{"title":"多发性硬化症患者的家庭照顾者的尊严方面。","authors":"Dagfinn Nåden, Lillemor Lindwall, Vibeke Lohne","doi":"10.1080/17482631.2025.2468047","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>The focus of this study is on preserved dignity and dignity violation of family caregivers of persons suffering from multiple sclerosis.</p><p><strong>Aim: </strong>The aim of the study was to get a deeper understanding of how family caregivers of persons suffering from multiple sclerosis perceive that their dignity is preserved or deprived.</p><p><strong>Methodology: </strong>A hermeneutic approach was employed.</p><p><strong>Research methods: </strong>The authors conducted research interviews in the form of conversations with eight family caregivers.</p><p><strong>Analysis and interpretation methods: </strong>Our compass and guide in the interpretation process were Gadamer's hermeneutics and the pursuit of the study' purpose.</p><p><strong>Ethical considerations: </strong>The participants were informed of the possibility of being able to withdraw from the study whenever they wished.</p><p><strong>Results: </strong>Preserved dignity through: Doing good for others; Compassion with and bearing burdens of others; Being reconciled with life; Violated dignity caused by insensitive health care professionals, public authorities, health care systems and friends.</p><p><strong>Conclusion: </strong>The family caregivers preserve their dignity by doing good for their loved ones, bearing their burdens and when they become reconciled with life. Their dignity is violated when being met by insensitive healthcare professionals.</p>","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2468047"},"PeriodicalIF":2.1000,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11841095/pdf/","citationCount":"0","resultStr":"{\"title\":\"Aspects of dignity in family caregivers of persons suffering from multiple sclerosis.\",\"authors\":\"Dagfinn Nåden, Lillemor Lindwall, Vibeke Lohne\",\"doi\":\"10.1080/17482631.2025.2468047\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The focus of this study is on preserved dignity and dignity violation of family caregivers of persons suffering from multiple sclerosis.</p><p><strong>Aim: </strong>The aim of the study was to get a deeper understanding of how family caregivers of persons suffering from multiple sclerosis perceive that their dignity is preserved or deprived.</p><p><strong>Methodology: </strong>A hermeneutic approach was employed.</p><p><strong>Research methods: </strong>The authors conducted research interviews in the form of conversations with eight family caregivers.</p><p><strong>Analysis and interpretation methods: </strong>Our compass and guide in the interpretation process were Gadamer's hermeneutics and the pursuit of the study' purpose.</p><p><strong>Ethical considerations: </strong>The participants were informed of the possibility of being able to withdraw from the study whenever they wished.</p><p><strong>Results: </strong>Preserved dignity through: Doing good for others; Compassion with and bearing burdens of others; Being reconciled with life; Violated dignity caused by insensitive health care professionals, public authorities, health care systems and friends.</p><p><strong>Conclusion: </strong>The family caregivers preserve their dignity by doing good for their loved ones, bearing their burdens and when they become reconciled with life. Their dignity is violated when being met by insensitive healthcare professionals.</p>\",\"PeriodicalId\":51468,\"journal\":{\"name\":\"International Journal of Qualitative Studies on Health and Well-Being\",\"volume\":\"20 1\",\"pages\":\"2468047\"},\"PeriodicalIF\":2.1000,\"publicationDate\":\"2025-12-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11841095/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"International Journal of Qualitative Studies on Health and Well-Being\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1080/17482631.2025.2468047\",\"RegionNum\":4,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2025/2/19 0:00:00\",\"PubModel\":\"Epub\",\"JCR\":\"Q2\",\"JCRName\":\"NURSING\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"International Journal of Qualitative Studies on Health and Well-Being","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/17482631.2025.2468047","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2025/2/19 0:00:00","PubModel":"Epub","JCR":"Q2","JCRName":"NURSING","Score":null,"Total":0}
Aspects of dignity in family caregivers of persons suffering from multiple sclerosis.
Background: The focus of this study is on preserved dignity and dignity violation of family caregivers of persons suffering from multiple sclerosis.
Aim: The aim of the study was to get a deeper understanding of how family caregivers of persons suffering from multiple sclerosis perceive that their dignity is preserved or deprived.
Methodology: A hermeneutic approach was employed.
Research methods: The authors conducted research interviews in the form of conversations with eight family caregivers.
Analysis and interpretation methods: Our compass and guide in the interpretation process were Gadamer's hermeneutics and the pursuit of the study' purpose.
Ethical considerations: The participants were informed of the possibility of being able to withdraw from the study whenever they wished.
Results: Preserved dignity through: Doing good for others; Compassion with and bearing burdens of others; Being reconciled with life; Violated dignity caused by insensitive health care professionals, public authorities, health care systems and friends.
Conclusion: The family caregivers preserve their dignity by doing good for their loved ones, bearing their burdens and when they become reconciled with life. Their dignity is violated when being met by insensitive healthcare professionals.
期刊介绍：
International Journal of Qualitative Studies on Health and Well-being acknowledges the international and interdisciplinary nature of health-related issues. It intends to provide a meeting-point for studies using rigorous qualitative methodology of significance for issues related to human health and well-being. The aim of the International Journal of Qualitative Studies on Health and Well-being is to support and to shape the emerging field of qualitative studies and to encourage a better understanding of all aspects of human health and well-being.
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