International Journal of Qualitative Studies on Health and Well-Being最新文献_第4页

More than meets the eye: phenomenological insights into the functioning of people with lipoedema. 比满足眼睛：现象学的见解对人的功能与脂水肿。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-02-20 DOI: 10.1080/17482631.2025.2463157

Lise Maren Kloosterman, Renske Eilers, Aldo Scafoglieri, Ad Hendrickx, Rienk Dekker, Harriët Jager-Wittenaar

{"title":"More than meets the eye: phenomenological insights into the functioning of people with lipoedema.","authors":"Lise Maren Kloosterman, Renske Eilers, Aldo Scafoglieri, Ad Hendrickx, Rienk Dekker, Harriët Jager-Wittenaar","doi":"10.1080/17482631.2025.2463157","DOIUrl":"10.1080/17482631.2025.2463157","url":null,"abstract":"Purpose: The aim of this study was to explore the functioning of people with lipoedema from their perspective.Methods: This was a qualitative study following a phenomenological perspective using individual in-depth interviews with a convenience sample of 13 Dutch people with lipoedema. The data were analysed by using an interpretative phenomenological approach.Results: Two overarching group experiential themes (GETs) were identified: (1) \"physical complaints are only a part of their problems\", and (2) \"longing for improved appearance and functioning\". The GETs were composed of the following subordinate GETs: \"disproportionate functioning of the lower body\", \"navigating daily life with lipoedema\", \"coping with uncertainty\", \"the toll of shame and stigmatization\", \"consequences of a very negative self-image\", \"desire for change and improved appearance and functioning\", and \"an ongoing journey of acceptance\".Conclusions: Participants experience that physical complaints affect daily activities, but with adequate adaptability, participation issues are relatively limited. Instead, shame about their appearance and (fear of) stigmatization mainly leads to social avoidance. Additionally, participants long for freedom to do what they want, wear what they want, and desire a different appearance. Therefore, the experienced level of acceptance of the condition is context- and situation-dependent and not straightforward, which is complicated by the burden of knowing that the condition is chronic.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2463157"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11843652/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143460391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the complexities of slum vulnerability in Haryana, India: a qualitative research journey into economic, social, physical, and health dimensions. 探索印度哈里亚纳邦贫民窟脆弱性的复杂性：经济、社会、物质和健康方面的定性研究之旅。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-15 DOI: 10.1080/17482631.2024.2432692

Manmeet Kaur, Abhishek Sharma, P P Vijin, Rupinder Kaur, Rajbir Kaur, G Anupama, Prabhjot Singh, V K Bansal, Nidhi Sharma, Mona Sahni, Jyoti Gupta, Pvm Lakshmi, Rajesh Kumar

{"title":"Exploring the complexities of slum vulnerability in Haryana, India: a qualitative research journey into economic, social, physical, and health dimensions.","authors":"Manmeet Kaur, Abhishek Sharma, P P Vijin, Rupinder Kaur, Rajbir Kaur, G Anupama, Prabhjot Singh, V K Bansal, Nidhi Sharma, Mona Sahni, Jyoti Gupta, Pvm Lakshmi, Rajesh Kumar","doi":"10.1080/17482631.2024.2432692","DOIUrl":"10.1080/17482631.2024.2432692","url":null,"abstract":"Purpose: The study explores the conditions contributing to slum dweller's vulnerability to poor health and examines interplay between economic, physical/infrastructural, and social factors affecting health status to inform policy and programme.Methods: The methodology deployed for data analysis was mixed deductive-inductive. A deductive framework was adapted for categorizing the data into four broad themes: Economic, Physical/Infrastructure, Social, and Health. Using Braun and Clarke's principle, we also mapped sub themes based on researchers' insights with the experiences shared by the slum populations. The study was conducted across 13 districts in slum areas to gather information from vulnerable groups based on the 40 focus group discussions.Findings: Poverty serves as a primary driver of domestic/internal migration from rural to urban areas, aggravating issues such as illiteracy, unemployment, and inadequate living conditions, which predispose slum dwellers to various health problems. Limited access to food, poor water quality, and improper waste disposal further compound health risks. People living in slums face economic, social, and physical vulnerabilities leading to health vulnerability and outcome.Conclusions: Enhancing the health and well-being of slum dwellers requires adopting an integrated and comprehensive approach of policy intervention, community mobilization, and multisectoral intervention.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2432692"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11650438/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142830822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The tip of an iceberg? Adult children's experiences with parental suicidal behaviour in childhood. 冰山一角？成年子女童年时期父母自杀行为的经历。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-30 DOI: 10.1080/17482631.2025.2459299

Geir Tarje Bruaset, Jennifer Drummond Johansen, Tine K Grimholt

{"title":"The tip of an iceberg? Adult children's experiences with parental suicidal behaviour in childhood.","authors":"Geir Tarje Bruaset, Jennifer Drummond Johansen, Tine K Grimholt","doi":"10.1080/17482631.2025.2459299","DOIUrl":"10.1080/17482631.2025.2459299","url":null,"abstract":"Purpose: This study examined how children exposed to parental suicidal behaviour experienced their parents' suicide attempts, their relationship with their parents, and family life from childhood to adult life.Methods: This qualitative, exploratory study conducted semi-structured interviews with 11 participants recruited from next-of-kin organizations and social media. Open-ended interviews addressed childhood experiences, perceived difficulties, and helpful aspects. Interviews lasted approximately 70 minutes and were recorded and transcribed. Thematic analysis was utilized to analyse the data.Results: We identified two main themes: an unstable, unpredictable upbringing environment and a lifelong responsibility. Participants did not regard their parent's suicide attempt as the most traumatic event of their childhood. Instead, they identified parental instability due to serious mental illness and/or substance abuse as the most stressful factor. This instability imposed significant emotional and practical responsibilities on the children, forcing them to sacrifice their own development and sense of security. Responsibility was characterized as a life lasting burden.Conclusions: Adult children of parents with suicidal behaviour reported that their parent's mental illness was the most burdensome aspect of their upbringing, leading to an unstable home with significant responsibilities. These individuals require professional follow-up and should be offered individual counselling sessions as a clinical intervention.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2459299"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789215/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Cultural differences in diagnosis and treatment perceptions: Turkish collectivistic representations of common mental disorders. 诊断和治疗观念的文化差异：常见精神障碍的土耳其集体主义表现。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-28 DOI: 10.1080/17482631.2025.2459353

Iclal Yildiz, Els Rommes, Enny Das

{"title":"Cultural differences in diagnosis and treatment perceptions: Turkish collectivistic representations of common mental disorders.","authors":"Iclal Yildiz, Els Rommes, Enny Das","doi":"10.1080/17482631.2025.2459353","DOIUrl":"10.1080/17482631.2025.2459353","url":null,"abstract":"Purpose: Attention-deficit/hyperactivity disorder (ADHD) is less diagnosed among Turkish children, and Turkish clients drop out more often from depression treatments than Dutch clients. This article proposes that cultural differences in collectivistic versus individualistic perceptions of getting an ADHD diagnosis and being treated for depression might explain these ethnic disparities, which have been explored in this study.Methods: Nine focus group discussions with Turkish individuals and 18 interviews with primary mental health practitioners were conducted.Results: Findings show that Turkish participants do not view ADHD symptoms as problematic. Parents generally do not want children to be labelled as such and get professional help because they fear this will cause interpersonal problems. Depression is seen as problematic, as it disturbs social relationships and communities. However, Turkish participants prefer mediation to cognitive behavioural therapy, since the latter does not solve interpersonal problems.Conclusions: Our findings highlight a dissonance between individualistic/biomedical and collectivistic/socioecological views on health and wellbeing, in which the focus is on the individual for the Dutch versus the social group for the Turkish. To match Turkish clients' needs, mental health professionals should tread carefully in ADHD labelling. With depression, professionals might consider interventions such as mediation in interpersonal conflicts to improve treatment adherence and outcomes.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2459353"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11780694/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061323","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Advancing virtual and hybrid team well-being through a job demand-resources lens. 从工作需求-资源角度推进虚拟和混合团队的福祉。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-03-13 DOI: 10.1080/17482631.2025.2472460

Cass Coulston, Sukhi Shergill, Ricardo Twumasi, Myanna Duncan

{"title":"Advancing virtual and hybrid team well-being through a job demand-resources lens.","authors":"Cass Coulston, Sukhi Shergill, Ricardo Twumasi, Myanna Duncan","doi":"10.1080/17482631.2025.2472460","DOIUrl":"10.1080/17482631.2025.2472460","url":null,"abstract":"As the modern workplace evolves, the shift to virtual and hybrid team working necessitates a re-evaluation of well-being. While workplace well-being research has predominantly focused on the individual level, understanding team-level well-being is critical, as its underlying psychological and social processes differ. This study applies the Job Demands-Resources (JD-R) framework to virtual and hybrid contexts globally, demonstrating the dual nature of demands and resources at the team level, where the same constructs may contribute to driving positive gain cycles or negative loss cycles of well-being. Through reflexive thematic analysis, we analysed thirty semi-structured interviews with leaders and twenty-nine focus groups with 3-6 team members each (n = 110) across more than twelve industries and geographies. Our findings revealed three candidate themes: \"Choice Matters\", \"It's Business and It's Personal\" and \"Leader as Social Influencer\". This research extends JD-R theory by advancing its applicability to team-level well-being in virtual and hybrid contexts. Practical insights include empowering teams through redesigning work practices to establish sustainable boundaries, aligning communication norms, and fostering inclusive connections that accommodate diverse needs in the modern workplace.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2472460"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11916424/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143617225","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"From my life, she will never be gone, even though she is no longer here" - a single case interpretative phenomenological analysis on spousal loss and resilience. “从我的生命中，她永远不会消失，即使她已经不在了”——配偶丧失与恢复力的单一案例解释性现象学分析。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-03-13 DOI: 10.1080/17482631.2025.2477372

Chloe Beeris, Alistair Niemeijer, Rob Bisseling, Anja Machielse

{"title":"\"From my life, she will never be gone, even though she is no longer here\" - a single case interpretative phenomenological analysis on spousal loss and resilience.","authors":"Chloe Beeris, Alistair Niemeijer, Rob Bisseling, Anja Machielse","doi":"10.1080/17482631.2025.2477372","DOIUrl":"10.1080/17482631.2025.2477372","url":null,"abstract":"Older people often face drastic life events, such as spousal loss, that profoundly affect their daily lives. Consequently, resilience-how one navigates life's changes to avoid further adverse outcomes-is increasingly relevant in ageing studies. Although understanding older adults' resilience is key to preventing adverse outcomes, the complexity of loss-related events and everyday resilience in later life is underexplored from a process-based perspective. This study employs an Interpretative Phenomenological Analysis (IPA) case study of one individual to investigate resilience in response to spousal loss from a process-based perspective. Four interviews were conducted with this one participant and data was analysed following IPA guidelines. Findings indicate how resilience, in this case, resembles a process of continuous adaptation and renewal or \"bouncing forward\", in the face of diverse adversities, as written by Bourbeau. This study enriches our understanding of the process-based perspective on resilience, which is essential for concretely defining resilience and its practical application.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2477372"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11912240/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143617781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents' wellbeing: perceptions of happiness and challenges in parenthood in Latin America. 父母的幸福：拉丁美洲父母对幸福的看法和挑战。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-20 DOI: 10.1080/17482631.2025.2454518

Angel Urbina-Garcia

{"title":"Parents' wellbeing: perceptions of happiness and challenges in parenthood in Latin America.","authors":"Angel Urbina-Garcia","doi":"10.1080/17482631.2025.2454518","DOIUrl":"10.1080/17482631.2025.2454518","url":null,"abstract":"Introduction: Traditional research on parenthood and wellbeing often employs a positivist perspective and focuses on non-LA samples -limiting our knowledge and understanding of the influence of cultural components such as Machismo and Marianismo, have in parents' wellbeing. This study explored how Latin American (LA) parents' wellbeing is influenced by parenthood in a culture strongly influenced by such gender-based perspectives.Methods: An interpretative perspective was employed to qualitatively explore fifteen LA parents' lived experiences and data were analysed via Thematic Analysis. The American Psychological Association's Journal Article Reporting Standards for Qualitative Research (JARS-Qual), was followed to compile this paper.Results: Results showed that socio-economic factors such as crime, violence, and economic inequality, negatively influence parents' wellbeing -emotions experienced and life satisfaction.Discussion: Parents find joy in sharing own personal experiences with their children and passing on gender-based models. However, parents perceive family pressure as a \"burden\" when expected to follow principles of Machismo/Marianismo. Similar to Asian, but unlike European parents, LA parents experience a mixture of positive and negative emotions whilst parenting -shaped by Machismo and Marianismo. This study makes a unique contribution by uncovering the unique influence of LA socio-economic challenges and cultural impositions and expectations and its influence on parental wellbeing.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2454518"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11753012/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143015941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'At the heart of the community' - a Somali woman's experience of 'alignment' of support to escape social isolation in pregnancy and early motherhood. “在社区的中心”——一名索马里妇女在怀孕和初为人母期间获得“一致”支持以避免社会孤立的经历。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2024-12-17 DOI: 10.1080/17482631.2024.2439467

Tom Allport, Hannah Briggs, Fatumo Osman

{"title":"'At the heart of the community' - a Somali woman's experience of 'alignment' of support to escape social isolation in pregnancy and early motherhood.","authors":"Tom Allport, Hannah Briggs, Fatumo Osman","doi":"10.1080/17482631.2024.2439467","DOIUrl":"10.1080/17482631.2024.2439467","url":null,"abstract":"Purpose: Stresses in pregnancy and early motherhood can affect women's health and wellbeing, and babies' development. Migrant women face compounding stressors from the intersection of gender, race, social class, migration, and language. We explored one Somali woman's experience of pregnancy and the transition to motherhood, following migration to an urban environment in the Global North, aiming to understand resilience in this specific socio-cultural context.Methods: This case study used interpretative phenomenological analysis of a single two-hour semi-structured interview with a Somali woman in the UK to explore how this experience may have relevance for communities and practitioners in the Global North.Results: We identified two overarching themes in this woman's experience: \"vicious\" and \"virtuous\" circles, attempting to make sense of her experience of isolation and lack of wellbeing, and subsequent confidence, engagement, and community-building.Conclusions: An experience of \"alignment\" in social relationships appeared to make possible the shift from \"vicious\" to \"virtuous\" circle, which enabled escape from social isolation. This account of transformation-from social isolation to community contribution-underlines the role of community organizations facilitating positive social networks and peer support during pregnancy and early motherhood.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2439467"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11656756/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142848399","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Making people meet: volunteers' contributions to social connection for the well-being of self and others. 让人们见面：志愿者为自己和他人的福祉而对社会联系做出的贡献。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-03-07 DOI: 10.1080/17482631.2025.2476215

Nina Petersen Reed, Julia Hagen

{"title":"Making people meet: volunteers' contributions to social connection for the well-being of self and others.","authors":"Nina Petersen Reed, Julia Hagen","doi":"10.1080/17482631.2025.2476215","DOIUrl":"10.1080/17482631.2025.2476215","url":null,"abstract":"Purpose: Social isolation and loneliness are significant public health challenges that reduce well-being. The voluntary sector is suggested to be an important contributor in reducing loneliness and enhancing social connectedness and well-being in everyday life. This study aimed to contribute knowledge about how volunteers may help promote social connections and well-being, by exploring the experiences and perspectives of volunteers themselves.Methods: We conducted a qualitative study in Norway interviewing nine volunteers. Data was analysed using reflexive Thematic Analysis.Findings: We developed three themes: Being part of and facilitating a variety of meaningful relationships and roles, Creating spaces of trust in places of shared activity, and Calling for more diversity in volunteering while acknowledging challenges.Conclusions: Volunteers' may contribute to social connection and well-being, particularly through arranging social activities where relationships are equal and established spontaneously. Some challenges remain before volunteer activities are fully inclusive for all. Extended organizational support of volunteers may be necessary for recruitment and continuity of volunteer efforts towards some marginalized groups.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2476215"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11892048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143588182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Language - a vital pill missing in patients' treatment: language barriers during cancer care through the eyes of patients and families. 语言——病人治疗中缺失的一颗重要药丸：从病人和家属的角度看癌症治疗中的语言障碍。

IF 2.1 4区医学

International Journal of Qualitative Studies on Health and Well-Being Pub Date : 2025-12-01 Epub Date: 2025-01-13 DOI: 10.1080/17482631.2024.2448127

Lisbeth Birkelund, Karin Brochstedt Dieperink, Morten Sodemann, Johanna Falby Lindell, Karina Dahl Steffensen, Dorthe Susanne Nielsen

{"title":"Language - a vital pill missing in patients' treatment: language barriers during cancer care through the eyes of patients and families.","authors":"Lisbeth Birkelund, Karin Brochstedt Dieperink, Morten Sodemann, Johanna Falby Lindell, Karina Dahl Steffensen, Dorthe Susanne Nielsen","doi":"10.1080/17482631.2024.2448127","DOIUrl":"10.1080/17482631.2024.2448127","url":null,"abstract":"Purpose: When serious illness occurs, effective communication is essential but challenged by language barriers. This study explores how patients with limited Danish proficiency and their families experience language barriers during cancer care in two Danish public hospitals.Method: Adopting a phenomenological-hermeneutic approach, the study stresses narratives in understanding participants' lived experiences. Accordingly, nine qualitative, semi-structured interviews were conducted with 17 informants, including nine patients and eight relatives. The interviews were audio-recorded and transcribed verbatim.Results: Based on analysis, three themes were identified: 1) A history of pain behind the language barrier; 2) Linguistic pain-a feeling of being trapped in mother tongue; and 3) Barriers and pathways to linguistic safety. The findings reveal that painful stories were not only brought into the hospital but continued there. Painful feelings associated with being unable to communicate directly with the healthcare professionals seemed inescapable, but continuity of empathetic care providers, including professional interpreters, increased the well-being of both patients and family members.Conclusion: Language barriers not only make patients more susceptible to misunderstandings and medical errors but amplify experiences of pain during cancer care. The generated knowledge from this study emphasizes language as a foundational element in advancing more equitable cancer care.","PeriodicalId":51468,"journal":{"name":"International Journal of Qualitative Studies on Health and Well-Being","volume":"20 1","pages":"2448127"},"PeriodicalIF":2.1,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11731038/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142973352","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0