Adedoyin Olanlesi-Aliu, Mia Tulli, Janet Kemei, Glenda Bonifacio, Linda C Reif, Valentina Cardo, Hannah Roche, Natasha Hurley, Bukola Salami
{"title":"A scoping review on the operationalization of intersectional health research methods in studies related to the COVID-19 pandemic.","authors":"Adedoyin Olanlesi-Aliu, Mia Tulli, Janet Kemei, Glenda Bonifacio, Linda C Reif, Valentina Cardo, Hannah Roche, Natasha Hurley, Bukola Salami","doi":"10.1080/17482631.2024.2302305","DOIUrl":"10.1080/17482631.2024.2302305","url":null,"abstract":"<p><strong>Purpose: </strong>The COVID-19 pandemic began in early 2020 and became a global health crisis with devastating impacts. This scoping review maps the key findings of research about the pandemic that has operationalized intersectional research methods around the world. It also tracks how these studies have engaged with methodological tenets of oppression, comparison, relationality, complexity, and deconstruction.</p><p><strong>Methods: </strong>Our search resulted in 14,487 articles, 5164 of which were duplicates, and 9297 studies that did not meet the inclusion criteria were excluded. In total, 14 articles were included in this review. We used thematic analysis to analyse themes within this work and Misra et al. (2021) intersectional research framework to analyse the uptake of intersectional methods within such studies.</p><p><strong>Results: </strong>The research related to the COVID-19 pandemic globally is paying attention to issues around the financial impacts of the pandemic, discrimination, gendered impacts, impacts of and on social ties, and implications for mental health. We also found strong uptake of centring research in the context of oppression, but less attention is being paid to comparison, relationality, complexity, and deconstruction.</p><p><strong>Conclusions: </strong>Our findings show the importance of intersectional research within public health policy formation, as well as room for greater rigour in the use of intersectional methods.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10786425/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139425980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"It takes a lot of sisu to get through it\"- managerial experiences of facing adversities during pandemic.","authors":"Johanna Vuori, Ilmari Määttänen","doi":"10.1080/17482631.2023.2291242","DOIUrl":"10.1080/17482631.2023.2291242","url":null,"abstract":"<p><strong>Purpose: </strong>Sisu refers to extraordinary internal strength in the face of adversities. Although originally a Finnish concept, it can be a universally useful concept for studying managerial well-being and performance during difficult or even emergency periods. Previous research on sisu categorizes it into beneficial and harmful sisu and suggests that these two dimensions of sisu are useful when studying determination and resoluteness in crisis situations. This study applies the concept of sisu to examine managers' well-being in times of crisis.</p><p><strong>Methodology: </strong>Interviews were conducted with 15 managers in the hotel, manufacturing and retail industries in Finland.</p><p><strong>Results: </strong>The beneficial effects of sisu seem to dissolve when it is used too often. The study also highlighted the paradoxical tension involved in the decision to stop or continue actions in a difficult situation and contributes to sisu research by discussing collective sisu.</p><p><strong>Conclusion: </strong>The results of this study suggest that beneficial sisu helps to overcome adversity, while harmful sisu causes distortions in thinking that are detrimental to managers. Understanding one's own tendency towards beneficial or harmful sisu in difficult situations can help in managerial work. Collective sisu is an excellent resource for overcoming difficult situations in workplaces.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138500149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A qualitative study on the caregiver burden experience in home reflux enema management of infants with congenital megacolon.","authors":"Yuanyuan Fang, Yulan Kang, Lingjing Teng, Lifang Lin, Pingping Qiu","doi":"10.1080/17482631.2023.2289225","DOIUrl":"10.1080/17482631.2023.2289225","url":null,"abstract":"<p><strong>Objective: </strong>This study aims to explore the caregiver burden experience in the care of infants with congenital megacolon undergoing home reflux enema. The findings will provide a basis for developing targeted and effective nursing interventions.</p><p><strong>Methods: </strong>A phenomenological research approach was employed. From October 2022 to January 2023, semi-structured in-depth interviews were conducted with 12 caregivers of infants with congenital megacolon undergoing home reflux enema in a tertiary paediatric hospital in Fujian Province. The collected data were analysed and organized using the Colaizzi's 7-step analysis method, leading to the identification of key themes.</p><p><strong>Results: </strong>The analysis yielded three major themes concerning the caregiver burden experience in the care of infants with congenital megacolon undergoing home reflux enema: inadequate disease-related knowledge, presence of multiple pressures during the caregiving process, and a desire for greater support.</p><p><strong>Conclusions: </strong>This study employed qualitative interviews with the caregivers of 12 children with congenital Hirschsprung's disease undergoing home reflux enema, and the feelings of caregivers of children with reflux enema at home after discharge were deeply understood. It is recommended to implement positive psychological interventions based on the PERMA model and incorporate \"Internet + collaborative nursing\" to provide caregivers with professional knowledge, address their pressures and needs, and promote their well-being while enhancing nursing abilities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138500150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aurel Zelko, Ivana Skoumalova, Denisa Kravcova, Zuzana Dankulincova Veselska, Jaroslav Rosenberger, Andrea Madarasova Geckova, Jitse P van Dijk, Sijmen A Reijneveld
{"title":"Perceptions of healthcare providers on benefits, risks and barriers regarding intradialytic exercise among haemodialysis patients.","authors":"Aurel Zelko, Ivana Skoumalova, Denisa Kravcova, Zuzana Dankulincova Veselska, Jaroslav Rosenberger, Andrea Madarasova Geckova, Jitse P van Dijk, Sijmen A Reijneveld","doi":"10.1080/17482631.2023.2287597","DOIUrl":"10.1080/17482631.2023.2287597","url":null,"abstract":"<p><strong>Purpose: </strong>Clinical guidelines call for the inclusion of exercise interventions in every patient's dialysis session, but these recommendations are rarely adopted. Healthcare providers play a key role in this. Therefore, the aim of this study was to explore how healthcare providers perceive the benefits, risks and barriers of intradialytic exercise (IDE).</p><p><strong>Methods: </strong>We conducted 21 individual, semi-structured interviews with 11 nurses, 5 nephrologists, 3 training assistants and 2 managers from two dialysis centres in Slovakia. Verbatim transcripts of digitally recorded interviews were thematically analysed using MAXQDA®.</p><p><strong>Results: </strong>Participants reported the benefits of IDE as improvements in patients' physical and psychosocial functioning, independence and self-efficacy, clinical profile and quality of therapy. As risks of IDE, they most frequently reported exercise-related damage to vascular access, insufficient individualization of training and musculoskeletal injuries. The presence of psychological problems among patients was reported as a major barrier for initiating and maintaining patients' exercise. Other reported barriers included limitations in financial and personnel resources of haemodialysis care.</p><p><strong>Conclusions: </strong>Safe and sustainable implementation of IDE, which might improve a patient's well-being, need to be prescribed in alignment with the patient's clinical profile, be delivered individually according to the patient's characteristics and requires adjustments in the available resources.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138500153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring nurses' experiences in pressure sore care in long-term care facilities.","authors":"Hyung-Ju Na, Sung-Hee Yoo, Young-Ran Kweon","doi":"10.1080/17482631.2024.2324495","DOIUrl":"10.1080/17482631.2024.2324495","url":null,"abstract":"<p><strong>Background: </strong>This study uses an interpretive description approach to explore nurses' experiences with pressure sore care in long-term care facilities, highlighting the complexity of their encounters.</p><p><strong>Methods: </strong>10 experienced nurses from South Korean small to medium-sized hospitals were chosen via purposive sampling for interviews. Data analysis utilized Braun and Clarke's reflexive thematic analysis.</p><p><strong>Results: </strong>The study's findings collectively reflect the intricate journey of nurses in Long-term care facilities as they grapple with the challenges of pressure sore care. These nurses transform their perception of pressure sores, encountering a dynamic shift in their understanding. They face multifaceted challenges in providing optimal care, marked by resource constraints and the absence of standardized guidelines. Emotionally, they navigate a complex terrain of sentiments, oscillating between feelings of accomplishment and helplessness. Despite these hurdles, they persistently strive for excellence in pressure sore nursing, driven by an unwavering commitment to delivering the best possible care within the confines of their healthcare environment.</p><p><strong>Conclusion: </strong>The study enhances understanding of pressure sore care in long-term facilities and suggests avenues for improving nursing practices and care quality through targeted interventions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911102/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marte-Marie Wallander Karlsen, Lena Günterberg Heyn, Kristin Heggdal
{"title":"<i>Being a patient in the intensive care unit</i>: a narrative approach to understanding patients' experiences of being awake and on mechanical ventilation.","authors":"Marte-Marie Wallander Karlsen, Lena Günterberg Heyn, Kristin Heggdal","doi":"10.1080/17482631.2024.2322174","DOIUrl":"10.1080/17482631.2024.2322174","url":null,"abstract":"<p><strong>Purpose: </strong>Intensive care patients often struggle to communicate due to the technical equipment used for mechanical ventilation and their critical illness. The aim of the study was to achieve a deeper understanding of how mechanically ventilated intensive care patients construct meaning in the unpredictable trajectory of critical illness.</p><p><strong>Methods: </strong>The study was a part of a larger study in which ten patients were video recorded while being in the intensive care. Five patients engaged in interviews about their experiences from the intensive care stay after being discharged and were offered the possibility to see themselves in the video recordings. A narrative, thematic analysis was applied to categorize the patients' experiences from the intensive care.</p><p><strong>Results: </strong>A pattern of shared experiences among intensive care patients were identified. Three main themes capture the patient's experiences: 1) perceiving the intensive care stay as a life-changing turning point, 2) being dependent on and cared for by others, and 3) living with negative and positive ICU experiences.</p><p><strong>Conclusion: </strong>The patients' narratives revealed how being critically ill affected them, and how they understood their experiences in relation to themselves and their surroundings. The results can be used to pose important questions about our current clinical practice.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911109/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140023279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Understanding life satisfaction among the original inhabitants in the suburbanized areas at the outskirts of a major city: a qualitative study.","authors":"Celestin Ndikumana","doi":"10.1080/17482631.2024.2350729","DOIUrl":"10.1080/17482631.2024.2350729","url":null,"abstract":"<p><strong>Purpose: </strong>Suburbanization has become a major characteristic of urban development in sub-Saharan Africa, and shifting from agricultural-based areas modus vivendi to urban lifestyles affects subjective wellbeing of the original settlers. While there is lack of evidence in the literature of wellbeing in these areas, this study examines life satisfaction of these populations by means of individuals' own appreciation and evaluation of quality of life.</p><p><strong>Methods: </strong>The study uses interpretionist and reflexive approaches, and analyses 76 interviews conducted through snowball sampling in two major suburbanized areas. Thematic analysis was used to analyse the data.</p><p><strong>Results: </strong>Generally, the findings show that respondents are satisfied with material living conditions due to improvement of availability of economic opportunities, roads and other transport services, social and community support. However, income inequality and urban poverty result in the inability to afford modern and high-quality urban living conditions, which creates feelings of vulnerability while limiting social relationships.</p><p><strong>Conclusions: </strong>There is a need to strenghten existing frameworks to fully respond to urban life requirements that relate to transport, education, hygiene, and sanitation services. It is also important to develop support systems that mitigate issues of gender discrimination, human rights, household decision-making, fashion, and cultural norms.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11086026/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140899700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lars Garpenhag, Anders Halling, Susanna Calling, Linn Rosell, Anna-Maria Larsson
{"title":"\"Being ill was the easy part\": exploring cancer survivors' reactions to perceived challenges in engaging with primary healthcare.","authors":"Lars Garpenhag, Anders Halling, Susanna Calling, Linn Rosell, Anna-Maria Larsson","doi":"10.1080/17482631.2024.2361492","DOIUrl":"10.1080/17482631.2024.2361492","url":null,"abstract":"<p><strong>Purpose: </strong>Cancer survivors experience barriers to primary healthcare (PHC) services. The aim was to explore reactions to and opinions about perceived challenges associated with PHC access and quality among cancer survivors in Sweden, including how they have acted to adapt to challenges.</p><p><strong>Methods: </strong>Five semi-structured focus group interviews were conducted with cancer survivors (<i>n</i> = 20) from Skåne, Sweden, diagnosed with breast, prostate, lung, or colorectal cancer or malignant melanoma. Focus groups were mixed in regard to diagnosis. Data were analysed using a descriptive template analysis approach.</p><p><strong>Results: </strong>In light of perceived challenges associated with access to adequate PHC, participants experienced that they had been forced to work hard to achieve functioning PHC contacts. The demands for self-sufficiency were associated with negative feelings such as loneliness and worry. Participants believed that cancer survivors who lack the ability to express themselves, or sufficient drive, risk missing out on necessary care due to the necessity of being an active patient.</p><p><strong>Conclusions: </strong>The findings highlight negative patient experiences. They have implications for the organization of care for cancer survivors as they indicate a need for more efficient post-treatment coordination between cancer specialist care and PHC providers, as well as increased support for patients leaving primary cancer treatment.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11146241/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141200624","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research circles as a method for implementing new services in the public health and welfare system.","authors":"Birthe Møgster, Ottar Ness, Monika Alvestad Reime","doi":"10.1080/17482631.2024.2366087","DOIUrl":"10.1080/17482631.2024.2366087","url":null,"abstract":"<p><strong>Background: </strong>Co-creation has become a guiding principle in public service innovation, but more knowledge is still needed on overcoming barriers and increasing the effectiveness of co-creation processes. This study explores the research circle method as a concrete methodology for co-creation, and its application within two cases involving the implementation of new services for drug death-bereaved persons in Norway based on new research-based knowledge.</p><p><strong>Method: </strong>The study followed an action research design. The field notes and audio recordings were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>The analysis identified two key dimensions experienced as important for the implementation of the new services when research circles were used as a method for co-creation: 1) the inclusion of participants from different contexts and 2) support structures for service interventions.</p><p><strong>Discussion: </strong>Research circles are discussed as an important support structure for promoting public value co-creation that can contribute to increasing stakeholders' capacity for implementing services in the public system, especially when the focus is on the perspectives and interests of stakeholders, such as practitioners and management in public health and welfare services. However, the discussion also points to barriers relating to the co-creation process that need to be considered when planning research circle-based interventions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11172250/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health, human rights and freedom at stake? A critical discourse analysis of the Swedish media debate on the national COVID-19 pandemic strategy.","authors":"Malin Hallén, Kristina Tryselius","doi":"10.1080/17482631.2024.2387842","DOIUrl":"10.1080/17482631.2024.2387842","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study is to, in the Swedish media debate, explore the discursive constructions of challenges in human rights and freedoms following the national spatial strategy for health and survival during the COVID-19 pandemic.</p><p><strong>Methods: </strong>The study, inspired by a critical discourse analytic approach, focused particularly on the issues addressed, subject positions, relations and rhetoric. Seventeen opinion articles published in Swedish national newspapers December 2019 - February 2022 were analysed.</p><p><strong>Results: </strong>The main contents were <i>threats to democracy</i>, <i>threats to the freedom and rights of specific groups</i>, and <i>threats to the debate itself</i>. Contents were expressed through three discourse dichotomies: <i>contribution vs interjection, documented vs alarmistic</i>, and <i>active on the stage vs commenting from the balcony.</i></p><p><strong>Conclusions: </strong>Striking about the results is the absence of dialogue, the one-way communication, and the absent politicians. It seems that the analysed debate on the challenges of the Swedish COVID-19 pandemic strategy, based on its impact on overall freedoms and rights, has not been the focus of decision-makers during the pandemic. They have neither addressed the threats highlighted in the articles, nor contributed to the discourse. This is worrying for the long-term maintenance and development of a healthy democracy.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11312986/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141903576","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}