International Journal of Qualitative Studies on Health and Well-Being最新文献

{"title":"Relating to life and death a qualitative study of individuals with a long-lasting death wish related to unbearable psychiatric suffering.","authors":"Sofie Verdegem, Anke Rens, Joris Vandenberghe, Jessie Dezutter, Thijs Vanhie, Luc Bemelmans, Siebrecht Vanhooren","doi":"10.1080/17482631.2025.2469361","DOIUrl":"10.1080/17482631.2025.2469361","url":null,"abstract":"<p><strong>Objective: </strong>This study describes the lived experiences of persons with a long-lasting death wish related to unbearable psychiatric suffering (DWUPS) regarding their relationship to life and death. The findings are evaluated considering existing literature on suicidality and euthanasia, with a particular focus on the humanistic-existential perspective.</p><p><strong>Method: </strong>An open-ended data-gathering strategy was employed to elicit comprehensive descriptive information about the phenomenon from ten in-depth interviews, applying the method of generic descriptive-interpretative qualitative research.</p><p><strong>Results: </strong>Persons with DWUPS experience difficulties in connection with others, with themselves, with the world and with life itself. Concurrently, they indicate new possibilities for nascent connection in relation to others by receiving support and being able to share their death wish. This can result in growth in relation to themselves, in allowing hope, meaning and new engagement in life. The desire to die manifests itself in a variety of ways, including a strong and persistent death wish, an ambivalent attitude, or a temporary suspension of their death wish.</p><p><strong>Conclusion: </strong>The process of exploring the death wish can assist persons with DWUPS in accessing potential ambivalence between life and death, in regulating emotional distress and in bearing existential concerns related to the life-and-death-questions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2469361"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866764/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stories that matter: a qualitative study of general practitioners' reflections and experiences of exploring patients' impactful life stories.","authors":"Marianne Rønneberg, Bente Prytz Mjølstad, Lotte Hvas, Linn Okkenhaug Getz","doi":"10.1080/17482631.2025.2454043","DOIUrl":"10.1080/17482631.2025.2454043","url":null,"abstract":"<p><strong>Purpose: </strong>There is solid evidence of the impact of life experiences on health. Yet, knowledge of how general practitioners (GPs) relate to patients' stories of such experiences is sparse. This study explored GPs' reflections and experiences concerning managing potentially impactful patient stories.</p><p><strong>Methods: </strong>We conducted four focus group interviews among Norwegian and Danish GPs and analysed them using Reflexive thematic analysis.</p><p><strong>Results: </strong>Three main themes were developed. First, GPs apply various strategies to recognize and unfold impactful stories. Second, they attribute diverse purposes to engaging with these stories, from viewing them as instrumentally useful to recognizing their intrinsic value. These views influence GPs' objectives and strategies when managing impactful stories. The instrumental utility approach can lead to an unfair dismissal of impactful stories. Finally, the commitment of some of the GPs to patients' impactful stories is considered fulfilling and highly satisfactory but also associated with external resistance.</p><p><strong>Conclusions: </strong>Patients and GPs encounter difficulties in addressing impactful stories, which resonate with the theory of epistemic injustice. Nevertheless, engaging with these stories is vital for providing ethically grounded and meaningful primary care. The paper proposes strategies and a conceptual framework to support work with impactful stories in clinical practice.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2454043"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758800/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"They are just as different as the rest of us\" - a focus group study of primary teachers' perceptions of children with ADHD who struggle socially.","authors":"Marie Munch, Signe Hjelen Stige, Steinunn Adólfsdóttir, Lin Sørensen, Berge Osnes","doi":"10.1080/17482631.2025.2465215","DOIUrl":"10.1080/17482631.2025.2465215","url":null,"abstract":"<p><strong>Purpose: </strong>Difficulties in peer interactions are common among children with ADHD and associated with severe consequences. Prevailing interventions have been criticized for not accounting for the significance of context and for limited effect on important social outcomes. Given the importance of the school environment and the teacher for children's social development, we wanted to explore how teachers perceive their own role and responsibilities when children are struggling socially, and how they intervene in their daily practice.</p><p><strong>Methods: </strong>We conducted semi-structured interviews in five focus groups of primary school teachers in Bergen, Norway and analysed the data through reflexive thematic analysis.</p><p><strong>Results: </strong>We discerned two overarching themes, each with several subthemes. The first theme, \"Monitoring and Attending to Individual Needs in a Context\", represents teachers' perceptions of their role and responsibilities. The second theme, \"Tailoring Interventions Through Continuous Assessments\", represents the teachers' strive to fulfil this role in their everyday practice.</p><p><strong>Conclusion: </strong>Our findings reflect a complex, contextual understanding of social difficulties, acknowledging the uniqueness of each child, regardless of diagnosis. The teachers' practice was characterized by continuous tailoring to accommodate the specific, contextualized needs of each child, both \"behind the scenes\" and trough participating in children's everyday social interactions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2465215"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11816612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The emotional toll of day-of-surgery cancellations on patients - a qualitative study using participant observation and interviews.","authors":"Anette Viftrup, Lone Nikolajsen, Sussie Laustsen, Pia Dreyer","doi":"10.1080/17482631.2025.2502193","DOIUrl":"https://doi.org/10.1080/17482631.2025.2502193","url":null,"abstract":"<p><strong>Objectives: </strong>To explore patients' experiences of day-of-surgery cancellation and the initial days of the extended waiting period.</p><p><strong>Methods: </strong>A qualitative explorative design inspired by Ricoeur's phenomenological-hermeneutic approach was used. Participant observation of day-of-surgery cancellations and semi-structured follow-up interviews with patients were conducted. Transcribed data were analysed using a Ricoeur-inspired analysis.</p><p><strong>Results: </strong>Five themes emerged from the analysis and interpretation, including \"an unexpected and shocking message-triggering reactions ranging from crying to unclear thinking\", \"shattered mental strength-an emotional rollercoaster marked by exhaustion and concerns\", \"a fragile situation-the need for early, informative and caring management of surgery cancellation\", \"prolonged waiting-feeling stuck and mentally distressed, caught in limbo with one's disease\" and \"known and unknown consequences-a butterfly effect\".</p><p><strong>Conclusions: </strong>Surgery cancellation could be explained as a \"butterfly effect\" causing known and unknown consequences triggered by the initial shock. Various emotional reactions followed the event and patients' mental strength was shattered. Provision of empathic care and information during cancellation notification was essential. The prolonged waiting period subjected patients to a sense of being stuck in limbo, unable to move forward with their lives. Multiple new practical preparations had to be made, and trust in the healthcare sector might be compromised.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2502193"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12057768/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144057609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"My home is where my health is: narratives on health promotion from older people living at home.","authors":"Therese Hugøy, Helle K Falkenberg, Grethe Eilertsen, Marit Skraastad, Anette Hansen","doi":"10.1080/17482631.2025.2518668","DOIUrl":"10.1080/17482631.2025.2518668","url":null,"abstract":"<p><strong>Purpose: </strong>Many older people want to live at home for as long as possible, and the aging population is highlighting the importance of understanding what they require for their lives to be good. This study explored how older recipients of home care experience the meaning of home from a health-promoting perspective.</p><p><strong>Methods: </strong>Narrative interviews were conducted with 10 people aged 78-103 years living at home and receiving home care nursing. We conducted a thematic narrative analysis, and based on the results chose a salutogenic perspective to shed light on the health-promoting perspective.</p><p><strong>Results: </strong>The primary theme identified was \"My home is where my health is.\" It reflects a compellation of the four subthemes emerging from the data: (1) my home promotes independence and autonomy, (2) my home promotes identity and self, (3) my home promotes being active, and (4) the support I receive is pivotal to promoting health and life at home. These themes are pivotal to health promotion and well-being in old age.</p><p><strong>Conclusions: </strong>Living at home contributes to meaningfulness, manageability, comprehensibility, and a sense of coherence. This promotes health and well-being for older people living at home if they receive both formal and informal support.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2518668"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12168385/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144303520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Qualitative study on the sense of meaning in life in uremic patients undergoing initial hemodialysis.","authors":"Chenyang Li, Yan Shan, Xiangdong Yan, Zihao Wang","doi":"10.1080/17482631.2025.2545262","DOIUrl":"10.1080/17482631.2025.2545262","url":null,"abstract":"<p><strong>Background: </strong>For patients with uraemia, the most effective treatment, aside from surgical interventions like kidney transplantation, is maintenance haemodialysis. First-time haemodialysis patients often lack an understanding of the treatment, making them susceptible to negative emotions such as anxiety and depression, as well as shifts in their perception of life's meaning. This study aims to explore the sense of meaning in life experienced by patients undergoing their first session of haemodialysis.</p><p><strong>Methods: </strong>This qualitative study employed purposive sampling to select 11 patients, followed by semi-structured in-depth interviews. The content analysis approach proposed by Graneheim and Lundman was employed to analyze the data.</p><p><strong>Results: </strong>Four main categories and ten subcategories emerged from the data. The categories included: (1) Experiencing shock and loss in life, (2) Longing for emotional and psychological support, (3) Adapting and adjusting to the sense of meaning in life, and (4) Growth and transcendencein the cognitive development of life's meaning.</p><p><strong>Conclusions: </strong>Patients new to haemodialysis often undergo a complex and dynamic process. Healthcare professionals should implement targeted strategies to assist these patients in adjusting and adapting to changes in their sense of life's meaning.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2545262"},"PeriodicalIF":2.3,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12366514/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144876779","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The feasibility of conducting non-pharmacological research studies in participants with mania: a grounded theory qualitative analysis of the Ottawa Sunglasses at Night study.","authors":"Jessica Yu, Joseph K Burns, Eric Mikhail, Marco Solmi, Simon Hatcher, Andrew L Smith, Rébecca Robillard, Thanh Nguyen, Nicole Edgar, Tetyana Kendzerska, Mark Kaluzienski, Andrea Bardell, Jess G Fiedorowicz","doi":"10.1080/17482631.2025.2540795","DOIUrl":"10.1080/17482631.2025.2540795","url":null,"abstract":"<p><strong>Background: </strong>Feasibility concerns around non-pharmacological interventions can be a barrier against clinical research in individuals with mania.</p><p><strong>Methods: </strong>As part of a randomized controlled trial using blue-blocking vs lightly-tinted glasses, we interviewed participants who were hospitalized with mania and clinicians to gather insight on feasibility of recruitment and acceptability and implementation of tinted glasses according to the RE-AIM (Reach, Effectiveness, Adoption, Implementation and Maintenance) framework using a grounded theory approach. Semi-structured interviews with 24 participants and 10 clinicians were conducted.</p><p><strong>Results: </strong>The central theory of \"research readiness for a dark therapy trial\" was developed from six main themes identified from participant interviews: motivation, patient-centred approach, benefits of participating, research understanding, efficacy of intervention and challenges. The central theory of \"supportive of blue-blocking glasses\" was developed from five themes identified from clinician interviews: importance and benefits of clinical research, clinician-patient interactions, acceptability of research for participants, documentation and challenges.</p><p><strong>Discussion: </strong>This study identified themes from the experiences of participants and clinicians of the clinical trial that contribute to the feasibility and acceptability of blue-blocking glasses as an intervention for mania. The results of this qualitative study will inform implementation practices for clinical trials investigating non-pharmacological interventions for hospitalized individuals with mania and related acute psychiatric conditions which affect judgement.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2540795"},"PeriodicalIF":2.3,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12337717/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144805300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living with brain metastasis - a qualitative study of patients' and family members' coping strategies.","authors":"Daniela Lillekroken, Asta Bye, Liv Halvorsrud, Tonje Lundeby","doi":"10.1080/17482631.2025.2555228","DOIUrl":"10.1080/17482631.2025.2555228","url":null,"abstract":"<p><strong>Background: </strong>Brain metastases are a serious complication of advanced cancer, often impairing patients' neurological function, quality of life, well-being, and prognosis. They also place a heavy emotional burden on family members. Coping strategies play a crucial role in reducing stress, supporting emotional well-being, and adapting to these challenges. Gaining insight into how patients and families cope is important for developing person- and family-centred interventions.</p><p><strong>Aim: </strong>To explore similarities and differences in coping strategies between patients with newly diagnosed brain metastases and their family members from diagnosis to four months thereafter.</p><p><strong>Methods: </strong>The study has a qualitative, exploratory, longitudinal design. Between 2019 and 2021, 81 individual interviews were conducted with patients and their family members. Data were analysed using a secondary thematic analysis.</p><p><strong>Results: </strong>The analysis revealed two main themes: Willpower - taking control of the mind, and Reframing life - here-and-now versus long-term plans. While patients exhibited willpower and took control over their minds, focusing on the present moment, family members emphasised reframing life by balancing the immediate needs and information seeking with long-term planning.</p><p><strong>Conclusions: </strong>Patients and family members employ distinct coping strategies. Recognising these differences provides a foundation for tailored, person- and family-centred interventions aimed at improving quality of life.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2555228"},"PeriodicalIF":2.3,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12406310/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144978030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Communication needs and support for children and adolescents with complex communication needs requiring hospitalization in Hong Kong: an explorative study.","authors":"Lucia Tsang, Lorinda Lam, Elaine Siu, Catherine Lam, Cynthia Leung","doi":"10.1080/17482631.2024.2446025","DOIUrl":"https://doi.org/10.1080/17482631.2024.2446025","url":null,"abstract":"<p><strong>Purpose: </strong>Children with complex communication needs face particular challenges during hospitalization. This study aimed to understand the situation for hospitalized Hong Kong Chinese children with complex communication needs.</p><p><strong>Methods: </strong>Six group interviews were conducted with 23 participants, including nurses, doctors, adolescents with acquired brain injury, parents of children with acquired brain injury or cerebral palsy, and community-based therapists.</p><p><strong>Results: </strong>Parents and children reported unmet physical and emotional needs due to lack of communication. Healthcare providers felt that direct communication with children was not essential, expecting that parents serve as proxy in conveying needs. The passive interaction mode of Chinese parents, and their increased vigilance in protecting their children, further reduced opportunities for direct child-healthcare provider interaction. Limited patient communication protocols were reported, while tight hospital space discouraged bedside communication activities and tools. Community therapists who knew these children were not involved in pre-admission handover.</p><p><strong>Conclusion: </strong>To address the communication barriers, changes in the healthcare, education, and community systems are proposed. Empowerment of the children and parents to promote direct patient-healthcare provider communication, dissemination of simple protocols and bedside communication tools, time allowance for staff to interact with the children, pre-/in-service staff training, and collaboration with community healthcare providers are recommended.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2446025"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142886422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I've always felt like I'm on the outside\": identity and social inclusion among young adults with mental illness and complex needs - a qualitative study.","authors":"Silje Nord-Baade, Ottar Ness, Michael Rowe, Camilla Bergsve Jensen, Anne Landheim","doi":"10.1080/17482631.2024.2433320","DOIUrl":"10.1080/17482631.2024.2433320","url":null,"abstract":"<p><strong>Purpose: </strong>Addressing social inclusion often involves objective measures and means related to work, education, housing and economy. However, important subjective factors, such as the relationship between identity on social inclusion among young adults with mental illness and complex needs, are understudied. The study objective is to explore how young adults with mental illness and complex needs experience their identity in relation to social inclusion.</p><p><strong>Materials and methods: </strong>The study adopted a qualitative, explorative, and participatory design. Seven young adults (three males/four females, aged 22-29) were recruited though Flexible Assertive Community Treatment (FACT) Teams, and semi-structured interviews were conducted. Reflexive thematic analysis was employed in the analysis.</p><p><strong>Results: </strong>The analysis resulted in two main themes. Theme one, \"Who they are\", included three subthemes: \"A lifelong sense of being someone on the outside\", \"Feeling different from others\", and \"Someone who is worthless and doesn't matter\". Theme two, \"Who they want to be\", included two subthemes \"Wanting to be someone else\", and \"The need to redefine oneself\".</p><p><strong>Conclusions: </strong>This study underlines the importance of working systematically on subjective aspects such as identity, in addition to objective measures, to address social exclusion in a vulnerable and marginalized group. Future directions for research and the development of a more tangible and holistic approach to promote social inclusion are suggested.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2433320"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11632936/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142796433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}