Developmental Neurorehabilitation最新文献_第8页

Use of the Physical Abilities and Mobility Scale (PAMS) in Children Receiving Inpatient Rehabilitation for Spinal Cord Related Paralysis. 使用身体能力和活动量表(PAMS)在接受脊髓相关性麻痹住院康复的儿童。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-04-01 DOI: 10.1080/17518423.2021.1962424

Cynthia Salorio, Kelsey Rogers, Erin Neuland, Julie Cagney, Cristina Sadowsky

{"title":"Use of the Physical Abilities and Mobility Scale (PAMS) in Children Receiving Inpatient Rehabilitation for Spinal Cord Related Paralysis.","authors":"Cynthia Salorio, Kelsey Rogers, Erin Neuland, Julie Cagney, Cristina Sadowsky","doi":"10.1080/17518423.2021.1962424","DOIUrl":"https://doi.org/10.1080/17518423.2021.1962424","url":null,"abstract":"Objectives: To investigate the performance of the Physical Abilities and Mobility Scale (PAMS) in children receiving inpatient rehabilitation for paralysis related to spinal cord disease and injury (SCD/SCI).Methods: Participants were 146 children with paralysis related to SCD/SCI, aged 2-21, admitted between January 2010 and 2017 for inpatient rehabilitation at a single free-standing academically affiliated pediatric rehabilitation hospital. Retrospective chart review was performed to obtain admission and discharge scores on the PAMS and the functional independence measure for children (WeeFIM®), collected as part of clinical care. Internal consistency was evaluated using Cronbach's alpha. Inter-rater reliability was evaluated through overall agreement, Pearson correlations, and intraclass correlations. Construct validity was examined through exploratory factor analysis. Criterion validity was explored through correlations of PAMS overall and item scores with WeeFIM® total and subscale scores. Sensitivity to change was tested using paired t-tests examining differences between admission and discharge scores for each item and for the total score on the PAMS.Results: Internal consistency and inter-rater reliability were high (0.94 at admission and 0.95 at discharge). Total PAMS scores are highly correlated with total WeeFIM®, mobility, self-care, and cognitive subscores at admission and discharge. Correlations with the WeeFIM® ranged from low (cognitive) to strong (mobility). Total PAMS score and all individual items increased significantly between admission and discharge.Conclusions: The PAMS is a useful measure capturing incremental and granular functional motor skills changes occurring during inpatient rehabilitation for children with spinal cord-related paralysis.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1962424","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9225224","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Communicating about Mental Health with Youth and Their Families: A Scoping Review of Best Practices and Implications for Youth with Disabilities. 与青年及其家庭沟通心理健康:对残疾青年最佳做法及其影响的范围审查。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-04-01 Epub Date: 2021-08-08 DOI: 10.1080/17518423.2021.1960921

Revi Bonder, Arbella Yonadam, Andrea Snider, Dilshad Kassam-Lallani, Amy C McPherson

{"title":"Communicating about Mental Health with Youth and Their Families: A Scoping Review of Best Practices and Implications for Youth with Disabilities.","authors":"Revi Bonder, Arbella Yonadam, Andrea Snider, Dilshad Kassam-Lallani, Amy C McPherson","doi":"10.1080/17518423.2021.1960921","DOIUrl":"https://doi.org/10.1080/17518423.2021.1960921","url":null,"abstract":"Minimal attention has been placed on supporting the mental health needs of youth with disabilities. Due to a dearth of research on best practices in mental health communication with youth with disabilities, the aim of the scoping review was to identify existing peer-reviewed evidence regarding mental health communication for the general youth population in clinical settings. Three electronic databases were searched. Inclusion criteria were: 1) published in English between 2009 and 2019; 2) children and youth and/or their parents/caregivers; 3) addressed communication-based mental health practices; 4) based in pediatric health care settings. Seven articles were included. Promoting autonomy and engagement, building collaboration and trust, and supplementing conversations with alternative communication approaches were identified as important for having mental health conversations. While implications can be drawn, more work is needed for clinicians to have a rigorous evidence base to draw upon when having these conversations with youth with disabilities.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39290182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Botulinum Toxin Type A in the Spasticity of Cerebral Palsy Related to Congenital Zika Syndrome: An Observational Study. A型肉毒毒素在先天性寨卡综合征相关脑瘫痉挛中的作用:一项观察性研究。

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-04-01 Epub Date: 2021-08-13 DOI: 10.1080/17518423.2021.1960917

Giulia Armani-Franceschi, Cleber Luz, Pedro H Lucena, Danilo d'Afonseca, Henrique Sales, Alessandra L Carvalho, Isadora C Siqueira, Karine Silva, Sandra Portuense, Larissa Monteiro, Igor D Bandeira, Ailton Melo, Rita Lucena

{"title":"Botulinum Toxin Type A in the Spasticity of Cerebral Palsy Related to Congenital Zika Syndrome: An Observational Study.","authors":"Giulia Armani-Franceschi, Cleber Luz, Pedro H Lucena, Danilo d'Afonseca, Henrique Sales, Alessandra L Carvalho, Isadora C Siqueira, Karine Silva, Sandra Portuense, Larissa Monteiro, Igor D Bandeira, Ailton Melo, Rita Lucena","doi":"10.1080/17518423.2021.1960917","DOIUrl":"https://doi.org/10.1080/17518423.2021.1960917","url":null,"abstract":"Purpose: Investigate the effect of botulinum toxin type-A (BoNT-A) on spasticity and motor performance in children with Cerebral Palsy (CP) related to Congenital Zika Syndrome (CZS).Methods: Prospective longitudinal observational study of 34 children with CP referred for BoNT-A treatment. Outcomes were evaluated with a muscle tone assessment scale (Modified Ashworth Scale - MAS) and the Patients' Global Impression of Improvement (PGI-I) scale.Results: Mean age was 32.06 ± 3.07 months and 85% were classified as Gross Motor Function Classification System (GMFCS) V. Primitive reflexes were present in 56% of the sample. The majority of the parents (97.9%) reported improvement in range of motion or reduction in spasticity after treatment with botulinum toxin. No side effects were recorded. When compared to the baseline, median reduction in the MAS was 0.5 (IQR = 0).Conclusions: The findings of this study suggest that BoNT-A may effectively promote functional improvements and reduce muscle tone, improving the child's and family's quality of life.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39309095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationship between Comorbid Psychopathology in Children and Adolescents with Autism Spectrum Disorder and Parental Well-being. 儿童和青少年自闭症谱系障碍共病精神病理与父母幸福感的关系

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-04-01 Epub Date: 2021-05-15 DOI: 10.1080/17518423.2021.1922529

Julia Lanyi, Arlene Mannion, June L Chen, Geraldine Leader

{"title":"Relationship between Comorbid Psychopathology in Children and Adolescents with Autism Spectrum Disorder and Parental Well-being.","authors":"Julia Lanyi, Arlene Mannion, June L Chen, Geraldine Leader","doi":"10.1080/17518423.2021.1922529","DOIUrl":"https://doi.org/10.1080/17518423.2021.1922529","url":null,"abstract":"Aim: Frequency and relationship between child comorbid psychopathology and parental stress, quality of life (QoL), anxiety, depression, and social support were examined in parents of children and adolescents with autism spectrum disorder (ASD).Method: Parents of 152 children and adolescents with ASD completed the Autism Spectrum Disorder-Comorbid for Children, Parenting Stress Index-Short Form, World Health Organization Quality of Life Abbreviated Version, Hospital Anxiety and Depression Scale, and the Multidimensional Scale of Perceived Social Support.Results: A series of one-way multivariate analysis of variance was conducted to examine the relationship between child comorbid psychopathology and parental well-being. A relationship was found between parental QoL, depression and anxiety and child comorbid psychopathology. Results showed a relationship between parental stress and the severity of child conduct, and repetitive behaviors.Conclusion: This study adds to existing literature by demonstrating the relationship between comorbid psychopathology in children and adolescents in ASD and parental well-being.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1922529","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39001500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 7

Reducing fatigue following acquired brain injury: A feasibility study of high intensity interval training for young adults 减轻获得性脑损伤后的疲劳：年轻人高强度间歇训练的可行性研究

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-26 DOI: 10.1080/17518423.2022.2052374

F. L. Dornonville de la Cour, Michelle Barner Bærentzen, Birgit Forchhammer, Sigrid Tibæk, A. Norup

{"title":"Reducing fatigue following acquired brain injury: A feasibility study of high intensity interval training for young adults","authors":"F. L. Dornonville de la Cour, Michelle Barner Bærentzen, Birgit Forchhammer, Sigrid Tibæk, A. Norup","doi":"10.1080/17518423.2022.2052374","DOIUrl":"https://doi.org/10.1080/17518423.2022.2052374","url":null,"abstract":"ABSTRACT The aim was to evaluate feasibility of high-intensity interval training (HIIT) in fatigued adults (20–40 years old) with acquired brain injury (ABI). A prospective pre-post single-arm intervention trial was conducted, including 6–8 months follow-up assessment and interview. Intervention was 18 sessions of intermittent exercise on a cycle ergometer over six weeks. Six out of ten participants without motor impairments completed the intervention (all females, mean age = 30.2 years, months post-injury = 22). On average, participants attended 88% of sessions and achieved high intensity (93% of max heart rate). VO2max improved by 0.53 l/min (SD = 0.29), and participants continued exercising post-intervention. All participants were satisfied with HIIT, were more inclined to exercise, and reported positive effects of exercising for self-management of fatigue. Three sessions a week were demanding to some participants. Findings support feasibility of HIIT as a promising intervention for young adults with post-ABI fatigue.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49568949","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Does music induce interbrain synchronization between a non-speaking youth with cerebral palsy (CP), a parent, and a neurologic music therapist? A brief report 音乐是否能诱导不会说话的脑瘫青年、父母和神经音乐治疗师之间的脑间同步?简短的报告

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-26 DOI: 10.1080/17518423.2022.2051628

K. Kang, S. Orlandi, N. Lorenzen, T. Chau, M. Thaut

{"title":"Does music induce interbrain synchronization between a non-speaking youth with cerebral palsy (CP), a parent, and a neurologic music therapist? A brief report","authors":"K. Kang, S. Orlandi, N. Lorenzen, T. Chau, M. Thaut","doi":"10.1080/17518423.2022.2051628","DOIUrl":"https://doi.org/10.1080/17518423.2022.2051628","url":null,"abstract":"ABSTRACT Shared emotional experiences during musical activities among musicians can be coupled with brainwave synchronization. For non-speaking individuals with CP, verbal communication may be limited in expressing mutual empathy. Therefore, this case study explored interbrain synchronization among a non-speaking CP (female, 18 yrs), her parent, and a music therapist by measuring their brainwaves simultaneously during four music and four storytelling sessions. In only the youth-parent dyad, we observed a significantly higher level of interbrain synchronization during music rather than story-telling condition. However, in both the youth-parent and youth-therapist dyad, regardless of condition type, significant interbrain synchronization emerged in frontal and temporal lobes in the low-frequency bands, which are associated with socio-emotional responses. Although interbrain synchronization may have been induced by multiple factors (e.g., external stimuli, shared empathetic experiences, and internal physiological rhythms), the music activity setting deserves further study as a potential facilitator of neurophysiological synchrony between youth with CP and caregivers/healthcare providers.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48184241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

Agreement Between Alberta Infant Motor Scale Assessment and Maternal Perception of Motor Development in Full-Term Infants 艾伯塔省婴儿运动量表评估与足月婴儿运动发育知觉的一致性

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-20 DOI: 10.1080/17518423.2022.2052373

Rosana Silva Dos Santos, Amanda Otília Oliveira de Lima Barreto, Maria Carolina Chapellem P Barbosa da Silva, Hugo Ormond Vianna Sá Nogueira, R. Peres, Márcia Gonçalves Ribeiro, H. C. Ferreira

{"title":"Agreement Between Alberta Infant Motor Scale Assessment and Maternal Perception of Motor Development in Full-Term Infants","authors":"Rosana Silva Dos Santos, Amanda Otília Oliveira de Lima Barreto, Maria Carolina Chapellem P Barbosa da Silva, Hugo Ormond Vianna Sá Nogueira, R. Peres, Márcia Gonçalves Ribeiro, H. C. Ferreira","doi":"10.1080/17518423.2022.2052373","DOIUrl":"https://doi.org/10.1080/17518423.2022.2052373","url":null,"abstract":"ABSTRACT Objectives To verify the agreement between the Alberta Infant Motor Scale assessment and maternal perception of the motor development in full-term infants. Methods This is a cross-sectional study involving 161 infants and mothers. Children were assessed with the Alberta Infant Motor Scale (AIMS) for motor developmental classification. Mothers completed questionnaires aiming to identify maternal profiles and impressions about their children’s development. The kappa test was used to analyze the concordance between AIMS and mother perceptions. Results A total of 83.2% of the sample was classified as typically developing and 16.8% as suspected or delayed development. The maternal impression indicates that 77% of infants are developing typically, 19.9% perceived their infants’ development as advanced, and 3.1% delayed development. There was low agreement between the mothers’ perceptions and AIMS classifications (kappa = 0.153) Conclusions Maternal perception of their infant’s development was unsatisfactory for evaluation of motor development because their perceptions did not agree with the findings of the AIMS.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44707534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationship among four functional classification systems and parent interpredicted intelligence level in children with different clinical types of cerebral palsy 不同临床类型脑瘫患儿四种功能分类系统与父母预测智力水平的关系

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-18 DOI: 10.1080/17518423.2022.2051629

Sefa Unes, M. Tunçdemir, Cemil Ozal, Ozge Cankaya, Kübra Seyhan Bıyık, K. Delioğlu, C. Gunbey, M. Kerem Gunel, B. Anlar

{"title":"Relationship among four functional classification systems and parent interpredicted intelligence level in children with different clinical types of cerebral palsy","authors":"Sefa Unes, M. Tunçdemir, Cemil Ozal, Ozge Cankaya, Kübra Seyhan Bıyık, K. Delioğlu, C. Gunbey, M. Kerem Gunel, B. Anlar","doi":"10.1080/17518423.2022.2051629","DOIUrl":"https://doi.org/10.1080/17518423.2022.2051629","url":null,"abstract":"ABSTRACT Objective To investigate the relationships between four functional classification systems in children with cerebral palsy (CP) and parent-interpredicted intelligence level, and the functional status in clinical types of CP. Methods Two hundred and twenty-five children with CP ages between 2 and 18 (mean age 6.5 ± 4.4) years included using the Surveillance of CP in Europe (SCPE) database in Turkey. Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication Function Classification System (CFCS) and Eating and Drinking Classification System (EDACS) levels were classified by clinical observation, and intelligence quotient (IQ) was determined by parent reports. Results Correlations were found between all functional levels; the strongest were between GMFCS-MACS (r = 0.784, p < .001), CFCS-EDACS (r = 0.772, p < .001). Strong correlations were found for the IQ-CFCS (r = 0.762, p < .001) and IQ-EDACS (r = 0.634, p < .001). Correlations were stronger in children with bilateral CP and IQ level <70. Conclusions Taken together, these four classification systems and reported IQ levels can adequately describe overall functioning for children with CP. Our results can guide clinicians in the rehabilitation of children with CP.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49093292","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Walking and Fatigue in People with Cerebral Palsy: Brief Report 脑瘫患者的步行与疲劳

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-15 DOI: 10.1080/17518423.2022.2053222

Sarrah Husain, J. Wrightson, Erika Johnson, L. Brunton, E. Condliffe

引用次数: 0

Selecting assessment tools to characterize upper limb function of children with cerebral palsy: A mega-review of systematic reviews 选择评估工具表征脑瘫儿童上肢功能:系统评价的大型综述

IF 1.3 4区医学

Developmental Neurorehabilitation Pub Date : 2022-03-12 DOI: 10.1080/17518423.2022.2046656

Leonardo Vinícius Thomé Teixeira da Silva, Milena Vegas, N. Aquaroni Ricci, Cristina S Cardoso de Sá, S. Alouche

{"title":"Selecting assessment tools to characterize upper limb function of children with cerebral palsy: A mega-review of systematic reviews","authors":"Leonardo Vinícius Thomé Teixeira da Silva, Milena Vegas, N. Aquaroni Ricci, Cristina S Cardoso de Sá, S. Alouche","doi":"10.1080/17518423.2022.2046656","DOIUrl":"https://doi.org/10.1080/17518423.2022.2046656","url":null,"abstract":"ABSTRACT Aim A mega-review of published systematic reviews without restriction on year of publication was implemented to summarize available assessment tools of upper limb (UL) function in children with Cerebral Palsy (CP). Method A multi-prong search strategy was used to identify 12 systematic literature reviews for inclusion in the mega-review. Included reviews were coded by descriptive analyses, which included methodological and reported measurement property description. Methodological quality of the selected systematic reviews was evaluated with the AMSTAR-2. We synthetized the measurement properties of the revised assessment tools and their coverage within the International Classification of Functioning, Disability and Health (ICF) domains. Results The 12 systematic reviews addressed 84 assessment tools. Systematic reviews’ methodological quality varied between critically low to moderate. Suggested assessment tools covered ICF domains of body structure and function, and activities and participation. Measurement property data analysis was based mostly on reliability and validity. Interpretation Based on the findings of the mega-review, the ABILHAND-Kids, Assisting Hand Assessment (AHA) and Melbourne Assessment of Unilateral Upper Limb Function (MUUL) are the most suitable tools to evaluate children between 6 and 12 years of age with unilateral CP.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45780589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0