Peter Sand, Emelie Kinberg, Frida Sundberg, Gun Forsander
{"title":"Parents' and children's experiences of participating in a randomized controlled clinical trial: AIDIT-QS.","authors":"Peter Sand, Emelie Kinberg, Frida Sundberg, Gun Forsander","doi":"10.1080/17482631.2024.2408829","DOIUrl":"10.1080/17482631.2024.2408829","url":null,"abstract":"<p><p>Participation in a paediatric, complex randomized controlled trial (RCT) might add to the family burden when a child is diagnosed with a severe disease. Although important, there are only a limited number of papers describing this aspect of research from the family point of view. This study explored parents' and children's experiences of participation in a research study shortly after the child had been diagnosed with type 1 diabetes. Sixteen parents (nine mothers, seven fathers) and nine children were interviewed by an independent researcher about their inducement, the decision-making process within the family which led to their participation, and their experience of having done so. The result showed that the parents wanted to contribute to improve treatment for children with diabetes in general but also specifically for their own child. Older children were more involved in the decision making than the younger children. Study information needs to be communicated clearly and effectively since decision-making based on information of a clinical trial directly after the child's diabetes onset proved difficult. Being randomized to the intervention group in this specific study was considered somewhat burdensome. However, parental participants in both intervention and control group claimed that they would recommend participation in research studies to other parents in a similar situation, and so did the children. There was no difference between the mothers' and fathers' experiences.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2408829"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11451326/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lene Nygaard, Deborah Lee Davis, Inge Olga Ibsen, Maiken Pontoppidan, Ellen Aagaard Nøhr, Dorthe Susanne Nielsen
{"title":"Care professionals' experiences within a multidisciplinary and cross-sectorial intervention for childbearing women and families in vulnerable positions: a focus group study.","authors":"Lene Nygaard, Deborah Lee Davis, Inge Olga Ibsen, Maiken Pontoppidan, Ellen Aagaard Nøhr, Dorthe Susanne Nielsen","doi":"10.1080/17482631.2024.2410503","DOIUrl":"https://doi.org/10.1080/17482631.2024.2410503","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study was to gain a deeper understanding of the experiences and perspectives of care professionals in multidisciplinary and cross-sectorial collaboration, and their experiences of interactions with childbearing families within the context of the FACAM project.</p><p><strong>Methods: </strong>Eight focus groups were conducted with 32 multidisciplinary care professionals working with childbearing families in vulnerable positions. A thematic analysis was conducted, with positioning theory as the theoretical framework focusing on storylines, positioning and speech-acts.</p><p><strong>Results: </strong>Two overall themes were constructed. Theme one: Cross-sectorial collaboration and the influence on the care provided. Theme two: Interaction with and assessment of women and families' care needs and their influence on the care provided, with three subthemes; a) Establishment of a trustful relationship, b) Assessments of vulnerable positions in relation to function in everyday life, c) Interactions with the woman or family depending on their needs.</p><p><strong>Conclusion: </strong>Care professionals found needs-adapted and tailored care meaningful. Well-functioning multidisciplinary and cross-sectorial collaboration was important to support the families.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2410503"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11486020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Isobel Fishman, Suzanne Henderson, Christina Vadeboncoeur
{"title":"Research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study.","authors":"Isobel Fishman, Suzanne Henderson, Christina Vadeboncoeur","doi":"10.1080/17482631.2024.2419158","DOIUrl":"https://doi.org/10.1080/17482631.2024.2419158","url":null,"abstract":"<p><strong>Purpose: </strong>Since the COVID-19 pandemic, a paediatric network study with clinical sites across Canada suffered a reduction in participation. When research studies fail to meet enrolment targets, it can reduce the strength and validity of the results. This study explores research staff's experiences of how the COVID-19 pandemic impacted recruitment for a paediatric network study.</p><p><strong>Methods: </strong>This study was conducted using a qualitative design. Focus group sessions were used to gain the perspective of research staff involved in recruitment and transcripts were analysed using Colaizzi's seven-step method of data analysis.</p><p><strong>Results: </strong>Analysis revealed four major themes: (1) the COVID-19 pandemic had an impact on research activity; (2) families of children with medical complexity perform a risk-benefit assessment when deciding whether to take part in research; (3) a trusting relationship with clinicians is a key factor in research recruitment; and (4) research needs to be flexible in order to adapt to evolving contexts.</p><p><strong>Conclusion: </strong>This study identified both COVID-19 and non-COVID-19-related factors that impacted study recruitment for a paediatric network study. Understanding and addressing these challenges will mitigate the negative impacts on health outcomes that can occur when research studies fail to meet enrolment targets.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2419158"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11497574/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Birthe Loa Knizek, James Mugisha, Eugene Kinyanda, Julia Hagen, Heidi Hjelmeland
{"title":"\"When you are alone you have a narrow mind, but when you are with others you think broader into the other aspects\". A qualitative study on the role of sense of belonging and mattering in attempted suicide in Uganda.","authors":"Birthe Loa Knizek, James Mugisha, Eugene Kinyanda, Julia Hagen, Heidi Hjelmeland","doi":"10.1080/17482631.2024.2424012","DOIUrl":"10.1080/17482631.2024.2424012","url":null,"abstract":"<p><strong>Introduction: </strong>Suicide is globally a severe problem with an estimated 700.000 deaths annually. Six of the 10 countries with the highest suicide rates worldwide are in Africa, though, reliable statistics are scarce.</p><p><strong>Method: </strong>In this qualitative interview study in Uganda, we analysed the stories of 16 people admitted to hospital following a serious suicide attempt. We focussed especially on each person's decision process towards their resolution to attempt suicide.</p><p><strong>Findings: </strong>Despite the huge heterogeneity of the narratives, we could identify problems regarding the sense of belonging and mattering in all the stories. Both the sense of belonging and mattering have been related to suicidal behaviour in earlier theories, but they were never studied together or under consideration of the influence of this specific cultural context. We found that the participants' sense of belonging and mattering to a large degree was influenced by their traditional communalistic context with a worldview where the line between the natural and spiritual world was blurry.</p><p><strong>Conclusion: </strong>This kind of knowledge could be a valuable source for health professionals in their treatment of suicidal persons; it could direct their approach to the core of each person's relational problems and meaning-making, which is crucial for their decisions with regard to suicide.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2424012"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11536612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142565186","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lotte Kring, Evald Iversen, Bjarne Ibsen, Michael Fehsenfeld
{"title":"Exploring the impact of stressful life events on quality of life: meaning making and narrative reconstruction.","authors":"Lotte Kring, Evald Iversen, Bjarne Ibsen, Michael Fehsenfeld","doi":"10.1080/17482631.2024.2330117","DOIUrl":"10.1080/17482631.2024.2330117","url":null,"abstract":"<p><strong>Purpose: </strong>Stressful life events have the capacity to disrupt an individual's worldview and life goals, leading to existential questions and identity loss. The subjective perception of identity is intricately linked with quality of life (QoL), and how individuals derive meaning from these stressful life events significantly influences their well-being. This article explored the impact of stressful life events on individuals' QoL, and examined the potential for enhancing QoL through meaning making and narrative reconstruction.</p><p><strong>Methods: </strong>Qualitative interviews were conducted with 11 individuals reporting diminished QoL and analysed using thematic analysis.</p><p><strong>Results: </strong>The study reveals that stressful life events confront interviewees with the vulnerability of their values in life and the limits of their control, leading them to question their own beliefs and purpose in life. Consequently, these events prompt individuals to reconstruction their narratives to adapt to new life circumstances.</p><p><strong>Conclusions: </strong>The study suggests that \"securing the base,\" including strong social relations and security in economic and housing conditions, is a prerequisite for enhancing QoL. The insights on \"the base\" have profound implications for QoL. Recognizing their fundamental importance, policymakers, healthcare professionals, and social service providers can support mechanisms to enhance these foundations, improving overall well-being for individuals and communities.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2330117"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10964830/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140208221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Higher education as a pathway for female immigrants' establishment and well-being in Sweden.","authors":"My Blomberg, Jennie Ryding, Krister Hertting","doi":"10.1080/17482631.2024.2365443","DOIUrl":"10.1080/17482631.2024.2365443","url":null,"abstract":"<p><strong>Purpose: </strong>This study focuses on higher education as a pathway to establishment in a new society for female immigrants and its role in well-being. Building on previous research that highlights social capital and empowerment as significant factors for successful establishment in a new society, and experiencing well-being, this study aims to explore if higher education can promote female immigrants' establishment in Swedish society.</p><p><strong>Methods: </strong>Interviews were used to explore female immigrants' experiences of higher education and establishment in Swedish society. Thematic analysis was used to analyse the empirical material, generating a nuanced understanding of the studied topic.</p><p><strong>Results: </strong>Higher education was found to promote establishment in Swedish society, ultimately leading to an experience of well-being. Pursuing higher education was perceived as a means of achieving personal fulfilment and success while fostering new social connections. Important factors in pursuing higher education included favourable living conditions, personal motivation, and a positive educational attitude.</p><p><strong>Conclusion: </strong>The study provides insights into female immigrants' higher education experiences in a context that promotes establishment in Swedish society and well-being. However, more research is needed to fully investigate the driving factors for female immigrants pursuing higher education, considering their migrant background and living conditions.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2365443"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11177707/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anne Helene Mortensen, Dagfinn Nåden, Dag Karterud, Ann Gallagher, Vibeke Lohne
{"title":"A qualitative study of family members' perspectives regarding decision-making for nursing home residents' care.","authors":"Anne Helene Mortensen, Dagfinn Nåden, Dag Karterud, Ann Gallagher, Vibeke Lohne","doi":"10.1080/17482631.2024.2370545","DOIUrl":"10.1080/17482631.2024.2370545","url":null,"abstract":"<p><strong>Purpose: </strong>We explored how family caregivers perceive decision-making regarding the care of nursing home residents.</p><p><strong>Methods: </strong>This qualitative study used Flemming's Gadamerian-based research method. In person semi-structured interviews about decision-making concerning residents' care were conducted with 13 family members (nine women, four men) of residents of three Norwegian nursing homes.</p><p><strong>Findings: </strong>The following themes emerged: Excessive focus on autonomy threatens resident wellbeing and safety. Resident wellbeing is the caregiver's responsibility. Resident wellbeing serves as a guiding principle.</p><p><strong>Conclusions: </strong>The family members of residents and the nursing home caregivers disagreed about the significance of upholding resident autonomy to respect residents' dignity. The family members held that not all instances where residents refused care reflect autonomy situations as care refusal often does not reflect the resident's true values and standards but rather, stems from barriers that render necessary care actions difficult. In situations where residents refuse essential care or when the refusal does not align with the residents second-order values, the family members suggested that caregivers strive to understand the causes of refusal and seek non-coercive ways to navigate it. Hence, the family members seemed to endorse the use of soft paternalism in nursing homes to safeguard residents' wellbeing and dignity.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2370545"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11195484/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141437751","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lisa Herulf Scholander, Sofia Vikström, Anne-Marie Boström, Staffan Josephsson
{"title":"Inquiring into conditions for engaging in narrative relations on a geriatric ward - how interpretation matters in everyday practices.","authors":"Lisa Herulf Scholander, Sofia Vikström, Anne-Marie Boström, Staffan Josephsson","doi":"10.1080/17482631.2024.2367851","DOIUrl":"10.1080/17482631.2024.2367851","url":null,"abstract":"<p><p>Drawing on data from ethnographic fieldwork and interprofessional focus group discussions, this study enquires into staff's everyday life on a geriatric ward to explore and understand conditions for engaging in narrative relations in in-patient geriatric care. Avoiding individualistic understandings of narrative practices, we applied a narrative-in-action methodology built on a relational understanding of narrativity, where individual narratives are not separated from social and cultural features. This helped us explore how individual interpretations of the conditions for everyday practices come together with broader social or cultural understandings to gain situated insights about how these are continuously related and reformed by one another in everyday situations of geriatric care. The findings offer insights into the opportunities to engage in narrative relations based on how healthcare staff on a geriatric ward interpret conditions for their practices, and how they act based on such interpretations. While some interpretations were associated with attitudes and activities encouraging narrative relations, others simultaneously thwarted narrative relations by enacting task-orientation, division, or a focus on measurable biomedical or function-related outcomes. Moreover, the findings suggest and discuss consequences of the tensions created as interpretations are enacted in everyday healthcare situations, thus questioning assumptions about conditions as something static and linear.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2367851"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11177706/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Undergraduates' knowledge, attitudes, and behaviours associated with fad diets.","authors":"Andrea T Kozak, Noah Garber, Virginia Uhley","doi":"10.1080/17482631.2024.2309687","DOIUrl":"10.1080/17482631.2024.2309687","url":null,"abstract":"<p><strong>Purpose: </strong>We aimed to determine undergraduate students' use and knowledge of fad diets as well as examine how appealing students found these diets given the goal of rapid weight loss and/or improved health. Twenty-three students from a Midwestern university (mean age = 19.2, mean BMI = 27.35, 69.6% female) were recruited through new student orientations for this qualitative study. Approximately 52% of participants identified as White, 30% as Black, 13% as Asian, and 4% as multi-racial.</p><p><strong>Methods: </strong>Knowledge and opinions about fad diets were collected via focus groups and individual interviews. Coding of transcripts was conducted by hand using the constant comparative method and data were analysed based on grounded theory.</p><p><strong>Results: </strong>Two primary themes emerged: very negative views of fad diets and the importance of healthy eating. Although few participants had tried fad diets, they thought these diets: 1) did not lead to sustained weight loss, 2) were associated with disappointment and health issues, and 3) were money-making schemes delivered heavily through social media. Participants also valued healthy eating.</p><p><strong>Conclusion: </strong>Experimental studies are needed to examine how healthy eating among university students can be supported through credible sources, accurate information, and established connections via innovative social media platforms.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2309687"},"PeriodicalIF":2.1,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10829839/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139643322","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Birgitte Westerskov Dalgas, Karsten Elmose-Østerlund, Thomas Viskum Gjelstrup Bredahl
{"title":"Exploring basic psychological needs within and across domains of physical activity.","authors":"Birgitte Westerskov Dalgas, Karsten Elmose-Østerlund, Thomas Viskum Gjelstrup Bredahl","doi":"10.1080/17482631.2024.2308994","DOIUrl":"10.1080/17482631.2024.2308994","url":null,"abstract":"<p><strong>Purpose: </strong>This study explored variations in adults' experience of satisfaction, unfulfilment and frustration of basic psychological needs within and across four domains of physical activity: Transport, household, occupation, and recreation.</p><p><strong>Methods: </strong>We utilized a qualitative approach, conducting semi-structured interviews with a diverse group of 42 Danish adults. The participants ranged in age from 16 to 79 years (mean age 49 years, SD 21 years), gender (45% men, 55% women), and physical activity levels (38% low, 33% average, 29% high). Data were analysed using a thematic analysis, applying Self-Determination Theory as the guiding framework.</p><p><strong>Results: </strong>In the Transport domain, while most activities were seen as utilitarian necessities, autonomy satisfaction emerged for some through control over their means of transport. In Household domain, tasks were generally viewed as obligatory; however, activities with personal significance led to autonomy satisfaction and skill development. Occupation-wise, physical activity satisfaction varied, with the nature of the job impacting feelings of autonomy and competence. For Recreation domain, personal choice dictated autonomy satisfaction, with competence and relatedness varying according to goal achievement and social interactions.</p><p><strong>Conclusion: </strong>The variations in the findings across domains indicate the effectiveness of applying strategies tailored to specific domains for enhancing need satisfaction.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"19 1","pages":"2308994"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10854434/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139703985","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}