needs are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10203262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome. 神经发育障碍的社交焦虑：脆性X综合征病例。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-07-01 DOI: 10.1352/1944-7558-128.4.302
Hayley Crawford
{"title":"Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome.","authors":"Hayley Crawford","doi":"10.1352/1944-7558-128.4.302","DOIUrl":"10.1352/1944-7558-128.4.302","url":null,"abstract":"<p><p>Despite significant advances in understanding and treating social anxiety in the general population, progress in this area lags behind for individuals with intellectual disability. Fragile X syndrome is the most common cause of inherited intellectual disability and is associated with an elevated prevalence rate of social anxiety. The phenotype of fragile X syndrome encompasses multiple clinically significant characteristics that are posed as risk markers for social anxiety in other populations. Here, evidence is reviewed that points to physiological hyperarousal, sensory sensitivity, emotion dysregulation, cognitive inflexibility, and intolerance of uncertainty as primary candidates for underlying mechanisms of heightened social anxiety in fragile X syndrome. A multilevel model is presented that provides a framework for future research to test associations.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10203267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Résumés en Français 法文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-07-01 DOI: 10.1352/1944-7558-128.4.344
{"title":"Résumés en Français","authors":"","doi":"10.1352/1944-7558-128.4.344","DOIUrl":"https://doi.org/10.1352/1944-7558-128.4.344","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Am J Intellect Dev Disabil 1 July 2023; 128 (4): 344–345. doi: https://doi.org/10.1352/1944-7558-128.4.344 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135568281","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health Effects of Sleep Quality in Premutation Carrier Mothers of Individuals With Fragile X Syndrome. 脆性 X 综合征患者的先突变携带者母亲睡眠质量对健康的影响。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.254
Robert S Dembo, Jinkuk Hong, Leann Smith DaWalt, Elizabeth M Berry-Kravis, Marsha R Mailick
{"title":"Health Effects of Sleep Quality in Premutation Carrier Mothers of Individuals With Fragile X Syndrome.","authors":"Robert S Dembo, Jinkuk Hong, Leann Smith DaWalt, Elizabeth M Berry-Kravis, Marsha R Mailick","doi":"10.1352/1944-7558-128.3.254","DOIUrl":"10.1352/1944-7558-128.3.254","url":null,"abstract":"<p><p>Sleep plays an integral role in supporting well-being, and sleep difficulties are common in mothers of individuals with developmental disabilities, including fragile X syndrome (FXS). This study assessed whether the effects of sleep quality on physical health and depression are exacerbated by genetic risk factors (CGG repeats) in FMR1 premutation carrier mothers of individuals with FXS. Poor sleep quality predicted a greater number of physical health conditions for mothers with CGG repeats in the mid-premutation range (90-110 repeats), but not for those in the lower (< 90 repeats) or higher (> 110 repeats) ends of the range. A significant association between poor sleep quality and maternal depressive symptoms was also observed, but there was no evidence that this effect varied by level of genetic vulnerability. This research extends our understanding of individual differences in the effects of sleep quality among mothers of individuals with FXS.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10506164/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10300092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rett Syndrome Behaviour Questionnaire in Children and Adults With Rett Syndrome: Psychometric Characterization and Revised Factor Structure. Rett综合征儿童和成人行为问卷:心理测量特征和修正的因素结构。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.237
Lindsay M Oberman, Helen Leonard, Jenny Downs, Rina Cianfaglione, Michelle Stahlhut, Jane L Larsen, Katherine V Madden, Walter E Kaufmann
{"title":"Rett Syndrome Behaviour Questionnaire in Children and Adults With Rett Syndrome: Psychometric Characterization and Revised Factor Structure.","authors":"Lindsay M Oberman,&nbsp;Helen Leonard,&nbsp;Jenny Downs,&nbsp;Rina Cianfaglione,&nbsp;Michelle Stahlhut,&nbsp;Jane L Larsen,&nbsp;Katherine V Madden,&nbsp;Walter E Kaufmann","doi":"10.1352/1944-7558-128.3.237","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.237","url":null,"abstract":"<p><p>Rett syndrome (RTT) is a severe neurodevelopmental disorder associated with multiple neurobehavioral abnormalities. The Rett Syndrome Behaviour Questionnaire (RSBQ) was developed for pediatric RTT observational studies. Because its application has expanded to adult and interventional studies, we evaluated the RSBQ's psychometric properties in six pediatric (n = 323) and five adult (n = 309) datasets. Total and General Mood subscale scores had good reliability. Clinical severity had no influence on RSBQ scores. Exploratory and confirmatory factor analyses yielded 6 pediatric and 7 adult clinically relevant and psychometrically strong factors including the original Breathing Problems and Fear/Anxiety subscales and the novel Emotional and Disruptive Behavior subscale composed of items from the original General Mood and Nighttime Behaviours subscales. The present findings support additional evaluations and improvements of an important RTT behavioral measure.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities. 从家庭角度看有智力和发育障碍的成年人寻求综合就业的复杂性。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.219
Erik W Carter, Emily R Lanchak, Laura Guest, Elise D McMillan, Julie Lounds Taylor, Laurie P Fleming, Ahn Dao
{"title":"Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities.","authors":"Erik W Carter,&nbsp;Emily R Lanchak,&nbsp;Laura Guest,&nbsp;Elise D McMillan,&nbsp;Julie Lounds Taylor,&nbsp;Laurie P Fleming,&nbsp;Ahn Dao","doi":"10.1352/1944-7558-128.3.219","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.219","url":null,"abstract":"<p><p>The road to employment is not often easy for individuals with intellectual and developmental disabilities (IDD). Families know firsthand the complexities and challenges of obtaining employment for their members with extensive support needs. The purpose of this qualitative study was to identify the critical barriers they encounter in this important pursuit. We interviewed 60 parents (and other caregivers) whose family members with intellectual disability and/or autism had sought and/or obtained paid work. The difficulties they described were extensive and multifaceted. Specifically, participants identified 64 different barriers attributed to six primary areas: individuals, families, schools, service systems, workplaces, and communities. Their unique insights amplify the need for new approaches for promoting integrated employment. We offer recommendations for research and practice aimed at better understanding and ameliorating barriers to meaningful work for adults with IDD.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome. 天使综合症患者观察者报告沟通能力(ORCA)测试的验证。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.204
Christina K Zigler, Li Lin, Molly McFatrich, Nicole Lucas, Kelly L Gordon, Harrison N Jones, Allyson Berent, Jennifer Panagoulias, Paula Evans, Bryce B Reeve
{"title":"Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome.","authors":"Christina K Zigler,&nbsp;Li Lin,&nbsp;Molly McFatrich,&nbsp;Nicole Lucas,&nbsp;Kelly L Gordon,&nbsp;Harrison N Jones,&nbsp;Allyson Berent,&nbsp;Jennifer Panagoulias,&nbsp;Paula Evans,&nbsp;Bryce B Reeve","doi":"10.1352/1944-7558-128.3.204","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.204","url":null,"abstract":"<p><p>There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of developing a measure that could be administered to caregivers directly without the need for a certified administrator for use in clinical trials. To refine the draft measure, we conducted two rounds of cognitive interviews with 24 caregivers and a quantitative study including 249 caregivers. The results from both studies support the overall content validity, construct validity, and the reliability of the ORCA measure for individuals with AS > 2 years old for use in research contexts. Future work should explore the responsiveness of ORCA measures to changes over time in a diverse sample.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers. 探索天使人综合症个体的沟通能力:来自护理者定性访谈的结果。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.185
Christina K Zigler, Nicole Lucas, Molly McFatrich, Kelly L Gordon, Harrison N Jones, Allyson Berent, Jennifer Panagoulias, Paula Evans, Bryce B Reeve
{"title":"Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers.","authors":"Christina K Zigler,&nbsp;Nicole Lucas,&nbsp;Molly McFatrich,&nbsp;Kelly L Gordon,&nbsp;Harrison N Jones,&nbsp;Allyson Berent,&nbsp;Jennifer Panagoulias,&nbsp;Paula Evans,&nbsp;Bryce B Reeve","doi":"10.1352/1944-7558-128.3.185","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.185","url":null,"abstract":"<p><p>Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual qualitative interviews with caregivers and clinicians to elicit meaningful aspects of communication for individuals with AS. Caregivers were able to discuss their child's specific communication behaviors within a large number of expressive, receptive, and pragmatic functions via numerous symbolic and non-symbolic modalities. These results aligned well with published literature on communication in AS and will be used to inform the design of a novel caregiver-reported measure. Future studies on communication in individuals with AS should focus on gathering quantitative data from large samples of diverse caregivers, which would allow for estimations of the frequency of specific behaviors across the population.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-04-28 DOI: 10.1352/1944-7558-128.3.269
{"title":"Résumés en Français","authors":"","doi":"10.1352/1944-7558-128.3.269","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.269","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Am J Intellect Dev Disabil 1 May 2023; 128 (3): 269–270. doi: https://doi.org/10.1352/1944-7558-128.3.269 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135912471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-04-28 DOI: 10.1352/1944-7558-128.3.271
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1944-7558-128.3.271","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.271","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Am J Intellect Dev Disabil 1 May 2023; 128 (3): 271–272. doi: https://doi.org/10.1352/1944-7558-128.3.271 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135912470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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