Annelie J Sundler, Marie Lund, Sandra van Dulmen, Ewa Carlsson Lalloo
{"title":"Exploring experiences of ageing in older adults living with HIV in Sweden: a qualitative study.","authors":"Annelie J Sundler, Marie Lund, Sandra van Dulmen, Ewa Carlsson Lalloo","doi":"10.1080/17482631.2024.2393752","DOIUrl":"10.1080/17482631.2024.2393752","url":null,"abstract":"<p><strong>Purpose: </strong>The number of people living and ageing with HIV is increasing. Insight into their well-being is lacking. The present study was conducted to explore needs, psychosocial issues and experiences of ageing in older adults living with human immunodeficiency virus (HIV) in Sweden.</p><p><strong>Methods: </strong>A qualitative approach was employed. Semi-structured interviews were conducted with a convenience sample of 22 participants aged 65 years or older living with HIV in Sweden. Thematic analysis based on descriptive phenomenology was used.</p><p><strong>Results: </strong>Being an older adult living with HIV emerged as a multifaceted experience. The meaning and impact of HIV varied from minimal to substantial, and ageing could overshadow the significance of HIV in everyday life. Three themes emerged: 1) increasing age in the foreground, 2) internalizing HIV in everyday life, and 3) socioemotional impact on everyday life.</p><p><strong>Conclusions: </strong>The findings suggest a need for a more holistic approach to care of older adults living with HIV, recognizing the broader context of healthy ageing. While participants experienced good health, challenges related to ageing persist, and experiencing HIV-related stigma. The findings highlight the importance of empowering older adults living with HIV.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2393752"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11351364/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Luiz Fernando Santos Tross, Helton Magalhães Dias, Marcelo Callegari Zanetti
{"title":"Maintaining exercise in fitness centre settings: insights from the physical activity maintenance theory.","authors":"Luiz Fernando Santos Tross, Helton Magalhães Dias, Marcelo Callegari Zanetti","doi":"10.1080/17482631.2024.2409832","DOIUrl":"10.1080/17482631.2024.2409832","url":null,"abstract":"<p><strong>Purpose: </strong>This study examines factors that influence long-term fitness centre participation, applying the Physical Activity Maintenance Theory to assess psychological and contextual influences on exercise adherence.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with 17 regular fitness centre attendees in Taubaté, São Paulo, Brazil. Data were analysed using Bardin's Content Analysis, exploring the participants' experiences and the factors contributing to their sustained activity.</p><p><strong>Results: </strong>Autonomous motivation, such as enjoyment and satisfaction from workouts, along with self-efficacy, emerged as crucial for continued fitness centre attendance. The environment, including ambiance, social support, and facility quality, significantly impacted exercise persistence. However, challenges like time constraints, weather conditions, and personal issues occasionally hindered engagement. The study also highlights the role of personalized fitness programmes in supporting long-term adherence, suggesting that tailoring these programmes to individual goals could further enhance commitment.</p><p><strong>Conclusions: </strong>The findings underscore the importance of fitness centres creating environments that align with individual needs and preferences. Customized programmes that cater to both personal and communal needs could bolster long-term adherence. Future research should explore the impact of personalized, community-integrated fitness approaches on sustaining active lifestyles, emphasizing the importance of accommodating individual preferences in maintaining regular exercise habits.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2409832"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11451290/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Peter Sand, Emelie Kinberg, Frida Sundberg, Gun Forsander
{"title":"Parents' and children's experiences of participating in a randomized controlled clinical trial: AIDIT-QS.","authors":"Peter Sand, Emelie Kinberg, Frida Sundberg, Gun Forsander","doi":"10.1080/17482631.2024.2408829","DOIUrl":"10.1080/17482631.2024.2408829","url":null,"abstract":"<p><p>Participation in a paediatric, complex randomized controlled trial (RCT) might add to the family burden when a child is diagnosed with a severe disease. Although important, there are only a limited number of papers describing this aspect of research from the family point of view. This study explored parents' and children's experiences of participation in a research study shortly after the child had been diagnosed with type 1 diabetes. Sixteen parents (nine mothers, seven fathers) and nine children were interviewed by an independent researcher about their inducement, the decision-making process within the family which led to their participation, and their experience of having done so. The result showed that the parents wanted to contribute to improve treatment for children with diabetes in general but also specifically for their own child. Older children were more involved in the decision making than the younger children. Study information needs to be communicated clearly and effectively since decision-making based on information of a clinical trial directly after the child's diabetes onset proved difficult. Being randomized to the intervention group in this specific study was considered somewhat burdensome. However, parental participants in both intervention and control group claimed that they would recommend participation in research studies to other parents in a similar situation, and so did the children. There was no difference between the mothers' and fathers' experiences.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2408829"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11451326/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lene Nygaard, Deborah Lee Davis, Inge Olga Ibsen, Maiken Pontoppidan, Ellen Aagaard Nøhr, Dorthe Susanne Nielsen
{"title":"Care professionals' experiences within a multidisciplinary and cross-sectorial intervention for childbearing women and families in vulnerable positions: a focus group study.","authors":"Lene Nygaard, Deborah Lee Davis, Inge Olga Ibsen, Maiken Pontoppidan, Ellen Aagaard Nøhr, Dorthe Susanne Nielsen","doi":"10.1080/17482631.2024.2410503","DOIUrl":"https://doi.org/10.1080/17482631.2024.2410503","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study was to gain a deeper understanding of the experiences and perspectives of care professionals in multidisciplinary and cross-sectorial collaboration, and their experiences of interactions with childbearing families within the context of the FACAM project.</p><p><strong>Methods: </strong>Eight focus groups were conducted with 32 multidisciplinary care professionals working with childbearing families in vulnerable positions. A thematic analysis was conducted, with positioning theory as the theoretical framework focusing on storylines, positioning and speech-acts.</p><p><strong>Results: </strong>Two overall themes were constructed. Theme one: Cross-sectorial collaboration and the influence on the care provided. Theme two: Interaction with and assessment of women and families' care needs and their influence on the care provided, with three subthemes; a) Establishment of a trustful relationship, b) Assessments of vulnerable positions in relation to function in everyday life, c) Interactions with the woman or family depending on their needs.</p><p><strong>Conclusion: </strong>Care professionals found needs-adapted and tailored care meaningful. Well-functioning multidisciplinary and cross-sectorial collaboration was important to support the families.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2410503"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11486020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Public health nurses' experiences following up children with overweight and obesity according to national guidelines. A qualitative study.","authors":"Hanna Skjelbred Nygaard, Kirsten Gudbjørg Øen","doi":"10.1080/17482631.2024.2306658","DOIUrl":"10.1080/17482631.2024.2306658","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to develop knowledge of how the follow-up regarding overweight and obesity among children in primary school is experienced by the PHN and how the guidelines may be used to improve health services in this follow-up.</p><p><strong>Methods: </strong>We analysed semi-structured interviews of 9 PHNs using qualitative content analysis.</p><p><strong>Results: </strong>Two themes emerged: Following up with children with overweight and obesity is an important but challenging duty; The PHNs call for clearer guidelines. Following five sub-themes: PHNs strive to adhere to the guidelines, show compassion in the follow-up, have difficulty handling parents' feelings and reactions, feel alone with the responsibility, and have suggestions for clearer guidelines.</p><p><strong>Conclusions: </strong>PHNs call for enough resources to communicate the results of the child's weight in a sufficient form. PHNs and families should establish common goals. The PHN should avoid one-way communication but meet the parents' concerns and needs. This requires the PHN to focus on building a secure relation to the child and the families, as described by Peplau. Guidelines must include instructions and tools on how to communicate and meet the family's concerns. Political action and increased funding could strengthen the follow-up and thereby prevent more obesity among children, which can be a predictor of poorer health outcomes later in life.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2306658"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10810652/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139543528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pia Dreyer, Linette Thorn, Trine Højfeldt Lund, Margrethe Langer Bro
{"title":"Live music in the intensive care unit - a beautiful experience.","authors":"Pia Dreyer, Linette Thorn, Trine Højfeldt Lund, Margrethe Langer Bro","doi":"10.1080/17482631.2024.2322755","DOIUrl":"10.1080/17482631.2024.2322755","url":null,"abstract":"<p><strong>Background: </strong>The growing number of lightly or non-sedated patients who are critically ill means that more patients experience the noisy and stressful environment. Live music may create positive and meaningful moments.</p><p><strong>Purpose: </strong>To explore non-sedated patients' experiences of patient-tailored live music interventions in the intensive care unit.</p><p><strong>Design: </strong>A qualitative study using a phenomenological-hermeneutic approach. Data were collected at two intensive care units from September 2019 to February 2020 exploring 18 live music interventions performed by music students from The Royal Academy of Music, Aarhus, Denmark.</p><p><strong>Methods: </strong>Observations of live music interventions followed by patient interviews. All data together were analysed using Ricoeur's theory of interpretation. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was used.</p><p><strong>Results: </strong>Five themes emerged: 1) A break from everyday life, 2) A room with beautiful sounds and emotions, 3) Too tired to participate, 4) Knowing the music makes it meaningful and 5) A calm and beautiful moment.</p><p><strong>Conclusion: </strong>Patient-tailored live music to awake patients is both feasible and acceptable and perceived as a break from every-day life in the ICU.</p><p><strong>Implications for practice: </strong>Supporting health and well-being by bringing a humanizing resource into the intensive care setting for patients and nurses to enjoy.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2322755"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10906112/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139998203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ariel Kwegyir Tsiboe, Shruthi Raghuraman, Tara C Marshall
{"title":"Caught between two worlds: mental health literacy and stigma among bicultural youth.","authors":"Ariel Kwegyir Tsiboe, Shruthi Raghuraman, Tara C Marshall","doi":"10.1080/17482631.2024.2321644","DOIUrl":"10.1080/17482631.2024.2321644","url":null,"abstract":"<p><strong>Purpose: </strong>Bicultural youths are at higher risk of mental health problems and are less likely to utilize mental health services, yet our knowledge of their mental health literacy and help-seeking behaviours remains limited.</p><p><strong>Methods: </strong>To fill this gap, the current study explored bicultural youths' mental health literacy and stigma by conducting semi-structured interviews with 14 Canadian university students in 2021.</p><p><strong>Results: </strong>Our analysis revealed that bicultural youths may be torn between two worlds: intergenerational tensions between participants assimilated into individualistic Canadian culture and their more collectivist parents meant that they had different cultural perceptions of mental health literacy and stigma. While being caught between these two worlds may be detrimental for bicultural youth, our results also suggested that a trans-cultural factor-celebrities' mental health journeys-may promote help-seeking behaviour across participants. Furthermore, our study speaks to the ways that unprecedented events such as the COVID-19 pandemic impact mental health literacy among bicultural youth. Our findings might be used by university mental health services to encourage help-seeking among bicultural students.</p><p><strong>Conclusion: </strong>The acculturation of mental health literacy, stigma, and associated intergenerational differences needs to be considered by university wellness services.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2321644"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911255/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023185","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Isobel Fishman, Suzanne Henderson, Christina Vadeboncoeur
{"title":"Research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study.","authors":"Isobel Fishman, Suzanne Henderson, Christina Vadeboncoeur","doi":"10.1080/17482631.2024.2419158","DOIUrl":"https://doi.org/10.1080/17482631.2024.2419158","url":null,"abstract":"<p><strong>Purpose: </strong>Since the COVID-19 pandemic, a paediatric network study with clinical sites across Canada suffered a reduction in participation. When research studies fail to meet enrolment targets, it can reduce the strength and validity of the results. This study explores research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study.</p><p><strong>Methods: </strong>This study was conducted using a qualitative design. Focus group sessions were used to gain the perspective of research staff involved in recruitment and transcripts were analysed using Colaizzi's seven-step method of data analysis.</p><p><strong>Results: </strong>Analysis revealed four major themes: (1) the COVID-19 pandemic had an impact on research activity; (2) families of children with medical complexity perform a risk-benefit assessment when deciding whether to take part in research; (3) a trusting relationship with clinicians is a key factor in research recruitment; and (4) research needs to be flexible in order to adapt to evolving contexts.</p><p><strong>Conclusion: </strong>This study identified both COVID-19 and non-COVID-19-related factors that impacted study recruitment for a paediatric network study. Understanding and addressing these challenges will mitigate the negative impacts on health outcomes that can occur when research studies fail to meet enrolment targets.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2419158"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497574/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Birthe Loa Knizek, James Mugisha, Eugene Kinyanda, Julia Hagen, Heidi Hjelmeland
{"title":"\"When you are alone you have a narrow mind, but when you are with others you think broader into the other aspects\". A qualitative study on the role of sense of belonging and mattering in attempted suicide in Uganda.","authors":"Birthe Loa Knizek, James Mugisha, Eugene Kinyanda, Julia Hagen, Heidi Hjelmeland","doi":"10.1080/17482631.2024.2424012","DOIUrl":"10.1080/17482631.2024.2424012","url":null,"abstract":"<p><strong>Introduction: </strong>Suicide is globally a severe problem with an estimated 700.000 deaths annually. Six of the 10 countries with the highest suicide rates worldwide are in Africa, though, reliable statistics are scarce.</p><p><strong>Method: </strong>In this qualitative interview study in Uganda, we analysed the stories of 16 people admitted to hospital following a serious suicide attempt. We focussed especially on each person's decision process towards their resolution to attempt suicide.</p><p><strong>Findings: </strong>Despite the huge heterogeneity of the narratives, we could identify problems regarding the sense of belonging and mattering in all the stories. Both the sense of belonging and mattering have been related to suicidal behaviour in earlier theories, but they were never studied together or under consideration of the influence of this specific cultural context. We found that the participants' sense of belonging and mattering to a large degree was influenced by their traditional communalistic context with a worldview where the line between the natural and spiritual world was blurry.</p><p><strong>Conclusion: </strong>This kind of knowledge could be a valuable source for health professionals in their treatment of suicidal persons; it could direct their approach to the core of each person's relational problems and meaning-making, which is crucial for their decisions with regard to suicide.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2424012"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11536612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142565186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lotte Kring, Evald Iversen, Bjarne Ibsen, Michael Fehsenfeld
{"title":"Exploring the impact of stressful life events on quality of life: meaning making and narrative reconstruction.","authors":"Lotte Kring, Evald Iversen, Bjarne Ibsen, Michael Fehsenfeld","doi":"10.1080/17482631.2024.2330117","DOIUrl":"10.1080/17482631.2024.2330117","url":null,"abstract":"<p><strong>Purpose: </strong>Stressful life events have the capacity to disrupt an individual's worldview and life goals, leading to existential questions and identity loss. The subjective perception of identity is intricately linked with quality of life (QoL), and how individuals derive meaning from these stressful life events significantly influences their well-being. This article explored the impact of stressful life events on individuals' QoL, and examined the potential for enhancing QoL through meaning making and narrative reconstruction.</p><p><strong>Methods: </strong>Qualitative interviews were conducted with 11 individuals reporting diminished QoL and analysed using thematic analysis.</p><p><strong>Results: </strong>The study reveals that stressful life events confront interviewees with the vulnerability of their values in life and the limits of their control, leading them to question their own beliefs and purpose in life. Consequently, these events prompt individuals to reconstruction their narratives to adapt to new life circumstances.</p><p><strong>Conclusions: </strong>The study suggests that \"securing the base,\" including strong social relations and security in economic and housing conditions, is a prerequisite for enhancing QoL. The insights on \"the base\" have profound implications for QoL. Recognizing their fundamental importance, policymakers, healthcare professionals, and social service providers can support mechanisms to enhance these foundations, improving overall well-being for individuals and communities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2330117"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10964830/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140208221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}