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Ajidd-American Journal on Intellectual and Developmental Disabilities最新文献

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Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities. 从家庭角度看有智力和发育障碍的成年人寻求综合就业的复杂性。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.219
Erik W Carter, Emily R Lanchak, Laura Guest, Elise D McMillan, Julie Lounds Taylor, Laurie P Fleming, Ahn Dao
{"title":"Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities.","authors":"Erik W Carter,&nbsp;Emily R Lanchak,&nbsp;Laura Guest,&nbsp;Elise D McMillan,&nbsp;Julie Lounds Taylor,&nbsp;Laurie P Fleming,&nbsp;Ahn Dao","doi":"10.1352/1944-7558-128.3.219","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.219","url":null,"abstract":"<p><p>The road to employment is not often easy for individuals with intellectual and developmental disabilities (IDD). Families know firsthand the complexities and challenges of obtaining employment for their members with extensive support needs. The purpose of this qualitative study was to identify the critical barriers they encounter in this important pursuit. We interviewed 60 parents (and other caregivers) whose family members with intellectual disability and/or autism had sought and/or obtained paid work. The difficulties they described were extensive and multifaceted. Specifically, participants identified 64 different barriers attributed to six primary areas: individuals, families, schools, service systems, workplaces, and communities. Their unique insights amplify the need for new approaches for promoting integrated employment. We offer recommendations for research and practice aimed at better understanding and ameliorating barriers to meaningful work for adults with IDD.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 3","pages":"219-236"},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome. 天使综合症患者观察者报告沟通能力(ORCA)测试的验证。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.204
Christina K Zigler, Li Lin, Molly McFatrich, Nicole Lucas, Kelly L Gordon, Harrison N Jones, Allyson Berent, Jennifer Panagoulias, Paula Evans, Bryce B Reeve
{"title":"Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome.","authors":"Christina K Zigler,&nbsp;Li Lin,&nbsp;Molly McFatrich,&nbsp;Nicole Lucas,&nbsp;Kelly L Gordon,&nbsp;Harrison N Jones,&nbsp;Allyson Berent,&nbsp;Jennifer Panagoulias,&nbsp;Paula Evans,&nbsp;Bryce B Reeve","doi":"10.1352/1944-7558-128.3.204","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.204","url":null,"abstract":"<p><p>There is a critical need for high-quality clinical outcome assessments to capture the important aspects of communication ability of individuals with Angelman syndrome (AS). To center the perspective of caregivers, our team developed the novel Observer-Reported Communication Ability (ORCA) measure using best practice guidelines, with the goal of developing a measure that could be administered to caregivers directly without the need for a certified administrator for use in clinical trials. To refine the draft measure, we conducted two rounds of cognitive interviews with 24 caregivers and a quantitative study including 249 caregivers. The results from both studies support the overall content validity, construct validity, and the reliability of the ORCA measure for individuals with AS > 2 years old for use in research contexts. Future work should explore the responsiveness of ORCA measures to changes over time in a diverse sample.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 3","pages":"204-218"},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers. 探索天使人综合症个体的沟通能力:来自护理者定性访谈的结果。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-05-01 DOI: 10.1352/1944-7558-128.3.185
Christina K Zigler, Nicole Lucas, Molly McFatrich, Kelly L Gordon, Harrison N Jones, Allyson Berent, Jennifer Panagoulias, Paula Evans, Bryce B Reeve
{"title":"Exploring Communication Ability in Individuals With Angelman Syndrome: Findings From Qualitative Interviews With Caregivers.","authors":"Christina K Zigler,&nbsp;Nicole Lucas,&nbsp;Molly McFatrich,&nbsp;Kelly L Gordon,&nbsp;Harrison N Jones,&nbsp;Allyson Berent,&nbsp;Jennifer Panagoulias,&nbsp;Paula Evans,&nbsp;Bryce B Reeve","doi":"10.1352/1944-7558-128.3.185","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.185","url":null,"abstract":"<p><p>Communication deficits have a substantial impact on quality of life for individuals with Angelman syndrome (AS) and their families, but limited qualitative work exists to support the necessary content of measures aiming to assess communication for these individuals. Following best practices for concept elicitation studies, we conducted individual qualitative interviews with caregivers and clinicians to elicit meaningful aspects of communication for individuals with AS. Caregivers were able to discuss their child's specific communication behaviors within a large number of expressive, receptive, and pragmatic functions via numerous symbolic and non-symbolic modalities. These results aligned well with published literature on communication in AS and will be used to inform the design of a novel caregiver-reported measure. Future studies on communication in individuals with AS should focus on gathering quantitative data from large samples of diverse caregivers, which would allow for estimations of the frequency of specific behaviors across the population.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 3","pages":"185-203"},"PeriodicalIF":2.1,"publicationDate":"2023-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9501699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Résumés en Français 法文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-04-28 DOI: 10.1352/1944-7558-128.3.269
{"title":"Résumés en Français","authors":"","doi":"10.1352/1944-7558-128.3.269","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.269","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Résumés en Français. Am J Intellect Dev Disabil 1 May 2023; 128 (3): 269–270. doi: https://doi.org/10.1352/1944-7558-128.3.269 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"96 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135912471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Resúmenes al Español 英文摘要
4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-04-28 DOI: 10.1352/1944-7558-128.3.271
{"title":"Resúmenes al Español","authors":"","doi":"10.1352/1944-7558-128.3.271","DOIUrl":"https://doi.org/10.1352/1944-7558-128.3.271","url":null,"abstract":"Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn Email Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Resúmenes al Español. Am J Intellect Dev Disabil 1 May 2023; 128 (3): 271–272. doi: https://doi.org/10.1352/1944-7558-128.3.271 Download citation file: Ris (Zotero) Reference Manager EasyBib Bookends Mendeley Papers EndNote RefWorks BibTex toolbar search Search Dropdown Menu toolbar search search input Search input auto suggest Search","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135912470","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Childhood Sexual Abuse, Intellectual Disability, and Subsequent Physical and Mental Health Disorders: A Matched Cohort Study. 儿童期性虐待、智力残疾和随后的身心健康障碍:一项匹配队列研究。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-03-01 DOI: 10.1352/1944-7558-128.2.134
Isabelle Daigneault, Geneviève Paquette, Mireille De La Sablonnière-Griffin, Jacinthe Dion
{"title":"Childhood Sexual Abuse, Intellectual Disability, and Subsequent Physical and Mental Health Disorders: A Matched Cohort Study.","authors":"Isabelle Daigneault,&nbsp;Geneviève Paquette,&nbsp;Mireille De La Sablonnière-Griffin,&nbsp;Jacinthe Dion","doi":"10.1352/1944-7558-128.2.134","DOIUrl":"https://doi.org/10.1352/1944-7558-128.2.134","url":null,"abstract":"<p><p>This study assesses whether children with intellectual disability (ID) are more at risk of sexual abuse and whether they have similar consultation rates for physical and mental health disorders than children without ID. The matched-cohort design study uses administrative databases of children who had a sexual abuse report corroborated by a child protection agency and a matched group from the general population. Children with ID were 3.5 times more likely to have a corroborated sexual abuse report when compared to their peers without ID and a higher post-abuse number of medical consultations for physical and mental health disorders. Children with ID are more at risk of sexual abuse and physical and mental health disorders and may also be more vulnerable to the effects of abuse.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 2","pages":"134-144"},"PeriodicalIF":2.1,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10814358","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social Network Diversity and Mental Health Among Mothers of Individuals With Autism. 自闭症患者母亲的社交网络多样性与心理健康。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-03-01 DOI: 10.1352/1944-7558-128.2.101
Robert S Dembo, Marsha R Mailick, Abby E Rudolph, Nick Huntington, Leann Smith DaWalt, Monika Mitra
{"title":"Social Network Diversity and Mental Health Among Mothers of Individuals With Autism.","authors":"Robert S Dembo, Marsha R Mailick, Abby E Rudolph, Nick Huntington, Leann Smith DaWalt, Monika Mitra","doi":"10.1352/1944-7558-128.2.101","DOIUrl":"10.1352/1944-7558-128.2.101","url":null,"abstract":"<p><p>The present study examined the associations between networks of social relationships and psychological well-being among mothers of adolescents and adults with autism (n = 352) over a 12-year period of time. A structural equation modeling approach was used to delineate the relative impacts of network size and relationship diversity on maternal mental health, and to assess whether such effects are bidirectional. Mothers with more diverse relationships experienced reductions in depression and anxiety symptoms over time, and the psychological benefits of diversity remained after adjusting for network size. Results also suggest bidirectional links between network size, diversity, and maternal mental health. Research and clinical implications are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 2","pages":"101-118"},"PeriodicalIF":2.1,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10506165/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10287601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of Two Interventions in Improving Comprehension of Students With Intellectual Disability. 两种干预措施提高智力障碍学生理解能力的比较。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-03-01 DOI: 10.1352/1944-7558-128.2.145
Goksel Cure, Serife Yucesoy-Ozkan
{"title":"Comparison of Two Interventions in Improving Comprehension of Students With Intellectual Disability.","authors":"Goksel Cure,&nbsp;Serife Yucesoy-Ozkan","doi":"10.1352/1944-7558-128.2.145","DOIUrl":"https://doi.org/10.1352/1944-7558-128.2.145","url":null,"abstract":"<p><p>The purpose of this study was to compare the relative effects of word reading and story component interventions in developing reading comprehension of narrative texts with four students with mild levels of intellectual disability. A multielement design was used in this study. The findings revealed that the story component intervention was more effective and efficient than the word reading intervention in developing students' reading comprehension of narrative texts, and also indicated that both interventions were significantly effective in enabling subjects to answer literal questions. Only the story component intervention was significantly effective related to inferential questions. Finally, the findings revealed that students could generalize their reading comprehension skills to stories of different lengths.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 2","pages":"145-163"},"PeriodicalIF":2.1,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10822866","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Improving Retention of Diverse Samples in Longitudinal Research on Developmental Disabilities. 改善发育障碍纵向研究中不同样本的保留情况。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-03-01 DOI: 10.1352/1944-7558-128.2.164
Jieun Song, Robert S Dembo, Leann Smith DaWalt, Carol D Ryff, Marsha R Mailick
{"title":"Improving Retention of Diverse Samples in Longitudinal Research on Developmental Disabilities.","authors":"Jieun Song, Robert S Dembo, Leann Smith DaWalt, Carol D Ryff, Marsha R Mailick","doi":"10.1352/1944-7558-128.2.164","DOIUrl":"10.1352/1944-7558-128.2.164","url":null,"abstract":"<p><p>Developmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife in the United States, a national longitudinal study. Unexpectedly, parents of children with DD from diverse racial/ethnic groups were more likely to participate longitudinally than other groups. Relative participant payment was a factor that enhanced their likelihood of retention. This research illustrates how large national studies can be leveraged to increase representativeness and ongoing participation of diverse racial/ethnic groups, especially in combination with other factors, such as parenting a child with DD.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 2","pages":"164-175"},"PeriodicalIF":2.1,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10008512/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9114955","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The French Version of the DABS: Adaptation Process and Preliminary Field Test. DABS的法文版本:适应过程和初步现场测试。
IF 2.1 4区 医学
Ajidd-American Journal on Intellectual and Developmental Disabilities Pub Date : 2023-03-01 DOI: 10.1352/1944-7558-128.2.176
Lorna von Rotz, Yannick Courbois, Vincent Des Portes, Agnès Lacroix, Marie-Pierre Reymond, Marc J Tassé, Nathalie Touil, Raphaele Tsao, Claudio Straccia
{"title":"The French Version of the DABS: Adaptation Process and Preliminary Field Test.","authors":"Lorna von Rotz,&nbsp;Yannick Courbois,&nbsp;Vincent Des Portes,&nbsp;Agnès Lacroix,&nbsp;Marie-Pierre Reymond,&nbsp;Marc J Tassé,&nbsp;Nathalie Touil,&nbsp;Raphaele Tsao,&nbsp;Claudio Straccia","doi":"10.1352/1944-7558-128.2.176","DOIUrl":"https://doi.org/10.1352/1944-7558-128.2.176","url":null,"abstract":"<p><p>The aim of this study was to develop a transcultural adaptation of the Diagnostic Adaptive Behavior Scale (DABS) in French and to perform a field evaluation of the adapted version of the tool (DABS-F). Eight experts in intellectual and developmental disabilities (IDD) and two professional translators formed two committees to translate the instrument. Thirty-four independent experts in IDD rated the clarity and relevance of the DABS-F. Results indicated complete agreement between the two translation committees and also demonstrated very satisfactory levels of clarity and relevance for the DABS-F. The latter result can be considered as evidence of the content validity of the adapted tool. Adjustments for the few items that presented less satisfactory results are discussed.</p>","PeriodicalId":51508,"journal":{"name":"Ajidd-American Journal on Intellectual and Developmental Disabilities","volume":"128 2","pages":"176-180"},"PeriodicalIF":2.1,"publicationDate":"2023-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10822867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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