International Journal of Qualitative Studies on Health and Well-Being最新文献

{"title":"Lived experiences of work-life balance among doctoral nursing students: a qualitative descriptive study.","authors":"Ji Yeon Lee, Yong Sook Yang, Gi Wook Ryu, Kyoungjin Lee","doi":"10.1080/17482631.2024.2406975","DOIUrl":"10.1080/17482631.2024.2406975","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to gain an in-depth understanding of the meaning and nature of nursing doctoral students' lived work-life balance experiences.</p><p><strong>Methods: </strong>A qualitative descriptive study was conducted with 11 doctoral nursing students who worked and raised children. In-depth interviews were conducted to collect data, providing insight into the participants' work-life balance experiences. As proposed by van Manen, four lifeworld existential, namely lived place, lived body, lived time, and lived relations, were used for qualitative data analysis.</p><p><strong>Results: </strong>Four existential themes emerged: 1) existing in multiple spaces; 2) busy, tired, hard, and painful but must endure; 3) time to endure and grow until the end of schooling; and 4) realizing walls of togetherness.</p><p><strong>Conclusions: </strong>This study explored how the work and life of doctoral nursing students with multiple roles are balanced and how they relate to others in different contexts. We revealed the problems and difficulties they face in their daily lives and the centres and motives behind their lives. Support from families, universities, and workplaces is needed to continue the Ph.D. program, which will eventually ensure the quality of the discipline.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11443537/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parental Identity and Lived Experiences when Parenting a LGBTQIA+2 Child: A Critical Narrative Synthesis of Current Evidence.","authors":"Cherryl S Kolhe, Shirin Shikalgar, Deborah Biggerstaff","doi":"10.1080/17482631.2024.2378511","DOIUrl":"10.1080/17482631.2024.2378511","url":null,"abstract":"<p><strong>Purpose: </strong>Most LGBTQIA + 2 studies focus on the core sexually and gender diverse population without exploring the peripheral familial perspectives. Current research needs to explore parental experiences of parenting a LGBTQIA+2 child, since parents undergo an identity change after their child's disclosure. This parental identity change may affect parental well-being and add to the existing stress of parenting a LGBTQIA + 2 child.</p><p><strong>Methods: </strong>This paper uses the identity process theory (IPT) to review 18 studies on parental narratives to highlight the change in parental identity. Databases were searched for first-hand parenting experiences and shortlisted articles were qualitatively synthesized.</p><p><strong>Findings: </strong>We identified six main themes: I) Parental identity change is triggered by a child's disclosure. II) Parental identity change drives parental emotions that evolve from initial anger, shock, fear, concern, grief, etc. to eventual acceptance of their child. III) Parental identity and emotions change, as for any life change process, across assimilation, accommodation, adjustment, and evaluation phases of the IPT. IV) Parental identity change is motivated by continuity, coherence, self-efficacy, belongingness, distinctiveness, meaning and self-esteem principles of the IPT. V) Parental identity influences parental micro-individual, meso-interactional and macro-societal interactions of the IPT framework. VI) Parental mental well-being may be affected across the assimilation, accommodation, adjustment phases of the IPT before eventual acceptance of the child in the evaluation phase.</p><p><strong>Conclusions: </strong>Parental lived experiences require a stronger consideration today within the wider, non-white, contexts. The effect of identity change on parental mental well-being and its intergenerational effect needs to be explored within the context of the IPT. Parental narratives will contribute towards creating appropriate counselling toolkits and interventions for health care providers and parents of LGBTQIA + 2 children.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11249147/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141617618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Staying isolated indoors means that nobody sees me\": ontological (in)security and living with significant appearance concerns before, during, and 'since' COVID-19.","authors":"Christian Edwards, Berenice Mahoney, Emma V Richardson, Beck Lowe","doi":"10.1080/17482631.2024.2374779","DOIUrl":"10.1080/17482631.2024.2374779","url":null,"abstract":"<p><strong>Purpose: </strong>Though a worldwide period of uncertainty (COVID-19) has 'ended', there exists a legacy of maladaptive experiences among people with significant appearance concerns (SAC) that requires care and attention.</p><p><strong>Methods: </strong>Using Giddens' concept of ontological security, we explored how people experienced their SAC before, during and \"since\" COVID-19. Qualitative surveys allowed us to capture diverse perspectives from individuals transnationally, analysed with deductive reflexive thematic analysis using ontological security as our theoretical foundation.</p><p><strong>Results: </strong>Themes named \"More Mirror(ed) Time\" and \"Locked Out, Shut Down, and Shut Out\" gave a contextual grounding for the embodied experiences of this group through times of social restrictions, and the theme \"Redefining Relevance\" explored the continued legacy of COVID-19 - and continued global uncertainties such as economic hardship and warfare - that impact the wellbeing of people with SAC.</p><p><strong>Conclusions: </strong>People with SAC are still 'locked out' from essential healthcare support as those providing healthcare are overworked, under-resourced and rely on efficient interactive methods such as tele-health that may be triggers for people with SAC. Care providers may consider expanding appearance concerns verbiage, look to involve trusted others in the care-seeking process, and utilize modalities beyond digital health to support people with SAC.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11225628/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141494203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I feel like it should be but I know it's really not\": exploring physical fitness priorities at the correctional training program in Canadian federal corrections.","authors":"Zachary Towns, Rosemary Ricciardelli, Dale C Spencer","doi":"10.1080/17482631.2024.2375662","DOIUrl":"10.1080/17482631.2024.2375662","url":null,"abstract":"<p><p>The correctional training program (CTP), composed of three stages, includes a 14 week in-person component that Correctional Officer Recruits (CORs) must complete prior to their employment as a federal Correctional Officer (CO) for Correctional Service Canada (CSC). The CTP prepares recruits for a plethora of CO responsibilities, some dependent on physical fitness, such as responding to codes being called, physical altercations, or violent situations. Unlike other public safety positions (e.g. policing, border services, or coast guard) CSC does not require occupational fitness testing. In the current article, we use data from a multiyear longitudinal study of federal COs from across Canada to unpack how CORs manage physical fitness expectations at CTP; CSCs' expectations of COR physical fitness; and outline what types of physical fitness (e.g. weightlifting, cardiovascular, self-defence) are taught, thus valued most, during CTP. We situate the voices of CORs regarding physical fitness within the broader \"body\" literature and discuss policy recommendations tied to physical fitness, specifically COs' interest in reinstating pre-employment physical fitness screening.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11225625/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141494201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experience of pre-suicidal suffering: insights from suicide attempt survivors.","authors":"Miglė Marcinkevičiūtė, Lauryna Vilutytė, Danutė Gailienė","doi":"10.1080/17482631.2024.2370894","DOIUrl":"10.1080/17482631.2024.2370894","url":null,"abstract":"<p><strong>Purpose: </strong>Psychache significantly contributes to the suicidal process. However, the transition from pre-suicidal suffering to a suicide crisis remains one of the least explored stages in suicidology.</p><p><strong>Methods: </strong>We retrospectively explored experience of pre-suicidal suffering through semi-structured, in-depth interviews with 12 individuals recruited from the Vilnius City Mental Health Center, Lithuania. Interpretative phenomenological analysis was employed to identify recurring patterns.</p><p><strong>Results: </strong>Nine primary group experiential themes emerged: Certain adverse life events occurring during the suicidal process were not immediately perceived as connected; Complex traumatic events laid the groundwork for a profound sense of lack; A compensatory mechanism balanced the experience of profound lack; Exhaustion ensued from efforts to sustain the compensatory mechanism; The main trigger directly challenged the compensatory mechanism; The affective state followed the experience of the main triggering event; Dissociation served to isolate psychache; Thoughts of suicide experienced as automatic; Suicide was perceived as a means to end suffering.</p><p><strong>Conclusion: </strong>The findings suggest that the suicidal process unfolds over an extended period of suffering, culminating in a crisis to alleviate unbearable psychological pain. In clinical practice, identifying the main triggering event discussed in this study can be pivotal in understanding the essence of suffering characterized by profound lacking and developed compensatory mechanisms.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11198122/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141447586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"From unwelcome to supportive. Patients' conceptions of being prescribed a glucose-lowering drug at type 2 diabetes diagnosis - a phenomenographic study.","authors":"Sofia Dalemo, Yvonne Carlsson, Johan Alsterhag, Susanne Andersson","doi":"10.1080/17482631.2024.2389575","DOIUrl":"10.1080/17482631.2024.2389575","url":null,"abstract":"<p><strong>Purpose: </strong>Guidelines recommend starting glucose-lowering drug upon type 2 diabetes mellitus diagnosis together with lifestyle changes. Lifestyle changes are as essential as the drug, earlier recommendations allowed some months of lifestyle changes while being drug-free. Prescription on diagnosis may interfere with patients' understanding and motivation for lifestyle changes if they cannot evaluate the effect on blood glucose.</p><p><strong>Methods: </strong>A phenomenographic approach and interviews were conducted with patients who started a glucose-lowering drug at diagnosis.</p><p><strong>Results: </strong>Three qualitatively different conceptions of being prescribed glucose-lowering drugs in connection to type 2 diabetes mellitus diagnosis were found: \"Drugs as something unwelcome,\" \"Drugs as a support,\" and \"Drugs as a means to reach the goal\". These conceptions range broadly from drugs as unwelcome to drugs as a support for lifestyle changes and an opportunity to influence the course of the lifelong disease to reach a goal.</p><p><strong>Conclusions: </strong>This study has identified various perspectives of patients' understanding of the role of lifestyle changes in managing their disease. The patients undergo a process, and the perspectives vary, providing a more extensive and nuanced understanding. It is, therefore, impossible to apply a routine protocol and a person-centred approach is required when prescribing a glucose-lowering drug.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11321111/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141918052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nurse-led family-based approach in primary health care for patients with type 2 diabetes mellitus: a qualitative study.","authors":"Khadija A Matrook, Seamus Cowman, Maria Pertl, David Whitford","doi":"10.1080/17482631.2024.2323060","DOIUrl":"10.1080/17482631.2024.2323060","url":null,"abstract":"<p><strong>Purpose: </strong>The prevalence of Type 2 diabetes is rapidly increasing, with 537 million people estimated to have diabetes in 2021. The literature suggests that nurses can deliver effective person-centred diabetes care and that families can be essential in supporting patients. Thus, a Nurse-led Family-based (NLFB) approach may be particularly effective. This study aims to explore the perceptions of nurses, adults with type 2 diabetes, and family members regarding the NLFB intervention.</p><p><strong>Methods: </strong>Guided by the UK Medical Research Council Framework, this seminal study adopted a qualitative, descriptive approach with content analysis. Data were obtained through 16 semi-structured, in-depth interviews. Themes emerged based on an inductive process using constant comparison (Graneheim and Lundman 2004). The COREQ checklist was used in ensuring rigour.</p><p><strong>Results: </strong>Three main themes emerged includes: (1) nurses' experiences with current diabetes care practices, (2) stakeholders' views on the development of a NLFB approach, and (3) merging the nurse-led family aspects into the diabetes care. The key challenges are the dominant medical model, lack of specialist nurses, and time. The key facilitators are knowledge and social support.</p><p><strong>Conclusion: </strong>The study recommends stakeholders embrace nursing empowerment strategies and involve families to enhance the nurses' advanced roles and family inclusion in healthcare.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10919304/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140040828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A qualitative study on the facilitators and barriers to adopting the N-of-1 trial methodology as part of clinical practice: potential versus implementation challenges.","authors":"Ilona Wilmont, Mark Loeffen, Thomas Hoogeboom","doi":"10.1080/17482631.2024.2318810","DOIUrl":"10.1080/17482631.2024.2318810","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate opinions among healthcare stakeholders whether implementation of the N-of-1 trial approach in clinical practice is a feasible way to optimize evidence-based treatment results for unique patients.</p><p><strong>Methods: </strong>We interviewed clinicians, researchers, and a patient advocate (<i>n</i> = 13) with an interest in or experience with N-of-1 trials on the following topics: experience with N-of-1, measurement, validity and reliability, informally gathered data usability, and influence on physician-patient relationship. Interviews were analysed using qualitative, thematic analysis.</p><p><strong>Results: </strong>The N-of-1 approach has the potential to shift the current healthcare system towards embracing personalized medicine. However, its application in clinical practice carries significant challenges in terms of logistics, time investment and acceptability. New skills will be required from patients and healthcare providers, which may alter the patient-physician relationship. The rise of consumer technology enabling self-measurement may leverage the uptake of N-of-1 approaches in clinical practice.</p><p><strong>Conclusions: </strong>There is a strong belief that the N-of-1 approach has the potential to play a prominent role in transitioning the current healthcare system towards embracing personalized medicine. However, there are many barriers deeply ingrained in our healthcare system that hamper the uptake of the N-of-1 approach, making it momentarily only interesting for research purposes.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10903748/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139991819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living with a person with young onset dementia - spousal experience.","authors":"Tania Håkansson, Hilda Svensson, Staffan Karlsson","doi":"10.1080/17482631.2024.2330233","DOIUrl":"10.1080/17482631.2024.2330233","url":null,"abstract":"<p><strong>Purpose: </strong>Being of working age while at the same time needing to help a partner with young onset dementia has specific consequences for spouses. Research to date has been sparse concerning this particular group of spouses. The aim of the study was to explore spouses' everyday experiences when living with a person with young onset dementia.</p><p><strong>Method: </strong>The study had a descriptive qualitative design with semi-structured interviews with nine spouses. The interviews were analysed using content analysis.</p><p><strong>Result: </strong>The interviewed spouses experienced emotions that varied from feelings of loneliness, frustration, and worry to peace of mind. They said that they used coping strategies, which included adopting a positive mindset, adapting to inabilities, adopting an avoidant approach, and finding ways to recharge. Spouses also felt that they could use more support, both formal and informal.</p><p><strong>Conclusion: </strong>The spouse of a person with young onset dementia has a range of emotional experiences and has resourceful ways of handling everyday life. Various types of support are offered to spouses, however, they seemed to desire more from health care services.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10946261/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140144591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Dialogued into being: Constructing knowledge about hand osteoarthritis from a polyphony of voices in healthcare encounters.","authors":"Hege Johanne Magnussen, Ingvild Kjeken, Irma Pinxsterhuis, Trine Amalie Sjøvold, Marte Feiring","doi":"10.1080/17482631.2024.2330221","DOIUrl":"10.1080/17482631.2024.2330221","url":null,"abstract":"<p><strong>Purpose: </strong>Multiple knowledge sources inform healthcare. In healthcare encounters, patients and health professionals' ideas intersect to understand illness and disease. Exploring what is thought of as legitimate knowledge, and where those reflections come from is central to the process of improving and developing healthcare. Within this context, we aim to explore how knowledge about hand osteoarthritis (OA) is constructed and negotiated in clinical consultations.</p><p><strong>Methodology: </strong>The article is based on interviews with 21 patients and 14 health professionals in combination with observation in 16 clinical consultations. Reflexive thematic analysis was used to interpret the data.</p><p><strong>Results: </strong>We generated four themes from codes to tell an interpretive story about how hand OA meaning-making is \"talked into being\" in patient-provider encounters: from the dominant voice of health professionals, from patients as knowers in the chronic healthcare dialogue, from health professionals and patients constructing knowledge together and from the construction of knowledge in hybrid positions when patients are health professionals and health professionals have hand OA.</p><p><strong>Conclusion: </strong>New knowledge about hand OA is co-constructed in the situated context of the clinical encounter through a polyphony of voices-some of which are dominant, while others occupy the periphery-within and between the interactants in dialgue.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10949837/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140159558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}