Hanneke Borst, Josianne Weeda, Jenny Downs, Leopold Curfs, Rob de Bie
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引用次数: 1
Abstract
Aim: The Rett Syndrome Gross Motor Scale (RSGMS) is an observational measurement, assessing gross motor skills in individuals with Rett syndrome. A Dutch version is lacking. The current study aims to translate and cross-culturally adapt the original RSMGS to Dutch and assess its inter-rater and intra-rater reliability.
Design: Translation and cross-cultural adaptation were performed in concordance with internationally accepted guidelines. A pretest was performed, and expert validation was assured. Video data of three girls with Rett syndrome was independently assessed by 27 physiotherapists via an online webinar to measure inter-rater reliability. Additionally, videos of 17 individuals with Rett syndrome were scored twice by two raters to assess intra-rater reliability. The reliability of the total score, the three subscale scores and the new items were analyzed using Intraclass Correlation Coefficients (ICC).
Results: Good comprehensibility and expert validation of the RSMGS-NL was achieved, and four items were added to the original scale. Inter-rater reliability for the total score was excellent (ICC 0.97, 95% CI 0.89-0.99), and good to perfect inter-rater reliability for the three subscales; Sitting, Standing & walking and Challenge was found (ICC values 1.0 (95% CI 0), 0.98 (95% CI 0.91-0.99) and 0.82 (95% CI 0.93-0.99) respectively). The intra-rater reliability was excellent for the total test score (ICC 0.98, 95% CI 0.97-0.99) and good to excellent for the subscale scores (ICC values 0.87 (95% CI 0.75-0.94), 0.99 (95% CI 0.98-1.0) and 0.97 (95% CI 0.95-0.99) respectively). The four new items (Standing to sitting, walking down a slope, ascending the stairs, descending the stairs) showed good to excellent intra-rater reliability.
Conclusion: The RSGMS-NL is a reliable measure of gross motor skills in Dutch individuals with Rett syndrome.
目的:Rett综合征大运动量表(RSGMS)是一种观察性测量方法，用于评估Rett综合征患者的大运动技能。缺少荷兰语版本。本研究的目的是翻译和跨文化适应原始的荷兰语RSMGS，并评估其内部和内部的可靠性。设计:按照国际通行的指导方针进行翻译和跨文化改编。进行了预试，并保证了专家的验证。27名物理治疗师通过在线网络研讨会对三名Rett综合征女孩的视频数据进行了独立评估，以衡量评分者之间的可靠性。此外，17名Rett综合征患者的视频由两名评分者进行两次评分，以评估评分者内部的可靠性。采用类内相关系数(Intraclass Correlation Coefficients, ICC)分析总分、三个分量表得分和新条目的信度。结果:RSMGS-NL量表具有较好的可理解性和专家验证性，并在原量表基础上增加了4项内容。总分的评分间信度极好(ICC 0.97, 95% CI 0.89-0.99)，三个分量表的评分间信度为良好至完美;发现了坐、站、走和挑战(ICC值分别为1.0 (95% CI 0)、0.98 (95% CI 0.91-0.99)和0.82 (95% CI 0.93-0.99))。总体测试分数的评分者内信度极佳(ICC 0.98, 95% CI 0.97-0.99)，子量表得分的评分者内信度极佳(ICC值分别为0.87 (95% CI 0.75-0.94)、0.99 (95% CI 0.98-1.0)和0.97 (95% CI 0.95-0.99))。四个新项目(站到坐，走下斜坡，上楼梯，下楼梯)显示出良好到优秀的内部可靠性。结论:RSGMS-NL是衡量荷兰Rett综合征患者大肌肉运动技能的可靠指标。
期刊介绍：
Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.
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