Developmental Neurorehabilitation最新文献

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Examination of multiple birth as a predictor of autism symptom severity and developmental functioning in an early intervention sample 早期干预样本中多胞胎检查作为自闭症症状严重程度和发育功能的预测指标
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-03-06 DOI: 10.1080/17518423.2022.2047120
Esther Hong, Abigail Issarraras, J. Matson, Joshua J. Montrenes, Paige A. Weir
{"title":"Examination of multiple birth as a predictor of autism symptom severity and developmental functioning in an early intervention sample","authors":"Esther Hong, Abigail Issarraras, J. Matson, Joshua J. Montrenes, Paige A. Weir","doi":"10.1080/17518423.2022.2047120","DOIUrl":"https://doi.org/10.1080/17518423.2022.2047120","url":null,"abstract":"ABSTRACT Multiple birth is one of several perinatal factors associated with increased risk for autism spectrum disorder (ASD); however, complexity in its relationship to ASD symptoms and developmental functioning remains. The present study investigated perinatal risk factors for ASD, primarily focusing on birth status, within a large early intervention sample. In particular, the relationship between ASD, perinatal factors, and the effect of birth status on developmental functioning and ASD symptom severity were examined in youth with and without ASD classification who were born singly or were the product of a multiple birth. Overall, the presence of other perinatal risk factors, including prematurity, low birth weight, and advanced parental age, was primarily related to birth status and not to ASD classification, while severity of ASD symptoms and developmental impairments were primarily related to ASD classification and not to birth status. Study findings and implications for early screening of children with developmental delays are discussed.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44958656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Participation restriction of children with cerebral palsy living in Thailand and influential factors: A cross-sectional study 泰国脑瘫儿童参与限制及其影响因素的横断面研究
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-28 DOI: 10.1080/17518423.2022.2047121
T. Ploypetch, C. Buasuk, K. Pajareya
{"title":"Participation restriction of children with cerebral palsy living in Thailand and influential factors: A cross-sectional study","authors":"T. Ploypetch, C. Buasuk, K. Pajareya","doi":"10.1080/17518423.2022.2047121","DOIUrl":"https://doi.org/10.1080/17518423.2022.2047121","url":null,"abstract":"ABSTRACT Objective To explore participation in daily activities of children with cerebral palsy(CP) in Thailand and influential factors. Methods A convenience sample of family-caregivers of 80 children with CP, 6–18 year-old, completed self-administered questionnaires (i.e., frequency of participation, Gross Motor Function Classification System-Family Report) during clinic visits at a university hospital. Results Family-caregivers reported that more than one-third of the children never participated in outdoor activities. The gap in the frequency of participation between groups with high versus low motor function was very high. Better gross motor and communication were strong predictors of participation. Caregiver’s education and family income were associated with participation in art/cultural, leisure and tourist activities. Conclusions Family-caregiver-report suggests that Thai-children with CP, especially those with severe impairments, have limited participation in daily activities. Increasing mobility and communication may promote the participation. Comprehensive intervention is needed to narrow the participation gap found between high and low functioning children.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43658814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Goal-oriented locomotion in children with spastic diplegia: Anticipatory orienting strategies and trajectory formation 痉挛性双瘫儿童的目标定向运动:预期定向策略和轨迹形成
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-28 DOI: 10.1080/17518423.2022.2047122
Alexander Castilla, A. Berthoz, G. Cioni, V. Belmonti
{"title":"Goal-oriented locomotion in children with spastic diplegia: Anticipatory orienting strategies and trajectory formation","authors":"Alexander Castilla, A. Berthoz, G. Cioni, V. Belmonti","doi":"10.1080/17518423.2022.2047122","DOIUrl":"https://doi.org/10.1080/17518423.2022.2047122","url":null,"abstract":"ABSTRACT Goal-oriented locomotion (GOL) is a complex task integrating navigation and gait control. To our knowledge, this is the first study of GOL in subjects with Cerebral Palsy (CP). Thirteen subjects with spastic diplegia and 26 with typical development were enrolled in the study. Subjects performed a GOL task to reach luminous targets. Within-subject trajectory variability, maximal head deviation from trajectory and mean head anticipation over trajectory were analyzed. While all subjects showed gait impairment, only 8 of 13 subjects also showed navigation abnormalities as revealed by either: a) abnormal head orientation and trajectory formation, or b) abnormal head orientation with normal trajectory formation. Abnormal gait patterns do not account for and can be distinguished from navigation disorders in spastic diplegic CP. This distinction has important implications for novel rehabilitation methods that should specifically address navigation, not only gait.","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46600976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Clinical utilisation of the Infant Monitor of vocal Production (IMP) for early identification of communication impairment in young infants at-risk of cerebral palsy: a prospective cohort study. 临床应用婴儿发声监视器(IMP)早期识别有脑瘫风险的幼儿沟通障碍:一项前瞻性队列研究。
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-07-09 DOI: 10.1080/17518423.2021.1942280
R Ward, N Hennessey, E Barty, C Elliott, J Valentine, R Cantle Moore
{"title":"Clinical utilisation of the Infant Monitor of vocal Production (IMP) for early identification of communication impairment in young infants at-risk of cerebral palsy: a prospective cohort study.","authors":"R Ward,&nbsp;N Hennessey,&nbsp;E Barty,&nbsp;C Elliott,&nbsp;J Valentine,&nbsp;R Cantle Moore","doi":"10.1080/17518423.2021.1942280","DOIUrl":"https://doi.org/10.1080/17518423.2021.1942280","url":null,"abstract":"<p><strong>Aim: </strong>To report prospective longitudinal data of early vocaliszations of infants identified \"at-risk\" of cerebral palsy (CP) for early identification of communication impairment.</p><p><strong>Method: </strong>This case-control longitudinal prospective cohort study reports on the assessment of 36 infants, 18 identified as at-risk of CP at the time of enrolment and 18 typically developing (TD) children, at three time points: 6 months, 9 months and 12 months of age, Data were obtained through criterion and norm referenced assessments of vocaliszation behaviors.</p><p><strong>Results: </strong>Early vocal behaviors of infants identified as at-risk of CP did not differ from their age matched peers at 6 months of age, however, significant group differences emerged at 9 and 12 months when pre-canonical and canonical babble typically emerge. Generalized linear mixed models analysis showed that the rate of development of early language ability and more complex speech-related vocal behaviors was slower for infants at risk of CP when compared to TD infants, with over 75% of infants with CP showing below normal vocal production and impaired language by 12 months of age.</p><p><strong>Interpretation: </strong>Our data suggest characteristics of infant vocalizations associated with pre-canonical and canonical babbling provide a strong evidence base for predicting communication outcomes in infants at risk of CP.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1942280","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39167883","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 6
Examination of the effects of age, sex, and motor ability level on balance capabilities in children with cerebral palsy GMFCS levels I, II, III and typical development using the Pediatric Balance Scale. 应用小儿平衡量表探讨年龄、性别、运动能力水平对脑瘫儿童GMFCS I、II、III级及典型发育平衡能力的影响
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-07-20 DOI: 10.1080/17518423.2021.1943033
Mary Rose Franjoine, Nancy Darr, Brenda Young, Sally Westcott McCoy, Alyssa LaForme Fiss
{"title":"Examination of the effects of age, sex, and motor ability level on balance capabilities in children with cerebral palsy GMFCS levels I, II, III and typical development using the Pediatric Balance Scale.","authors":"Mary Rose Franjoine,&nbsp;Nancy Darr,&nbsp;Brenda Young,&nbsp;Sally Westcott McCoy,&nbsp;Alyssa LaForme Fiss","doi":"10.1080/17518423.2021.1943033","DOIUrl":"https://doi.org/10.1080/17518423.2021.1943033","url":null,"abstract":"<p><strong>Purpose: </strong>Explore effects of age, sex, and motor ability level on balance capabilities in preschoolers with and without Cerebral Palsy (CP).</p><p><strong>Method: </strong>PBS was administered to 477 children 24 through 59 months: 258 with typical development (TD) and 219 with CP GMFCS levels I, II and III.</p><p><strong>Results: </strong>3-way ANOVA indicated PBS scores were significantly affected by age (F4,437=26.95, p<0.0001, η2p=0.198), motor ability level (F3,437=482.15, p<0.0001, η<sup>2</sup>p=0.768) and sex (F1,437=4.64, p<0.03, η<sup>2</sup>p=0.01) with significant interaction between motor ability level and age (F 12,437=5.25, p<0.001, η<sup>2</sup>p=0.126). Children's performance on individual items was analyzed by age, sex and motor ability level.</p><p><strong>Conclusion: </strong>Children with TD outperformed children with CP GMFCS level I 36-59 months and children with CP GMFCS levels II and III 24-59 months. Expected performance values for children with TD and children with CP, ages 24-59 months, at GMFCS levels I, II and III are provided.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1943033","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39202053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
Utility of the Ages and Stages Questionnaires 3rd Edition for Developmental Screening in Children with Surgically Repaired Congenital Heart Disease. 年龄和阶段问卷第三版在手术修复先天性心脏病患儿发育筛查中的应用
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-08-08 DOI: 10.1080/17518423.2021.1960918
Julien Lépine, Karine Gagnon, Joëlle Prud'homme, Marie Claude Vinay, Amélie Doussau, Solène Fourdain, Sarah Provost, Véronique Belval, Catherine Bernard, Anne Gallagher, Nancy Poirier, Marie-Noëlle Simard
{"title":"Utility of the Ages and Stages Questionnaires 3rd Edition for Developmental Screening in Children with Surgically Repaired Congenital Heart Disease.","authors":"Julien Lépine,&nbsp;Karine Gagnon,&nbsp;Joëlle Prud'homme,&nbsp;Marie Claude Vinay,&nbsp;Amélie Doussau,&nbsp;Solène Fourdain,&nbsp;Sarah Provost,&nbsp;Véronique Belval,&nbsp;Catherine Bernard,&nbsp;Anne Gallagher,&nbsp;Nancy Poirier,&nbsp;Marie-Noëlle Simard","doi":"10.1080/17518423.2021.1960918","DOIUrl":"https://doi.org/10.1080/17518423.2021.1960918","url":null,"abstract":"<p><p><i>Aim</i>: This study sought to evaluate the accuracy of the Ages and Stages Questionnaires 3rd Edition (ASQ-3) in identifying developmental delay (DD) in children with congenital heart disease (CHD) born at term who underwent surgical repair.<i>Methods</i>: Participants had to complete ASQ-3 and Bayley Scales of Infant and Toddler Development 3rd Edition (BSID-III) at 12 and 24 months. A child was considered at risk of DD for a ASQ-3 domain when he scored below the cutoff (≤-1SD or ≤-2SD). A child had a DD in a BSID-III domain when the score was ≤-1SD. The validity for each ASQ-3 domain and for overall ASQ-3 was measured.<i>Results</i>: At 12 months (n = 64), overall ASQ-3 (≤-2SD) sensitivity was 88%, specificity 74%. At 24 months (n = 82), overall ASQ-3 (≤-2SD) sensitivity was 74%, specificity 88%.<i>Conclusion</i>: The results support the utility of the ASQ-3 for screening the overall risk of DD in children with CHD.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39291867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
"The Value of Clinical Examination in Preterm Newborns after Neonatal Sepsis: A Cross-sectional Observational Study." “新生儿败血症后早产新生儿临床检查的价值:一项横断面观察研究”。
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-08-04 DOI: 10.1080/17518423.2021.1941372
Marina Ortega Golin, Fabíola Isabel Suano Souza, Laércio da Silva Paiva, Roseli Oselka Sacardo Sarni
{"title":"\"The Value of Clinical Examination in Preterm Newborns after Neonatal Sepsis: A Cross-sectional Observational Study.\"","authors":"Marina Ortega Golin,&nbsp;Fabíola Isabel Suano Souza,&nbsp;Laércio da Silva Paiva,&nbsp;Roseli Oselka Sacardo Sarni","doi":"10.1080/17518423.2021.1941372","DOIUrl":"https://doi.org/10.1080/17518423.2021.1941372","url":null,"abstract":"<p><strong>Background: </strong>Neonatal sepsis is an important risk factor for lesions in the brain of preterm newborns (PTNB) and the most effective strategies to minimize its deleterious effects are early detection and intervention.</p><p><strong>Aim: </strong>To investigate the presence of neurological abnormalities in PTNBs after neonatal sepsis.</p><p><strong>Methods: </strong>This was a prospective cross-sectional study with 100 PTNBs selected at random, 50 of the study group (sepsis) and 50 of the control group (non-sepsis). The neurological evaluation protocol adopted was the Hammersmith Neonatal Neurological Examination (HNNE).</p><p><strong>Results: </strong>The PTNBs of the sepsis group had total HNNE scores lower than expected for normality in 86% of the cases, and the non-sepsis group in 26% (<i>p</i> < .001). Higher prevalence levels of altered scores in tone category (<i>p</i> < .001), tone patterns (<i>p</i> = .026), reflexes (<i>p</i> = .002), movements (<i>p</i> < .001), abnormal signs (<i>p</i> < .001) and behavior (<i>p</i> < .001).</p><p><strong>Conclusion: </strong>The neurological dysfunctions after neonatal sepsis could be identified by clinical neonatal neurological evaluation.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1941372","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39273736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition Program from School to Employment in Youths with Intellectual Disability: Evaluation of the Irish Pilot Study E-IDEAS. 智障青年从学校到就业的过渡计划:爱尔兰试点研究E-IDEAS的评估。
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-06-29 DOI: 10.1080/17518423.2021.1941373
Ivan Traina, Arlene Mannion, Geraldine Leader
{"title":"Transition Program from School to Employment in Youths with Intellectual Disability: Evaluation of the Irish Pilot Study E-IDEAS.","authors":"Ivan Traina,&nbsp;Arlene Mannion,&nbsp;Geraldine Leader","doi":"10.1080/17518423.2021.1941373","DOIUrl":"https://doi.org/10.1080/17518423.2021.1941373","url":null,"abstract":"<p><strong>Aim: </strong>The purpose of this pilot was to evaluate the effectiveness of the E-IDEAS curriculum, specifically designed for workplace inclusion of youths with intellectual disabilities (ID) and aimed to transfer social, communication, independent living and employment skills.</p><p><strong>Method: </strong>The curriculum was attended by 5 participants, and it was provided concurrently with five different work-placements across a period of six months. Two assessment tools were used to demonstrate the acquisition of such skills and an evidence-base improvement of their quality of life. Pre and post-intervention standardized assessments were also taken for measuring the improvement in quality of life (through the San Martín Scale) and adaptive behavior (through the Vineland-II Adaptive Behavior Scale).</p><p><strong>Results: </strong>The data collected showed increases in the acquisition of such skills. Evidence of maintenance and generalization were also demonstrated.</p><p><strong>Conclusion: </strong>Implications for practice and further research are discussed.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1941373","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39117380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report. 在两个患有自闭症的青少年的父亲和母亲组成的双语家庭中提供由家长管理的结果测量:简要报告。
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-06-25 DOI: 10.1080/17518423.2021.1942281
Laura Del Hoyo Soriano, Lauren Bullard, Angela John Thurman, Cesar Hoyos Alvarez, Leonard Abbeduto
{"title":"Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.","authors":"Laura Del Hoyo Soriano, Lauren Bullard, Angela John Thurman, Cesar Hoyos Alvarez, Leonard Abbeduto","doi":"10.1080/17518423.2021.1942281","DOIUrl":"10.1080/17518423.2021.1942281","url":null,"abstract":"<p><p>There is a need for psychometrically sound outcome measures for treatment studies that have a low burden for families and that are available in multiple languages. We have developed a language assessment in English and Spanish that parents can administer to their children at home via telehealth-delivered procedures. The current case study presents descriptive data on a single family of two parent-child dyads. Both the mother and father from a single family were trained in their primary language (Spanish) on how to administer the Expressive Language Sampling - Narration (ELS-N) in their secondary language (English) to their two English-speaking monolingual sons with ASD through telehealth-delivered procedures. Both parents learned to administer the procedures to a predetermined level of fidelity. Extension to a larger sample of bilingual families is needed for this home-based, parent-administered test; however, the present results suggest feasibility even when the language of training and administration differ.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8709875/pdf/nihms-1739759.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39107733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Rett Syndrome Gross Motor Scale - Dutch Version (RSGMS-NL) Can Reliably Assess Gross Motor Skills in Dutch Individuals with Rett Syndrome. Rett综合征大运动量表-荷兰版(RSGMS-NL)可以可靠地评估荷兰Rett综合征患者的大运动技能。
IF 1.3 4区 医学
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-08-04 DOI: 10.1080/17518423.2021.1960920
Hanneke Borst, Josianne Weeda, Jenny Downs, Leopold Curfs, Rob de Bie
{"title":"The Rett Syndrome Gross Motor Scale - Dutch Version (RSGMS-NL) Can Reliably Assess Gross Motor Skills in Dutch Individuals with Rett Syndrome.","authors":"Hanneke Borst,&nbsp;Josianne Weeda,&nbsp;Jenny Downs,&nbsp;Leopold Curfs,&nbsp;Rob de Bie","doi":"10.1080/17518423.2021.1960920","DOIUrl":"https://doi.org/10.1080/17518423.2021.1960920","url":null,"abstract":"<p><strong>Aim: </strong>The Rett Syndrome Gross Motor Scale (RSGMS) is an observational measurement, assessing gross motor skills in individuals with Rett syndrome. A Dutch version is lacking. The current study aims to translate and cross-culturally adapt the original RSMGS to Dutch and assess its inter-rater and intra-rater reliability.</p><p><strong>Design: </strong>Translation and cross-cultural adaptation were performed in concordance with internationally accepted guidelines. A pretest was performed, and expert validation was assured. Video data of three girls with Rett syndrome was independently assessed by 27 physiotherapists via an online webinar to measure inter-rater reliability. Additionally, videos of 17 individuals with Rett syndrome were scored twice by two raters to assess intra-rater reliability. The reliability of the total score, the three subscale scores and the new items were analyzed using Intraclass Correlation Coefficients (ICC).</p><p><strong>Results: </strong>Good comprehensibility and expert validation of the RSMGS-NL was achieved, and four items were added to the original scale. Inter-rater reliability for the total score was excellent (ICC 0.97, 95% CI 0.89-0.99), and good to perfect inter-rater reliability for the three subscales; Sitting, Standing & walking and Challenge was found (ICC values 1.0 (95% CI 0), 0.98 (95% CI 0.91-0.99) and 0.82 (95% CI 0.93-0.99) respectively). The intra-rater reliability was excellent for the total test score (ICC 0.98, 95% CI 0.97-0.99) and good to excellent for the subscale scores (ICC values 0.87 (95% CI 0.75-0.94), 0.99 (95% CI 0.98-1.0) and 0.97 (95% CI 0.95-0.99) respectively). The four new items (Standing to sitting, walking down a slope, ascending the stairs, descending the stairs) showed good to excellent intra-rater reliability.</p><p><strong>Conclusion: </strong>The RSGMS-NL is a reliable measure of gross motor skills in Dutch individuals with Rett syndrome.</p>","PeriodicalId":51227,"journal":{"name":"Developmental Neurorehabilitation","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2022-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/17518423.2021.1960920","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39274242","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
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