International Journal of Qualitative Studies on Health and Well-Being最新文献_第5页

"The wind does not go the way the ship wants!": stress and social support in Syrian migrant adolescents. "风向不随船！"：叙利亚移民青少年的压力与社会支持。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-17 DOI: 10.1080/17482631.2025.2467514

Onat Yetim, Lut Tamam, Rabia Maria Küçükdağ, İlham Sebea Alleil

{"title":"\"The wind does not go the way the ship wants!\": stress and social support in Syrian migrant adolescents.","authors":"Onat Yetim, Lut Tamam, Rabia Maria Küçükdağ, İlham Sebea Alleil","doi":"10.1080/17482631.2025.2467514","DOIUrl":"10.1080/17482631.2025.2467514","url":null,"abstract":"Purpose: Previous studies reveal the importance of proximal context and social environment in the adaptation and resilience of immigrant adolescents. Syrian immigrant youth in Turkey face stressors such as acculturation, discrimination, and economic problems. However, more qualitative research is needed to examine the unique stressors and coping processes of Syrian immigrant youth and the social networks that support them. This study aimed to uncover the relevant unique relationships.Method: The study involved 24 Syrian migrant adolescents aged 12-18, with four focus group interviews conducted from April to May 2024. Data were analyzed using Interpretative Phenomenological Analysis (IPA).Conclusions: The themes related to sources of stress were (a) life struggle, (b) peer relationships, (c) future anxiety, (d) social barriers, and the social support mechanisms in times of stress were discovered as (a) family (b) clergy and religious rituals (c) non-governmental organizations (d) school counselors. The results of our study shed light on the fact that Syrian migrant youth experience significant socioeconomic difficulties and are forced to leave formal education and work in unequal conditions. Our study also revealed that youths have difficulties in accessing education, health, and professional psychological support services due to perceived discrimination in public institutions such as schools and hospitals.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2467514"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11837916/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Lived experiences of life with newly diagnosed advanced cancer - a qualitative interview study. 新诊断的晚期癌症患者的生活经历-一项定性访谈研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-27 DOI: 10.1080/17482631.2025.2453296

Johanna Swenne, Ricko Damberg Nissen, Torben Frøstrup Hansen, Lars Henrik Jensen, Jens Søndergaard, Mette Stie

{"title":"Lived experiences of life with newly diagnosed advanced cancer - a qualitative interview study.","authors":"Johanna Swenne, Ricko Damberg Nissen, Torben Frøstrup Hansen, Lars Henrik Jensen, Jens Søndergaard, Mette Stie","doi":"10.1080/17482631.2025.2453296","DOIUrl":"10.1080/17482631.2025.2453296","url":null,"abstract":"Background: Incurable cancer significantly affects an individual's life, requiering comprehensive palliative care (PC). With early PC now recommended but poorly integrated, it is essential to address patients' experiences and concerns to ensure successful early PC integration.Aim: This study aims to investigate the experiences of life in the initial period following a diagnosis of incurable cancer to inform early PC integration.Methodology: The study employed a phenomenological hermeneutical framework, drawing inspiration from interpretive descriptive methodology. Thirteen participants diagnosed with incurable cancer were purposively recruited. Data were generated through semi-structured, in-depth interviews exploring patients' experiences of lived life, their needs and wishes. Data analysis followed an iterative process of constant comparison and thematic development.Results: One main theme was identified throughout the analysis: Standing still in the storm. Three sub-themes were identified reflecting varying manifestations innhow doing so, and navigating their challenging circumstances. peace: 1) The urge to take action, 2) Clarity and awakening in the face of reality, and 3) Changed self-perception. As their understanding of their illness deepened, the patients experienced a shift towards reconciliation.Conclusion: The experiences of patients living with incurable cancer reveal a complex interplay of psychological, emotional, and existential responses. It is essential that healthcare professionals address existential concerns within clinical care. By acknowledging and supporting patients' existential struggles, discussions about sensitive topics becomes more natural and better recieved by the patients. .","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2453296"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11774151/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143048567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Older people's day centres' preventive work: views of day centre providers and their stakeholders. 长者日间中心的预防工作：日间中心提供者及其持份者的意见

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-05-13 DOI: 10.1080/17482631.2025.2500852

Kritika Samsi, Katharine Orellana

{"title":"Older people's day centres' preventive work: views of day centre providers and their stakeholders.","authors":"Kritika Samsi, Katharine Orellana","doi":"10.1080/17482631.2025.2500852","DOIUrl":"10.1080/17482631.2025.2500852","url":null,"abstract":"Purpose: Day centres in England provide important social support to people living in the community. Our study aimed to further understandings of day centres' contribution to health and social care's preventive agenda.Methods: After obtaining ethical approval, we conducted qualitative interviews with 10-day centre stakeholders and 9 professional stakeholders, exploring their perceptions of day centres' preventive function. Participants' job roles provide context, while individual characteristics are anonymized.Results: Thematic analysis identified that day centre staff and volunteer activities to monitor attenders and intervene when needed align with the primary, secondary and tertiary prevention framework. A fourth theme, systemic opportunities, incorporates evidence, joint working and challenges.Conclusions: Day centres for older people can be well-placed to contribute to integrated care's prevailing preventive agenda. However, tight budgets and limited joint commissioning practices potentially miss the benefits of anticipatory care day centres may offer to maintaining well-being and preventing deterioration.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2500852"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12077476/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144026165","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A dual perception of an ageing orofacial appearance- an interview study. 对衰老或面部外观的双重感知-一项访谈研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-06-08 DOI: 10.1080/17482631.2025.2516618

Sara Henricsson, Nina Lundegren, Viveca Wallin Bengtsson, Pia Andersson

{"title":"A dual perception of an ageing orofacial appearance- an interview study.","authors":"Sara Henricsson, Nina Lundegren, Viveca Wallin Bengtsson, Pia Andersson","doi":"10.1080/17482631.2025.2516618","DOIUrl":"10.1080/17482631.2025.2516618","url":null,"abstract":"Objective: This study aimed to explore how people aged 65 years and older experience their orofacial appearance (OA).Method: Semi-structured interviews were conducted with 20 strategically recruited participants aged 65-79 years from the Swedish National Study on Aging and Care-Blekinge (SNAC-B) in Karlskrona. A semi-structured interview guide was developed, and the interviews were analysed using thematic analysis to identify patterns in the data.Results: The older adults' experience of their OA was represented in four themes: (i) you kind of have to like the situation as it is now-to accept orofacial appearance in its current state; (ii) an ageing orofacial appearance-a slow continuous downhill slope; (iii) looking good for others to fit the social norm; and (iv) keeping up orofacial appearance-seemingly without effort.Conclusion: The older adults in this study had a dual perception in relation to their own OA. Although society often values a younger looking appearance, striving for a youthful appearance is seen negatively, which may potentially reflect the complexities of the perceptions of one's own ageing OA. Only those with dental issues found the impact of teeth on OA perception to be particularly significant.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2516618"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12147477/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Living in an invaded existence: a phenomenological lifeworld study of young women's experiences of peer-perpetrated sexual violence in Sweden. 生活在被侵犯的存在中：瑞典年轻女性同侪性暴力经历的现象学生活世界研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-07-08 DOI: 10.1080/17482631.2025.2530749

Jenni Isaksson, Maria Lundvall, Lina Palmér

{"title":"Living in an invaded existence: a phenomenological lifeworld study of young women's experiences of peer-perpetrated sexual violence in Sweden.","authors":"Jenni Isaksson, Maria Lundvall, Lina Palmér","doi":"10.1080/17482631.2025.2530749","DOIUrl":"10.1080/17482631.2025.2530749","url":null,"abstract":"Purpose: In Sweden, one in four young women has experienced peer-perpetrated sexual violence. This kind of violence causes significant suffering, negatively impacting health and well-being. This study explores young women's lived experiences of peer-perpetrated sexual violence, aiming to deepen the understanding of how recovery and well-being can be supported.Methods: This phenomenological study is based on a reflective lifeworld research approach. Lifeworld interviews with 12 young women (17-25 years old) with a lived experiences of peer-perpetrated sexual violence were conducted.Results: The essential meaning of the phenomenon is described as \"living in an invaded existence where an existential void arises and where the movement of life is disrupted.\" This is further described as: existing in a body constantly under attack, viewing the body as an object, fighting an inner battle-a struggle for survival, silence as armour, and navigating a dangerous world.Conclusions: Sexual violence disrupts life, creates existential wounds, alters young women, and reshapes their views of themselves and the world. For health care professionals, it is important to apply an existential caring approach, in which existential awareness is central to the ability to encounter these women in a unique and meaningful way.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2530749"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12239236/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144592908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"The doctors and nurses looked like aliens': a qualitative study on the subjective hospitalization experiences of severe COVID-19 patients in Slovakia". “医生和护士看起来像外星人”：斯洛伐克新冠肺炎重症患者主观住院经历的定性研究

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-10 DOI: 10.1080/17482631.2024.2438831

Peter Halama, Jana Tencerová, Branislav Uhrecký

{"title":"\"The doctors and nurses looked like aliens': a qualitative study on the subjective hospitalization experiences of severe COVID-19 patients in Slovakia\".","authors":"Peter Halama, Jana Tencerová, Branislav Uhrecký","doi":"10.1080/17482631.2024.2438831","DOIUrl":"10.1080/17482631.2024.2438831","url":null,"abstract":"Due to the need to hospitalize a large number of patients during the COVID-19 pandemic, the psychological conditions of hospitalized patients were often overlooked. This study focuses on the qualitative analysis of the subjective experiences of patients with a severe COVID-19 disease in Slovakia during hospitalization. A total of 27 Slovak participants (11 men and 16 women, mean age 57.10 years) who were hospitalized with severe COVID-19 disease were interviewed about their subjective experiences during hospitalization. The data was analysed using thematic analysis. The main themes included negative emotions such as distress, discomfort with the illness, discomfort with the medical environment and helplessness. The main sources of distress were the sense of isolation, witnessing the death of another patient, own death concerns, and concerns for others. Sources and strategies used by patients to improve their mental state included interpersonal resources such as contact with relatives and friends, instrumental support from them, mutual help among patients and professional psychological support. Interpersonal resources included optimism, hope, religion and spirituality, recollection of significant others, and reconciliation with the possibility of death. The results have implications for medical staff as they help them to understand the psychological state of COVID-19 patients during hospitalization and can inform psychological interventions to improve hospital care for these patients.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2438831"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11633432/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relating to life and death a qualitative study of individuals with a long-lasting death wish related to unbearable psychiatric suffering. 关于生与死：对与无法忍受的精神痛苦有关的长期死亡愿望的个人进行的定性研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-26 DOI: 10.1080/17482631.2025.2469361

Sofie Verdegem, Anke Rens, Joris Vandenberghe, Jessie Dezutter, Thijs Vanhie, Luc Bemelmans, Siebrecht Vanhooren

{"title":"Relating to life and death a qualitative study of individuals with a long-lasting death wish related to unbearable psychiatric suffering.","authors":"Sofie Verdegem, Anke Rens, Joris Vandenberghe, Jessie Dezutter, Thijs Vanhie, Luc Bemelmans, Siebrecht Vanhooren","doi":"10.1080/17482631.2025.2469361","DOIUrl":"10.1080/17482631.2025.2469361","url":null,"abstract":"Objective: This study describes the lived experiences of persons with a long-lasting death wish related to unbearable psychiatric suffering (DWUPS) regarding their relationship to life and death. The findings are evaluated considering existing literature on suicidality and euthanasia, with a particular focus on the humanistic-existential perspective.Method: An open-ended data-gathering strategy was employed to elicit comprehensive descriptive information about the phenomenon from ten in-depth interviews, applying the method of generic descriptive-interpretative qualitative research.Results: Persons with DWUPS experience difficulties in connection with others, with themselves, with the world and with life itself. Concurrently, they indicate new possibilities for nascent connection in relation to others by receiving support and being able to share their death wish. This can result in growth in relation to themselves, in allowing hope, meaning and new engagement in life. The desire to die manifests itself in a variety of ways, including a strong and persistent death wish, an ambivalent attitude, or a temporary suspension of their death wish.Conclusion: The process of exploring the death wish can assist persons with DWUPS in accessing potential ambivalence between life and death, in regulating emotional distress and in bearing existential concerns related to the life-and-death-questions.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2469361"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11866764/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Stories that matter: a qualitative study of general practitioners' reflections and experiences of exploring patients' impactful life stories. 重要的故事：对全科医生的反思和探索病人有影响力的生活故事的经验的定性研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-23 DOI: 10.1080/17482631.2025.2454043

Marianne Rønneberg, Bente Prytz Mjølstad, Lotte Hvas, Linn Okkenhaug Getz

{"title":"Stories that matter: a qualitative study of general practitioners' reflections and experiences of exploring patients' impactful life stories.","authors":"Marianne Rønneberg, Bente Prytz Mjølstad, Lotte Hvas, Linn Okkenhaug Getz","doi":"10.1080/17482631.2025.2454043","DOIUrl":"10.1080/17482631.2025.2454043","url":null,"abstract":"Purpose: There is solid evidence of the impact of life experiences on health. Yet, knowledge of how general practitioners (GPs) relate to patients' stories of such experiences is sparse. This study explored GPs' reflections and experiences concerning managing potentially impactful patient stories.Methods: We conducted four focus group interviews among Norwegian and Danish GPs and analysed them using Reflexive thematic analysis.Results: Three main themes were developed. First, GPs apply various strategies to recognize and unfold impactful stories. Second, they attribute diverse purposes to engaging with these stories, from viewing them as instrumentally useful to recognizing their intrinsic value. These views influence GPs' objectives and strategies when managing impactful stories. The instrumental utility approach can lead to an unfair dismissal of impactful stories. Finally, the commitment of some of the GPs to patients' impactful stories is considered fulfilling and highly satisfactory but also associated with external resistance.Conclusions: Patients and GPs encounter difficulties in addressing impactful stories, which resonate with the theory of epistemic injustice. Nevertheless, engaging with these stories is vital for providing ethically grounded and meaningful primary care. The paper proposes strategies and a conceptual framework to support work with impactful stories in clinical practice.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2454043"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11758800/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030293","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"They are just as different as the rest of us" - a focus group study of primary teachers' perceptions of children with ADHD who struggle socially. “他们和我们其他人一样不同”——一项针对小学教师对患有多动症的儿童在社交上挣扎的看法的焦点小组研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-11 DOI: 10.1080/17482631.2025.2465215

Marie Munch, Signe Hjelen Stige, Steinunn Adólfsdóttir, Lin Sørensen, Berge Osnes

{"title":"\"They are just as different as the rest of us\" - a focus group study of primary teachers' perceptions of children with ADHD who struggle socially.","authors":"Marie Munch, Signe Hjelen Stige, Steinunn Adólfsdóttir, Lin Sørensen, Berge Osnes","doi":"10.1080/17482631.2025.2465215","DOIUrl":"10.1080/17482631.2025.2465215","url":null,"abstract":"Purpose: Difficulties in peer interactions are common among children with ADHD and associated with severe consequences. Prevailing interventions have been criticized for not accounting for the significance of context and for limited effect on important social outcomes. Given the importance of the school environment and the teacher for children's social development, we wanted to explore how teachers perceive their own role and responsibilities when children are struggling socially, and how they intervene in their daily practice.Methods: We conducted semi-structured interviews in five focus groups of primary school teachers in Bergen, Norway and analysed the data through reflexive thematic analysis.Results: We discerned two overarching themes, each with several subthemes. The first theme, \"Monitoring and Attending to Individual Needs in a Context\", represents teachers' perceptions of their role and responsibilities. The second theme, \"Tailoring Interventions Through Continuous Assessments\", represents the teachers' strive to fulfil this role in their everyday practice.Conclusion: Our findings reflect a complex, contextual understanding of social difficulties, acknowledging the uniqueness of each child, regardless of diagnosis. The teachers' practice was characterized by continuous tailoring to accommodate the specific, contextualized needs of each child, both \"behind the scenes\" and trough participating in children's everyday social interactions.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2465215"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11816612/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143392531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The emotional toll of day-of-surgery cancellations on patients - a qualitative study using participant observation and interviews. 手术取消对患者的情绪影响——一项采用参与者观察和访谈的定性研究。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-05-06 DOI: 10.1080/17482631.2025.2502193

Anette Viftrup, Lone Nikolajsen, Sussie Laustsen, Pia Dreyer

{"title":"The emotional toll of day-of-surgery cancellations on patients - a qualitative study using participant observation and interviews.","authors":"Anette Viftrup, Lone Nikolajsen, Sussie Laustsen, Pia Dreyer","doi":"10.1080/17482631.2025.2502193","DOIUrl":"https://doi.org/10.1080/17482631.2025.2502193","url":null,"abstract":"Objectives: To explore patients' experiences of day-of-surgery cancellation and the initial days of the extended waiting period.Methods: A qualitative explorative design inspired by Ricoeur's phenomenological-hermeneutic approach was used. Participant observation of day-of-surgery cancellations and semi-structured follow-up interviews with patients were conducted. Transcribed data were analysed using a Ricoeur-inspired analysis.Results: Five themes emerged from the analysis and interpretation, including \"an unexpected and shocking message-triggering reactions ranging from crying to unclear thinking\", \"shattered mental strength-an emotional rollercoaster marked by exhaustion and concerns\", \"a fragile situation-the need for early, informative and caring management of surgery cancellation\", \"prolonged waiting-feeling stuck and mentally distressed, caught in limbo with one's disease\" and \"known and unknown consequences-a butterfly effect\".Conclusions: Surgery cancellation could be explained as a \"butterfly effect\" causing known and unknown consequences triggered by the initial shock. Various emotional reactions followed the event and patients' mental strength was shattered. Provision of empathic care and information during cancellation notification was essential. The prolonged waiting period subjected patients to a sense of being stuck in limbo, unable to move forward with their lives. Multiple new practical preparations had to be made, and trust in the healthcare sector might be compromised.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2502193"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12057768/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144057609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0