Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark
{"title":"Exploring the meaning of a good life for older widows with extensive need of care: a qualitative in-home interview study.","authors":"Ariel Almevall, Päivi Juuso, Catharina Melander, Karin Zingmark","doi":"10.1080/17482631.2024.2322757","DOIUrl":"10.1080/17482631.2024.2322757","url":null,"abstract":"<p><strong>Introduction: </strong>Studies of older women's life transitions is rare but gains relevance as the aging population, with older women as the majority, expands.</p><p><strong>Purpose: </strong>To explore the meaning of a good life for older widows with extensive home care needs.</p><p><strong>Materials and methods: </strong>Semi-structured interviews were carried out with eleven women, aged 80 and over (82-95 years, mean 90) residing at home with extensive care needs (≥4 daily sessions, averaging 2.5-6 hours, mean 3). Data were analysed by reflexive thematic analysis.</p><p><strong>Results: </strong>The theme \"This Day in My Home, the frame of my life\" reflects the women's experience of a good life. A good day imbued them with hope, trust and security, carrying them forward with the assurance that night would usher in a new day. However, there were moments when life was merely about navigating daily challenges. During such days, the women felt trapped in time, unsafe and lonely.</p><p><strong>Conclusion: </strong>A day at home may seem static, yet it mirrors life's dynamism, evolving with shifting circumstances. Older widows navigate challenges while maintaining their sense of self, independence, and connection to home. These findings have implications for aged care, recognizing the multifaceted aspects of life and the centrality of home.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2322757"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911179/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr
{"title":"Being between life and death-experiences of COVID-19 survivors 12 to 18 months after being treated in intensive care.","authors":"Tina Lundberg, Eleonora Falk, Anette Alvariza, Eva Åkerman, Oili Dahl, Marie Nilsson, Lena Anmyr","doi":"10.1080/17482631.2024.2398223","DOIUrl":"10.1080/17482631.2024.2398223","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore the experiences of care, psychosocial support, and psychosocial wellbeing among patients treated for COVID-19 in intensive care 12 to 18 months after discharge.</p><p><strong>Methods: </strong>This study used a qualitative approach with a descriptive design. Semi-structured interviews were performed with 20 adult patients treated for COVID-19 12 to 18 months after being discharged from a university hospital in Sweden. Data were analysed using qualitative content analysis.</p><p><strong>Findings: </strong>The participants were severely affected by COVID-19 both during the hospital stay and afterwards. They experienced overwhelming fears and uncertainties related to their wellbeing and possibility to recover. The care was described chaotic with staff that were stressed; however, the efforts of the staff during this strenuous circumstance were still positively acknowledged. Difficulties to stay in touch with family and friends due to visiting restrictions affected the patient's psychosocial wellbeing.</p><p><strong>Conclusion: </strong>Contracting COVID-19 in the beginning of the pandemic was a stressful event. Being seen and heard is of importance as it has the possibility to create a feeling of security and being cared for despite unclarities about treatment and illness trajectory. Accordingly, healthcare staff play an important role for the psychosocial wellbeing of patients treated for COVID-19.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2398223"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11382733/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142141726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond the first week: sustaining the feeling of social inclusion and sense of belonging for students.","authors":"Arnfrid Farbu Pinto, Nina Petersen Reed, Odd Morten Mjøen","doi":"10.1080/17482631.2024.2421032","DOIUrl":"10.1080/17482631.2024.2421032","url":null,"abstract":"<p><strong>Purpose: </strong>Promoting inclusive student communities and a sense of belonging is essential for university students' well-being and mental health. Our aim in this study was to explore how universities can enhance student well-being by facilitating interactions that contribute to a sense of belonging within the university environment.</p><p><strong>Methods: </strong>Through thematic analysis of 309 written narratives collected from students at the Norwegian University of Science and Technology (NTNU), we explored significant events related to their studies, social lives, or personal experiences.</p><p><strong>Results: </strong>Introduction Week is important for students' well-being, providing a key opportunity to form initial social connections and foster a sense of belonging. However, its impact is inconsistent, and building lasting relationships requires continued effort throughout the academic journey. Recognizing and addressing potential challenges when expectations are unmet is essential for enhancing student belonging.</p><p><strong>Conclusions: </strong>Our findings suggest that while Introduction Week plays an essential role in breaking social barriers and ensuring immediate social inclusion, the greatest challenge lies in establishing structures that facilitate belonging and relationships throughout the entire period of studies. Recognizing the diverse needs of students, universities should offer a variety of platforms for engagement and connection to enhance student well-being.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2421032"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11514387/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluating poor working conditions and health problems faced by carpet weavers in Kashmir: a qualitative analysis.","authors":"Tanveer Ahmad Khan, Shaista Qayum","doi":"10.1080/17482631.2024.2421575","DOIUrl":"10.1080/17482631.2024.2421575","url":null,"abstract":"<p><p>This study provides a comprehensive exploration of the working conditions and associated health challenges faced by carpet weavers in Kashmir. The detailed examination of various factors contributes significantly to understanding the intricacies of their daily lives and provides valuable insights into an often-overlooked aspect of occupational health. The data was collected through 22 individual interviews and 5 Focus Group Discussions (FGDs). A semi-structured interview schedule was used to collect data allowing researchers to engage with participants. The results of the study emphasize that carpet weavers are not satisfied with the existing working conditions of the workshops they work in. Most carpet weavers suffer from multiple and sometimes chronic health ailments like musculoskeletal problems, respiratory problems, skin problem, fatigue and other health problems such as abdominal pain, nose problem, and anaemia owing to the unsafe working environment, long working hours, inappropriate sitting postures, poorly designed tools, exploitative circumstances, and low wages. The study recommends need for recognition of carpet weavers as vulnerable workers. The call for improved working conditions, better infrastructure, and awareness initiatives aligns with the goal of fostering a healthier and supportive environment for these workers. There is a significant need to address the identified health problems to safeguard both the carpet industry and the livelihoods of the weavers.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2421575"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11544734/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142606885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg
{"title":"Ethical challenges from a problem-solving intervention with workplace involvement: a qualitative study among employees with common mental disorders, first-line managers, and rehabilitation coordinators.","authors":"Ida Karlsson, Lars Sandman, Iben Axén, Lydia Kwak, Elisabet Sernbo, Elisabeth Björk Brämberg","doi":"10.1080/17482631.2024.2308674","DOIUrl":"10.1080/17482631.2024.2308674","url":null,"abstract":"<p><strong>Purpose: </strong>This study aims to explore ethical challenges potentially arising from a problem-solving intervention with workplace involvement (PSI-WPI) in primary health care (with first-line manager involvement) for employees on sickness absence due to common mental disorders.</p><p><strong>Methods: </strong>A qualitative design guided by the theoretical framework for systematic identification of ethical aspects of healthcare technologies. Semi-structured interviews were performed with coordinators (<i>n</i> = 6), employees (<i>n</i> = 13), and first-line managers (<i>n</i> = 8). Reflexive thematic analysis was used to analyse and interpret themes.</p><p><strong>Results: </strong>A main theme was identified \"the workplace and healthcare hold different organizational value logics\" and four sub-themes: \"the PSI-WPI challenged the organizational goals and values of the workplace and healthcare\", \"the PSI-WPI challenged organizational values on fairness\", \"the PSI-WPI challenged the professional roles of first-line managers and rehabilitation coordinators\" and \"the PSI-WPI introduced a need for the employee to juggle the employee and patient roles\".</p><p><strong>Conclusion: </strong>Different organizational value logics, values, and goals can introduce ethical challenges. We advise clarifying stakeholders' roles and preparing employees and managers for the return to work process by providing sufficient information. The ethical challenges and suggested measures to minimize them, should be considered when planning return to work interventions that involve several stakeholders.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2308674"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851822/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Fear, coping and support- from the perspective of children aged 10-17-year old having acute lymphoblastic leukemia.","authors":"Ingela Leibring, Annica Kihlgren, Agneta Anderzén Carlsson","doi":"10.1080/17482631.2024.2310147","DOIUrl":"10.1080/17482631.2024.2310147","url":null,"abstract":"<p><strong>Purpose: </strong>To describe experiences of fear, coping, and support in 10-17-year-old children under treatment for acute lymphoblastic leukaemia (ALL).</p><p><strong>Methods: </strong>A longitudinal descriptive qualitative design was adopted. Ten children participated in one to three interviews each (24 interviews in all). Interviews were analysed using a matrix-based qualitative method.</p><p><strong>Results: </strong>The variety of fears described related to <i>uncertainty, pain and medical procedures, bodily changes and loss of control</i>, <i>complications</i>, <i>professionals' attitudes</i>, <i>affected school results</i>, and <i>social isolation</i>. Children used various strategies to deal with fear: some more general, to cope with the whole situation, and others more related to specific events such as treatment and tests. The most reported strategies we labelled <i>Accepting the situation</i>, <i>Positive thinking</i>, and <i>Being an active agent</i>. Less favourable strategies were also reported. Health care professionals, families, and friends offered valuable, but different kinds of, support.</p><p><strong>Conclusions: </strong>Children aged 10 to 17 undergoing treatment for ALL experience various fears. Each experience is individual and changes over time, but there are common patterns. Most children used problem-solving or emotional-regulation strategies, but withdrawal was also reported. Even children who can deal with fear need support from their health care professionals, families, and friends.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2310147"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10851796/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703986","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre
{"title":"Using a co-design methodological approach to optimize perioperative nursing care for older adult patients from ethnically diverse backgrounds: a study protocol.","authors":"Charmaine G Bonus, Deborah Hatcher, Tiffany Northall, Jed Montayre","doi":"10.1080/17482631.2024.2349438","DOIUrl":"10.1080/17482631.2024.2349438","url":null,"abstract":"<p><p>This article outlines the use of a co-design methodological approach aimed at optimizing perioperative care experiences for ethnically diverse older adults and their family carers. The research involved three phases. In Phase 1, the foundation was established with the formation of a Core Advisory Group comprising key informants, including health consumers. This initial phase focused on forming relationships and conducting a literature review to inform subsequent stages of the research. Phase 2 progressed to data collection, where a qualitative survey on perioperative experiences was conducted. Semi-structured interviews were held with patients, their family carers, and perioperative staff. Phase 3 advanced the co-design process through a workshop involving patients, family carers, perioperative staff, and key stakeholders. Workshop participants collaborated on potential practice changes, proposing strategies for future clinical implementation. While data analysis and reporting for Phases 2 and 3 are forthcoming, the continued involvement of the Core Advisory Group ensures ongoing consensus-building on health consumer needs. This methodology article adopts a prospective stance, with findings to be presented in subsequent scholarly works. Use of this methodology will help to determine how the use of a co-design approach may impact the development of culturally responsive perioperative nursing care for those from ethnically diverse communities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2349438"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11075656/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140858900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Caring touch as communication in intensive care nursing: a qualitative study.","authors":"Lise Sandnes, Lisbeth Uhrenfeldt","doi":"10.1080/17482631.2024.2348891","DOIUrl":"10.1080/17482631.2024.2348891","url":null,"abstract":"<p><strong>Purpose: </strong>This article describes intensive care nurses` experiences of using communicative caring touch as stroking the patient`s cheek or holding his hand. Our research question: \"What do intensive care nurses communicate through caring touch?\"</p><p><strong>Methods: </strong>In this qualitative hermeneutically based study data from two intensive care units at Norwegian hospitals are analysed. Eight specialist nurses shared experiences through individual, semi-structured interviews.</p><p><strong>Results: </strong>The main theme, Communicating safety and presence has four sub-themes: Amplified presence, Communicating security, trust and care, Creating and confirming relationships and Communicating openness to a deeper conversation. Communicative caring touch is offered from the nurse due to the patient`s needs. Caring touch communicates person-centred care, invites to relationship while respecting the patient's dignity as a fellow human being. Caring touch conveys a human initiative in the highly technology environment.</p><p><strong>Conclusion: </strong>Caring touch is the silent way to communicate care, hope, strength and humanity to critical sick patients. This article provides evidence for a common, but poorly described phenomenon in intensive care nursing.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2348891"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11086036/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140899699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jane M Ussher, Morgan Carpenter, Rosalie Power, Samantha Ryan, Kimberley Allison, Bonnie Hart, Alexandra Hawkey, Janette Perz
{"title":"\"I've had constant fears that I'll get cancer\": the construction and experience of medical intervention on intersex bodies to reduce cancer risk.","authors":"Jane M Ussher, Morgan Carpenter, Rosalie Power, Samantha Ryan, Kimberley Allison, Bonnie Hart, Alexandra Hawkey, Janette Perz","doi":"10.1080/17482631.2024.2356924","DOIUrl":"10.1080/17482631.2024.2356924","url":null,"abstract":"<p><strong>Purpose: </strong>This paper examines the subjective experience of medical interventions on intersex bodies to reduce cancer risk.</p><p><strong>Methods: </strong>Twenty-five individuals with intersex variations took part in semi-structured interviews, analysed through thematic discourse analysis.</p><p><strong>Results: </strong>Intersex bodies were positioned as inherently sick and in need of modification, with cancer risk legitimating surgical and hormonal intervention. This resulted in embodied shame, with negative impacts on fertility and sexual wellbeing. However, many participants resisted discourses of bio-pathologisation and embraced intersex status. Some medical interventions, such as HRT, were perceived to have increased the risk of cancer. Absence of informed consent, and lack of information about intersex status and the consequences of medical intervention, was positioned as a human rights violation. This was compounded by ongoing medical mismanagement, including health care professional lack of understanding of intersex variations, and the objectification or stigmatization of intersex people within healthcare. The consequence was non-disclosure of intersex status in health contexts and lack of trust in health care professionals.</p><p><strong>Conclusions: </strong>The legitimacy of poorly-evidenced cancer risk discourses to justify medical intervention on intersex bodies needs to be challenged. Healthcare practitioners need to be provided with education and training about cultural safety practices for working with intersex people.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2356924"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11134048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141155937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond health: exploring women's socio-cultural motivations for HPV vaccination.","authors":"Shang Xu, Wen Zhang, YuChen Zhang","doi":"10.1080/17482631.2024.2424494","DOIUrl":"10.1080/17482631.2024.2424494","url":null,"abstract":"<p><strong>Purpose: </strong>Autonomous motivation is critical to motivating individuals to adopt healthy behaviours. While many studies have explored the medical factors that influence women's autonomous motivation to receive HPV vaccination, sociocultural factors have received less attention. Therefore, this study analyses women's autonomous motivation for HPV vaccination from a sociocultural perspective to gain insight into the generation of women's health decisions.</p><p><strong>Methods: </strong>This study conducted in-depth interviews with 19 women at their peak age of infection who had been vaccinated against HPV to examine the socio-cultural factors that drove them to receive HPV vaccination. It used NVivo12 to analyse qualitative data obtained from interviews.</p><p><strong>Results: </strong>The results showed that (1) Demonstrating Personal Independence, (2) Asserting Reproductive Autonomy, (3) Acknowledging Sexual Needs, and (4) Showcasing Health Literacy, Economic Power, and Social Connections were autonomous motivations for women to receive HPV vaccination.</p><p><strong>Conclusions: </strong>Based on these motivations, future vaccine promotion programmes should demonstrate the role of the HPV vaccine for women to become autonomous individuals, as well as clear up misconceptions between the HPV vaccine and sexual shame and reduce the monetary burden of the vaccine to build a friendly and egalitarian vaccination environment.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2424494"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11574947/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142649429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}