International Journal of Qualitative Studies on Health and Well-Being最新文献

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Decision-making participation of people with mental health difficulties at a community rehabilitation center in Taiwan. 台湾某社区康复中心心理健康障碍者的决策参与。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-03-19 DOI: 10.1080/17482631.2025.2475566
Meng-Hsuan Hsieh, Heng-Hao Chang
{"title":"Decision-making participation of people with mental health difficulties at a community rehabilitation center in Taiwan.","authors":"Meng-Hsuan Hsieh, Heng-Hao Chang","doi":"10.1080/17482631.2025.2475566","DOIUrl":"10.1080/17482631.2025.2475566","url":null,"abstract":"<p><strong>Purpose: </strong>This study employed institutional ethnography to analyse the experiences of individuals with mental health difficulties in a Taiwanese community rehabilitation centre.</p><p><strong>Methods: </strong>This study applies the institutional ethnography method. Data were gathered through participatory observation; in-depth interviews with individuals with mental health difficulties and professionals; and textual analysis of policies, regulations, and practices within the centre.</p><p><strong>Results: </strong>First, entrenched power dynamics persist, stifling discourse on the agency of individuals with mental health difficulties. The prevalent medical model continues to govern service provision, reinforcing professional hierarchies that impede collaboration. Second, community rehabilitation centres exacerbate disadvantages for case managers (who are muted in the presence of professionals) and service users (who lose autonomy in professional discussions). Third, compliance assessments overshadow individualized care. Fourth, the community rehabilitation model may inadvertently confine service users, prolonging institutionalization and conforming to societal norms.</p><p><strong>Conclusions: </strong>This study underscores the need for significant improvements in Taiwan's mental healthcare system to emphasize individuals' rights.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2475566"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11924254/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143659750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Qualitative studies on men with prostate cancer: a systematic meta-synthesis. 男性前列腺癌的定性研究:系统性综合。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-24 DOI: 10.1080/17482631.2024.2436720
Deborah Bekele, Angel Martínez-Hernáez
{"title":"Qualitative studies on men with prostate cancer: a systematic meta-synthesis.","authors":"Deborah Bekele, Angel Martínez-Hernáez","doi":"10.1080/17482631.2024.2436720","DOIUrl":"10.1080/17482631.2024.2436720","url":null,"abstract":"<p><strong>Purpose: </strong>Prostate cancer (PCa) is the second most common cancer among men. Despite advancements in clinical interventions and improvements in public health outreach, a multi-dimensional lack of understanding of the lived experiences of men diagnosed with PCa continues. Improving the quantity and quality of knowledge about this subject could guide clinical decisions and interventions for this group.</p><p><strong>Methods: </strong>This paper reviews qualitative studies focusing on PCa patients using the Critical Appraisal Skills Programme tool (CASP), synthesizes the data, and maps the overarching themes through a systematic meta-synthesis.</p><p><strong>Results: </strong>The authors identified 3546 manuscripts, of which 103 met the inclusion criteria. Six themes were identified that addressed: support needs, diagnosis, and treatment experiences, lived experiences, information accessibility, care, and threats to masculinity.</p><p><strong>Conclusion: </strong>Treatment side-effects caused a re-configuration and re-evaluation of masculine ideologies. Men mainly relied on close family and support groups to cope with their feelings of stigma, uncertainty, and recovery. Professional healthcare and consultation quality eased their anxiety concerning long-term treatment and other factors associated with their condition. The studies were socio-demographically heterogeneous. Thus, researchers could use qualitative research to explore knowledge gaps in the following interconnected themes: masculinity care, masculinity support, masculinity information, and incorporating a more diverse socio-demographical sample.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2436720"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142886426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"What I do not see and others see in me": mutual aid for suicide recovery in Colombia. “我看不见的和别人看到的”:哥伦比亚自杀康复互助。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-01 DOI: 10.1080/17482631.2025.2461719
Felipe Agudelo-Hernández, Lina Valeria Cuadrado, Andrés Camilo Delgado-Reyes
{"title":"\"What I do not see and others see in me\": mutual aid for suicide recovery in Colombia.","authors":"Felipe Agudelo-Hernández, Lina Valeria Cuadrado, Andrés Camilo Delgado-Reyes","doi":"10.1080/17482631.2025.2461719","DOIUrl":"10.1080/17482631.2025.2461719","url":null,"abstract":"<p><strong>Purpose: </strong>In response to the rise in suicidal behaviour and the strategies to address it, community actions represent a comprehensive approach to the factors influencing this situation. The aim of this study was to analyse the influence of mutual support on the recovery of individuals who experienced suicidal behaviour and attended community mental health groups.</p><p><strong>Methods: </strong>A qualitative study was conducted in 2023. Focus groups were used as a data collection technique, followed by thematic analysis. Participants were selected based on convenience from mutual support groups registered with the Ministry of Health of Colombia.</p><p><strong>Results: </strong>Two main themes were identified in the thematic analysis. The first theme, \"Own Reasons Through Others,\" was composed of categories such as \"What Others See in Me\" and \"The Importance of Being in the Same Boat.\" The second theme was titled \"The Community as a Space for Suicide Prevention,\" with categories including \"Human Rights for Recovery\" and \"What We Can Achieve Together.\"</p><p><strong>Conclusions: </strong>Pluralism, understood as the integration of diverse perspectives, is crucial for addressing complex phenomena such as mental health and community interventions. The study demonstrates how mutual aid groups and their members can generate collective and policy actions effective for managing suicidal behaviour.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2461719"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789213/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143076547","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of insomnia among older people living in nursing homes A qualitative study. 老年人在养老院的失眠经历:一项定性研究。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-03-19 DOI: 10.1080/17482631.2025.2476788
Eva Hjort Telhede
{"title":"Experiences of insomnia among older people living in nursing homes A qualitative study.","authors":"Eva Hjort Telhede","doi":"10.1080/17482631.2025.2476788","DOIUrl":"10.1080/17482631.2025.2476788","url":null,"abstract":"<p><strong>Purpose: </strong>The study aimed to explore older people's experiences of insomnia in nursing homes.</p><p><strong>Method: </strong>This qualitative study used an inductive approach with semi-structured interviews involving 19 older people (aged 67-101 years) from nine nursing homes in southwestern Sweden. The older people were purposively selected based on insomnia criteria according to the International Classification of Diseases (ICD-10, G47.0) and cognitive competence according to the Standardized Mini-Mental State Examination (S-MMSE). The interviews were analysed using qualitative content analysis.</p><p><strong>Results: </strong>Two categories were identified: Valuing good sleep and Disruptive influence on sleep, with the subcategories of internal and external disturbances. Older people expressed that sleep was crucial to their well-being, and poor sleep quality negatively influenced their mood and physical health. They experienced internal disturbances, such as anxiety and physical discomfort, as causing sleep disturbances, but also external aspects that included environmental disturbances, reduced activity levels, loneliness, and worry about which nursing staff was on duty.</p><p><strong>Conclusion: </strong>This study highlights the critical role of sleep in maintaining energy, coping with daily life, and ensuring overall well-being for older people in nursing homes.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2476788"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11926896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143665350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Measuring health-related quality of life: a qualitative study of mental health patients' experiences of impacts of mental health issues. 测量与健康相关的生活质量:对心理健康患者对心理健康问题影响的体验的定性研究。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-20 DOI: 10.1080/17482631.2025.2465209
Yeujin Ki, Andrew Athan Mcaleavey, Janne-Merete Torset Øien, Tron Anders Moger, Christian Moltu
{"title":"Measuring health-related quality of life: a qualitative study of mental health patients' experiences of impacts of mental health issues.","authors":"Yeujin Ki, Andrew Athan Mcaleavey, Janne-Merete Torset Øien, Tron Anders Moger, Christian Moltu","doi":"10.1080/17482631.2025.2465209","DOIUrl":"10.1080/17482631.2025.2465209","url":null,"abstract":"<p><strong>Background: </strong>Existing instruments used in health economics to measure health-related quality of life (HRQoL) have been criticized as they might not sufficiently reflect the HRQoL impacts of mental health problems. Our study investigates mental health patients' experiences of such impacts with a view to identifying potential domains that conventional HRQoL instruments might overlook.</p><p><strong>Methods: </strong>Semi-structured, in-depth interviews were conducted with 16 participants receiving specialist mental health services in Norway. Interviews were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>Five main themes were identified describing mental disorders' impact on patients' HRQoL: \"Reduced functioning impacts\", \"Mental process impacts\", \"Social impacts\", \"Fragility\", and \"Sleep difficulty\". While some overlap with conventional HRQoL instruments exists, distinct dimensions were identified, notably, \"Fragility,\" encompassing unpredictability and inflexibility in daily life.</p><p><strong>Conclusions: </strong>The findings suggest that comprehensive assessment should consider broader mental health impacts beyond anxiety and depression, including cognitive difficulties, obstructive self-perception, and feelings of meaninglessness. Additionally, the impact of unpredictability on daily functioning and the role of sleep difficulties should be incorporated. These insights can inform the development of more patient-centred HRQoL measures for mental health populations, potentially leading to more accurate evaluation of mental health interventions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2465209"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11843662/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143459920","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring digital health: a qualitative study on adults' experiences with health apps and wearables. 探索数字健康:一项关于成年人使用健康应用程序和可穿戴设备体验的定性研究。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-26 DOI: 10.1080/17482631.2024.2447096
Gaia Leuzzi, Filippo Recenti, Benedetto Giardulli, Aldo Scafoglieri, Marco Testa
{"title":"Exploring digital health: a qualitative study on adults' experiences with health apps and wearables.","authors":"Gaia Leuzzi, Filippo Recenti, Benedetto Giardulli, Aldo Scafoglieri, Marco Testa","doi":"10.1080/17482631.2024.2447096","DOIUrl":"https://doi.org/10.1080/17482631.2024.2447096","url":null,"abstract":"<p><strong>Purpose: </strong>From an active ageing perspective, investigating how adults use apps and wearables for health purposes might improve well-being strategies supported by widely adopted technologies. This study investigated adults' perceptions of using apps and wearables for health purposes.</p><p><strong>Methods: </strong>A qualitative interview study was conducted. Adults (+18) using an app/wearable to monitor at least one health variable (e.g. physical activity and diet) were eligible. Transcriptions were analysed using the Reflexive Thematic Analysis.</p><p><strong>Results: </strong>Nineteen participants (34.3 ± 14.5 years; men/women: 8/11) joined the study and from their transcriptions 5 themes were created: 1) Easy and accurate monitoring of health: balancing users' needs and technological challenges; 2) Self-improvement and motivation: usefulness of rewarding behaviours and gamification towards achievements; 3) Requiring personalized apps and wearables: aesthetics and wearability; 4) Beyond simple monitoring: prevention and care throughout daily life; 5) Awareness of potentially dangerous digital data world: from distress to fixation.</p><p><strong>Conclusions: </strong>Apps and wearables were highly valued by our participants for effectively managing and enhancing their health and sports performance while ensuring education, motivation, ease of use, safety, and prevention. However, issues such as privacy concerns, wearability, and lack of integration need to be addressed to improve adoption, enhance usability and support active ageing initiatives.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2447096"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142900354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Whenever I think about this, I feel like killing myself, because life has no meaning to me anymore": an exploration of the consequences of rape victimization for men. “每当我想到这一点,我就想自杀,因为生活对我来说已经没有意义了”:这是对强奸受害者对男性后果的探索。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-11 DOI: 10.1080/17482631.2024.2437905
Siyabulela Eric Mgolozeli, Sinegugu Evidence Duma
{"title":"<i>\"Whenever I think about this, I feel like killing myself, because life has no meaning to me anymore\"</i>: an exploration of the consequences of rape victimization for men.","authors":"Siyabulela Eric Mgolozeli, Sinegugu Evidence Duma","doi":"10.1080/17482631.2024.2437905","DOIUrl":"10.1080/17482631.2024.2437905","url":null,"abstract":"<p><strong>Background and purpose: </strong>Rape is one of the most common human violations, with devastating consequences for the victims and their families. Although this scourge affects everyone, regardless of gender, studies on rape victimization have largely focused on women and children as the victims. Studies on rape victimization of men are therefore limited and little is known about the consequences of rape victimization for men. Accordingly, this study sought to fill this gap by exploring the consequences of rape victimization for men in the City of Tshwane Metropolitan Municipality, Gauteng Province, South Africa.</p><p><strong>Method: </strong>A qualitative research approach underpinned by interpretative phenomenological analysis (IPA) was used to collect data from a purposive sample of eleven participants. Data was collected using semi-structured face-to-face individual interviews and analysed using the IPA framework. Trustworthiness and validity of study findings was ensured by following Lincoln and Guba criteria, and the study followed ethical principles outlined in the Declaration of Helsinki on conducting research with human participants.</p><p><strong>Results: </strong>Six superordinate themes emerged from the data as consequences of rape victimization for men, namely physical, psychological, emotional, social, spiritual and financial consequences.</p><p><strong>Conclusion: </strong>The study provides a comprehensive description of the effects of rape on the overall well-being of men. The findings underscore the need for the development of holistic clinical care management guidelines and psychosocial interventions that are specifically tailored for men post-rape. Furthermore, longitudinal studies on the long-term impact of rape on men should be conducted.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2437905"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11770861/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142808310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychiatric spaces: a phenomenological case study of staff perspectives after relocation to a new mental health facility. 精神病学空间:搬迁到新的精神卫生设施后工作人员观点的现象学案例研究。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-04-01 DOI: 10.1080/17482631.2025.2485697
Anne Hagerup, Carina Ribe Fernee, Helle Wijk, Göran Lindahl, Sepideh Olausson
{"title":"Psychiatric spaces: a phenomenological case study of staff perspectives after relocation to a new mental health facility.","authors":"Anne Hagerup, Carina Ribe Fernee, Helle Wijk, Göran Lindahl, Sepideh Olausson","doi":"10.1080/17482631.2025.2485697","DOIUrl":"10.1080/17482631.2025.2485697","url":null,"abstract":"<p><strong>Introduction: </strong>Patients in mental health care rely on staff for their well-being, security, and quality of treatment. However, staff's perspective of the physical environment where care takes place remains underexplored. Their insights are crucial to understanding how the environment impacts the quality of care. Therefore, the aim of this study is to explore the meanings of the physical environment for inpatient care according to staff shortly after relocation to a new mental health facility.</p><p><strong>Methods: </strong>The study employed a phenomenological approach and focus group interviews with 20 staff working in a newly built mental health facility. Data were analysed using van Manen's existentials and guided by the theory of affordances.</p><p><strong>Results: </strong>The primary findings were as follows: (a) attempting to provide a therapeutic atmosphere, (b) design as symbolism, (c) altering the physical environment means altering time, (d) offering spaces for connection and communication, and (e) embodying the new mental health facility.</p><p><strong>Conclusion: </strong>The findings indicate that regardless of whether affordances are actualized, opportunities and obstacles in the hospital environment impact the staff's ability to provide inpatient care according to their standards. Conflict arose due to obstacles inherent in the organization and structure of the new mental health facility that limited opportunities to utilize possible affordances.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2485697"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11963181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143755780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correction. 修正。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-04-08 DOI: 10.1080/17482631.2025.2489263
{"title":"Correction.","authors":"","doi":"10.1080/17482631.2025.2489263","DOIUrl":"https://doi.org/10.1080/17482631.2025.2489263","url":null,"abstract":"","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2489263"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143804687","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Aspects of dignity in family caregivers of persons suffering from multiple sclerosis. 多发性硬化症患者的家庭照顾者的尊严方面。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-19 DOI: 10.1080/17482631.2025.2468047
Dagfinn Nåden, Lillemor Lindwall, Vibeke Lohne
{"title":"Aspects of dignity in family caregivers of persons suffering from multiple sclerosis.","authors":"Dagfinn Nåden, Lillemor Lindwall, Vibeke Lohne","doi":"10.1080/17482631.2025.2468047","DOIUrl":"10.1080/17482631.2025.2468047","url":null,"abstract":"<p><strong>Background: </strong>The focus of this study is on preserved dignity and dignity violation of family caregivers of persons suffering from multiple sclerosis.</p><p><strong>Aim: </strong>The aim of the study was to get a deeper understanding of how family caregivers of persons suffering from multiple sclerosis perceive that their dignity is preserved or deprived.</p><p><strong>Methodology: </strong>A hermeneutic approach was employed.</p><p><strong>Research methods: </strong>The authors conducted research interviews in the form of conversations with eight family caregivers.</p><p><strong>Analysis and interpretation methods: </strong>Our compass and guide in the interpretation process were Gadamer's hermeneutics and the pursuit of the study' purpose.</p><p><strong>Ethical considerations: </strong>The participants were informed of the possibility of being able to withdraw from the study whenever they wished.</p><p><strong>Results: </strong>Preserved dignity through: Doing good for others; Compassion with and bearing burdens of others; Being reconciled with life; Violated dignity caused by insensitive health care professionals, public authorities, health care systems and friends.</p><p><strong>Conclusion: </strong>The family caregivers preserve their dignity by doing good for their loved ones, bearing their burdens and when they become reconciled with life. Their dignity is violated when being met by insensitive healthcare professionals.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2468047"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11841095/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143450857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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