International Journal of Qualitative Studies on Health and Well-Being最新文献

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Ethical challenges from a problem-solving intervention with workplace involvement: a qualitative study among employees with common mental disorders, first-line managers, and rehabilitation coordinators. 有工作场所参与的问题解决干预所带来的伦理挑战:对患有常见精神障碍的员工、一线管理人员和康复协调员进行的定性研究。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-02-07 DOI: 10.1080/17482631.2024.2308674
Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg
{"title":"Ethical challenges from a problem-solving intervention with workplace involvement: a qualitative study among employees with common mental disorders, first-line managers, and rehabilitation coordinators.","authors":"Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg","doi":"10.1080/17482631.2024.2308674","DOIUrl":"10.1080/17482631.2024.2308674","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore ethical challenges potentially arising from a problem-solving intervention with workplace involvement (PSI-WPI) in primary health care (with first-line manager involvement) for employees on sickness absence due to common mental disorders.</p><p><strong>Methods: </strong>A qualitative design guided by the theoretical framework for systematic identification of ethical aspects of healthcare technologies. Semi-structured interviews were performed with coordinators (<i>n</i> = 6), employees (<i>n</i> = 13), and first-line managers (<i>n</i> = 8). Reflexive thematic analysis was used to analyse and interpret themes.</p><p><strong>Results: </strong>A main theme was identified \"the workplace and healthcare hold different organizational value logics\" and four sub-themes: \"the PSI-WPI challenged the organizational goals and values of the workplace and healthcare\", \"the PSI-WPI challenged organizational values on fairness\", \"the PSI-WPI challenged the professional roles of first-line managers and rehabilitation coordinators\" and \"the PSI-WPI introduced a need for the employee to juggle the employee and patient roles\".</p><p><strong>Conclusion: </strong>Different organizational value logics, values, and goals can introduce ethical challenges. We advise clarifying stakeholders' roles and preparing employees and managers for the return to work process by providing sufficient information. The ethical challenges and suggested measures to minimize them, should be considered when planning return to work interventions that involve several stakeholders.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851822/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia. 从 10-17 岁急性淋巴细胞白血病患儿的角度看恐惧、应对和支持。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-02-07 DOI: 10.1080/17482631.2024.2310147
Ingela Leibring, Annica Kihlgren, Agneta Anderzén Carlsson
{"title":"Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia.","authors":"Ingela Leibring, Annica Kihlgren, Agneta Anderzén Carlsson","doi":"10.1080/17482631.2024.2310147","DOIUrl":"10.1080/17482631.2024.2310147","url":null,"abstract":"<p><strong>Purpose: </strong>To describe experiences of fear, coping, and support in 10-17-year-old children under treatment for acute lymphoblastic leukaemia (ALL).</p><p><strong>Methods: </strong>A longitudinal descriptive qualitative design was adopted. Ten children participated in one to three interviews each (24 interviews in all). Interviews were analysed using a matrix-based qualitative method.</p><p><strong>Results: </strong>The variety of fears described related to <i>uncertainty, pain and medical procedures, bodily changes and loss of control</i>, <i>complications</i>, <i>professionals' attitudes</i>, <i>affected school results</i>, and <i>social isolation</i>. Children used various strategies to deal with fear: some more general, to cope with the whole situation, and others more related to specific events such as treatment and tests. The most reported strategies we labelled <i>Accepting the situation</i>, <i>Positive thinking</i>, and <i>Being an active agent</i>. Less favourable strategies were also reported. Health care professionals, families, and friends offered valuable, but different kinds of, support.</p><p><strong>Conclusions: </strong>Children aged 10 to 17 undergoing treatment for ALL experience various fears. Each experience is individual and changes over time, but there are common patterns. Most children used problem-solving or emotional-regulation strategies, but withdrawal was also reported. Even children who can deal with fear need support from their health care professionals, families, and friends.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851796/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effect of HIV on patients' lives: a phenomenological qualitative study. 艾滋病对患者生活的影响:一项现象学定性研究。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-02-10 DOI: 10.1080/17482631.2024.2315634
Naif S Alzahrani, Abdulaziz Mofdy Almarwani
{"title":"The effect of HIV on patients' lives: a phenomenological qualitative study.","authors":"Naif S Alzahrani, Abdulaziz Mofdy Almarwani","doi":"10.1080/17482631.2024.2315634","DOIUrl":"10.1080/17482631.2024.2315634","url":null,"abstract":"<p><strong>Introduction: </strong>Human immunodeficiency virus (HIV) infection poses a significant threat to the immune system, compromising the body's ability to combat diseases and infections. The Ministry of Health in Saudi Arabia reported an HIV incidence rate of 3 cases per 10,000 individuals. This study aimed to gain insight into the lived experience of Saudi patients living with HIV.</p><p><strong>Methods: </strong>Employing a qualitative phenomenological approach, this study conducted in-depth interviews with 16 HIV patients (10 men, 6 women) between January 2023 and May 2023.</p><p><strong>Results: </strong>Thematic data analysis highlighted three overarching themes and four subthemes. \"Fear of the Future\" encompassed subthemes including the fear of infecting a family member, fear of marriage, fear of employment recruitment, and fear of scandals. \"Hopelessness\" reflected the profound emotional state experienced by patients. \"Overcoming Adversity\" captured the resilience and strength demonstrated by individuals facing the challenges of living with HIV.</p><p><strong>Conclusion: </strong>Saudi patients diagnosed with HIV encounter numerous obstacles in their daily lives. The fear of the future, including concerns such as infecting family members, marriage prospects, employment opportunities, and potential social repercussions, significantly impacts their overall well-being. By understanding the lived experience of HIV patients in Saudi Arabia, healthcare providers and policymakers can better support and enhance the quality of life for this population.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10860465/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139716665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the meaning of a good life for older widows with extensive need of care: a qualitative in-home interview study. 探索需要大量照顾的老年丧偶妇女美好生活的意义:一项居家定性访谈研究。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-03-03 DOI: 10.1080/17482631.2024.2322757
Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark
{"title":"Exploring the meaning of a good life for older widows with extensive need of care: a qualitative in-home interview study.","authors":"Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark","doi":"10.1080/17482631.2024.2322757","DOIUrl":"10.1080/17482631.2024.2322757","url":null,"abstract":"<p><strong>Introduction: </strong>Studies of older women's life transitions is rare but gains relevance as the aging population, with older women as the majority, expands.</p><p><strong>Purpose: </strong>To explore the meaning of a good life for older widows with extensive home care needs.</p><p><strong>Materials and methods: </strong>Semi-structured interviews were carried out with eleven women, aged 80 and over (82-95 years, mean 90) residing at home with extensive care needs (≥4 daily sessions, averaging 2.5-6 hours, mean 3). Data were analysed by reflexive thematic analysis.</p><p><strong>Results: </strong>The theme \"This Day in My Home, the frame of my life\" reflects the women's experience of a good life. A good day imbued them with hope, trust and security, carrying them forward with the assurance that night would usher in a new day. However, there were moments when life was merely about navigating daily challenges. During such days, the women felt trapped in time, unsafe and lonely.</p><p><strong>Conclusion: </strong>A day at home may seem static, yet it mirrors life's dynamism, evolving with shifting circumstances. Older widows navigate challenges while maintaining their sense of self, independence, and connection to home. These findings have implications for aged care, recognizing the multifaceted aspects of life and the centrality of home.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911179/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Caring touch as communication in intensive care nursing: a qualitative study. 重症监护护理中作为交流的关爱抚摸:一项定性研究。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-09 DOI: 10.1080/17482631.2024.2348891
Lise Sandnes, Lisbeth Uhrenfeldt
{"title":"Caring touch as communication in intensive care nursing: a qualitative study.","authors":"Lise Sandnes, Lisbeth Uhrenfeldt","doi":"10.1080/17482631.2024.2348891","DOIUrl":"10.1080/17482631.2024.2348891","url":null,"abstract":"<p><strong>Purpose: </strong>This article describes intensive care nurses` experiences of using communicative caring touch as stroking the patient`s cheek or holding his hand. Our research question: \"What do intensive care nurses communicate through caring touch?\"</p><p><strong>Methods: </strong>In this qualitative hermeneutically based study data from two intensive care units at Norwegian hospitals are analysed. Eight specialist nurses shared experiences through individual, semi-structured interviews.</p><p><strong>Results: </strong>The main theme, Communicating safety and presence has four sub-themes: Amplified presence, Communicating security, trust and care, Creating and confirming relationships and Communicating openness to a deeper conversation. Communicative caring touch is offered from the nurse due to the patient`s needs. Caring touch communicates person-centred care, invites to relationship while respecting the patient's dignity as a fellow human being. Caring touch conveys a human initiative in the highly technology environment.</p><p><strong>Conclusion: </strong>Caring touch is the silent way to communicate care, hope, strength and humanity to critical sick patients. This article provides evidence for a common, but poorly described phenomenon in intensive care nursing.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11086036/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140899699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"I've had constant fears that I'll get cancer": the construction and experience of medical intervention on intersex bodies to reduce cancer risk. "我一直担心自己会得癌症":为降低癌症风险而对双性人身体进行医疗干预的构造和经历。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-26 DOI: 10.1080/17482631.2024.2356924
Jane M Ussher, Morgan Carpenter, Rosalie Power, Samantha Ryan, Kimberley Allison, Bonnie Hart, Alexandra Hawkey, Janette Perz
{"title":"\"I've had constant fears that I'll get cancer\": the construction and experience of medical intervention on intersex bodies to reduce cancer risk.","authors":"Jane M Ussher, Morgan Carpenter, Rosalie Power, Samantha Ryan, Kimberley Allison, Bonnie Hart, Alexandra Hawkey, Janette Perz","doi":"10.1080/17482631.2024.2356924","DOIUrl":"10.1080/17482631.2024.2356924","url":null,"abstract":"<p><strong>Purpose: </strong>This paper examines the subjective experience of medical interventions on intersex bodies to reduce cancer risk.</p><p><strong>Methods: </strong>Twenty-five individuals with intersex variations took part in semi-structured interviews, analysed through thematic discourse analysis.</p><p><strong>Results: </strong>Intersex bodies were positioned as inherently sick and in need of modification, with cancer risk legitimating surgical and hormonal intervention. This resulted in embodied shame, with negative impacts on fertility and sexual wellbeing. However, many participants resisted discourses of bio-pathologisation and embraced intersex status. Some medical interventions, such as HRT, were perceived to have increased the risk of cancer. Absence of informed consent, and lack of information about intersex status and the consequences of medical intervention, was positioned as a human rights violation. This was compounded by ongoing medical mismanagement, including health care professional lack of understanding of intersex variations, and the objectification or stigmatization of intersex people within healthcare. The consequence was non-disclosure of intersex status in health contexts and lack of trust in health care professionals.</p><p><strong>Conclusions: </strong>The legitimacy of poorly-evidenced cancer risk discourses to justify medical intervention on intersex bodies needs to be challenged. Healthcare practitioners need to be provided with education and training about cultural safety practices for working with intersex people.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11134048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141155937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Surviving COVID-19: patients' experiences of care and path to recovery. COVID-19 的幸存者:病人的护理经验和康复之路。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-01-07 DOI: 10.1080/17482631.2024.2301953
Rakel Eklund, Lisa Hjelmfors, Sophia Nyquist, Josefin Sveen, Michael Hultström, Miklos Lipcsey, Robert Frithiof, Ewa Wallin, Ing-Marie Larsson, Filip K Arnberg, Lotti Orwelius
{"title":"Surviving COVID-19: patients' experiences of care and path to recovery.","authors":"Rakel Eklund, Lisa Hjelmfors, Sophia Nyquist, Josefin Sveen, Michael Hultström, Miklos Lipcsey, Robert Frithiof, Ewa Wallin, Ing-Marie Larsson, Filip K Arnberg, Lotti Orwelius","doi":"10.1080/17482631.2024.2301953","DOIUrl":"10.1080/17482631.2024.2301953","url":null,"abstract":"<p><strong>Purpose: </strong>To examine patients' experiences of receiving care on an ICU for COVID-19 and the subsequent rehabilitation process.</p><p><strong>Methods: </strong>An explorative and inductive design was used. Participants were recruited from two university hospitals in Sweden. Patients admitted to the ICU due to COVID-19 from March 2020 to April 2021, who enrolled in the ICU follow-up, and understood and spoke Swedish were invited to participate. In total, 20 participants completed a semi-structured interview, of whom 18 were included in the thematic analysis.</p><p><strong>Results: </strong>The analysis resulted in two themes: \"An isolated world with silver linings\" and \"Recovery in the wake of the pandemic\". Findings show that patients cared for on an ICU for COVID-19 during the pandemic felt safe but experienced a sense of vulnerability. After discharge, physical rehabilitation was a slow process with frustrating day-to-day fluctuations. Mentally, participants felt isolated, fatigued, and emotionally sensitive. Patients reported that love and support from family and friends were crucial for the recovery process.</p><p><strong>Conclusions: </strong>This study highlights the challenges of recovering from COVID-19, emphasizing the importance of continued support from health care, public services, family and friends. It provides important insights into patients' experiences and can inform future healthcare strategies and policies.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10773674/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139111256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using a co-design methodological approach to optimize perioperative nursing care for older adult patients from ethnically diverse backgrounds: a study protocol. 使用共同设计方法优化对来自不同种族背景的老年患者的围手术期护理:研究方案。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-06 DOI: 10.1080/17482631.2024.2349438
Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre
{"title":"Using a co-design methodological approach to optimize perioperative nursing care for older adult patients from ethnically diverse backgrounds: a study protocol.","authors":"Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre","doi":"10.1080/17482631.2024.2349438","DOIUrl":"10.1080/17482631.2024.2349438","url":null,"abstract":"<p><p>This article outlines the use of a co-design methodological approach aimed at optimizing perioperative care experiences for ethnically diverse older adults and their family carers. The research involved three phases. In Phase 1, the foundation was established with the formation of a Core Advisory Group comprising key informants, including health consumers. This initial phase focused on forming relationships and conducting a literature review to inform subsequent stages of the research. Phase 2 progressed to data collection, where a qualitative survey on perioperative experiences was conducted. Semi-structured interviews were held with patients, their family carers, and perioperative staff. Phase 3 advanced the co-design process through a workshop involving patients, family carers, perioperative staff, and key stakeholders. Workshop participants collaborated on potential practice changes, proposing strategies for future clinical implementation. While data analysis and reporting for Phases 2 and 3 are forthcoming, the continued involvement of the Core Advisory Group ensures ongoing consensus-building on health consumer needs. This methodology article adopts a prospective stance, with findings to be presented in subsequent scholarly works. Use of this methodology will help to determine how the use of a co-design approach may impact the development of culturally responsive perioperative nursing care for those from ethnically diverse communities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11075656/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140858900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Being between life and death-experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care. 生死之间--COVID-19幸存者在接受重症监护治疗12至18个月后的经历。
IF 2.1 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-09-05 DOI: 10.1080/17482631.2024.2398223
Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr
{"title":"Being between life and death-experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care.","authors":"Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr","doi":"10.1080/17482631.2024.2398223","DOIUrl":"10.1080/17482631.2024.2398223","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge.</p><p><strong>Methods: </strong>This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis.</p><p><strong>Findings: </strong>The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with staff that were stressed; however, the efforts of the staff during this strenuous circumstance were still positively acknowledged. Difficulties to stay in touch with family and friends due to visiting restrictions affected the patient's psychosocial wellbeing.</p><p><strong>Conclusion: </strong>Contracting COVID-19 in the beginning of the pandemic was a stressful event. Being seen and heard is of importance as it has the possibility to create a feeling of security and being cared for despite unclarities about treatment and illness trajectory. Accordingly, healthcare staff play an important role for the psychosocial wellbeing of patients treated for COVID-19.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11382733/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Live music in the intensive care unit - a beautiful experience. 重症监护室里的现场音乐--一次美妙的体验。
IF 1.8 4区 医学
International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-02-29 DOI: 10.1080/17482631.2024.2322755
Pia Dreyer, Linette Thorn, Trine Højfeldt Lund, Margrethe Langer Bro
{"title":"Live music in the intensive care unit - a beautiful experience.","authors":"Pia Dreyer, Linette Thorn, Trine Højfeldt Lund, Margrethe Langer Bro","doi":"10.1080/17482631.2024.2322755","DOIUrl":"10.1080/17482631.2024.2322755","url":null,"abstract":"<p><strong>Background: </strong>The growing number of lightly or non-sedated patients who are critically ill means that more patients experience the noisy and stressful environment. Live music may create positive and meaningful moments.</p><p><strong>Purpose: </strong>To explore non-sedated patients' experiences of patient-tailored live music interventions in the intensive care unit.</p><p><strong>Design: </strong>A qualitative study using a phenomenological-hermeneutic approach. Data were collected at two intensive care units from September 2019 to February 2020 exploring 18 live music interventions performed by music students from The Royal Academy of Music, Aarhus, Denmark.</p><p><strong>Methods: </strong>Observations of live music interventions followed by patient interviews. All data together were analysed using Ricoeur's theory of interpretation. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was used.</p><p><strong>Results: </strong>Five themes emerged: 1) A break from everyday life, 2) A room with beautiful sounds and emotions, 3) Too tired to participate, 4) Knowing the music makes it meaningful and 5) A calm and beautiful moment.</p><p><strong>Conclusion: </strong>Patient-tailored live music to awake patients is both feasible and acceptable and perceived as a break from every-day life in the ICU.</p><p><strong>Implications for practice: </strong>Supporting health and well-being by bringing a humanizing resource into the intensive care setting for patients and nurses to enjoy.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10906112/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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