Giulio E Lancioni, Nirbhay N Singh, Mark F O'Reilly, Jeff Sigafoos, Gloria Alberti, Francesca Campodonico, Valeria Chiariello, Lorenzo Desideri, Serafino Buono
{"title":"Everyday Technology to Help People with Intellectual and Other Disabilities Access Stimulation via Functional Motor Responses and Improved Body Posture.","authors":"Giulio E Lancioni, Nirbhay N Singh, Mark F O'Reilly, Jeff Sigafoos, Gloria Alberti, Francesca Campodonico, Valeria Chiariello, Lorenzo Desideri, Serafino Buono","doi":"10.1080/17518423.2021.1989513","DOIUrl":"https://doi.org/10.1080/17518423.2021.1989513","url":null,"abstract":"<p><strong>Purpose: </strong>This study assessed everyday technology to help eight participants with intellectual and sensory-motor disabilities access stimulation via functional arm/hand responses and improved body posture.</p><p><strong>Methods: </strong>An ABABB<sup>1</sup>BB<sup>1</sup> design was used for each participant, with A representing baseline phases, B intervention phases in which arm/hand responses led to a 12-s stimulation, and B<sup>1</sup> intervention phases in which the stimulation for arm/hand responses was conditional on an improved/correct torso and head posture. The technology involved a Samsung Galaxy A10 smartphone fitted with Google Assistant and MacroDroid, a mini voice-recording device, and a portable mini voice amplifier.</p><p><strong>Results: </strong>All participants had a large increase in arm/hand responses from the baseline periods to the B and B<sup>1</sup> phases. They also had a large increase in correct posture from the B phases to the B<sup>1</sup> phases.</p><p><strong>Conclusion: </strong>This technology-aided approach may be a helpful resource for people similar to the participants of this study.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 1","pages":"59-67"},"PeriodicalIF":1.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39501524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effects of Inspiratory Muscle and Balance Training in Children with Hemiplegic Cerebral Palsy: A Randomized Controlled Trial.","authors":"Büşra Kepenek-Varol, Hülya Nilgün Gürses, Dilara Füsun İçağasıoğlu","doi":"10.1080/17518423.2021.1905727","DOIUrl":"https://doi.org/10.1080/17518423.2021.1905727","url":null,"abstract":"<p><p>The aim of the study was to investigate the effects of inspiratory muscle and balance training on pulmonary function, respiratory muscle strength (RMS), functional capacity, and balance in children with hemiplegic cerebral palsy (CP). Thirty children with hemiplegic CP (Gross Motor Function Classification System I-II) included in this study. The control group (n = 15) underwent conventional physiotherapy rehabilitation program (CPRP) that included balance exercises, and the training group's (n = 15) program included inspiratory muscle training (IMT) in addition to CPRP for 8 weeks. The outcome measures were pulmonary function test, RMS measurement, the six-minute walk test (6MWT), and balance tests. There were no significant differences in the score changes of pulmonary function, balance, and 6MWT distance between groups (<i>p</i> > .05), whereas maximum inspiratory and expiratory pressure further increased in the training group (<i>p</i> > .05). RMS assessment and the identification of children who need it, and adding IMT to CPRP will contribute greatly to the rehabilitative approach of children with CP.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 1","pages":"1-9"},"PeriodicalIF":1.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1905727","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25548554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Kinematic and Temporospatial Changes in Children with Cerebral Palsy during the Initial Stages of Gait Development.","authors":"Rigas Dimakopoulos, George Syrogiannopoulos, Ioanna Grivea, Zoe Dailiana, Sotirios Youroukos, Arietta Spinou","doi":"10.1080/17518423.2021.1914763","DOIUrl":"https://doi.org/10.1080/17518423.2021.1914763","url":null,"abstract":"<p><strong>Purpose: </strong>To identify changes in the gait kinematics and temporospatial parameters of children with bilateral Cerebral Palsy (CP) at 8 months after the onset of independent walking and identify differences to Typical Development (TD) children at the onset of independent walking and at 8 months follow up.</p><p><strong>Method: </strong>Sixteen children with bilateral CP, GMFCS levels I and II, and 15 TD children were recruited. Gait kinematics and temporospatial parameters were recorded using a 3-D gait analysis system; the sagittal plane of the lower limb joints was analyzed. Baseline measurements were recorded at the individual's onset of independent walking and follow up was after 8 months.</p><p><strong>Results: </strong>Compared to baseline, children with bilateral CP demonstrated increased (mean difference ± SE) plantar flexion (11.79 ± 2.96), single support (0.04 ± 0.01), step length (0.2 ± 0.05) and stride length (0.4 ± 0.09), at follow up; all <i>p</i> < .05. Compared to TD children, they also had lower gait speed (0.16 ± 0.05), higher single support (0.02 ± 0.01) and lower maximum knee extension (9.14 ± 4.49) during the swing phase, at baseline and follow up (0.1 ± 0.04, 0.05 ± 0.01, 23.04 ± 4.17, respectively); all <i>p</i> < .05.</p><p><strong>Conclusion: </strong>There are changes in the sagittal plane kinematics and temporospatial parameters of the gait during the first 8 months of independent walking. These indicate gait maturation changes and highlight the impact of walking experience on the gait characteristics of children with bilateral CP.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"25 1","pages":"10-18"},"PeriodicalIF":1.3,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1914763","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38888659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Adnan Barutcu, Saliha Barutcu, Safi Kolkiran, Fatih Ozdener
{"title":"Evaluation of Anxiety, Depression and Burden on Caregivers of Children with Cerebral Palsy.","authors":"Adnan Barutcu, Saliha Barutcu, Safi Kolkiran, Fatih Ozdener","doi":"10.1080/17518423.2021.1917718","DOIUrl":"https://doi.org/10.1080/17518423.2021.1917718","url":null,"abstract":"<p><p>In this study, we investigated the relationship of demographic variables with mental disorders generally encountered by the caregivers. The cohort includes 109 caregivers (38.53 ± 9.62 year-old) of pediatric cerebral palsy patients (1-18 year-old) taken more than 3 months of caregiving. Data were obtained via face-to-face interviews and a 13-questioned survey followed by a statistical correlation with Zarit-Caregiver-Burden-Scale (Zarit-CBS), Beck Anxiety Inventory (BAI), and Beck Depression Inventory-II scores (BDI-II). BAI scores were lower in the case of collaborative caregiving (<i>p</i> = .034) and a better financial status (<i>p</i> = .045) but higher in families having more than 1 disabled child (<i>p</i> = .019). Zarit-CBS scores were significantly higher in caregiving mothers with older age (<i>p</i> = .027) and lower in families having only 1 disabled child (<i>p</i> = .025). Mental disorders related to caregiving are dependent on the burden directed on the caregivers and having collaboration decreases anxiety. Medical assistance should be provided to caregivers showing signs of a mental disorder.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"555-560"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1917718","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38839285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"How Children with Congenital Limb Deficiencies Visually Attend to Their Limbs and Prostheses: Eye Tracking of Displayed Still Images and Visuospatial Body Knowledge.","authors":"Hiroshi Mano, Sayaka Fujiwara, Nobuhiko Haga","doi":"10.1080/17518423.2021.1901151","DOIUrl":"https://doi.org/10.1080/17518423.2021.1901151","url":null,"abstract":"<p><p><b>Purpose</b>: This study aimed to clarify how children with congenital limb deficiencies visually attend to their bodies, particularly their limbs and prostheses.<b>Methods</b>: Participants included children with and without congenital limb deficiencies. They were shown photographs of themselves and their visual attention was measured using an eye tracker.<b>Results</b>: Six children with lower limb deficiencies (age [mean ± SD]: 8.8 ± 2.9; 2 girls and 4 boys), six children with upper limb deficiencies (age: 7.0 ± 2.3; 2 girls and 4 boys), and ten control children (age: 7.7 ± 1.9; 5 girls and 5 boys) were included. Children with congenital upper/lower limb deficiencies looked at their upper/lower limbs as often or more than the control children. Prompts to direct their visual attention to their limbs had limited efficacy.<b>Conclusions</b>: To improve the body knowledge of limbs, approaches other than visual recognition prompting, such as improving linguistic understanding, might be considered.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"547-554"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1901151","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25574313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Maria Borgestig, Isphana Al Khatib, Sandra Masayko, Helena Hemmingsson
{"title":"The Impact of Eye-gaze Controlled Computer on Communication and Functional Independence in Children and Young People with Complex Needs - A Multicenter Intervention Study.","authors":"Maria Borgestig, Isphana Al Khatib, Sandra Masayko, Helena Hemmingsson","doi":"10.1080/17518423.2021.1903603","DOIUrl":"https://doi.org/10.1080/17518423.2021.1903603","url":null,"abstract":"<p><strong>Introduction: </strong>Children and young people with complex needs (severe motor impairments and without speech) have few opportunities to use alternative devices for communication. Eye-gaze controlled computers (EGCCs) might provide individuals with complex needs increased opportunities for communication and participation in society.</p><p><strong>Objective: </strong>To investigate the impact of EGCCs on communication, functional independence and participation in activities in children and young people with complex needs.</p><p><strong>Methods: </strong>A multicenter intervention study during seven months, measuring outcomes with or without EGCC at four time points, was conducted in Sweden, Dubai, and in USA. Seventeen participants (aged 3-26 years, diagnosis e.g. cerebral palsy, Rett syndrome) were provided with EGCC and services from an Assistive Technology center to implement EGCC in school and/or at home.</p><p><strong>Results: </strong>Participants significantly increased their expressive communication skills and functional independence with EGCC compared to baseline. All but one (16 of 17) increased their activity repertoire and computer use with EGCC. With EGCC, participation in computer activities averaged 4.1 performed activities (e.g. communication, play), with a duration of 70 minutes/day and a frequency of 76% of days.</p><p><strong>Discussion: </strong>The study strengthened the research evidence that EGCC can be an effective intervention in daily life for children and young people with complex needs. Communication and independence, common goals of intervention, were shown to be relevant EGCC outcomes.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"511-524"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1903603","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38887570","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Vanessa De Oliveira, Lucas Arrebola, Pedro De Oliveira, Liu Yi
{"title":"Investigation of Muscle Strength, Motor Coordination and Balance in Children with Idiopathic Toe Walking: A Case-control Study.","authors":"Vanessa De Oliveira, Lucas Arrebola, Pedro De Oliveira, Liu Yi","doi":"10.1080/17518423.2021.1899326","DOIUrl":"https://doi.org/10.1080/17518423.2021.1899326","url":null,"abstract":"<p><p><b>Purpose</b>: To compare muscle strength, ankle dorsiflexion range of motion (ROM), motor coordination and balance, between children with and without Idiopathic Toe Walking (ITW).<b>Materials and methods:</b> This is an observational case-control study. The primary outcome is the triceps surae muscle strength. The secondary outcomes are the anterior tibialis muscle strength, lower limb balance, motor coordination, and ankle dorsiflexion ROM. Thirty-eight children were recruited: 19 between 5 to 11 years old with ITW and 19 healthy (control). Ankle dorsiflexion ROM, triceps surae, anterior tibialis muscle strength, motor coordination, and balance were assessed.<b>Results:</b> Children with ITW showed reduced triceps surae strength [mean difference (MD): 16.2 kgf/kg*100; 95% confidence interval (CI) -32.72 to 0.28; <i>p</i> = .05], reduced anterior tibialis strength (MD: 8.5 kgf/kg*100; 95% CI -13.35 to -3.05; p ≤ 0.001), reduced ankle dorsiflexion ROM (MD: 19.6 degrees; 95% CI 15.43 to 23.77; p ≤ 0.001) and impaired motor coordination and balance (MD: 17.7; 95% CI -25.54 to -9.82; p ≤ 0.001) compared to healthy children.<b>Conclusion:</b> Children with Idiopathic Toe Walking, presented in this study, demonstrated triceps surae and anterior tibialis muscle strength reduction, ankle dorsiflexion ROM reduction, impaired motor coordination, and balance compared to healthy children.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"540-546"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1899326","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25511420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarika Sachdeva, Michaela Z Kolarova, Bronwen E Foreman, Samantha J Kaplan, Joan M Jasien
{"title":"A Systematic Review of Cognitive Function in Adults with Spina Bifida.","authors":"Sarika Sachdeva, Michaela Z Kolarova, Bronwen E Foreman, Samantha J Kaplan, Joan M Jasien","doi":"10.1080/17518423.2021.1907813","DOIUrl":"https://doi.org/10.1080/17518423.2021.1907813","url":null,"abstract":"<p><p><b>Background</b>: Though much research has been done on the cognitive profiles of children, the abilities of patients with SBM as they age into adulthood are not well understood.<b>Objective</b>: Determine if adults with SBM have impairments in overall cognition, attention, executive function, and memory compared to typically developing adults or a standardized population mean.<b>Methods</b>: A medical librarian composed a search of spina bifida, adults, and cognitive function. 549 results were screened using title and abstract. Data were extracted using Covidence review software, including risk of bias assessments. 24 studies were included.<b>Results</b>: Memory impairments, notably working and prospective, have been reported. Results in other domains varied. Average VIQ or PIQ did not imply lack of impairment in other specific domains.<b>Conclusion</b>: Memory impairments should be accounted for and neuropsychological testing should be considered when providing care to adults with SBM. Future longitudinal cognitive aging and interventional studies are needed.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"569-582"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1907813","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38821167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Improving the Use of Deictic Verbs in Children with Autism Spectrum Disorder.","authors":"Hiroshi Asaoka, Chitose Baba, Natsumi Fujimoto, Chisa Kobayashi, Fumiyuki Noro","doi":"10.1080/17518423.2021.1964004","DOIUrl":"https://doi.org/10.1080/17518423.2021.1964004","url":null,"abstract":"<p><p><i>Background</i>: Children with autism spectrum disorder (ASD) show difficulty in comprehension and production of the deictic verbs \"come/go.\" <i>Objective</i>: To examine whether introducing conditions related to daily conversations into training would improve the use of deictic verbs. <i>Methods</i>: Six Japanese children with ASD participated. We set up multiple scenes where the questioner presented the sentence using \"come/go\" with/without deictic gestures, and children with ASD replied with \"come/go.\" The conditions such as spatial relations between the two parties (face-to-face or side-by-side) and presentations of the gestures (moving one's arm toward or away from the body or moving one's upper body forward/backward) were introduced. <i>Results</i>: The appropriate use of deictic verbs during training and in daily life situations among children with ASD increased. <i>Conclusions</i>: Training children with ASD to look in the direction indicated by the questioner and to synchronize their bodies with the questioner's movements promotes their acquisition of deictic verbs.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"525-539"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39324963","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Discharge nurse intervention on a pediatric rehabilitation unit: Retrospective chart review to evaluate the Does it impact on number of unmet needs during the transition home following neurological injury.","authors":"Rebecca Busch, Rhonda G Cady","doi":"10.1080/17518423.2021.1915403","DOIUrl":"https://doi.org/10.1080/17518423.2021.1915403","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study is to describe the post-discharge needs of children and adolescents when transitioning home after an inpatient comprehensive rehabilitation stay following an acute neurological injury and to evaluate if trends in those needs changed with implementation of a discharge nurse intervention.</p><p><strong>Design: </strong>Retrospective medical record review was conducted 1-year prior (T1) and 1-year after (T2) a discharge nurse intervention.</p><p><strong>Methods: </strong>Medical charts of 80 pediatric patients with acute neurological injury (T1 = 39; T2 = 41) were reviewed. Post-discharge communication from the 8-week post-discharge period was reviewed to identify and categorize care coordination needs, using 18 pre-defined care coordination categories. T1 and T2 findings were compared using two sample proportion z-test.</p><p><strong>Findings: </strong>Patients discharged following inpatient rehabilitation for acute neurological injury have unmet care coordination needs. The proportion of unmet needs decreased significantly for 10/18 care coordination categories after implementation of the discharge nurse intervention.</p><p><strong>Conclusions: </strong>Data from this study support proactive care coordination by inpatient rehabilitation nurses to reduce unmet post-discharge care coordination needs and provides preliminary evidence that the role of a discharge nurse may have a positive impact on the transition from inpatient rehabilitation to home.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":"24 8","pages":"561-568"},"PeriodicalIF":1.3,"publicationDate":"2021-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1915403","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38905958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}