International Journal of Qualitative Studies on Health and Well-Being最新文献_第10页

Strategies to mitigate moral distress as reported by eldercare professionals. 老年护理专业人员报告的减轻道德困扰的策略。

IF 1.8 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-02-19 DOI: 10.1080/17482631.2024.2315635

Tiina Koivisto, Maria Paavolainen, Nina Olin, Eveliina Korkiakangas, Jaana Laitinen

{"title":"Strategies to mitigate moral distress as reported by eldercare professionals.","authors":"Tiina Koivisto, Maria Paavolainen, Nina Olin, Eveliina Korkiakangas, Jaana Laitinen","doi":"10.1080/17482631.2024.2315635","DOIUrl":"10.1080/17482631.2024.2315635","url":null,"abstract":"Eldercare workers experience higher levels of moral distress than other health and social care service workers. Moral distress is a psychological response to a morally challenging event. Very little is known about moral distress in the context of eldercare and about the mechanisms of preventing or mitigating moral distress. This qualitative study was conducted as part of the \"Ensuring the availability of staff and the attractiveness of the sector in eldercareservices\" project in Finland in 2021. The data were from 39 semi-structured interviews. This qualitative interview data were examined using two-stage content analysis. The key finding of this study, as reported by eldercare professionals, is that strategies to mitigate moral distress can be found at all organizational levels : organizational, workplace and individual. The tools that emerged from the interviews fell into four main categories:) organizational support and education 2) peer support 3) improving self-care and competence and 4) defending patients. The main identified categories confirmed the earlier findings but the qualitative, rich research interview data provided new insights into a little-studied topic: mitigating moral distress in eldercare. The main conclusion is that, in order to mitigate moral distress, ethical competence needs to be strengthened at all organizational levels.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2315635"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10878340/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139906918","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A phenomenological investigation of kinship involvement in the lives of children whose parents have mental illness. 对父母患有精神疾病的儿童生活中亲情参与的现象学调查。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-10-09 DOI: 10.1080/17482631.2024.2414481

Ebenezer Cudjoe, Victoria Awortwe

{"title":"A phenomenological investigation of kinship involvement in the lives of children whose parents have mental illness.","authors":"Ebenezer Cudjoe, Victoria Awortwe","doi":"10.1080/17482631.2024.2414481","DOIUrl":"10.1080/17482631.2024.2414481","url":null,"abstract":"Background and purpose: Mental health services rarely reach children whose parents have mental illness despite their poor outcomes. There is a need to consider how mental health practitioners can prioritize the needs of these children and their families. This study examined kinship involvement in the lives of children whose parents have mental illness.Methods: A phenomenological design was used, interviewing 20 children (aged 10-17 years) in families with parental mental illness (PMI) in Ghana. The interview data was analysed to attain the essential features of what kinship support looks like for children and their families.Results: The essential feature of kinship support for children and families with PMI is characterized by uncertainty. However, there is an overall impression that kinship is generally supportive to these families, providing respite services, assistance with daily living, emotional support and advice to children and families. Yet, there is a sense that kinship may not always be helpful to these families.Conclusions: Kinship support is integral in countries where formal mental health services are inadequate and should be explored/harnessed by mental health practitioners. The study provides directions into ways practitioners can utilize kinship as a resource when working with these families.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2414481"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465364/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142395173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How occupational physicians pay attention to the values of employees: a qualitative study. 职业医师如何关注员工的价值观：一项定性研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-06-24 DOI: 10.1080/17482631.2024.2370069

Pepijn R Hagenaar, Willem van Rhenen, Arjan W Braam, Lars van Tuin

{"title":"How occupational physicians pay attention to the values of employees: a qualitative study.","authors":"Pepijn R Hagenaar, Willem van Rhenen, Arjan W Braam, Lars van Tuin","doi":"10.1080/17482631.2024.2370069","DOIUrl":"10.1080/17482631.2024.2370069","url":null,"abstract":"Purpose: The Dutch Association for Occupational Medicine considers employee values to be an essential pillar in occupational medicine. The occupational physician should focus on what an employee finds valuable. However, it is unclear how occupational physicians comply with this policy and pay attention to employee values. The present study aims to fill this gap by mapping to what extent occupational physicians pay attention to employee values.Method: We used an exploratory qualitative research method through in-depth interviews with 10 Dutch occupational physicians. Additionally, two non-participating observations were conducted.Results & conclusion: The results show that values remain mostly implicit and are applied intuitively or unconsciously but not explicitly. Hence, the ethical requirements of the Dutch Association for Occupational Medicine policy remain underexposed and under-executed. Multiple facets foster or impede a conversation about values. As far values were mentioned they were mainly extrinsic, social, and prestige-oriented. Intrinsic values were hardly mentioned. However, a few occupational physicians explicitly stated that they pay attention to values and reported that heeding to employee values contributes to better collaboration and decision-making with the employee. We argue that paying attention to intrinsic values may improve the overall work quality of occupational physicians and benefit employee well-being.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2370069"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11198124/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141443692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond troubled and untroubled positions - an intersectional analysis of siblings who are bereaved by drug-related deaths' meaning-making stories about their deceased brothers and sisters. 超越困扰和不困扰的立场--对因毒品相关死亡而失去亲人的兄弟姐妹关于其已故兄弟姐妹的意义建构故事的交叉分析。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-06-26 DOI: 10.1080/17482631.2024.2372864

Gunhild Meen, Monika Alvestad Reime, Sari Lindeman, Lillian Bruland Selseng

{"title":"Beyond troubled and untroubled positions - an intersectional analysis of siblings who are bereaved by drug-related deaths' meaning-making stories about their deceased brothers and sisters.","authors":"Gunhild Meen, Monika Alvestad Reime, Sari Lindeman, Lillian Bruland Selseng","doi":"10.1080/17482631.2024.2372864","DOIUrl":"10.1080/17482631.2024.2372864","url":null,"abstract":"Purpose: This study investigates how social categories work and intersect in siblings bereaved by drug-related deaths' (DRDs) stories about their relationships to their deceased brother or sister. The sociocultural embedded process of making meaning of the relationship with the deceased individual is essential in adapting to the loss. However, insight into such experiences of siblings bereaved by a DRD is scarce. Previous research has suggested that DRDs may be stigmatized life experiences for bereaved family members, and this paper furthers understanding of the experiences and issues involved in losing a sibling in a stigmatized death.Methods: An intersectional analysis is applied to interviews with 14 bereaved siblings. By investigating and displaying how different categories intertwine, various positionings are identified.Findings: Categorization of the deceased siblings as \"addicts\" constructs a troubled position. However, when \"addict\" intersects with the categories \"unique,\" \"sibling,\" and \"uncle,\" the troubled subject's position as an \"addict\" can be concealed.Conclusions: Normative conceptions of addiction and DRDs produce troubled subject positions. By intermingling the category of \"addict\" with other categories, less problematic positions are created. Still, intersections of categories can also construct further complexities of remorse and self-blame for the bereaved siblings.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2372864"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11210408/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141452079","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study. 不宁腿综合症患者在满足人类需求方面遇到的促进因素和障碍：一项定性研究。

IF 1.8 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-12 DOI: 10.1080/17482631.2024.2348884

Elzana Odzakovic, Monika Allgurin, Lise-Lotte Jonasson, Sandra Öberg, Bengt Fridlund, Martin Ulander, Jonas Lind, Anders Broström

{"title":"Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study.","authors":"Elzana Odzakovic, Monika Allgurin, Lise-Lotte Jonasson, Sandra Öberg, Bengt Fridlund, Martin Ulander, Jonas Lind, Anders Broström","doi":"10.1080/17482631.2024.2348884","DOIUrl":"10.1080/17482631.2024.2348884","url":null,"abstract":"Purpose: Restless Legs Syndrome (RLS) is a widespread condition that affects sleep leading to daytime sleepiness, depression, and reduced quality of life. This study aims to determine and describe how patients with RLS experience their everyday life, with a focus on facilitators and barriers related to Maslow's hierarchical theory of human needs.Method: Semi-structured interviews were analysed with qualitative content analysis resulting in facilitators and barriers affecting the fulfilment of the five human needs.Results: Addressing RLS symptoms through medications and a quiet sleep environment fulfils psychological needs. Control over RLS symptoms, engagement in activities, trust in treatments, and social support meet safety and security needs. Social inclusion, close relationships, and meaningful interactions fulfil a sense of belongingness and love needs despite RLS. Competence in managing RLS, effective self-care strategies, confident communication, and trust-building support esteem needs. Finally, comprehensive understanding through person-centred interventions and coping fulfils the self-actualization needs in managing RLS.Conclusion: Holistic and person-centred interventions, including facilitators for the fulfilment of physiological, psychological, and social needs could help healthcare professionals to provide holistic care.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2348884"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11089917/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140912845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Healthcare and social care professionals' experiences of respite care: a critical incident study. 医疗保健和社会护理专业人员对临时护理的体验：关键事件研究。

IF 1.8 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-12 DOI: 10.1080/17482631.2024.2352888

Annelie K Gusdal, Mirkka Söderman, Tina Pettersson, Jaana Kaup, Lena-Karin Gustafsson

{"title":"Healthcare and social care professionals' experiences of respite care: a critical incident study.","authors":"Annelie K Gusdal, Mirkka Söderman, Tina Pettersson, Jaana Kaup, Lena-Karin Gustafsson","doi":"10.1080/17482631.2024.2352888","DOIUrl":"10.1080/17482631.2024.2352888","url":null,"abstract":"Introduction: Aging in place is favoured among older persons and supported by research in Sweden, although it poses challenges for overburdened informal caregivers. While respite care can offer support, its accessibility is hindered by organizational challenges and informal caregivers' delays in using it. The experiences of informal caregivers are well-studied, but the professionals' experiences of respite care quality and critical incident management are underexplored.Aim: To explore professionals' experiences of critical incidents in respite care, consequences for the persons being cared for, and strategies to manage critical incidents.Materials and methods: A qualitative, critical incident technique was used, and three group interviews with a total of 16 professionals were conducted.Results: Barriers to quality respite care included communication gaps during care transitions, environmental shortcomings in respite care facilities, lack of support for informal caregivers, and inadequacies in respite care decisions. Strategies to manage critical incidents included individualized care, continuity and communication in care transitions, a conducive environment, support for informal caregivers, and care professionals' positive approach.Conclusions: The study emphasizes the need for focused efforts on communication, continuity, and a supportive environment. Addressing identified challenges and applying suggested strategies will be key to maximizing the potential of respite care as a vital support for care recipients and their informal caregivers.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2352888"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11089915/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140912886","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Building up bit by bit, parent's experiences of equine-assisted intervention among children and adolescents with mental illness: a grounded theory study. 一点一滴的积累，父母对患有精神疾病的儿童和青少年进行马术辅助干预的经验：一项基础理论研究。

IF 1.8 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-05-17 DOI: 10.1080/17482631.2024.2354945

Ing-Marie Carlsson, Marie Bräutigam Ewe, Peter Nymberg, Henrika Jormfeldt

{"title":"Building up bit by bit, parent's experiences of equine-assisted intervention among children and adolescents with mental illness: a grounded theory study.","authors":"Ing-Marie Carlsson, Marie Bräutigam Ewe, Peter Nymberg, Henrika Jormfeldt","doi":"10.1080/17482631.2024.2354945","DOIUrl":"10.1080/17482631.2024.2354945","url":null,"abstract":"Background: Mental ill health among children and adolescents has increased worldwide. Mental health difficulties from a young age are associated with school absence and educational underachievement. A holistic perspective of treatments besides medical treatment is essential Thus, there is a need for research regarding equine-assisted intervention (EAI).Purpose: The present study aimed to understand the outcomes of an equine-assisted intervention for children and adolescents with mental ill health from the perspectives of parents and close relatives.Methods: This study used a qualitative research design informed by Charmaz's Grounded Theory, with a purposive sample including six in-depth interviews.Results: The theory \"building up bit by bit\" was constructed, explaining the recognition that their children/adolescents were built up bit by bit and created a stronger self-identity. The participants referred to changes in the child's or adolescent's way of being and emotional regulation, which constituted building blocks leading to the child's or adolescent's 1. increased Harmony. 2. enhanced Self-identity, and 3. improved Capability.Conclusion: Parents and close relatives experienced that their child or adolescent was built up bit by bit and gained a stronger foundation to stand on. This led to increased harmony in everyday life with stronger self-worth, better performance, and reduced school absenteeism.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2354945"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11104696/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140960682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents' perspectives and recommendations for practice. 学校环境是否限制了囊性纤维化儿童参加日常体育活动？家长的观点和实践建议。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-10-22 DOI: 10.1080/17482631.2024.2419165

Emma Powell, Lorayne A Woodfield, Alexander J Powell, Tony D Myers, Miranda Barker

{"title":"Are school settings restricting access to daily physical activity for children with cystic fibrosis? Parents' perspectives and recommendations for practice.","authors":"Emma Powell, Lorayne A Woodfield, Alexander J Powell, Tony D Myers, Miranda Barker","doi":"10.1080/17482631.2024.2419165","DOIUrl":"10.1080/17482631.2024.2419165","url":null,"abstract":"Background: Cystic Fibrosis (CF) is a genetic life limiting disease that impacts upon quality of life. An aim of CF care is to preserve lung function, with physical activity (PA) being an important part of daily airway clearance. Ensuring children have opportunities to engage in PA at school should be an important part of their daily routine. It is important to gain parental perspectives on this, as they manage the daily care for their children. This study aims to explore parents' perceptions of school-based PA for their children with CF.Methods: Parents of children with CF (n = 10), from three regions of the UK (England, Wales and Northern Ireland) took part in online semi-structured interviews. Data were analysed using Interpretative Phenomenological Analysis (IPA).Results: Although parents recognized the benefits of school-based PA for their children, systemic barriers in the school setting often inhibit daily PA for children with CF, including teachers' misconceptions, emotional and physical barriers, and PA not being a priority.Conclusion: Recommendations for practice have been developed to help engage children with CF in daily school-based PA in an inclusive way, with the hope of maintaining health outcomes for children with CF.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2419165"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497575/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Seeking balance between contradictory experiences - therapists treating survivors of sexual violence. 在矛盾的经历中寻求平衡--治疗性暴力幸存者的治疗师。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-11-02 DOI: 10.1080/17482631.2024.2422141

Charlotta von Mentzer, Gun I Rembeck, Helena Dahlberg, Åsa Premberg

{"title":"Seeking balance between contradictory experiences - therapists treating survivors of sexual violence.","authors":"Charlotta von Mentzer, Gun I Rembeck, Helena Dahlberg, Åsa Premberg","doi":"10.1080/17482631.2024.2422141","DOIUrl":"10.1080/17482631.2024.2422141","url":null,"abstract":"With the prevalence of sexual violence in most countries and its increase in Sweden, it is important to understand the development of secondary traumatic reactions among professionals who work with sexually violated clients. The aim of this study was to describe the meaning of therapists' personal experiences when treating survivors of sexual violence. We conducted a qualitative interview study of therapists in Sweden (N = 11) using thematic analysis and adding a phenomenological openess towards the phenomenon. The participants were all women, with different professional backgrounds and with further education in areas such as psychotherapy, sexology, trauma treatment, and forensic nursing. The essential meaning of their work could be described as a continuum where therapists were seeking balance between contradictory experiences, further described in four themes. They experienced their work as highly meaningful, and the use of self-care strategies helped to maintain protective boundaries. However, the incomprehensible violence they were indirectly exposed to, challenged their protective boundaries, thus causing negative reactions for the therapists. Increased understanding of the impact of work on therapists' professional and private lives is crucial, and the need for therapists to have a model or framework of meaning and explanation for sexual violence that ties contradictory experiences together.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2422141"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11536615/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142565263","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis. 跨越健康状况、人际关系和生命周期的家庭照顾者经历和需求：定性分析。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2024-12-01 Epub Date: 2024-01-11 DOI: 10.1080/17482631.2023.2296694

Sarah A Neller, Megan Thomas Hebdon, Emily Wickens, Debra L Scammon, Rebecca L Utz, Kara B Dassel, Alexandra L Terrill, Lee Ellington, Anne V Kirby

{"title":"Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis.","authors":"Sarah A Neller, Megan Thomas Hebdon, Emily Wickens, Debra L Scammon, Rebecca L Utz, Kara B Dassel, Alexandra L Terrill, Lee Ellington, Anne V Kirby","doi":"10.1080/17482631.2023.2296694","DOIUrl":"10.1080/17482631.2023.2296694","url":null,"abstract":"Purpose: The purpose of this study was to understand the lived experiences of family caregivers who provide care to individuals across a broad range of ages, caregiving relationships, and health conditions and/or disabilities. Family caregiver research is typically siloed by health condition or by caregiving relationship, leaving gaps in understanding similarities and differences among caregivers.Methods: We hosted three virtual focus groups with diverse family caregivers (n = 26) caring for an individual with a long-term disability and/or health condition(s). We conducted a qualitative thematic analysis using an iterative, inductive process.Results: Participants primarily expressed shared experiences, despite having unique caregiving situations. We identified themes among a) caregiver experiences: Trying to Do It All, Balancing Complex Emotions, Managing Expectations, and Adjusting to Changes Over Time and b) caregiver needs: Longing for Breaks and Self-Care; Lacking Help, Support and Resources; and Desiring Understanding and Recognition.Conclusions: These findings emphasize that many elements of the caregiving experience transcend care recipient age, condition, and relationship and are applicable to clinicians, researchers, and policy makers. The evidence of shared caregiver experiences can guide efficiencies in policy and practice (e.g., pooling of existing resources, expansion of interventions) to meet the needs of a broader population of caregivers.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2296694"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10791097/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139425981","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0