Akiko Kadoma, Mari Kato, Mami Yamamoto, Midori Asano, Koji Shiraki
{"title":"How do dialogical group sessions work for mothers of young children with parenting challenges in Japan?","authors":"Akiko Kadoma, Mari Kato, Mami Yamamoto, Midori Asano, Koji Shiraki","doi":"10.1080/17482631.2024.2427433","DOIUrl":"10.1080/17482631.2024.2427433","url":null,"abstract":"<p><strong>Purpose: </strong>Parenting support is a pressing issue in Japan. The application of open dialogue (OD)-an alternative treatment for mental illnesses-to parenting support has generated considerable interest. This study aimed to describe the participants' experiences shared during a dialogic group session based on OD principles for mothers of young children facing parenting challenges.</p><p><strong>Methods: </strong>Five mothers with parenting concerns participated in five continuing group sessions over a half-year at a parenting support centre in Japan. The data comprised participants' utterances and feedback in each session, along with semi-structured individual interviews conducted after all sessions.</p><p><strong>Results: </strong>Qualitative descriptive analysis revealed six themes: \"From initial surprise to growing ease with dialogue without a theme,\" \"Talking and listening without interruption or judgement,\" \"Reflections by the facilitators: insightful or uncomfortable?,\" \"Learning to talk about difficult things,\" \"Offering empathic advice without imposing opinions,\" and \"Multiple voices helped deepen their thoughts and reflections.\"</p><p><strong>Conclusions: </strong>The participants discovered how to listen to others without judgement and verbalize thoughts that would otherwise have remained unvoiced. The sessions also enabled them to understand their families and themselves better. The dialogical group sessions demonstrated new possibilities for more open, mutually supportive communication.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2427433"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562024/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142632381","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rakel Eklund, Lisa Hjelmfors, Sophia Nyquist, Josefin Sveen, Michael Hultström, Miklos Lipcsey, Robert Frithiof, Ewa Wallin, Ing-Marie Larsson, Filip K Arnberg, Lotti Orwelius
{"title":"Surviving COVID-19: patients' experiences of care and path to recovery.","authors":"Rakel Eklund, Lisa Hjelmfors, Sophia Nyquist, Josefin Sveen, Michael Hultström, Miklos Lipcsey, Robert Frithiof, Ewa Wallin, Ing-Marie Larsson, Filip K Arnberg, Lotti Orwelius","doi":"10.1080/17482631.2024.2301953","DOIUrl":"10.1080/17482631.2024.2301953","url":null,"abstract":"<p><strong>Purpose: </strong>To examine patients' experiences of receiving care on an ICU for COVID-19 and the subsequent rehabilitation process.</p><p><strong>Methods: </strong>An explorative and inductive design was used. Participants were recruited from two university hospitals in Sweden. Patients admitted to the ICU due to COVID-19 from March 2020 to April 2021, who enrolled in the ICU follow-up, and understood and spoke Swedish were invited to participate. In total, 20 participants completed a semi-structured interview, of whom 18 were included in the thematic analysis.</p><p><strong>Results: </strong>The analysis resulted in two themes: \"An isolated world with silver linings\" and \"Recovery in the wake of the pandemic\". Findings show that patients cared for on an ICU for COVID-19 during the pandemic felt safe but experienced a sense of vulnerability. After discharge, physical rehabilitation was a slow process with frustrating day-to-day fluctuations. Mentally, participants felt isolated, fatigued, and emotionally sensitive. Patients reported that love and support from family and friends were crucial for the recovery process.</p><p><strong>Conclusions: </strong>This study highlights the challenges of recovering from COVID-19, emphasizing the importance of continued support from health care, public services, family and friends. It provides important insights into patients' experiences and can inform future healthcare strategies and policies.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2301953"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10773674/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139111256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The effect of HIV on patients' lives: a phenomenological qualitative study.","authors":"Naif S Alzahrani, Abdulaziz Mofdy Almarwani","doi":"10.1080/17482631.2024.2315634","DOIUrl":"10.1080/17482631.2024.2315634","url":null,"abstract":"<p><strong>Introduction: </strong>Human immunodeficiency virus (HIV) infection poses a significant threat to the immune system, compromising the body's ability to combat diseases and infections. The Ministry of Health in Saudi Arabia reported an HIV incidence rate of 3 cases per 10,000 individuals. This study aimed to gain insight into the lived experience of Saudi patients living with HIV.</p><p><strong>Methods: </strong>Employing a qualitative phenomenological approach, this study conducted in-depth interviews with 16 HIV patients (10 men, 6 women) between January 2023 and May 2023.</p><p><strong>Results: </strong>Thematic data analysis highlighted three overarching themes and four subthemes. \"Fear of the Future\" encompassed subthemes including the fear of infecting a family member, fear of marriage, fear of employment recruitment, and fear of scandals. \"Hopelessness\" reflected the profound emotional state experienced by patients. \"Overcoming Adversity\" captured the resilience and strength demonstrated by individuals facing the challenges of living with HIV.</p><p><strong>Conclusion: </strong>Saudi patients diagnosed with HIV encounter numerous obstacles in their daily lives. The fear of the future, including concerns such as infecting family members, marriage prospects, employment opportunities, and potential social repercussions, significantly impacts their overall well-being. By understanding the lived experience of HIV patients in Saudi Arabia, healthcare providers and policymakers can better support and enhance the quality of life for this population.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2315634"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10860465/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139716665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark
{"title":"Exploring the meaning of a good life for older widows with extensive need of care: a qualitative in-home interview study.","authors":"Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark","doi":"10.1080/17482631.2024.2322757","DOIUrl":"10.1080/17482631.2024.2322757","url":null,"abstract":"<p><strong>Introduction: </strong>Studies of older women's life transitions is rare but gains relevance as the aging population, with older women as the majority, expands.</p><p><strong>Purpose: </strong>To explore the meaning of a good life for older widows with extensive home care needs.</p><p><strong>Materials and methods: </strong>Semi-structured interviews were carried out with eleven women, aged 80 and over (82-95 years, mean 90) residing at home with extensive care needs (≥4 daily sessions, averaging 2.5-6 hours, mean 3). Data were analysed by reflexive thematic analysis.</p><p><strong>Results: </strong>The theme \"This Day in My Home, the frame of my life\" reflects the women's experience of a good life. A good day imbued them with hope, trust and security, carrying them forward with the assurance that night would usher in a new day. However, there were moments when life was merely about navigating daily challenges. During such days, the women felt trapped in time, unsafe and lonely.</p><p><strong>Conclusion: </strong>A day at home may seem static, yet it mirrors life's dynamism, evolving with shifting circumstances. Older widows navigate challenges while maintaining their sense of self, independence, and connection to home. These findings have implications for aged care, recognizing the multifaceted aspects of life and the centrality of home.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2322757"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911179/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr
{"title":"Being between life and death-experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care.","authors":"Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr","doi":"10.1080/17482631.2024.2398223","DOIUrl":"10.1080/17482631.2024.2398223","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge.</p><p><strong>Methods: </strong>This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis.</p><p><strong>Findings: </strong>The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with staff that were stressed; however, the efforts of the staff during this strenuous circumstance were still positively acknowledged. Difficulties to stay in touch with family and friends due to visiting restrictions affected the patient's psychosocial wellbeing.</p><p><strong>Conclusion: </strong>Contracting COVID-19 in the beginning of the pandemic was a stressful event. Being seen and heard is of importance as it has the possibility to create a feeling of security and being cared for despite unclarities about treatment and illness trajectory. Accordingly, healthcare staff play an important role for the psychosocial wellbeing of patients treated for COVID-19.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2398223"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11382733/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond the first week: sustaining the feeling of social inclusion and sense of belonging for students.","authors":"Arnfrid Farbu Pinto, Nina Petersen Reed, Odd Morten Mjøen","doi":"10.1080/17482631.2024.2421032","DOIUrl":"10.1080/17482631.2024.2421032","url":null,"abstract":"<p><strong>Purpose: </strong>Promoting inclusive student communities and a sense of belonging is essential for university students' well-being and mental health. Our aim in this study was to explore how universities can enhance student well-being by facilitating interactions that contribute to a sense of belonging within the university environment.</p><p><strong>Methods: </strong>Through thematic analysis of 309 written narratives collected from students at the Norwegian University of Science and Technology (NTNU), we explored significant events related to their studies, social lives, or personal experiences.</p><p><strong>Results: </strong>Introduction Week is important for students' well-being, providing a key opportunity to form initial social connections and foster a sense of belonging. However, its impact is inconsistent, and building lasting relationships requires continued effort throughout the academic journey. Recognizing and addressing potential challenges when expectations are unmet is essential for enhancing student belonging.</p><p><strong>Conclusions: </strong>Our findings suggest that while Introduction Week plays an essential role in breaking social barriers and ensuring immediate social inclusion, the greatest challenge lies in establishing structures that facilitate belonging and relationships throughout the entire period of studies. Recognizing the diverse needs of students, universities should offer a variety of platforms for engagement and connection to enhance student well-being.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2421032"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11514387/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluating poor working conditions and health problems faced by carpet weavers in Kashmir: a qualitative analysis.","authors":"Tanveer Ahmad Khan, Shaista Qayum","doi":"10.1080/17482631.2024.2421575","DOIUrl":"10.1080/17482631.2024.2421575","url":null,"abstract":"<p><p>This study provides a comprehensive exploration of the working conditions and associated health challenges faced by carpet weavers in Kashmir. The detailed examination of various factors contributes significantly to understanding the intricacies of their daily lives and provides valuable insights into an often-overlooked aspect of occupational health. The data was collected through 22 individual interviews and 5 Focus Group Discussions (FGDs). A semi-structured interview schedule was used to collect data allowing researchers to engage with participants. The results of the study emphasize that carpet weavers are not satisfied with the existing working conditions of the workshops they work in. Most carpet weavers suffer from multiple and sometimes chronic health ailments like musculoskeletal problems, respiratory problems, skin problem, fatigue and other health problems such as abdominal pain, nose problem, and anaemia owing to the unsafe working environment, long working hours, inappropriate sitting postures, poorly designed tools, exploitative circumstances, and low wages. The study recommends need for recognition of carpet weavers as vulnerable workers. The call for improved working conditions, better infrastructure, and awareness initiatives aligns with the goal of fostering a healthier and supportive environment for these workers. There is a significant need to address the identified health problems to safeguard both the carpet industry and the livelihoods of the weavers.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2421575"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11544734/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg
{"title":"Ethical challenges from a problem-solving intervention with workplace involvement: a qualitative study among employees with common mental disorders, first-line managers, and rehabilitation coordinators.","authors":"Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg","doi":"10.1080/17482631.2024.2308674","DOIUrl":"10.1080/17482631.2024.2308674","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore ethical challenges potentially arising from a problem-solving intervention with workplace involvement (PSI-WPI) in primary health care (with first-line manager involvement) for employees on sickness absence due to common mental disorders.</p><p><strong>Methods: </strong>A qualitative design guided by the theoretical framework for systematic identification of ethical aspects of healthcare technologies. Semi-structured interviews were performed with coordinators (<i>n</i> = 6), employees (<i>n</i> = 13), and first-line managers (<i>n</i> = 8). Reflexive thematic analysis was used to analyse and interpret themes.</p><p><strong>Results: </strong>A main theme was identified \"the workplace and healthcare hold different organizational value logics\" and four sub-themes: \"the PSI-WPI challenged the organizational goals and values of the workplace and healthcare\", \"the PSI-WPI challenged organizational values on fairness\", \"the PSI-WPI challenged the professional roles of first-line managers and rehabilitation coordinators\" and \"the PSI-WPI introduced a need for the employee to juggle the employee and patient roles\".</p><p><strong>Conclusion: </strong>Different organizational value logics, values, and goals can introduce ethical challenges. We advise clarifying stakeholders' roles and preparing employees and managers for the return to work process by providing sufficient information. The ethical challenges and suggested measures to minimize them, should be considered when planning return to work interventions that involve several stakeholders.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2308674"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851822/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia.","authors":"Ingela Leibring, Annica Kihlgren, Agneta Anderzén Carlsson","doi":"10.1080/17482631.2024.2310147","DOIUrl":"10.1080/17482631.2024.2310147","url":null,"abstract":"<p><strong>Purpose: </strong>To describe experiences of fear, coping, and support in 10-17-year-old children under treatment for acute lymphoblastic leukaemia (ALL).</p><p><strong>Methods: </strong>A longitudinal descriptive qualitative design was adopted. Ten children participated in one to three interviews each (24 interviews in all). Interviews were analysed using a matrix-based qualitative method.</p><p><strong>Results: </strong>The variety of fears described related to <i>uncertainty, pain and medical procedures, bodily changes and loss of control</i>, <i>complications</i>, <i>professionals' attitudes</i>, <i>affected school results</i>, and <i>social isolation</i>. Children used various strategies to deal with fear: some more general, to cope with the whole situation, and others more related to specific events such as treatment and tests. The most reported strategies we labelled <i>Accepting the situation</i>, <i>Positive thinking</i>, and <i>Being an active agent</i>. Less favourable strategies were also reported. Health care professionals, families, and friends offered valuable, but different kinds of, support.</p><p><strong>Conclusions: </strong>Children aged 10 to 17 undergoing treatment for ALL experience various fears. Each experience is individual and changes over time, but there are common patterns. Most children used problem-solving or emotional-regulation strategies, but withdrawal was also reported. Even children who can deal with fear need support from their health care professionals, families, and friends.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2310147"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851796/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre
{"title":"Using a co-design methodological approach to optimize perioperative nursing care for older adult patients from ethnically diverse backgrounds: a study protocol.","authors":"Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre","doi":"10.1080/17482631.2024.2349438","DOIUrl":"10.1080/17482631.2024.2349438","url":null,"abstract":"<p><p>This article outlines the use of a co-design methodological approach aimed at optimizing perioperative care experiences for ethnically diverse older adults and their family carers. The research involved three phases. In Phase 1, the foundation was established with the formation of a Core Advisory Group comprising key informants, including health consumers. This initial phase focused on forming relationships and conducting a literature review to inform subsequent stages of the research. Phase 2 progressed to data collection, where a qualitative survey on perioperative experiences was conducted. Semi-structured interviews were held with patients, their family carers, and perioperative staff. Phase 3 advanced the co-design process through a workshop involving patients, family carers, perioperative staff, and key stakeholders. Workshop participants collaborated on potential practice changes, proposing strategies for future clinical implementation. While data analysis and reporting for Phases 2 and 3 are forthcoming, the continued involvement of the Core Advisory Group ensures ongoing consensus-building on health consumer needs. This methodology article adopts a prospective stance, with findings to be presented in subsequent scholarly works. Use of this methodology will help to determine how the use of a co-design approach may impact the development of culturally responsive perioperative nursing care for those from ethnically diverse communities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2349438"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11075656/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140858900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}